Shows
If We Knew Then - Down Syndrome Podcast162. Living In The Moment and Taking the Time to Reflect On LifeFollow Stephen while he unexpectedly flies back to Louisiana due to his mother’s illness. He reflects on the importance of experiencing all of life’s moments and truly being present.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/10/22/162-living-in-the-moment/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you join...2023-10-2308 min
If We Knew Then - Down Syndrome Podcast161. Down Syndrome Awareness Month 2023: Bringing Awareness to Our Community’s PotentialOctober is Down Syndrome Awareness Month and in this episode, Stephen and Lori discuss another angle in your next Awareness Campaign. Some of the most important people to make aware of our community's potential are educational professionals. We as parents can advocate but it just might be our children who change the minds of those in charge of their education.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/10/14/161-down-syndrome-awareness-month-2023-bringing-awareness-to-our-communitys-potential/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send...2023-10-1630 min
If We Knew Then - Down Syndrome Podcast120. The Secret Episode - Living For The MomentsStephen recorded a solo episode this week, unbeknownst to the family, to express some things that have been on his mind and as a nice surprise to Lori and the kids whenever they come across it. It’s kind of a time capsule episode focused on this present moment and how there is nothing as important as right now.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/10/21/120-the-secret-episode-living-for-the-moments/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an em...2022-10-2222 min
If We Knew Then - Down Syndrome Podcast115. Functional Nutrition with Dr. Vaish SarathyVaish is a Functional Nutrition Practitioner and Science Educator. She is the founder of Functional Nutrition for Kids, and Plum Pudding Chemistry, both practices designed to optimize the learning potential of kids with Down Syndrome and/or Autism using both Functional Medicine and Non-Linear Education Principles.
Website: https://functionalnutritionforkids.com
Constipation Tool Kit: https://functionalnutritionforkids.com/constipationtoolkit
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/09/08/115-functional-nutrition-with-dr-vaish-sarathy/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an...2022-09-1056 min
If We Knew Then - Down Syndrome Podcast114. Liam Goes To Middle School: Leaving The Past Behind UsWe have learned a lot, some harsh realities and beautiful truths. We now move forward with eyes wide open, ready to learn from where we have been, into the unknown of middle school.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/09/02/114-liam-starts-middle-school/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward...2022-09-0337 min
If We Knew Then - Down Syndrome Podcast113. Student Led IEPs to Determine Ones Own Path of Self-Advocacy with Ellen CoulstonThe discussion on Self Determination in episode 83, developed into an examination of the term “Self Determination” and what it means in the scope of determining ones self and ones path. In this episode with Ellen Coulston we discuss Self Determination as a tool to promote independence, confidence and participation by student led IEP planning, making that student a part of the dialogue instead of a 3rd person participant in a conversation about their life goals.
I’m Determined: https://www.imdetermined.org
LifeCourse: https://www.lifecoursetools.com/
Ellen’s Podcast: ieproadtofreedom.com
Ellen on...2022-08-2045 min
If We Knew Then - Down Syndrome Podcast112. Seeing The Whole Child: Our Conversation with Licensed Child Psychologist Dr. Beverly CelottaIn this conversation we sit down with Dr. Beverly Celotta. Bev is a retired Licensed Child Psychologist who shares her knowledge about how to set all children up for success.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/08/11/112-dr-beverly-celotta/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining...2022-08-1354 min
If We Knew Then - Down Syndrome Podcast111. Kicking Down Barriers: Our Conversation with College Kicker Caden CoxIn this episode we sit down with Caden Cox and his parents, Mari and Kevin, to talk about their history making and game changing journey to inclusion. Caden is the first person with Down syndrome to play as well as score in a NCAA/NJCCA College football game.
Caden’s JakeMax Collection: https://www.jakemax.com/collections/cadens-collection
'NEVER, is not in My Vocabulary' College Paper: https://www.dropbox.com/s/vm0d2tjtqs1r5ss/NEVER%2C%20is%20Not%20in%20My%20Vocabulary.pdf?dl=0
Caden’s College Power Point Presentation: https://www.drop...2022-08-0652 min
If We Knew Then - Down Syndrome Podcast110. The Future of Research and the Hope on the Horizon with Eric RubensteinThis week we have a wonderful conversation with Dr. Eric Rubenstein, an Assistant Professor in the Department of Epidemiology at Boston University. We discuss equality and inclusion in research as it pertains to Down syndrome.
Eric’s Website: https://sites.bu.edu/rubenstein/
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/07/29/110-the-future-of-research-and-the-hope-on-the-horizon-with-eric-rubenstein/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get ale...2022-07-3055 min
If We Knew Then - Down Syndrome Podcast109. Parenting Is Parenting: A Conversation with Paul and Kerry DaughertyToday we have an open and candid conversation with the author of ‘An Uncomplicated Life’ Paul Daugherty and his wife Kerry about their approach to early education, college, dating, sex, marriage and lots of other things we are told our kids won’t do. ‘An Uncomplicated Life’ is a book we wish we would have found earlier with the beautiful message of “expecting instead of accepting”. Whether you have a person with Down syndrome in your life or not, this book should be one you read and then share with others.
Paul's Book: https://www.amazon.com/Uncomplicated...2022-07-2357 min
If We Knew Then - Down Syndrome Podcast108. Playground of Empathy and Empathable with Micah KesselIn this episode we find a way to inclusion through empathy. Our conversation with Micah Kessel was an empowering and insightful discussion offering ways to focus our advocacy and to come from a more nurturing and loving place. Micah is the creator of Empathable and Playground of Empathy. These organizations work nationally with world-renowned academics to bridge science, technology, and art to amplify the intersectional experiences of the underserved at your place of business or learning.
Empathable: https://empathable.com
Playground of Empathy: https://empathable.com/playground/
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/07/14/108...2022-07-161h 01
If We Knew Then - Down Syndrome Podcast107. Graduating Elementary School: A Culmination of What We LearnedLiam graduated from elementary school, on curriculum, in an inclusive classroom with his peers. We reflect on the moments that led to his accomplishment and what we could have done better if we knew then.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/07/07/107-graduating-elementary-school-a-culmination-of-what-we-learned/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we...2022-07-0943 min
If We Knew Then - Down Syndrome Podcast106. Zeno Mountain Farm: Telling Stories of Diversity and Inclusion - Ila HalbyIt was so nice spending some time with founder Ila Halby to talk about the Zeno Mountain Farm Camps, their feature film “Best Summer Ever” and the power of representation in film. Whether used as a noun or a verb, Zeno stands for inclusion.
Zeno’s Website: https://zenomountainfarm.org
Zeno’s IG: https://www.instagram.com/zenomountainfarm/
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/06/23/106-zeno-mountain-farm-telling-stories-of-diversity-and-inclusion-ila-halby/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us...2022-06-2547 min
If We Knew Then - Down Syndrome Podcast105. The Improvaneer Method: Using Improvisation To Build Skills and Change Perceptions - An interview with Rob SnowIn this episode we are joined by Rob Snow, the founder of The Improvaneer Method. The Improvaneer Method uses improvisation to build skills that will greatly improve social, workplace and lifetime opportunities in those with developmental disabilities. With both in-person and online classes, it is widely assessable and has been a real game changer for many people in our community. We also talk briefly about Rob’s book, ‘What I Should Have Said’ and his ‘Minimize The Mountain’ talk.
Improvaneer Method: https://www.theimprovaneermethod.com/
Rob’s Book ‘What I Should Have Said’: https://www.weneedasign.net/th...2022-06-1856 min
If We Knew Then - Down Syndrome Podcast104. Lena Dunham: A Champion For Diversity and InclusionThis week we are honored to interview actress, writer, producer and director Lena Dunham. Lena cast our son, Liam, in her film SHARP STICK and it was one of the most supportive, inclusive and beautiful experiences we’ve had on this journey. Her set was a model environment for our society and we talk to her about how she developed her advocacy for so many marginalized groups and individuals, what she learned from working with Liam and her future family plans.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/06/08/104-lena-dunham-a-champion-for-diversity-and-inclusion/2/
Please follow us on Twitter @ifweknewthenPOD you ca...2022-06-1154 min
If We Knew Then - Down Syndrome Podcast103. Finding Our Way Through A Tough Conversation - Lynette Louise*Trigger Warning: The r-word is used in this conversation.
This week we interview Lynette Louise who is board certified in Neurofeedback. We were very interested in the science of Neurofeedback but early on in the conversation we moved to a serious discussion about the use of the r-word and the reasons why Lynette uses it. This episode may feel a bit intense for many of you and we understand why, but we highly recommend listening all the way through to the end.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/06/03/103-finding-our-way-through-a-tough-conversation-lynette-louise/2/
Please follow us on...2022-06-0459 min
If We Knew Then - Down Syndrome Podcast102. DSC2U: Preventative and Proactive Means To Staying Healthy with Dr. Brian SkotkoThis week we get to talk to Dr. Brian Skotko again! Dr. Brian has some updates to DSC2U.org to discuss and we also chat about the T21RS International Conference that will be taking place in Long Beach, CA. June 9-12.
Dr. Brian Skotko is the director of the Down Syndrome Program at Massachusetts General Hospital, a Board-certified medical geneticist and has dedicated his professional energies toward children with cognitive and developmental disabilities.
DSC2U: https://www.dsc2u.org
5-min video about DSC2U: https://youtu.be/u-DlSQanj54
Tr...2022-05-2852 min
If We Knew Then - Down Syndrome Podcast101. Learning To Take Things Step By Step: with Michelle & Paul TesoriWe were so fortunate to get to spend some time with Michelle and Paul Tesori. We met this Dynamic Duo through our good friend, actor Andy Buckley, and it is fitting that this episode is being released on PGA Championship weekend since Paul has been a PGA Tour caddie for nearly 20 years. Inspired by their son Isiah, Michelle and Paul created the Tesori Family Foundation to help support the Down syndrome community. We talk about education frustrations, what the Tesori's are doing to make a change and how we can harness our anger into a motivator to make a...2022-05-211h 00
If We Knew Then - Down Syndrome Podcast100. Celebrating 100 EpisodesWell here we are! We’ve learned so much in these two years and one hundred episodes and take this time to reflect on this experience and focus on where we go next.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/05/13/100-celebrating-100-episodes/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look fo...2022-05-1436 min
If We Knew Then - Down Syndrome Podcast99. Remembering Your Power: Happy Mother’s DayHappy Mother’ Day! We dedicate this Mothers Day episode to celebrating your power and strength.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/05/06/99-remembering-your-power-happy-mothers-day/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
2022-05-0625 min
If We Knew Then - Down Syndrome Podcast98. The Easterseals Disability Film Challenge and The Importance of Everyone’s Story Being ToldThis week we discuss the details of the 2022 Easterseals Disability Film Challenge. We touch upon how and why we created this year's film, what the challenge has meant to our family in the last eight years and how allowing other's to share their stories is the key to true inclusion.
Our Entry’s Youtube Link: https://youtu.be/O_ENIwMCKls
Our Entry’s Website: www.JustForOneDayFilm.com
All Our Previous Entry's: https://ttmaba.com/dfc
The Festival’s Website: https://disabilityfilmchallenge.com
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/04/14/98-the-easterseals-disability-film-challenge-and-the-importance-of-everyones-story-being-told/2/
...2022-04-1625 min
If We Knew Then - Down Syndrome Podcast97. Trusting Your Journey and Embracing The Pivot - Karen Maezen MillerIn this episode we sit down with Maezen and discuss the different paths this journey has taken us, the pivot in directions we have chosen, how to trust those choices and allow some ease and embrace the gifts.
Maezen’s Book on Amazon: https://www.amazon.com/Karen-Maezen-Miller/e/B001JP2RQ0/ref=dp_byline_cont_pop_book_1
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/04/07/97-trusting-your-journey-and-embracing-the-pivot-karen-maezen-miller/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an...2022-04-0955 min
If We Knew Then - Down Syndrome Podcast96. The Power Of Words: The Words We’ve Learned and How They Give Us PowerIn this episode we talk about some of the language/words we have learned that have had a profound impact on our journey and more specifically our quest for equality in Liam’s education.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/04/01/96-the-power-of-words-the-words-weve-learned-and-how-they-give-us-power/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look fo...2022-04-0222 min
If We Knew Then - Down Syndrome Podcast95. Aorta Borealis: Telling His Story Through Music with Jesse NorellIn this episode we talk with Jesse Norell whose daughter’s diagnosis of Down syndrome and a heart condition inspired him to write an album. Using music as a cathartic means to heal and find his way through the unknown, Jesse shares his story in hopes of helping others find their song.
Order a CD: https://jessenorell.com/store
For people in the Minneapolis area, Jesse is playing an album release concert on Friday, April 8, 2022. Tickets are here: https://theparkwaytheater.com/all-events/jesse-norell-and-friends
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/03/24/95-aorta-borealis-telling-his-story-through-music-with-jesse-norell/2/
Please fol...2022-03-2655 min
If We Knew Then - Down Syndrome Podcast94. Assuming Intelligence: Changing the Narrative of Down Syndrome with Dr. Vaish SarathyToday we are joined by Dr. Vaish Sarathy to discuss her Non-Linear Education method and to explore the positive affects that assuming intelligence has on all students regardless of presumed abilities.
Non-Linear Education: www.functionalnutritionforkids.com/nonlineareducation
Her TEDx talk "Who decides how smart you are'' where she talked about the value of Assuming Intelligence.
Vaish is a Functional Nutrition Practitioner and Science Educator. She is the founder of Functional Nutrition for Kids, and Plum Pudding Chemistry, both practices designed to optimize the learning potential of kids with Down Syndrome and/or Autism using bo...2022-03-191h 09
If We Knew Then - Down Syndrome Podcast93. Willie Dawkins: Desegregation and the Foundational Ingredients in the Fight for InclusionIn 1969 Willie Dawkins was finishing first grade when his mother received a letter saying he would be transferring into a desegregated school the following year. In this episode we honor his story, his parents who gave him a foundation of love and support he needed to find his way through an unjust world and the advocates who came before us who fought for equality and laid the groundwork for our fight for inclusion.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/03/11/93-desegregation-and-the-foundational-ingredients-in-the-fight-for-inclusion/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook...2022-03-121h 09
If We Knew Then - Down Syndrome Podcast92. Liam Turns Twelve: A Mother’s MessageThis week Lori shares thoughts on Liam’s twelfth birthday.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/02/24/92-liam-turns-twelve-a-mothers-message/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
2022-02-2516 min
If We Knew Then - Down Syndrome Podcast91. Valentine’s Week: Changing Hearts & Minds About EducationThis week we talk about our personal experience discussing education and inclusion with someone we love who is of the belief that educating our children is asking 'extra' of the school system. We also talk about our new IEP and a story that demonstrates: it is a change of heart that will change the mind that can change the world.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/02/17/91-valentines-week-changing-hearts-minds-about-education/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us...2022-02-1847 min
If We Knew Then - Down Syndrome Podcast90. An Uncomplicated Life: A Father’s Memoir of His Exceptional Daughter with Paul and Kerry DaughertyThis week we are joined by Paul and Kerry Daugherty to discuss Paul’s book about his daughter, Jillian. It is a book we wish we would have found earlier with the beautiful message of “expecting instead of accepting”. Whether you have a person with Down syndrome in your life or not, this book should be one you read and then share with others.
Paul's Book: https://www.amazon.com/Uncomplicated-Life-Fathers-Exceptional-Daughter/dp/0062359959
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/02/10/90-an-uncomplicated-life-a-fathers-memoir-of-his-exceptional-daughter-with-paul-and-kerry-daugherty/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebo...2022-02-1153 min
If We Knew Then - Down Syndrome Podcast89. Inclusion at The Sundance Film FestivalIn this week's episode we discuss perceptions and our experience with Lena Dunham's new film, SHARP STICK, which premiered at the Sundance Film Festival last week and starred Liam Saux. We discuss our concerns with Down syndrome representation, the affects of misperceptions and ultimately the overwhelmingly positive and insightful experience the project was to our entire family.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/02/03/89-inclusion-at-the-sundance-film-festival/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with...2022-02-0432 min
If We Knew Then - Down Syndrome Podcast88. Healing Through Yoga: Transform Loss Into Empowerment with Paul DennistonWe have the privilege of speaking again with our friend Paul Denniston. In this episode we discuss Paul’s new book where he breaks down his practice of healing.
Buy the book: https://www.pauldennistontraining.com/healing-through-yoga
Paul’s Website: https://griefyoga.com
Episode 22 - Paul’s 30 Minute Yoga Nidra Meditation: https://ifweknewthen.podbean.com/e/22-a-meditation-gift-from-paul-denniston/
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/01/27/88-healing-through-yoga-transform-loss-into-empowerment-with-paul-denniston/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to sen...2022-01-2853 min
If We Knew Then - Down Syndrome Podcast87. Downs & Towns: Our Conversation with Houston VandergriffThis week we have a wonderful conversation with photographer Houston Vandergriff and his mother Katie. We discuss education, advocacy, focusing on the positives and the importance of finding your passion. Houston has traveled the world and his pictures communicate its beauty in the most breath taking ways.
Houston’s website: https://www.downsandtowns.com/
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/01/20/87-downs-towns-our-conversation-with-houston-vandergriff/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions an...2022-01-2159 min
If We Knew Then - Down Syndrome Podcast86. Making Changes And A New BeginningThis week we welcome a New Year and a new school. We discuss how the educational system can make us feel and the importance of making a change when we know it’s right. We address the perceptions of failure and how to move forward after feeling broken.
Episode Transcript: https://mcdn.podbean.com/mf/web/qsd29z/86_Making_Changes_And_A_New_Beginning_2bamo1.mp3
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an em...2022-01-1433 min
If We Knew Then - Down Syndrome Podcast85. Happy New Year: The Chromosome SongThe full rendition of the If We Knew Then podcast theme song “Chromosome” by Lori Saux and Stephen Saux.
Arrangement and mixing by Brady Harris.
www.BradyHarrisBand.com
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/12/30/85-happy-new-year-the-chromosome-song/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you...2021-12-3103 min
If We Knew Then - Down Syndrome Podcast84. Happy Everything To Everyone: A Holiday MessageAs the year comes to a close, we share a few thoughts on the gifts of the year.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/12/23/84-happy-everything-to-everyone-a-holiday-message/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
2021-12-2411 min
If We Knew Then - Down Syndrome Podcast83. The Self Determination Learning Circle at Club 21 with Kelly Kulzer-ReyesToday we explore the Self Determination Program in California with Kelly Kulzer-Reyes of Club 21. Eighteen states in the US have similar personalized programs that distribute state funds in a way to insure that people with disabilities have access to appropriate services throughout their lifetime. An extremely informative episode for those who want to have more control of the state services provided for their loved ones.
Club 21: https://clubtwentyone.org
Disability Voices United: https://disabilityvoicesunited.org
Independent Facilitator groups:
https://www.guidelightgroup.org/about-us
https://www.neuronav.org/
...2021-12-1756 min
If We Knew Then - Down Syndrome Podcast82. John’s Crazy Socks - Spreading Happiness with John & Mark CroninIn this episode we discuss advocacy in action with entrepreneur and advocate John Cronin and his father Mark. Together they have built the company Johns Crazy Socks, with a business model that Fortune 500 companies aspire to achieve. Through highlighting the strengths of others, cultivating dignity and spreading happiness they are making differences in our community and the world.
Website: https://johnscrazysocks.com/
Dance Party link: Online Dance Party with John (johnscrazysocks.com)
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/12/09/82-johns-crazy-socks-spreading-happiness-with-john-mark-cronin/2/
TEDx Talk on How People with Differing Abilities are Waiting to Help...2021-12-1059 min
If We Knew Then - Down Syndrome Podcast81. USA Skateboarding’s “Skateboarding For All” Initiative with Miki VuckovichIf all the world were a skate park, celebrating our abilities and individual expression would be a given. In this episode we talk to Miki Vuckovich from USA Skateboarding about their “Skateboarding For All” initiative. The beauty found in the inclusive skating community is one we strive to cultivate in the classroom and the world. You can join them on December 11th for a Virtual Wrap Party which includes members of the U.S. Olympic team and several skateboarding legends.
USA Skateboarding Web site: www.usaskateboarding.com
USA Skateboarding 2021 Wrap Party (tickets and info): https://usaska...2021-12-0359 min
If We Knew Then - Down Syndrome Podcast80. Bertie’s Heart Surgery: Talking About The Scary Stuff with Melissa KynochThis week we are grateful to have Melissa Kynoch back with us to tell the story of her son, Bertie’s, heart surgery. It is a very scary experience that about half of all family’s in the Down syndrome community experience. We thank Melissa for opening up to us about the emotions she felt and for sharing all the things she wished she knew then.
12 Step Fellowship: https://www.na.org
Wouldn’t Change A Thing - https://www.wouldntchangeathing.org
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/11/25/80-berties-heart-surgery-talking-about-the-scary-stuff-with-melissa-kynoch/2/
Please follow us on Tw...2021-11-261h 02
If We Knew Then - Down Syndrome Podcast79. Reaching Our Advocation Milestones As Parents - with Julie PicotIn this episode we revisit Julie Picot and talk about what the past year has held for her family and their journey. We discuss the milestones reached on her advocacy path with her daughter Elyse and what she wish she would have known earlier.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/11/18/reaching-our-advocation-milestones-as-parents-with-julie-picot/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts o...2021-11-1957 min
If We Knew Then - Down Syndrome Podcast78. A Son’s Advocacy: Another Conversation with Sader IssaIn this conversation we sit down with Sader Issa to get an update from the past year after graduating from Dentistry school and what his future holds. Being a man raised by a father with Down syndrome, we also discuss the rewards of advocacy and the awareness and change it creates vs. the negativity that can exist when his story is exposed to the many opinions of social media.
Preemptive Love: https://preemptivelove.org
L’Archie International: http://www.larche.org
Our First Episode with Sader: https://ifweknewthen.podbean.com/e/23-raised-by-a-father-with-down-syndrome-our-interview-with-sadar-issa/
...2021-11-1253 min
If We Knew Then - Down Syndrome Podcast77. Practicing Gratitude Without Expectations: An Interview with Karen Maezen MillerNovember is known as the month of gratitude and there is no one better to talk to about gratitude then our good friend Karen Maezen Miller. Maezen is a Zen Buddhist Priest who consistently gifts us wonderful words of wisdom. Today we discuss the practice of gratitude and how releasing expectations brings us closer to true thankfulness.
Maezen’s website: https://karenmaezenmiller.com
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/11/04/77-practicing-gratitude-without-expectation-an-interview-with-karen-maezen-miller/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.If...2021-11-0556 min
If We Knew Then - Down Syndrome Podcast76. Catching Up with Melissa Kynoch: A Year and a Half LaterOctober is Down Syndrome Awareness Month and to end the month we revisited with Melissa Kynoch. Melissa is a past guest who may be best known for her appearance on the BBC Documentary Series ‘Life and Birth’. We discussed her experiences of the past 18 months and what changes she would like to see in society regarding the perceptions of people with Down syndrome.
BBC 'Life and Birth: https://www.bbc.co.uk/iplayer/episode/m000j6v0/life-and-birth-series-1-episode-4
12 Step Fellowship: https://www.na.org
Wouldn’t Change A Thing - https://www.wouldntc...2021-10-2959 min
If We Knew Then - Down Syndrome Podcast75. A Loving Kindness Meditation Gift from Paul DennistonOctober is Down Syndrome Awareness Month. We’ve talked about self-care on this podcast and the importance for parents and caregivers to find the time to take care of themselves. We are so grateful that Paul Denniston has once again gifted us, and our listeners, with a guided meditation. This time Paul will guide us through a wonderful Loving Kindness Meditation to help us with the many struggles we can face when we so often put others before ourselves.
Paul’s Website: https://griefyoga.com
Episode 22 - Paul’s 30 Minute Yoga Nidra Meditation: https://ifweknewthen.podbea...2021-10-1526 min
If We Knew Then - Down Syndrome Podcast74. Creating An Inclusive Superhero Universe: A Conversation with Jack and Caitie ClonanCousins, Jack and Caitie, join us to reveal their concept of a Superhero Cinematic Universe where everyone has the courage to unapologetically be themselves. We discuss how their characters will celebrate the hero within and also the importance of inclusion for mental health. Caitie’s brother, Luke, stars as ‘Ultra Luke’ and we talk about their relationship and how she hopes to change the future by changing the perception of people with Down syndrome.
Jack and Caitie’s Website: https://linktr.ee/infiniteultras
Suicide Prevention Lifeline: https://suicidepreventionlifeline.org
Episode Transcript: https://ifweknewthen701833686.wordpres...2021-10-0850 min
If We Knew Then - Down Syndrome Podcast73. Down Syndrome Awareness Month: Acknowledging Those Who Came Before UsOctober is Down Syndrome Awareness Month and in this episode we discuss the true meaning of awareness and advocacy. Many self advocates have blazed a trail for the new generation in our community and we name a few of them so that we know who to look up to when we need encouragement.
Frank Stevens’ speech to Congress (YouTube): https://youtu.be/vtS91Jd5mac
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/09/30/73-down-syndrome-awareness-month-acknowledging-those-who-came-before-us/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website ht...2021-10-0121 min
If We Knew Then - Down Syndrome Podcast72. Gifts of the Journey: A Sibling Conversation with Amy HydeIn this final episode of our three-part sibling series, we sit down with Sophia and Jake Pratt’s sister, Amy Hyde, to discuss some of the gifts of having a sibling with Down syndrome. We also explore topics including advocacy, emotions and the R-word.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/09/22/72-gifts-of-the-journey-a-sibling-conversation-with-amy-hyde/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of...2021-09-2452 min
If We Knew Then - Down Syndrome Podcast71. Fasten Your Seatbelts: A Crash Course on Down Syndrome for Brothers and SistersIn this second installment of our three-part siblings series, we visit with Dr. Brian Skotko and Sue Levine to talk about the book they wrote entitled, ‘Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters’. This is the first book written exclusively for teens with a brother or sister with Down syndrome and tackles a broad range of their most common issues and concerns.
Book: https://www.amazon.com/Fasten-Your-Seatbelt-Syndrome-Brothers/dp/1890627860
Workshop for siblings: https://siblingslearnaboutdownsyndrome.com
YouTube: https://www.youtube.com/user/downsyndromesibbook
Episode Transcript: https://ifwekn...2021-09-1759 min
If We Knew Then - Down Syndrome Podcast70. Insights of a Teenage Sibling: with Sophia SauxIn this first installment of a three part sibling series, we sit down with our 14 year old daughter, Sophia, to talk about her experiences as a sibling of a brother with Down syndrome.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/09/09/insights-of-a-teenage-sibling-with-sophia-saux/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward...2021-09-1053 min
If We Knew Then - Down Syndrome Podcast69. Uncertainties About the Return to School? You’re Not Alone.As we return to school to find a new unknown, we may find ourselves facing familiar challenges and feelings. In this episode we discuss the importance of a support system that reminds us we are never alone.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/09/02/69-uncertainties-about-the-return-to-school-youre-not-alone/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again a...2021-09-0319 min
If We Knew Then - Down Syndrome Podcast68. The Importance of Special Needs Trusts and a Conservatorship: with Enrique PerezWhat is the purpose of a Special Needs Trust? What is a Living Will? How do I set up a Conservatorship when my loved one is an adult? How much does all this cost? Attorney and advocate, Enrique Perez, sits down with us to answer all these questions and more on this extremely informative episode for the entire disability community.
Perez Law Group: www.perezlawgrp.com
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/08/26/68-the-importance-of-conservatorships-and-a-special-needs-trust-with-enrique-perez/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our w...2021-08-271h 12
If We Knew Then - Down Syndrome Podcast67. The Beginner’s Mind: An Interview with Karen Maezen MillerWe have the honor again of visiting with Zen Buddhist Priest, Karen Maezen Miller, to discuss the Zen term of a “beginner’s mind” which means an open, innocent and non-judging mind, the mind we bring to everything we do when we are beginners.
Maezen’s website: https://karenmaezenmiller.com
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/08/17/66-the-beginners-mind-an-interview-with-karen-maezen-miller/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our...2021-08-201h 03
If We Knew Then - Down Syndrome Podcast66. A Conversation About Alzheimer’s with Dr. Brian SkotkoIn this episode we visit with Dr. Brian Skotko again and talk about the impact of Alzheimer’s in the Down syndrome community and we discuss some pro-active steps that may help to improve the long-term wellness for people with Down syndrome.
Down Syndrome Brain Train: https://www.downsyndromebraintrain.com
Down Syndrome Clinic: https://www.dsc2u.org
Tar Heel Reader Book Collection: https://tarheelreader.org
Find A Nutritionist Near You: https://www.eatright.org
Dr. Brian’s Book “Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothe...2021-08-1359 min
If We Knew Then - Down Syndrome Podcast65. The Down Syndrome Resource Foundation, Part 2 with Liv Meriano and Danielle McKinneyThis week is part two of our conversation with Liv Meriano and Danielle McKinney, from the Down Syndrome Resource foundation based in British Columbia, Canada. In this episode we continue the discussion on education, supports, inclusion and changing the mindset and approach to supporting students to access the curriculum and reach their potential.
Foundation Website: www.DSRF.org
Baskets of Love: https://www.basketsofloveds.com/
Learn at Home: https://www.dsrf.org/programs-&-resources/learn-at-home-5196/
DS Education International education guidelines: https://workdrive.zohoexternal.com/external/8CkAlci1QBB-Jxfap
The LowDOWN P...2021-08-0647 min
If We Knew Then - Down Syndrome Podcast64. Changing Our Mind and Approach to Education: Down Syndrome Resource FoundationIn this week’s episode we are joined by Danielle McKinney and Liv Meriano from the Down Syndrome Resource Foundation to talk about educational tools and strategies parents can use at home and implement in their child’s school IEP.
Foundation Website: www.DSRF.org
Baskets of Love: https://www.basketsofloveds.com/
Learn at Home: https://www.dsrf.org/programs-&-resources/learn-at-home-5196/
DS Education International education guidelines: https://workdrive.zohoexternal.com/external/8CkAlci1QBB-Jxfap
The LowDOWN Podcast: https://www.dsrf.org/programs-&-resources/the-lowdown-podcast/
Episode Transcript: https://ifwe...2021-07-3057 min
If We Knew Then - Down Syndrome Podcast63. Just One Of The Guys: Our Interview with Jake PrattIn this week’s episode Lori and Stephen visit with Jake Pratt, who with a little support, advocacy and inclusion is living his dreams and changing the narrative.
Jake’s UPS Commercial: https://youtu.be/fw97dqK6uiM
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/07/22/63-just-one-of-the-guys-our-interview-with-jake-pratt/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Than...2021-07-231h 03
If We Knew Then - Down Syndrome Podcast62. Summer Advocacy: The Challenge Of Letting Go And Taking A BreakIn this week’s episode Lori and Stephen discuss the sometimes difficult action of letting Summer just be Summer.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/07/01/62-summer-advocacy/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
...2021-07-1625 min
If We Knew Then - Down Syndrome Podcast61. Hearts Of Joy International: Our Conversation with Lauren CostabileIn this week’s episode we speak to Lauren Costabile, the founder of Hearts of Joy International, an organization that provides life-saving heart surgery for individuals with Down syndrome all around the world.
Website: www.heartsofjoyinternational.com
Amazon Wishlist: https://www.amazon.com/hz/wishlist/ls/1C1P8TA1C8NBU/ref=nav_wishlist_lists_1?_encoding=UTF8&type=wishlist
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/06/23/61-hearts-of-joy-international-with-lauren-costabile/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to s...2021-06-2557 min
If We Knew Then - Down Syndrome Podcast60. Downright Discrimination - Changing The Laws To Confirm That Every Life Is EqualToday we interview Máire, Heidi and Liz about their ‘Downright Discrimination’ legal campaign which fights to change the law of the land and create equality for people with disabilities. Presently, in the U.K., it is illegal to abort a fetus after 24 weeks unless it has Down's syndrome. A baby with Down syndrome can be aborted up to birth. We examine the effect this inequality has on our community by creating separation and discrimination that follows us through life. We also talk about ways we can support the cause of changing the laws.
Give to the campaign...2021-06-1845 min
If We Knew Then - Down Syndrome Podcast59. Education, Adolescence and Advocacy: A Community Conversation with Mary ColeToday we have a ‘Community Conversation’ with advocate Mary Cole discussing her inspiring experience with inclusion. Mary lives in Cambridge, England and has a 14 year old son with Down syndrome named Ben.
Ben’s Nursery: https://www.colourboxmontessori.co.uk/
Online Session On Puberty: https://www.downs-syndrome.org.uk/our-work/services-projects/training/
Email 'Wouldn't Change A Thing' at WCATbook@gmail.com for this book: https://www.wouldntchangeathing.org/product/wcat-book-by-celebrate-t21/
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/06/10/59-education-adolescence-and-advocacy-a-community-conversation-with-mary-cole/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our...2021-06-111h 01
If We Knew Then - Down Syndrome Podcast58. COVID-19, Vaccinations and Picking Up Where We Left Off on the Road to Inclusion with Dr. Brian SkotkoIn this week’s episode Dr. Brian Skotko shares the most up to date information surrounding the effects of COVID-19 on individuals with Down syndrome. We discuss the importance, safety and science of the vaccine along with tools to help with the process. As we enter back into the world, post-pandemic, the importance of inclusion in society continues along with so much more.
Down Syndrome Clinic to You: www.dsc2u.org
T21 Research Society: https://www.t21rs.org
COVID-19 Fact Sheet: https://docs.google.com/document/d/1rTAe4CVSGc8g63LMiTZftecZb-qHJbRdurgpvoRiyBg/ed...2021-06-0453 min
If We Knew Then - Down Syndrome Podcast57. Revisiting The Story of Chris Nikic: Becoming an IRONMANIn this week’s episode we revisit one of our earlier conversations. We had the honor of talking to Chris Nikic and his parents, Nik and Patty last summer. In November Chris became the first person with Down syndrome to complete an IRONMAN. We discuss their 1% philosophy and how people with Down Syndrome can do more than ever expected if given the right tools and time.
Chris's Website: https://chrisnikic.com
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/05/27/57-revisiting-the-story-of-chris-nikic-becoming-an-ironman/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook pa...2021-05-2832 min
If We Knew Then - Down Syndrome Podcast56. My Twin Brother Has Down Syndrome: Our Community Conversation with Julia ToronczakThis week we talk to Julia Toronczak about her experiences and the lessons she’s learned by growing up with her twin brother Michael, who has Down syndrome. We focus on inclusion and equity in our community and beyond.
Beyond The Waves Blog: https://www.beyondthewavesblog.com
Beyond The Waves Podcast: https://www.beyondthewavesblog.com/podcast
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/05/20/56-my-twin-brother-has-down-syndrome-our-conversation-with-julia-toronczak/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an...2021-05-211h 17
If We Knew Then - Down Syndrome Podcast55. Coming Down The Mountain, Part 2: Why This Movie is so Important - An Interview with Director Julia Anne RobinsonExecutive Director of ‘Bridgerton’, Julia Anne Robinson, joins us to discuss a film she directed in 2007 called ‘Coming Down The Mountain’ and starring Tommy Jessop and Nicholas Hoult. We breakdown this film that changed our lives and told some truths about the journey that rarely get talked about.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/05/12/55-coming-down-the-mountain-part-2-why-this-movie-is-so-important-an-interview-with-director-julia-anna-robinson/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list the...2021-05-1450 min
If We Knew Then - Down Syndrome Podcast54. Mother (noun): An Ultimate Example of Its Kind - Our Mother’s Day MessageHappy Mother’s Day! Sunday, May 9, 2021 is Mother’s Day for our Canadian, Australian & American listeners. Mothering Sunday in the UK was back in March and in Mexico, Mothers are celebrated every year on May 10th. Wherever you are, whomever you are and however you celebrate… this episode is for all the Mothers of the world.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/05/06/54-mother-noun-an-ultimate-example-of-its-kind-our-mothers-day-message/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and com...2021-05-0725 min
If We Knew Then - Down Syndrome Podcast53. Discussing Infertility and a Down Syndrome Diagnosis with Natalie SpiteriIn this episode, Physical Therapist, Natalie Spiteri shares her personal journey through infertility, the impact of a diagnosis of Down syndrome and the yearning for the life she imagined beyond what she was told.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/04/29/53-discussing-infertility-and-a-down-syndrome-diagnosis-with-natalie-spiteri/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look...2021-04-3049 min
If We Knew Then - Down Syndrome Podcast52. A Community Conversation with Megyn Price: Celebrating Uncle BillThis week we are joined by actress Megyn Price to discuss inclusion, the importance of encouraging others to express their uniqueness and how her Uncle, who had Down syndrome, affected her family in a positive way.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/04/22/52-a-conversation-with-megyn-price-celebrating-uncle-bill/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and...2021-04-231h 11
If We Knew Then - Down Syndrome Podcast51. Eleven Years With Liam: Celebrating Another Trip Around The SunThis year Liam turned 11 and in this episode we reflect where we started, what we've learned and where we are. Let's celebrate... always celebrate.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/04/16/51-eleven-years-with-liam-celebrating-another-trip-around-the-sun/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of...2021-04-1755 min
If We Knew Then - Down Syndrome Podcast50. Acknowledging and Dismantling Fear’s Presence In Our Lives: An Interview with Karen Maezen MillerAnother beautiful conversation with Zen Buddhist Priest Karen Maezen Miller. We all have fears. What if we could see what is at the root of these fears, acknowledge and deconstruct them and then continue forward free from those fears.
Her books on Amazon: https://www.amazon.com/Karen-Maezen-Miller/e/B001JP2RQ0/ref=dp_byline_cont_pop_book_1
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/04/08/50-acknowledging-and-dismantling-fears-presence-in-our-lives-an-interview-with-karen-maezen-miller/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us...2021-04-081h 10
If We Knew Then - Down Syndrome Podcast49. Discussing Health and Inclusion with Pediatrician Dr. Mona Patel GeraAn enlightening conversation with Dr. Mona Patel Gera to answer the questions parents of children with Down syndrome often have.
Health Supervision Guidelines: https://www.healthychildren.org/English/health-issues/conditions/developmental-disabilities/Documents/Health_Care_Information_for_Families_of_Children_with_Down_Syndrome.pdf
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/03/25/49-discussing-health-and-inclusion-with-pediatrician-dr-mona-patel-gera/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get...2021-03-261h 18
If We Knew Then - Down Syndrome Podcast48. World Down Syndrome Day: The Path To Finding Our CelebrationMarch 21st is World Down Syndrome Day and we discuss our personal journey to find our celebration and what it means to us.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/03/16/48-world-down-syndrome-day-the-path-to-finding-our-celebration/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF...2021-03-1923 min
If We Knew Then - Down Syndrome Podcast47. What Do We Do When Faced with Challenges and Negativity? An Interview with Karen Maezen MillerAs parents, we all find ourselves dealing with confusing emotions and challenges from time to time. In this conversation, Zen Buddhist Priest Karen Maezen Miller, gives us some guidance to help us deal with the negative.
Her books on Amazon: https://www.amazon.com/Karen-Maezen-Miller/e/B001JP2RQ0/ref=dp_byline_cont_pop_book_1
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/03/11/47-what-do-we-do-when-faced-with-challenges-and-negativity-an-interview-with-karen-maezen-miller/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with q...2021-03-1158 min
If We Knew Then - Down Syndrome Podcast46. Coming Down The Mountain: Our Interview with Julie Anne RobinsonOur conversation with Executive Producer and Director of ‘Bridgerton’, Julie Anne Robinson about the film ‘Coming Down The Mountain’ and the importance of inclusion in media.
‘Coming Down The Mountain’ on Prime Video: https://www.amazon.com/gp/video/detail/B082P67X6D/ref=atv_dp_share_cu_r
Frostig School: https://frostigschool.org
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/03/03/46-coming-down-the-mountain-our-interview-with-julie-anne-robinson/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with qu...2021-03-0535 min
If We Knew Then - Down Syndrome Podcast45. Speech Therapy with Kerri Wake of McRory PediatricsSpeech Pathologist, Kerri Wake, joins us to talk about communication, supportive tools parents can provide their children and the pathways to receiving speech therapy in the school setting.
The McRory Pediatrics Website: https://www.mcrorypediatrics.com
The Hanen Centre: http://www.hanen.org/Home.aspx
Early Milestone List: https://speechhearing.columbian.gwu.edu/sites/g/files/zaxdzs1996/f/downloads/Milestonesguide.pdf
Article on the benefits of AAC (speech generating devices): https://digitalcommons.unl.edu/cgi/viewcontent.cgi?article=1088&context=specedfacpub
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/02/25/45-speech-therapy-with-kerri-wake-of-mcrory-pediatrics/2/
...2021-02-261h 10
If We Knew Then - Down Syndrome Podcast44. Looking Back At A Decade: Liam Turns 10Stephen and Lori discuss the process of acceptance, the importance of communication and how to take time for yourself. Originally set for release a year ago, this episode celebrates Liam's 10th birthday and all the accomplishments and lessons learned over a wonderful decade.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/02/18/44-looking-back-at-a-decade-liam-turns-10/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of...2021-02-1935 min
If We Knew Then - Down Syndrome Podcast43. Occupational Therapy with Erin Stanford of McRory Pediatrics - Part 2Occupational Therapist, Erin Stanford from McRory Pediatrics, visits us again for Part 2 of our OT discussion. This week we concentrate on behavior and what information parents should have to provide the best supports for their child.
The McRory Pediatrics Website: https://www.mcrorypediatrics.com
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/02/08/43-occupational-therapy-erin-stanford-of-mcrory-pediatrics-part-2/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and...2021-02-1156 minIf We Knew Then - Down Syndrome Podcast42. Occupational Therapy with Erin Stanford of McRory Pediatrics - Part 1Occupational Therapist at McRory Pediatrics, Erin Stanford, visits us to discuss at home and at school OT and helps us more clearly define the overlap of this therapy with Physical Therapy, Speech and Behavior Therapies.
The McRory Pediatrics Website: https://www.mcrorypediatrics.com
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/02/04/42-occupational-therapy-erin-stanford-of-mcrory-pediatrics-part-1/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get...2021-02-0558 min
If We Knew Then - Down Syndrome Podcast41. Behavior: A Conversation with Kyle Davis of McRory PediatricsClinical Supervisor of Behavioral Services at McRoryPediatrics, Kyle Davis, visits us to discuss behavioral issues at home and at school. He also answers questions about when, how and why behaviors need to be addressed.
The McRory Pediatrics Website: https://www.mcrorypediatrics.com
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/01/28/41-behavior-a-conversation-with-kyle-davis-of-mcrory-pediatrics/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts...2021-01-291h 23
If We Knew Then - Down Syndrome Podcast40. Discussing Supports with Nikki McRory of McRory PediatricsNikki McRory is the founder of McRory Pediatrics and in this episode Nikki gives us an insightful look at the different therapies that can help support your child in reaching their potential.
The McRory Pediatrics Website: https://www.mcrorypediatrics.com
The Hanen Centre: http://www.hanen.org/
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/01/21/40-discussing-supports-with-nikki-mcrory-of-mcrory-pediatrics/2
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join...2021-01-2243 min
If We Knew Then - Down Syndrome Podcast39. Our Community Conversation with Steven Gustafson of 10,000 ManiacsSteven Gustafson is a founding member and bassist of the band 10,000 Maniacs. His sister, Cathy, had Down syndrome and we got a chance to discuss with him the impact she had on his life and the lives around her.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/01/15/39-our-interview-with-steven-gustafson-from-10000-maniacs/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes...2021-01-1658 min
If We Knew Then - Down Syndrome Podcast38. Moving Into A New Year One Moment At A TimeIn this episode Stephen and Lori discuss facing some of the difficulties of 2020 and how to move onto a fresh new year in a positive way.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/01/06/38-moving-into-a-new-year-one-moment-at-a-time/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next e...2021-01-0724 min
If We Knew Then - Down Syndrome Podcast37. Our Community’s Response To Emmerdale’s Negative Storyline About Down Syndrome - Cristina BowmanIn this episode we talk with Cristina Bowman of Diff-Ability about the British soap opera Emmerdale and it’s recent storyline which depicts a couple having an abortion because their baby has Down syndrome.
Petition against Emmerdale: https://www.change.org/p/itv-bin-emmerdale-s-prejudiced-storyline-about-down-s-syndrome?recruited_by_id=2f3349b0-f96d-11e5-80fd-c1f380c9ade0
DIff-Ability: https://www.diffability.co.uk
10% Videos: https://www.youtube.com/playlist?list=PLzOTYSYK2uvr96j-WowLKrxwDG-u9EsRx
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/12/05/37-our-communitys-response-to-emmerdales-negative-storyline-about-down-syndrome-with-cristina-bowman/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a li...2020-12-0640 minIf We Knew Then - Down Syndrome Podcast36. Giving Everyone Access to a Down Syndrome Specialty Clinic with DSC2U - Dr. Brian SkotkoWe are thankful to have Dr. Brian Skotko on today’s episode. Dr. Brian is the director of the Down Syndrome Program at Massachusetts General Hospital, a Board-certified medical geneticist and has dedicated his professional energies toward children with cognitive and developmental disabilities. Today we talk about his new online clinic, DSC2U, the importance of inclusion and how we as a community can help the medical profession improve their delivery of a Down syndrome diagnosis.
DSC2U: https://dsc2u.org
LUMIND IDSC FOUNDATION: www.lumindidsc.org
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2...2020-11-2646 min
If We Knew Then - Down Syndrome Podcast35. Building a Realistic Approach to a Healthy Dental Routine - Dr. Jill LaskyIn our second interview with Dr. Jill we discuss the methods and tools for parents who want to support their children in making good dental health habits.
Lasky Pediatric Dental Group: https://www.laskypediatricdental.com
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/11/19/35-creating-a-realistic-approach-to-a-healthy-dental-routine-dr-jill-lasky/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again a...2020-11-2026 min
If We Knew Then - Down Syndrome Podcast34. How To Use The Summertime To Your AdvantageThe summer is a time to play and relax but if you use it as a time to front load for the coming school year, as well, it can be that academic advantage you have been looking for.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/11/16/34-how-to-use-the-summertime-to-your-advantage/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you a...2020-11-1630 min
If We Knew Then - Down Syndrome Podcast33. Our Congratulations Message to New ParentsWe originally created this podcast to support parents of children with Down syndrome and this episode is directed specifically to new parents who have just recently received their child’s diagnosis. Our message is of hope and possibility in a world which often offers very little.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/11/13/33-our-congratulations-message-to-new-parents/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and ge...2020-11-1444 min
If We Knew Then - Down Syndrome Podcast32. Changing Our World - Chris Nikic’s 1% PhilosophyChris joins us again with his parents, Nik and Patty to discuss how they have changed their approach to learning and how that has prepared Chris to do things no person with Down syndrome has ever done before.
Chris’s Website: https://chrisnikic.com
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/11/05/32-changing-our-world-chris-nikics-1-philosophy/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and g...2020-11-0547 min
If We Knew Then - Down Syndrome Podcast31. Using The Arts To Tell Your Story - A Conversation with Nic NovickiNic joins us again to talk about the Easterseals Disability Film Challenge and letting your voice be heard through the arts.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/10/29/31-using-the-arts-to-tell-your-story-a-conversation-with-nic-novicki/2/
The Easterseals Disability Film Challenge: https://disabilityfilmchallenge.com
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joi...2020-10-3031 min
If We Knew Then - Down Syndrome Podcast30. Down Syndrome Awareness Month: Working Together To Change PerceptionsIn honor of Down Syndrome Awareness Month we discuss our part, as a community, in changing the perceptions of Down syndrome through our thoughts and words. We also look back on some lessons we have learned from past guests.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/10/22/30-down-syndrome-awareness-month-working-together-to-change-perceptions/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank y...2020-10-2237 min
If We Knew Then - Down Syndrome Podcast29. Insights Into Our First COVID-19 IEP SessionWe just had our first Zoom IEP session since the pandemic started and we have found several new things that parents should be aware of. We also further discuss ways to prepare for these meetings and touch on questions every parent should ask their IEP team.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/10/15/29-insights-into-our-first-covid-19-iep-session/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there an...2020-10-1634 min
If We Knew Then - Down Syndrome Podcast28. A Story of Inclusion with Eleanor Baggaley – ‘Ava the Mermaid’Our conversation with author, wife, mother of three and Down syndrome advocate, Eleanor Baggaley. We discuss inclusion and her children’s books, particularly ‘Eva the Mermaid’. Eleanor also shares about her work with the organization Positive About Down Syndrome and some of her future plans of advocacy in the community.
Eleanor’s Website: https://www.eleanorbaggaley.com/shop
Positive About Down Syndrome: https://positiveaboutdownsyndrome.co.uk
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/10/08/28-a-story-of-inclusion-with-eleanor-baggaley-author-of-ava-the-mermaid/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our w...2020-10-0943 min
If We Knew Then - Down Syndrome Podcast27. Our IEP Process - Some Things We Have LearnedIEP's can be very overwhelming especially when you feel like you don't have all the information that you want to have. In this episode we share some of the things we have learned to be helpful during this sometimes stressful process and ways to advocate for your child while still keeping your peace.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/09/28/27-our-iep-process-somethings-we-have-learned/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You ca...2020-10-0241 min
If We Knew Then - Down Syndrome Podcast26. PALS Programs - A Deeper Conversation About Down Syndrome
Our second interview with members of the PALS Programs. We talk about how the PALS Programs is planning for future camps and some of the more personal experiences the founders of the organization have with Down syndrome. Joining us is Executive Director, Jenni Newbury Ross and her mother Robyn and brother Jason. We were also joined by Congratulations Project Associate, Grace Wahle and Communications Coordinator, Colton Davies.
PALS Program: https://www.palsprograms.org
Congratulations Project: https://www.congratulationsproject.org
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/09/24/26-pals-programs-a-deeper-conversation-about-down-syndrome/2/
Please follow us on Twitter @ifw...2020-09-2532 min
If We Knew Then - Down Syndrome Podcast25. A Right to Celebrate - When the Medical Profession Steals the Joy of New Parents - Rachel MewesOur second interview with Rachel Mewes. Rachel is a contributing editor to Making Chromosomes Count, the Down syndrome community newspaper. She opens up on her not so uncommon birth story and the prejudices she found in the medical profession.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/09/17/25-a-right-to-celebrate-when-the-medical-profession-steals-the-joy-of-new-parents-rachel-mewes/2/
Making Chromosomes Count: http://makingchromosomescount.co.uk
Making Chromosomes Count on Twitter: https://twitter.com/ChromosomesNews
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an em...2020-09-1830 minIf We Knew Then - Down Syndrome Podcast24. The Importance of Disability Inclusion in Film - Nic NovickiComedian, actor, producer and disability advocate Nic Novicki joins us to talk about the Easterseals Disability Film Challenge and the importance of disability inclusion in film.
Film Challenge Website: https://disabilityfilmchallenge.com
Our 2020 EDFC entry: https://youtu.be/WiX-rt51szo
All the challenge’s films on YouTube: https://www.youtube.com/playlist?list=PLOhZ4i5Tnk3iq44Tzn03rBMOcr0bqFrnV
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/09/11/24-the-importance-of-disability-inclusion-in-film-nic-novicki/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.If...2020-09-1131 min
If We Knew Then - Down Syndrome Podcast23. Raised by a Father with Down Syndrome - Our Community Conversation with Sader IssaOur enlightening and inspiring interview with Sader Issa. As parents we are always told what our children will never do. What if those limits were not part of the conversation?
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/09/03/23-raised-by-a-father-with-down-syndrome-our-interview-with-sadar-issa/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us...2020-09-0445 minIf We Knew Then - Down Syndrome Podcast22. A Meditation Gift from Paul Denniston - 30 Minute Yoga Nidra Guided MeditationPaul Denniston has gifted us a 30 minute Yoga Nidra Guided Meditation. Enjoy.
Paul’s Website: https://griefyoga.com
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/08/27/22-a-meditation-gift-from-paul-denniston/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
2020-08-2835 minIf We Knew Then - Down Syndrome Podcast21. A Conversation About Healing and Self Care with Paul DennistonPaul Denniston discusses how we can all heal through meditation and his Grief Yoga.
Paul’s Website: https://griefyoga.com
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/08/20/21-a-conversation-about-healing-and-self-care-with-paul-denniston/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW...2020-08-2841 min
If We Knew Then - Down Syndrome Podcast20. A New School Year: COVID-19, IEPs and Supports - Georgianna Junco-KelmanAnother informative talk with attorney Georgianna Junco-Kelman. What do parents need to know heading into a new school year amidst COVID-19?
Georgianna's Website: http://www.losangelesspecialedattorney.com
CA Special Education Guidelines for COVID-19: https://www.cde.ca.gov/ls/he/hn/specialedcovid19guidance.asp
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/08/11/20-a-new-school-year-covid19-ieps-supports-georgianna-junco-kelman/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list ther...2020-08-121h 22
If We Knew Then - Down Syndrome Podcast9. Sibling Advocacy - Interview with Sophia SauxAn interview with our daughter Sophia to discuss her experiences of having a brother with Down Syndrome.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/05/21/9-sibling-advocacy-interview-with-sophia-saux/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
2020-05-2232 min