Shows
An Unexpected Fight: A Pediatric Cancer podcastJohannes Gojo, MD, PhD - Rare tumorsIn this episode, we speak with Prof. Johannes Gojo, MD, PhD, one of the world’s foremost experts in pediatric neuro-oncology. Dr. Gojo shares groundbreaking research into ETMR and ATRT brain tumors, the promise of liquid biopsies, and how international collaboration through CARE for RARE (established by Solving Kids’ Cancer) is transforming outcomes for children with rare brain tumors.We also highlight a newly funded research project, supported by multiple organizations including Gold Ribbon Kids, that aims to deliver precision medicine breakthroughs for some of the...
2025-08-2146 min
An Unexpected Fight: A Pediatric Cancer podcastCancer Moms TalkTiffany McConathy: tmcconathy@nationalpcf.orgKelly Goddard: Kgoddard@nationalpcf.orgnationalpcf.org Support the show
2024-08-1942 min
An Unexpected Fight: A Pediatric Cancer podcastTrauma Response featuring Stephanie Tobola, Author Ketchup SandwhichesStephanie Tobola is a Texas native, military spouse, mother of two, and is now adding author to that list. Her debut book, Ketchup Sandwiches, is an intense memoir which takes the reader on the emotional rollercoaster of the life of a child enduring abuse and neglect. In sharing her story Stephanie aims to bring the hope of healing to others.In this episode, we dive into the life of trauma. We discuss helpful ways to navigate and work through the intricacies of life as a pediatric cancer patient and family. CBT information: https://www.apa.or...
2024-08-0948 min
Healthcare UnfilteredTiffany McConathy: A Mother and Daughter StoryTiffany McConathy, an oncology nurse practitioner in Arkansas, tells the sombering story of her infant daughter’s battle with pediatric brain and spinal cancer. She details Nora’s course of events, including the long pathology and diagnosis journey, the decision to move forward with treatment, and the months of good responses that followed prior to her passing. Tiffany also shares how Nora’s COVID-19 diagnosis during treatment pushed back her transplantation and eventual autopsy, just 9 days before her passing. This deeply saddening discussion will inspire you to think differently about pediatric cancers, just as the experience has inspired Tiffany to create...
2023-05-0938 min
Caris Molecular Minute PodcastsInterview with Tiffany McConathy: Plea for Pediatric CancerCaris Precision Oncology Alliance™ Chairman, Dr. Chadi Nabhan, sits down for an intimate discussion with Tiffany McConathy, nurse practitioner at Genesis Cancer and Blood Institute. Tiffany shares her family’s personal hardship of learning their eleven-month-old daughter Nora was diagnosed with embryonal tumor with multilayer rosettes (EMTR), a rare and untreatable form of pediatric brain cancer. Together, Chadi and Tiffany discuss Nora’s initial diagnosis, patient journey and the critical importance of dedicating research and resources to rare diseases such as EMTR.
For more information, please visit: www.CarisLifeSciences.com
2023-02-0725 min
Caris Molecular Minute Podcast SeriesInterview with Tiffany McConathy: Plea for Pediatric CancerCaris Precision Oncology Alliance™ Chairman, Dr. Chadi Nabhan, sits down for an intimate discussion with Tiffany McConathy, nurse practitioner at Genesis Cancer and Blood Institute. Tiffany shares her family’s personal hardship of learning their eleven-month-old daughter Nora was diagnosed with embryonal tumor with multilayer rosettes (EMTR), a rare and untreatable form of pediatric brain cancer. Together, Chadi and Tiffany discuss Nora’s initial diagnosis, patient journey and the critical importance of dedicating research and resources to rare diseases such as EMTR.
For more information, please visit: www.CarisLifeSciences.com
2023-02-0225 min
Help and Hope Happen HereTiffany McConathy's daughter Nora passed away from a Brain and Spinal Cord tumor called ETMR when she was 14 months old in February of 2022. Tiffany will also discuss how Covid negatively impacted Nora at the end of her far too short life.After noticing a weakness on the left side of her face, Tiffany McConathy and her husband Jeremy took their 9 month old daughter Nora to her Pediatrician in September of 2021. Nora's 1st diagnosis was Bell's Palsy. Six weeks later as Nora was feeling worse, Nora went back to the doctor and this time they were going to put tubes in her ears.Tiffany then insisted on an MRI and finally the 3rd of 4th doctor that Tiffany had spoken with agreed to it.What followed was a diagnosis of a very rare Brain and Spinal Cord tumor called...
2022-11-0844 min
The ONS PodcastEpisode 135: ELNEC Has Trained More Than One Million Nurses in End-of-Life CareONS member Betty Ferrell, PhD, MA, FAAN, FPCN, principal investigator of the End-of-Life Nursing Education Consortium (ELNEC) project, director of the Division of Nursing Research and Education at City of Hope National Medical Center in Duarte, CA, and member of the Greater Los Angeles ONS Chapter, joins ONS President Nancy Houlihan, MA, RN, AOCN®, to discuss ELNEC's history and milestone of training more than one million nurses in palliative and end-of-life care. Then, ONS members share personal testimonies about ELNEC and how the training has enhanced their practice. Music Credit: "Fireflies and Stardust" by Kevin MacLeod
2020-12-2551 min