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Torie Robinson

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Epilepsy Sparks Insights Sexual Health & Epilepsy: Building CONFIDENCE for Patients & Clinicians | Drs Kamitaki & OrellanaSexual health in epilepsy is vital - but many clinicians and patients hesitate to address it. 💜 Epileptologists Dr. Brad Kamitaki and Dr. Lucas Orellana join Torie Robinson for a warm, giggly, and open conversation on: Why clinician confidence matters in sexual health discussions Cultural barriers that can silence important conversations Creating safe spaces for patients What’s coming up at the IBE Lisbon 2025 conference! 🎧 Listen now to break barriers with us - and maybe share a laugh along the way. 🎧 Listen on all platforms 👇🏻 https://www.youtube.com/@EpilepsySparksInsights 🌐 More...

2025-08-1414 min

Epilepsy Sparks Insights Epilepsy & Suicide: Breaking the Silence - Milena Gandy & Heidi Munger ClaryMilena Gandy (Clinical Psychologist) and Heidi Munger Clary (Epileptologist) chat with Torie about the intersection of epilepsy and suicide, emphasising the importance of welcoming talking about addressing mental health issues in patients with an epilepsy. They go into the stigma surrounding suicidal thoughts, the need for open conversations between patients and clinicians, and strategies for improving patient care and quality of life. The chat also highlights the upcoming, fun(!) IEC workshop in Lisbon, aimed at enhancing patient-centered communication in epilepsy care. ------------------------------------------ Suicide crisis lines 👇🏻 https://en.wikipedia.org/wiki/List_of_suicide_crisis...

2025-08-0718 min

Epilepsy Sparks Insights How To Be Safer During Seizures: SafeSteps! - Daniel GoldenholzEpileptologist Daniel Goldenholz shares his innovative approach to using 3D printing technology to create practical tools for epilepsy care! He tells us about the evolution of his products - designed to assist caregivers/public during seizures. He also explains how accessible, customisable, and durable they are, and chats about the importance of community engagement and collaboration to spread awareness and provide support for those affected by an epilepsy! ------------------------------------------ 🔗 Safesteps platform 👇🏻 https://sites.google.com/site/danielgoldenholz/Home/safesteps-platform ------------------------------------------ 🔗 Website & more about Daniel 👇🏻 https://www.torierobinson.co...

2025-07-1715 min

Epilepsy Sparks Insights Flaccid? Dry? Disinterested? There’s Help! - Jenny EdwardsEpilepsy Specialist Nurse Jenny Edwards, shares how she supports people who experience sexual dysfunction and epilepsy, focusing on the importance of open communication and building trust with patients. She emphasises the need for a holistic approach to care, including mental health support, and the significance of understanding the different types of epilepsy and their impacts on patients' lives. The chat highlights the challenges patients face in discussing sensitive topics and the vital role nurses play in facilitating these conversations. ------------------------------------------ 🔗 Website & more about Jenny: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jenny-edwards-flaccid-dry-disinterested ----------------------------------------- Don’...

2025-07-1015 min

Epilepsy Sparks Insights Let’s Talk About Sex - Jenny EdwardsSex! It's a key part of the lives of homo sapiens - including those with an epilepsy! Epilepsy Specialist Nurse Jenny Edwards shares how sexual dysfunction is more common in people with an epilepsy and how she provides support to her patients affected - whether issues be libido, dating, arousal, orgasm, penetration, masturbation, emotional relationships - anything, really! This is part 1 of 2 with Jenny. ------------------------------------------ 🔗 Website & more about Jenny: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/ ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks...

2025-07-0314 min

Epilepsy Sparks Insights Join Us at the Epilepsy Specialist Nursing Section - IEC 2025! - Patty Shafer & Ludivine RohrerWe hear about the upcoming International Epilepsy Conference (IEC) 2025 in Lisbon - with global lead Epilepsy Specialist Nurses Patty Shafer and Ludivine Rohrer! They talk about the Epilepsy Nursing Section at the conference and why people should attend! Each share how they address the emotional and behavioural aspects of epilepsy and even things like physical exercise! They chat about the significance of empowering nurses, sharing knowledge, and addressing often embarrassing topics related to epilepsy. They emphasise the social aspects of living with epilepsy and the importance of education for both patients and families. ------------------------------------------ 🔗 Website & mor...

2025-06-2613 min

Epilepsy Sparks Insights Why We Need Epilepsy Nurses! - Ludivine Rohrer & Patty ShaferEpilepsy specialist nurses (ESNs) play a multifaceted role…! Hear all about it from ESN’s Ludivine Rohrer and Patty Shafer who share their responsibilities in patient care, education, and psychosocial support. They also provide insights into the challenges faced by patients and families trying to manage an epilepsy (including all symptoms and morbidities) and emphasise the importance of personalised care for everyone. ------------------------------------------ 🔗 Website & more about Patty & Ludivine: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/patty-ludivine-ludivine-rohrer-being-epilepsy-nurse ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com...

2025-06-1913 min

Epilepsy Sparks Insights What is “Consciousness” When It Comes To Seizures?! - Dr. Kaley Marcinski NascimentoWhat is consciousness?! Paediatric resident Dr. Kayleigh Marcinski Nascimento invites you to take part in a new study aimed at understanding the terminology surrounding “consciousness” during focal (formerly known as partial) seizures; emphasising the need for clear communication between clinicians and caregivers! The chat also covers the importance of diverse input in research and how the data collected will be used to improve patient care. ------------------------------------------ 🔗 Link to study - take part! 👇🏻 www.surveymonkey.com/r/epilepsytalk ------------------------------------------ 🔗 Website & more about Kaley Marcinski Nascimento: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights...

2025-06-1213 min

Epilepsy Sparks Insights Zebrafish - Breakthroughs In Epilepsy Drug Discovery?! - Prof. Deborah KurraschNeuroscientist Deborah Kurrasch talks about her cool research into the epilepsies using zebrafish! She explains the challenges faced in acceptance of using zebrafish as a model system for epilepsy research and shares how we need to explore new mechanisms of action if we are going to figure out how to help the remaining 30% of people who cannot (yet!) have their seizures controlled using anti-seizure medications! ------------------------------------------ 🔗 Website & more about Deborah: 👇🏻 https://torierobinson.com/epilepsy-sparks-insights/deborah-kurrasch-zebra-fish-dee-pharma ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilep...

2025-06-0513 min

Epilepsy Sparks Insights Epilepsy Awareness & Advocacy in Zambia! - Dr Naluca Mwendaweli-BeckfordAdult Neurologist Naluca Mwendawe-Beckford chats about her work in Zambia, focusing on the challenges of treating epilepsy in a low-resource setting. She highlights the limited access to diagnostic tools and medications, the roles of neurologists and traditional healers (and how they can work together!), and the importance of education and awareness in combating stigma. Naluca also shares her plans for an epilepsy registry and the need for policy advocacy to improve care for individuals with epilepsy in Zambia. ------------------------------------------ 🔗 Website & more about Naluca: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/naluca-beckford-epilepsy-awareness-zambia ----------------------------------------- Don’t u...

2025-05-2917 min

Epilepsy Sparks Insights Your Brain: Mossy Cells and the Fight Against Epilepsy - Prof Helen ScharfmanHelen Scharfman, a professor at NYU and a research scientist, discusses her extensive research on the epilepsies; particularly focusing on mossy cells in the temporal lobe! She explains the significance of these cells in understanding seizures and anxiety, and the potential for future treatments/preventions! Helen emphasises the importance of patient involvement in research and the international, collaborative nature of scientific discovery! ------------------------------------------ 🔗 Website & more about Helen: 👇🏻 https://torierobinson.com/epilepsy-sparks-insights/helen-scharfman-mossy-cells-international-research ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ...

2025-05-2212 min

Epilepsy Sparks Insights Revolutionising Epilepsy Perceptions & Care in Pakistan - Dr. Zarine MogalEpileptologist Zarine Mogal has changed the world for many affected by the epilepsies in Pakistan! She shares her incredibly impactful 3 decades in diagnoses, care, and social acceptance - through her comprehensive epilepsy program. Zarine highlights the importance of sustained epilepsy awareness with insights on measuring the impact of campaigns, the challenges faced in healthcare, and the future directions for improving epilepsy care in Pakistan. ------------------------------------------ 🔗 Website & more about Zarine: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/zarine-mogal-epilepsy-pakistan-stigma-treatment-gap ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epileps...

2025-05-1513 min

Epilepsy Sparks Insights Advancing Mental Health Research Through GALENOS - Prof Andrea CiprianiPsychiatrist Andrea Cipriani discusses his work in clinical psychiatry and research, focusing on mood disorders and the importance of personalised treatment! He highlights the GALENOS project, which aims to synthesise existing data to improve mental health outcomes, and chats about the need for a shift from a medication-centered approach to one that prioritises quality of life and community care. Andrea also advocates for collaboration between clinicians and community support systems to enhance patient care and reduce the stigma surrounding mental health treatment. ------------------------------------------ 🔗 Website & more about Andrea: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/andrea-cipriani-galenos-mental–health-rese...

2025-05-0816 min

Epilepsy Sparks Insights Epilepsy & Suicide: Breaking The Silence - Prof Andrea CiprianiSometimes people with an epilepsy take their own lives - and this is more common that many realise. Psychiatrist & researcher Prof. Andrea Cipriani joins Torie to talk of the psychiatric symptoms of the epilepsies, including depression, anxiety, psychosis, and even suicide; expressing the need for joined-up care between neurology and psychiatry, and why lived experience must shape treatment, management, and where possible; prevention. It’s a powerful call for holistic, person-centred support! ------------------------------------------ 🔗 Website & more about Andrea: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/andrea-cipriani-suicide-lived-experience-biopsychosocial-model-care ----------------------------------------- Don’t understand all the terms used? C...

2025-05-0115 min

Epilepsy Sparks Insights Decoding Genetic Epilepsy - Sam BerkovicGenetic epilepsies are way more complex than we thought!! Clinical neurologist and physician-scientist Prof. Sam Berkovic chats with Torie all about the differences between inherited, de novo, and somatic forms, challenges in diagnoses, impacts on families, and societal stigma. However, Sam also shares the exciting, positive advancements in genetic research, how understandings have far, far improved over the past few years, and how cool, effective international collaboration in research has led to and shall lead to further advancements in precision medicine! ------------------------------------------ 🔗 Website & more about Sam: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/sam-berkovic-genetic-epilepsy-developments ...

2025-04-2416 min

Epilepsy Sparks Insights How To Minimise SUDEP Risk - Sanja GluscevicTorie chats with neurologist Sanja Gluscevic about SUDEP (Sudden Unexpected Death in Epilepsy) - a critical, often avoided topic! Sanja provides statistics and how to minimise risk factors. Sanja emphasises the need for effective communication between clinician and patient and/or caregiver, plus highlights holistic approaches to minimising SUDEP risk, including managing mood and sleep, and the importance of adherence to medication! ------------------------------------------ 🔗 Website & more about Sanja: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/sanja-gluscevic-minimising-sudep-risk ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com...

2025-04-1713 min

Epilepsy Sparks Insights Epilepsy and Mental Health: Anxiety, Depression, Psychosis - Gus BakerNeuropsychologist Prof. Gus Baker discusses clinical neuropsychology in relation to epilepsy! He highlights the significant morbidities associated with epilepsy, such as depression and anxiety, and really emphasises the importance of understanding the mental health aspects of epilepsy. Gus and Torie also chat about the role of clinicians in addressing these comorbidities and the need for PWE education and empowerment to improve quality of life! ------------------------------------------ 🔗 Website & more about Gus: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/gus-baker-neuropsychology-anxiety-depression-psychosis ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epileps...

2025-04-1015 min

Epilepsy Sparks Insights You'll Only Need One Brain Scan For Your Epilepsy! - Graeme JacksonEpileptologist Prof. Graeme Jackson talks about the cool Australian Epilepsy Project - including the integration of advanced technology, including MRI and AI to improve patient outcomes and quality of life! The project aims to transform the traditional approach to epilepsy treatment by utilising telehealth and data analysis to provide personalised care. Graeme emphasises the importance of addressing mental health alongside seizure control and expresses aspirations for the project's global impact! ----------------------------------------- 🔗 Website & more about Graeme 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/graeme-jackson-australian-epilepsy-project-mri ----------------------------------------- Don’t understand all the terms used? Check out t...

2025-04-0215 min

Epilepsy Sparks Insights Epilepsy Is More Than Seizures! - Matthias De WachterPaediatric neurologist Matthias De Wachter chats about the benefits of a holistic approach to helping people affected by the epilepsies, emphasising the importance of understanding the broader implications of the disease - with symptoms other than seizures. Matthias shares with us his research into KCNQ2 & 3, his insights into the significance of lifestyle factors in managing epilepsy, the transition from paediatric to adult care, ongoing research for precision medicine, and drug repurposing for rare genetic epilepsies! ------------------------------------------ 🔗 Website & more about Matthias 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/matthias-de-wachter-morbidities-kcnq2-kcnq3-dravet ----------------------------------------- Don’t unde...

2025-03-2713 min

Epilepsy Sparks Insights Empowering People With An Epilepsy - In Rural India - Bindu MenonDr. Bindu Menon discusses her work as a neurologist in India; focusing on epilepsy and stroke awareness. She highlights the significant prevalence of these conditions in India, particularly in rural areas, and the challenges faced in treatment and education. Bindu emphasises the importance of empowering women and the role of technology, such as the Epilepsy Help App, in improving patient care and adherence to medication. ------------------------------------------ 🔗 Website & more about Bindu 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/bindu-menon-epilepsy-empowerment-india ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇...

2025-03-2015 min

Epilepsy Sparks Insights DANCEing: Beyond Seizures: Supporting Caregivers! - Simona Giorgi, Dravet Foundation EU, SpainDr. Simona Giorgi from Dravet Syndrome Foundation Spain shares their preclinical and clinical studies, epidemiological research, and their development of tools to support caregivers and people affected by Dravet! Highlighted are the needs for greater awareness among healthcare professionals about the capabilities of patient advocacy groups and the invaluable psychological support they can provide to families. ------------------------------------------ 🔗 European Dravet Syndrome Conference 2025 https://www.epilepsysparks.com/conferences/european-dravet-syndrome-conference-madrid ------------------------------------------ 🔗 Website & more about Simona: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/simona-giorgi-dance-dravet-epidemiology-support ----------------------------------------- Chapters 📖 00:00 Intro 00:00 Meet...

2025-03-1314 min

Epilepsy Sparks Insights Epilepsy: Astrocytes and Their Relationship With Neurons - Tom JensenTom Jenson, a postdoc researcher at UCL Institute of Neurology, chats about his research on astrocytes and their role in neuronal communication. He explains the differences between astrocytes and neurons, the challenges of using human brain tissue for research, and shares preliminary results from his studies on calcium signaling in astrocytes! The conversation also touches on the creative aspects of scientific research and the beauty of visualising brain cells through microscopy. ------------------------------------------ 🔗 Website & more about Tom: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/tom-jensen-astrocytes-neurons-epilepsy-neuroscience

2025-03-0614 min

Epilepsy Sparks Insights Quality of Life: With Epilepsy & Intellectual DisabilityAdults with an intellectual disability and an epilepsy have many of the same needs as those without the former - but things can take longer to figure out - hence, care and patience are crucial from clinicians! Neuropsychiatrist Mike Kerr shares how what to many may seem like small gains can have huge, positive impacts on the Quality of Life of people with an ID and an epilepsy. This is part 2 of 2 with Mike. ----------------------------------------- 🔗 Website & more about Mike 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/mike-kerr-intellectual-disability-epilepsy-communications-health ----------------------------------------- Don’t understand all the terms...

2025-02-2714 min

Epilepsy Sparks Insights Epilepsy: Care For People Who Also Have Intellectual Disability - Mike KerrNeuropsychiatrist Mike Kerr talks about the intersection of epilepsy and Intellectual Disability, the complexities of communication, the need for tailored communication strategies, the needs of individuals and caregivers, and the importance of building relationships in healthcare! Mike and Torie also touch on new treatments and the overall quality of life for the people affected. ----------------------------------------- 🔗 Website & more about Mike 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/mike-kerr-intellectual-disability-epilepsy-community ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on...

2025-02-2015 min

Epilepsy Sparks Insights Epilepsy - Preventing Seizures After Traumatic Brain Injury - Tobias EngelTobias Engel talks about potentially preventing seizures and epilepsy caused by Traumatic Brain Injury (TBI)! He discusses his study into the P2X7 receptor's role in TBI and its potential to reduce inflammation, seizures, epilepsy, neurodegeneration, and mood disorders. Tobias also speaks of the potential for improved quality of life for those with TBI-related epilepsy in the future. ------------------------------------------ 🔗 Website & more about Tobias: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/tobias-engel-p2x7-receptor-tbi-epilepsy ______________ 📲 Join me on social media! - LinkedIn https://www.linkedin.com/torierobinson - Bluesky https://bsky.ap...

2025-02-1316 min

Epilepsy Sparks Insights Epilepsy: Making Diagnoses More Precise! - Mastaneh Torkamani AzarPost-doc researcher Mastaneh Torkamani-Azar discusses her research on drug-resistant epilepsy, focusing on the innovative techniques being developed to improve diagnosis and treatment. The conversation covers the challenges of drug resistance in epilepsy, the importance of advanced neuroimaging and histopathology, and the potential impact of this research on patient outcomes and quality of life. Mastaneh emphasises the collaborative nature of the project and the significance of integrating various data types to enhance clinical decision-making. ------------------------------------------ 🔗 Website & more about Mastaneh: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/mastaneh-torkamani-azar-data-epilepsy-making-diagnoses-more-precise ----------------------------------------- Don’t understand all the terms us...

2025-02-0611 min

Epilepsy Sparks Insights Epilepsy: The Brain-Mind Connection - Leszek KaczmarekNeurobiologist Leszek Kaczmarek discusses his extensive research in molecular neurobiology, particularly focusing on the role of the MMP-9 protein in learning, memory, and epilepsy! He explains how MMP-9 is linked to synaptic plasticity and epilepsy, autism, and various mental health disorders, including depression, schizophrenia, and alcohol addiction. Kaczmarek also shares insights into future research directions and the potential for drug development to prevent epilepsy. ------------------------------------------ 🔗 Website & more about Leszek : 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/leszek-kaczmarek-brain-mind-connection ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks...

2025-01-3018 min

Epilepsy Sparks Insights Communication Barriers in Epilepsy Research - Georgia CookResearch Fellow Georgia Cook explains the challenges of and positive impacts of positive, effective communication upon patient and family Quality of Life, the importance of qualitative research engagement and how it compliments quantitative research, and strategies to improve patient communication in an epilepsy trial. This is part 2 of 2 with Georgia. ------------------------------------------ 🔗 Website & more about Georgia: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/georgia-cook-communication-barriers-in-epilepsy-research -----------------------------------------

2025-01-2315 min

Epilepsy Sparks Insights Being Involved in Epilepsy Research at iNeuron! - Torie RobinsonPaediatric neurologist, scientist, and PPI Lead Julia Jacobs and Torie Robinson discuss the role of individuals with Lived Experience in research, particularly in the context of the iNeuron project, which focuses on epilepsy, stroke, and dementia. They explore the challenges and opportunities presented by basic science research, the importance of knowledge translation, and the benefits of engaging young researchers. The conversation emphasises the shared experiences across different diseases and the motivation that comes from personal connections in research. ------------------------------------------ 🔗 Website & more about the study: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/julia-jacobs-ineuron-lived-experience-basic-science

2025-01-1715 min

Epilepsy Sparks Insights How Do We Understand The Researchers - And the Patients?! - Georgia CookResearch Fellow Georgia Cook chats about the importance of effective communication between researchers and lay-people in epilepsy research - using the CASTLE study as a great example! She speaks of how the way that patients and families think and prioritise can be different to that of researchers, the vicious cycle between sleep disruption and epileptic seizures, the impacts of COVID upon the study, and why clinicians - neurologists, epileptologists, and epilepsy nurses - must pay attention to sleep in PWE! This is part 1 of 2 with Georgia. ------------------------------------------ 🔗 Website & more about Georgia: 👇🏻 https://www.torierobi...

2025-01-1616 min

Epilepsy Sparks Insights Travelling With Epilepsy! - Manuel ToledoManuel Toledo and Torie chat about the importance of but also the challenges in traveling for many people with an epilepsy, including medication management, sleep patterns, and knowing the healthcare systems in different countries! The chat highlights the need for preparation and safety tips for traveling with epilepsy, as well as the significance of sharing experiences to improve patient care.vvvvv ----------------------------------------- 🔗 Website & more about Manuel 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/manuel-toledo-travelling-epilepsy ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ...

2025-01-0916 min

Epilepsy Sparks Insights Treating Epilepsy With Spider Venom! - Glenn KingGlenn King discusses his research in epilepsy and how animal venoms can be utilised to develop new treatments! He explains the mechanisms of ion channels, the diversity of venoms, and the process of identifying effective compounds. The conversation also touches on the challenges of drug development, the potential for personalised medicine, and the future of epilepsy treatment.. ----------------------------------------- 🔗 Website & more about Glenn 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/glenn-king-treating-epilepsy-with-spider-venom ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ...

2024-12-1215 min

Epilepsy Sparks Insights The Complexities of Paediatric Epileptology! - Eleni PanagiotakakiPaediatric neurologist Eleni Panagiotakaki discusses her work in paediatric epileptology, focusing on rare epilepsies such as Alternating Hemiplegia of Childhood (AHC) and GRIN disorders. She highlights the challenges in diagnosing and treating these conditions, the variability of symptoms, the importance of a holistic approach to care, and the role of parents in driving research! ----------------------------------------- 🔗 Website & more about Eleni 👇 https://www.torierobinson.com/epilepsy-sparks-insights/eleni-panagiotakaki-ahc-grin-genetic ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on socia...

2024-12-0513 min

Epilepsy Sparks Insights Understanding Acute Symptomatic Seizures: A Deep Dive - Clio RubinosWhat are Acute Symptomatic Seizures, how do they differ from epileptic seizures, and how can one recover? Who will develop an epilepsy after one and what are the causes?! Think stroke, TBI, tumours, infection, encephalitis, status epilepticus...! Find out all about it from neurocritical care and epileptology specialist neurologist Clio Rubinos. ------------------------------------------ Website, transcript, & more about Clio: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/clio-rubinos-acute-symptomatic-seizures ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media!

2024-11-2819 min

Epilepsy Sparks Insights Exploring the Future of Brain Imaging: OPM-MEG - Zelekha SeedatPost-doc researcher Zelekha Seedat discusses her work as a postdoctoral researcher at Young Epilepsy, focusing on Magnetoencephalography (MEG) and the innovative Optically Pumped Magnetometers (OPM) technology. She explains the differences between MEG and EEG, the advantages of OPM technology, and the challenges faced in interpreting data. The conversation also covers the importance of combining EEG with OPM-MEG for better data accuracy, the future potential of OPM-MEG in clinical settings, and how to get involved in her research! ----------------------------------------- 🔗 Website & more about Zelekha 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/zelekha-seedat-opm-meg-young-epilepsy ----------------------------------------- Don’t unde...

2024-11-2113 min

Epilepsy Sparks Insights OPM-MEGs - New, Precise Brain Scans For Epilepsy - Christine EmburyPost-doc researcher Christine Embury shares with us her research on the cool OPM-MEG technology for brain imaging - its advantages (particularly for children with refractory epilepsy and considering brain surgery!) and how it could improve patient outcomes and our understanding of developmental trajectories in paediatric epilepsies! Lastly, Christine and Torie chat about the cost-effectiveness of the device, its benefits from an energy usage/climate change perspective, and how both patients and clinicians can get involved in the research! ----------------------------------------- 🔗 Transcript & more about Christine 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/christine-embury-opm-meg-young-epilepsy ----------------------------------------- Don’t under...

2024-11-1416 min

Epilepsy Sparks Insights Improving Epilepsy Care For Children in Iran - Reza Shervin-BadvReza Shervin-Badv, a paediatric epileptologist and neurologist talks about the diverse care available for people in Iran, plus the common epilepsy stigma which is being challenged through education and advances in medical care. ------------------------------------------ 🔗 Website & more about Reza: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/reza-shervin-badv-iran-epilepsy-stigma ______________ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: http...

2024-11-0710 min

Epilepsy Sparks Insights New "Master-Controller" Molecule in Epilesy! - Mona HeilandFind out about a new epilepsy discovery; how the microRNA-335 molecule impacts people with both Dravet Syndrome and Temporal Lobe Epilepsy, and what this could mean for research going forward! All with post-doc researcher Mona Heiland! ------------------------------------------ 🔗 Website & more about Mona: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/mona-heiland-newly-discovered-molecule-microrna-335 ----------------------------------------- Chapters 📖 00:00 Trailer & Intro 00:45 Meet Mona 01:07 Explaining Sodium Channel Epilepsies 06:03 Understanding MicroRNAs and Their Role in Epilepsy 07:47 Research Findings on MicroRNA-335 and Sodium Channels 10:01 Future Directions in Precision Therapies for Epilepsy...

2024-10-3111 min

Epilepsy Sparks Insights Decreasing Language Decline Caused by Epilepsy Surgery - Sjoerd VosPhysicist Sjoerd Vos shares his research in neuroimaging; aiming at decreasing language decline caused by temporal lobe resections! ----------------------------------------- 🔗 Website & more about Sjoerd https://www.torierobinson.com/epilepsy-sparks-insights/sjoerd-vos-physics-mri-temporal-lobe-epilepsy-resection-cognitive ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.co...

2024-10-2411 min

Epilepsy Sparks Insights The Power of Collaboration in Epilepsy Research - Eduardo Pérez PalmaEduardo Pérez Palma, a neurogenetics scientist and bioinformatician, discusses his work in neurogenetics and epilepsy research, emphasising the importance global collaboration in studying the epilepsies in different parts of the world! Eduardo also shares the upcoming Latin American Congress on Genetic Epilepsiesin Jan 2025; which aims to bring together experts from various fields to share knowledge and perspectives! ------------------------------------------ 🔗 Website & more about Eduardo: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/eduardo-perez-palma-neurogenetics-dee-latin-america ----------------------------------------- Chapters 📖 - Intro to Eduardo - The Value of Genetic Testing in Epilepsy - Diversity an...

2024-10-1713 min

Epilepsy Sparks Insights Advancements in Stem Cell Research for Drug-Resistant Epilepsy - Patrick KwanLearn of exciting research into a drug screening platform for personalised medicine for the epilepsies - through adult neurologist and researcher Patrick Kwan; head of the Kwan Lab! Patrick describes the process of extracting stem cells from blood, culturing them, and using them to develop new treatments for drug-resistant epilepsy. The conversation highlights the importance of collaboration and data sharing in epilepsy research. ----------------------------------------- 🔗 Website & more about Patrick👇 https://www.torierobinson.com/epilepsy-sparks-insights/patrick-kwan-advances-stem-cell-research-epilepsy ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇 https://www.epilepsysp...

2024-10-1015 min

Epilepsy Sparks Insights Using Viral Vectors To Stop Epilepsy - José M SerratosaPeople with an epilepsy might be nervous about getting "gene therapy" - but in today's mini-episode, in part 2 of 2, epileptologist José M Serratosa is asked if he would get gene therapy and why(!), explains the use of viral vectors for treating genetic epilepsies, where we are in preclinical development, what is next, and what is also holding us back! ------------------------------------------ 🔗 Transcription & more about José: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jose-m-serratosa-gene-therapies-viral-vectors ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ...

2024-10-0308 min

Epilepsy Sparks Insights Gene Therapy: A Promising Approach for The Epilepsies? - José M SerratosaWhat does the future for epilepsy treatments hold?! Epileptologist José M Serratosa shares his predictions for epilepsy gene therapies; highlighting the importance of addressing all symptoms - including cognitive, motor, and psychiatric - as well as the seizures. Jose explains the role of viral vectors and how they may save people! This is part 1 of 2 with José - in part 2, the conversation goes into the challenges of research clinical trials for these therapies; from basic, to pre-clinical, to clinical! ------------------------------------------ 🔗 Transcription & more about José: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jose-m-serratosa-future-epilepsy-gene-therapies ----------------------------------------- Don’t u...

2024-09-2612 min

Epilepsy Sparks Insights Laser Interstitial Thermal Ablation For Epilepsy - Michael SperlingMichael Sperling, a prof of neurology and director of the Jefferson Comprehensive Epilepsy Center, educates us on laser ablation therapy for epilepsy! He and Torie discuss the minimally invasive nature of the procedure, its advantages over traditional open surgery, and its efficacy in reducing seizures. They also touch on the suitability of the therapy for different age groups and types of epilepsy. The conversation highlights the precision and safety of laser ablation therapy and its potential to improve outcomes for patients. ----------------------------------------- Michael’s related papers 📜 https://www.researchgate.net/profile/Michael-Sperling-2 ...

2024-09-1914 min

Epilepsy Sparks Insights Acute Symptomatic Seizures: Weaning Babies Off Of ASMs - Maria GogouWho knows about Acute Symptomatic Seizures and how the babies and children experiencing them can be carefully weaned off of the anti-seizure medications they are on? Paediatric neurologist and epilepsy specialist Maria Gogou from University General Hospital of Alexandroupolis, Greece, explains more. Paediatric neurologist and epilepsy specialist Maria Gogou from University General Hospital of Alexandroupolis, Greece, explains more. ----------------------------------------- 🔗 Website & more about Maria 👇 https://www.torierobinson.com/epilepsy-sparks-insights/maria-gogou-acute-symptomatic-seizures-weaning-babies-asms ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇 https://www.epilepsysparks.com/glossary ...

2024-09-1212 min

Epilepsy Sparks Insights Staying On A Medication That “Doesn't Work”?! - Maria GogouChildren may benefit from being weaned off of anti-seizure medications when they are on the ketogenic diet. Plus, find out how the ketogenic diet can significantly benefit children with epilepsy - even when it doesn’t control their seizures! Paediatric neurologist Maria Gogou discusses her work in managing rare and complex epilepsies in children. ----------------------------------------- 🔗 Paper: “Antiseizure medication reduction and withdrawal in children with drug-resistant epilepsy after starting the ketogenic diet” 👇 https://onlinelibrary.wiley.com/doi/full/10.1111/dmcn.15377 ----------------------------------------- 🔗 Website, transcription, & more about Maria 👇 https://www.torierobinson.com/epilepsy-spark...

2024-09-0514 min

Epilepsy Sparks Insights How Worms Helped Us Understand Epilepsy! - David HenshallDavid Henshall shares how information gathered when researching worms led to the discovery of microRNA, a far improved understanding of the epilepsies, and potential treatments - all explained in his new book (link below)! This is episode 2 of 2. ----------------------------------------- David’s book 📖 https://www.amazon.co.uk/Fine-Tuning-Life-MicroRNAs-Genomes-Regulators/dp/1009466429/ref=sr_1_1 ----------------------------------------- 🔗 Website & more about David: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/david-henshall-micro-rna-epilepsy ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ...

2024-08-2923 min

Epilepsy Sparks Insights Fighting Epilepsy With MicroRNAs?! - David HenshallDavid Henshall discusses the role and importance the role of microRNAs in epilepsy; which act as master regulators of gene activity and help stabilise the gene pathway. He discusses the potential of RNA therapy in treating epilepsy and the challenges of delivering RNA molecules to the brain. Henshall's book, 'Fine Tuning Life: A Guide to MicroRNAs, Your Genome's Master Regulators,' explores the fascinating world of microRNAs and their impact on gene regulation. ----------------------------------------- David’s book 📖 https://www.amazon.co.uk/Fine-Tuning-Life-MicroRNAs-Genomes-Regulators/dp/1009466429/ref=sr_1_1 ----------------------------------------- 🔗 Website & more about Dav...

2024-08-2218 min

Epilepsy Sparks Insights Fighting Epilepsy Stigma in Kenya - Eddie ChengoEpileptologist Eddie Chengo from Kenya discusses the stigma faced by people affected by epilepsy in Africa, explaining that around 75% of people with epilepsy in the region experience stigma and emphasising the importance of addressing this whilst implementing medical treatment. Eddie also shares the various initiatives and research projects his organisation is undertaking to raise awareness and challenge the stigma associated with epilepsy. ------------------------------------------ 🔗 Eddie's papers 👇 https://www.researchgate.net/scientific-contributions/Eddie-Chengo-44151310 ----------------------------------------- 🔗 Website & more about Eddie 👇 https://www.torierobinson.com/epilepsy-sparks-insights/eddie-chengo-epilepsy-stigma-kenya ----------------------------------------- Don’t understa...

2024-08-1525 min

Epilepsy Sparks Insights Seizures Caused By Insufficient Glucose! - Carla MariniA mutation of a gene can lead to lack of absorption of glucose (our fuel) and cause epilepsy! Carla Marini, a paediatric neurologist and neuropsychiatrist tells us all about the rare epilepsy and metabolic disorder GLUT1 Deficiency Syndrome, emphasising the importance of early diagnosis, treatment using the ketogenic diet (which can help control seizures, improve cognitive function, and decrease the impacts of movement disorders). She also highlights the value of working closely with patient and family groups to understand the clinical manifestations and natural history of the disease. Carla shares an uplifting success story of a patient who has...

2024-08-0814 min

Epilepsy Sparks Insights The Importance of Genetic Testing For Epilepsies - Nazanin Azarinejad MohammadiNeuroscientist Nazanin Azarinejad Mohammadi discusses her research on epilepsy genetics, the clinical and functional characterisation of GABAA-receptor related disorders, and how mutations in the GABAA-receptor subunits can lead to epilepsy and morbidities. Nazanin also highlights the variability in symptoms among individuals with the same mutation and the need for further research to understand the factors that contribute to this variability. Plus, emphasised is the importance of genetic testing and personalised treatment for patients with these mutations. ----------------------------------------- Paper: “Clinical and functional characterization of GABAA-receptor related disorders: translating genetic diagnostics into personalized treatment” 👇 https://portal...

2024-08-0115 min

Epilepsy Sparks Insights Cenobamate: Benefits & Risks - Ricardo MorcosAs well as preventing up to 100% of seizures in 20% of those with refractory focal epilepsy, Cenobamate may also (indirectly), positively impact mental health, cognitive function and reduce seizure propagation. Ricardo Morcos shares information on the titration of Cenobamate, how it is not suitable during pregnancy, and the importance of a 1:1 clinician-patient relationship. This is part 2 of 2. Please note that this is not an endorsement of any particular anti-seizure medication (Cenobamate or any of the others mentioned) and any questions or ideas from a patient or carer must be brought up with one’s neurologist/epileptologist. ...

2024-07-2514 min

Epilepsy Sparks Insights Cenobamate: A Game Changer For Epilepsy? - Ricardo MocosAs well as preventing up to 100% of seizures in 20% of those with refractory focal epilepsy, Cenobamate may also (indirectly), positively impact mental health, cognitive function and reduce seizure propagation. Ricardo Morcos shares information on the titration of Cenobamate, pregnancy, and the importance of a 1:1 clinician-patient relationship. This is part 2 of 2. Please note that this is not an endorsement of any particular anti-seizure medication (Cenobamate or any of the others mentioned) and any questions or ideas from a patient or carer must be brought up with one’s neurologist/epileptologist. ------------------------------------------ Spanish consensus on th...

2024-07-1818 min

Epilepsy Sparks Insights World Brain Day 2024: Brain Health & Prevention - Tissa WijeratneFor the 11th World Brain Day, hear from co-chair and lead neurologist Tissa Wijeratne, who explains how so many of the brain disorders in nearly 4 billion people can be prevented, and how you can help this happen! Links to the free World Brain Day webinar, and more, are below. ------------------------------------------ 🎧 Listen to ESI on Spotify!👇 https://open.spotify.com/show/14rwL06qUowezZQGwpR7GW?si=dE4AEAsrQhqbeDc8dKM-dQ Also on Apple Podcasts or anywhere else you listen! ----------------------------------------- World Brain Day 👇 https://wfneurology.org/activities/news-events/wfn-news...

2024-07-1715 min

Epilepsy Sparks Insights Epilepsy Surgery, Neuroplasticity, & Memory - Jon KleenPeople forget to bring up memory issues with their neurologist…because of their memory issues! Discover the potentials and limitations of neurosurgery and neuroplasticity with epileptologist Jon Kleen from UCSF medical Center. ------------------------------------------ 🔗 Website & more about Jon: 👇 https://www.torierobinson.com/epilepsy-sparks-insights/jon-kleen-epilepsy-surgery-neuroplasticity-memory-cognition ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: h...

2024-07-1120 min

Epilepsy Sparks Insights Cognitive Impairments In Epilepsy - Jon KleenLearn all about how people can have memory and other cognitive struggles as part of their epilepsy - in part 1 of 2 with epileptologist Jon Kleen from the UCSF Medical Center, USA! Jon speaks about his career focus, types of cognitive impairments, impacts on quality of life, and more. ------------------------------------------ 🔗 Website & more about Jon: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jon-kleen-cognitive-impairments-epilepsy-research ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitte...

2024-07-0417 min

Epilepsy Sparks Insights Our Need To Manage Stress - Neil ShahStress and anxiety levels are incredibly high amongst the population of those with an epilepsy and are commonly seizure triggers. Neil Shah of the Stress Management Society speaks of stress in today's society, the importance of recognising and addressing it, removing the guilt, shame, and stigma associated with it, and the power we have to limit it. ----------------------------------------- 🔗 Website & more about Neil: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/neil-shah-managing-stress-anxiety-with-epilepsy ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ...

2024-06-2719 min

Epilepsy Sparks Insights Neurologists Recognising & Addressing Symptoms Other Than Seizures - Claude SteriadeLearn of when an Autoimmune-Associated Epilepsy can onset, potential causes, and the needs of people affected - other than seizure control! All in part 2 of 2 with epileptologist Claude Steriade from⁠ NYU Langone Health Epilepsy Center. ------------------------------------------ 🔗 Website & more about Claude: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/claude-steriade-other-symptoms-of-autoimmune-associated-epilepsy ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson ...

2024-06-2014 min

Epilepsy Sparks Insights Understanding & Treating Autoimmune-Associated Epilepsy - Claude SteriadeHear about Autoimmune-Associated Epilepsy and the intersection between epilepsy and immunology - in part 1 of 2 with epileptologist Claude Steriade from NYU Langone Health Epilepsy Center! Claude explains the causes, mechanisms, and impacts of Autoimmune-Associated Epilepsy upon people's lives, plus, how crucial early diagnoses and intervention are. ------------------------------------------ 🔗 Transcription & more about Claude: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/claude-steriade-autoimmune-associated-epilepsy-immunology ----------------------------------------- ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: ht...

2024-06-1316 min

Epilepsy Sparks Insights Huge Advances In EEG Monitoring & Analysis - Mark CookMark Cook and Torie discuss the significant improvements in epilepsy treatments over the past few decades - thanks to technologies like MRI and genetics. Mark also explores the issue of overreporting and underreporting of seizures by patients and the potential of ambulatory EEG monitoring and big data analysis to provide a more accurate understanding of seizure activity which can lead to both improved treatments and improving peoples’ quality of life. ------------------------------------------ 📖 Transcript & more on Mark: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/mark-cook-huge-advances-in-eeg-monitoring-analysis ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy...

2024-06-0624 min

Epilepsy Sparks Insights Exploring The Links Between Sleep & Epilepsy: CASTLE - Deb Pal & Paul GringrasDeb Pal and Paul Gringras discuss their research on the links between sleep and seizures in epilepsy; sharing their work on the CASTLE project, which aims to improve sleep and Quality of Life for children, young people, and families affected. They discuss both their app called COSI - which provides evidence-based sleep interventions for parents, and the upcoming CASTLE conference, where they shall disseminate their research findings and discuss the importance of personalised approaches to sleep management in epilepsy. ------------------------------------------ Interested in attending the conference? 🎫 Contact us via deb.pal@kcl.ac.uk or via our X accounts @palneurolab, @TorieRobinson10, or...

2024-05-3016 min

Epilepsy Sparks Insights Epilepsy: Managing Your Metabolism To Stabilise Your Brain - Graham PhillipsWhat should someone do if interested in adopting the ketogenic diet or looking further into "metabolic psychiatry"? Hear about sacrifices, benefits, weight loss, constipation, nutrition, and having the right support. All in part 3 of 3 with the “pharmacist who gave up drugs”, Graham Phillips. ------------------------------------------ 🔗 Website & more about Graham: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/graham-phillips-epilepsy-changing-metabolism-stabilise-brain-ketogenic ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: torierobinson10 - LinkedIn: torierobin...

2024-05-2317 min

Epilepsy Sparks Insights Epilepsy, Mood, Metabolism, And The Ketogenic Diet! - Graham PhillipsLearn of the evolution of the ketogenic diet, metabolic psychiatry, the treatment overlap between different diagnoses (e.g. the epilepsies and mood disorders), recommended reads, and the cognitive dissonance of many regarding the ketogenic diet. This is part 2 of 3 with the Pharmacist Who Gave Up Drugs: Graham Phillips. ------------------------------------------ 🔗 Website & more about Graham: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/graham-phillips-hunger-mood-epilepsy-metabolism-ketogenic ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: torierobinson10

2024-05-1620 min

Epilepsy Sparks Insights The Ketogenic Diet - Graham PhillipsThe Pharmacist Who Gave Up Drugs introduces us to the impacts of the western diet on our health, quality of life, life expectancy - and the potential benefits of the ketogenic diet - in part 1 of 3: Graham Phillips. ------------------------------------------ 🔗 Website & more about Graham: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/graham-phillips-ketogenic-diet-pharmacist-part1 ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/tori...

2024-05-0921 min

Epilepsy Sparks Insights Pediatric Epilepsy Research Consortium - M. Scott PerryM. Scott Perry explains how Epilepsy Researchers require intros and support to be the best that they can be and initiate, manage, and see results. It’s possible through the Pediatric Epilepsy Research Consortium (PERC). ------------------------------------------ 🔗 Website & more about Scott: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/m-scott-perry-pediatric-epilepsy-research/consortium ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torie...

2024-05-0213 min

Epilepsy Sparks Insights Preventing Seizures Using Stem Cells?! - David SpencerHear about research into a new way of inhibiting temporal lobe seizure activity through GABAergic interneuron cell therapy! With epileptologist and neuroscientist David Spencer. ------------------------------------------ 🔗 Website & more about David: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/david-spencer-preventing-seizures-using-stem-cells ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10

2024-04-2514 min

Epilepsy Sparks Insights Mistaking Epilepsy For Menopause?! - Jacqueline FrenchIt's wild: when clinicians mistake an epilepsy (caused by a brain tumour!) for menopause! Or, when a parent doesn't believe that their daughter could have an epilepsy...! Why aren't organisations and governments promoting epilepsy awareness as well as they do stroke and MS?! Tune in to hear all about it from leading epilepsy specialist: Jacqueline French. ------------------------------------------ 🔗 Website & more about Jacqueline: 👇🏻 jacqueline-french-epilepsy-menopause ----------------------------------------- 🔗 Kin - that Irish TV series: 👇🏻 IMDB ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 ...

2024-04-1810 min

Epilepsy Sparks Insights 6th Dianalund International Conference on Epilepsy - Overlapping Clinical Phenotypes in Monogenic Epilepsies; Common Molecular Pathways? - Elena Gardella, Rikke Møller, Guido RubboliHear about the one-of-a-kind 6th Dianalund International Conference on Epilepsy in May 2024 - with lead genetic clinicians and researchers Elena Gardella, Rikke Møller, and Guido Rubboli. ------------------------------------------ 🔗 Website & more about Elena, Rikke, and Guido: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/6th-dianalund-international-conference-epilepsy-genetics-denmark-elena-gardella-rikke-moller-guido-rubboli ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https...

2024-04-1708 min

Epilepsy Sparks Insights Car Accidents Caused By Epilepsy! The Human Epilepsy Project - Jacqueline French5% of a cohort* had at least 1 car accident (and up to 3) before their epilepsy diagnosis! Hear about the global Human Epilepsy Project by Jacqueline French and learn how seizures can present in so many different ways! *450 people ------------------------------------------ 🔗 Website & more about Jacqueline: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jacqueline-french-human-epilepsy-project ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: ht...

2024-04-1114 min

Epilepsy Sparks Insights Do Autism & Intellectual Disability Come With Epilepsy? - Vaishnav KrishnanDo Autism & Intellectual Disability Come With Epilepsy? Learn of the Epilepsy, Autism and Intellectual Disability “triad” - studied by clinician scientist, epileptologist: Vaishnav Krishnan. ------------------------------------------ 🔗 Website & more about Vaishnav: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/vaishnav-krishnan-epilepsy-autism-intellectual-disability-triad ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobins...

2024-04-0419 min

Epilepsy Sparks Insights Huge Seizure Reduction Through DBS (in LGS) - Linda DalicLearn of the huge reduction in seizures amongst adults with the epilepsy Lennox-Gastaut Syndrome - as the result of DBS! With Linda Dalic. ------------------------------------------ 🔗 Website & more about Linda: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/linda-dalic-stimulating-brain-reduce-seizures-neuromodulation ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: ht...

2024-03-2814 min

Epilepsy Sparks Insights Purple Day Openness! - Cassidy MeganHear about the origins of Purple Day, its purpose, the positivity and how to make a difference! With founder: Cassidy Megan!! We talk about how Purple Day was founded, Cassidy's personal epilepsy diagnosis, school, stigma, the diversities of the epilepsies, SUDEP, varying cultural experiences, media portrayals, credible sources of information, and brilliant clinicians! ------------------------------------------ 🔗 Website & more about Cassidy: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/cassidy-megan-purple-day-openness ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media!

2024-03-2629 min

Epilepsy Sparks Insights Brain, Skull, And Neck Implants For Epilepsy?! - Anna BochenekBrain, Skull, And Neck Implants For Epilepsy?! What's the epilepsy treatment called VNS? Or DBS? Or RNS?! Learn about these cool neuromodulation treatments that can help to prevent and/or control epileptic seizures (!) with star epileptologist Anna Bochenek. ------------------------------------------ 🔗 Website & more about Anna: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/anna-bochenek-neuromodulation-vns-dbs-rns ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://ww...

2024-03-2115 min

Epilepsy Sparks Insights Epilepsy Caused by Brain Tumours - Kate ConnorBrain tumours vary greatly and 30% of them cause an epilepsy to develop - hence the name Brain Tumour Related Epilepsy. Hear more for Brain Tumour Awareness Month from cancer neuroscientist: Kate Connor. ------------------------------------------ 🔗 Website & more about Kate: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/kate-connor-epilepsy-brain-tumours-awareness-month ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torier...

2024-03-1414 min

Epilepsy Sparks Insights Increasing Neuronal Excitement To Treat An Epilepsy?! - Jean-François PerrierSurprising and exciting rare epilepsy (STXBP1) research discoveries that have led to the enhancement of excitatory synapses as a proposed treatment - by Jean-François Perrier of the University of Copenhagen, Denmark. ------------------------------------------ 🔗 Website & more about Jean-François: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jean-francois-perrier-STXBP1-excitatory-inhibitory-synapses ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson ...

2024-03-0713 min

Epilepsy Sparks Insights Seizure Forecasting Using AI - Daniel GoldenholzCould we accurately predict epileptic seizures using AI? How accurate do predictions need to be? How cool to use do devices need to be?! Could seizure forecasting reduce injuries, decrease mortality, and improve people’s quality of life? Hear all about it from neurologist: Daniel Goldenholz. ------------------------------------------ 🔗 Website & more about Daniel: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/daniel-goldenholz-seizure-forecasting-artificial-intelligence ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www...

2024-02-2912 min

Epilepsy Sparks Insights AI & Epilepsy: Ethics & Biases - Daniel GoldenholzHow useful is and can AI be in helping people with an epilepsy? How safe it it? What are the biases to be challenged and the ethics to be followed? Hear answers from Daniel Goldenholz of Harvard Beth Israel Deaconess Medical Center. ------------------------------------------ 🔗 Website & more about Daniel: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/daniel-goldenholz-ai-safety-ethics-biases ----------------------------------------- Chapters 📖 00:00 Clip & intro 00:59 Meet Daniel 01:30 AI is fun and important for epilepsy 02:33 Using AI usefully and safely 05:12 Ethics and AI biased training 07:40 Tricking AI using AI tri...

2024-02-2217 min

Epilepsy Sparks Insights Epilepsy Is A Symptom! - Reetta Kälviäinen“Epilepsy is not only a disease, epilepsy is a symptom of a brain disease. And brain health is everything, belongs to everybody!” Learn more of from and hear of the exciting, upcoming Kuopio Epilepsy Symposium in March 2024 - with exciting lead neurologist, researcher, and world-changer: Reeta Kälviäinen. ------------------------------------------ 🔗 Website & more about Reetta: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/reetta-kalviainen-genetic-rare-epilepsy-symptom-symposium ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter...

2024-02-1514 min

Epilepsy Sparks Insights International Epilepsy Day!! - Helen CrossHear all about International Epilepsy Day, the needs of those affected by the epilepsies, eradicating stigma, treating and preventing epilepsy, and hope for the future; all with global lead Helen Cross. ------------------------------------------ 🔗 Website & more about Helen: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/helen-cross-international-epilepsy-day ----------------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://w...

2024-02-1210 min

Epilepsy Sparks Insights The Real Needs of Children With Epilepsy - Kirsten McHaleFor Children's Mental Health Week meet Kirsten McHale who shares the complex needs of many children with an epilepsy, how their needs are not being met (in the UK), and how services must be improved. ------------------------------------------ 🔗 Website & more about Kirsten: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/kirsten-mchale-real-needs-children-with-epilepsy ----------------------------------------- Children's Mental Health Week: www.childrensmentalhealthweek.org.uk ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media!

2024-02-0819 min

Epilepsy Sparks Insights Why Aren’t More People Having Epilepsy Surgery? - Luke TomyczWhy are only a small percentage who’d benefit from epilepsy surgery getting it? Hear from neurosurgeon Luke Tomycz of the Epilepsy Institute of New Jersey. ------------------------------------------ 🔗 Website, transcription, and more about Luke: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/luke-tomycz-why-arent-more-people-having-epilepsy-surgery ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.c...

2024-02-0116 min

What the EF

What the EF Searching for mental health care with Torie RobinsonFrustrated in your search for mental health care? You’re not alone! Torie Robinson, host of Epilepsy Sparks podcast, and Landis Wiedner chat and laugh about their quests for good therapists and experiences with various types of therapies, like cognitive behavior therapy (CBT). Armed with her impressively vast knowledge of the epilepsies, Torie explains why mental healthcare goes hand in hand with epilepsy treatment.Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & AudibleHelp keep What the EF going by following and subscribing!Instagram: @whattheefpodcastYouTube: @WhatTheEFPodcast...

2024-01-3045 min

Epilepsy Sparks Insights How Do You Measure Epilepsy Surgery Success? Engel Class? - Luke TomyczHear about ways of measuring epilepsy surgery success, risks, and managing expectations. With neurosurgeon Luke Tomycz. ----------------------------------------- 🔗 Website, transcript, and more about Luke: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/luke-tomycz-epilepsy-surgery-success-measurement-engel-class ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torie...

2024-01-2514 min $Sharp Waves: ILAE\'s epilepsy podcast$

Sharp Waves: ILAE's epilepsy podcast "Talking about things that no one else will talk about": Torie Robinson, host of Epilepsy Sparks InsightsSend comments and feedbackFor her podcast, Epilepsy Sparks Insights, Torie Robinson interviews epilepsy clinicians and scientists from around the world. Diagnosed with epilepsy at age 10, Torie is working to share knowledge with people with epilepsy, their families, and the public. Her episode topics range widely, from the biochemistry of epilepsy, to the importance of epilepsy nurses, to epilepsy as an autoimmune condition, to sexual issues.Listen to Epilepsy Sparks Insights wherever you get your podcasts, including YouTube.Finding Torie:PodcastWebsiteYouTubeFacebookInstagram: @TorieRobinson10X...

2024-01-2223 min

Epilepsy Sparks Insights The Safety & Efficacy Of Epilepsy Surgery - Luke TomyczLearn about epilepsy surgery and potential benefits and risks - from epilepsy neurosurgeon of the Epilepsy Institute of New Jersey: Luke Tomycz. ------------------------------------------ 🔗 Website, transcription, and more about Luke: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/luke-tomycz-safety-efficacy-epilepsy-surgery ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpe...

2024-01-1812 min

Epilepsy Sparks Insights Brain Tumour-Related Epilepsy - Mark CunninghamBrain tumours commonly cause epilepsy. Learn more about research into this and Brain Tumour-Related Epilepsy, today with Mark Cunningham of Trinity College Dublin. ------------------------------------------ 🔗 Website & more about Mark: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/mark-cunningham-brain-tumours-tumors-epilepsy ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker...

2024-01-1115 min

Epilepsy Sparks Insights SUDEP Caused By Lack Of Air Hunger? - Brian DlouhyCould the amygdala be responsible for lack of air hunger and SUDEP? Learn about the research from neurosurgeon and researcher Brian Dlouhy. ------------------------------------------ 🔗 Website & more about Brian: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/brian-dloughy-lack-air-hunger-sleep-apnea-amygdala-sudep ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: http...

2024-01-0414 min

Epilepsy Sparks Insights Being An Epilepsy Nurse - Neil WilliamsonEpilepsy Specialist Nurses provide a key part of the care package for people with an epilepsy. Hear of the value of flexibility and going above and beyond required, by Neil Williamson. ------------------------------------------ 🔗 Website & more about Neil: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/neil-williamson-being-an-epilepsy-nurse ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: ht...

2023-12-2813 min

Epilepsy Sparks Insights A Cancer Drug That Prevents Seizures - Pablo Casillas-EspinosaA compound designed to treat prostate cancer appears to be effective in treating temporal lobe epilepsy in rodents - including the cognitive and psychiatric aspects so commonly accompanying seizures! Hear more from Pablo Casillas-Espinosa! ------------------------------------------ 🔗 Website & more about Pablo: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/pablo-casillas-espinosa-sodium-selenate-temporal-lobe-epilepsy ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X / Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson

2023-12-2115 min

Epilepsy Sparks Insights Seizure Forecasting Using Machine Learning & AI - Ben BrinkmannHear about developments in seizure forecasting (using AI & machine learning), the benefits to people with epilepsy, trust, and managing expectations. With Clinical Support Scientist at the Mayo Clinic: Ben Brinkmann. ------------------------------------------ 🔗 Transcription & more about Ben: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/ben-brinkmann-machine-learning-ai-forecast-prevent-seizures ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https...

2023-12-1409 min

Epilepsy Sparks Insights The Latest Ways To Scan Your Brain! - Ben BrinkmannExciting neuroimaging techniques are getting out there to help more and more people become seizure-free. Hear more about the latest from clinical support scientist Ben Brinkmann. ------------------------------------------ 🔗 Website & more about Ben: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/ben-brinkmann-latest-ways-scan-brain-mri-eeg-mag-magnetoencephalography-7tesla-mri ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - X: https://twitter.com/torierobinson10 - Instagram: https://www.instagram.com/to...

2023-12-0711 min

Epilepsy Sparks Insights What Are MEG Brain Scans? - Stefan RamppMagnetoencephalographies - or MEGs - are brain scans with a very high sensitivity and are a distinct complement to EEG and MRI scans in preparation for epilepsy surgery. Hear all about them now from the expert in biosignal analysis: Stefan Rampp. ------------------------------------------ 🔗 Website & more about Stefan: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/stefan-rampp-MRI-magnetoencephalography-benefits-epilepsy-neurosurgery ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - X: https://twitter.com/torierobinson10 - LinkedIn: ht...

2023-11-3015 min

Epilepsy Sparks Insights Epilepsy Via Somatic Gene Mutations - Karl Martin KleinHear how somatic gene mutations can lead to an epilepsy and how this is being researched by lead clinician scientist of the University of Calgary: Karl Martin Klein. ----------------------------------------- 🔗 Website & more about Karl Martin: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/karl-martin-klein-epilepsy-via-somatic-gene-mutations ---------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https...

2023-11-2315 min

Epilepsy Sparks Insights Epilepsy: The Israel-Palestine Crisis - Omar DanounHear how the conflict in Palestine is impacting the thousands people with epilepsy in Palestine - but how support from around the world is making a difference - with our return-guest, epileptologist Omar Danoun د. عمر دنون.. ------------------------------------------ 🔗 Website & more about Omar: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/omar-danoun-epilepsy-israel-palestine-gaza-crisis ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson1...

2023-11-2012 min

Epilepsy Sparks Insights Epilepsy Specialist Pharmacists: The Value - Trudy ThomasEpilepsy Specialist Pharmacist Trudy Thomas explains the incredible value of an Epilepsy Specialist Pharmacist, managing “A wonky stool”, and how and why other non-specialist pharmacists should learn more about the epilepsies. ----------------------------------------- 🔗 Website & more about Trudy: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/trudy-thomas-epilepsy-specialist-pharmacists-value ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https...

2023-11-1613 min

Precision Medicine Forum Podcast 011: The role of Precision Medicine within ultra-rare disease - David Rose & Guest host : Torie RobinsonThe buzz around the potential of Precision Medicine continues as new technologies, more powerful computing and our ability to store, share and interpret Big Data increases. On this podcast Steve Coldicott and Scott Buckler chat about all aspects of the industry with patients, healthcare industry and research professionals about creating personalised medicines for each and every one of us. On today's episode, Steve welcomes our first guest presenter: Torie Robinson is host of the brilliant Epilepsy Sparks Insights Podcast and she's chatting with David Rose. Dave has Occipital Horn Syndrome, an ultra-rare disease effecting his hea...

2022-09-1326 min

The Epilepsy Spectrum

The Epilepsy Spectrum Part 2: Torie Robinson, CEO and Founder of Epilepsy SparksContinued - listen to Torie Robinson and I have an in-depth conversation about language, barriers, and living life with epilepsy. www.epilepsysparks.com

2019-09-3022 min

The Epilepsy Spectrum

The Epilepsy Spectrum Part 2: Torie Robinson, CEO and Founder of Epilepsy SparksContinued - listen to Torie Robinson and I have an in-depth conversation about language, barriers, and living life with epilepsy. www.epilepsysparks.com

2019-09-3022 min

The Epilepsy Spectrum

The Epilepsy Spectrum Is Epilepsy a Disease? with Torie Robinson, Part 1CEO and founder Torie Robinson talks about her experience with seizures and her global work for the epilepsy community through Epilepsy Sparks. Join Torie and Tiff for a discussion about epilepsy - in part one, we learn about her personally, and we begin a discussion on epilepsy and terminology. Stay tuned next week to hear the rest of the conversation!

2019-09-2317 min

The Epilepsy Spectrum

The Epilepsy Spectrum Is Epilepsy a Disease? with Torie Robinson, Part 1CEO and founder Torie Robinson talks about her experience with seizures and her global work for the epilepsy community through Epilepsy Sparks. Join Torie and Tiff for a discussion about epilepsy - in part one, we learn about her personally, and we begin a discussion on epilepsy and terminology. Stay tuned next week to hear the rest of the conversation!

2019-09-2317 min