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Caregivers Out Loud
Juggling Roles: Finding Balance When Caring for a Parent
How do you navigate the transition from child to caregiver of a parent while supporting both their dignity and your own wellness? Caring for an aging or ill parent comes with countless responsibilities, from prepping meals and scheduling medication to attending appointments and much more. While this shift to caregiver is, in some ways, a natural progression, it also requires you to navigate into a new relationship with your parent. As such, you need to learn how to balance respect and consent for their desires with your own health and happiness. Roma Palmer is a registered clinical c...
2025-03-18
21 min
Caregivers Out Loud
Caregiving for a Partner: Intimacy Reimagined
How do you maintain an intimate relationship when you become a caregiver for your spouse or partner? Sharing life as a couple means facing and overcoming countless challenges. For so many, the ultimate challenge begins when an illness is uncovered, and one of you must become a caregiver to the other. Rene faced this transition when her husband of 20 years was diagnosed with Parkinsons in his mid-40s. In the two decades since his diagnosis, the couple has navigated a dramatic shift in household and relationship responsibilities and must constantly work at alternative ways to maintain intimacy and joy...
2024-12-10
24 min
Caregivers Out Loud
Supporting Young Caregivers: The Overlooked Caregiver Demographic
What difficulties develop when a child becomes a caregiver to their own parent? Studies show that young caregivers make up at least 12% of Canadian youth. One of these young people is Kristie Mar. At just 16 years old, Kristie set aside a significant part of her adolescence to become the sole carer for her mother, who was navigating schizophrenia and anorexia. The medical professionals, counsellors, and groups from whom she sought assistance, however, never gave her the title of “caregiver.” As such, it took her years to think of herself in this way or discover the resources that search term could...
2024-02-13
26 min
Caregivers Out Loud
A Contemporary Approach to Palliative and Hospice Care for Family Caregivers and Their Recipients
How can you build a healthier relationship with death and dying that will benefit both caregiver and recipient? Aaron Yukich is an end-of-life doula, mindfulness practitioner, and hospice care worker. In his work with the Family Caregivers of BC Caregiver Support Line, Aaron incorporates meaning-making and self-reflection into his sessions with caregivers, helping them uncover new ways to provide support to their care recipients without overlooking their own well-being. The end-of-life process has many varied aspects. Aaron helps caregivers navigate this intricate spiritual and emotional experience with grace, through activities and mindsets that can offer comfort and e...
2023-11-14
20 min
Caregivers Out Loud
Financial Decision Making for Caregivers with Shannon Lee Simmons
At some point in our lives, we’ll all be faced with a tough decision we didn’t see coming. In most caregiving situations, people enter the caregiving role with love and passion. Then pretty soon, they begin to see some of the bigger implications, such as how finances are a big factor in the choices that affect the care recipient OR the caregiver themself. In today’s episode, we chat with Shannon Lee Simmons, a Certified Financial Planner and the author of a new book “No Regret Decisions: Making Good Choices During Difficult Times”, to tackle some of the anxiet...
2023-03-31
25 min
Caregivers Out Loud
Caregiving From a Distance - a Long Distance Care Panel
Many caregivers are supporting care recipients from a long distance. This form of caregiving brings with it a unique set of challenges as we try to provide support from afar. In this episode, Bill guides a panel of long distance caregivers, Mary Chan, Karla Wilson, and Victoria Lougheed, through a dynamic conversation filled with positive energy and laughter. The foursome came together to talk about their challenges of caring while not being able to physically be there, and to share some insights including some beautiful moments along the path that have made their caregiving journey a memorable experience.
2023-02-01
35 min
Caregivers Out Loud
The Dementia Journey’s Caregiver Toolkit
The experience of living and caring for someone with dementia is not always a universal experience and there can be different situations and patterns. However, there are some similar challenges caregivers face when trying to communicate with care recipients who are living with dementia. In this episode, Bill Israel speaks with Amelia Gillies, a Support and Education Coordinator with the Alzheimer's Society of BC about caring for someone living with dementia. Amelia shares stories she's heard on the support line, and also her own personal experience caregiving for people with dementia. Listen in as she provides education and suggestions...
2023-01-01
19 min
For The Caregiver Archives - Fading Memories Podcast
Breaking the Burnout Cycle: A Conversation with Judy Burkle
Coach Judy Burkle You are caring for a loved one and struggling to care for yourself. You know this isn't a sustainable way to live, but what options do you have? Avoiding burnout is crucial for dementia caregivers, as the demanding nature of the role can lead to physical and emotional exhaustion. Sustaining the well-being of caregivers ensures consistent and compassionate care for individuals with dementia. By prioritizing self-care, setting realistic expectations, and seeking support, caregivers can maintain their resilience and provide optimal care, fostering a healthier caregiving environment for both themselves and those they care for.
2022-11-18
36 min
Fading Memories: Alzheimer's/Dementia Support
Using Mindfulness to Reduce Frustrations
Finding ways to reduce caregivers’ frustrations is a worthy goal that may be helped by mindfulness. Regular listeners likely know that I discovered the benefit very late in my caregiving journey. Thankfully, it still helps me today which is why we’re revisiting the topic. Being frustrated happens for many reasons. Understanding the reasons and how we can reduce them can serve us well in our daily lives. But, caregivers are faced with a very high level of frustration triggers. How can we use mindfulness practices to reduce these frustrations is the topic of today’s conversation. I talk...
2022-05-24
1h 03
Fading Memories: Alzheimer's/Dementia Support
Forgetting What’s Lost – Focusing on What’s Left
Better caregiving by Forgetting What’s Lost & Focusing on What’s Left We’re talking about forgetting what’s lost and focusing on what is left. Most caregivers have likely heard the term person-centered care; however, how many of us truly understand what that means? It likely means different things for different people and that’s understandable. The best definition I have found is this: Person-Centered Dementia Care is a way of providing care focused on knowing the UNIQUE person through respectful close relationships that foster normalcy, choice, purpose, belonging, security and strengths. Family caregivers have more knowledge o...
2022-04-05
00 min
Fading Memories: Alzheimer's/Dementia Support
The Long Goodbye – A Musical Tribute
The Long Goodbye – is a musical tribute based on Brets Dads ‘ Alzheimer’s journey. The long goodbye, it’s something that all of us have dealt with. Some of you are probably still working your way through this goodbye. Today’s guest is Bret Sweet. He’s a musician turned caregiver who used writing music to help him through his grieving process even as his father was still alive. Bret decided to use a hip-hop album to help caregivers draw energy from and gain a sense of connection with other caregivers. His Dad was all about breakin...
2022-03-22
00 min
Caregivers Out Loud
Creativity as a Form of Self Care
Engaging with creativity is a form of self-care that can benefit both a caregiver and a care recipient in many ways. In 2015, psychologist and art therapist Dr. Cathy Malchiodi cited multiple studies confirming that being creative can increase positive emotions, lessen depressive symptoms, reduce stress, decrease anxiety, and even improve immune system functioning. A 2016 study in The Journal of Positive Psychology supported these earlier findings, concluding that spending time on creative goals during a day is associated with higher activated positive affect (PA) on that day. Positive affect is the extent to which people experience positive moods, such as...
2022-02-15
20 min
Fading Memories: Alzheimer's/Dementia Support
More Caregiver’s Guide to Advanced Alzheimer’s
Finding quality advice for the advanced stages of Alzheimer's can be a challenge. Caring for someone with advanced Alzheimer's disease is a challenge. It can make you feel like you're on a hamster wheel – running in circles, trying the same things over and over with no effect on your loved one. You may find it challenging to connect with your loved one ad to understand what those living with Alzheimer's disease are going through. The Busy Caregivers Guide to Advanced Alzheimer's Disease gives you a model designed to help you understand, cope with, and handle som...
2021-12-28
00 min
Fading Memories: Alzheimer's/Dementia Support
Dementia Caregiving Advice with Bill Cohen
Dementia Caregiving is something most of us continue to share even after our caregiving is over. Are you looking for dementia caregiving advice? When you think of caregiving, what feelings come to mind? Surely, overwhelmed, exhausted, hopelessness and loneliness are some of the top emotions you're experiencing. If you don't know where to get help or support, this is the episode for you! Finding Alzheimer's support is almost as challenging as caregiving itself. When learning of the diagnosis, most families find themselves searching for answers and support. Many of us turn to books or the...
2021-12-14
00 min
Caregivers Out Loud
Moving from Home to a Care Facility - Next Steps
Once the decision has been made that placement in a care community is necessary, caregivers are often faced with the “what next” question. Because there are different levels of care and each community has a different ‘personality’, it’s very important to be as prepared as possible for the transition. In this episode, we chat with Kathy Ajas, who for the last 17-years has worked in the retirement industry, including independent living, assisted living, and short and long-term care. Together, we explore questions caregivers have when considering moving to a new level of care with their care recipient...
2021-12-14
13 min
Caregivers Out Loud
How to Use Writing for Healing and Self-Care
Research shows that family caregivers who list self-care as a priority can better provide care, are at lower risk of burnout and becoming ill, and find more joy in their role as a caregiver. Starting with small acts of self-care can create the opportunity to see the benefits. Calling a friend who lifts you up, accepting help, finding five minutes for a cup of tea in silence, or closing your eyes and breathing for 10 breaths are all acts of self-care. Today we'll hear Rick's story, who shares his caregiving experience with both of his parents. Like many...
2021-11-16
15 min
Fading Memories: Alzheimer's/Dementia Support
Telehealth VS In-Office Visits with Roz Jones
How do we determine which doctor appointment is most appropriate? None of us genuinely wants to go to the doctor. We go when we have to, hoping the medical professionals will help us feel better quickly. Some of us are good at scheduling regular wellness checkups, but even those appointments aren't ones we look forward to with pleasure. Doctor visits can be stressful for those caring for the chronically ill, especially if diagnosed with a degenerative cognitive disease. I could convince my Mom that we were going someplace fun, but it didn't take long for...
2021-10-12
00 min
Fading Memories: Alzheimer's/Dementia Support
What Millennial Caregivers Need to Know
In all fairness, the title of this episode should be what all caregivers need to know. This episode, however, is with a millennial caregiver. She had to learn quickly all the forms, legalities, and financial planning that goes hand-in-hand with caregiving. One example of the necessary information we need to know is banking accounts, logins, etc. When my Dad suddenly lost his short-term memory and ended up hospitalized, his finances didn't enter my thoughts. If it weren't for my husband's twenty years of banking experience, I'm sure our situation would have been more stressful. We're...
2021-09-21
00 min
Fading Memories: Alzheimer's/Dementia Support
Granny Needs My Help – Kids as Alzheimer’s Caregivers
Helping Kids be effective caregivers helps everyone. Many people assume kids can't be caregivers. As an older adult family member progresses in their disease, some of the things they do can be scary for younger kids. Children can become confused when Grandma forgets how old they are or GrandDad asks the same questions all the time. Adult caregivers struggle with how Alzheimer's affects their loved ones. A person who used to be warm and friendly can suddenly become angry and unreasonable. It would be a typical act of love to do our best to shield...
2021-08-31
00 min
Fading Memories: Alzheimer's/Dementia Support
A Millennial Caregivers Tool w/Lucinda Koza
iAlly is a Millennial Caregiver Tool About one out of six millennial caregivers care for someone with dementia, with an average age of 27 years. Because these caregivers are at a different life stage than older, spousal caregivers, their needs are widely different. Many young adult caregivers put their careers on hold, move back to their childhood home and become 24/7 caregivers overnight. Loneliness and depression are common. Almost all caregivers feel isolated, but this is worse for the younger population. This episode features Lucinda Koz, a young adult who is taking care of her fat...
2021-08-10
00 min
Fading Memories: Alzheimer's/Dementia Support
Caregiver Guilt – Before, During & After
Caregiver guilt was a constant struggle for Lauren while caring for her Mom. Most of the caregivers I've spoken to have some level of guilt. For many of us, the guilt is significant. Why is this? The answer may not be surprising. Caregivers tend to neglect their own emotional needs. Taking care of a significantly needy adult, especially if that person is our parent, can quickly suck us in. One day we're living our lives, doing all the things most working-age adults do, and then suddenly, our world is upended. When this happens...
2021-08-03
00 min
Fading Memories: Alzheimer's/Dementia Support
Streaming Happy Things with Joygage
Streaming Happy Things with Joygage Last year (2020), streaming our entertainment became one of our coping tools. Even our social lives essentially became streaming events. When the pandemic restrictions started lifting, many of us were eager to return to live concerts, movies, and seeing loved ones in person. For many parts of our society, streaming much of our lives is still an important coping tool. Family caregivers frequently struggle to find ways to engage and entertain their loved ones. Caregivers need ways to have their own time, their own space to decompress, rest, and take care...
2021-07-06
00 min
Caregivers Out Loud
Juggling Work and Family Caregiving
28% of Canadians or 1.8 million people, provided care to a family member or friend with a long-term health condition, disability or ageing need in the past year. Three-quarters of this group (6.1 million) were employed at the time, accounting for 35% of ALL employed Canadians. More and more people are becoming caregivers and a lot of these caregivers are balancing employment and caregiving. In today’s episode, we hear from Rachel, who not only witnessed at a young age her mother be a caregiver, but then found herself caring for her Mother in her adult life. Rachel is part of th...
2021-07-06
18 min
Fading Memories: Alzheimer's/Dementia Support
Becoming More Me With EFT
Becoming more me with EFT is another way of learning coping skills. What is EFT? Your body is more powerful than you can imagine. Filled with life, energy, and a compelling ability for self-healing, you can take control of this power by engaging in a tapping practice. Having been documented extensively, the benefits of tapping (EFT) include the ability to shift our thoughts and mood more quickly than conventional therapies. Tapping is a gentle form of soothing touch. Brain wave studies show that tapping energy affects the deep subconscious. Touch is comforting. No...
2021-06-15
00 min
Fading Memories: Alzheimer's/Dementia Support
Learn Positive Coping Skills Today
Learn Positive Coping Skills through an online study. Are you wishing there was a way to learn to be happier, to have more positive coping skills? Listening to this episode might be just what you need! Caring for a loved one with Alzheimer’s Disease may make you eligible for the LEAF Study. Researchers at Northwestern University and the University of California San Francisco are testing an online positive emotion skill-building program to help caregivers cope with stress. Living through the insanity of 2020 forced me to learn new coping skills and I had to...
2021-06-08
00 min
Caregivers Out Loud
Grieving Before a Death
When we think about grief, we often think of it as something that happens following a death. However, grief can begin long before death arrives. The grieving process can start as soon as a caregiver is aware that death is a likelihood or once death is on the horizon. Many caregivers dealing with an impending death will experience overwhelm, anxiety and dread. As well, before the death of a care recipient, caregivers grieve the loss of the person’s abilities and independence, loss of their cognitive abilities, loss of future dreams, loss of stability and the loss of their id...
2021-06-08
15 min
Toula's Tips for Caregivers
A Community Of Strength Caring For Grandchildren
Should you say, “It’s a RAPP”?If you want to help build a stronger community of seniors and caregivers, you should.If you want to help the many grandparents and relatives who are caring for their grandchildren or school-age relatives, you must.Most Importantly - I NEED YOUR HELP in spreading the word about Aging True’s RAPP Program in Duval and Clay Counties, Florida.In this podcast, my guest Jacinda Legions, Community Liaison with Aging True, explains how the “RAPP” program – “Relatives As Parents” Program – is making our community stronger by helping many seni...
2021-05-24
39 min
Fading Memories: Alzheimer's/Dementia Support
Yoga 4 Busy Caregivers
If you have 5 minuets, you can destress with a quick yoga practice. Yoga practice is probably something you think you don't have time to start. If you have five minutes, my guest can show you ways to help relieve stress, anxiety, and more. As with most of us, my guest, Jo Bregnard, had to learn about caregiver self-care the hard way. Despite a healthy lifestyle, and just three months after her husband suffered a severe burn injury, Jo was diagnosed with breast cancer. While her health issues were a challenge, her yoga practice didn't take...
2021-05-18
00 min
Fading Memories: Alzheimer's/Dementia Support
Engaging Activities for Every Stage
Activities are an essential tool for caregivers. It all started because of a lack of activities. If it weren't for today's guest, there might never have been a Fading Memories podcast. I searched for ways to engage with my Mom and came up short every time. If I had had the list you're about to hear; it might have been a different story for both of us. Activities are an essential tool for caregivers. Our loved ones need the stimulation. Suitable, engaging activities will provide them with enjoyment, challenges, a way to pass the time...
2021-05-11
00 min
Caregivers Out Loud
Friends Caring for Friends - A Circle of Care Approach
Have you ever said this to a struggling caregiver - “Let me know if there’s anything I can do to help?’ The offering has good intent, but many times people say it because they don’t know how to help, are uncomfortable, or want to be polite. And although 29 percent of caregivers in BC are in distress, you will still hear caregivers say: ‘I don’t need any help’ or ‘It’s okay, I’m fine’. Today we hear from Jim and how he supported his friend Art and Art’s wife Grace during Grace’s diagnoses and disease. Jim...
2021-05-11
20 min
Fading Memories: Alzheimer's/Dementia Support
Medications & Memory with Dr. Elena
Medications often help maintain health and well-being, studies have repeatedly shown that many older adults suffer from medication problems. As caregivers to an older person, the chances are they are taking a number of prescription medications. Have you ever wondered if they are on the proper medications? Do you worry about how side effects and interactions may contribute to other health problems? These are practical concerns to have. Although medications often help maintain health and well-being, studies have repeatedly shown that many older adults suffer from medication problems. In this episode...
2021-04-27
00 min
Fading Memories: Alzheimer's/Dementia Support
Alzheimer’s Caregivers-Sending You Encouragement Today
Being one of the 16+ million Alzheimer's caregivers can be one of the longest marathons you'll ever undertake. I am unaware of anyone who has gone on this journey alone. It's entirely reasonable to need help. Getting help and taking care of yourself is critical to taking good care of your loved one.
2021-03-23
00 min
Toula's Tips for Caregivers
TURNING THE TABLES: Succeeding As A Working Caregiver
The tables have turned for you. Are you okay?It used to be that work was the most important duty in your life. Your family and loved ones were there for love and support.Now, you are caring for that most important loved one. But you still have to work. I understand. The tables turned on me in 2012, when I became the main caregiver for my parents.But I still had to work, providing outreach and support for caregivers in Northeast Florida. And I still had to do my live radio show...
2021-03-22
23 min
Fading Memories: Alzheimer's/Dementia Support
“Accidents” And Aging – Learn How To Avoid Them
“Accidents” Aren't Normal Aging – Learn How To Avoid Them “Accidents” Aren't Normal Aging – Learn How To Avoid Them in my conversation with Dr. Elena. Urinary incontinence in the elderly is a prevalent, bothersome and costly problem, and is not necessarily a normal part of aging. Structural changes in the aging bladder and urethra may cause the elderly to the development of urinary incontinence. During my conversation with Elena, I learned of the many reasons people become incontinent. I had no idea that some everyday behaviors can be problematic. Tuning in to this episode may not init...
2021-03-16
00 min
Fading Memories: Alzheimer's/Dementia Support
Forget Me Knot – A Journey to Support Caregivers
The Forget Me Knot crew will row nearly 4,000 miles of open ocean to raise funding and awareness for those who care for dementia patients Who is behind the Forget Me Knot campaign? Johnny Ball watched his Mother care for his Dad for nearly two decades. Being a part of her journey made it clear that those who support caregivers needed more help. The relentless demands of care commonly lead to depression and other mental health issues. Johnny wants to change that. The Forget Me Knot crew will row nearly 4,000 miles of open ocean t...
2021-03-09
00 min
Caregivers Out Loud
Grief is a Human Experience
Grief is a human experience and it often feels messy or is accompanied by not knowing if you are "doing it right". Grief and loss can feel isolating. And many caregivers share different examples of grief, such as grieving the loss of your old life during caregiving and then also grieving the loss of the person you are caregiving for. Normal does not exist during grief and in today's episode, we chat with Tricia Wallace, a Clinical Counsellor with Parkinson Society BC about the topic of caregiver grief and loss and suggestions on how to work with...
2021-03-02
17 min
Fading Memories: Alzheimer's/Dementia Support
All About Palliative Care
Dame Cicely Saunders is the founder of Palliative care. We're talking today all about Palliative care. Palliative care focuses on improving the overall wellness of individuals with serious illnesses. It addresses both the symptoms and the stress of living with a chronic disease. It may also involve support for loved ones or caregivers. Palliate comes from pallium, the Latin word for ‘cloak.’ To palliate is to cloak, or cover-up, the symptoms of an illness without curing it. This meaning grew into the idea of alleviating or reducing suffering. Interesting, yes? In this episode, you...
2021-02-02
00 min
Caregivers Out Loud
Grief as a Healing Gift
13 million Canadians or nearly half of the total population have provided care at some point in their lives. Yet caregiving may be a new term for many people. And often, unpaid caregivers do not identify with this title, as they feel it is part of their relationship with family or friends. In today’s episode, we speak with Pat, who acknowledges that she was initially unfamiliar with the term caregiver, but learned more about this important role as she supported her husband, also named Pat, through his journey with Parkinson’s Disease and dementia. Pat was en...
2021-02-02
12 min
Caregivers Out Loud
Trailer 2021
No matter where caregivers live, you have access to support. Welcome to “Caregivers Out Loud”, a podcast powered by Family Caregivers of British Columbia. This season's podcast is hosted by Bill Israel who will be leading heartfelt, connective conversations with caregivers. By sharing stories of caregivers and insight from community experts, we bring you perspective and connection, and ensure that you have support and balance from inspired caregivers, who are caregiving out loud. Listen wherever you go by subscribing and listening to the podcast for free on your favourite podcast listening app or wher...
2021-01-26
01 min
Fading Memories: Alzheimer's/Dementia Support
We’re Doing Aging Wrong – Plan to Age Well
We're doing aging wrong. Our healthcare system delivers quick interventions that act as band-aids but fail to include the entire family. Our medical model focuses on the body yet neglects the mind and soul; both are essential to our healing and comfort. Older adults are often scared and alone when they need more attention, support, and love. If you Google “How To Age Well,” there is a lot of advice about diet, exercise, wearing sunscreen, but very little advice that focuses on our entire well-being. Aging well should also focus on our mind and soul. There...
2021-01-26
00 min
Fading Memories: Alzheimer's/Dementia Support
Knowledge is a Caregivers Best Friend
Lacking the knowledge of how to best care for someone with Alzheimer's is common for most family caregivers. Each person is unique, and the disease affects them in their own ways. The differences in how each person reacts to their condition make it more challenging to get solid advice from other caregivers.
2021-01-19
00 min
Toula's Tips for Caregivers
Aging True With Concern, Compassion And Care
You are not alone in your caregiving role.I know. You hear me say that all the time. That is why I introduce new people who are here to help you.In Northeast Florida, there is another MAJOR PLAYER for caregivers and seniors like you. Aging True is a non-profit, charitable organization that enables seniors to stay home and be independent. In this podcast, I talk with Megan Taylor, Care Transitions Program Manager, about all the services that Aging True is providing to support seniors and caregivers during the COVID-19 pandemic. Meals...
2021-01-12
28 min
Fading Memories: Alzheimer's/Dementia Support
Paperwork Isn’t Sexy (But It’s Important)
Paperwork isn't sexy – a list of documents caregivers need. Paperwork isn't sexy, In the eighties, promises of four-day workweeks and paperless offices were made thanks to the desktop computer. This promise has never happened, and despite cloud storage, paperwork is an endless chore we must all endure. As caregivers, the endless piles of paperwork are one more tedious task that we must tackle. What is essential, what can we toss – it's an infinite cycle, to be sure. My Dad had a spreadsheet of his medications, allowing us to inform the hospital precisely what doct...
2021-01-05
00 min
Fading Memories: Alzheimer's/Dementia Support
Smiling Through Your Tears (Anticipatory Grief)
Anticipatory grief has benefits of which we're not aware. Is it normal to feel grief for someone when they're still alive? We may not realize that's what we're feeling. Many people assume it's a form of depression and treat it as such. What we're feeling is actually called anticipatory grief. Millions of people deal with this feeling every day. It's not unique to those caring for someone with Alzheimer's. In this episode, I talked with Harriet Hodgson about anticipatory grief. Harriet has been a freelance health and wellness writer for 38 years, but more i...
2020-12-29
00 min
Fading Memories: Alzheimer's/Dementia Support
A Musical, Emotional Memoir on Caregiving (Caregiver Carols)
Caregiver Carols – a self-help book in song format Caregiver Carols A Musical Emotional Memoir is a book with a unique twist. It focuses on dealing with the emotional aspects of caregiving. In this episode, my guest is Don Wendorf, who, like most of us, tackled caregiving, knowing he could continue his psychiatry practice, manage his care team, and do it all perfectly. We know how that ends. One of Don's coping techniques is playing music. Don is not a huge fan of self-help books, so being a musician, he wrote his self-help book in a mo...
2020-12-22
00 min
Fading Memories: Alzheimer's/Dementia Support
Visual Storytelling of Dementia (The Bob & Diane Fund)
Visual Storytelling can help make complex stories easier to understand. It can deliver more impactful messages. It can make stories as relevant for readers as possible. Why would someone choose to document visually such a difficult subject as dementia? There are as many answers to this as there are caregivers. For some, it's a way to process what they're going through. Whether this is the caregiver's journey or how to process grief, visual Storytelling is a therapeutic process for many. In this episode, I talk to Gina Martin. She is the founder and CEO of...
2020-12-01
00 min
Fading Memories: Alzheimer's/Dementia Support
When Caregiving Calls & Demands Our Attention
When Caregiving Calls, are we going to be prepared? Caregiving doesn't usually call; for most of us, caregiving demands our immediate attention. Can we be prepared when that call comes? We're not a society that, in general, plans for or likes to discuss the end of our lives. However, with a little planning, conversation, and thoughtful consideration, we can help everyone when caregiving becomes necessary. Seventy percent of us will need care before our life is over. Unfortunately, most of us seem to think we'll be in the other thirty percent. Understanding that it's likely...
2020-11-24
00 min
Fading Memories: Alzheimer's/Dementia Support
Creativity Is Like Chocolate for the Brain
Creativity is a lifeline for me. Does having a creative mind help you avoid Alzheimer's? Some research has shown that musicians' brains are more resilient because of the additional neural networks formed while learning their craft. Are there other art forms that may provide this same resilience for those who are not musically inclined? Thankfully, there may be. Writing, painting, drawing, sculpting, and dancing are options that may improve our cognitive health. An art kit, specially designed for people living with Alzheimer's, may give caregivers some peace while also allowing your loved one to express...
2020-11-10
00 min
Fading Memories: Alzheimer's/Dementia Support
Self-Care Is Not Just Bubble Baths & Wine
Self-care is more than bubble baths & wine. Self-care is more than a bubble bath or a glass of wine. Caregivers frequently hear, “you have to take care of yourself,” but they seldom hear how to make that happen. They're also rarely offered the assistance they need that would allow them time for self-care. If you want to demolish the feelings of guilt, overwhelm, and bitterness, you need to learn how to become a Warrior of Light. That is the title of my guest's book. Eileen Silverberg is a caregiver, author, and teacher of self-care. She emph...
2020-10-27
00 min
Fading Memories: Alzheimer's/Dementia Support
Moving On After Caregiving
Most of us don't sign up for caregiving. It happens because of a crisis or slowly takes over more of our day-to-day lives. Eventually, much of our caregiving comes to an end, and then what? When caregiving has been your primary life purpose for years, what do you do when that's gone? Moving on isn't always easy. Even when we think we're ready for the change, we can feel lost when it happens. During this unique time in our world, moving on is even more challenging. How do we move on in a world that is nearly...
2020-10-20
00 min
Fading Memories: Alzheimer's/Dementia Support
356 Caregiving Tips
One of 5 authors of the books “365 Caregiving Tips” Not all tips will fit every caregiver, but every caregiver will find tips that fit. Those are the wise words you find when visiting the website, www.365caregivingtips.com. Joining me, again, is a favorite guest, Gincy Heins. She was so delightful I knew I had to have her back. Caregiving is a marathon of a journey. The more advice we have to help us navigate this responsibility, the better off everyone will be. With their fourth book, Gincy and four other authors have given us enough care...
2020-09-29
00 min
Fading Memories: Alzheimer's/Dementia Support
Life on Planet Alz with Jack Cohen
Sometimes caregiving can feel like we're living on Planet Alz Caregivers live on Planet Alz, which is a different planet than earth. When you see us walking down the street, you may think that we look normal, but we are not. We are actually on a different planet. In our world, the normal rules do not apply. Everything is unpredictable, and anything can happen at any moment. As caregivers know, living with Alzheimer's is like living on a different planet. Sometimes we're with our intergalactic traveler, and sometimes we wonder where they are. Understanding that w...
2020-09-01
00 min
Beginners Archives - Fading Memories Podcast
Caregivers-Lots of Self-Care Strategies Here!
In this episode, I bring you as many tips, suggestions, and ideas as we could fit in an hour. My guest, Barbara Cohn cared for her husband for a decade. He had younger-onset Alzheimer’s. In writing her book Calmer Waters, it was Barbaras' goal to help other caregivers feel happier, have more energy and time for themselves, sleep better, and feel more relaxed. The post 123 - Caregivers-Lots of Self-Care Strategies Here! appeared first on Fading Memories Podcast.
2020-07-21
48 min
Fading Memories: Alzheimer's/Dementia Support
Caregivers-Lots of Self-Care Strategies Here!
In this episode, I bring you as many tips, suggestions, and ideas as we could fit in an hour. My guest, Barbara Cohn cared for her husband for a decade. He had younger-onset Alzheimer’s. In writing her book Calmer Waters, it was Barbaras' goal to help other caregivers feel happier, have more energy and time for themselves, sleep better, and feel more relaxed.
2020-07-21
00 min
Toula's Tips for Caregivers
Expert Guidance And Personal Support For Working Caregivers
You are not the only one dealing with this stress.There are millions of working caregivers like you, struggling to be a good, productive, and valuable employee while still giving your loved one the care and attention necessary for a life of quality.I understand. I worked for five years while taking care of my parents. Sometimes the stress was overwhelming.I have one strong suggestion for you. My guest on this podcast of Toula’s Tips for Caregivers shares the same advice in our conversation.TALK TO YOUR EMPLOYER. Let them kn...
2020-07-20
35 min
Fading Memories: Alzheimer's/Dementia Support
eFamily Care – The Caring Solution We Need!
Are you caring for someone with Alzheimer’s or another challenging disease? Does the knowledge that you have to get them to a doctor fill you with dread? Have you said, on more than one occasion that what you really need is someone to come to you? Having abruptly entered a phase of “safer at home” more and more medical professionals are offering telemedicine. However, that’s only useful for some health care situations. There’s a lot more involved in providing care – is there a solution for those situations? Thankfully, now there are more options for...
2020-06-23
00 min
Caregivers Out Loud
How to Make Time to Care for Yourself with Self Care and Boundaries
When was the last time you felt truly rested? For caregivers, making time for self-care can feel almost impossible with all the other demands on your time. And yet, it is an essential skill to learn in your role as a caregiver. In our final episode of the season, we look to why self-care is a fundamental part of being a caregiver. As a caregiver, you are often willing to make sacrifices and feel a sense of commitment. However, without self-care, how can you sustain caring for your family or friend and not run the risk of burning out?
2020-05-26
27 min
Caregivers Out Loud
Why Speaking Up For Your Needs Matters
In a healthy relationship, the needs of both people are important - it’s a two-way street. Good communication is the key to making sure everyone’s needs are met. Whether it is between you and a spouse, or with your friends, successful relationships are all about communication. In today’s episode, we share how for caregivers, relationships with others can be more complex than usual. It can be hard to find ways to speak up for your own needs. If you are the primary caregiver, recognizing your own need for support might be difficult - particularly if the care r...
2020-05-12
28 min
Toula's Tips for Caregivers
Protect Your Identity: Now and After Caregiving
Take care of yourself first.That has always been my message to you. I care for you. Take care of yourself so that you can take good care of your loved one.But there is more. Some day you will no longer need to be a caregiver. Are you prepared for that reality?On this podcast of Toula’s Tips for Caregivers, my guest Chris MacLellan (“The Bow Tie Guy”) and I talk about adjusting to life after caregiving. Chris lost his partner, Richard, in 2015. As you know, I lost both of my parents in the...
2020-05-05
27 min
Caregivers Out Loud
Speak Out With Courageous Conversations in Caregiving
Caregiving brings all sorts of challenges that call forth growth, and communication can be one of them. In today’s episode, we hear about why good communication with family members and healthcare providers is so important, and often difficult for caregivers. In your role as caregiver, you have to speak up for the needs of the care receiver as well as your own. You need to think about the future and what is in everyone’s best interests. This can be especially tough within families. Highlights How bringing the conversation to families prior to when the care...
2020-04-28
23 min
Toula's Tips for Caregivers
Resources To Find Hope During COVID-19 Isolation
You are not alone.I know the stress can be overwhelming. You have more demands as a caregiver while doing your part to stop the COVID-19 pandemic. This is an uncertain time. We feel forced into isolation.There is HOPE. I want to help you learn activities that will help you, and resources to support you.In this podcast of TOULA’S TIPS FOR CAREGIVERS, I talk with two authorities on caregiving and dealing with stress. They also have the resources to help you.Dr. Christine Caufield is CEO of LSF Health Sy...
2020-04-21
27 min
Fading Memories: Alzheimer's/Dementia Support
Caregiving Challenges In A Covid-19 World
Caregiving has enough challenges. Adding in our new challenges due to the Covid-19 virus is almost too much. I've been checking in with past guests to see how they're coping. This episode is with Richard Creighton. He was one of two guests on the Caregiver Grief episode. Richard is caring for his wife Kate. Our conversation details how the Shetler-in-place mandates are affecting their daily life. Both he and Kate are handling the changes well, However, drastic changes in daily life for someone living with Alzheimer's isn't ideal. Kate has had changes that may or...
2020-04-14
00 min
Caregivers Out Loud
Accessing Caregiver Support Networks
Thank you for joining us for our inaugural episode! Over this first season, we’ll focus on caregiver wellbeing. How getting the support you need is vital. Why good communication with family members and medical professionals can be difficult, but rewarding. We’ll share some essential tips on how to look after yourself and you’ll hear stories from caregivers who have spent a great deal of time and energy living these experiences. These inspiring people will bring balance to caregiving along with the other aspects of your life. Today, we take a look at how few of us...
2020-04-14
26 min
Toula's Tips for Caregivers
CAREGIVERS: You Can Self Quarantine WITHOUT Self-Isolating
Are you protecting yourself with self-quarantine and social distancing for the Coronavirus? GOOD!Are you feeling more isolated? PLEASE DON'T.**There is help.** Just because you are avoiding contact with others does not mean that you should feel isolated, especially if your loved one has dementia or Alzheimer’s.In this podcast of _Toula’s Tips for Caregivers,_ my guest Charles Fuschillo, CEO of the Alzheimer's Foundation of America (AFA), explains the many resources that AFA provides for you.The AFA web site offers many online resources for caregivers, with home therapeutic acti...
2020-03-30
16 min
Fading Memories: Alzheimer's/Dementia Support
Coping for Caregivers in a Covid-19 World
Covid-19 has upended our world. As if Alzheimer's weren't bad enough, now we have to contend with more uncertainties than ever! I thought it would be helpful to check in with past guests, see how they're coping and get tips to share. This bonus episode check-in was with Susan Straley the author of “Alzheimer's Trippin' With George”. Her husband is no longer with us but we discussed how she would have handled his needs in this crazy time. Certainly, some of her ideas will be ones you can implement. Even when this crazy time of shel...
2020-03-28
00 min
Fading Memories: Alzheimer's/Dementia Support
Visiting With Mom (Jen’s Journey)
Visiting Mom, trying to connect and give her pleasant times is a bigger challenge than I ever expected. Trying to connect with her and failing, researching better options and coming up short was the impetus for creating this podcast. Not only did I realize that family caregivers didn't have time to do such in-depth research, I knew that a podcast would be an easy way to get support. It's what I looked for and not finding it, I created it myself. Equally important, I want to dedicate this episode to the two women I met...
2020-03-03
00 min
Caregivers Out Loud
Trailer
Welcome to “Caregivers Out Loud”, powered by Family Caregivers of British Columbia, hosted by Jodie McDonald. We’ll explore how the role of a caregiver can be rewarding, but also that it’s emotionally, psychologically, and physically taxing. Through sharing these stories, we’ll bring you perspective, connection, and ensuring that you have support and balance by inspiring caregivers, out loud. Subscribe now on your favourite podcast listening app to be notified when the first episode will be available in April 2020.
2020-02-18
02 min
Fading Memories: Alzheimer's/Dementia Support
Two-Lap Books – A Great Way To Connect!
Two-Lap Books – A Great Way To Connect! Two-Lap Books are Read-Aloud Books for Memory-Challenged Adults, People with Alzheimer's disease (and other forms of memory impairment) gradually lose their ability to initiate communication with others. As a result, Lydia designed these uniquely adapted books to “give voice” to them. Using the book's large, simple text and colorful illustrations we can initiate conversation. Notably, reading books together can make meaningful connections with our loved ones and help stimulate their minds. As a result, caregivers will enjoy sharing these books and creating purposeful, interactive activities for engaging people with memory deficits. For...
2020-02-18
00 min
Fading Memories: Alzheimer's/Dementia Support
Alzheimer’s & Intimacy (Yep, We Went There!)
Alzheimer's & intimacy may seem counter-intuitive. It's important to realize that everyone has a need for companionship and physical intimacy. Couples living with Alzheimer's may have to find new ways to show love and affection. Sometimes as the disease progresses the caregiving spouse has very little desire for intimacy from their spouse. Due to the daily activities involved in caring their normal desires. Granted, the person living with the disease may never lose their need for sex. With this in mind, couples need to find new ways to show intimacy that works for both. It...
2020-02-11
00 min
Fading Memories: Alzheimer's/Dementia Support
Soul of Care -A Physicians Moral Movement
Caregivers need a moral movement so health care addresses the full range of needs of caregivers and those they are caring for.
2020-01-28
00 min
Fading Memories: Alzheimer's/Dementia Support
Caregiving & Employment Struggles
Because of our aging population, more people over the age of 65 are facing caregiving & employment struggles. A significant portion of people at retirement age are at risk of having to care for a parent. Some of these workers may also be caring for a spouse. Caregiving is largely an unpaid, family responsibility. However, this responsibility is already causing a decrease in employment, productivity, and innovation. Neither of these facts is sustainable. Currently, 22% of retirees left the workforce early due to competing caregiving and employment struggles. Additionally, 25% of Alzheimer's caregivers are sandwiched between caring for parents...
2020-01-14
00 min
Fading Memories: Alzheimer's/Dementia Support
Dementia Dogs for Caregiving
Dementia dogs are an asset I wasn't aware of previously. Having had dogs all my life I was surprised to learn that many breeds make great caregivers for those living with dementia. A dog trained to be a caregiver can perform many tasks and be a substantial help to their human counterparts. A dementia dog can break repetitive behaviors, calm anxieties, give someone a purpose, or return a lost loved one home. These are just a few examples of what a furry caregiver can offer. Since learning about canine caregivers in early 2019, I talked to t...
2019-12-24
00 min
Fading Memories: Alzheimer's/Dementia Support
I Love Someone With Dementia …
When you love someone with dementia it's not uncommon to feel like you're losing your mind too. In this episode, I talk to Beth Friesen about practical tips for coping with this problem. Beth is the author of the book “I Love Someone With Dementia, So Why Am I Losing My Mind?”. She's also a nurse in a family of medical professionals. If their family struggled, we shouldn't feel bad about our struggles. Some families have a member who doesn't fully understand the disease which leads to negative situations. Understanding how to be in “their reality” is a key su...
2019-12-10
00 min
Toula's Tips for Caregivers
But I Am Too Young To Be a Caregiver! (A Millennial Shares Her Story)
How old do you have to be to be a caregiver for your parents?You are probably thinking the answer is middle-aged or older adults, in our 40s, of 50s or better.Sadly, more and more millennials (20s to mid-30s) are becoming caregivers every day. Actually, up to 25% of caregivers in the U.S. are millennials, caring for their aging parents. That is 30 years earlier than you expected!In this podcast of TOULA’S TIPS FOR CAREGIVERS, Adrienne Glusman shares her caregiving story with us. Adrienne became a caregiver for her mother at th...
2019-11-20
34 min
Fading Memories: Alzheimer's/Dementia Support
When & How to Choose In-Home Care
When should we consider in-home care for my loved one? How do we find the right help and where do we start? First, if your loved one is struggling to perform basic activities of daily living it's probably time to get help. Part-time help to start might be the best way to go in the beginning. Basic ADLs consist of self-care tasks that include, but are not limited to: Bathing & showering Personal hygiene & grooming (including brushing/combing/styling hair) Dressing Toilet hygiene (getting to the toilet, cleaning oneself, a...
2019-10-08
00 min
Fading Memories: Alzheimer's/Dementia Support
Giving a Caregiver Help
Providing caregiver help isn't easy. Asking for help is just one more task in a long list of tasks. Learning how we can provide help is the topic of this podcast. Because of their ever-increasing workload, 65% of caregivers are hospitalized or die before their loved one. For that reason, finding ways to provide help that works for them is crucial. Many caregivers don't ask for help for lots of reasons. Certainly, we can offer assistance without robbing them of their sense of self-reliance. Help is frequently refused when adult children are offering. Although this is tr...
2019-10-01
00 min
Beginners Archives - Fading Memories Podcast
Giving a Caregiver Help
Providing caregiver help isn't easy. Asking for help is just one more task in a long list of tasks. Learning how we can provide help is the topic of this podcast. Because of their ever-increasing workload, 65% of caregivers are hospitalized or die before their loved one. For that reason, finding ways to provide help that works for them is crucial. Many caregivers don't ask for help for lots of reasons. Certainly, we can offer assistance without robbing them of their sense of self-reliance. Help is frequently refused when adult children are offering. Although this is tr...
2019-10-01
1h 24
Fading Memories: Alzheimer's/Dementia Support
Walk To End Alzheimer’s – All About Fundraising & More
Walk to End Alzheimer’s is the world’s largest event to raise awareness and funds for Alzheimer’s care, support and research. The walk is held annually in more than 600 communities nationwide, In talking to Ginny Roth, walk coordinator for a Northern California walk, I learned about the importance of the fundraising in helping find a cure. In the United States, someone develops Alzheimer's every 65 seconds. Currently, there are more than 5 million people living with the disease. Additionally, there are over 16 million unpaid family caregivers supporting them. In 2019, Alzheimer’s disease will cost the United States $290 billion. T...
2019-09-24
00 min
"Care For Caregivers with Kathi Koll"
"Vacationing for Caregivers"
"Care For Caregivers" is a new podcast hosted by award winning author and speaker, Kathi Koll. Kathi became a full-time family caregiver to her husband Don after a catastrophic stroke in 2005 left him completely paralyzed from the neck down. Doctors said he would only live for 24 hours, but he went on to live for another six and a half years. Forced to live on a respirator, Kathi cared for Don, making sure his life was filled with love and compassion, right up until his passing in 2011. During her time as a caregiver, Kathi experienced the full spectrum of emotional and...
2019-09-11
00 min
Fading Memories: Alzheimer's/Dementia Support
Alzheimer’s & The Birth of AlzAuthors
Jean Lees parents were both diagnosed with Alzheimer’s on the same day. She was the hometown daughter, working full time. Her sister lived 1,000 miles away. What could have been a recipe for disaster became AlzAuthors. Jeans sister suggested keeping a journal as part of caring for their parents . The result of this journal keeping was not to eventually write a book. Quite the contrary. The journal clearly described the health issues of their parents. But keeping the journal, written words describing “private health information” made Jean feel profoundly guilty. In her own words...
2019-09-03
00 min
Fading Memories: Alzheimer's/Dementia Support
Medication Management Made Easy!
Staggering numbers of hospital readmissions are due to medication management errors made by the patient or caregiver. Taking the right pill, at the right time, in the right amount sounds simple, right? Not so much. Speaking with Kimber Westmore introduced me Pill Map. Pill Map is a medication management solution. What it's not is a pill box. Pill Map takes the worry and confusion of managing your loved ones medications. For example, when my Dad was released from the hospital my sister and I had to manage his medications for the paid caregivers. Th...
2019-08-27
00 min
Fading Memories: Alzheimer's/Dementia Support
Connected Horse- Healing for Dementia Patients & Caregivers
Participating in a Connected Horse workshop provides unique opportunities for people living with early-stage dementia and their care partners. It's time to be together and experience non-riding activities with horses. By experiencing the power of the human-horse connection participants feel relaxed, confident, and happy. Learning self-compassion, stress reduction strategies, communication and awareness practices is the goal. Connected Horse was founded in 2015 by Nancy Schier Anzelmo and Paula Hertel. Both horse lovers and are professionals in senior and dementia care in addition to gerontology. Their nonprofit is committed to the belief that horses can pr...
2019-08-20
00 min
Fading Memories: Alzheimer's/Dementia Support
Knowledge As A Coping Technique
These days there’s a lot more knowledge about Alzheimer's and I am truly grateful for that. I’m grateful to be part of the knowledge space. By learning more we are better able to handle challenging situations and keep our stress as low as possible. This episode is about how I use knowledge as a coping technique. When I started my podcast I wanted to share what I had already learned. Fearing that that knowledge wouldn’t provide too many episodes I started staking out other people and their knowledge. Needing to know more myself was anothe...
2019-08-06
00 min
Fading Memories: Alzheimer's/Dementia Support
Becoming a Savvy Caregiver
The Savvy Caregiver Program is a training program for caregivers like you. Caregiving is a role far different from being a spouse or child. Those terms describe relationships. Assisting and guiding someone who is living with a chronic illness is the definition of caregiving. It is work. The caregiving role has a “job description”. Putting together the tasks, the helping, the cleaning up, watching, worrying, everything make up the caregivers job description. Hiring someone to do what you do isn't truly possible. With enough money you can hire people to do many of your caregiving tasks...
2019-07-30
00 min
Fading Memories: Alzheimer's/Dementia Support
Creating Breathing Spaces for Family Caregivers
Sometimes the simple act of breathing, deep breath in and out can mentally give a caregiver space to solve a problem. Understanding the roller coaster of emotions caregivers go through is our guest, Cyndi. Living with and taking care of her Mom and brother was overwhelming. Cyndi was a stressed-out family caregiver not taking care of herself. (Sound familiar?) Self-care is a vital component in the overall caregiving journey. I am very reluctant to miss my regular exercise classes or bike rides because I know how I feel when I do. It is not a selfish thing to t...
2019-07-23
00 min
Fading Memories: Alzheimer's/Dementia Support
Honoring Grandma – Zach’s Alzheimer’s Journey
Choosing to embark on an Alzheimer's journey is not one most of us take. Generally, Alzheimer's chooses us and generally later in life. That is not the case for today's guest, Zach Smith. Zach volunteered at our local Alzheimer's Associations chapter as a way to fulfill a graduation requirement. At the time his grandmother was already living with Alzheimer's. Therefore, it was a natural place for him to want to volunteer. During his volunteer time, Zach met his future supervisor. She was in charge of Public Policy for Northern California/Northern Nevada. Volunteering was not glamorous but it...
2019-07-16
00 min
"Care For Caregivers with Kathi Koll"
Getting Support: The Challenges Caregivers Face
"Care For Caregivers" is a new podcast hosted by award winning author and speaker, Kathi Koll. Kathi became a full-time family caregiver to her husband Don after a catastrophic stroke in 2005 left him completely paralyzed from the neck down. Doctors said he would only live for 24 hours, but he went on to live for another six and a half years. Forced to live on a respirator, Kathi cared for Don, making sure his life was filled with love and compassion, right up until his passing in 2011. During her time as a caregiver, Kathi experienced the full spectrum of emotional and...
2019-05-29
00 min
Fading Memories: Alzheimer's/Dementia Support
Canine Caregivers (Dogs in the News Podcast)
I've had dogs all my life. However, I was not aware of canine caregivers until Ben & Michele of “Dogs in the News” podcast approached me. The idea was to create a shared episode to educate people about these dogs. After my conversation with Ben & Michele, I now want to get and train a dog to be a memory impaired communities caregiver! How can a dog help someone with memory loss? That was my question as well. Surprisingly, there are lots of things a dog can do to help someone living with memory loss. Dogs are especially useful one...
2019-03-19
00 min
Fading Memories: Alzheimer's/Dementia Support
Sharing Knowledge Between Caregivers (Francey Jesson)
Starting this podcast was all about sharing my knowledge with other caregivers. That was the plan with Francey, to have a conversation where we shared resources. As many of my recorded conversations go, we ended up talking about our shared journey. That's okay because I feel that hearing other caregiver stories, them sharing their knowledge is helpful to all of us. Knowing we're not alone, that we have similar struggles can be truly beneficial. I like to think of episodes like this one as a way to get support without having to leave your home. We all...
2019-03-05
00 min
Fading Memories: Alzheimer's/Dementia Support
Caregiver Struggles – A Supportive Alzheimer’s Novel
A common caregiver struggle is the lack of support from family members. Author Irene Olsen and I discussed potential solutions during our conversation on this episode. Irene survived to be an Alzheimer’s caregiver…twice. Her father, to whom her novel is dedicated, was the first family member. Then, Irenes' sister-in-law, diagnosed with mixed dementia a month after her father’s death, became the second. Why An Alzheimer's Novel? Feeling her experiences as a caregiver were meant to go further than the confines of her own heart and using her background as a care group facilitator and a state Omb...
2019-01-01
00 min
Fading Memories: Alzheimer's/Dementia Support
Let’s Get Personal & Talk about Jen’s Journey
Sharing our journey is helpful to caregivers in many ways. Sharing helps me feel less alone and helps me care for Mom in better ways. Hearing other caregiver struggles and being able to help is also a big reason to share our journey. This episode is all about talking about the months just prior to my Dad's death. Discussing his health issues and how they effected his memory may help others. I'm hoping that by sharing this part of my story it serves as a warning to others who may have similar struggles. Dad struggled with many chro...
2018-11-06
00 min
Toula's Tips for Caregivers
Even Sports Heroes Are Caregivers
When you hear, “football player”, what is the first thought that comes to your mind?Is it “a caregiver”?It will be after you listen to this podcast.Toula’s special guest in this podcast is former Jacksonville Jaguar defensive back Donovin Darius. Donovin was a first-round draft pick for the Jaguars in 1998, and played nine seasons with the team. He retired from football in 2013.More importantly, Donovin has been a caregiver for his mother, who became ill with various situations. Donovin said, “I knew that I had to do whatever I could do - s...
2018-04-11
36 min
Toula's Tips for Caregivers
Meet Your New Friends of Caregivers in Washington D.C
Caregivers do have friends in Washington D.C., who are looking out for you.In this podcast, Toula talks with one of those friends, Dr. Marian Grant, Senior Regulatory Advisor for The Coalition to Transform Advanced Care (or, C-TAC). C-TAC is dedicated to the ideal that all Americans with advanced illness, especially the sickest and most vulnerable, receive comprehensive, high-quality, person- and family-centered care that is consistent with their goals and values and honors their dignity. C-TAC accomplishes this by empowering consumers, changing the health delivery system, improving public and private policies, and enhancing provider capacity. C-TAC is...
2018-01-02
31 min
Toula's Tips for Caregivers
Be a better caregiver
Does it really feel like a “NEW” year? Or just more of the same?It can be different. You can find strength. You can be a better caregiver this year. I can help you to step into your power.That is why I have asked my good friend, and now a life coach, Carol O’Dell, to be my guest on this podcast of Toula’s Tips for Caregivers. Carol will help us to make this a real “new” year. Carol was a caregiver for her mother with Alzheimer’s, which she recalled in her book, Mothering Mother: A Daughter’s H...
2017-03-03
53 min
Toula's Tips for Caregivers
Toula's Tips For Caregivers - 060615 (1)
Do you remember how proud you felt?Weren’t you proud as a little child, being able to say the full alphabet, in order? Did you have your biggest smile when you spelled a new word?Now, as a caregiver, do you know the “caregiver alphabet”? Can you recognize all those new caregiver terms?What is SNF? (No, it is not “Saturday Night Fever.”)What is LTC? (No, it’s not “loving, tender care,” but you are close.)On this podcast of Toula’s Tips for Caregivers,” we will talk about all the acrony...
2017-01-29
52 min
Toula's Tips for Caregivers
Why Are You Thankful?
Are you giving thanks this holiday season? Why? How will you show it?We as caregivers have so much to be thankful for. But we also don’t have enough time to reflect on it.In this podcast of Toula’s Tips for Caregivers, my wonderful guests and I will share our stories of Thanksgiving. We also want to hear your story.Joni Aldrich is a nationally-recognized caregiver advocate, and a regular guest here. Chris MacLellan, “the Bow Tie Guy,” is a caregiver advocate, radio talk show host and author living in the Miami/Ft. Laud...
2017-01-18
53 min
Toula's Tips for Caregivers
My BIG ANNOUNCEMENT for Toula's Tips
In this podcast, I announce some BIG CHANGES for "Toula's Tips for Caregivers: HELP IS ON THE AIR." I want you to be the first to know when I talk about my plans I have been doing my radio show, Toula’s Tips for Caregivers Show for seven years on WBOB Radio AM600 and FM100.3 in Jacksonville FL. I have had many local and national guests on the show. They have shared their advice and their stories with you. As we approach 2017, after listening to you, I realized that I must change the format to reach more caregivers mo...
2017-01-07
53 min
Toula's Tips for Caregivers
Learning from a “Caregiver Crash Test Dummy”
What can we learn from a Crash Test Dummy?Crash Test Dummies are not just for car commercials. They help us learn a lot about crashes BEFORE WE GET INTO ONE!Wouldn’t you like to have a “Crash Test Dummy for Caregivers”? Someone who will make all the mistakes before we do, so that we can be safer?GREAT NEWS. That “crash test dummy for caregivers” will be on this Podcast.Peter Rosenberger is the founder of Caregivers With Hope. Peter has personally traveled the path of the family caregiver. In an unparal...
2016-07-27
53 min
Toula's Tips for Caregivers
Here For Those Who Were There For Us
What does Memorial Day remind you of?Of course - our veterans and their sacrifices to protect our freedom.To all our Veterans - Thank You For Your Service.And a special thanks to you, the "quiet heroes"- the family members who are caring for them.We want to be here for you.I want to make sure that you know about the support the Veterans Administration (VA) has for veterans and families who are caring for a veteran.How is caring for a veteran different from...
2016-07-23
53 min
Toula's Tips for Caregivers
What Comes First: Getting Old or Getting Depressed?
Is your loved one feeling gloomy or sad?Is it happening more often? Are you worried that it could lead to depression?More and more, caregivers are reporting that their loved ones are falling into a state of depression. What can we do?Talk to an expert!An expert like Doctor Michael Solloway, a Geriatric Psychiatrist with Baptist Behavioral Health and AgeWell Center for Senior Health. He is my special guest on this Podcast of Toula’s Tips For Caregivers.No. Depression is not normal in seniors, but it is more common than you would ex...
2016-07-23
54 min