Shows
The Sahabiyati’s PodcastSahabiyati Episode 20 The Journey Within Being A Mother, An Empowering Influencer & EntrepreneurIn our twenty first episode on our podcast with the help of our special guest speaker Sumaira. The topic is “The Journey Within Being A Mother, An Empowering Influencer & Entrepreneur.” This episode talks about the story of a mother a daughter journey. She has so many businesses that she runs and just inspiring so many women around the world. Remember you can do anything that you put your mind to and anything that you set your kind to do. I hope that all of you enjoy this episode and that all of you are able to relate to me your...
2025-12-021h 00
Let's talk NMOSD10. Diagnose jenseits der 50Staffel 3, Episode 2
In dieser Episode unseres Alexion Patientenpodcasts widmen wir uns einem besonderen und oft unterschätzten Thema: der Diagnose einer seltenen Erkrankung im höheren Alter – in diesem Fall mit knapp 60 Jahren. Unser Moderator spricht mit Hans-Jörg über diese prägende Zeit in seinem Leben. Als selbst Betroffener und seit Juli 2025 auch Botschafter der Sumaira Foundation teilt er offen seine Erfahrungen und Gedanken: Wie verändert eine solche Diagnose Berufs- und Privatleben? Wie fühlt es sich an, plötzlich Hilfe annehmen zu müssen? Und vor allem: Was gibt Kraft, weiterzumachen, und wo findet man Unterstützung?
Eine...
2025-11-0623 min
Desi Academia PodcastS9E4: What is Islamic Studies? Wrong answers only, with Manan and SumairaHave you ever wondered what it's like to explain your research to an immigration and customs officer? Today, Manan and Sumaira join us to discuss their work on trans-continental poetry and periodicals respectively, what it means to study the history of Islamic communities and literary traditions in Western Academia, the different aims and focii of sociology, anthropology, literature, religious studies and Islamic studies, and what it means to impart all this knowledge and passion in college classrooms.RecommendationsSumairaIdea of the Muslim WorldOttoman History PodcastWhen only...
2025-10-032h 04
A TIME OF INSPIRATIONHost Dr. Kina Peppers interviews Sumaira Ahmed, Founder and Executive Director of The Sumaira Foundation.A Time of Inspiration's Host Dr. Kina Peppers engages in a lively discussion on Finding Purpose in Your Journey with Sumaira Ahmed, Founder and Executive Director of The Sumaira Foundation. The Sumaira Foundation is an international organization that generates global awareness of NMOSD, MOGAD and other rare neuroimmune conditions, by building communities of support for patients and their loved ones, supporting research and advocating on behalf of patients.
2025-09-1223 min
SRNA Soundwaves (previously Ask the Expert)Ask the Expert 1306. Community Spotlight | Roopa Ramamoorthi, PhD and Marie AbregoIn this "Community Spotlight Edition" of "Ask the Expert," Landy Thomas of SRNA talked with Marie Abrego and Dr. Roopa Ramamoorthi about visual impairment and their collaborative book of poetry, Rare Visions, published through the Ipsen Foundation. Dr. Ramamoorthi shared her inspiration for the collection of work from individuals who have been diagnosed with rare diseases [00:02:35]. Landy read select poems from Rare Visions, and the guests offered personal insights into their adapted lives and the significance of accessible technology [00:08:57]. Finally, they discussed the importance of raising awareness about rare diseases and accessibility issues through poetry [00:31:05].
2025-07-1441 min
MS-Perspektive - der Multiple Sklerose Podcast#306: Pionierin zwischen Kontinenten. Engagement für MS und NMO mit Dr. Sara SamadzadehWorum geht's in dieser Folge? Heute nehme ich Dich mit auf eine ganz besondere Reise – im Gespräch mit Dr. Sara Samadzadeh. Sie ist Neurologin, Forscherin und Brückenbauerin zwischen Kontinenten, Kulturen und Fachbereichen. Sara engagiert sich weltweit für Menschen mit MS und NMO: als Präsidentin der European Charcot Foundation Young Investigators und als Botschafterin der Sumaira Foundation für den Iran. Sie setzt sich für schnellere Diagnosen, gezielte Aufklärung und die Förderung junger Forschender ein – insbesondere von Frauen. Außerdem hat sie gemeinsam mit anderen Botschafter:innen die „NMOG Mov...
2025-05-2613 min
Rare ConnectionNeuromyoitis Optica with Nicki From New YorkSend a textIn this episode of Rare Connection, host Joanna Ball speaks with [Guest Name], who shares their powerful journey with [Rare Disease]. Together, they discuss diagnosis challenges, treatment paths, daily life, and advocacy work. Whether you're a patient, caregiver, medical professional, or just curious—this conversation brings rare insight into a rarely understood condition.💡 New! Listener Quiz Stick around to test your knowledge with a short quiz at the end of the episode! It's a great way to stay engaged, especially with our new premium content rolling out soon on Apple...
2025-05-141h 37
Cyrus SaysShreeja Chaturvedi & Sumaira Shaikh: Mumbai’s Hilarious Truth-Tellers Spill Holi Chaos, Career Secrets & Family Feuds!From middle-class family roasts to Holi-themed mayhem, Shreeja Chaturvedi—a Comicstaan breakout star—turns everyday Indian mom quirks into comedy gold (think obsessive color-matching and guilt trips over "wasted rang"). Once a corporate hustler at Media.Net, she now dreams of crowd-surfing mid-punchline! Psst—her boyfriend Jyotwani popped up in the AMA…is shaadi brewing? Meanwhile, Sumaira Shaikh, Dongri’s raw, unfiltered voice, traded psychology for punchlines, spinning grief (post her brother’s passing) and family quirks (Tony Stark dad alert!) into viral specials like Dongri Danger. Behind the scenes, this ex-AIB writer (Pushpavalli, Son of Abish) raps to crush stage...
2025-03-2454 min
MS-Perspektive - The Multiple Sclerosis PodcastThe Sumaira Foundation & NMO: How One Woman's Journey is Changing Lives WorldwideSumaira Ahmed turned her NMOSD diagnosis into a global movement, founding The Sumaira Foundation to support patients and drive research. You can read through all questions and answers on my blog: https://ms-perspektive.com/105-tsf Neuromyelitis Optica Spectrum Disorder (NMOSD) is a rare autoimmune disease that can feel isolating and overwhelming. But for Sumaira Ahmed, her diagnosis became the spark that ignited a global movement. In this episode, we dive into her personal journey with NMO, the challenges she faced, and the resilience that led her to create The Sumaira Foundation (TSF)—an organization dedicated to...
2025-03-1940 min
Not Just Patients[LIVE] The Advocacy Life | Danielle Drachmann and Sumaira AhmedJoin us for this special (unedited) recording of Not Just Patients, which was streamed LIVE on LinkedIn!To celebrate our 10th episode, we were joined by two incredibly inspiring advocates, Danielle Drachmann and Sumaira Ahmed. Listen to this uplifting, raw, and real conversation as these two amazing women share how they turned their adversity into advocacy, and the unspoken realities of their deeply personal work.About our guests: Danielle Drachmann is a recipient of the 2022 Young Patient Advocate Award at the Black Pearl Awards, and Executive Director at Ketotic Hypoglycemia International. As a r...
2024-12-161h 24
Murder in IllinoisCase #24: SumairaWhen Sumaira was 24, what seemed like a routine wisdom teeth extraction quickly set off a series of unexpected health issues. Soon after, her vision in her right eye began to fade—a small nuisance she tried to ignore. But as her eyesight continued deteriorating, it became clear this wasn’t a passing problem. Eventually, doctors uncovered a deeper issue, revealing a diagnosis that would change everything she thought she knew about her health. * * * * * * ****** SPOILER ALERT BELOW ****** To find out more about NMOSD and Sumaira’s...
2024-12-0343 minSymptomatic: A Medical Mystery PodcastCase #24: SumairaWhen Sumaira was 24, what seemed like a routine wisdom teeth extraction quickly set off a series of unexpected health issues. Soon after, her vision in her right eye began to fade—a small nuisance she tried to ignore. But as her eyesight continued deteriorating, it became clear this wasn’t a passing problem. Eventually, doctors uncovered a deeper issue, revealing a diagnosis that would change everything she thought she knew about her health. * * * * * * ****** SPOILER ALERT BELOW ****** To find out more about NMOSD and Sumaira’s...
2024-12-0343 min
Old Time Radio Nero WolfeYou Might Also Like: Symptomatic: A Medical Mystery PodcastIntroducing Case #24: Sumaira from Symptomatic: A Medical Mystery Podcast.Follow the show: Symptomatic: A Medical Mystery PodcastWhen Sumaira was 24, what seemed like a routine wisdom teeth extraction quickly set off a series of unexpected health issues. Soon after, her vision in her right eye began to fade—a small nuisance she tried to ignore. But as her eyesight continued deteriorating, it became clear this wasn’t a passing problem. Eventually, doctors uncovered a deeper issue, revealing a diagnosis that would change everything she thought she knew about her health.See omnystudio.com/list...
2024-12-0300 min
That Filmy Game ShowThat Filmy Game Show ft. Sumaira Shaikh vs Urjita Wani | #bollywood #moviequiz
On this WILD episode of That Filmy Game Show, Antariksh is joined by hilarious comedians Sumaira Shaikh and Urjita Wani, who compete in a ton of Filmy games to find out who gets crowned the Biggest Bollywood Begum! They talk about their recently watched movies, why one of them loved Jigra so much while Antariksh did not, try their hands at Amitabh and Gabbar impressions, and throw their chairs around in frustration! All this on this episode, so hope you enjoy :)
Follow Antariksh: https://www.instagram.com/antariksht/
Follow Sumaira: https://www.instagram.com/sumairashaikh__/
Follow Urjita: https://www...
2024-11-141h 48
Spender BenderSpender Bender ft. Sumaira Shaikh's Mouth Freshener and AshtraysThis week, Sumaira Shaikh drops by to talk to the Chief Spenders Govind and Hoshang about her obsession with dental hygiene and try to understand why Govind and Hoshang would buy the products they brought on this show! Tune in to a podcast like no other. A podcast that celebrates spending money the wrong ways, coz who needs yet another podcast telling you how to do it right!Follow Govind Menon: https://www.instagram.com/agovindmenon/Follow Hoshang Maini: https://www.instagram.com/hoshangmaini/Follow Sumaira: https://www.instagram.com/sumairashaikh__/Produced by Antariksh Takkar (https://www.instagram.com...
2024-10-291h 03
IVM PopIshq ft. Sumaira ShaikhThis week on 'Has It Aged Well?' Abbas and Urjita are joined by comedian and writer Sumaira Shaikh to talk about the 1997 superhit 'Ishq' directed by Indra Kumar and starring an ensemble cast of Aamir Khan, Juhi Chawla, Kajol and Ajay Devgan.Topics discussed include: Why Ishq derails in the second half? The superhit music of the film, who amongst the three major Khans does the panel prefer, Aamir Khan's kissing prowess, some jokes that haven't stood the test of time, and the hilarious supporting cast.Follow Sumaira here: https://www.instagram.com/sumairashaikh
2024-09-301h 10
Mind Over MoneyWelcome to Mind Over Money With Sumaira AbidiSBI Mutual Fund presents Mind Over Money, a podcast series with Sumaira Abidi- Vice President SBI Mutual Fund. where she simplifies essential investment concepts for you making them accessible and relatable. So whether you’re starting your investment journey or are a seasoned investor and looking to deepen your knowledge, these bite-sized podcasts are just right for you. Subscribe now and explore a new way to look at your Money and Investments!See omnystudio.com/listener for privacy information.
2024-09-2901 min
Ronu SpiritEpisode 0: Exploring the Path to Empowerment for African Nations through ConversationSend us a textIn this episode, Hameed introduces his new podcast series, Ronu Spirit, aimed at examining the motivations behind his interest in African geopolitics, history, and the black diaspora. Joined by Dr. Sumaira Farha, a clinical psychologist, they explore the importance of narratives from African and global majority perspectives, discuss the structure of the podcast, and talk about how the podcast will feature conversations with academics and experts. Hameed shares his personal journey and the inspirations behind Ronu Spirit, while emphasizing the need for collective effort in uplifting African nations. The duo also reflects on...
2024-08-2135 min
Demystifying NMO & MOGEpisode #36 | When Disaster Strikes: Emergency Planning for People with DisabilitiesIn this episode, we discuss emergency preparedness and inclusivity with our guest, Brian Kosczuk, a second-generation paramedic and Pennsylvania EMS Educator of the Year.Brian shares how living with a rare disease, myositis, and being a cardiac arrest survivor have allowed him to see different perspectives and how that shapes his role as a first responder, educator, and advocate.Brian also discusses the challenges and solutions for ensuring emergency alerts and responses are accessible to people with disabilities. From adaptive technologies to the role of local emergency managers in accommodating specific needs, he provides valuable...
2024-07-0336 min
NotiPHied3 - Navigating Autoimmune Diseases - A Spotlight on NMOIn this episode, I speak to Sumaira Ahmed, Executive Director and Founder of The Sumaira Foundation! We talk a little bit about taking life as it comes, the power of policy to reform our healthcare systems for the public good, comparisons of the healthcare systems in the UK vs. the US with this disease, and the importance of health as a human right. Hope you enjoy!
Check out my Patreon for exclusive content: www.patreon.com/notiphied
Follow the podcast on Instagram: www.instagram.com/notiphied.podcast
Lois' website: https://www.loisemilyking.com
The Sumaira Foundation website: sumairafoundation.org
You'll find links t...
2024-06-3041 min
Demystifying NMO & MOGEpisode #35 | Movement as Medicine w/ Dr. GretchenIn this episode, we talk about how physical therapy can help people with demyelinating diseases, disabilities, and chronic illnesses.Some of you may recognize her from social media as Dr. Gretchen, who shares excellent videos about PT and exercise as part of her MSing Link wellness program.Gretchen Hawley is a Doctor of Physical Therapy and a Multiple Sclerosis Certified Specialist. She has been a keynote speaker at several MS conferences and a popular guest lecturer at educational events and MS support groups.She shares her thoughts on how a holistic approach to...
2024-06-1949 min
MS-Perspektive - The Multiple Sclerosis PodcastPioneering Paths. Empowering Young Minds in MS & NMO Research with Dr. Sara SamadzadehDr. Sara Samadzadeh contributes to research in the field of NMOSD and MS by creating networks between young researchers worldwide. You can find all questions and answers as well as all links on the blog article: https://ms-perspektive.com/066-sara-samadzadeh Multiple sclerosis and NMOSD have made tremendous advances in treatment due to research conducted over the past decades. Nevertheless, there is still much to be done. It is therefore all the more important that this area of neurology continues to attract young, committed and motivated scientists who contribute their own ideas and network with each...
2024-06-1949 min
Demystifying NMO & MOGEpisode #34 | From Brain Fog to Clarity: Finding Voice and Purpose w/ Alanna YeeIn this episode, we are featuring Alanna Yee.The onset of autoimmune encephalitis and the frustrations leading to her diagnosis would change her life in ways she never could have imagined. These experiences inspired Alanna to begin sharing her own story to help others navigate similar challenges.Alanna generously shares her insights on how to effectively tell personal health stories. She guides us on where to begin, how to strike a balance, and how to respect our own privacy when sharing such personal narratives. Her perspective on the therapeutic value of sharing patient experiences and...
2024-05-2933 min
Demystifying NMO & MOGEpisode #33 | From Patient to Practitioner w/ RoselyneThis week's episode offers a compelling narrative for both patients and clinicians as we delve into Roselyne's extraordinary journey. Diagnosed with Neuromyelitis Optica (NMO) as a young adult, she would later decide to pursue a career as a physician.Throughout her journey, Roselyne grappled with the psychological impact of straddling the roles of both clinician and patient, navigating feelings of guilt and obligation along the way.Roselyne emphasizes the importance of patient-provider communication and empathy in healthcare. She highlights the need for clinicians to convey diagnoses in a clear and compassionate manner, drawing from her...
2024-05-0929 min
Demystifying NMO & MOGEpisode #32 | Beyond Words: The Silent Support of Animal CompanionsIn this emotional episode, we delve into the profound relationship between pets and mental health.Starting with the TSF AMbassador for New Mexico, Marie Abrego talks about the recent loss of her dachshund Bambi while traveling to raise awareness about NMO.Then, we are joined by TSF Ambassador for Illinois, AnneMarie Nawrocki, a licensed social worker and TSFs ambassador for Illinois; they explore the multifaceted benefits of pet ownership for individuals with disabilities and chronic illnesses. From reducing stress and providing emotional support to promoting opportunities to enhance physical health and promoting social connection, pets...
2024-04-1147 min
Demystifying NMO & MOGEpisode #31 | EUPATI Education in Action: Leda's Path to Patient AdvocacyEpisode #31 | EUPATI Education in Action: Leda's Path to Patient AdvocacyIn this episode, we delve into the world of patient advocacy with Leda Bresnov. Leda shares her transformative journey following her NMO diagnosis and the pivotal role patient advocacy and education played in reshaping her life. From her initial involvement as the Denmark Ambassador with the Sumaira Foundation to her experiences in EUPATI’s Patient Academy, Leda's dedication to raising awareness and empowering fellow patients is making a significant impact in healthcare. Join us as Leda offers her insights into the power of patient involvement in healthcare de...
2024-03-1339 min
Screaming into the Mic PodcastThe Art of Feminism and Migration with Sumaira TazeenIn this episode, Sumaira talks about the journey of immigrating as an artist, including the struggle to create community, navigate gender normative roles, the barriers of the mainstream art scene, and juggling the gigging economy of artists. Sumaira’s art reflects real life struggles and engages women in exploring trauma, women’s frustration, and common issues across diaspora and gender.Links:Learn more about Sumaira - www.sumairatazeen.comFollow Sumaira on Instagram - @sumairatazeenstudiosAre you a woman around the Region of Waterloo who would like a venue to scre...
2024-03-0430 min
Demystifying NMO & MOGEpisode #30 | Navigating NMO in Challenging Circumstances: Global Inequities in Care In recent years, we have seen healthcare systems collapse under the strain of natural disasters and armed conflict and hundreds of millions of people being forcibly displaced. So, how do we meet the healthcare needs of people in humanitarian disasters, let alone those living through these nightmares with a rare disease such as NMO?To talk about the unique challenges of diagnosing and treating rare conditions like NMO in these low-resource settings, we are joined by Dr. Farrah Mateen.She highlights common barriers such as lack of disease awareness, limited diagnostic testing availability, and restricted...
2024-02-2154 min
Demystifying NMO & MOGEpisode #29 | Caregivers: Nobody Fights AloneWe kick off Season 4 of the Demystifying NMO & MOG Podcast with a very special guest, Candice Galvan.Candice became an Ambassador for The Sumaira Foundation after her daughter was diagnosed with NMO. She joins us today to talk about her path to becoming an advocate and how she is helping care for others through her work as program manager for TSF’s Human Collective Project.ABOUT US:The Demystifying NMO and MOG podcast is a Sumaira Foundation (TSF) project andwas made possible with the generous support of Genentech.SO...
2024-01-2938 min
The Indian EditEp. 88: How a rare disease diagnosis birthed a non-profit with The Sumaira Foundation’s Sumaira AhmedSumaira Ahmed is a force! Upon being diagnosed with a rare neuroimmune condition (Neuromyelitis optica spectrum disorder/ NMOSD, whose symptoms can include vision loss, paralysis, and weakness), Sumaira couldn’t find the community she needed, so she went right ahead and launched a foundation (two months later!) to create that support for herself and patients around the world. The Sumaira Foundation has since advocated for patients, funded disease research, increased NMO awareness globally and truly been a game changer in the field. Hear how this young dancer and Bollywood aspirant (who was crowned the first Miss Bangladesh-USA) turned into a...
2024-01-091h 00
Neurology MinuteGlobal Initiatives on NMOSD and MOGAD Dr. Farrah Mateen talks with Sumaira Ahmed about The Sumaira Foundation and their global ambassador program for patient advocacy.
2023-12-1302 min
Neurology® PodcastGlobal Initiatives on NMOSD and MOGADDr. Farrah Mateen talks with Sumaira Ahmed about The Sumaira Foundation and their global ambassador program for patient advocacy. Learn more about The Sumaira Foundation. Disclosures can be found at Neurology.org
2023-12-1121 min
My Career ShopA Lawyer's Journey - Sumaira ShaikhDo you want to become a lawyer? Today on the My Career Shop Podcast, I am joined by Sumaira Shaikh, a seasoned banking attorney licensed to practice law in Washington, D.C., New York, Massachusetts and Ontario, Canada. In this episode, we will discuss Sumaira's journey from high school to working at an AM Law 100 firm, her diverse experience as a litigator and in the transactional world, prerequisites to becoming a lawyer, stress and work life balance in the legal profession, type of characteristics you need to succeed as a lawyer, pros and cons about the profession, tips to h...
2023-10-221h 37
IVM PopBodyguard of the Year ft. Sumaira Shaikh vs Shreeja Chaturvedi | Just A Filmy Game ShowThis week on Just A Filmy Game show, Comedians Shreeja Chaturvedi and Sumaira Shaikh are joining Antariksh, as they battle it out for the title of the 'Biggest Bollywood Deewana!' Shreeja and Sumaira are singing songs of Govinda, putting movies in their correct order of Release and having just a ball of a time in general. Tune in! Follow our host Antariksh on Instagram: https://www.instagram.com/antariksht/ Follow Shreeja on Instagram: https://www.instagram.com/shreejachaturvedi/ Follow Sumaira on Instagram: https://www.instagram.com/sumairashaikh__/ Subscribe t...
2023-10-181h 08
Demystifying NMO & MOGEpisode 28 | Financial Assistance For NMO & Critical Insurance Updates w/ the Pan FoundationAs we wrap up Season Three of the podcast, we are speaking with Amy Niles of the PAN Foundation. Amy is the Chief Advocacy and Engagement Officer, where she dedicates her time to building relationships, public policy, and advocacy initiatives. She joins us to discuss how PAN helps people manage the financial burden of chronic illnesses. Amy also explains important updates to Medicare and some new insurance practices that can be harmful to patients with life-threatening, chronic, and rare diseases.ABOUT US:The Demystifying NMO and MOG podcast is a Sumaira Foundation project and
2023-08-3038 min
Demystifying NMO & MOGEpisode 27 | Double Seronegative NMOEpisode 27 | Double Seronegative NMOIn this episode, we look at Double Seronegative NMO. We are joined by Nicole Helton to give us the patient perspective. Then Dr. Sara Mariotto, to learn more about testing and the future of the disease. Finally, Sumaira Ahmed talks about her personal experiences as a Double Seronegative NMO patient and the importance of advocacy in research and ensuring patients have access to appropriate care.ABOUT US:The Demystifying NMO and MOG podcast is a Sumaira Foundation (TSF) project and was made possible with the generous support of Genentech.
2023-07-1252 min
Demystifying NMO & MOGEpisode 26 | The Employment Impact of NMO & MOG w/ Dr. Farrah MateenIn the second part of our series on working with NMO and MOG, we are joined by Dr. Farrah Mateen. This year she published work that focuses on the socioeconomic impact of NMOSD on patients and caregivers. The work of Dr. Mateen and her team provides us with one of the most in-depth looks at the psychosocial toll, risks, unmet needs, and opportunity loss due to NMOSD.ABOUT US:The Demystifying NMO and MOG podcast is a Sumaira Foundation (TSF) project and was made possible with the generous support of Genentech.SOCIAL & WEBSITE:
2023-06-2754 min
Demystifying NMO & MOGEpisode 25 | Responding To Life’s Challenges Featuring Dr. Maggie KangMany people will recognize this episode’s guest as “Nell’s mom.” But today, we are focusing on the journey of Dr. Maggie Kang, whose world was shaken to its core when her daughter was diagnosed with NMOSD. Bogged down by the stress and the uncertainty of the future, she consulted a coach. Maggie soon realized she was the barrier to moving forward. The results were so profound she became a certified life coach focused on supporting the rare disease community, especially moms.Last year she shared her experiences at TEDxCherryCreekWomen, and she is here today to continue that conversa...
2023-06-1341 min
Demystifying NMO & MOGEpisode 24 | Working with NMO & MOG In this episode, we are joined by Anessa Powell to discuss the many challenges that people with chronic illnesses face in the workplace, from disclosing their illnesses to finding opportunities and navigating professional relationships.Following her Addison’s Disease (Primary Adrenal Insufficiency) diagnosis, she focused on raising awareness that disabilities come in many forms. Her outreach efforts led Anessa and her husband, Bill, to create AllAbility Recruiting, where they strive to Leave No Ability Behind through disability employment, training, and consulting.ABOUT US:The Demystifying NMO and MOG podcast is a Sumaira Foundation (TSF) project an...
2023-05-3044 min
Naeem Sikandar PodcastEP164 Reporting Afghanistan: Life of a Fearless Female War Journalist | Naeem Sikandar Podcast
Join us as we dive into the world of embedded journalism with @SUMERAKHAN a seasoned journalist who shares remarkable insights. From her career highlights to misconceptions about defense analysts, Sumaira unveils the realities of reporting from conflict zones. Discover the risks she encountered during her dangerous travels for stories, including her coverage of a blast at The Islamic University Islamabad. Honesty in journalism takes center stage as she emphasizes the need for integrity. Gain a unique perspective on being a female war journalist and the challenges faced in the field. Sumaira contrasts the experiences of being an anchor and a...
2023-05-241h 25
Brain Chat with the Nerdy NeurologistNMOSD AwarenessOn this episode we have Dr. Mitzi and her Super friends Christine Ha, MasterChef winner, Author, and Chef living with NMSOD and Sumaira Ahmed, NMOSD Patient, Founder and Director of the Sumaira Foundation will chat about NMSOD Awareness.
2023-04-2547 min
IndusCastIndusCast: Solid Waste Management Sumaira GulMs. Sumaira Gul is serving from last 16 years in Dr Akhtar Hameed Khan Memorial Trust (AHKMT) as Program Manager Now working as CEO.
AHKMT is working in the marginalized areas of Pakistan since 2000 for the provision of water, sanitation and hygiene services in different cities of Pakistan, with the collaboration of local government and civil society organizations. Under Her supervision AHKMT has develop an Integrated Recovery Resource Centre (IRRC) at G-15 Islamabad in 2015 with the support of UN-ESCAP. IRRC is a best successful South Asian model. It is replicated in different cities of Pakistan with the support...
2023-03-3136 min
Demystifying NMO & MOGEpisode 23 | Service Dogs 101In this episode, we are joined by professional service dog trainer Leslie Horton to talk about all things service dogs, including what they are, legal protections, and training. We try to clear up some common misconceptions and touch on how they differ from emotional support animals, behavior standards in public, and being a “Certified” service dog.She owns Most Fine Canine in Frederick, Maryland, where she has spent over 20 years training and specializing in service dogs. She is certified as a dog trainer and service dog trainer and was inducted into the International Association of Canine Professionals (IACP...
2023-03-1437 min
Brain Diet158. Getting a Rare Disease (NMOSD)and Changing the World with Sumaira AhmedThis week I sat down with Sumaira Ahmed. Sumaira is the founder and executive director of The Sumaira Foundation (TSF). Prior to her career in healthcare and hospital administration in Boston, Sumaira worked as an actor/model in Hindi-/Bengali-language media, primarily in southeast Asia. Sumaira is a classically-trained Kathak dancer and has performed around the world in venues including Madison Square Garden, the Dolby Theatre, Santiniketan, and the Rudolf Steiner Theatre.
In the summer of 2014, Sumaira was diagnosed with sero-negative neuromyelitis optica spectrum disorder (NMOSD) after experiencing sudden and severe vision loss and weakness/numbness. Less than two months...
2023-03-1042 min
Giving BackSpecial Interview Ms. Sumaira SamadSpecial Interview Ms. Sumaira Samad, Secretary Women Development Department, Govt. of the Punjab
2023-03-0800 min
Vivre FM - Les EXPERTS de la rédactionLes Experts Santé: La fondation Sumaira, focus sur la NMO & la MOGADCe matin dans les Experts Santé, Ornella Damperon et Salomé Le Corre parlent de la Fondation Sumaira, une organisation mondiale a but non lucratif qui sensibilise sur deux maladies neuro-immunes rares (NMO & MOGAD) et qui a vu le jour en France le 28 février dernier lors de la Journée Mondiale des maladies rares. Pour l'occasion, elles reçoivent Bérengère Doyère, ambassadrice de France de TSF, Guillaume Molinier, consultant pour TSF France et Fatiha Maamar, également ambassadrice de France de TSF. Parce que sensibiliser, informer, communiquer et apporter soutien à la communauté française touchée par la NMO et la MOG...
2023-03-0842 min
Demystifying NMO & MOGEpisode 22 | Resilience & Chronic IllnessIn this episode, Brian talks with Dr. Amy Sullivan about resilience and how chronic illness impacts mental health.In her role as an Associate Professor of Medicine and, the Director of Behavioral Medicine & Research at the Mellen Center for MS, Director of the Neurological Institute Engagement and Wellbeing, Dr. Sullivan works with patients and families dealing with the impact of illness. She has also become a leading voice in physician and caregiver self-care, burnout, and psychological health and spearheaded Mellen Center's efforts that led to the National Psychologically Healthy Workplace Award, Best Practice by the American Psychological...
2023-02-2824 min
Demystifying NMO & MOGEpisode 21 | Learning Through Social Media & Clinical Trials w/ Dr. Aaron BosterIn today’s episode, we welcome an award-winning physician, researcher, and educator, Dr. Aaron Boster. He is a board-certified Neurologist and the founder and President of the Boster Center for Multiple Sclerosis in Columbus, Ohio.We had the pleasure of catching up with Dr. Boster to talk about harnessing the power of social media to provide 24-7 access to information reliable, understandable medical information. He also breaks down the importance of clinical trials and walks us through each phase of a study and what a participant can expect.ABOUT US:The Demystifying NMO an...
2023-02-1431 min
Demystifying NMO & MOGEpisode 20 | Health Literacy - Sifting Through All the C.R.A.A.P.Brian spent more than twenty years working in emergency management as a paramedic & law enforcement officer before getting a Master’s degree in Library & Information Science. While serving as the Acting Deputy Secretary of Education for Libraries with the Pennsylvania Department of Education, a cold triggered an autoimmune response leaving him blind & paralyzed from the chest down.Following an NMO diagnosis, he needed to understand more about the disease. As an information professional, he was shocked that much of the information he got from his care team or found online was outdated, not supported by science, or ju...
2023-01-3133 min
Demystifying NMO & MOGEpisode 19 | Demystifying NMO & MOGAD: All Part of the Spectrum, All in it TogetherSeason three starts with big news about the podcast. We talk with Sumaira Ahmed of The Sumaira Foundation about the podcast's growth and inclusivity and introduce a new co-host, Brian Dawson.Then we were joined by one of the leading NMO and MOG researchers, Michael Levy, MD, Ph.D. Dr. Levy is the Research Director of the Division of Neuroimmunology & Neuroinfectious Disease at Massachusetts General Hospital and is an Associate Professor at Harvard Medical School.ABOUT US:The Demystifying NMO and MOG podcast is a project of the Sumaira Foundation (TSF) and was...
2023-01-1729 min
Rare Care PodcastAn Interview With Sumaira Ahmed, Founder and Executive Director of The Sumaira Foundation Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Sumaira Ahmed, founder and executive director of The Sumaira Foundation, a Boston-based nonprofit organization that advocates on behalf of patients with neuromyelitis optica spectrum disorder (NMOSD) and related diseases.
2022-10-1214 min
Patient PodcastPatients Podcast: Neuromyelitis OpticaOn today’s episode of Patient Podcasts, we are joined with Sumaira Ahmed. In the summer of 2014, Sumaira was diagnosed with sero-negative neuromyelitis optica spectrum disorder (NMOSD)/chronic relapsing inflammatory optic neuritis (CRION) after experiencing sudden and severe vision loss and weakness/numbness. Less than two months after her diagnosis, she founded The Sumaira Foundation (TSF) dedicated to generating global awareness of NMOSD and MOG-AD, supporting research to find a cure, patient advocacy, and creating communities of support for NMOSD and MOG-AD. Sumaira has huge plans for the foundation and in this episode we find out more about what dr...
2022-09-2016 min
Women We Watch In TourismSeason 3 Sumaira Isaac: Conscious LeadershipConscious leadership is critical when navigating tough times and challenges in the leadership journey. A high level of self-awareness, level headedness, being intentional and compassionate are important traits to transform organisations and communities. In today’s episode, I will speaking with one of the "TOP 50 Global Inspirational Woman to look out for 2022", one who wins the hearts of many through her conscious leadership. Sumaira Isaacs: CEO of World Tourism Forum InstituteContact: https://www.linkedin.com/in/sumaira-isaacs As a destination expert and influencer, with over 25 years’ experience, Sumaira...
2022-05-2547 min
Main Bhi Finance Minister S4MBFM - Ep 3 - Sumaira AbidiIn this episode we have Sumaira Abidi in conversation with RJ Rani. She gives you tips on how to go about educating kids on saving money and everything she has learnt and unlearnt during her journey over the past 10 years. We all think of celebration,gifts and trips first but what about the real investment which has long term returns. It's okay to not know things, but we should be able to ask questions and invest money into right place. Women should always be actively involved in managing house finances.
2022-04-1228 min
Soundproofist25 | Noise in India - with Sumaira AbdulaliResidents of India's vibrant and populous cities experience loud noise that can damage their health. We spoke with Sumaira Abdulali, a leader in environmental and noise issues in the state of Maharashtra. For over 20 years, she's advocated for residents of Mumbai and other cities and helped to implement policy change. As a result, her work has improved the quality of life for millions of people. In this podcast episode, we talk with Sumaira about how she began her work, the challenges along the way, and the successes.
2022-02-1350 min
Bonn Park PodcastSUMAIRA TAZEENBonn Park is celebrating the 25th anniversary of the City of Kitchener's Artist in Residence program with a special 10-episode series about some of the artists who brought it to life. In the series, Sara and Marshall -- who himself is a former City of Kitchener Artist in Residence -- chat with creative people who have held the year-long position, and find out what they are creating now. In the seventh episode, Sara and Marshall speak with Sumaira Tazeen, a Canadian visual artist, educator, and curator of Pakistani origin whose work is rooted in the...
2022-02-0234 min
Demystifying NMO & MOGIlluminating the Darkness of Pediatric NMOSD Through Storytelling - Meet Nell Choi'In the season finale of season 2, Chelsey reviews the topics covered and seeks feedback from listeners for season 3!To top off season 2, Demystifying NMO features Nell Choi, who shares her powerful and inspiring NMO story and optimistic perspective. Nell is a 13 year old accomplished NMOSD patient advocate. She is a published author of 'My Hospital Story', aiming to foster connection with others going through similar traumatic health journeys. She has also brought national awareness of NMO by appearing on CBS evening news to share her story. Recently, she met with President Joe Biden and First Lady Jill...
2022-01-3117 min
Thought Behind Things192 | Reporting From Inside The Warzone Ft. Sumaira KhanBe part of our community by joining our Facebook group: https://www.facebook.com/groups/thoughtbehindthings
In conversation with tonight’s guest, Sumaira Khan. What was her journey like? How did her father contribute to her success? What was her first job? Was it scary to be the only female journalist going to “Ilaqa-e-ghair”? For how long did she work in Khyber News? Was she operating on the field or in the studio? How was it like talking to the suffering families? Does she have PTSD from these incidents? Why did she switch from Khyber News to PTV? H...
2022-01-141h 38Demystifying NMO & MOGNMOSD Diagnosis Part 2: Control What You CanPart 2 of our conversation on the NMOSD diagnosis, we discuss the personal 'what now?' element...On the individual level, what does coping and living with a newly obtained NMOSD diagnosis look like? What can you do about it? To answer these questions, Demystifying NMO is delighted to have guest Taylor Ann Macey on the pod to discuss her personal patient experience with her NMOSD diagnosis. Taylor is a wife, mother, Brigham Young University graduate and life coach, with an educational background in fitness and nutrition, Taylor is candid about her NMOSD diagnosis story:What...
2022-01-1024 minDemystifying NMO & MOGNMOSD Diagnosis: Patient and Clinical Perspective In this episode, host Chelsey chats with NMOSD patient and pediatric hematologist Dr. Joanna Robles about her unique perspective and experience obtaining her NMOSD diagnosis. In their discussion, they review:Important considerations for clinicians who make the NMOSD diagnosis and provide carOverview of the educational and training pathway for clinicians, including neurologistsReview of the International Diagnostic Criteria for NMOSD: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4515040/Highlight the importance of a swift and accurate NMOSD diagnosis for appropriate treatment and managementStay turned for a...
2021-12-2229 min
ACB EventsACB's Inaugural Audio Description Awards Gala, November 18, 2021Event Program
November 18, 2021 — 7:30 p.m. ET
About the Event
The inaugural AD Awards Gala celebrates and expands audio description in media. This is a core tenet of the Audio Description Project (ADP), a program of ACB. Proceeds from this event support the ADP, which works each day to further audio description across a wide range of visual media. We are deeply grateful for the enormous level of support that made this inaugural event a success. For information on this year’s gala and upcoming events, visit www.AdAwardsGala.org.
Special Thanks To Ou...
2021-11-191h 06
Ye Olde CrimeHow Women Were Punished Throughout History: Misogyny and JusticeLindsay and Madison discuss the punishments that women endured throughout history, as well as why life for women was so terrifying, that women are stronger than you might think, and how we need to be better. Trigger warning: this episode contains descriptions of extremely violent acts committed against women.Information pulled from the following sources:
2021 Britannica article by Geoffrey Abbott
2021 Ranker article by Katia Kleyman
2021 The Indianness article by Sumaira Rashid
2018 History Collection article by Patrick Lynch
2017 Buzzfeed article by Becky Barnicoat
2015 The Week article by Kelli Marshall
1899 edition of Bygone Punishments by William Andrews
BBC B...
2021-11-1059 minDemystifying NMO & MOGGet Nerdy: The Latest in NMOSD ResearchEmbrace your inner nerd with host and CBJF scientific advisor Chelsey (PhD immunologist) as she reviews the emerging science and hot topics recently shared at the virtual European Committee for the Treatment and Research in MS (ECTRIMS). This is a major scientific meeting where clinicians and scientists in the field of central nervous system (CNS) diseases/disorders meet to share their recent data and findings with each other. Chelsey breaks down 4 buckets of NMOSD-related research topics:NMOSD- and MOG-associated disorders: overlaps and distinctionsUnraveling complexities of NMOSDData updates on currently FDA-approved NMOSD...
2021-11-0214 min
Vidisha KaushalThe story of Sumaira & the burnt riceAllow this amazing story of Sumaira to help you reflect and align. Do share in your comments what you learnt and enjoyed. Stay on till the end for the mind meditation.
2021-08-2908 minDemystifying NMO & MOGToo Hot to HandleFeeling the heat this summer?! People living with NMOSD/MS can experience sensitivity to temperature, particularly extremely hot or cold temperatures. In this episode, Chelsey chats with TSF ambassadors Julie Aldridge and Alexis (aka Lexi) Marta about their experiences living with NMOSD and managing temperature sensitivity. They cover:Impact of heat on NMOSD symptoms aka Uhtoff's phenomenonHeat-related symptoms vs relapseManaging heat, especially on a hot summer dayWhere to find at-no-cost cooling vestsImpact of cold on symptoms and how to manage
2021-08-0620 min
Good Is The New CoolHow Sam Latif is Helping Procter and Gamble Innovate for the 1 Billion People Living With DisabilitiesSumaira “Sam” Latif, Procter & Gamble’s company accessibility leader in the UK, helps create innovative breakthroughs to make P&G’s products more accessible to more than 1 billion people living with disabilities. Sam’s passion for this work comes from personal experience - she is blind herself - and we learn more about her journey and the innovative ways she is helping this global giant become a force for growth and good.Check out our companion book Good is The New Cool: The Principles of Purpose at www.theprinciplesofpurpose.com and you can join the Good is The New Co...
2021-07-0652 min
Conversations With CampbellBook Talk - Fight For Power - Chapters 24-30 (S1E17)In this episode, Noah and Sumaira discuss the class novel with Mr. Campbell.
2021-06-2313 minDemystifying NMO & MOGDude with NMOIn this episode, we focus on a rare population: men with NMO! NMO overwhelming affects women compared to men, and we wanted to tap into the male outlook and experiences living with NMO. Host Chelsey is joined by her brother, Connor Judge, a 28 year old man living with NMO to share his male perspectives:What’s it like to be in a sea of women?How does NMO and treatments impact identity?What are the differences between the societal image of being a man vs being a man with NMO?Adapting to...
2021-06-1416 min
Random MusingsRandom Musings Ep.1 feat. Sumaira Shaikh'Random Musings' is an interview-series where the host - Kumar Varun talks to a guest about life, universe, and everything.
This episode features comedian and writer Sumaira Shaikh and they talk about dealing with death, things to know about writing fiction, the difference between writing fiction and doing stand-up comedy, a few comedy specials, serial killer documentaries, growing up in Dongri, and being a minority.
2021-06-1056 minConversations With CampbellBook Talk - Fight For Power - Chapters 2-9 (S1E7)In this episode, Mr. Campbell sits down with Ethan, Sumaira, and Noah to discuss the class novel. Noah really steps up to the plate to lead the discussion throughout this one.
2021-06-0817 min
Perfectly BrewedHow to talk to your children about Palestine/BLM and other difficult topicsIn this episode we were joined by transformational coach Sumaira all the way from Canada. She discussed ways we can talks our children about Palestine and other difficult topics. Very benefical podcast episode please do lsiten, like subscribe and share :)
2021-06-0529 min
Vishnu Bishnoi PodcastEducation is the only key to make better society. With Sumaira Hussain, Passionate Educator.Sumaira Hussain is our today guest. She is IB homeroom facilitator, ESOL certified English educator and online English tutor at mastree. Connect with in LinkedIn. sumairahttps://www.linkedin.com/in/sumaira-hussain-a8037a179 . Emali___ sumaira746@yahoo.com. Now this episode.
2021-04-201h 16Demystifying NMO & MOGGirl Power: Women's Health and NMOIn this episode, host Chelsey gets candid on all things related to women's health and NMOSD with Sumaira Foundation Ambassador Chelsey Tucker (TN) and Dr. Tamara Kaplan, neurologist at Brigham and Women's Hospital and associate neurology professor with Harvard Medical School. Topics covered are body image and emotional well-being, NMO treatment impacts on sexual identity, effect of NMO on periods, fertility & family planning, as well as the economic impact of navigating life as a woman with NMO. Dr. Kaplan and Chelsey T, both moms, also provide their insights on motherhood through NMO. Listen along to find out how you...
2021-04-1925 min
ICNA Sisters (USA) PodcastThemes of Quran: Tawheed & NatureThemes of Quran
Tawheed & Nature
Speaker : Sumaira Afzal
2021-04-1022 minDemystifying NMO & MOGInterpersonal Relationships and NMOIn this episode, Sumaira Foundation for NMO Patient Ambassadors Julie Aldridge, Kristen Hewitt and Alexis Marta share with host Chelsey their experiences navigating relationships with NMOSD. Together, they take a personal look at how NMO has shaped their friendships, ties with family, as well as with co-workers, classmates and professors. They discuss the strengths of communication, honesty and advocacy in their relationships, and how NMO has amplified them.
2021-02-2832 min
ACMS PodcastEpisode 24: Dr. Sumaira Z. AasiEpisode 24 features Dr. Sumaira Z. Aasi, Director of Mohs Surgery and Dermatologic Surgery, and clincial professor in dermatology, plastic and reconstructive surgery at Stanford University. Dr. Aasi also serves as Chair of the Board Certification Task Force for the American College of Mohs Surgery. Dr. Aasi answers frequently asked questions about the ACMS ABD MDS Examination Preparation Action Plan.
2021-01-2629 min
ICNA Sisters (USA) PodcastCultivating Mindfulness Part 7: Achieving the ExtraordinaryCultivating Mindfulness
Part 7: Achieving the Extraordinary
Speaker: Sumaira Afzal
2021-01-1515 minDemystifying NMO & MOGVaccine PreparednessThe Covid-19 pandemic has ravaged the world, and while we're going through another dark surge, there is hope- vaccines. The FDA just authorized and approved the first Covid-19 vaccine. While this is exciting, it also brings up a lot of questions, especially for people in the NMO community. In this episode, host Chelsey, PhD immunologist, chats with Sumaira on the basics of vaccines, and then talks with neuroimmunologist and NMO clinician Mary Rensel, MD of the Cleveland Clinic Mellen Center. Sumaira and Chelsey cover the basics on vaccines: What are vaccines? What's protective immunity? What's herd immunity? What're the...
2020-12-1432 min
The Speak Real PodcastEpisode 18: High-Functioning Depression with Michael & SumairaOn this week's episode we were joined by Michael and Sumaira to discuss their journey through high-functioning depression and how they are coping with the current pandemic. They share their experiences through it all and how they were able to overcome their challenges and find helpful coping tools along the way!
2020-10-2738 minThe Speak Real PodcastEpisode 16: "It's Okay Not to be Okay" with SumairaOn today’s podcast we will be speaking to Sumaira as she shares her mental health journey through depression, anxiety and learning to be self-compassionate with herself. She mentions how reaching out during difficult times, expressing her feelings through poetry has helped her overcome these challenges.
2020-10-0117 min
SRNA Soundwaves (previously Ask the Expert)ABCs of NMOSD 105. Explaining NMOSD to OthersFor this ABCs of NMOSD podcast, Chelsey Judge, PhD, from the Connor B. Judge Foundation and Sumaira Ahmed from The Sumaira Foundation for NMO help explain NMOSD through their personal experiences. Chelsey tells the story of her brother, Connor's diagnosis and the continuing symptoms he still has, such as fatigue and pain. Sumaira recounts her own diagnosis story and the symptoms she also experiences, including visual issues, bladder dysfunction, and fatigue. Chelsey and Sumaira then discuss how they explain NMOSD to others, including the disease mechanism and ongoing symptoms. Finally, they talk about hope for the future and promising...
2020-09-2039 min
ABCs of NMOSD105. Explaining NMOSD to OthersFor this ABCs of NMOSD podcast, Chelsey Judge, PhD, from the Connor B. Judge Foundation and Sumaira Ahmed from The Sumaira Foundation for NMO help explain NMOSD through their personal experiences. Chelsey tells the story of her brother, Connor's diagnosis and the continuing symptoms he still has, such as fatigue and pain. Sumaira recounts her own diagnosis story and the symptoms she also experiences, including visual issues, bladder dysfunction, and fatigue. Chelsey and Sumaira then discuss how they explain NMOSD to others, including the disease mechanism and ongoing symptoms. Finally, they talk about hope for the future and promising...
2020-09-2039 minDemystifying NMO & MOGSeason 1 Finale: Can't Stop; Won't Stop!In the season finale of season 1, Chelsey chats with Sumaira Ahmed of The Sumaira Foundation (TSF) for NMO for a recap on Demystifying NMO. Sumaira shares her insights as both an NMO patient, TSF founder and community leader. Chelsey and Sumaira rehash the episodes and provide their take-aways. They review the goals of the podcast, what they learned throughout the season, their favorite moments, optimism for the NMO community and what's to come.
2020-07-0823 min
Disruptive CEO NationSumaira Isaacs - CEO Global Tourism ForumSumaira K. Isaacs is a woman who knows the world and a woman the world should know. When we booked her, our intent to was to explore the close correlation between a country’s open borders and lively tourism to the opportunity for entrepreneurs to achieve business success, but we just happened to schedule this call amid the global COVID-19 pandemic and ended up with a rich conversation about what happens to business when borders close and events cancel.The movement of people is critical to success of business and unless business tourism returns, ca...
2020-07-0829 minDemystifying NMO & MOGEpisode 8: What a Pain in my NMO!In this episode, host Chelsey talks all things related to NMO pain with Dr. Shamik Bhattacharyya, a neurologist at Brigham and Women's Hospital and assistant professor of neurology at Harvard Medical School. Chelsey learns that pain is very prevalent in NMOSD, and presents itself in many ways. They chat a bit about the science of NMO-related pain, exploring how and why it's different than pain related to multiple sclerosis. Although there is no 'magic bullet' to wipe out NMO-pain, Dr. Bhattacharyya talks through the number of ways to manage chronic pain including lifestyle changes, medications, devices and complementary treatments...
2020-05-2733 min
13 LettersHousehold NamesGoing with your gut is easier said than done — but for Sumaira "Sam" Latif, Company Accessibility Leader at P&G, trusting her instincts has made some of the most impactful changes to the world of accessibility. For far too long, blind and low-vision people had to rely on the shape of a product to judge what was in the package. Sam challenged all of this with the simple yet empowering idea to put tactile identification on Herbal Essences shampoo and conditioner bottles – an initiative which is now expanding beyond the brand and beyond P&G. We had the amazing priv...
2020-05-141h 02Demystifying NMO & MOGEpisode 7: Navigating the Insurance Labyrinth, with COVID19 in MindIn this episode, Chelsey chats with Marissa Shackleton, Executive Director at the Elliot Lewis Center in Massachusetts. Marissa has 8 years of experience working with patients with NMO and multiple sclerosis and is active with the National MS Society and National Infusion Center Association. She’s a national speaker on access, reimbursement, infusion centers and practice management, and is passionate about patient care and access to affordable treatment. Marissa provides insight on insurance- What’s a deductible? What’s a premium? Any tips to choosing an insurance plan? What’s the difference between Medicaid and Medicare? What are some best practice...
2020-04-0324 minABCs of NMOSD102. Choosing a Long-Term Treatment Option NMOSDDrs. Benjamin Greenberg, Brian G. Weinshenker, and Stacey Clardy join the second episode of ABCs of NMOSD, entitled "Choosing a Long-Term Treatment Option." The podcast begins with an overview of the most common treatments of neuromyelitis optica spectrum disorder (NMOSD) and their side effects. The experts discuss the three new treatments that have been recently developed, and they discuss the differences between each treatment. They talk about factors to consider when choosing a treatment option, reasons why a person might switch treatments, and insurance implications. Finally, the experts discuss pediatric considerations for treatment, how to find research studies and...
2020-04-021h 02Demystifying NMO & MOGEpisode 6: Docs' Perspective on NMO, PostpartumChelsey again speaks with Dr. Kaplan and Dr. Galetta, both practicing neurologists at Brigham and Women's Hospital and associated with Harvard Medical School. On this episode, they focus their discussion on postpartum considerations in NMOSD patients. They chat about topics that women living with NMO may experience immediately following giving birth. Questions covered: What do I need to know about breastfeeding? What do we know about treatment safety with breastfeeding? What about managing NMO symptoms postpartum? Postpartum depression? Who can provide support and help? Is NMO heritable?
2020-03-1014 min
ICNA Sisters (USA) PodcastWIB --- Salah Series Part 2 : Call to success(Adhan)Salah Series Part 2 ---- Call to success(Adhan)
By Sumaira Afzal
2020-02-2912 minDemystifying NMO & MOGEpisode 5: What to Expect When You're Expecting with NMOOn this episode, Chelsey follows up on the topic of sex and NMO and gets into a discussion on pregnancy with NMO. Chelsey explores this topic with Tamara Kaplan, MD and Kristin Galetta, MD, both practicing at Brigham and Women's Hospital and associated with Harvard Medical School. They discuss managing NMO treatments with pregnancy, how to treat a relapse while pregnant, potential safety concerns and more. Both Dr. Kaplan and Dr. Galetta emphasize that a successful pregnancy is possible while managing NMO, but it's crucial to have a planned approach with a trusted clinician. Listen for an in-depth talk...
2020-02-0220 minDemystifying NMO & MOGEpisode 4: Let's Talk About Sex, BabySexual dysfunction is a common invisible symptom in NMOSD, but given the intimate nature of the topic, it's not discussed as much as it should. What exactly is sexual dysfunction? What causes it? What can be done about it? Hear the answers in a discussion between Chelsey and Dr. Tamara Kaplan, a neurologist at Brigham and Women's Hospital and assistant professor in neurology at Harvard Medical School. Dr. Kaplan shares her expertise in treating NMOSD and MS patients, including managing sexual dysfunction.
2020-01-0622 minDemystifying NMO & MOGEpisode 3: Gratitude through NMOIn episode 3 of Demystifying NMO, Chelsey shares her conversations with 3 inspiring individuals living with NMOSD: Chelsey Tucker, Ron Crowe and Marie Newbrough. In their chats, they share their experiences and emotional journeys through finding their NMO diagnosis and coping with the loss of their old lives. Each tell how they have worked to manage these whirlwind emotions, and have even found new perspectives that in some ways make them find gratitude in the new lives. We hope you appreciate this very special Thanksgiving episode.
2019-11-2433 min