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Torie Robinson

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Epilepsy Sparks InsightsEpilepsy Sparks InsightsEpilepsy & Suicide: Breaking The Silence - Prof Andrea CiprianiSometimes people with an epilepsy take their own lives - and this is more common that many realise. Psychiatrist & researcher Prof. Andrea Cipriani joins Torie to talk of the psychiatric symptoms of the epilepsies, including depression, anxiety, psychosis, and even suicide; expressing the need for joined-up care between neurology and psychiatry, and why lived experience must shape treatment, management, and where possible; prevention. It’s a powerful call for holistic, person-centred support! ------------------------------------------ 🔗 Website & more about Andrea: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/andrea-cipriani-suicide-lived-experience-biopsychosocial-model-care ----------------------------------------- Don’t understand all the terms used? C...2025-05-0115 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsDecoding Genetic Epilepsy - Sam BerkovicGenetic epilepsies are way more complex than we thought!! Clinical neurologist and physician-scientist Prof. Sam Berkovic chats with Torie all about the differences between inherited, de novo, and somatic forms, challenges in diagnoses, impacts on families, and societal stigma. However, Sam also shares the exciting, positive advancements in genetic research, how understandings have far, far improved over the past few years, and how cool, effective international collaboration in research has led to and shall lead to further advancements in precision medicine! ------------------------------------------ 🔗 Website & more about Sam: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/sam-berkovic-genetic-epilepsy-developments  ...2025-04-2416 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsHow To Minimise SUDEP Risk - Sanja GluscevicTorie chats with neurologist Sanja Gluscevic about SUDEP (Sudden Unexpected Death in Epilepsy) - a critical, often avoided topic! Sanja provides statistics and how to minimise risk factors. Sanja emphasises the need for effective communication between clinician and patient and/or caregiver, plus highlights holistic approaches to minimising SUDEP risk, including managing mood and sleep, and the importance of adherence to medication! ------------------------------------------ 🔗 Website & more about Sanja: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/sanja-gluscevic-minimising-sudep-risk  ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com...2025-04-1713 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsEpilepsy and Mental Health: Anxiety, Depression, Psychosis - Gus BakerNeuropsychologist  Prof. Gus Baker discusses clinical neuropsychology in relation to epilepsy! He highlights the significant morbidities associated with epilepsy, such as depression and anxiety, and really emphasises the importance of understanding the mental health aspects of epilepsy. Gus and Torie also chat about the role of clinicians in addressing these comorbidities and the need for PWE education and empowerment to improve quality of life! ------------------------------------------ 🔗 Website & more about Gus: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/gus-baker-neuropsychology-anxiety-depression-psychosis  ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epileps...2025-04-1015 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsEpilepsy: Care For People Who Also Have Intellectual Disability - Mike KerrNeuropsychiatrist Mike Kerr talks about the intersection of epilepsy and Intellectual Disability, the complexities of communication, the need for tailored communication strategies, the needs of individuals and caregivers, and the importance of building relationships in healthcare! Mike and Torie also touch on new treatments and the overall quality of life for the people affected. ----------------------------------------- 🔗 Website & more about Mike 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/mike-kerr-intellectual-disability-epilepsy-community  ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary  ------------------------------------------ 📲 Join me on...2025-02-2015 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsBeing Involved in Epilepsy Research at iNeuron! - Torie RobinsonPaediatric neurologist, scientist, and PPI Lead Julia Jacobs and Torie Robinson discuss the role of individuals with Lived Experience in research, particularly in the context of the iNeuron project, which focuses on epilepsy, stroke, and dementia. They explore the challenges and opportunities presented by basic science research, the importance of knowledge translation, and the benefits of engaging young researchers. The conversation emphasises the shared experiences across different diseases and the motivation that comes from personal connections in research. ------------------------------------------ 🔗 Website & more about the study: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/julia-jacobs-ineuron-lived-experience-basic-science  2025-01-1715 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsTravelling With Epilepsy! - Manuel ToledoManuel Toledo and Torie chat about the importance of but also the challenges in traveling for many people with an epilepsy, including medication management, sleep patterns, and knowing the healthcare systems in different countries! The chat highlights the need for preparation and safety tips for traveling with epilepsy, as well as the significance of sharing experiences to improve patient care.vvvvv ----------------------------------------- 🔗 Website & more about Manuel 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/manuel-toledo-travelling-epilepsy ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ...2025-01-0916 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsOPM-MEGs - New, Precise Brain Scans For Epilepsy - Christine EmburyPost-doc researcher Christine Embury shares with us her research on the cool OPM-MEG technology for brain imaging - its advantages (particularly for children with refractory epilepsy and considering brain surgery!) and how it could improve patient outcomes and our understanding of developmental trajectories in paediatric epilepsies!  Lastly, Christine and Torie chat about the cost-effectiveness of the device, its benefits from an energy usage/climate change perspective, and how both patients and clinicians can get involved in the research! ----------------------------------------- 🔗 Transcript & more about Christine 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/christine-embury-opm-meg-young-epilepsy  ----------------------------------------- Don’t under...2024-11-1416 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsLaser Interstitial Thermal Ablation For Epilepsy - Michael SperlingMichael Sperling, a prof of neurology and director of the Jefferson Comprehensive Epilepsy Center, educates us on laser ablation therapy for epilepsy! He and Torie discuss the minimally invasive nature of the procedure, its advantages over traditional open surgery, and its efficacy in reducing seizures. They also touch on the suitability of the therapy for different age groups and types of epilepsy. The conversation highlights the precision and safety of laser ablation therapy and its potential to improve outcomes for patients. ----------------------------------------- Michael’s related papers 📜 https://www.researchgate.net/profile/Michael-Sperling-2   ...2024-09-1914 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsStaying On A Medication That “Doesn't Work”?! - Maria GogouChildren may benefit from being weaned off of anti-seizure medications when they are on the ketogenic diet. Plus, find out how the ketogenic diet can significantly benefit children with epilepsy - even when it doesn’t control their seizures! Paediatric neurologist Maria Gogou discusses her work in managing rare and complex epilepsies in children. ----------------------------------------- 🔗 Paper: “Antiseizure medication reduction and withdrawal in children with drug-resistant epilepsy after starting the ketogenic diet” 👇 https://onlinelibrary.wiley.com/doi/full/10.1111/dmcn.15377 ----------------------------------------- 🔗 Website, transcription, & more about Maria 👇 https://www.torierobinson.com/epilepsy-spark...2024-09-0514 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsHow Worms Helped Us Understand Epilepsy! - David HenshallDavid Henshall shares how information gathered when researching worms led to the discovery of microRNA, a far improved understanding of the epilepsies, and potential treatments - all explained in his new book (link below)! This is episode 2 of 2. ----------------------------------------- David’s book  📖 https://www.amazon.co.uk/Fine-Tuning-Life-MicroRNAs-Genomes-Regulators/dp/1009466429/ref=sr_1_1 ----------------------------------------- 🔗 Website & more about David: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/david-henshall-micro-rna-epilepsy  ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary  ...2024-08-2923 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsFighting Epilepsy With MicroRNAs?! - David HenshallDavid Henshall discusses the role and importance the role of microRNAs in epilepsy; which act as master regulators of gene activity and help stabilise the gene pathway. He discusses the potential of RNA therapy in treating epilepsy and the challenges of delivering RNA molecules to the brain. Henshall's book, 'Fine Tuning Life: A Guide to MicroRNAs, Your Genome's Master Regulators,' explores the fascinating world of microRNAs and their impact on gene regulation. ----------------------------------------- David’s book  📖 https://www.amazon.co.uk/Fine-Tuning-Life-MicroRNAs-Genomes-Regulators/dp/1009466429/ref=sr_1_1 ----------------------------------------- 🔗 Website & more about Dav...2024-08-2218 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsFighting Epilepsy Stigma in Kenya - Eddie ChengoEpileptologist Eddie Chengo from Kenya discusses the stigma faced by people affected by epilepsy in Africa, explaining that around 75% of people with epilepsy in the region experience stigma and emphasising the importance of addressing this whilst implementing medical treatment. Eddie also shares the various initiatives and research projects his organisation is undertaking to raise awareness and challenge the stigma associated with epilepsy. ------------------------------------------ 🔗 Eddie's papers 👇 https://www.researchgate.net/scientific-contributions/Eddie-Chengo-44151310  ----------------------------------------- 🔗 Website & more about Eddie 👇 https://www.torierobinson.com/epilepsy-sparks-insights/eddie-chengo-epilepsy-stigma-kenya  ----------------------------------------- Don’t understa...2024-08-1525 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsSeizures Caused By Insufficient Glucose! - Carla MariniA mutation of a gene can lead to lack of absorption of glucose (our fuel) and cause epilepsy! Carla Marini, a paediatric neurologist and neuropsychiatrist tells us all about the rare epilepsy and metabolic disorder GLUT1 Deficiency Syndrome, emphasising the importance of early diagnosis, treatment using the ketogenic diet (which can help control seizures, improve cognitive function, and decrease the impacts of movement disorders). She also highlights the value of working closely with patient and family groups to understand the clinical manifestations and natural history of the disease. Carla shares an uplifting success story of a patient who has...2024-08-0814 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsThe Importance of Genetic Testing For Epilepsies - Nazanin Azarinejad MohammadiNeuroscientist Nazanin Azarinejad Mohammadi discusses her research on epilepsy genetics, the clinical and functional characterisation of GABAA-receptor related disorders, and how mutations in the GABAA-receptor subunits can lead to epilepsy and morbidities. Nazanin also highlights the variability in symptoms among individuals with the same mutation and the need for further research to understand the factors that contribute to this variability. Plus, emphasised is the importance of genetic testing and personalised treatment for patients with these mutations. ----------------------------------------- Paper: “Clinical and functional characterization of GABAA-receptor related disorders: translating genetic diagnostics into personalized treatment” 👇 https://portal...2024-08-0115 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsCenobamate: Benefits & Risks - Ricardo MorcosAs well as preventing up to 100% of seizures in 20% of those with refractory focal epilepsy, Cenobamate may also (indirectly), positively impact mental health, cognitive function and reduce seizure propagation. Ricardo Morcos shares information on the titration of Cenobamate, how it is not suitable during pregnancy, and the importance of a 1:1 clinician-patient relationship. This is part 2 of 2. Please note that this is not an endorsement of any particular anti-seizure medication (Cenobamate or any of the others mentioned) and any questions or ideas from a patient or carer must be brought up with one’s neurologist/epileptologist. ...2024-07-2514 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsCenobamate: A Game Changer For Epilepsy? - Ricardo MocosAs well as preventing up to 100% of seizures in 20% of those with refractory focal epilepsy, Cenobamate may also (indirectly), positively impact mental health, cognitive function and reduce seizure propagation. Ricardo Morcos shares information on the titration of Cenobamate, pregnancy, and the importance of a 1:1 clinician-patient relationship. This is part 2 of 2. Please note that this is not an endorsement of any particular anti-seizure medication (Cenobamate or any of the others mentioned) and any questions or ideas from a patient or carer must be brought up with one’s neurologist/epileptologist. ------------------------------------------ Spanish consensus on th...2024-07-1818 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsWorld Brain Day 2024: Brain Health & Prevention - Tissa WijeratneFor the 11th World Brain Day, hear from co-chair and lead neurologist Tissa Wijeratne, who explains how so many of the brain disorders in nearly 4 billion people can be prevented, and how you can help this happen! Links to the free World Brain Day webinar, and more, are below. ------------------------------------------ 🎧 Listen to ESI on Spotify!👇 https://open.spotify.com/show/14rwL06qUowezZQGwpR7GW?si=dE4AEAsrQhqbeDc8dKM-dQ Also on Apple Podcasts or anywhere else you listen! ----------------------------------------- World Brain Day 👇 https://wfneurology.org/activities/news-events/wfn-news...2024-07-1715 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsEpilepsy Surgery, Neuroplasticity, & Memory - Jon KleenPeople forget to bring up memory issues with their neurologist…because of their memory issues! Discover the potentials and limitations of neurosurgery and neuroplasticity with epileptologist Jon Kleen from UCSF medical Center.  ------------------------------------------ 🔗 Website & more about Jon: 👇 https://www.torierobinson.com/epilepsy-sparks-insights/jon-kleen-epilepsy-surgery-neuroplasticity-memory-cognition ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇 https://www.epilepsysparks.com/glossary  ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10  - LinkedIn: https://www.linkedin.com/torierobinson  - Instagram: h...2024-07-1120 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsCognitive Impairments In Epilepsy - Jon KleenLearn all about how people can have memory and other cognitive struggles as part of their epilepsy - in part 1 of 2 with epileptologist Jon Kleen from the UCSF Medical Center, USA! Jon speaks about his career focus, types of cognitive impairments, impacts on quality of life, and more. ------------------------------------------ 🔗 Website & more about Jon: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jon-kleen-cognitive-impairments-epilepsy-research ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary  ------------------------------------------ 📲 Join me on social media! - X: https://twitte...2024-07-0417 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsOur Need To Manage Stress - Neil ShahStress and anxiety levels are incredibly high amongst the population of those with an epilepsy and are commonly seizure triggers. Neil Shah of the Stress Management Society speaks of stress in today's society, the importance of recognising and addressing it, removing the guilt, shame, and stigma associated with it, and the power we have to limit it. ----------------------------------------- 🔗 Website & more about Neil: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/neil-shah-managing-stress-anxiety-with-epilepsy ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ...2024-06-2719 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsNeurologists Recognising & Addressing Symptoms Other Than Seizures - Claude SteriadeLearn of when an Autoimmune-Associated Epilepsy can onset, potential causes, and the needs of people affected - other than seizure control! All in part 2 of 2 with epileptologist Claude Steriade from​⁠ NYU Langone Health  Epilepsy Center. ------------------------------------------ 🔗 Website & more about Claude: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/claude-steriade-other-symptoms-of-autoimmune-associated-epilepsy ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary  ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10  - LinkedIn: https://www.linkedin.com/torierobinson ...2024-06-2014 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsUnderstanding & Treating Autoimmune-Associated Epilepsy - Claude SteriadeHear about Autoimmune-Associated Epilepsy and the intersection between epilepsy and immunology - in part 1 of 2 with epileptologist Claude Steriade from NYU Langone Health Epilepsy Center! Claude explains the causes, mechanisms, and impacts of Autoimmune-Associated Epilepsy upon people's lives, plus, how crucial early diagnoses and intervention are. ------------------------------------------ 🔗 Transcription & more about Claude: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/claude-steriade-autoimmune-associated-epilepsy-immunology ----------------------------------------- ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: ht...2024-06-1316 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsHuge Advances In EEG Monitoring & Analysis - Mark CookMark Cook and Torie discuss the significant improvements in epilepsy treatments over the past few decades - thanks to technologies like MRI and genetics. Mark also explores the issue of overreporting and underreporting of seizures by patients and the potential of ambulatory EEG monitoring and big data analysis to provide a more accurate understanding of seizure activity which can lead to both improved treatments and improving peoples’ quality of life. ------------------------------------------ 📖 Transcript & more on Mark: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/mark-cook-huge-advances-in-eeg-monitoring-analysis ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy...2024-06-0624 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsExploring The Links Between Sleep & Epilepsy: CASTLE - Deb Pal & Paul GringrasDeb Pal and Paul Gringras discuss their research on the links between sleep and seizures in epilepsy; sharing their work on the CASTLE project, which aims to improve sleep and Quality of Life for children, young people, and families affected. They discuss both their app called COSI - which provides evidence-based sleep interventions for parents, and the upcoming CASTLE conference, where they shall disseminate  their research findings and discuss the importance of personalised approaches to sleep management in epilepsy. ------------------------------------------ Interested in attending the conference? 🎫 Contact us via deb.pal@kcl.ac.uk or via our X accounts @palneurolab, @TorieRobinson10, or...2024-05-3016 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsEpilepsy: Managing Your Metabolism To Stabilise Your Brain - Graham PhillipsWhat should someone do if interested in adopting the ketogenic diet or looking further into "metabolic psychiatry"? Hear about sacrifices, benefits, weight loss, constipation, nutrition, and having the right support. All in part 3 of 3 with the “pharmacist who gave up drugs”, Graham Phillips. ------------------------------------------ 🔗 Website & more about Graham: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/graham-phillips-epilepsy-changing-metabolism-stabilise-brain-ketogenic ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: torierobinson10 - LinkedIn: torierobin...2024-05-2317 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsEpilepsy, Mood, Metabolism, And The Ketogenic Diet! - Graham PhillipsLearn of the evolution of the ketogenic diet, metabolic psychiatry, the treatment overlap between different diagnoses (e.g. the epilepsies and mood disorders), recommended reads, and the cognitive dissonance of many regarding the ketogenic diet. This is part 2 of 3 with the Pharmacist Who Gave Up Drugs: Graham Phillips. ------------------------------------------ 🔗 Website & more about Graham: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/graham-phillips-hunger-mood-epilepsy-metabolism-ketogenic ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: torierobinson102024-05-1620 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsThe Ketogenic Diet - Graham PhillipsThe Pharmacist Who Gave Up Drugs introduces us to the impacts of the western diet on our health, quality of life, life expectancy - and the potential benefits of the ketogenic diet - in part 1 of 3: Graham Phillips. ------------------------------------------ 🔗 Website & more about Graham: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/graham-phillips-ketogenic-diet-pharmacist-part1 ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/tori...2024-05-0921 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsPediatric Epilepsy Research Consortium - M. Scott PerryM. Scott Perry explains how Epilepsy Researchers require intros and support to be the best that they can be and initiate, manage, and see results. It’s possible through the Pediatric Epilepsy Research Consortium (PERC). ------------------------------------------ 🔗 Website & more about Scott: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/m-scott-perry-pediatric-epilepsy-research/consortium ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torie...2024-05-0213 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsPreventing Seizures Using Stem Cells?! - David SpencerHear about research into a new way of inhibiting temporal lobe seizure activity through GABAergic interneuron cell therapy! With epileptologist and neuroscientist David Spencer. ------------------------------------------ 🔗 Website & more about David: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/david-spencer-preventing-seizures-using-stem-cells  ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 2024-04-2514 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsMistaking Epilepsy For Menopause?! - Jacqueline FrenchIt's wild: when clinicians mistake an epilepsy (caused by a brain tumour!) for menopause! Or, when a parent doesn't believe that their daughter could have an epilepsy...! Why aren't organisations and governments promoting epilepsy awareness as well as they do stroke and MS?! Tune in to hear all about it from leading epilepsy specialist: Jacqueline French. ------------------------------------------ 🔗 Website & more about Jacqueline: 👇🏻 jacqueline-french-epilepsy-menopause ----------------------------------------- 🔗 Kin - that Irish TV series: 👇🏻 IMDB ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 ...2024-04-1810 minEpilepsy Sparks InsightsEpilepsy Sparks Insights6th Dianalund International Conference on Epilepsy - Overlapping Clinical Phenotypes in Monogenic Epilepsies; Common Molecular Pathways? - Elena Gardella, Rikke Møller, Guido RubboliHear about the one-of-a-kind 6th Dianalund International Conference on Epilepsy in May 2024 - with lead genetic clinicians and researchers Elena Gardella, Rikke Møller, and Guido Rubboli. ------------------------------------------ 🔗 Website & more about Elena, Rikke, and Guido: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/6th-dianalund-international-conference-epilepsy-genetics-denmark-elena-gardella-rikke-moller-guido-rubboli ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https...2024-04-1708 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsCar Accidents Caused By Epilepsy! The Human Epilepsy Project - Jacqueline French5% of a cohort* had at least 1 car accident (and up to 3) before their epilepsy diagnosis! Hear about the global Human Epilepsy Project by Jacqueline French and learn how seizures can present in so many different ways! *450 people ------------------------------------------ 🔗 Website & more about Jacqueline: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jacqueline-french-human-epilepsy-project ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: ht...2024-04-1114 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsDo Autism & Intellectual Disability Come With Epilepsy? - Vaishnav KrishnanDo Autism & Intellectual Disability Come With Epilepsy? Learn of the Epilepsy, Autism and Intellectual Disability “triad” - studied by clinician scientist, epileptologist: Vaishnav Krishnan. ------------------------------------------ 🔗 Website & more about Vaishnav: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/vaishnav-krishnan-epilepsy-autism-intellectual-disability-triad  ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobins...2024-04-0419 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsHuge Seizure Reduction Through DBS (in LGS) - Linda DalicLearn of the huge reduction in seizures amongst adults with the epilepsy Lennox-Gastaut Syndrome - as the result of DBS! With Linda Dalic. ------------------------------------------ 🔗 Website & more about Linda: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/linda-dalic-stimulating-brain-reduce-seizures-neuromodulation ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: ht...2024-03-2814 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsPurple Day Openness! - Cassidy MeganHear about the origins of Purple Day, its purpose, the positivity and how to make a difference! With founder: Cassidy Megan!! We talk about how Purple Day was founded, Cassidy's personal epilepsy diagnosis, school, stigma, the diversities of the epilepsies, SUDEP, varying cultural experiences, media portrayals, credible sources of information, and brilliant clinicians!  ------------------------------------------ 🔗 Website & more about Cassidy: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/cassidy-megan-purple-day-openness ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media!2024-03-2629 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsBrain, Skull, And Neck Implants For Epilepsy?! - Anna BochenekBrain, Skull, And Neck Implants For Epilepsy?! What's the epilepsy treatment called VNS? Or DBS? Or RNS?! Learn about these cool neuromodulation treatments that can help to prevent and/or control epileptic seizures (!) with star epileptologist Anna Bochenek. ------------------------------------------ 🔗 Website & more about Anna: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/anna-bochenek-neuromodulation-vns-dbs-rns ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://ww...2024-03-2115 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsEpilepsy Caused by Brain Tumours - Kate ConnorBrain tumours vary greatly and 30% of them cause an epilepsy to develop - hence the name Brain Tumour Related Epilepsy. Hear more for Brain Tumour Awareness Month from cancer neuroscientist: Kate Connor. ------------------------------------------ 🔗 Website & more about Kate: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/kate-connor-epilepsy-brain-tumours-awareness-month ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torier...2024-03-1414 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsIncreasing Neuronal Excitement To Treat An Epilepsy?! - Jean-François PerrierSurprising and exciting rare epilepsy (STXBP1) research discoveries that have led to the enhancement of excitatory synapses as a proposed treatment - by Jean-François Perrier of the University of Copenhagen, Denmark. ------------------------------------------ 🔗 Website & more about Jean-François: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jean-francois-perrier-STXBP1-excitatory-inhibitory-synapses ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson ...2024-03-0713 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsSeizure Forecasting Using AI - Daniel GoldenholzCould we accurately predict epileptic seizures using AI? How accurate do predictions need to be? How cool to use do devices need to be?! Could seizure forecasting reduce injuries, decrease mortality, and improve people’s quality of life? Hear all about it from neurologist: Daniel Goldenholz. ------------------------------------------ 🔗 Website & more about Daniel: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/daniel-goldenholz-seizure-forecasting-artificial-intelligence ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www...2024-02-2912 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsAI & Epilepsy: Ethics & Biases - Daniel GoldenholzHow useful is and can AI be in helping people with an epilepsy? How safe it it? What are the biases to be challenged and the ethics to be followed? Hear answers from Daniel Goldenholz of Harvard Beth Israel Deaconess Medical Center. ------------------------------------------ 🔗 Website & more about Daniel: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/daniel-goldenholz-ai-safety-ethics-biases ----------------------------------------- Chapters 📖 00:00 Clip & intro 00:59 Meet Daniel 01:30 AI is fun and important for epilepsy 02:33 Using AI usefully and safely 05:12 Ethics and AI biased training 07:40 Tricking AI using AI tri...2024-02-2217 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsEpilepsy Is A Symptom! - Reetta Kälviäinen“Epilepsy is not only a disease, epilepsy is a symptom of a brain disease. And brain health is everything, belongs to everybody!” Learn more of from and hear of the exciting, upcoming Kuopio Epilepsy Symposium in March 2024 - with exciting lead neurologist, researcher, and world-changer: Reeta Kälviäinen. ------------------------------------------ 🔗 Website & more about Reetta: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/reetta-kalviainen-genetic-rare-epilepsy-symptom-symposium ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter...2024-02-1514 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsInternational Epilepsy Day!! - Helen CrossHear all about International Epilepsy Day, the needs of those affected by the epilepsies, eradicating stigma, treating and preventing epilepsy, and hope for the future; all with global lead Helen Cross. ------------------------------------------ 🔗 Website & more about Helen: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/helen-cross-international-epilepsy-day ----------------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://w...2024-02-1210 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsThe Real Needs of Children With Epilepsy - Kirsten McHaleFor Children's Mental Health Week meet Kirsten McHale who shares the complex needs of many children with an epilepsy, how their needs are not being met (in the UK), and how services must be improved. ------------------------------------------ 🔗 Website & more about Kirsten: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/kirsten-mchale-real-needs-children-with-epilepsy ----------------------------------------- Children's Mental Health Week: www.childrensmentalhealthweek.org.uk -----------------------------------------   Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media!2024-02-0819 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsWhy Aren’t More People Having Epilepsy Surgery? - Luke TomyczWhy are only a small percentage who’d benefit from epilepsy surgery getting it? Hear from neurosurgeon Luke Tomycz of the Epilepsy Institute of New Jersey. ------------------------------------------ 🔗 Website, transcription, and more about Luke: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/luke-tomycz-why-arent-more-people-having-epilepsy-surgery ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.c...2024-02-0116 minWhat the EFWhat the EFSearching for mental health care with Torie RobinsonFrustrated in your search for mental health care? You’re not alone! Torie Robinson, host of Epilepsy Sparks podcast, and Landis Wiedner chat and laugh about their quests for good therapists and experiences with various types of therapies, like cognitive behavior therapy (CBT). Armed with her impressively vast knowledge of the epilepsies, Torie explains why mental healthcare goes hand in hand with epilepsy treatment.Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & AudibleHelp keep What the EF going by following and subscribing!Instagram: @whattheefpodcastYouTube: @WhatTheEFPodcast...2024-01-3045 minEpilepsy Sparks InsightsEpilepsy Sparks InsightsHow Do You Measure Epilepsy Surgery Success? Engel Class? - Luke TomyczHear about ways of measuring epilepsy surgery success, risks, and managing expectations. With neurosurgeon Luke Tomycz. ----------------------------------------- 🔗 Website, transcript, and more about Luke: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/luke-tomycz-epilepsy-surgery-success-measurement-engel-class   ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torie...2024-01-2514 minSharp Waves: ILAE\'s epilepsy podcastSharp Waves: ILAE's epilepsy podcast"Talking about things that no one else will talk about": Torie Robinson, host of Epilepsy Sparks InsightsSend comments and feedbackFor her podcast, Epilepsy Sparks Insights, Torie Robinson interviews epilepsy clinicians and scientists from around the world. Diagnosed with epilepsy at age 10, Torie is working to share knowledge with people with epilepsy, their families, and the public. Her episode topics range widely, from the biochemistry of epilepsy, to the importance of epilepsy nurses, to epilepsy as an autoimmune condition, to sexual issues.Listen to Epilepsy Sparks Insights wherever you get your podcasts, including YouTube.Finding Torie:PodcastWebsiteYouTubeFacebookInstagram: @TorieRobinson10X...2024-01-2223 min