Shows
Living With Cystic FibrosisChild number 5 has CF: Lily and Jon in shock at first, then learn to live with CF.Lily and her husband Jon had 4 children and they were content. They bought a little farm in Ohio. Jon is a former Marine now working as a civilian to support his family. Then months after a tubal ligation, she found out she was pregnant! Before baby #5 made her debut...Lily faced some serious health issues and then their daughter Bonnie was born with CF. Hear their amazing story.For more information on The Bonnell Foundation find us at https://thebonnellfoundation.org/Vertex Pharma - the science of possibility. https://www.vrtx.comThe orig...2021-04-2649 min
Michigan Motors ForwardLaura Bonnell of the Bonnell Foundation for Cystic FibrosisThe Cystic Fibrosis community has been "social distancing" since before the term even existed. Having a genetic disease that causes chronic and fatal lung infections causes a need for CF patients to remain six feet apart from one another.Laura Bonnell has two daughters with CF, and that motivated her to create The Bonnell Foundation for Cystic Fibrosis. This September 26th, they will be hosting their annual Night of Hope. Like many organizations, the event has gone virtual. In this case, however, this format allows much more flexibility and inclusion among the CF community.Today, we p...2020-09-0112 min