Shows
New Hampshire Has IssuesWhere have all the (affordable) houses gone? with Nick TaylorIt's not your imagination: affordable housing is on almost everyone's mind in New Hampshire. Renters, homeowners, and...well, everyone: this episode is for you. Liz asks Nick why we can't just build more houses and Nick reminds Liz that running downhill is bad for the knees.New episodes every Tuesday.Become a supporter of the showHave an idea for an upcoming episode? Email Liz: newhampshirehasissues@gmail.comLinks:Housing Action NHSlide deck - 2025 Housing Matters ZoomGranite State Poll - Housing is the top i...2025-06-0342 min
Mystical MusingsPower of Story and Sacred Spaces: Exploring the Fertile Ground GatheringThe Power of Story and Sacred Spaces: Exploring the Fertile Ground GatheringIn this episode, Tava Baird and Jennifer Taylor dive into a profound discussion on storytelling, sacred spaces, and the transformative power of communal gatherings. Joined by Liz and Cael Jacobs, of Wilder Grove, they explore the essence and offerings of the Fertile Ground Gathering, a unique event that weaves together spirituality and community in a sacred natural setting.Resources mentioned:Register or read more about the Fertile Ground Gathering:https://www.fertilegroundgathering.com/Contact Liz and/or...2025-04-031h 37
The Liz Earle Wellbeing ShowMenopause, midlife finances, and divorce, with Katie TaylorHas the menopause impacted your career? Katie Taylor, founder of The Latte Lounge, joins Liz on this podcast to reveal how the 'sandwich' generation can find work-life balance, pivot careers in midlife and better manage finances into retirement.In this episode, Katie shares what led her to found her company, how we can better to support women in the workplace, and outlines employment rights when it comes to menopause.They also give advice on returning to work after a career break and how to build your confidence, financial wellbeing, plus navigating divorce and...2025-03-1445 min
Documentary FirstEpisode 246 | Liz Carpenter, Mover and Shaker in US Politics - Part 2In this episode of Documentary First, host Christian Taylor sits down with filmmakers Abby Ginzberg and Christy Carpenter to discuss their latest documentary, Shaking It Up: The Life and Times of Liz Carpenter. The film explores the remarkable legacy of Liz Carpenter—a journalist, author, and women's rights advocate who broke barriers as the press secretary for First Lady Lady Bird Johnson. Carpenter was a trailblazer in political communications, known for her wit, tenacity, and dedication to advancing women's voices in government and media. The conversation delves into Liz Carpenter’s lasting impact, the personal and professional jour...2025-03-0632 min
Documentary FirstEpisode 245 | Liz Carpenter, Mover and Shaker in US Politics In this episode of Documentary First, host Christian Taylor engages with filmmakers Abby Ginzberg and Christy Carpenter about their documentary "Shaking It Up: The Life and Times of Liz Carpenter." The conversation explores Liz Carpenter's legacy as a trailblazer in journalism and politics, the personal journeys of getting into directing, and the collaborative process of producing the documentary. They discuss the importance of storytelling, the challenges of fundraising, and the impact of Liz's life on their own careers. In this conversation, Ginzberg and Carpenter discuss the intricacies of documentary filmmaking, focusing on budgeting, the importance of archival...2025-03-0148 minThe Liz Earle Wellbeing ShowEat fat to lose fat, with Davinia TaylorDo you struggle with keeping your cravings under control? Actor-turned-biohacker Davinia Taylor joins Liz to reveal how to change your diet for better weight management, healthy hormones and stable energy levels. Davinia shares how she got her zest for life back through nutrition, and the simple strategies she uses to keep cravings under control. Liz and Davinia talk through ketogenic diets and how eating fats can result in fat loss, plus the carbohydrates you should choose and - importantly - when to eat them. Davinia also reveals her thoughts on weight lo...2025-01-1750 min
Teatime with Miss LizTeatime with Miss Liz T-E-A Open Discussion with John Kennedy Howard
**Meet My Guest: John Kennedy Howard!** Teatime with Miss Liz- John Kennedy Howard Join us today at **3 PM EST** on Miss Liz’s YouTube channel for a special teatime with the legendary John Kennedy Howard, author of *The Black Cyclone* and *Major Taylor: A Hero the World Forgot*.John is not only known as the longest-playing recognizable competitive cyclist in America, but he also holds remarkable world records: a speed of 152 mph and endurance of 539 miles in just 24 hours! A proud member of three U.S. Olympic teams from 1968 to 1976, he boasts an impressive collection of medals, including a Pa...2024-12-091h 00
Founder Secrets with Taylor and FlaviuE69 Liz Gallo: Transforming Education: A Mission to Innovate with Whymaker.comLiz Gallo, the founder of WhyMaker, joins the Founder Secrets podcast to share her inspiring journey from teaching to entrepreneurship. Liz discusses how her passion for hands-on, engaging education led her to create a company that provides professional development, curriculum writing, and educational products. The conversation dives into the challenges and opportunities in the education system, the importance of career and technical education, and how businesses can support schools. Liz also shares her vision for the future of WhyMaker and her strategies for balancing a busy professional and personal life.
Key Highlights:
Introduction and Background: Liz Gallo's transition...2024-08-0154 min
Tracking Yes: A Guide to Everyday Magic - with Liz Wiltzen, PCCEight Practices for Living Consciously with Steve TaylorSteve Taylor is a transpersonal psychologist, researcher and author of 15 best-selling books on psychology and spirituality.Our conversation begins with one of his earlier books: “Disconnected: The Roots of Human Cruelty, and How Connection Can Heal the World” which explores the continuum of human nature from psychopathy to spirituality and then we turn toward his most recent book “The Adventure: A Practical Guide to Spiritual Awakening” which delves into eight qualities of spiritually awakened people: dis-identification from the egogratitudepresencealtruismacceptanceintegration with the bodydetachmentembracing mortalitySteve shares practical exercises and meditations that help us cultivate these qualities, and offer...2024-06-041h 01
MillennialTeaVThe Nice Girl Edit- Taylor Cole InterviewIn this special episode of The Millennial TeaV Podcast, hosts Candace, Liz and Adrienne, sit down with the one and only Taylor Cole from Laguna Beach Season 2. Taylor takes us on a nostalgic journey as she reflects on her time on the iconic reality show and shares insights into her life post-Laguna Beach.Instagram: @millennialteavFacebook: Millennial TeaV podcastTiktok: @millennialteavpodcastE-mail: millennialteav@gmail.comReddit: millennialteavpodcast YouTube: www.youtube.com/@MillennialTeaVPodcast2024-03-2637 minFounder Secrets with Taylor and FlaviuA Comprehensive Look at AI: Its Promises, Pitfalls, and Potential with Liz O'SullivanStep into the fascinating realm of artificial intelligence with our knowledgeable guest, Liz O'Sullivan, co-founder of the rising AI firm, Vera. Revel in Liz’s lucid insights drawn from her extensive experience in the AI field, as she unravels the complexities of AI’s current landscape, the hurdles it faces, and its immense potential. Listen closely as Liz expounds on her collaboration with the government, the crucial role of regulations in the fast-paced AI field, and the inspiration behind Vera’s inception.
As we explore the exciting potential of AI, we highlight how it can revolutionize fields such a...2023-12-0135 min
Confessions of a Gym RatWe're an Anti Shein Podcast, & Interview with Taylor Rae There ain't no rest for the wicked, truly. This week, Liz tells the horror story of her Shein and PayPal accounts getting hacked. But on the brighter side... this week's interview is with bikini competitor and small business owner, Taylor of Taylor's Cookies! Listen to here about her bodybuilding journey and her journey as a young entreprenaur. DM Liz your favorite Thanksgiving food and we'll debate all about it next week!Follow Liz on YT/TT/IG: @liftswithlizFollow the podcast on IG: @confessionsofagymratFollow Taylor's Cookies on IG: @taylors_cookiesss2023-11-201h 04
Cool Cool CoolJust Say I'm the Favorite with Taylor StreckerLiz sits down (in person!) with her long-time friend and fellow podcast host, the one and only, Taylor Strecker. They chat about everything from knowing when to shoot your shot to the future of podcasting and why “getting headlines” isn’t always worth it. Resources Mentioned: Episode 54 - Leaving No Fxcks Behind with Leah McSweeney Connect with Taylor: Instagram: https://www.instagram.com/taylorstrecker/ Website: https://taylorstrecker.com/ Connect with Liz: TikTok: https://www.tiktok.c...2023-11-0958 min
Play Saves the WorldPersonal Growth through Solo Board Games, with Liz DavidsonIntroduction
We all know what it’s like to play games with other people. But did you know that more and more games every year give you the opportunity to play them by yourself? And we’re not just talking solitaire here. We’re talking multi-player games with a solo mode—as well as games that are designed to be played by only one person. They can be small games with boxes you can hide under a dinner roll, to epic sprawling experiences that you lay out on your table and leave there till Christmas.
So what...2023-10-081h 07
The Algorithmic Futures PodcastExploring the nuclear mindset, with Veronica Taylor, Ed Simpson, and Will GrantIn this episode, we explore the “nuclear mindset” – a term being thrown around in discussions about Australia’s plans to acquire conventionally-armed, nuclear powered submarines as part of the AUKUS trilateral partnership between the US, UK, and Australia. With the help of Veronica Taylor, Will Grant, and Ed Simpson, guest co-host AJ Mitchell and I explore what a nuclear mindset might look like, and discuss how we can help train a new generation of nuclear technology creators, regulators and dreamers approach their work with the care needed to make use of nuclear technologies safely, responsibly, and securely in an Australi...2023-09-271h 06
Brodie's Midnight Café13. Golf outfit Liz, scary lil' flame guys, and a Duck Named TaylorWell ~hello~ there. On today's episode of BMC Taylor and Liz talk about the biggest power couples in sports and cover the mysterious circumstaces surrounding the 2005 disappearance and murder of Patrice Endres.
Tonight's Drink
Azalea- the unofficial drink of the Masters Golf Tournament"
2 oz Belvedere Vodka
1 oz lemon
1 oz pineapple
.25 oz grenadine
Shake with ice, strain into rocks glass with ice
Topics Covered in this Episode:
https://www.fox5atlanta.com/news/patrice-endres-death-investigation-what-happened-to-the-forsyth-county-wife-mother
2023-08-311h 02
Not So Rare PodcastRare Disease and Family Planning - Part 4This week Taylor and Liz revisit their Rare Disease and Family Planning mini-series. In this episode, Taylor shares some exciting updates on her journey. We also revisit Liz's story.Support the showWant to support and connect further with Taylor and Liz?Follow and connect with us on Facebook and Instagram!Also, feel free to message us at notsorarepodcast@gmail.com. We love to hear from all of you!Visit our official merchandise store at https://www.bonfire.com/store/not-so-rare-podcast-store/ and show your support! 2023-08-1532 min
Being Different with Liz DurhamBalancing Careers and Motherhood with Taylor BraselAs the definition of motherhood changes over generations, it becomes harder to pin down the idea of “balance.” In this episode of Being Different, host Liz Durham chats with Taylor Brasel, a loan officer who has decided to focus on her career and wait to have children. Thus begs the question, when?From navigating gender roles to maintaining work-life balance, Liz and Taylor provide different generational insights into the complexities of managing family and professional lives. They share personal experiences, tips, and the importance of open conversations with partners about expectations and roles. Whether you're a mot...2023-08-0340 minBrodie's Midnight Café7. The Many Misadventures of Greg (part 2), a Sacred Retainer, and Dracula's HouseguestHey there Gregerators 2023-06-261h 14
Date NightEpisode 9 - Ralph Will Live (feat. Liz Talbot and Matt Nunn)In a Date Night first it's back to back guest eps with Matt and Liz returning to Date Night HQ!
Tonight's sketches - written by:
Most Dangerous Train Station in Brisbane – Chris Martin
Grandma’s Hot Sauce – Liz Talbot & Matt Nunn
Captain Soft Drink – Taylor Edwards
Let’s Make a Deal - Liz Talbot & Matt Nunn
Hero Sacrifice – Chris Martin
2023-06-1416 minDate NightEpisode 9 - Ralph Will Live (feat. Liz Talbot and Matt Nunn)In a Date Night first it's back to back guest eps with Matt and Liz returning to Date Night HQ!
Tonight's sketches - written by:
Most Dangerous Train Station in Brisbane – Chris Martin
Grandma’s Hot Sauce – Liz Talbot & Matt Nunn
Captain Soft Drink – Taylor Edwards
Let’s Make a Deal - Liz Talbot & Matt Nunn
Hero Sacrifice – Chris Martin
2023-06-1416 minDate NightEpisode 8 - Date Night On Panadol (feat. Liz Talbot and Matt Nunn)Oh no, we both got sick! After a surprise week off resting we're back with a Date Night's worth of brand new sketches. This week we are joined by guest writers Liz Talbot and Matt Nunn after much rescheduling. Enjoy!
Tonight's sketches - written by:
Psychic Part 1 – Chris Martin
Better Price – Matt Nunn
Psychic Part 2 – Chris Martin
Detective L’Aube – Liz Talbot
You’ve Heard of Drunk Shakespeare – Liz Talbot
Psychic Part 3 – Chris Martin
Undercover Boss – Taylor Edwards
2023-06-0716 minDate NightEpisode 8 - Date Night On Panadol (feat. Liz Talbot and Matt Nunn)Oh no, we both got sick! After a surprise week off resting we're back with a Date Night's worth of brand new sketches. This week we are joined by guest writers Liz Talbot and Matt Nunn after much rescheduling. Enjoy!
Tonight's sketches - written by:
Psychic Part 1 – Chris Martin
Better Price – Matt Nunn
Psychic Part 2 – Chris Martin
Detective L’Aube – Liz Talbot
You’ve Heard of Drunk Shakespeare – Liz Talbot
Psychic Part 3 – Chris Martin
Undercover Boss – Taylor Edwards
2023-06-0716 minNot So Rare PodcastLife Update from Taylor & LizTaylor and Liz use this week's episode to provide an update on what is new with their lives over the last several months.Support the showWant to support and connect further with Taylor and Liz?Follow and connect with us on Facebook and Instagram!Also, feel free to message us at notsorarepodcast@gmail.com. We love to hear from all of you!Visit our official merchandise store at https://www.bonfire.com/store/not-so-rare-podcast-store/ and show your support! 2023-06-0131 minNot So Rare PodcastAdvocacyIn this week's episode, Taylor and Liz discuss their own path in identifying ways to be advocates for their Rare Disease. When choosing ways to help your rare disease community, consider identifying advocacy areas that interest you and can have a broad impact.Support the showWant to support and connect further with Taylor and Liz?Follow and connect with us on Facebook and Instagram!Also, feel free to message us at notsorarepodcast@gmail.com. We love to hear from all of you!Visit our official merchandise store at https...2023-04-1620 min
Imperfect ActionHow she turned a $9 membership into a six-figure business with Liz WilcoxLiz Wilcox is an email strategist that shows small businesses how to build online relationships and make real money with emails. Her incredible $9 membership has yielded multiple six figures all whilst maintaining her 'simple is my superpower' ethos. In today's episode, we dive into the world of low-ticket items and understand how getting clear on your direction (and staying the course) can really set you up for low-stress success.- How a low ticket membership can scale to six figures.- How growing a membership starts with believing in your offer, creating your own hype and hitting...2023-04-1346 min
Relatable RealityVanderScandal, Ultimate Girls Trip, and Taylor Frankie Paul ArrestBree and Liz record in the middle of a girls night. They were watching old episode of VPR and eating junk, the perfect night. They give their outlook on the older episodes now that they are 10 years past when these episodes originally aired. Then they talk about the newest episode of VPR. From Kristina Kelly coming to the welcome party, to Sheana’s bridal brunch, and the VanderScandal updates.Jersey was another fight this week and Bree and Liz keep asking themselves when they are finally going to stop watching the Jersey women because its too much. U...2023-04-0351 minNot So Rare PodcastTHE Not So Rare MomYou have heard Taylor and Liz's story, this week we are excited to have THE Not So Rare Mom join the podcast. Taylor's mom joins to share her perspective as a Rare Disease Mom while supporting her daughter through her education and life milestones while also supporting her diagnostic, clinical, and advocacy journeys. Support the showWant to support and connect further with Taylor and Liz?Follow and connect with us on Facebook and Instagram!Also, feel free to message us at notsorarepodcast@gmail.com. We love to hear from all of you!2023-03-2432 minNot So Rare PodcastChallenges of the Self-DiagnosedMany rare disease patients struggle with obtaining a diagnosis for their disease. Often this leaves patients trying to research on their own in order to help the process. Taylor and Liz this week discuss the challenges and impacts of patients who have self-diagnosed their disease.Support the showWant to support and connect further with Taylor and Liz?Follow and connect with us on Facebook and Instagram!Also, feel free to message us at notsorarepodcast@gmail.com. We love to hear from all of you!Visit our official merchandise store at https...2023-02-2621 minNot So Rare PodcastPost Appointment AnxietyMedical appointment anxiety does not end once you leave the doctor's office. This week Taylor and Liz discuss their experiences with post - appointment anxiety along with how they have learned to cope throughout their medical journies.Support the showWant to support and connect further with Taylor and Liz?Follow and connect with us on Facebook and Instagram!Also, feel free to message us at notsorarepodcast@gmail.com. We love to hear from all of you!Visit our official merchandise store at https://www.bonfire.com/store/not-so-rare-podcast-store/ and show your...2023-02-1933 minNot So Rare PodcastFundraisingJoin Taylor and Liz as they discuss fundraising as it relates to the rare disease patient population. Focus is placed on the patient's role in fundraising efforts along with the impact fundraising has on both patients and their families.Support the showWant to support and connect further with Taylor and Liz?Follow and connect with us on Facebook and Instagram!Also, feel free to message us at notsorarepodcast@gmail.com. We love to hear from all of you!Visit our official merchandise store at https://www.bonfire.com/store/not-so-rare-podcast-store/ and...2023-02-0519 min
Fully FreeEp 194: Why it is important to have a tax accountant with Liz ZasloveAre you unsure of what to do with your business finances or afraid of the IRS when it comes to taxes?!
This week I am so excited to chat with my accountant Liz Zaslove, a certified public accountant (CPA), who focuses on tax. She started her company to help entrepreneurs take the stress out of business finance.
As a CPA, she is the ‘go to’ financial resource from countless entrepreneurs. She understands the confusion and frustrations that come with managing your own finances.
I am excited to share her expertise with you as we dive...2023-01-2435 minNot So Rare PodcastMeet Lily - Advocating through CommunityThis week, Taylor and Liz are excited to have Lily join the podcast. Lily is living with VACTERL Association. In this week's episode, Lily discusses more about her disease along with sharing how she has worked to help support her own rare disease community. She also discusses an impactful camping experience that helped her build deeper connections. For more information related to VACTERL Association, please click here. Additionally, for more information related to camping experiences for youth living with bowel and/ or bladder system conditions, please click here.Support the showWant to support and connect further...2023-01-2233 minNot So Rare PodcastExploring Dual Therapy TreatmentsJoin Taylor and Liz this week as they discuss a recent key medical appointment where Taylor explores utilizing dual therapy to help control her disease and symptoms.Support the showWant to support and connect further with Taylor and Liz?Follow and connect with us on Facebook and Instagram!Also, feel free to message us at notsorarepodcast@gmail.com. We love to hear from all of you!Visit our official merchandise store at https://www.bonfire.com/store/not-so-rare-podcast-store/ and show your support! 2023-01-0826 minNot So Rare PodcastRare Disease and Family Planning - Part 2 - TaylorAs part of the second episode in their Rare Disease and Family Planning series, Taylor and Liz discuss the impact that rare diseases and treatments have had on Taylor's family planning. Topics included relating to the impact rare disease has had on her fertility and options available related to growing a family. Trigger Warning: Family Planning and Fertility JourneySupport the showWant to support and connect further with Taylor and Liz?Follow and connect with us on Facebook and Instagram!Also, feel free to message us at notsorarepodcast@gmail.c...2022-12-1832 minNot So Rare PodcastThanksgiving and Holiday UpdateTaylor and Liz have been taking some time over the Thanksgiving and Winter holidays to spend time with their family and friends. Listen to this week's episode to hear more about how they enjoy the holidays while managing their rare disease.Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram at the NotSoRarePodcast as well as on Facebook at the NotSoRarePodcast. Also, feel free to message us at notsorarepodcast@gmail.com. We love to hear from all of you!Support the showWant to support and connect...2022-12-1113 minNot So Rare PodcastVisiting a New Specialist: A New Patient PerspectiveRare disease patients often see many different specialists to help manage their disease. This week, Taylor and Liz discuss the challenges that new patients experience when visiting a new specialist for the first time.Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram at the NotSoRarePodcast as well as on Facebook at the NotSoRarePodcast. Also, feel free to message us at notsorarepodcast@gmail.com. We love to hear from all of you!Support the showWant to support and connect further with Taylor and Liz?...2022-12-0426 min
Fly Penguins Fly Podcast“A Conversation With Liz Knox” VGK@PIT 12/01/22“A Conversation With Liz Knox” VGK@PIT 12/01/22Kris Letang is out, indefinitely, after suffering a second stroke. His first was back in 2014, due in part to a condition relating to his heart. Wishing Kris and his family all the best.Today on the program I’m joined by Liz Knox, Clarkson Cup Champion goalie with the Markham Thunder and founding board member with the PWHPA. Liz and I sat down in Team Sonnet’s locker room at UPMC Lemieux Sports Complex, for a great conversation on all things Women’s Professional Hockey. Special thanks to Ashley Tay...2022-12-0230 minNot So Rare PodcastCatch Up with Taylor and LizTaylor and Liz thought this would be a good week to catch up after having a small break. Topics this week range from vacation updates, fertility journey progress, experiencing COVID with a rare disease, and so much more!Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram at the NotSoRarePodcast as well as on Facebook at the NotSoRarePodcast. Also, feel free to message us at notsorarepodcast@gmail.com. We love to hear from all of you!Support the showSupport the showWant to support...2022-11-2032 minNot So Rare PodcastRare Disease Myth Busters - Part 6Welcome back to the final installment of the Rare Disease Myth Busters series! In this series of episodes, Taylor and Liz discuss their opinions and experiences with rare disease myths. Over the next several episodes, our hosts will break apart common myths and provide insights into how these myths are prevalent within their own lives as rare disease patients. Myths identified within this mini-series originated from a 2019 article appearing on The Mighty (25 Misconceptions About Living with a Rare Disease).Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram at...2022-10-3024 minFounder Secrets with Taylor and FlaviuOther Parents Like Me (OPLM) - Liz and Casie on Mental HealthThis week Taylor and Flaviu are back in the studio and brought a serial entrepreneur friend from EO, Liz Reitman. Liz and and Casie Fariello are the founders of Other Parents Like Me (OPLM.com). They took their personal experience and saw a big need in mental health for parents supporting their children struggling with addiction. It is an amazing story and a big challenge they are taking on. So much to learn from these two.
(1:26) - From Flight Attendant to Entrepreneur
(3:39) - Why start OPLM?
(4:49) - How Liz and Casie Met
(9...2022-10-2947 minNot So Rare PodcastRare Disease Myth Busters - Part 5Welcome back to part 5 of the Rare Disease Myth Busters series! In this series of episodes, Taylor and Liz discuss their opinions and experiences with rare disease myths. Over the next several episodes, our hosts will break apart common myths and provide insights into how these myths are prevalent within their own lives as rare disease patients. Myths identified within this mini-series originated from a 2019 article appearing on The Mighty (25 Misconceptions About Living with a Rare Disease).Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram at the NotSoRarePodcast...2022-10-2322 minNot So Rare PodcastGet to Know Us Better - Part 2Taylor and Liz thought it would be fun to get to know both of them a little bit better. In this part two episode, they answer the second half of questions inspired by Vogue Magazine as interpreted by Oui in Paris.Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram at the NotSoRarePodcast as well as on Facebook at the NotSoRarePodcast. Also, feel free to message us at notsorarepodcast@gmail.com. We love to hear from all of you!Support the showWant to support and connect...2022-10-1636 minNot So Rare PodcastMeet Lindsay - Living with CLOVESTaylor and Liz are excited to have Lindsay join the podcast as part of this week's episode. Lindsay is a young adult who shares her experiences both being diagnosed as well as living with CLOVES. CLOVES stands for Congenital, Lipomatous, Overgrowth, Vascular Malformations, Epidermal Nevi and Spinal/Skeletal Anomalies and/or Scoliosis. Thank you for sharing your story with our community Lindsay!Please click here if you are interested in learning more about CLOVES and the CLOVES Syndrome Community.Support the showWant to support and connect further with Taylor and Liz?2022-10-0929 minNot So Rare PodcastGet to Know Us Better - Part 1Taylor and Liz thought it would be fun to get to know both of them a little bit better. In this part one episode, they answer the first half of questions inspired by Vogue Magazine as interpreted by Oui in Paris.Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram at the NotSoRarePodcast as well as on Facebook at the NotSoRarePodcast. Also, feel free to message us at notsorarepodcast@gmail.com. We love to hear from all of you!Support the showWant to support and connect...2022-09-2528 minNot So Rare PodcastRare Disease and Family Planning - Part 1 - IntroductionRare Disease patients and their families often need to plan differently when considering options surrounding growing their family. Taylor and Liz are passionate about starting the conversation with rare disease patients of all ages. This is the first episode in a new series of episodes dedicated to options available when considering family planning. Our hope is that through hearing our stories, we can help our listeners begin their own conversations about family planning.Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram at the NotSoRarePodcast as well as on...2022-09-1824 minNot So Rare PodcastMeet Sara - Preparing Rare Disease Patients for SchoolThis week Taylor and Liz are really excited to have Sara join and share the story of her journey with her son who was born with Imperforate Anus. Sara shares her journey in finding care for her son's rare condition. Additionally, Sara provides details on key information for families sending their rare disease kids back to school. Click here if interested in learning more about Imperforate Anus. Thanks for joining us, Sara! Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram at the NotSoRarePodcast as well as...2022-09-1129 minNot So Rare PodcastMeet Chris - Creating Rare Disease ConnectionsTaylor and Liz are joined by special guest Chris who shares her journey living with Hypertrophic Olivary Degeneration as well as Sporadic Cerebral Cavernous Malformations. Chris has worked hard to build connections across the patient and medical community to raise awareness and increase research on her disease. If interested in learning more, please refer to https://hodassoc.org/ . Thanks for joining us Chris!Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram at the NotSoRarePodcast as well as on Facebook at the NotSoRarePodcast. Also, feel free to message us...2022-09-0428 minNot So Rare PodcastRare Disease Myth Busters - Part 4Welcome back to part 4 of the Rare Disease Myth Busters series! In this series of episodes, Taylor and Liz discuss their opinions and experiences with rare disease myths. Over the next several episodes, our hosts will break apart common myths and provide insights on how these myths are prevalent within their own lives as rare disease patients. Myths identified within this mini-series originated from a 2019 article appearing on The Mighty (25 Misconceptions About Living with a Rare Disease).Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram at the NotSoRarePodcast...2022-08-2824 minNot So Rare PodcastMeet Leeya - Exploring the World with Rare DiseaseIn this week's surprise bonus episode, Taylor and Liz meet with fellow rare disease patient, Leeya, who had the wonderful experience of studying abroad this past year. Thanks, Leeya, for sharing your experiences managing your disease while exploring the world!Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram at the NotSoRarePodcast as well as on Facebook at the NotSoRarePodcast. Also, feel free to message us at notsorarepodcast@gmail.com. We love to hear from all of you!Support the showWant to support and connect further...2022-08-2417 minNot So Rare PodcastMeet Emily - Creating Roles for the Patient and FamilyTaylor and Liz are excited to invite Emily to this week's podcast episode. Emily shares her inspiring story of navigating her daughter's diagnosis and establishing a treatment plan. Throughout her story, it is evident that there are creative roles that the young patient and all members of the family can serve in both treatment and patient advocacy. Thank you for joining us this week Emily!Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram at the NotSoRarePodcast as well as on Facebook at the NotSoRarePodcast. Also, feel free to...2022-08-2128 minNot So Rare PodcastFor the Parents - Smooth Transition of CareThis week's episode is targeted at our audience of rare disease parents. Taylor and Liz discuss ways to help parents enable their kids with a rare disease to take ownership of their care and treatment plans. Managing care and treatment is overwhelming for all of us, and finding ways to help with this at a young age can make for a smoother transition.Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram at the NotSoRarePodcast as well as on Facebook at the NotSoRarePodcast. Also, feel free to message us...2022-08-1425 minNot So Rare PodcastRare Disease Myth Busters - Part 3Welcome back to part 3 of the Rare Disease Myth Busters series! In this series of episodes, Taylor and Liz discuss their opinions and experiences with rare disease myths. Over the next several episodes, our hosts will break apart common myths and provide insights on how these myths are prevalent within their own lives as rare disease patients. Myths identified within this mini-series originated from a 2019 article appearing on The Mighty (25 Misconceptions About Living with a Rare Disease). Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram at the NotSoRarePodcast...2022-08-0725 minNot So Rare PodcastMini Episode - Alpelisib UpdateIn this special mini-episode, Taylor and Liz share updates based on their experiences with alpelisib. This is a follow-up from their comparison of sirolimus and alpelisib side effects.Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram at the NotSoRarePodcast as well as on Facebook at the NotSoRarePodcast. Also, feel free to message us at notsorarepodcast@gmail.com. We love to hear from all of you!Support the showWant to support and connect further with Taylor and Liz?Follow and connect with us on...2022-08-0311 minNot So Rare PodcastInternational Healthcare - UK vs USAccess to healthcare for patients is dramatically different internationally. This week, Taylor and Liz have invited guest host Rosie back to the Not so Rare podcast to compare access to care between the US and the UK. Today's topics include access to specialists as well as other healthcare benefits across the two locations. To learn more about Rosie's story, make sure to check out 'Episode 5 - Meet Rosie.' Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram at the NotSoRarePodcast as well as on Facebook at...2022-07-3131 minNot So Rare PodcastSharing Side Effects with Medical TeamsRare disease patients experience many different symptoms and side effects from their disease and treatment plans. Patients are faced with questioning what they should share with their medical teams during their appointments. In this week's episode, Taylor and Liz break apart what leads to these concerns and how they have benefited from connecting with their medical teams throughout their care journeys. Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram at the NotSoRarePodcast as well as on Facebook at the NotSoRarePodcast. Also, feel free to message us...2022-07-2428 minNot So Rare PodcastSirolimus vs Alpelisib - Experiences from Two Young Adult PatientsTaylor and Liz focus this week's episode on their past experiences with two different medications for vascular anomalies - sirolimus and alpelisib. Taylor and Liz have experienced treatment with both medications as part of their care journey. This week's episode focuses on side effects experienced and their opinions on the treatment options. The episode ends with a discussion on the role patients can play in advancing treatment options through clinical trials and research.Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram at the NotSoRarePodcast as well as on...2022-07-1743 minNot So Rare PodcastRare Disease Myth Busters - Part 2In this series of episodes, Taylor and Liz discuss their opinions and experiences with rare disease myths. Over the next several episodes, our hosts will break apart common myths and provide insights on how these myths are prevalent within their own lives as rare disease patients. Myths identified within this mini-series originated from a 2019 article appearing on The Mighty (25 Misconceptions About Living with a Rare Disease). Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram at the NotSoRarePodcast as well as on Facebook at the NotSoRarePodcast. Also, feel free t...2022-07-1020 minNot So Rare PodcastRare Disease Myth Busters - Part 1In this series of episodes, Taylor and Liz discuss their opinions and experiences with rare disease myths. Over the next several episodes, our hosts will break apart common myths and provide insights on how these myths are prevalent within their own lives as rare disease patients. Myths identified within this mini-series originated from a 2019 article appearing on The Mighty (25 Misconceptions About Living with a Rare Disease).Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram at the NotSoRarePodcast as well as on Facebook at the NotSoRarePodcast. Also, feel free...2022-07-0319 minNot So Rare PodcastWhat We Wish Doctors KnewIn this week's episode, Taylor and Liz focus on areas they wish their doctors and care providers understood better from the patient perspective. Our two co-hosts also provide insights on how to address these areas with your own care team.Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram at the NotSoRarePodcast as well as on Facebook at the NotSoRarePodcast. Also, feel free to message us at notsorarepodcast@gmail.com. We love to hear from all of you!Support the showWant to support and connect further...2022-06-2627 minNot So Rare PodcastThe Moment When ......At some point in the diagnostic journey, there is a turning point where a rare disease patient starts to understand that their symptoms may be something more. Taylor and Liz use today's episode to discuss this moment within their lives and how that has impacted their approach to their disease and care. Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram at the NotSoRarePodcast as well as on Facebook at the NotSoRarePodcast. Also, feel free to message us at notsorarepodcast@gmail.com. We love to hear from all of...2022-06-1927 min