Shows
I'm Dying to Tell YouSupermilk's Jake Popyura: Navigating ALS with Humor & MusicThis episode follows the powerful and unexpectedly uplifting story of Jake Popyura, a musician and multi-instrumentalist in the indie rock band Supermilk, who was diagnosed with ALS at just 38. Rather than despair, Jake felt relief—finally understanding the cause behind years of unexplained symptoms. As his physical abilities shift, Jake and his bandmates have chosen adaptation over retreat, pouring their energy into their recent album Lazy Teenage Boasts. Balancing terminal illness, mental health challenges, and a relentless creative drive, Jake leans into dark humor and online community to navigate the journey. His story is a testament to resilience, reinvention, an...2025-08-0848 minI'm Dying to Tell YouLife After ALS: A Journey of Healing and HopeThe emotional aftermath of losing someone to ALS is a journey rarely discussed but vitally important to understand. Caroline, Jill, Jenny, and Deb—four remarkable women who lost husbands and a sister to ALS—share their paths through grief toward finding purpose and even joy again. Years after their losses, these women formed "Antiques Roadshow for ALS," a cycling team of women over 60 who donned pearls, vintage clothing, and tutus while raising over $28,000 for ALS TDI's research. Their stories reveal the complex reality of grief—how it never truly ends but evolves into something you learn to carry alongside new expe...2025-07-1758 minI'm Dying to Tell YouLove, Legacy & Lou Gehrig Day: A Team Effort Against ALSIn this heartfelt episode, we meet the individuals behind Always Lifting Spirits, Chair Force 1 Foundation, Operation Ramp It Up, Que4Care and the Cincinnati Reds — a community who turned their ALS grief into life-changing support for others. From accessible vans to wheelchair ramps to lift chairs and patient care, these local nonprofits are honoring those they've lost to ALS, by providing crucial support to ALS families. Although their capacities so far only allow them to meet the needs of local families, it's a beautiful example of what happens when we lead with love, faith and community. These four Ohio/Kent...2025-05-2059 minI'm Dying to Tell YouElin Adcock - Her Journey Facing ALS and FTD TogetherHere, Elin Adcock shares her powerful journey through her husband’s ALS and frontotemporal dementia (FTD) diagnoses—and how she’s now leading the charge to support families facing the same fight. When Elin's husband, Larry was diagnosed with both ALS and FTD, her world changed forever. In this episode, Elin shares how she navigated the overwhelming challenges of caregiving through two devastating and progressive diseases—often without a clear roadmap or coordinated support. After her husband’s passing, Elin turned her grief into action, becoming a fierce advocate for families facing similar dual diagnoses. Her story is one of love, res...2025-05-0649 minI'm Dying to Tell YouQuestions About ALS? There's an App for That: Roon!When faced with an ALS diagnosis, finding trustworthy information shouldn't add to your burden. This episode introduces a groundbreaking solution born from one son's love for his father.Vikram Bhaskaran takes us through the painful journey that sparked innovation – watching his father battle ALS in India while struggling to access reliable information and expertise. The stark contrast between his Silicon Valley tech job, where brilliant minds created seamless user experiences, and the "dark ages" of health information access, drove him to action. The result? ROON.Roon addresses the three dimensions of living with ALS – medical know...2025-04-0250 minI'm Dying to Tell YouCarrying an ALS Gene: Mindy Uhrlaub’s Story of Hope & ActionWhat happens when you learn that your DNA carries the same mutation that led to a loved one’s battle with ALS? In this episode, I sit down with Mindy Uhrlaub, who discovered she is a carrier of the C9orf72 gene—the most common genetic cause of ALS and Frontotemporal Dementia. Mindy shares her emotional journey of genetic testing, the weight of living in the unknown and the unique challenges that come with being pre-symptomatic.We dive into the mental and emotional impact of her hereditary disease, the stigma surrounding genetic conditions, and how humor, advocacy and...2025-03-0549 minI'm Dying to Tell YouI AM ALS Turns 6: Community Teams Inspiring ChangeWelcome to "I'm Dying to Tell You," where we shine a light on resilience and hope. In this special episode, we’re celebrating six years of I AM ALS, an organization created for patients, by patients.Why is this so important? Because for far too long, those most impacted by ALS weren’t leading the charge in our collective mission for a cure. But I AM ALS changed the game. By putting patients at the forefront, they are not only better equipped to serve the ALS community, but we’re operating on the ALS clock—pushing for accelerat...2025-01-281h 06I'm Dying to Tell YouFashion, HOPE, ALS Reversals: All with Dr. Richard BedlackHere I chat with Dr. Richard Bedlack, a neurologist known not only for his relentless ALS research but also for his unique style. This episode unfolds the fascinating story of how an encounter with legendary designer Manuel Cuevas led to the creation of a special jacket that embodies Dr. Bedlack's fight against ALS. We also celebrate the powerful alliances formed through advocacy, as highlighted by a heartfelt recognition from Zac Brown Band's John Driskell Hopkins. I loved hearing him talk about how fashion, music and medicine are all playing a part in the battle against ALS.For 24...2025-01-151h 03I'm Dying to Tell YouFacing ALS with Resilience: Johnny Rodriguez's Inspiring JourneyImagine facing a life-changing ALS diagnosis and tackling it with resilience and positivity. That’s what Johnny Rodriguez, a 35-year-old high school lacrosse coach, husband, and father, has done. Johnny’s story is one of inspiration, determination, and the power of community. From playing lacrosse in Hawaii to mentoring athletes at Mater Dei High School in Santa Ana, California, he pushes the boundaries of what’s possible with ALS.Johnny’s support network and the lacrosse community have been vital in fueling his fight. As a coach, he not only develops athletes but also teaches life skills and resi...2024-12-1254 minI'm Dying to Tell You"Clayton Rakes" - Two Siblings’ Mission to Honor Their Dad and Fight ALSWhat if two young siblings could inspire an entire community to rally against a devastating disease? Brady and Brooklyn Yozwiak from Hudson, Ohio, are doing just that with their initiative, Clayton Rakes. Their story begins with a deeply personal journey, motivated by their father Chris's battle with ALS. Sadly, Chris passed away in early 2024, but these incredible kids, aged just 11 and 8, have turned their grief into action by raising substantial funds for ALS research through their leaf-cleaning enterprise. Tune in to learn how their heartfelt mission is making waves, proving that age is no barrier to making a significant...2024-11-2537 minI'm Dying to Tell YouEpisode 100: A Chat with 100-Year-Old Mildred KirschenbaumTo celebrate Episode 100 of this podcast, here I chat with 100-year-old Mildred Kirschenbaum. Mildred has become a social media star and is happily sharing some life lessons of her ten decades. She not only became an author at 100, Mildred entertains over 100,000 on TikTok and Instagram. Her videos have been featured on mainstream media outlets like the Today Show, CBS and Fox. Mildred and her daghter Gayle collaborated on a book, Mildred’s Mindset: Wisdom from a Woman Centenarian, a 76-page self-published book that melds anecdotes, photos, and life advice. In Mildred's book, readers embark on a journey through the extraor...2024-10-0143 minI'm Dying to Tell YouBroadway's Aaron Lazar on Making the Impossible, Possible ... Even with ALSIn this conversation, Aaron Lazar shares how he discovered a new life purpose after being diagnosed with a terminal illness, ALS. Aaron has been in the spotlight for over two decades in his successful career as a singer, actor and now speaker and advocate. Aaron took a couple years before going public with his ALS in order to discover how he would shape and control his future. As a result, Aaron is currently rebuilding his life to achieve his new impossible dream which is healing in face of unspeakable adversity. Here, Aaron talks about his perspective on the importance of a...2024-09-111h 00I'm Dying to Tell YouZac Brown Band's John Driskell Hopkins: An Update on ALS, Life and MusicGrateful to catch up with John Driskell Hopkins (Hop) again to see how he’s doing with his ALS diagnosis. About 2.5 years after being told he had ALS, John continues to perform with the Zac Brown Band. Despite seeing some progression of the disease, Hop is living a full and joyful life. He's busy creating new music, being a family man and promoting Hop On A Cure, the foundation he & his wife, Jennifer started to accelerate ALS research. Hop shares how ALS is affecting him & what it’s like living out this journey in the public eye. He updates us on his...2024-08-061h 01I'm Dying to Tell YouGoode and Faithful Servant: A Chat with Kerry GoodeSo grateful to have this conversation with Kerry Goode, former NFL (National Football League) player who was diagnosed with ALS in 2015. Kerry was a running back at the University of Alabama, Tampa Bay Buccaneers, Miami Dolphins and later a strength and conditioning coach also in the NFL. So he knew something was wrong when he couldn’t pick up a box. Here, Kerry shares what he's feeling about having been so physically strong, being able to bench press 400 pounds & squat 800 pounds to now not even being able to pick up a pencil. He lets us know how he's able to ma...2024-07-1031 minI'm Dying to Tell YouCould it be ALS? - Bob Scannell on ALS MisdiagnosisIn this episode, I sit down with ALS advocate Bob Scannell, whose personal journey through his wife's battle with ALS has fueled his mission to raise awareness about the disease. After enduring a series of misdiagnoses before finally receiving an ALS diagnosis, Bob is now at the forefront of a campaign to educate both the healthcare industry and the public on the critical importance of early and accurate ALS diagnosis. Join us as Bob shares his powerful story and discusses the urgent need for improved ALS awareness and diagnostic practices. Thank you for listening in. Hugs, Lorri...2024-06-1143 minI'm Dying to Tell You“Staying Loudly” - Sam’s Positive Mindset with ALSIn this compelling podcast episode, I delve into an inspiring conversation with Sam Telgkamp, a resilient 27-year-old battling ALS. Despite her inability to speak due to the progressive nature of the disease, we explore her journey and outlook on life with grace and gratitude at the forefront. Sam's unwavering positivity and resilience shine through as she discusses the challenges of living with a terminal illness, navigating her speech device solely with her eyes. Her perspective offers a poignant reminder of the power of perspective and the resilience of the human spirit in the face of adversity. Sam shares her heart & e...2024-05-0755 minI'm Dying to Tell You37-year-old Sara Bennett: Life, Death & Parenting with ALSIn this episode of ""I'm Dying To Tell You,"" I meet up with the resilient Sara Bennett, from Columbus, Ohio. At just 36 years old, Sara was confronted with a devastating diagnosis: ALS. In a candid and deeply moving conversation, Sara opens up about her extraordinary journey, bravely navigating the intricate balance of life as a mother to two young sons, aged 5 and 7, while grappling with the harsh reality of a terminal illness. With unwavering courage, Sara shares her poignant insights, offering listeners a profound glimpse into the resilience of the human spirit in the face of unimaginable challenges. Sara shar...2024-04-1753 minI'm Dying to Tell YouLOVE & SUPPORT from ALS Family of FaithIn the first episode of Season 5, I delve into the inspiring outreach of ALS Family of Faith with guests Dawn Delaloye and Tanya Hageman. Listen in as they illuminate the profound impact of their nonprofit organization, dedicated to providing free emotional and spiritual support to individuals and families living with ALS. From patients battling the disease to their devoted caregivers and even friends and family, ALS Family of Faith extends a compassionate hand to all affected by this devastating disease. In a time often overshadowed by darkness and isolation, Dawn and Tanya shed light on the transformative power of...2024-03-1353 minI'm Dying to Tell You20 Years Living with ALS: A Special Q&A with My Sons Co-HostingWhen I was initially diagnosed with ALS, I was given the typical prognosis of 2-5 years to live. That was 20 years ago. Today, alongside my two sons, Paul and Christian, we reflect on this journey, answer listener questions, and explore the lessons learned along the way. I answer your questions about life with ALS, my thoughts on the future and advice to others finding themselves in the face of adversity. Then, I find out what questions my sons have for me after 20 years with ALS. Although their questions were tough to answer, I think it was good for all of u...2024-02-131h 11I'm Dying to Tell YouRebuilding Together After ALS Loss: Juliet Taylor & Tim AbeskaIn this episode I chat with Juliet Taylor & Tim Abeska who each lost spouse to ALS. They met in a virtual support group for widow & widowers. Realizing they lived in the same area and had common interests, they met for coffee and their relationship grew from there. Today they encourage each other to love & honor their late spouse, enjoy life and be active ALS advocates to help end ALS. Here, Juliet & Tim share about their late spouses, Jeff Sarnacki & Mary Ann Abeska. We talk about how they are supporting each other’s grief journey and what advice they have for ot...2024-01-0945 minI'm Dying to Tell YouRebuilding Together After ALS Loss: Juliet Taylor & Tim AbeskaIn this episode I chat with Juliet Taylor & Tim Abeska who each lost their spouse to ALS. They met in a virtual support group for widow & widowers. Realizing they lived in the same area and had common interests, they met for coffee and their relationship grew from there. Today they encourage each other to love & honor their late spouse, enjoy life and be active ALS advocates to help end ALS. Here, Juliet & Tim share about their late spouses, Jeff Sarnacki & Mary Ann Abeska. We talk about how they are supporting each other’s grief journey and what advice they have f...2024-01-0545 minI'm Dying to Tell YouCommunity Building Amidst ALS: Karen (thekaregiver) & Tony VickHere you’ll meet Tony and Karen Vick. Tony, a brave U.S. Veteran, has been living with ALS for the past 6 years. Karen, his dedicated wife, serves as his full-time caregiver, showcasing the strength of their bond. Despite facing the challenges of ALS, Tony and Karen lead a fulfilling life and share their journey on Karen's Instagram account, https://www.instagram.com/thekaregiver/. After realizing how many young caregivers are out there, they decided to share more on the day-to-day realities, triumphs, and tribulations of living with ALS. They hope to help other caregivers and individuals grappling with illness...2023-12-1252 minI'm Dying to Tell YouHow to Find Gratitude During Hard TimesIn this episode, I talk about having gratitude even during hard times. I recorded this on Thanksgiving Day. Thanksgiving encourages us to pause and express gratitude for the positive aspects of our lives. For me, It always fosters a sense of gratitude, reflection, and appreciation for the blessings and relationships in my life. This morning I woke up being extra grateful for all I have, for the relationships that I am a part of and for the extra time that I have been given. Here, I hope to encourage you to seek out GRATITUDE every single day. I also pass a...2023-11-2842 minI'm Dying to Tell YouAmanda Stevens: Wife, Mom, Caregiver & Founder of AxeALSHere I chat with Amanda Stevens, wife & caregiver to Eric Stevens – former NFL player & L.A. Firefighter, both introduced to us on The Ellen DeGeneres Show in 2019. Amanda and Eric were married only one month when Eric was diagnosed with ALS at a young 29 years old. We fell in love with this young couple as they appeared on the Ellen show three times and even were on to announce that they were expecting a baby. In the past 4 years since receiving Eric's ALS diagnosis, Amanda has dedicated her life to caring for her husband and their daughter. Amanda and Eric h...2023-11-1349 min
Brain & LifeFinding Strength in ALS Advocacy with Podcaster Lorri Carey This week Dr. Daniel Correa speaks with podcaster and advocate Lorri Carey. Lorri shares her story of being diagnosed with amyotrophic lateral sclerosis (ALS) and how her family has joined advocacy efforts for people in the community living with the condition. Next Dr. Correa sits down with returning medical expert, Dr. Stephen Goutman, an assistant professor in the Department of Neurology and director of the Pranger Amyotrophic Lateral Sclerosis Clinic and associate director of the ALS Center of Excellence at Michigan Medicine. Dr. Goutman discusses the different types of ALS and offers advice on approaching the conversation of possible...2023-10-2638 minI'm Dying to Tell YouTeen Actor Lance Alexander: "From Junk to Hunk"In this episode I talk to Lance Alexander, a teen Hollywood actor from my hometown in Ohio. You might know Lance from his role as Elvis, a recurring role on the award-winning Netflix show “Family Reunion.” Like many, during the Pandemic of 2020, he was isolated and fighting depression and decided to fight back. Lance had a public struggle of being overweight and bullied most of his childhood. I love that he is inspired to share his journey. Here Lance shares his motivation for creating his book and campaign, “From Junk to Hunk.” Lance shares how the key to eliminating “junk” is acknowl...2023-10-2445 minI'm Dying to Tell YouRadio Legend Jim Scott: Living Positively with ALSHere my husband Paul & I talk to long-time radio personality Jim Scott from Cincinnati. He has been heard all over the country during his 55+ years on the air, mostly on 700 WLW Radio. He simply is one of the most giving & positive people I know. Although most of his life has been spent using his voice in his radio career, he is now battling a disease that is affecting his voice and more. Jim was diagnosed with ALS, in 2022. Even while living with a fatal disease with no cure, Jim continues to try to “spark joy” with those that need it most. ...2023-10-1244 minI'm Dying to Tell YouMilitary Veteran Kate Peters Battling the Enemy: ALSHere I chat with military veteran of both the U.S. Marine Corps and the U.S. Navy, Kate Peters. She served in the USMC 2007-2015, USN 2015-2020 and served in Operation Iraqi Freedom. Kate is a mother of two boys, three and five and was medically retired from the military after being diagnosed with ALS, a fatal disease that has no cure. She was diagnosed with ALS in 2020 a few weeks after her second son was born, after about 2 and 1/2 years of symptoms and a misdiagnosis. I talk to Kate about her military experience, the connection between ALS & the m...2023-09-2644 minI'm Dying to Tell You"Hope Fights Back" - Andrea Peet & Meredith AtwoodHere I chat with a young woman living with ALS, who defies all odds by finishing fifty marathons and, in turn, inspires people to “go on, be brave.” I'm absolutely thrilled to catch up with Andrea Lytle Peet again and meet Meredith Atwood in this chat. Andrea and Meredith coauthor Andrea's new memoir titled, "Hope Fights Back." Andrea was thirty-three years old—newly married and a triathlete—when she received the death sentence of an ALS diagnosis (also known as Lou Gehrig's disease). After grappling with the fact that she will likely become paralyzed and die within two to five years...2023-08-2248 minI'm Dying to Tell YouTackling Tough Conversations About ALS (Part 2/2)Here I continue my talk with Amy, Jim and Matt who are living with ALS about having the toughest conversations of their lives. When you’re living with a terminal illness that doesn’t have a cure and typically gives you just a few years to live, like ALS, the most difficult conversations come up quick. In this Part 2 episode, I continue chatting with Amy Stiens, Jim Plews-Ogan and Matt Klingenberg. I am grateful for their willingness to chat about how they were told they had a terminal illness with no cure, how they told their children and friends and even...2023-07-2542 minI'm Dying to Tell YouTackling Tough Conversations About ALS (Part 1/2)When you’re living with a terminal illness that doesn’t have a cure and typically gives you just a few years to live, like ALS, the most difficult conversations come up quick. In this episode, I bring together 3 others who are living with ALS to talk about their experiences with these tough conversations. Here, I’m talking to Amy Stiens, Jim Plews-Ogan and Matt Klingenberg. I am grateful for their willingness to chat about how they were told they had a terminal illness with no cure, how they told their children and friends and even the toughest conversations yet. Am...2023-07-1250 minI'm Dying to Tell YouPower of Positivity with Child Abuse Survivor, Courtney CirabisiIn this episode you'll hear my chat with Courtney Cirabisi, a 30 year old who lives in Bakersfield, California. She became reliant on a wheelchair for everyday mobility after she was child abused by her dad when she was 9 months old, resulting with a spinal cord injury. I've been following her journey as she shows us that life doesn’t stop after you have been abused and have lost the ability to walk. Courtney shares how she believes the mind is the most important thing a person can have. With that knowledge she is able to live a positive life after...2023-06-2644 minI'm Dying to Tell YouQ&A: Young Adults Living with ALS (Part 2/2)May is ALS Awareness month. So in the spirit of increasing awareness of ALS, a terminal illness with no cure, I continue my chat with 3 others living with ALS. We answer the questions sent in by listeners of this podcast about what it's like being a young adult and living with a terminal illness. My guests, Ashley Rivera and Mira Hudson were diagnosed at 24 and James Smith was diagnosed at 36. They dig deep and open their hearts to answer your questions like, "Can you share about the moment you were diagnosed with ALS?" "How do you find the strength day i...2023-05-1846 minI'm Dying to Tell YouQ&A: Young Adults Living with ALS (Part1/2)In this special Q&A episode, 3 young adults answer questions you sent in about ALS and living with a terminal illness. May is ALS Awareness month. So in the spirit of increasing awareness of ALS, a terminal illness with no cure, I chatted with 3 others living with ALS. We answer the questions sent in by listeners of this podcast about what it's like being a young adult and living with a terminal illness. My guests, Ashley Rivera and Mira Hudson were diagnosed at 24 and James Smith was diagnosed at 36. They dig deep and open their hearts to answer your quest...2023-05-0956 min
The Kyle Carpenter Podcast#16 - I'm dying to tell you with Lorri CareyAfter being diagnosed with ALS and two and a half years left to live, Lorri Carey has, now, been living life to the fullest for 19 years. Through her profound perspective and appreciation for life, Lorri shares her inspirational journey with the complex and fatal disease of ALS.Lorri has devoted the time she has left to her podcast, I’m Dying To Tell You, where she shares the stories of people who inspire her.ALS (Amyotrophic Lateral Sclerosis), also know as “Lou Gehrig’s disease”, is a progressive neurodegenerative disease that, over time, affects the nerve ce...2023-05-021h 11I'm Dying to Tell You"The Wisdom of Morrie" with His Son Rob SchwartzOn this episode of I'm Dying To Tell You Podcast, I talk to Rob Schwartz son of Morrie Schwartz from the classic book Tuesdays with Morrie. We chat about the newly released book, “The Wisdom of Morrie.” The book was written by Morrie Schwartz, recently edited and released by Rob. The number one bestseller Tuesdays with Morrie was written from conversations with author Mitch Albom after Morrie was sick and knew he was in the process of dying from ALS. However, this newly released book, The Wisdom of Morrie was written by Morrie before he was diagnosed ALS. Rob rediscover...2023-04-2442 minI'm Dying to Tell YouZac Brown Band's John Driskell Hopkins & His Battle with ALS Here I sit down with Zac Brown Band founding member, John Driskell Hopkins who is using his stage to help bring awareness to ALS, also known as Lou Gehrig’s Disease. John was diagnosed with ALS, a terminal illness with no cure in 2021. John, also known as Hop, decided to go public with his ALS hoping his reach could result in awareness, action and ultimately support for an ALS cure. He and his wife, Jennifer formed the Hop On A Cure organization which supports promising ALS research. In this episode, I chat with John about, his start in music, how he...2023-04-111h 02I'm Dying to Tell YouFighting ALS with Humor: Brooke EbyHere I talk to 34 year old TikToker, Brooke Eby who is using humor and social media to navigate life after being diagnosed with a fatal disease. Brooke was diagnosed with the terminal illness, ALS, at a young 33. With the support of her family, friends, and co-workers, Brooke's been able to laugh in the face of ALS by using humor on social media.. Brooke created a TikTok account @LimpBroozkit to help explain what she was going through without making it a heavy conversation. Not only is creating TikTok videos about ALS a case of "laughter is the best medicine" right now...2023-03-2852 minI'm Dying to Tell YouJohn Carthum: Outliving ALS By 27 YearsHere I talk to someone who has ALS for over 25 years. I reconnect with a former colleague from Kraft Nabisco, John Carthum. It was a few decades ago when I heard John left the company for medical reasons. I never knew what hand he was dealt that made him have to leave his career at such a young age until I was diagnosed with ALS in 2004. That’s when I learned that it was also ALS that John was diagnosed with in 1995. Now he is outliving the typical 2 to 5 year death sentence that comes with ALS, also known as Lou G...2023-03-0941 minI'm Dying to Tell You4 Easy Ways To Spread More LoveIn this episode, it's just ME talking about LOVE :)Here I mix it up a little and talk about what's on my heart. This releases on Valentines Day, so talking about LOVE ... specifically 4 Easy Ways To Spread More Love. I talk about the first few things that came to mind, Listen, Words, Time and Action. I thought to myself, these seem so simple but realized I always need reminders, so why not share? We all have the power to show others they are loved and not alone. There are no limits on love with those who are close or e...2023-02-1023 minI'm Dying to Tell YouBrian Wallach & Sandra Abrevaya: Action Born from HopeHere I chat with Brian Wallach and his wife Sandra Abrevaya, co-founders of I AM ALS and Synapticure. At 37, Brian was diagnosed with ALS—on the same day he and he and Sandra brought their second daughter home from the hospital. In an instant, everything changed. They went from being a couple only a few years removed from both working at the White House to not knowing if Brian would live to see his 40th birthday. An otherwise healthy former college athlete, Brian expected to find a system built to help him and Sandra deal with this new reality. Instead...2023-01-2552 minI'm Dying to Tell YouKylan Morris and Carrying on Her Mama's LegacyHere I talk to Kylan Morris, 25, who recently lost her mother to ALS about how she's already following her mama's marching orders to help those battling ALS. "Please take my baton & run faster & farther." That was Sandy Morris's last twitter message to her fellow advocates fighting for ALS cures with her. Sandy Morris passed away on August 28, 2022 at age 56 from ALS. I chat with Kylan as she shares what it was like losing her mom at such a young age. Just a few months after losing her mama, Kylan was eager to share what she learned from her mom, her c...2023-01-1144 minI'm Dying to Tell YouINSPIRED REPLAY: "Words to Live By - a Chat with Jamie and Scott Smith"I knew I wanted to do an episode about HOPE, heading into the new year. On December 8th we lost our friend Scott Smith and quickly I knew his words were all I needed to share. This episode is an inspired replay. In memory of our dear friend Scott Smith, I added a new intro, a message from Jamie and then share my original chat with Scott and Jamie Smith. Originally released in 2021, as they were fighting Scott's ALS, Scott and Jamie shared their hearts to encourage others. Silver Linings, Courage Under Fire, Nothing to Lose and Riding On Hope ar...2022-12-2149 minI'm Dying to Tell YouMichael Platt: Teen Baker Fights Hunger with "Sweets for a Cause"So happy to talk to 17 year old Michael C. Platt, a teen baker, social entrepreneur, food-justice advocate and author. He inspires me with his giving spirit and passion to help others. Michael recently released his first cookbook to bring awareness to food and poverty. His book, Michaels Desserts, Sweets for a Cause aims to build skills in the kitchen, celebrate history, and inspire activism. We also chat about his baking company, Michael's Desserts, his one-for-one model, his non-profit P.L.L.A.T.E. and his inspiration behind it all. This young teen has such a beautiful life perspective at a...2022-12-1330 minI'm Dying to Tell YouMichael Platt: Teen Baker Fights Hunger with "Sweets for a Cause"Here I chat with a 17 year old who is on a mission to end food insecurity, in a fun and creative way. So happy to talk to Michael C. Platt, a teen baker, social entrepreneur, food-justice advocate and author. He inspires me with his giving spirit and passion to help others. Michael recently released his first cookbook to bring awareness to food and poverty. His book, Michaels Desserts, Sweets for a Cause aims to build skills in the kitchen, celebrate history, and inspire activism. We also chat about his baking company, Michael's Desserts, his one-for-one model, his non-profit P.L.L.A...2022-12-0630 minI'm Dying to Tell YouLuka & the Lights: Introducing the First Robot with ALSIn this episode I chat with those who created Luka, the first robot to have ALS and hear the inspiration behind it all. I chat with the team that is bringing the first robot with ALS to the big screen. The film, Luka & the Lights, is inspired by the real-life of Sascha Groen and her husband Anjo Snijders who is battling ALS. Sascha created the robot character Luka and wrote and illustrated his story to help explain to their children what’s happening with their dad who was diagnosed with ALS. Also in our chat is Toby Cochran, Director and Adr...2022-11-2146 minI'm Dying to Tell YouHow Cancer Changed Their Lives for the Better: Michael & Ashlee CramerIn this episode, hear 21 year old Michael Cramer who was given just eight months to live share his journey on beating a rare and aggressive blood cancer. At age 19, Michael had been an athletic, healthy teenager. He was a surfer and sailor, rarely sick and had never been hospitalized. A routine blood test led to a life-changing cancer diagnosis. After Michael was diagnosed with Hepatosplenic T-cell Lymphoma (HSTCL) Michael and his mom Ashlee Cramer were terrified. They knew Michael might not survive and could only have just eight months to live. That was in July 2020. Now Michael is inspiring others w...2022-11-0842 minI'm Dying to Tell YouBehind the Lab Door: ALS TDI's Passion & Hope to End ALSHere I am on location in Boston to bring you a behind the scenes look and my weekend experience with the ALS Therapy Development Institute (ALS TDI) the world's foremost ALS drug discovery lab focused solely on ALS. I was so grateful to tour the lab and attend the ALS TDI Summit which was a day of updates on the progress of ALS Research. I wrapped up the weekend by attending their White Coat Affair gala which is a powerful evening that brings together and honors those living with ALS and remembers those whom we’ve lost.I catch...2022-10-251h 09I'm Dying to Tell You20-year-old Emma & her 20-year ALS Warrior & Grandfather, "Grandy"In this episode, I talk to Emma Terry who is a an ALS caregiver and a participant in the Miss America organization with her platform being ALS. I catch up with this college student at the University of Alabama at Birmingham who is an ALS advocate, caregiver and granddaughter of ALS warrior, Stewart Simpson. Emma recently turned 20 and her grandfather "Grandy" was diagnosed with ALS right before she was born. Emma has a special relationship with her Grandy as all she's known is a lifetime of ALS with him. Even as a full-time college student, she continues to be a car...2022-10-1144 minI'm Dying to Tell YouLori Larson Heller: Moving Forward Instead of Moving OnHear my conversation with Lori Larson Heller as we talk about love, loss and moving forward instead of moving on. Lori is a writer, speaker, fierce ALS advocate, and a widow. She was in a season where life was going better than she could of planned. Lori had a husband who was her best friend and soul mate, the absolute love of her life. Then without warning, her plan changed. On September 6, 2018 … her husband Jim Heller was diagnosed with a terminal illness, ALS. She left her successful commercial real estate investment career and became a full-time caregiver that day. After losi...2022-09-2752 minI'm Dying to Tell YouKatrina Byrd on Love, Caregiving and ForgivenessHere I chat with ALS advocate and boa flouncer Katrina Byrd about her experience as a caregiver and what led her to write, "The Language of Forgiveness." Katrina is a writer, playwright and ALS advocate, of Jackson, Mississippi. She's an inspiration to many as she is a perfect example of courage, love, acceptance and forgiveness. Katrina is legally blind and is no stranger to life obstacles of her own. Yet, she cared for her partner, Dora Robertson who died from ALS just 76 days after being diagnosed with the disease. Katrina also goes by "The Boa Flouncer" to help others going...2022-09-1443 minI'm Dying to Tell YouINSPIRED REPLAY: "Tuesdays with Morrie" Author, Mitch AlbomThis month is the 25th anniversary of the American classic book, "Tuesdays with Morrie." Here I'm resharing my precious conversation with the author Mitch Albom. We talk about love, faith, living and dying and the life lessons from his professor, Morrie Schwartz. In this episode Mitch Albom shares the backstory of how he met his former professor Morrie Schwartz and how their relationship developed. Mitch shared Morrie's life lessons in the best-selling memoir of all time, Tuesdays with Morrie. Today, the book has sold 17 million copies in more than 50 editions around the world. Mitch and I discuss some lessons that M...2022-08-2551 minI'm Dying to Tell YouCycle of Lives with David RichmanListen in to my conversation with David Richman who rode his bike 5,000 miles to explore the emotional journey of cancer. After losing his sister to brain cancer, David was led to do something incredible that can inspire us all. In this chat we talk about his intense and unique fundraiser in his sister's memory which was writing a book, Cycle of Lives. This book is the result of 15 people’s stories, 5,000 miles and a journey through the emotional chaos of cancer. David shares what motivated him to deeply explore emotional journeys with cancer and the various traumas in their lives t...2022-08-0952 minI'm Dying to Tell YouSarah Nauser Fights ALS to Serve and Protect OthersListen in to my conversation with former Kansas City police officer, Sarah Nauser as we chat about life and love while living with a terminal illness. For eight years, Sarah earned high praise as a young, vibrant, rising star within the Kansas City Police Department. She was living her dream until she was told she had ALS at the young age of 29. Sarah, also a former body builder continues to be strong and determined. In our conversation, we talked about life before ALS, her dream of being a police officer, her love for the Kansas City Royals, finding love after...2022-07-2744 minI'm Dying to Tell You"No You Won't Bully Me" - DJ Annie Red, Teen ActivistHere I chat with 13 year old Samirah Horton, aka DJ Annie Red who uses her music to spread an anti-bullying message. This award winning DJ is also a rapper, author, motivational speaker and anti-bullying activist from Brooklyn, New York. From the age of 6, Samirah was picked on by her peers for the things that made her different—her raspier voice, her unique sense of style, and her unwavering confidence in herself. The way she decided to fight back was to use her love of music and make sure other kids knew they weren’t alone. Now she’s combining her musical t...2022-07-1237 minI'm Dying to Tell YouThe Lloyd Brothers: Racing for ALSHere I catch up with David & Scott Lloyd, the brothers who created Racing for ALS. Growing up, David and Scott loved racing and always talked about racing cars together. As life happened, that desire got put to the side, yet they kept putting off their dreams of auto racing. That all changed in 2017, when David was diagnosed with ALS. They realized quickly that their dream of someday buying cars and going racing for fun needed to happen now. As they did that to simply have fun together, the generous people of the racing community quickly showed them that their racing...2022-06-2842 minI'm Dying to Tell YouGiving Back His Father's Independence by Creating LifeDriveIn this episode, I chat with college student John Sexton, CEO and Founder of LifeDrive. What started as an idea to help his dad who has ALS, John now creates adaptive technology for people with disabilities in order to give them more independence. John is an upcoming senior at the University of Notre Dame and next drum major for the Notre Dame Band. All while being a full-time student and band member, John has been fighting for his father's independence. John's father, Shawn is battling ALS and John has been working for over 4 years to give him back freedom that...2022-06-1344 minI'm Dying to Tell YouWhat You Want to Know, But Were Afraid to Ask (Part 2/2)In honor of ALS Awareness Month, I asked the listeners, "What do you want to know about ALS & living with a terminal illness, but you're afraid to ask? " More questions than I could imagine came in, so I asked a few friends living with ALS to help answer these tough questions. So in this episode, I chat with Sunny Brous, Kate Nycz, Maceo Carter and Kevin Rowland as we go through each question submitted by listeners of this podcast. Between us, our ALS diagnosis ages vary from 27- 47 and years living with ALS spans from 2 to 18 years, so it was g...2022-05-1255 minI'm Dying to Tell YouWhat You Want to Know, But Were Afraid to Ask (Part 1/2)In honor of ALS Awareness Month, I asked the listeners, "What do you want to know about ALS & living with a terminal illness, but you're afraid to ask? " More questions than I could imagine came in, so I asked a few friends living with ALS to help answer these tough questions. So in this episode, I chat with Sunny Brous, Kate Nycz, Maceo Carter and Kevin Rowland as we go through each question submitted by listeners of this podcast. Between us, our ALS diagnosis ages vary from 27- 47 and years living with ALS spans from 2 to 18 years, so it was g...2022-05-1053 minI'm Dying to Tell YouThe Miracle League with Kim Nuxhall: Giving Everyone a Chance to PlayIn this episode, I talk to Kim Nuxhall who created the Joe Nuxhall Miracle League so that everyone with any challenge can play the game of baseball. Kim is the Chairman of the Board of Directors for the Joe Nuxhall Miracle League. He joins the podcast to tell the powerful story and mission behind his father's legacy projects. Kim's dad, Joe Nuxhall, was the youngest player to ever pitch in the MLB at the ripe age of 15. After his professional baseball career, Joe joined Marty Brennaman in the radio broadcast booth for the Cincinnati Reds, forming a dynamic 31-year duo t...2022-04-2538 minI'm Dying to Tell YouFinding Love After Loss with Alison Burell & David StanleyHere I chat with Alison Burell and David Stanley, who each lost the love of their life way too early. Alison's husband Cory Burell, passed away from ALS at the age of 35 after a valiant fight with familial ALS. David's wife Angela Stanley, died from ALS at a young 50 years old. Through the ALS community, Alison and David met after they each lost their person. Without even searching for love, their friendship grew and love found them. Now they are building a new life together and sharing their journey through their new podcast, "I Lost My Person." Through the podcast...2022-04-1243 minI'm Dying to Tell YouHost "Ask Me Anything" - Answering Your QuestionsTo wrap up Season 2, I asked my listeners for questions and here I answer each of them in this "Host Ask Me Anything" episode. This was created by YOU, the listener with questions from light to serious. So many listeners asked what they were curious about. I'm so grateful for all the questions that came in, some that really made me reflect and others that made me laugh. I love that my listeners feel comfortable asking me anything. Thanks for being on this journey with me and always letting me share. I hope you enjoy and invite a friend in for...2022-02-2328 min
Second ShotEp. 251: She's dying but LIVING more than most - The Lorri Carey storyMore than a decade ago, mother of two, Lorri Carey was told she was dying and had a few years to live.
Instead of leaning into death, she leaned into living, creating vibrancy, memories and experiences. She even started the "I'm Dying To Tell You" podcast.
To learn more about Lorri, visit https://imdyingtotellyoupodcast.com/
To connect with the Second Shot crew, visit instagram.com/secondshotpodcast or facebook.com/group/secondshotpodcast
If this show brought you value, please leave a rating or review or a word of encouragement to keep going! We so appreciate YOU!2022-02-1029 minI'm Dying to Tell YouCouplehood in Tough Times: Maria Aleandra and Julian RodriguezHere I talk to Maria Aleandra and Julian Rodriguez about how they're navigating all the different shifts of life including ALS. Maria Aleandra and Julian are a young married couple navigating life through entrepreneurship, ALS, parenthood, and all the ups and downs of life together. Julian, 37, has a terminal disease, ALS, so together they have faced difficult and intensely painful experiences. Through the darkest days, they have developed a closer bond than ever. They've made it a point to take risks and go out of their comfort zone that have resulted in freedom, adventure and expanded possibilities. One example of th...2022-02-0350 minI'm Dying to Tell YouCelebrating Purpose, Progress & Community: I AM ALS turns 3Listen in and hear how thousands of people have come together to better the lives of those living with ALS. In this episode, I celebrate I AM ALS turning 3. Here I chat with Mandi Bailey, Tony Rosello & Sandy Morris and hear how their involvement with the ALS patient-led group I AM ALS has showed them the power of a unified community. Each of them are driven by their heart to end ALS and celebrate the progress over the past 3 years. Listen in to their personal testimonies of why they continue to fight for a world without ALS. I AM ALS w...2022-01-2542 minI'm Dying to Tell YouAndrea Peet, 50 Marathons in 50 States with ALSHere I chat with Andrea Peet and her husband, Dave Peet. Andrea's been on a journey to become the first person with ALS to complete 50 marathons in 50 states. Andrea was diagnosed with ALS at 33 years old. Now at 40, she is super close to accomplishing her goal of completing 50 marathons in 50 states all while living with ALS, a fatal disease with no cure. Andrea and Dave created Team Drea to raise awareness and funds to help cure ALS. With only 3 races to go, the countdown begins with races left in California, New York and Alaska. The final race will be at Pr...2022-01-1143 minI'm Dying to Tell YouExemplifying Love, Hope, Faith & Joy through AdversityHere I reintroduce you to four 2021 guests and highlight how they are able to see love, hope, faith and joy in their darkest days. I randomly selected these past guests and together their stories show us how it really is possible to focus on the good stuff when life seems impossible. In this episode, you'll hear clips from Kanya Sesser, Leah Stavenhagen, Bernadette Okeke and Emma Benoit. Kanya was born without legs and was left on the side of the road in Thailand as a baby. However nothing holds her back and she is one of the strongest women I've...2021-12-2122 minI'm Dying to Tell YouInspiration behind “HumanKind” with Brad AronsonHere I chat with Brad Aronson who shares incredible true stories about how one small deed can make a world of difference. Listen in to how his National Bestseller, HumanKind came to be. Brad Aronson is a husband, dad, entrepreneur, mentor and volunteer. After Brad's wife, Mia, was diagnosed with leukemia Brad spent most of his time either by her side or trying to shield their five-year-old son, Jack, from the worst of Mia’s illness. Brad and Mia were met by an outpouring of kindness from friends, family, and even complete strangers. Inspired by all the demonstrations of “hum...2021-12-1439 minI'm Dying to Tell YouThe One Where Monica Scalf & I Talk About " JOYful Gift Giving"Listen in to this fun episode as I chat with my joy go-to girl, Monica Scalf about JOYful Holiday gift giving. As joyful as the holidays are, there’s something about the onset of the gifting season that stirs up a little bit of uncertainty. Can I think of the best gift? Will I have the time to find it? Always overthinking and often I end up putting it off and having to do it all last minute. However, after this chat I am feeling energized and ready for this holiday gift giving season. Monica is the founder of the Work...2021-11-2344 minI'm Dying to Tell YouVeteran & ALS Warrior: The Juan & Only, Juan ReyesIn this Veteran's Day episode, I talk to Juan Reyes a military veteran battling ALS as he shares what's getting him through the toughest of times. Since his ALS diagnosis in 2015, he's been in the fight of his life. He's been fighting with grace and humor to improve treatment opportunities as well as advocating for others in the hopes of ending ALS. Juan served in the United States Air Force for 21 years and has learned the art of resiliency — along with his wife, Meg. Since veterans are twice as likely than the general population to develop ALS, Juan immediately realiz...2021-11-0935 minI'm Dying to Tell YouLife Lessons with Author of Tuesdays with Morrie, Mitch AlbomHere I chat with Mitch Albom about love, faith, living and dying and the life lessons of Morrie Schwartz. In this episode Mitch Albom shares the backstory of how he met his former professor Morrie Schwartz and how their relationship developed. Mitch shared Morrie's life lessons in the best-selling memoir of all time,Tuesdays with Morrie. Today, the book has sold 17 million copies in more than 50 editions around the world. Mitch and I discuss some lessons that Morrie passed on during their weekly Tuesday visits. Mitch also gives a preview of his new novel, The Stranger In The Lifeboat. Mitch...2021-10-2546 min