Shows
I Didn’t Sign Up For ThisEpisode 25: Lessons from Living in a Care Home with Tuen Toebes - I Didn’t Sign Up For ThisThis week we interviewed the wonderful Teun Toebes. Teun is now 25 years old and an advocate for the way in which we deal with dementia care, whatever the age of the individual living with it.
Teun says that dementia is a societal challenge - it impacts us all and the way to change the experience of feeling excluded from society is for us all to live together again rather than focus on safety and control. People with dementia want to feel included and not feel like they are 'the other'.
From his experience of sharing a home with those living with...
2024-06-2447 minI Didn’t Sign Up For ThisEpisode 24: The Culture of Care with David Sheard - I Didn’t Sign Up For ThisJo and Emma chat again with one of their favourite humans David Sheard, Professor of Emotional Intelligence in Dementia Care and expert in all things dementia care related in our view!
In this episode David talks about the importance of the culture of care and how this can get lost and why it is important for care culture to be at the forefront of all care settings - the benefits to both those giving and receiving care.
David talks about the importance of being vulnerable and creating real environments where both staff and residents can thrive and be the best vers...
2024-06-1157 minI Didn’t Sign Up For ThisEpisode 23: The Manor: One Year On - I Didn’t Sign Up For ThisIn this episode Emma and Jo catch up with Rachel Beckett of The Manor Young Onset Dementia Unit 12 months on from opening. Rachel shares the journey of the last year and how the unit has become a home from home for residents and family members. Rachel shares her learnings and her hopes for the future of Young Onset Dementia care in the UK.
You can follow I didn't Sign Up For This wherever you listen to your podcasts and on Instagram : @idsuft_yoda
2024-04-0936 minI Didn’t Sign Up For ThisEpisode 22: Nick Howard: A conversation with a carer - I Didn’t Sign Up For ThisIn this week's episode Jo and Emma chat with Nick Howard. Nick's wife Linda is in the later stages of Young Onset Dementia and Nick shares candidly about the road from pre-diagnosis to the present, focusing on how he has supported both himself and Linda, the challenges and the strategies that have worked for him. Take a listen its a great episode!
2024-03-2651 minI Didn’t Sign Up For ThisEpisode 21: Energy - I Didn’t Sign Up For ThisIn this episode, Emma and Jo share how they manage their energy and how sometimes keeping going is hard when you are a full-time carer. They'd particularly love to hear if you have any tips or stories you'd like to share about how you manage your energy whilst caring for a loved one with Young Onset Dementia.
You can also find us on Instagram @idsuft_yoda
2024-03-1236 minI Didn’t Sign Up For ThisEpisode 20: Young Onset Panel Discussion - I Didn’t Sign Up For ThisIn this episode, Emma and Jo meet with previous guests David Sheard, (professor of Emotional Intelligence in Care) Jules Knight (Consultant Dementia Nurse), and Jill Quinn MBE (CEO of Dementia Forward. Jane Winteringham Will Writer and expert in Powers of Attorney joins the panel discussion for an engaging conversation about all things Young Onset Dementia.
Thank you so much for the many questions we received - listen to this episode to hear the answers to those questions and more.
We will be hosting a panel discussion again in the coming months so if there are any guests you'd like us to...
2024-01-091h 01I Didn’t Sign Up For ThisEpisode 19: Dr. Carol Sargent - I Didn’t Sign Up For ThisIn this episode, Jo and Emma chatted with Dr Carol Sargent from Sargent Consulting.
Carol Shared with us the difference between 'Dementia friendly' and 'Dementia Inclusive' particularly in relation to hospitality and holidays.
On the back of Jo and Emma taking their husbands on two different types of holidays this year, Carol shares her thoughts and experience on how best to plan holidays when you want to holiday with a loved one with dementia. She questions the notion of 'challenging behaviours' and asks those working to provide services that might include people with dementia (in other words all service providers) to conside...
2023-12-1935 minI Didn’t Sign Up For ThisEpisode 18: Holiday - I Didn’t Sign Up For ThisIn this episode, Emma & Jo discuss their recent experiences of booking and taking holidays with their husbands with Young Onset Dementia.
Jo and her son travelled to Lanzarote with Jonny and Emma and Nigel went to St. Ives Cornwall.
Holidaying with a loved one with dementia is challenging. From travel options to accommodation planning and activities whilst on holiday - there's a lot to consider.
If you have any holiday stories, tips, or anecdotes that would help our listeners, do get in touch - we'd love to hear from you!
2023-11-2821 minI Didn’t Sign Up For ThisEpisode 17: The Manor - I Didn’t Sign Up For ThisThis week we are delighted to be joined by Rachel Beckett Chair of Welburn Carehomes Limited and Susan Mckinney (Operations Director). We are chatting about a fabulous innovation - a house they have created specifically for people with young onset dementia.
Rachel shares the inspiration behind creating a dedicated house for those with young-onset dementia as distinct from older client care homes.
It's for people aged 30 years + a home-from-home for permanent residents, daycare, and respite care with or without partners. Rachel shared how the concept is evolving and with the needs of our clients and f...
2023-10-2432 minI Didn’t Sign Up For ThisEpisode 16: Admiral Nurse Jules Knight - I Didn’t Sign Up For ThisJules Knight Young Onset Dementia Consultant Admiral Nurse
Admiral Nurses work across the UK to improve services and resources for young-onset dementia.
What is an Admiral Nurse?
A specialist dementia nurse.
Wide and variable working with families with a diagnosis of dementia. In various settings such as memory clinics, hospices, the community, and the voluntary sector. Holistic services for family support.
A helpline supporting families but we also support professionals and people with dementia themselves.
The uniqueness of Youn...
2023-10-1056 minI Didn’t Sign Up For ThisEpisode 15: Innovations - I Didn’t Sign Up For ThisIn this episode, Jo and Emma chat with Chris Mitchell owner of Lavender Fields Care Village in Pocklington East Yorkshire where Emma and Nigel live. Chris talks about his passion for changing the way we think about dementia care and why he has created a village to enable people with dementia (and other health conditions) to live in a safe environment with care on hand whilst maintaining independence wherever possible. Chris' overriding message to other dementia care providers is "copy me" do what I'm doing so other people throughout the country can benefit.
2023-09-1935 minI Didn’t Sign Up For ThisEpisode 14: Strength & Energy - I Didn’t Sign Up For ThisIn this episode, Jo and Emma discuss their strategies for building strength and energy as carers. Jo is a keen swimmer and also finds yoga helpful to maintain not only her strength and energy for herself but also in creating a connection with her husband Jonny. Emma loves walking alone with her AirPods and podcasts for company. She also shares her feeling about going away without Nigel for the first time and how she's been supported to put her own oxygen mask on first. It's not easy, is it?
Cake also features in this episode(!) and here's...
2023-09-0526 minI Didn’t Sign Up For ThisEpisode 13: Reflections - I Didn’t Sign Up For ThisIn this week's episode, Emma & Jo reflect on their journey with the podcast so far -it's a learning curve for them too! The experts they've interviewed so far have added richness to their understanding of young-onset dementia and what it means to be a carer for a loved one with this disease. How about you? If you've been following the podcast, what have you learned and how are you implementing the knowledge you've gained? Are you being more compassionate to yourself too? This episode is also an invitation. An invitation for feedback on what you'd like more of (and...
2023-08-2218 minI Didn’t Sign Up For ThisEpisode 12: Hope - I Didn’t Sign Up For ThisDavid Sheard Professor of Emotional Intelligence in Care at York St John university joins the podcast this week. David discussed the importance of vulnerability, rewiring your energy and how essential it is to find your own hope as a carer.
Grab your tissues, a cuppa and be captivated by David.
https://www.emotional-intelligence.care/being-me/
Instagram: https://www.instagram.com/bydavidsheard1/
2023-08-0850 minI Didn’t Sign Up For ThisEpisode 10 : Clinical Trials - I Didn’t Sign Up For ThisWe discuss clinical trials with Daniella and Isaac from the Imperial Memory Unit at Charing Cross Hospital in London.
2023-07-1850 minI Didn’t Sign Up For ThisEpisode 11 : Occupational Therapy - I Didn’t Sign Up For ThisAdvanced Occupational Therapist Sharon Tootell and Operational Service Manager Alison Couch, from Humber Teaching NHS Foundation Trust, discuss how living well with young onset dementia and access to support are key.
2023-07-1845 minI Didn’t Sign Up For ThisEpisode 5 : Fiona Andrews - I Didn’t Sign Up For ThisFiona Andrews, from Dementia Forward's Community Liaison Team, talks about the importance of making everyone more aware of young onset dementia and how to support those living with the condition.
2023-07-1746 minI Didn’t Sign Up For ThisEpisode 8 : Sarah Nelson - I Didn’t Sign Up For ThisNutritionist Sarah Nelson talks about how healthier food choices can have a positive impact on people living with dementia.
If you would like any further information about what Sarah has discussed in this podcast, please feel free to drop her an email at sarahnelsonnutrition@gmail.com
Sarah is more than happy to help.
2023-06-0540 minI Didn’t Sign Up For ThisEpisode 9 : Katherine Hickman - I Didn’t Sign Up For ThisWe chat to Dr Katherine Hickman about how GPs can support people with young onset dementia and their carers.
2023-06-0543 minI Didn’t Sign Up For ThisEpisode 7 : Peter Deaman - I Didn’t Sign Up For ThisWe chat to Peter Deaman who is supporting Dementia Forward's U & Me campaign to raise awareness of young onset dementia.
2023-06-0529 minI Didn’t Sign Up For ThisEpisode 6 : Jill Quinn - I Didn’t Sign Up For ThisWe chat to Jill Quinn MBE, CEO of Dementia Forward, about how the charity started, the challenges faced, the supportive community which Dementia Forward has created and how carers can get help and advice to navigate living with people who have young onset dementia.
2023-05-1741 minI Didn’t Sign Up For ThisEpisode 4 : Identity - I Didn’t Sign Up For ThisIdentity is so important to all of us and young onset dementia chisels away at one's identity, leading to changes in many ways.
2023-05-1742 minI Didn’t Sign Up For ThisEpisode 3 : Appropriate - I Didn’t Sign Up For ThisWe need age and stage appropriate care. We chat about what's on offer and talk through appropriate care activities which our partners would love!
2023-05-1738 minI Didn’t Sign Up For ThisEpisode 2 : Behaviour - I Didn’t Sign Up For ThisHow behaviours can change in people living with young onset dementia and how we need to be flexible and make changes ourselves.
2023-05-1733 minI Didn’t Sign Up For ThisEpisode 1 : How It Started - I Didn’t Sign Up For ThisJo and Emma discuss their motivation to create the podcast and share their experiences of how difficult and how long it can take to get a diagnosis of young onset dementia. The clock is ticking, time is precious and valuable, and could be used more wisely.
2023-05-1748 min
I Didn’t Sign Up For ThisEpisode 0 : Preview - I Didn’t Sign Up For ThisA carers’ and friends’ guide to living with young onset dementia.
2023-05-1701 min