Shows
#ThroughTheGenesCurative Therapies Beyond the BordersThrough the Genes Podcast | Bonus Episode: Curative Therapies Beyond the BordersIn this episode of #ThroughTheGenes, the hosts of the Let's Talk about Sickle Cell Podcast, Jenica Leah and Maya Bloomberg discuss the critical topic of sickle cell disease, focusing on advocacy, treatment options, and the disparities in healthcare systems between the UK and the USA. They share personal stories and insights into the challenges faced by sickle cell patients, including the high costs of treatment, the importance of mental health support, and the role of community in advocacy. The conversation highlights the need...2025-05-2240 min
It Happened To Me: A Rare Disease and Medical Challenges Podcast#60 CRISPR, Community, and Courage: A Deep Dive into Sickle Cell AdvocacyIn this powerful episode of It Happened To Me, co-hosts Cathy Gildenhorn and Beth Glassman are joined by two fierce patient advocates and changemakers in the sickle cell disease community: Wunmi Bakare and Dima Hendricks. Both women are living with sickle cell disease and have transformed their lived experiences into platforms for storytelling, education, and change.
They are also the co-hosts of #ThroughTheGenes, a podcast that launched last year on World Sickle Cell Day (June 19, 2024). The show explores gene therapy and other innovative treatments for sickle cell disease while centering patient voices. With a second s...2025-05-1936 min
#ThroughTheGenes#ThroughTheGenes – Season 2 TrailerIn Season 2, we go deeper—confronting ethical dilemmas, highlighting critical clinical insights, and sharing unfiltered patient experiences that matter most to the sickle cell community. This season empowers warriors, caregivers, and providers with knowledge to navigate curative therapies with clarity and confidence. We also introduce our newest sickle sister, Christelle Salomon,🧬 Featured Experts & Guests:Dr. Mark WaltersDr. Matthew PorteusDr. Akshay SharmaDr. Elizabeth KriegerChris LundyOladapo (Daps) BakareDr. Marsha TreadwellSupported by Beam Therapeutics, Synthego Corporation®, and Kamau...2025-05-1306 min
#ThroughTheGenesEpisode 8 - Bridging Science and Stories: Kira Dineen on DNA and Sickle Cell"In this episode of #ThroughTheGenes, we are joined by Kira Dineen, host of the award-winning podcast, DNA Today. Kira brings her expertise in genetics to the conversation as we explore the intersection of DNA, gene therapies, and sickle cell disease. Together, we discuss how science is advancing treatment options and how storytelling can amplify the voices of those affected by genetic conditions. Tune in for an engaging conversation that blends cutting-edge science with powerful personal narratives, shining a light on the future of gene-based therapies for sickle cell warriors.2024-09-2642 min
#ThroughTheGenesACT in PracticeIn this episode of #ThroughTheGenes, we’re excited to welcome back Dr. Staci Martin as she puts Acceptance and Commitment Therapy (ACT) into practice. Dr. Martin provides an in-depth exploration of mental health challenges specific to individuals with sickle cell disease, especially those undergoing curative therapy.2024-09-1112 min
#ThroughTheGenesEpisode 6: The Mental Health Perspective w/ Staci MartinDr. Staci Martin joins us for a conversation that explores various aspects of mental health and self-care for individuals with sickle cell disease, particularly those undergoing the curative therapy process. The chapters cover topics such as common mental health issues, preparing for curative therapy, identity crisis and self-discovery, developing mental health tools, support for individuals unable to pursue curative therapy, establishing healthy boundaries, challenges of identity crisis and survivor's guilt, qualifications for a therapist, self-help resources, and acceptance and commitment therapy (ACT). The conversation emphasizes the importance of psychological flexibility and finding support in one's tribe. In this conversation...2024-08-2844 min
#ThroughTheGenesEpisode 5: The Clinical Perspective w/Genesis Jones and Wynona ColesThis episode concludes part two of the interview with Genesis Jones. She shares her experience with post-transplant complications, specifically hemolytic anemia, and the treatments she has undergone. She discusses the challenges of managing chronic pain and the impact it has on her mental health.
Later in the episode, Wunmi and Dima interview Wynona Coles, the research lab manager at the National Heart, Lung, and Blood Institute at the National Institutes of Health. They discuss curative therapy options for sickle cell disease, with a focus on gene therapy. They cover topics such as the role...2024-08-1446 min
#ThroughTheGenesEpisode 4: Transplant vs. Gene Therapy w/Caterina Minniti and Genesis JonesIn this conversation, Dr. Caterina Minniti discusses curative therapies for sickle cell disease, focusing on gene therapy. She explains the process of preparing for gene therapy, including the discontinuation of hydroxyurea and the use of blood transfusions. Dr. Minniti also discusses the ideal patient for gene therapy, the timeline for the preparation process, and the manufacturing process of edited stem cells. She compares and contrasts gene therapy with stem cell transplantation and bone marrow transplantation, highlighting the potential complications and ongoing research in the field.
We are also joined by Genesis Jones. Genesis is...2024-07-3151 min
#ThroughTheGenesEpisode 3: The Caregiver Perspective w/ Amanda OlaghereWelcome to episode 3 of #ThroughTheGenes.
Amanda Olaghere shares her experience as the caregiver to her husband, Jimi, who participated in a gene therapy clinical trial for sickle cell disease. Before the trial, their lives were filled with constant hospital visits and emergency room visits due to Jimi's pain crises. The decision to participate in the trial was made after reading an article about another patient's success story (Victoria Gray). The couple weighed the risks and logistics, including Jimi's work, Amanda's pregnancy and a global pandemic. Amanda discusses the challenges of being a caregiver, including adjusting to hospital...2024-07-1751 min
#ThroughTheGenesEpisode 2: The Patient Perspective w/ Jimi OlaghereWelcome to Episode 2 of #ThroughTheGenes. In this episode, we hear from Jimi Olaghere a patient who successfully undergone a curative therapy.
#ThroughTheGenes provides an in-depth look at the lived experiences of patients who have participated in the curative process, sharing their highs, lows, and everything in between. This series is designed for patients, caregivers, community-based organizations, researchers, and educators, aiming to help patients and their support networks navigate emerging developments in gene therapies for sickle cell disease.
Subscribe to the #ThroughTheGenes email list to stay up to date as new episodes, tools, and resources become available, and to receive o...2024-07-0350 min
#ThroughTheGenesEpisode 1: History of Sickle Cell Research w/ Vence Bonham Jr., JD, & Dr. Matthew HsiehWelcome to Episode 1 of #ThroughTheGenes, a show that highlights the risks, benefits, and limitations of cell and gene-based therapies as a curative option for sickle cell disease. In this inaugural episode, we delve into the history of sickle cell research with esteemed guests Vence Bonham Jr., JD, and Dr. Matthew Hsieh.
#ThroughTheGenes provides an in-depth look at the lived experiences of patients who have participated in the curative process, sharing their highs, lows, and everything in between. This series is designed for patients, caregivers, community-based organizations, researchers, and educators, aiming to help patients and their support networks navigate emerging...2024-06-1946 min
#ThroughTheGenes#ThroughTheGenes Official TeaserPremiering June 19, 2024 (World Sickle Cell Day), the #ThroughTheGenes is an informative podcast series highlighting the risks, benefits, and limitations of gene-based therapies as a curative option for sickle cell disease. The show is hosted by sickle sisters, Wunmi Bakare and Dima Hendricks, taking you behind the lived experience of patients who participated in the curative process; revealing their high, lows and everything in between.
This collaborative effort aims to help patients and their support networks navigate emerging developments in gene therapies for sickle cell disease. The clinical information referenced on #ThroughTheGenes was taken from...2024-06-1804 min