Shows
Ask the Expert1306. Roopa Ramamoorthi, PhD and Marie AbregoIn this "Community Spotlight Edition" of "Ask the Expert," Landy Thomas of SRNA talked with Marie Abrego and Dr. Roopa Ramamoorthi about visual impairment and their collaborative book of poetry, Rare Visions, published through the Ipsen Foundation. Dr. Ramamoorthi shared her inspiration for the collection of work from individuals who have been diagnosed with rare diseases [00:02:35]. Landy read select poems from Rare Visions, and the guests offered personal insights into their adapted lives and the significance of accessible technology [00:08:57]. Finally, they discussed the importance of raising awareness about rare diseases and accessibility issues through poetry [00:31:05]. 2025-07-1441 min
MS-Perspektive - der Multiple Sklerose Podcast#306: Pionierin zwischen Kontinenten. Engagement für MS und NMO mit Dr. Sara SamadzadehWorum geht's in dieser Folge? Heute nehme ich Dich mit auf eine ganz besondere Reise – im Gespräch mit Dr. Sara Samadzadeh. Sie ist Neurologin, Forscherin und Brückenbauerin zwischen Kontinenten, Kulturen und Fachbereichen. Sara engagiert sich weltweit für Menschen mit MS und NMO: als Präsidentin der European Charcot Foundation Young Investigators und als Botschafterin der Sumaira Foundation für den Iran. Sie setzt sich für schnellere Diagnosen, gezielte Aufklärung und die Förderung junger Forschender ein – insbesondere von Frauen. Außerdem hat sie gemeinsam mit anderen Botschafter:innen die „NMOG Mov...2025-05-2613 min
Cyrus SaysShreeja Chaturvedi & Sumaira Shaikh: Mumbai’s Hilarious Truth-Tellers Spill Holi Chaos, Career Secrets & Family Feuds!From middle-class family roasts to Holi-themed mayhem, Shreeja Chaturvedi—a Comicstaan breakout star—turns everyday Indian mom quirks into comedy gold (think obsessive color-matching and guilt trips over "wasted rang"). Once a corporate hustler at Media.Net, she now dreams of crowd-surfing mid-punchline! Psst—her boyfriend Jyotwani popped up in the AMA…is shaadi brewing? Meanwhile, Sumaira Shaikh, Dongri’s raw, unfiltered voice, traded psychology for punchlines, spinning grief (post her brother’s passing) and family quirks (Tony Stark dad alert!) into viral specials like Dongri Danger. Behind the scenes, this ex-AIB writer (Pushpavalli, Son of Abish) raps to crush stage...2025-03-2454 min
MS-Perspektive - The Multiple Sclerosis PodcastThe Sumaira Foundation & NMO: How One Woman’s Journey is Changing Lives WorldwideSumaira Ahmed turned her NMOSD diagnosis into a global movement, founding The Sumaira Foundation to support patients and drive research. You can read through all questions and answers on my blog: https://ms-perspektive.com/105-tsf Neuromyelitis Optica Spectrum Disorder (NMOSD) is a rare autoimmune disease that can feel isolating and overwhelming. But for Sumaira Ahmed, her diagnosis became the spark that ignited a global movement. In this episode, we dive into her personal journey with NMO, the challenges she faced, and the resilience that led her to create The Sumaira Foundation (TSF)—an organization dedicated to rai...2025-03-1940 min
Not Just Patients[LIVE] The Advocacy Life | Danielle Drachmann and Sumaira AhmedJoin us for this special (unedited) recording of Not Just Patients, which was streamed LIVE on LinkedIn!To celebrate our 10th episode, we were joined by two incredibly inspiring advocates, Danielle Drachmann and Sumaira Ahmed. Listen to this uplifting, raw, and real conversation as these two amazing women share how they turned their adversity into advocacy, and the unspoken realities of their deeply personal work.About our guests: Danielle Drachmann is a recipient of the 2022 Young Patient Advocate Award at the Black Pearl Awards, and Executive Director at Ketotic Hypoglycemia International. As a r...2024-12-161h 24
Symptomatic: A Medical Mystery PodcastCase #24: SumairaWhen Sumaira was 24, what seemed like a routine wisdom teeth extraction quickly set off a series of unexpected health issues. Soon after, her vision in her right eye began to fade—a small nuisance she tried to ignore. But as her eyesight continued deteriorating, it became clear this wasn’t a passing problem. Eventually, doctors uncovered a deeper issue, revealing a diagnosis that would change everything she thought she knew about her health.See omnystudio.com/listener for privacy information.2024-12-0343 min
Old Time Radio Nero WolfeYou Might Also Like: Symptomatic: A Medical Mystery PodcastIntroducing Case #24: Sumaira from Symptomatic: A Medical Mystery Podcast.Follow the show: Symptomatic: A Medical Mystery PodcastWhen Sumaira was 24, what seemed like a routine wisdom teeth extraction quickly set off a series of unexpected health issues. Soon after, her vision in her right eye began to fade—a small nuisance she tried to ignore. But as her eyesight continued deteriorating, it became clear this wasn’t a passing problem. Eventually, doctors uncovered a deeper issue, revealing a diagnosis that would change everything she thought she knew about her health.See omnystudio.com/list...2024-12-0300 min
That Filmy Game ShowThat Filmy Game Show ft. Sumaira Shaikh vs Urjita Wani | #bollywood #moviequiz
On this WILD episode of That Filmy Game Show, Antariksh is joined by hilarious comedians Sumaira Shaikh and Urjita Wani, who compete in a ton of Filmy games to find out who gets crowned the Biggest Bollywood Begum! They talk about their recently watched movies, why one of them loved Jigra so much while Antariksh did not, try their hands at Amitabh and Gabbar impressions, and throw their chairs around in frustration! All this on this episode, so hope you enjoy :)
Follow Antariksh: https://www.instagram.com/antariksht/
Follow Sumaira: https://www.instagram.com/sumairashaikh__/
Follow Urjita: https://www...2024-11-141h 48
Spender BenderSpender Bender ft. Sumaira Shaikh's Mouth Freshener and AshtraysThis week, Sumaira Shaikh drops by to talk to the Chief Spenders Govind and Hoshang about her obsession with dental hygiene and try to understand why Govind and Hoshang would buy the products they brought on this show! Tune in to a podcast like no other. A podcast that celebrates spending money the wrong ways, coz who needs yet another podcast telling you how to do it right!Follow Govind Menon: https://www.instagram.com/agovindmenon/Follow Hoshang Maini: https://www.instagram.com/hoshangmaini/Follow Sumaira: https://www.instagram.com/sumairashaikh__/Produced by Antariksh Takkar (https://www.instagram.com...2024-10-291h 03
MS-Perspektive - The Multiple Sclerosis PodcastNavigating Treatment and Support for MS, NMOSD, and MOGAD in Montenegro with Dr. Sanja GluscevicDr. Sanja V. Gluscevic, a neurologist from Montenegro, specializes in MS, NMOSD and MOGAD, and is dedicated to patient care and advocacy. You can read all questions and answers on my blog: https://ms-perspektive.com/81-sanja-gluscevic Today I would like to introduce you to Dr. Sanja V. Gluscevic, a renowned neurologist who specializes in multiple sclerosis (MS) as well as other inflammatory diseases of the central nervous system and epilepsy. Hailing from Podgorica, the capital of Montenegro, Dr. Gluscevic has built her impressive career with dedication and passion to improve the lives of patients with...2024-10-0245 min
IVM PopIshq ft. Sumaira ShaikhThis week on 'Has It Aged Well?' Abbas and Urjita are joined by comedian and writer Sumaira Shaikh to talk about the 1997 superhit 'Ishq' directed by Indra Kumar and starring an ensemble cast of Aamir Khan, Juhi Chawla, Kajol and Ajay Devgan.Topics discussed include: Why Ishq derails in the second half? The superhit music of the film, who amongst the three major Khans does the panel prefer, Aamir Khan's kissing prowess, some jokes that haven't stood the test of time, and the hilarious supporting cast.Follow Sumaira here: https://www.instagram.com/sumairashaikh2024-09-301h 10
Mind Over MoneyWelcome to Mind Over Money With Sumaira AbidiSBI Mutual Fund presents Mind Over Money, a podcast series with Sumaira Abidi- Vice President SBI Mutual Fund. where she simplifies essential investment concepts for you making them accessible and relatable. So whether you’re starting your investment journey or are a seasoned investor and looking to deepen your knowledge, these bite-sized podcasts are just right for you. Subscribe now and explore a new way to look at your Money and Investments!See omnystudio.com/listener for privacy information.2024-09-2901 min
Ronu SpiritEpisode 0: Exploring the Path to Empowerment for African Nations through ConversationSend us a textIn this episode, Hameed introduces his new podcast series, Ronu Spirit, aimed at examining the motivations behind his interest in African geopolitics, history, and the black diaspora. Joined by Dr. Sumaira Farha, a clinical psychologist, they explore the importance of narratives from African and global majority perspectives, discuss the structure of the podcast, and talk about how the podcast will feature conversations with academics and experts. Hameed shares his personal journey and the inspirations behind Ronu Spirit, while emphasizing the need for collective effort in uplifting African nations. The duo also reflects on...2024-08-2135 min
Demystifying NMO & MOGEpisode #36 | When Disaster Strikes: Emergency Planning for People with DisabilitiesIn this episode, we discuss emergency preparedness and inclusivity with our guest, Brian Kosczuk, a second-generation paramedic and Pennsylvania EMS Educator of the Year.Brian shares how living with a rare disease, myositis, and being a cardiac arrest survivor have allowed him to see different perspectives and how that shapes his role as a first responder, educator, and advocate.Brian also discusses the challenges and solutions for ensuring emergency alerts and responses are accessible to people with disabilities. From adaptive technologies to the role of local emergency managers in accommodating specific needs, he provides valuable...2024-07-0336 min
Demystifying NMO & MOGEpisode #35 | Movement as Medicine w/ Dr. GretchenIn this episode, we talk about how physical therapy can help people with demyelinating diseases, disabilities, and chronic illnesses.Some of you may recognize her from social media as Dr. Gretchen, who shares excellent videos about PT and exercise as part of her MSing Link wellness program.Gretchen Hawley is a Doctor of Physical Therapy and a Multiple Sclerosis Certified Specialist. She has been a keynote speaker at several MS conferences and a popular guest lecturer at educational events and MS support groups.She shares her thoughts on how a holistic approach to...2024-06-1949 min
MS-Perspektive - The Multiple Sclerosis PodcastPioneering Paths. Empowering Young Minds in MS & NMO Research with Dr. Sara SamadzadehDr. Sara Samadzadeh contributes to research in the field of NMOSD and MS by creating networks between young researchers worldwide. You can find all questions and answers as well as all links on the blog article: https://ms-perspektive.com/066-sara-samadzadeh Multiple sclerosis and NMOSD have made tremendous advances in treatment due to research conducted over the past decades. Nevertheless, there is still much to be done. It is therefore all the more important that this area of neurology continues to attract young, committed and motivated scientists who contribute their own ideas and network with each...2024-06-1949 min
Demystifying NMO & MOGEpisode #34 | From Brain Fog to Clarity: Finding Voice and Purpose w/ Alanna YeeIn this episode, we are featuring Alanna Yee.The onset of autoimmune encephalitis and the frustrations leading to her diagnosis would change her life in ways she never could have imagined. These experiences inspired Alanna to begin sharing her own story to help others navigate similar challenges.Alanna generously shares her insights on how to effectively tell personal health stories. She guides us on where to begin, how to strike a balance, and how to respect our own privacy when sharing such personal narratives. Her perspective on the therapeutic value of sharing patient experiences and...2024-05-2933 min
Demystifying NMO & MOGEpisode #33 | From Patient to Practitioner w/ RoselyneThis week's episode offers a compelling narrative for both patients and clinicians as we delve into Roselyne's extraordinary journey. Diagnosed with Neuromyelitis Optica (NMO) as a young adult, she would later decide to pursue a career as a physician.Throughout her journey, Roselyne grappled with the psychological impact of straddling the roles of both clinician and patient, navigating feelings of guilt and obligation along the way.Roselyne emphasizes the importance of patient-provider communication and empathy in healthcare. She highlights the need for clinicians to convey diagnoses in a clear and compassionate manner, drawing from her...2024-05-0929 min
Demystifying NMO & MOGEpisode #32 | Beyond Words: The Silent Support of Animal CompanionsIn this emotional episode, we delve into the profound relationship between pets and mental health.Starting with the TSF AMbassador for New Mexico, Marie Abrego talks about the recent loss of her dachshund Bambi while traveling to raise awareness about NMO.Then, we are joined by TSF Ambassador for Illinois, AnneMarie Nawrocki, a licensed social worker and TSFs ambassador for Illinois; they explore the multifaceted benefits of pet ownership for individuals with disabilities and chronic illnesses. From reducing stress and providing emotional support to promoting opportunities to enhance physical health and promoting social connection, pets...2024-04-1147 min
Demystifying NMO & MOGEpisode #31 | EUPATI Education in Action: Leda's Path to Patient AdvocacyEpisode #31 | EUPATI Education in Action: Leda's Path to Patient AdvocacyIn this episode, we delve into the world of patient advocacy with Leda Bresnov. Leda shares her transformative journey following her NMO diagnosis and the pivotal role patient advocacy and education played in reshaping her life. From her initial involvement as the Denmark Ambassador with the Sumaira Foundation to her experiences in EUPATI’s Patient Academy, Leda's dedication to raising awareness and empowering fellow patients is making a significant impact in healthcare. Join us as Leda offers her insights into the power of patient involvement in healthcare de...2024-03-1339 min
Screaming into the Mic PodcastThe Art of Feminism and Migration with Sumaira TazeenIn this episode, Sumaira talks about the journey of immigrating as an artist, including the struggle to create community, navigate gender normative roles, the barriers of the mainstream art scene, and juggling the gigging economy of artists. Sumaira’s art reflects real life struggles and engages women in exploring trauma, women’s frustration, and common issues across diaspora and gender.Links:Learn more about Sumaira - www.sumairatazeen.comFollow Sumaira on Instagram - @sumairatazeenstudiosAre you a woman around the Region of Waterloo who would like a venue to scre...2024-03-0430 min
Demystifying NMO & MOGEpisode #30 | Navigating NMO in Challenging Circumstances: Global Inequities in Care In recent years, we have seen healthcare systems collapse under the strain of natural disasters and armed conflict and hundreds of millions of people being forcibly displaced. So, how do we meet the healthcare needs of people in humanitarian disasters, let alone those living through these nightmares with a rare disease such as NMO?To talk about the unique challenges of diagnosing and treating rare conditions like NMO in these low-resource settings, we are joined by Dr. Farrah Mateen.She highlights common barriers such as lack of disease awareness, limited diagnostic testing availability, and restricted...2024-02-2154 min
Demystifying NMO & MOGEpisode #29 | Caregivers: Nobody Fights AloneWe kick off Season 4 of the Demystifying NMO & MOG Podcast with a very special guest, Candice Galvan.Candice became an Ambassador for The Sumaira Foundation after her daughter was diagnosed with NMO. She joins us today to talk about her path to becoming an advocate and how she is helping care for others through her work as program manager for TSF’s Human Collective Project.ABOUT US:The Demystifying NMO and MOG podcast is a Sumaira Foundation (TSF) project andwas made possible with the generous support of Genentech.SO...2024-01-2938 min
The Indian EditEp. 88: How a rare disease diagnosis birthed a non-profit with The Sumaira Foundation’s Sumaira AhmedSumaira Ahmed is a force! Upon being diagnosed with a rare neuroimmune condition (Neuromyelitis optica spectrum disorder/ NMOSD, whose symptoms can include vision loss, paralysis, and weakness), Sumaira couldn’t find the community she needed, so she went right ahead and launched a foundation (two months later!) to create that support for herself and patients around the world. The Sumaira Foundation has since advocated for patients, funded disease research, increased NMO awareness globally and truly been a game changer in the field. Hear how this young dancer and Bollywood aspirant (who was crowned the first Miss Bangladesh-USA) turned into a...2024-01-091h 00
Neurology MinuteGlobal Initiatives on NMOSD and MOGAD Dr. Farrah Mateen talks with Sumaira Ahmed about The Sumaira Foundation and their global ambassador program for patient advocacy. 2023-12-1302 min
Neurology® PodcastGlobal Initiatives on NMOSD and MOGADDr. Farrah Mateen talks with Sumaira Ahmed about The Sumaira Foundation and their global ambassador program for patient advocacy. Learn more about The Sumaira Foundation. Disclosures can be found at Neurology.org2023-12-1121 min
My Career ShopA Lawyer's Journey - Sumaira ShaikhDo you want to become a lawyer? Today on the My Career Shop Podcast, I am joined by Sumaira Shaikh, a seasoned banking attorney licensed to practice law in Washington, D.C., New York, Massachusetts and Ontario, Canada. In this episode, we will discuss Sumaira's journey from high school to working at an AM Law 100 firm, her diverse experience as a litigator and in the transactional world, prerequisites to becoming a lawyer, stress and work life balance in the legal profession, type of characteristics you need to succeed as a lawyer, pros and cons about the profession, tips to h...2023-10-221h 37
IVM PopBodyguard of the Year ft. Sumaira Shaikh vs Shreeja Chaturvedi | Just A Filmy Game ShowThis week on Just A Filmy Game show, Comedians Shreeja Chaturvedi and Sumaira Shaikh are joining Antariksh, as they battle it out for the title of the 'Biggest Bollywood Deewana!' Shreeja and Sumaira are singing songs of Govinda, putting movies in their correct order of Release and having just a ball of a time in general. Tune in! Follow our host Antariksh on Instagram: https://www.instagram.com/antariksht/ Follow Shreeja on Instagram: https://www.instagram.com/shreejachaturvedi/ Follow Sumaira on Instagram: https://www.instagram.com/sumairashaikh__/ Subscribe t...2023-10-181h 08
Demystifying NMO & MOGEpisode 28 | Financial Assistance For NMO & Critical Insurance Updates w/ the Pan FoundationAs we wrap up Season Three of the podcast, we are speaking with Amy Niles of the PAN Foundation. Amy is the Chief Advocacy and Engagement Officer, where she dedicates her time to building relationships, public policy, and advocacy initiatives. She joins us to discuss how PAN helps people manage the financial burden of chronic illnesses. Amy also explains important updates to Medicare and some new insurance practices that can be harmful to patients with life-threatening, chronic, and rare diseases.ABOUT US:The Demystifying NMO and MOG podcast is a Sumaira Foundation project and2023-08-3038 min
Demystifying NMO & MOGEpisode 27 | Double Seronegative NMOEpisode 27 | Double Seronegative NMOIn this episode, we look at Double Seronegative NMO. We are joined by Nicole Helton to give us the patient perspective. Then Dr. Sara Mariotto, to learn more about testing and the future of the disease. Finally, Sumaira Ahmed talks about her personal experiences as a Double Seronegative NMO patient and the importance of advocacy in research and ensuring patients have access to appropriate care.ABOUT US:The Demystifying NMO and MOG podcast is a Sumaira Foundation (TSF) project and was made possible with the generous support of Genentech.2023-07-1252 min
Demystifying NMO & MOGEpisode 26 | The Employment Impact of NMO & MOG w/ Dr. Farrah MateenIn the second part of our series on working with NMO and MOG, we are joined by Dr. Farrah Mateen. This year she published work that focuses on the socioeconomic impact of NMOSD on patients and caregivers. The work of Dr. Mateen and her team provides us with one of the most in-depth looks at the psychosocial toll, risks, unmet needs, and opportunity loss due to NMOSD.ABOUT US:The Demystifying NMO and MOG podcast is a Sumaira Foundation (TSF) project and was made possible with the generous support of Genentech.SOCIAL & WEBSITE:2023-06-2754 min
Demystifying NMO & MOGEpisode 25 | Responding To Life’s Challenges Featuring Dr. Maggie KangMany people will recognize this episode’s guest as “Nell’s mom.” But today, we are focusing on the journey of Dr. Maggie Kang, whose world was shaken to its core when her daughter was diagnosed with NMOSD. Bogged down by the stress and the uncertainty of the future, she consulted a coach. Maggie soon realized she was the barrier to moving forward. The results were so profound she became a certified life coach focused on supporting the rare disease community, especially moms.Last year she shared her experiences at TEDxCherryCreekWomen, and she is here today to continue that conversa...2023-06-1341 min
Demystifying NMO & MOGEpisode 24 | Working with NMO & MOG In this episode, we are joined by Anessa Powell to discuss the many challenges that people with chronic illnesses face in the workplace, from disclosing their illnesses to finding opportunities and navigating professional relationships.Following her Addison’s Disease (Primary Adrenal Insufficiency) diagnosis, she focused on raising awareness that disabilities come in many forms. Her outreach efforts led Anessa and her husband, Bill, to create AllAbility Recruiting, where they strive to Leave No Ability Behind through disability employment, training, and consulting.ABOUT US:The Demystifying NMO and MOG podcast is a Sumaira Foundation (TSF) project an...2023-05-3044 min
Naeem Sikandar PodcastEP164 Reporting Afghanistan: Life of a Fearless Female War Journalist | Naeem Sikandar Podcast
Join us as we dive into the world of embedded journalism with @SUMERAKHAN a seasoned journalist who shares remarkable insights. From her career highlights to misconceptions about defense analysts, Sumaira unveils the realities of reporting from conflict zones. Discover the risks she encountered during her dangerous travels for stories, including her coverage of a blast at The Islamic University Islamabad. Honesty in journalism takes center stage as she emphasizes the need for integrity. Gain a unique perspective on being a female war journalist and the challenges faced in the field. Sumaira contrasts the experiences of being an anchor and a...2023-05-241h 25
Brain Chat with the Nerdy NeurologistNMOSD AwarenessOn this episode we have Dr. Mitzi and her Super friends Christine Ha, MasterChef winner, Author, and Chef living with NMSOD and Sumaira Ahmed, NMOSD Patient, Founder and Director of the Sumaira Foundation will chat about NMSOD Awareness.2023-04-2547 min
IndusCastIndusCast: Solid Waste Management Sumaira GulMs. Sumaira Gul is serving from last 16 years in Dr Akhtar Hameed Khan Memorial Trust (AHKMT) as Program Manager Now working as CEO.
AHKMT is working in the marginalized areas of Pakistan since 2000 for the provision of water, sanitation and hygiene services in different cities of Pakistan, with the collaboration of local government and civil society organizations. Under Her supervision AHKMT has develop an Integrated Recovery Resource Centre (IRRC) at G-15 Islamabad in 2015 with the support of UN-ESCAP. IRRC is a best successful South Asian model. It is replicated in different cities of Pakistan with the support...2023-03-3136 min
Demystifying NMO & MOGEpisode 23 | Service Dogs 101In this episode, we are joined by professional service dog trainer Leslie Horton to talk about all things service dogs, including what they are, legal protections, and training. We try to clear up some common misconceptions and touch on how they differ from emotional support animals, behavior standards in public, and being a “Certified” service dog.She owns Most Fine Canine in Frederick, Maryland, where she has spent over 20 years training and specializing in service dogs. She is certified as a dog trainer and service dog trainer and was inducted into the International Association of Canine Professionals (IACP...2023-03-1437 min
Brain Diet158. Getting a Rare Disease (NMOSD)and Changing the World with Sumaira AhmedThis week I sat down with Sumaira Ahmed. Sumaira is the founder and executive director of The Sumaira Foundation (TSF). Prior to her career in healthcare and hospital administration in Boston, Sumaira worked as an actor/model in Hindi-/Bengali-language media, primarily in southeast Asia. Sumaira is a classically-trained Kathak dancer and has performed around the world in venues including Madison Square Garden, the Dolby Theatre, Santiniketan, and the Rudolf Steiner Theatre.
In the summer of 2014, Sumaira was diagnosed with sero-negative neuromyelitis optica spectrum disorder (NMOSD) after experiencing sudden and severe vision loss and weakness/numbness. Less than two months...2023-03-1042 min
Giving BackSpecial Interview Ms. Sumaira SamadSpecial Interview Ms. Sumaira Samad, Secretary Women Development Department, Govt. of the Punjab2023-03-0800 min
Vivre FM - Les EXPERTS de la rédactionLes Experts Santé: La fondation Sumaira, focus sur la NMO & la MOGADCe matin dans les Experts Santé, Ornella Damperon et Salomé Le Corre parlent de la Fondation Sumaira, une organisation mondiale a but non lucratif qui sensibilise sur deux maladies neuro-immunes rares (NMO & MOGAD) et qui a vu le jour en France le 28 février dernier lors de la Journée Mondiale des maladies rares. Pour l'occasion, elles reçoivent Bérengère Doyère, ambassadrice de France de TSF, Guillaume Molinier, consultant pour TSF France et Fatiha Maamar, également ambassadrice de France de TSF. Parce que sensibiliser, informer, communiquer et apporter soutien à la communauté française touchée par la NMO et la MOG...2023-03-0842 min
Demystifying NMO & MOGEpisode 22 | Resilience & Chronic IllnessIn this episode, Brian talks with Dr. Amy Sullivan about resilience and how chronic illness impacts mental health.In her role as an Associate Professor of Medicine and, the Director of Behavioral Medicine & Research at the Mellen Center for MS, Director of the Neurological Institute Engagement and Wellbeing, Dr. Sullivan works with patients and families dealing with the impact of illness. She has also become a leading voice in physician and caregiver self-care, burnout, and psychological health and spearheaded Mellen Center's efforts that led to the National Psychologically Healthy Workplace Award, Best Practice by the American Psychological...2023-02-2824 min
Demystifying NMO & MOGEpisode 21 | Learning Through Social Media & Clinical Trials w/ Dr. Aaron BosterIn today’s episode, we welcome an award-winning physician, researcher, and educator, Dr. Aaron Boster. He is a board-certified Neurologist and the founder and President of the Boster Center for Multiple Sclerosis in Columbus, Ohio.We had the pleasure of catching up with Dr. Boster to talk about harnessing the power of social media to provide 24-7 access to information reliable, understandable medical information. He also breaks down the importance of clinical trials and walks us through each phase of a study and what a participant can expect.ABOUT US:The Demystifying NMO an...2023-02-1431 min
Demystifying NMO & MOGEpisode 20 | Health Literacy - Sifting Through All the C.R.A.A.P.Brian spent more than twenty years working in emergency management as a paramedic & law enforcement officer before getting a Master’s degree in Library & Information Science. While serving as the Acting Deputy Secretary of Education for Libraries with the Pennsylvania Department of Education, a cold triggered an autoimmune response leaving him blind & paralyzed from the chest down.Following an NMO diagnosis, he needed to understand more about the disease. As an information professional, he was shocked that much of the information he got from his care team or found online was outdated, not supported by science, or ju...2023-01-3133 min
Demystifying NMO & MOGEpisode 19 | Demystifying NMO & MOGAD: All Part of the Spectrum, All in it TogetherSeason three starts with big news about the podcast. We talk with Sumaira Ahmed of The Sumaira Foundation about the podcast's growth and inclusivity and introduce a new co-host, Brian Dawson.Then we were joined by one of the leading NMO and MOG researchers, Michael Levy, MD, Ph.D. Dr. Levy is the Research Director of the Division of Neuroimmunology & Neuroinfectious Disease at Massachusetts General Hospital and is an Associate Professor at Harvard Medical School.ABOUT US:The Demystifying NMO and MOG podcast is a project of the Sumaira Foundation (TSF) and was...2023-01-1729 min
Rare Care PodcastAn Interview With Sumaira Ahmed, Founder and Executive Director of The Sumaira Foundation Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Sumaira Ahmed, founder and executive director of The Sumaira Foundation, a Boston-based nonprofit organization that advocates on behalf of patients with neuromyelitis optica spectrum disorder (NMOSD) and related diseases.2022-10-1214 min
Patient PodcastPatients Podcast: Neuromyelitis OpticaOn today’s episode of Patient Podcasts, we are joined with Sumaira Ahmed. In the summer of 2014, Sumaira was diagnosed with sero-negative neuromyelitis optica spectrum disorder (NMOSD)/chronic relapsing inflammatory optic neuritis (CRION) after experiencing sudden and severe vision loss and weakness/numbness. Less than two months after her diagnosis, she founded The Sumaira Foundation (TSF) dedicated to generating global awareness of NMOSD and MOG-AD, supporting research to find a cure, patient advocacy, and creating communities of support for NMOSD and MOG-AD. Sumaira has huge plans for the foundation and in this episode we find out more about what dr...2022-09-2016 min
Women We Watch In TourismSeason 3 Sumaira Isaac: Conscious LeadershipConscious leadership is critical when navigating tough times and challenges in the leadership journey. A high level of self-awareness, level headedness, being intentional and compassionate are important traits to transform organisations and communities. In today’s episode, I will speaking with one of the "TOP 50 Global Inspirational Woman to look out for 2022", one who wins the hearts of many through her conscious leadership. Sumaira Isaacs: CEO of World Tourism Forum InstituteContact: https://www.linkedin.com/in/sumaira-isaacs As a destination expert and influencer, with over 25 years’ experience, Sumaira...2022-05-2547 min