Shows
T21Mom-A Down Syndrome PodcastT21Mom: Episode 154-Christmas With a Child With Down Syndrome, Traditions, Joy & Real LifeThe holidays can be magical-and complicated-especially when you're parenting a child with Down syndrome. In this heartfelt and lightly funny episode of the T21Mom podcast, Mary is joined once again by fan-favourite guest Ron (and his Dollar Store bells!) for the annual Christmas show.
This episode explores what Christmas with a child with Down syndrome and the dual diagnosis of autism, really looks like-from changing traditions and Advent cookie calendars to headless gingerbread men and quiet Christmas mornings. Mary shares an honest look at special needs parenting during the holidays, including the joy, the grief that ca...
2025-12-1747 minT21Mom-A Down Syndrome PodcastT21Mom: Episode 153-Rockin Moms Retreat at Callaway ResortIt's the annual Rockin' Mom Retreat episode that was held at the beautiful resort called the Callaway Resort and Gardens in Pine Mountain, Georgia. Mary shares the challenges of going away for a few days-from lunches, to Pro D days and early dismissal and how much it means to her to get away. From guided hikes, to a murder mystery (so much fun) to golf carts, beach parties, a cottage pub crawl, pajama parties to emotional guest speakers (hint, Ruby's Rainbow), it was a fun filled and emotional retreat. The Haunted Rockin' Moms had their own Murder Mystery in 80's...
2025-11-201h 23T21Mom-A Down Syndrome PodcastT21Mom: Episode 152-Praha, We Love You-Our Summer Trip To PragueIn this episode, Mary shares memories from a magical summer adventure in Prague, Czech Republic with Ainsley and Dennis. From wandering cobblestone streets to surviving the metro with a stroller, the magical scenery, the wild water slides and meeting up with an old university friend, this trip was one for the books!
Join us as we chat about:
Old Town magic-astronomical clocks, the Powder Tower, the John Lennon Wall and why Prague looks like a fairytale you accidentally stepped into
The Beer and Beer Spa-nothing beats a cold beer on a summer day o...
2025-10-2245 minT21Mom-A Down Syndrome PodcastFrom Daycare Goodbyes to High School HellosSummer may be over, but the new school year is just beginning-and for Mary and Ainsley, that means BIG transitions. In this episode, Mary shares the highs and the lows of saying goodbye to daycare after eight years (yes there were tears), their fun-filled trip to the PNE, and what it was really like starting Ainsley's first week of high school.
From emotional goodbyes, daredevil rides, and locker practice, to the ongoing saga of the 45 minute two block school bus ride, this episode is a mix of laughter, nerves and love.
If you've ever faced a b...
2025-09-1018 minT21Mom-A Down Syndrome PodcastT21Mom: Episode 150-Cookies, Crying & Castles: Ainsley's Big FinishIn this milestone 150th episode, Mary takes us on a rollercoaster of emotion, celebration, and cookie-fueled chaos as she shares all the beautiful-and bittersweet-moments from Ainsley's final days of school. From surprise awards and handmade cookie trays to an incredibly thoughtful gift from Ainsley's EA (spoiler: tears were shed), this episode is a love letter to growth, community and motherhood.
Plus, Mary dishes on the epic summer BBQ for her parent support group (water balloons + gourmet burgers = perfection), and gives a sneak peek into their upcoming trip to Prague-castles, Gravol and all!
2025-07-2517 minT21Mom-A Down Syndrome PodcastT21Mom: Episode 149-Cookies, Chaos, Confirmation Nights and a T21Mom Mingler!In this fun, heartwarming, and very real catch-up episode, Mary shares what life has looked like lately-spoiler alert: it includes a lot of cookies, a masquerade-themed "non graduation" and yet another pair of Ainsley's glasses lost, this time to the deep, blue sea.
Mary chats about:
- Ainsley's upcoming transition to high school(!)
-Midnight cleanups and post-celebration tummy troubles
-Fundraising in a monsoon for the Run Up For Down Syndrome
-Hosting her first ever T21Mom Mingler
-The epic Boat For Hope even (and how glasses and w...
2025-06-1918 minT21Mom-A Down Syndrome PodcastT21Mom: Episode 148-Sweet Stories of Inclusion: A Conversation With Author Jeana Atkison on Her Book How to Eat a CupcakeIn this episode, Mary is joined by child author Jeana Atkison to talk about her new children's book How to Eat a Cupcake. They discuss the inspiration behind the story, how it subtly and beautifully includes characters with disabilities, and why representation in children's literature is so important. Jeana shares her thoughts on integrating inclusion naturally through storytelling and the message she hopes kids and families take away from the book.
Order your copy of How to Eat a Cupcake at paperseedpress.com
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2025-05-0735 minT21Mom-A Down Syndrome PodcastT21Mom:Episode 147-Glitter Glue & Grace: A Love Letter to My TribePlease like and subscribe and even leave a review!
In this deeply personal and heartfelt episode of the T21Mom podcast, Mary opens up about a heavy season filled with hospital visits, health scares, and the current challenges of parenting. But through it all, one thing has kept her going-her tribe of Haunted Rocking Moms.
These incredible women, all moms of children with Down syndrome have wrapped Mary in love, laughter, and support when she's needed it most. From surprise gifts to heartfelt messages, they've reminded her that she's never alone.
This episode is...
2025-04-2312 minT21Mom-A Down Syndrome PodcastT21Mom: Episode 146- 11 Days to Forever: Cathy's Diagnosis StoryPlease subscribe and leave a review!
In this heartfelt episode, Mary chats with Cathy Middlestetter, mom to 27 year-old Cassie, who has Down syndrome. Cathy received a prenatal diagnosis just 11 days before Cassie was born-without the support of social media or online communities.
Mary loved hearing Cathy's journey-how her strength, determination, and how she found connection in those early days. From breastfeeding to inclusion, Cathy was a true trailblazer for the Down syndrome community.
Tune in to hear a story of courage, love and finding your people.
Connect with Mary: T21Mom.c...
2025-04-1149 minT21Mom-A Down Syndrome PodcastT21Mom: Episode 145-Rock Your Socks-the Joy and Real Talk of World Down Syndrome DayHappy World Down Syndrome Day! Today we are celebrating the incredible individuals who rock that extra chromosome-and yes, we're also rocking our mismatched socks! In this episode we dive into the fun and the real talk of World Down Syndrome Day.
World Down Syndrome Day is a day for joy, advocacy, and raising awareness, but let's be real-it can also be a tough day for some parents. Whether you're dancing in celebration or feeling all the emotions, this episode is for you!
So grab you mismatched socks, hit play, and let's celebrate together-whatever that looks l...
2025-03-1917 minT21Mom-A Down Syndrome PodcastT21Mom-Episode 144: Surviving the Chaos: High School Anxiety, Special O Wins & The Great iPad DestructionBe sure to give a rating and leave a review!
Hey friends, it's your friend Mary, and yes-I'm back! Life threw a few curveballs (because of course it did) and I needed a minute. But I missed you all, so let's catch up!
In this episode, I'm sharing all the chaos, laughs, and real talk about what's been going on. From my aunt's health scare, to Dennis bravely tackling Costco (on a Saturday no less), to Ainsley's latest adventures -including her ongoing mission to break every iPad screen ever made.
2025-03-0520 minT21Mom-A Down Syndrome PodcastT21Mom: Episode 143-Christmas Cheer, Cookie Chaos, and Matching PJs: A Holiday Special!Please like and review the T21Mom podcast on Apple or Spotify!
It's the most wonderful time of the year, and we're back with the annual T21Mom Podcast Christmas Special! I'm Mary, mom to Ainsley, my amazing 12 year-old with the dual diagnosis of Down syndrome and autism, and I'm thrilled to share all the holiday fun, chaos and traditions with you in this episode.
This year's Christmas season has been a mix of festive joy and well, exhaustion! Between tackling 72 Advent Cookie Boxes (yes 72!), decking the halls a bit last, hosting our 2nd annual H...
2024-12-1834 minT21Mom-A Down Syndrome PodcastT21Mom: Episode 142-Finding Love Beyond the Diagnosis: Colleen Johnson's Journey with Baby LukePlease leave a rating or a review on Spotify and Apple Podcasts.
Join Mary for another heartfelt chapter in the Down Syndrome Diaries: Diagnosis Stories. In this episode, Mary sits down with Rockin' Mom Colleen Johnson who courageously shares the raw and emotional story of her son Luke's diagnosis.
Colleen opens up about the grief that consumed her in the early days-grief so profound she wondered if she'd ever be able to "not see ." But through time, love and the unwavering support of her family, Colleen found her way to an unshakable bond with her so...
2024-12-0658 minT21Mom-A Down Syndrome PodcastT21Mom: Episode 141-The Rockin Moms Take VegasPlease rate and leave a review on Spotify and Apple Podcasts!
Hold onto your wine, because this week Mary takes us to the Rockin' Moms Retreat in fabulous Las Vegas! It's an episode filled with friendship, laughter, and just a little bit of ghostly mischief.
Mary spills the tea (and maybe some cocktails) about how taking time away with her Haunted Rockin' Moms crew is the ultimate reset. Think poolside relaxation, late-night heart-to-hearts, and plenty of shenanigans that only a Vegas trip could inspire.
Highlights include:
Zak Bagans' Haunted Museum: Where Mary...
2024-11-211h 24T21Mom-A Down Syndrome PodcastT21Mom-Episode 140: Olympic Dreams in Paris-Mary, Ainsley and Dennis Take on the Games!Join Mary, Ainsley and Dennis on an epic journey to the Paris Olympics! This week's episode dives into the highs (and hurdles) of making it to Paris, from battling extreme motion sickness to a last-minute dead iPad. But once they arrived, the Games were an unforgettable adventure!
From the pool to the trampoline, and track to race walking, Mary covers it all! Get an insider's view on a jam-packed schedule that brought her up close with the world's greatest athletes. Hear Mary's thrilling accounts of iconic races, including the electric men's 100 metre final, Canada's unforgettable gold in the...
2024-10-301h 02T21Mom-A Down Syndrome PodcastT21Mom-Episode 139: Embracing Rocktober-Advocacy, Awareness & Finding BalanceIn this episode of T21Mom, Mary opens up about the significance of "Rocktober"-a special month for Down Syndrome Awareness. She discusses her personal approach to celebrating this important month and candidly shares the struggles she faces, including feeling guilty for not being fully engaged in the festivities. Despite her deep passion for advocacy, Mary talks about the exhaustion that sometimes comes with it, and how advocating can feel like a never-ending journey.
Mary also highlights some of the amazing ways other Rockin' Moms are celebrating and advocating during Rocktober, offering inspiration and ideas for those lo...
2024-10-1114 minT21Mom-A Down Syndrome PodcastT21Mom-Episode 138: Finding Your People: The Power of Connection on the T21Mom JourneyJoin Mary in today's episode as she shares her personal journey through challenging times and the importance of self-care. In this episode, Mary opens up about the struggles that she faced when Ainsley started kindergarten, managing difficult behaviours and how she found her way back to focusing on her own well-being. Discover the tools that helped Mary through her hardest moments, from therapy to her "happy pill," and hear her heartfelt message to other special needs moms-you are not alone. Mary talks about the power of connection, sharing her experience with the Rockin Moms Retreat and how it transformed her...
2024-09-2514 minT21Mom-A Down Syndrome PodcastTurning Negativity Into Strength: Melissa Miller's Down Syndrome Diagnosis StoryIn today's episode, we hear Melissa Miller's emotional story of how she received her son Hunter's Down syndrome diagnosis, which had a heartbreaking beginning. A doctor stood at the door of her hospital room , told her the news in the most impersonal way, and even suggested that no one would judge her if she left her baby at the hospital. This shocking experience was just 10 years ago, and sadly, similar stories are still happening today. But Melissa turned this negativity into strength and love for her son and hear how this negative experience lit a fire under her.
Fo...
2024-09-1148 minT21Mom-A Down Syndrome PodcastT21Mom-Episode 136: Back to School-Are You Excited, Happy, Sad, Anxious or a Little Bit of Everything?Summer is over and school is back in session! Mary shares about the return to school and Ainsley going into grade 7-her final year of elementary school. Mary talks about their wins, but also her trepidations and anxiousness over the coming school year and beyond.
2024-09-0413 minT21Mom-A Down Syndrome PodcastT21Mom-Episode 135: Finding Beauty in the Unplanned: Sandra Di Curzio's Journey Through Joy, Guilt and AcceptanceIn an intimate conversation, Mary sits down with Sandra Di Curzio, who opens up about the emotional journey she embarked on after her daughter Chiara's birth diagnosis. Sandra's story is one of raw honesty about post partum depression, guilt, and learning that life can still be beautiful while exploring the complexities of motherhood when life takes an unexpected turn.
2024-08-281h 13
The Post Secondary Transition PodcastPodShare: T21Mom - Meeka CaldwellSend us a textAs hosts Meghan (Smallwood) and Patrick (Cadigan) continue to prep for their upcoming school year, they wanted to share out a conversation from their friend, Mary Cardle of the T21Mom Podcast. In Episode 90 of T21Mom Podcast, Mary talks with author Meeka Caldwell about her "My Friend Anian" book series. Meeka couldn't find any books about down syndrome and a black family, so she decided to write her own. It's an open conversation about race, down syndrome and having representation.You can find Mary’s podcast on all the...
2024-08-261h 02T21Mom-A Down Syndrome PodcastT21Mom-Episode 134: Unshakable Love: The Vester Family's Inspiring Journey Through Parenthood and DiagnosisMary dives into an exhilarating conversation with John and Nicole Vester. From the very beginning, John was ready to document much of the pregnancy on his blog. Initially expecting twins, to later finding out there was only one heartbeat, the emotional rollercoaster didn't end there. As if decoding the NIPT results weren't challenging enough, they found themselves navigating the confusion that arose from Nicole initially carrying twins. Despite these issues. the odds of their baby being born with Down syndrome were low. However, when their son was 5 days old, they received the news that their son, Finn, was born with...
2024-08-2157 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 132: From Overlooked to Overcoming: Puja Mehta's Down Syndrome Diagnosis Journey with AaryavIn an incredibly raw and often heartbreaking conversation, Mary sits down with Puja Mehta to delve into the story of her son Aaryav's diagnosis. Puja, who currently resides in India, spent several years in the United States, where she gave birth to both her children. She recounts the experience of a medical system that failed her long before Aaryav, who was born with Down syndrome, came into the world.
From the beginning, red flags were missed. Markers on her ultrasounds, indicative of Down syndrome, were overlooked. When Aaryav was born, Puja immediately sensed something was different-he didn't rese...
2024-07-111h 09T21Mom-A Down Syndrome PodcastT21Mom - Episode 131: It's the End of the Year and I Feel FineIt's the end of the school year and Mary shares about the type of year it's been with another new EA for Ainsley. She shares Ainsley's successes and what it means to have a good team to support your child. Mary also talks about a great day at the PNE where Ainsley rode the big roller coaster for the very first time (she wasn't one bit scared) and their big plans for the summer.
2024-06-2723 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 130: Against All Odds: A Mother's Journey of Hope, Strength and MiraclesIn a heartfelt conversation, Mary sits down with Kim Revai, who shares the incredible and emotional story of her son Jace's birth. Kim's journey is a testament to the strength and resilience of a mother facing unimaginable challenges. Jace entered the world at an astonishing 26 weeks and one day, far earlier than expected. Kim, living far from her family was told to go directly to the hospital and prepare for his birth, plunging her into a whirlwind of fear and uncertainty.
Despite his very premature birth, Jace has defied all odds. Initially doctors believed he would need heart...
2024-06-191h 14T21Mom-A Down Syndrome PodcastT21Mom - Episode 129: Crash, Bourbon and Fascinators: The Haunted Rockin' Moms Do The Kentucky Derby!Mary and a group of her Haunted Rockin' Mom friends meet and go to the 150th Kentucky Derby. These women all met on a haunted pub crawl back in 2022, and have forged an incredible friendship. They pack in a lot over the Derby weekend, including a bourbon tasting, scooter escapades, the Thirsty Peddler and of course, the exhilaration of the Derby itself.
2024-06-131h 03T21Mom-A Down Syndrome PodcastT21Mom - Episode 128 - Defying the Odds and Carving Her Own Path: A Down Syndrome Journey With Sabine KussmanMary sits down with Sabine Kussman, who recounts her poignant journey of her son Kian's diagnosis and her family's courageous path forward. From a heart-wrenching beginning, where two weeks passed without a single medical professional congratulating her on son's birth, to facing discouragement about breastfeeding, Sabine learned to trust her instincts. Despite therapists' negative predictions, Kian defied the odds, walking at 14 months , riding a bike and even mastering downhill skiing. Sabine passionately shares how her family, guided by unwavering expectations and love for Kian, does everything they dream of. In a deeply moving moment, Sabine remembers when her two year...
2024-06-0540 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 127: Dreams Come True: Shiloh Carte's Journey to Embracing Down SyndromeMary has an engaging and heartfelt conversation with Shiloh Carte who shares her not very typical, diagnosis story. In fact, Shiloh predicted her child with Down syndrome! Over a year before she was even pregnant, Shiloh had a dream that was so vivid and so powerful that she knew with all her being that it had to be true-she dreamt that she was going to have a baby with Down syndrome and it would be a girl! Hear how Shiloh shares her vision with her husband, family and even medical professionals and how her dream came true!
2024-05-1538 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 126: Embracing the Heart: Stacey Herncane's Journey Through Diagnosis, Grief and Celebration of Down SyndromeMary chats with fellow Rockin' Mom Stacey Herncane who shares her diagnosis story. Stacey waited in limbo for a week until she was given a definitive diagnosis for her son. From grief of thinking "why her" and how this just wasn't a possibility in her and her husband's lives, to taking lessons from third graders and learning to celebrate Down syndrome, Stacey goes through all the emotions. And sometimes the greatest lessons come from kids.
2024-05-0243 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 125 - You Gotta Have Faith-From Heartbreak to Hope, Dorothy's Diagnosis StoryMary's heart-to-heart with Dorothy reveals the power of faith and resilience in the face of life's challenges. Dorothy's journey from miscarriage to pregnancy is a testament to the human spirit and the importance of holding onto hope. Twenty years later, she recalls receiving the diagnosis news of her daughter Faith with such vivid detail, showing how these moments shape our lives and stay with us forever.
2024-04-2443 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 124 - Embracing Resilience and Hope: Kellie Anderson's Inspiring Down Syndrome Diagnosis JourneyMary's conversation with Kellie Anderson reveals a powerful story of resilience and hope. Despite Kellie's Rh factor creating obstacles during her pregnancy, she remained determined and inspired. When her baby Raina was born with Down syndrome, Kellie's husband provided unwavering support and reassurance. Kellie's message to new parents is one of positivity and courage, reminding them that everything will be alright.
2024-04-1736 minT21Mom-A Down Syndrome PodcastT21Mom-Episode 123: Down Syndrome Diaries: Shelli DeGroot's Story of Faith, Love and ResilienceMary engages in a heartfelt conversation with Shelli DeGroot delving into her remarkable journey of diagnosis and resilience. Shelli recounts the unexpected twist of a pregnancy even after having her tubes tied, followed by the surprising news of her baby having Down syndrome. Through it all, Shelli finds solace in her faith, believing that her son is destined for great things. She reflects on the impact of a book she read during pregnancy which unknowingly prepared her for her son's birth diagnosis. Shelli's story is a testament to the transformative power of love and strength, as she shares how her...
2024-04-1038 minT21Mom-A Down Syndrome PodcastT21Mom-Episode 122- Keller Kuhn's Diagnosis Story: "I prayed for a child with extra needs."Mary chats with mom Keller Kuhn for the first episode in the diagnosis stories series. Keller is Mom to Timmy, who is almost 22 years old, and she shares how she actually prayed for a child with extra needs, what prompted this and how she felt when her prayers were finally answered. Keller raised five children, including Timmy who has Down syndrome and the dual diagnosis of autism, as a single parent. She shares her wisdom from her journey and says she is not "super duper special" and that we have all been chosen because of what our kids have to...
2024-04-0333 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 121: Happy Post World Down Syndrome Day-do you love this day or does it cause you some grief and anxiety?Mary shares her personal experience on this past World Down Syndrome Day and cool experience after wearing her "Love Down Syndrome" shirt. She also shares that even though this day is important, that this year she didn't do a whole lot other than wearing mismatched socks and her Down syndrome shirt and her subsequent feelings about this. And Mary also has some big news about her Haunted Rocking Moms and some exciting summer plans!
2024-03-2713 minT21Mom-A Down Syndrome PodcastT21Mom-Episode 120 Identical Twins and Mosaic Down Syndrome With Lauren ZwickMary chats with Lauren Zwick, mom to Emma and Lily who are identical twins with mosaic Down syndrome-a true rarity! Lauren shares the uniqueness of her twins and how their mosaicism affects them differently. It is a fascinating and intriguing conversation about twins, mosaic Down syndrome and Down syndrome. Lauren's daughter Lily makes an appearance and shares what it means to have Down syndrome and being an identical twin to her sister, Emma.
For more information on mosaic Down syndrome, visit imdsa.org
2024-03-2051 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 119 My Diagnosis Story-When I Learned My Baby Would Be Born With Down Syndrome.Mary shares her personal story of being a single mom by choice and receiving a prenatal diagnosis that her baby would be born with Down Syndrome. She talks of her intense feelings of grief and sadness upon learning of her baby's diagnosis, but also how she came to acceptance of the diagnosis and when her baby was born, it was a true celebration.
2024-03-0721 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 118: Toilet Training Your Child With Down Syndrome-With Katie RinaldMary chats once again with toileting expert Katie Rinald. Katie answers some of the most commonly asked question from parents who are toilet training their child with Down syndrome. Everything from when to start, is your child ready, how to get your child to initiate, even dispelling myths of toilet training. And Katie even answers the question about how to get your boy to pee standing up (her answer may surprise you!) and so much more.
Poop Teaching 101 Course
Videos From ACT (Autism Community Training)
2024-02-221h 06T21Mom-A Down Syndrome PodcastT21Mom - Episode 117 : Season Opener-Snowfall, Speech and School and What’s Coming UpMary shares about the recent snowfall and how Ainsley actually enjoyed it. She also talks about what is happening at school, how Ainsley is participating, and her recent gains in speech. And finally, Mary talks about how you can be a part of an upcoming show!
2024-02-1516 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 116 : The 2023 Christmas ShowChristmas traditions and how Christmas may look different for our children with Down Syndrome.
On today’s episode Mary talks with Ron about some of her favourite Christmas traditions, how she has learned to appreciate the “moments” and not worry about having the Hallmark Christmas. Mary also shares some other Rockin Moms Christmas traditions including Christmas Eve jammies and the White Elephant.
Be sure to check out Burnaby Village Museum
Jingle Bells by Kevin MacLeod https://incompetech.com/ Music Used under Creative Commons CC BY 3.0
2023-12-2044 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 115 : Fostering Friendships For Your Child With Down SyndromeOn today’s episode, Mary shares the best birthday gift ever! Putting into Ainsley’s IEP “fostering friendships” turned into a heartwarming birthday card and a beautiful note by Ainsley’s EA for her birthday. She talks to how our kids, even those with the dual diagnosis, can still have genuine and meaningful friendships.
#T21Mom.com
2023-12-0611 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 114 - Celebrating Babies With Down Syndrome With a Jack’s BasketOn today's episode, Mary talks with Carissa Carroll, founder of Jack's Basket. When her son Jack was born with Down syndrome, no one congratulated them and the delivery of his diagnosis by the health care provider left much to be desired. Carissa felt this had to change. What first started as leaving two baskets at the hospital, has led to Jack's Basket, a non profit organization that has delivered 8,000 baskets to 41 countries across the world! Carissa wants all our children with Down syndrome to be celebrated and the parents congratulated.
To order or receive a basket go to Ja...
2023-11-2947 minT21Mom-A Down Syndrome PodcastT21 Mom - Episode 113 : Halloween and the Potato, Madison Tevlin and the 321 Summit, Musical MemoriesOn today's episode, Mary talks about a successful Halloween and an interesting trick or treat experiment involving a potato! Mary also shares how she was pleasantly surprised with Ainsley''s memory of her music therapy teacher. Mary also met Madison Tevlin-one of the stars from the movie "Champions" at the 321 Summit-a wonderful afternoon event. And she was very surprised to learn that Ainsley's new EA is in a book!
Rainbow Puppy Daycare Link
2023-11-1219 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 112 : DSDN Rockin’ Moms Retreat in San AntonioMary heads to San Antonio, Texas for this year's Rockin Moms Retreat. Listen in as Mary chats with other moms, hears their stories, and learns what the Retreat means to them. There's another Haunted Rockin Moms pub crawl that may have been more sinister than ghostly, plus lots of wine, love and good times.
Plus a former co-host visits to hear the stories.
2023-11-021h 29T21Mom-A Down Syndrome PodcastT21Mom - Episode 111 : Rocktober Means Down Syndrome Awareness Month - IEPs - and HalloweenIn today's episode Mary shares this year's IEP experience, which went pretty well! She also talks about Ainsley's new EA, how keen he is, and how he wants to make things more inclusive for Ainsley. Plus she has an update about Ainsley's palette expander (it's not good news), what she is doing for Rocktober, plans for Halloween, and a little story about how her advocating has really resonated with another mom.
#T21Mom #T21Mompodcast #Rocktober #IEP
2023-10-2617 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 110 : Down Syndrome and the Post Secondary TransitionOn today’s episode Mary talks with Patrick Cadigan and Megan Smallwood of the Post Secondary Transition podcast. They discuss the role of a Transition Coordinator, how to involve your child in these decisions, and the complexities of the post secondary transition.
Check out their websites at Postsecondarytransition.com and p2transition.com.
2023-10-211h 00T21Mom-A Down Syndrome PodcastT21Mom - Episode 109 : A New EA, Renewed Optimism and Hope for the Coming School YearMary shares her thoughts on the coming school year and how she is hopefull and optimistic despite all the changes. She also talks about how pleasantly surprised she was, when they all went out for the afternoon and Ainsley walked for hours with no complaint!
2023-10-0618 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 108 - Dorothy Gazzola - Transitioning Your Child With Down Syndrome From High School and BeyondMary chats with Dorothy Gazzola about how to prepare for your child to transition out of high school-it can be overwhelming! Dorothy is a wealth of information and talks about the different steps to take so that parents and your child are prepared. It’s never to early to start! As Dorothy was going through the whole transition with her daughter, Faith, what she wasn’t prepared for was the emotional side of it. Check out the notes below to learn what you need to do at different ages for you and your child to have a successful transition from...
2023-09-281h 01T21Mom-A Down Syndrome PodcastT21Mom - Episode 107 : Back To SchoolMary chats about how back to school this year is different.
2023-09-1321 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 106 : Summer Update: Palette Expansion and a Haircut!Mary talks about Ainsley's palette expansion and the challenges they are facing. Also, Ainsley had her first "official" salon visit and how that all went down!
2023-08-1015 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 105 : Vacation Success and Creating a Down Syndrome CommunityOn today's episode, Mary talks about her recent vacation and how it was so successful. Hint - it involves a large water slide. She shares some of the other fun and adapted activities that they did. She also talks about how she is creating her own Down syndrome community by hosting a BBQ for her parent support group that included a water fight, a cookie buffet and fun in the pool!
2023-08-0323 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 104 : Homeschooling and Down SyndromeMary talks with returning guest, Christine Wiebe, about homeschooling kids with Down syndrome. Christine believes that anyone can homeschool their child, you just have to have the desire and motivation to do so. They talk about the myth that homeschoolers lack socialization, the benefits of homeschooling and lots of tips and tricks to get you started or to help you on your journey. Several links were talked about during the podcast and you can find them here:
Homeschooling regulations in Canada Homeschooling regulations in Canada
Homeschooling regulations in the USA Homeschooling regulations in the USA
...
2023-07-2755 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 103 : Down Syndrome Grief, a Little Vacay, and Know You’re Not AloneIn this episode Mary talks about her grief and some recent challenging times. She shares some of the tips she is using for self-care, including flowers and knitting. She admits she is not a fabulous knitter, but enjoys it anyways. And she chats about her upcoming getaway that includes wine.
Although the isolation is real, know you are not alone.
2023-07-2014 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 102 : Talking About Down Syndrome and ApraxiaMary talks with Rocking Mom, Stephanie, about Childhood Apraxia of Speech, also known as apraxia. Stephanie shares her journey about her son Odin, who likely has the diagnosis of apraxia of speech and how she has had to fight for services for her son. Stephanie talks about what to look for if you suspect your child has apraxia, and the different types of therapies her son needs.
For more information go to ASHA.org.
If you would like your own Characteristics of Down Syndrome picture, please contact Stephanie on Facebook at Advocate, Celebrate, Educate: Down Sy...
2023-07-1358 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 101 : End of School, The Down Syndrome Gap, and Summer PlansMary shares about the end of the school year with Ainsley and some of the challenges this past year has brought, the dance recital, and Challenger baseball. She also talks about the ever increasing gap between Ainsley and her peers, and how that has affected her, but also shares her plans for the summer (it includes wine!)
2023-07-0618 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 100 : Steve FriedmanThe Essential Guide for Down Syndrome Families.
Mary chats with rocking dad and author, Steve Friedman, who wrote “The Essential Guide for Down Syndrome Families.” This Guide, as Steve likes to call it, is an excellent resource for all families who have a loved one with Down syndrome and how to create a life of independence, regardless of how old your child is. As Steve says, it’s never to late to start!
To order the Guide go to BeyondDownSyndrome.net
2023-06-291h 12T21Mom-A Down Syndrome PodcastT21Mom - Episode 99 : Run Up For Down Syndrome, Boat For Hope, and End of SchoolMary talks about her success at the Farmers Market selling cookies of course, and why she didn’t get a table next to Starbucks at the "Run Up For Down Syndrome". She also talks about the the Boat for Hope, an annual event, put on by Variety, the Children’s Charity, and how much they have done for Ainsley.
2023-06-1419 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 98 : Katie De Nardi Grant - Traveling With Kids With Down syndromeMary talks with her friend Katie De Nardi Grant, a travel agent that specializes in creating vacations for families that have a child with special needs. Katie travels a lot with her daughter Sloan, who has Down syndrome and some other medical issues, but this has not stopped her. If there's a trip you want to take, do it, and Katie shares how. Katie provides lots of tips on how to navigate flying and to make it less stressful and anxious for everyone, and also talks about the different types of trips a family can take with their child wit...
2023-06-0759 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 97 - Mary Talks Run Up For Down Syndrome, Adaptive Dance and More Cookies!Today is another mini episode and Mary talks about the Run Up For Down Syndrome and her cookie fundraising for the event. She also talks about the Adaptive Dance that Ainsley has been going to since September and some of the ongoing challenges with that and her lack of participation. And of course, there's talk about cookies! DSRF.org
2023-06-0113 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 96 : Melissa HartMary chats with Melissa Hart about her recently released book “Daisy Woodworm Changes the World”, and about growing up with a younger brother who has Down syndrome. Melissa is a strong advocate for highlighting people with Down syndrome in various media and believes that people with Down syndrome add so much to families and friendships. And find out what happens when her brother Mark meets movie star Sandra Bullock! You can find her books at MelissaHart.com.
This episode has some audio issues and we apologize that we can't fix them.
2023-05-261h 10T21Mom-A Down Syndrome PodcastT21Mom - Episode 95 : Mary - What’s On My MindThis is a mini-episode of Mary sharing what's been on her mind. She talks about Challenger baseball, Mother's Day, some behaviour issues Ainsley is having at school, and trying to have some success gardening (Dennis is unsure of her success!).
2023-05-1719 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 94 : Brady Murray - ROD’s HeroesMary talks with Brady Murray of ROD's Heroes-an organization that is dedicated to helping children in orphanages that have Down syndrome and other disabilities, find their forever homes. Hear what happens when Brady decides to do an Ironman and allowed to let miracles happen! ROD's is an incredible organization that believes all children deserve a loving, forever home and to have the chance to sing the song they are meant to sing. Find out how you can become an Unstoppable Advocate, and perhaps you might find it in your heart to adopt one of ROD's Heroes. To find out more...
2023-05-1050 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 93 : Darcy Day - Spelling to Communicate for Those With Down SyndromeMary chats with Darcy Day on how she learned that her 18 year old son Brady, who has Down syndrome, was able to communicate through spelling! It is a fascinating and heart warming conversation about always assuming competence on our kids. Darcy is on a mission to help people with Apraxia find their voice through spelling to communicate (S2C). To find out more or to contact Darcy, go to Brand New Day.
Click here to learn more about Spellers - The Movie
2023-04-271h 03T21Mom-A Down Syndrome PodcastT21Mom - Episode 92 : Cristin Condon on Self Care for the Special Needs MomMary chats with Cristin Condon who is a life coach, meditation teacher and a Marie Kondo professional organizer. Cristin is a single mom with three kids including her son with Down syndrome and understands how important self-care is for parents of children with disabilities. Cristin has created a plan that helps parents deal with burnout and how we can enjoy our life again without sacrificing our child's needs. There are eight areas that Cristin focuses on for self-care for special needs parents, and they are all very doable and achievable. To find out more about Cristin and the types of...
2023-04-141h 07T21Mom-A Down Syndrome PodcastT21Mom - Episode 91 : Rose ReifMary talks with Rose Reif, a Licensed Clincical Mental Health Counsellor, about a topic we don’t hear about too often-grief. Rose provides insight and tips on how to handle and manage the grief of our child’s diagnosis. Rose talks about several things around grief-including that your grief does not mean you don’t love your child and why it can be important to schedule time to be sad and so much more. To learn more about Rose, visit RoseReif.com
We apologize for Mary's mic problems at the beginning of the interview. It couldn't be fixed "...
2023-03-2956 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 90 : Meeka CaldwellMary has an eye-opening conversation with author Meeka Caldwell about her "My Friend Anian" book series. When Meeka couldn't find any books about Down syndrome and a black family, she decided to write her own. It's an open conversation about race, Down syndrome and having representation. Find Meeka's books at BrownBaby321.com or any online retailer.
2023-03-151h 02T21Mom-A Down Syndrome PodcastT21Mom - Episode 89 : The Series 5 OpenerMary talks about what's ahead in Series 5.
2023-02-2614 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 88 : The 2022 Christmas ShowIn this last episode of Season 4, Mary and Ron have a chat about what Christmas will look like this year.
Sleigh Bells SFX Courtesy: License: Attribution 4.0 International (CC BY 4.0)
Music Attribution
Jingle Bells CC Commons Licence
Jingle Bells by Kevin MacLeod | https://incompetech.com/
Music promoted by https://www.chosic.com/free-music/all/
Creative Commons CC BY 3.0
https://creativecommons.org/licenses/by/3.0/
2022-12-2141 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 87 : Oliver & Hilda BernierMary talks with filmmakers Olivier & Hilda Bernier. The Bernier's have created a film documenting their son Emilio, who has Down syndrome, and his struggle with inclusion in the school system.
2022-12-141h 04T21Mom-A Down Syndrome PodcastT21Mom - Episode 86 : Rockin Moms Retreat 2022Mary tells tales from the 2022 "Rockin Moms Retreat" in Washington DC.
Make sure you have snacks and beverages, it's a long episode!
2022-11-161h 35T21Mom-A Down Syndrome PodcastT21Mom - Episode 85 : Dr Jonathon Santoro on RegressionMary talks with Dr Jonathon Santoro, Medical Director, Neuroimmunology and Demyelinating Disorders Program
Attending Physician, Division of Neurology at Children's Hospital of Los Angeles about regression.
2022-10-1453 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 84 : Sara Peralta - Behaviour AnalystMary talks with Sara Peralta, a Behaviour Analyst at the Down syndrome Resource Foundation.
Down Syndrome Resource Foundation
2022-09-2953 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 83 : Dawn Barclay - Traveling DifferentMary talks with Dawn Barclay, author of "Traveling Different: Vacation Strategies for Parents of the Anxious, the Inflexible, and the Neurodiverse".
Dawn Barclay's Blog
Amazon Link to Traveling Different: Vacation Strategies for Parents of the Anxious, the Inflexible, and the Neurodiverse
2022-09-1553 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 82 : Dr. Vaish Sarathy on Functional NutritionMary has a fascinating discussion with Dr. Vaish Sarathy about functional nutrition.
Functional Nutrition Website
Dr. Sarathy's Functional Nutrition Podcast
2022-09-021h 04T21Mom-A Down Syndrome PodcastT21Mom - Episode 81 : Dr Liz Head on Down syndrome and AlzheimersMary has a fascinating conversation with Dr. Liz Head, Professor, Vice Chair for Research in the Department of Pathology & Laboratory Medicine at the University of California - Irvine, about research into people with Down syndrome and Alzheimers.
Canadian Clinical Trials
United States Clinical Trials
2022-08-181h 18T21Mom-A Down Syndrome PodcastT21Mom - Episode 80 : Summer Catch UpMary and Ron catch up on how busy they have been over the first part of the summer.
Apologies for Ron's mic
2022-08-0329 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 79 : Liv Meriano Speech and Language PathologistMary talks with Liv Meriano, a Speech & Language Pathologist at the Down Syndrome Resource Foundation.
Down Syndrome Resource Foundation
2022-07-0258 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 78 : Down Syndrome and Infantile SpasmsMary talks with Ebonie Shaniece and Corinne Turrini about diagnosis and treatments for Infantile Spasms.
2022-06-1748 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 77 : Heather Avis of ”The Lucky Few”Mary talks with New York Times best selling author and podcast host Heather Avis of The Lucky Few.
HeatherAvis.com
The Lucky Few Foundation
The Lucky Few Podcast
2022-06-0345 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 76 : Amanda BrunningRockin' Mom Amanda Brunning shares her adoption story with Mary.
2022-05-1940 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 75 : Daria KolmiietsMary talks with Daria Kolmiiets about leaving Ukraine for Canada back in 2019 and her experiences in Ukraine as the mother of a special needs child, and more.
Donation Link for "The Red Cross For Ukraine" Campaign
Donation Link to "Ainsley's Army" for the Run Up For Down Syndrome
2022-05-0458 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 74 : Katie Rinald Returns With More Toileting Tips for Your Child With Down SyndromeMary has a conversation with Toilet Learning Specialist Dr. Katie Rinald.
Blackbird Toileting Website
Chummie Bed Wetting Alarm
https://toilettraining.thinkific.com/courses/poop-training-101
Poop Training 101
Toilet Training for Everyone
Katie's Instagram - Toileting101
2022-04-201h 11T21Mom-A Down Syndrome PodcastT21Mom - Episode 73 : Falon Griffin and the Chick Fil-A BabyMary talks with Rockin Mom Falon Griffin about the adventure of delivering her daughter at a Chick-Fil-A restaurant.
2022-04-081h 07T21Mom-A Down Syndrome PodcastT21Mom - Episode 72 : Dr Gretchen GoodMary talks with Dr Gretchen Good about her life in New Zealand, and who has two adopted children with Down syndrome.
2022-03-2355 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 71 : Megan LibassiMary talks with Megan Libassi about her birth diagnosis while working overseas, and about her fitness and wellness program designed for Special Needs Moms.
https://oxygenfitcoach.click/stayhealthy
2022-03-0952 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 70 : Start Of Series 4 - A Catch Up and A Look AheadIn the Series 4 opener Mary and Ron catch up on what's happened over the show's hiatus, and where the new series might go.
2022-02-2126 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 69 : The 2021 Christmas ShowMary and Ron have a chat about how Christmas 2021 is shaping up for them and how they're looking forward to the New Year.
2021-12-2122 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 68 : It‘s A Wrap For Series 3!In this last episode of Series 3, Mary and Ron talk about the guests and topics that stood out to each of them through the year, and a brief look ahead to Series 4 starting in late January of 2022.
2021-11-2435 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 67 : Miranda Klinger & 21 TreatsMary has a kindred conversation with fellow cookie baker and T21Mom Miranda Klinger. The conversation wanders from baking and work spaces, to the hopes of developing real world skills for their respective daughters.
Instagram @21treatsyqr
21 Treats Contact 21 Treats
2021-11-1055 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 66 : Josh DerrickMary has a conversation with Down syndrome community activist Josh Derrick about the multitude of ways he contributes to the community.
Josh Derrick Facebook
2021-10-2153 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 65 : Jolene Philo & The 5 Love LanguagesMary has an illuminating conversation with Jolene Philo, co-author of "Sharing Love Abundantly in Special Needs Families: The 5 Love Languages for Parents Raising Children with Disabilities".
Different Dream Living
Jolene Philo's Blog
Book - Sharing Love Abundantly in Special Needs Families: The 5 Love Languages for Parents Raising Children with Disabilities
2021-10-0657 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 64 : Inclusion with Sara Jo SoldvieriMary chats with Inclusion Specialist Sara Jo Soldvieri about how to talk about inclusion, what it is, and what it looks like.
Sara Jo on Facebook
2021-09-231h 03T21Mom-A Down Syndrome PodcastT21Mom - Episode 63 : Let Rosie Ride - Amanda CaffreyMary talks with T21Mom Amanda Caffrey, mother of Rosie, about her New Jersey school district's refusal to let Rosie ride the school bus with her brother and care aide.
Link to Public Facebook Group "Let Rosie Ride"
2021-09-1152 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 62 : Stephanie Mullowney - Paper Dolls PhotographyMary talks with Nashville based photographer Stephanie Mullowney who specializes in portraits of children with Down syndrome. Stephanie is also a single mother of a 7 year old daughter with Down syndrome.
Paper Dolls Photography Website
2021-08-2640 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 61 : Lindsey Strickland of Worth The ConversationMary talks with Lindsey Strickland, founder of "Worth The Conversation" about sexual abuse in the Down syndrome community. They discuss tips on prevention, how to talk with your kids about it, and recognizing the signs of abuse.
Worth The Conversation Website
2021-08-1456 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 60 : Dr. Brian Skotko and DSC2UMary talks with Dr. Brian Skotko, founder of the Down Syndrome Clinic To You (DSC2U). DSC2U is a groundbreaking web portal for information and consultations on Down Syndrome.
DSC2U Website
2021-07-2840 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 59 : Julia's Way-Breastfeeding Your Baby With Down SyndromeMary talks with Ella Cullen, author of "Breastfeeding and Down Syndrome: A Comprehensive Guide for Mothers and Medical Professionals", and founder of Julia's Way a resource group for mother's of children with Down syndrome who are having difficulty breastfeeding. Joining the discussion are Jill Rabin, a certified lactation consultant and Rachel Murphy, a mother who has succesfully used the techniques discussed.
Julia's Way
e-mail love@juliasway.org
2021-07-161h 15T21Mom-A Down Syndrome PodcastT21Mom - Episode 58 : Lauren Costabile & Hearts of Joy InternationalMary interviews Lauren Costabile. Lauren is the founder of Hearts Of Joy International, an organization that arranges heart surgeries for children with Down syndrome in less developed countries.
Hearts Of Joy International
2021-06-301h 04T21Mom-A Down Syndrome PodcastT21Mom - Episode 57 : Reilly Cate & The Trium TribeMary has a conversation with inspirational16 year old Reilly Cate who runs a non-profit that delivers gift baskets to families who have adopted children with Down syndrome
The Trium Tribe
2021-06-1740 minT21Mom-A Down Syndrome PodcastT21Mom - Episode 56 : Katie Rinald Returns With Toilet Training Tips For Older Kids With Down SyndromeMary welcomes back Behaviour Analyst Katie Rinald for a conversation about toilet training techniques for older kids.
Blackbird Special Education Website
Katie can be reached at katie@blackbirdse.com
2021-06-021h 25T21Mom-A Down Syndrome PodcastT21Mom - Episode 55 : Andrea Lee On Sexual Health & Development** Special Warning** This program involves a very frank discussion of human biology, puberty, and sexual development. Personal discretion is advised.
Mary has a very frank discussion with Andrea Lee of the Down Syndrome Resource Foundation about special needs kids and issues around puberty and sexual health.
Teaching Children with Down Syndrome about their Bodies, Boundaries, and Sexuality: A guide for Parents and Professionals – Terri Couwenhoven
The Girls Guide to Growing Up – Terri Couwenhoven
The Boys Guide to Growing Up – Terri Couwenhoven
Talk Sex Today – Saleema Noon and Meg Hickling...
2021-05-201h 17