Shows
Living With Cystic FibrosisHealthwell again open to CF patientsThis is our third podcast with Alan Klein, the Chief Development Officer Healthwell. As a reminder Healthwell was paying about $25 million each year for CF co-pays in therapeutics. But because of the lack of funding from their corporate sponsors they stopped helping existing patients and couldn’t help new applicatns with their CF bills. Healthwell closed their CF Treatment Fund to new and re-enrolling patients in 2023 with no word or idea when they would start up again. There was a lot of fear when this happened in August 0f 2023. The CF Vitamin and Supplement Fund did remain open, but the...2024-02-1919 minLiving With Cystic FibrosisThe fate of Healthwell, what is their future?Please consider subscribing and rating our podcast. It helps us to promote. Thank you.This is a follow-up podcast about the Healthwell Foundation. Thanks again to Alan Klein, the Chief Development Officer for answering all of our questions and being transparent.They help 90 different disease groups with funding (whatever is not covered by insurance). The Bonnell Foundation will refer people to Healthwell when the financial need is greater than we can give, or because we don’t cover a certain request for funds. Approximately 40 to 45 percent of the CF community is helped by Healthwell. Healthwell used...2023-11-0627 minLiving With Cystic FibrosisHealthWell Foundation - going out of the CF business?Healthwell is a foundation that helps people pay bills that impact 90 different disease groups. They cover what insurance does not. The Bonnell Foundation will refer people to Healthwell when the financial need is greater than we can give, or if we don’t cover a certain request for funds. Approximately 40 to 45 percent of the CF community is helped by Healthwell. Healthwell pays $25 million each year for CF co-pays in therapeutic drugs. This could all change. There is a lack of funding from Corporate sponsors. Healthwell sent out a letter that stated they will have to close their CF Tre...2023-08-1427 min