Shows
Living With Cystic FibrosisLive Fearlessly: Jacob VendittiEight miles. Two friends. One cause.This episode now holds even deeper meaning. Jacob Venditti, who has since passed away from complications of cystic fibrosis (August 16th 2025), shares his story with a raw honesty that feels like a gift. He opens up about life with CF, the daily challenges he faced as he prepared for a lung transplant, and the vital role of community in carrying him forward. He speaks about the Live Fearlessly Foundation and the rare disease income threshold amendment he championed, work that reflected his relentless drive to create equity and hope for others.
2025-05-0531 minLiving With Cystic FibrosisSurfer Jacob Venditti Lives Fearlessly with CFThe Live Fearlessly Foundation? It’s the creation of Jacob Venditti. Jacob is a surfer and lover of life. He's also a social impact entrepreneur, community builder, multimedia producer, keynote speaker, and passionate advocate for the cystic fibrosis community. He also has CF. Jacob was on the transplant list, with a lung function of 15 percent, then he was given the latest CF modulator and his lung function jumped up to 50 percent. He has no need for a transplant at this time. He is proud to say he has not been hospitalized in three years.Jacob recently launched a new...
2023-06-0521 min