Shows
ABCs of Disability PlanningFarewellThis is the last episode of the ABCs of Disability Planning podcast. Thank you for listening.
2025-01-2702 min
ABCs of Disability PlanningNeurodiversity-affirming support by Autistics, for AutisticsDoug Blecher founded Autism Personal Coach in 2013 in response to the near-total lack of real-life support for Autistic adults.
In 2022, Doug officially confirmed his suspicions about his neurotype. APC is now happy to confirm they are fully Autistic-led (and have been all along)!
All of their autism life coaches are either Autistic or chosen by Autistics. We choose them based on their commitment to trauma-informed and neurodiversity-affirming strategies. Their Coaches deeply understand burnout, sensory needs, and the importance of special interests. They empower our clients to take the lead, determine their goals...
2025-01-2039 min
ABCs of Disability PlanningIncreasing independence for adolescents, young adults, and adultsRoutine Success is a mobile application supporting the independence of neurodivergent young adults.
Build routines to prompt users as needed. Schedule these routines to notify the user at the appropriate times. Schedule routines to repeat on a daily, weekly, or monthly basis as needed.
The calendar view provides a quick overview of the day to come. Users can start routines early. Specify when reminders should be sent.
Users can view an example of what successful completion of a particular routine looks like. Users submit the routine for review when all tasks required by the routine...
2025-01-1335 min
ABCs of Disability PlanningEducation, Expertise, and Empathy on your Medicaid JourneyECR Planning offers professional support to families needing to access long-term care Medicaid benefits in their loved one’s state.
Step 1
Meet with one of ECR's expert Benefits Advisors to determine eligibility and decide if it makes sense for your family to hire a Medicaid planner. If working with them is the right fit, you will move on to the application process. During this call, you may decide that a Benefits Consultation is more appropriate for your situation.
Step 2
You fill out a comprehensive intake questionnaire and discuss the answers with your Medicaid Sp...
2025-01-0644 min
ABCs of Disability PlanningSolving Medical Mysteries through Team ScienceThe Undiagnosed Diseases Network (UDN) is a research study funded by the National Institutes of Health. Its purpose is to bring together clinical and research experts from across the United States to solve the most challenging medical mysteries using advanced technologies.
Through this study, we hope to both help individual patients and families living with the burden of undiagnosed diseases and contribute to the understanding of how the human body works.
Requirements for Online Application
If you decide to apply for this study, you will need to answer a series of brief questions through our ap...
2024-12-3043 min
ABCs of Disability PlanningConnecting those with disabilities to the resources they need mostNavigateMD provides a one-of-a-kind service to those with disabilities, their families, and others. Their platform connects these individuals with medical providers, businesses, non-profit organizations, and other resources that meet their needs. They understand that finding the help you need can often feel like a full-time job, resulting in high-stress levels and feeling overwhelmed. NavigateMD strives to make that a problem of the past with its easy-to-use, convenient, and time-efficient platform.
For those with disabilities, their families, and others looking for resources:
Free to use.
Easily find all relevant resources that meet your needs.
Gain access to...
2024-12-2320 min
ABCs of Disability PlanningCreating innovative shared living solutions for adults with disabilitiesPartners4Housing believes housing is the foundation of a good life. They are creating shared living solutions for adults with disabilities across the United States. They help you navigate the complex service agencies and secure housing for your loved one.
Their Products:
Benefits & Housing Review
Roommate Matching Pool
Shared Living Development
Consulting Services
Resources mentioned in the episode:
Affordable Housing Online
Family Opportunity Mortgage Loan Program
Connect to learn more:
Website: https://partners4housing.com/
Email...
2024-12-1639 min
ABCs of Disability PlanningMeet the new remote DSP solution from SimplyHomeSimplyHome’s remote direct support professional (rDSP) solution helps you give more people access to greater independence.
Whether you are looking for ways to expand capacity or better support your existing care teams, SimplyHome's new remote DSP solution provides real-time connectivity to real people. It’s a simple way to confidently accomplish more while providing exceptional care.
Both providers and end-users rate remote support services as providing more privacy, security, and independence than traditional services.
The SimplyHome System addresses concerns about cooking safety, falls, medication compliance, sleep patterns, wandering and elopement, aging in plac...
2024-12-0943 min
ABCs of Disability PlanningReal Life Access - helping businesses become more accessible
Real Life Access works with organizations to increase their bottom lines by making products and services accessible to people with disabilities -- and user-friendly for everyone.
They provide:
- accessibility courses, training. and consulting
- website audit and remediation. They can find and fix issues preventing people with disabilities from accessing your website.
- Public speaking about the importance of accessibility and how it can positively affect your bottom line
Current courses include:
- Access for Everyone, Digital Accessibility
-Access for Everyone, Physical Accessibility
- Access for Everyone, Cultural Accessibility
- Access for Everyone, Accessibility Basics
- See our...
2024-12-0236 min
ABCs of Disability PlanningWhat if signs could talk - RightHearRightHear provides talking signage so everyone can interpret and understand their surroundings in real-time.
The environment comes to life through audio descriptions delivered directly to a smartphone or tablet.Helping everyone, everywhere explore, navigate, and experience the world safely and independently.
RightHear’s solution works both indoors and outdoors.
It supports any industry, sector, or size of venue, from a Safari Park to a university campus to a hotel to a local eatery, and everything in between.
It’s easy fo...
2024-11-2549 min
ABCs of Disability PlanningExperiential Life - Embracing Yesterday's TomorrowThe Experiential Life App brings together parents and caregivers raising neurodivergent kids through community, webinars, parent support, and downloadable resources, all contained in a convenient app on your favorite device.
Webinars with professionals and neurodivergent people
Learn from the experts in real-time, or binge-watch the webinars at a time most convenient for you.
Downloadable resources
Need more information that you can reference later? Download resources shared by our experts, or access our library of scripts to help you communicate with your growing list of providers to call.
Community
Connect with other parents and c...
2024-11-1841 min
True Crime ABCsThanksgiving Break!Dani and Sarah will be back Sunday, December 3 with two stories supported by the letter Q!
True Crime ABCs wishes all of our American listeners a Happy Thanksgiving. See you next week!
Connect with us on social media @truecrimeabcpodcast or email us your thoughts, ideas, or listener stories to truecrimeabcpodcast@gmail.com!
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Support this podcast: https://podcasters.spotify.com/pod/show/truecrimeabcpodcast/support
2023-11-2600 min
True Crime ABCsS1E16: P is for...ParanormalWelcome to another week of the True Crime ABCs podcast! We decided to extend the Halloween season for an extra week and stick with a spooky theme! This week, P is for Paranormal and we are talking about ghosties!
Connect with us on social media @truecrimeabcpodcast or email us your thoughts, ideas, or listener stories to truecrimeabcpodcast@gmail.com!
Dani shares the story of Terasita Basa, whose ghost contacted a friend, which led to the arrest of her killer. Sarah shares an oldie-but-a-goodie with the Greenbrier Ghost, Zone Heaster...
2023-11-1249 min
True Crime ABCsS1E15: O is for...OriginsWelcome to the Halloween episode of the True Crime ABCs podcast! This week is supported by the letter O and O is for…Origins! We are talking about the history of Halloween and the traditions we all know and love. Then, the ladies discuss two crimes with Halloween themes.
Connect with us on social media @truecrimeabcpodcast or email us your thoughts, ideas, or listener stories to truecrimeabcpodcast@gmail.com!
Book Recommendations:
Trick or Treat: A History of Halloween by Lisa Morton
The Book of Hallowe'en by Ruth E. Kelley
...
2023-11-0553 min
True Crime ABCsS1E14: N is for...NeglectWelcome back for another week of the True Crime ABCs podcast! We are officially over halfway through season 1!
Connect with us on social media @truecrimeabcpodcast or email us your thoughts, ideas, or listener stories to truecrimeabcpodcast@gmail.com!
This episode is a heavy one and for that we apologize! Dani talks about Lacey Fletcher, who died in a horrific way due to her parents’ neglect. Sarah covers the story of the Turpin siblings, whose parents’ extreme neglect took decades away from the lives of the children.
If you o...
2023-10-2950 min
ABCs of Disability PlanningNavigating LGBTQ+ Planning and Allyship: Complexities, Legislation, and SupportIn this enlightening podcast episode, join us as we delve into the intricacies of LGBTQ+ financial and legal planning. Our guest, Mindy Neira, a seasoned financial planner with a focus on serving the LGBTQ+ community and individuals with disabilities, provides valuable insights into the challenges and considerations faced by this diverse group.
From navigating complex legislation to understanding the impact of legal changes on families, Mindy offers guidance on planning for a more inclusive and equitable future. Discover the role of allyship in financial planning, how to recognize an ally, and explore the new D.E.I...
2023-10-2245 min
True Crime ABCsS1E13: M is for...MafiaWelcome back for another week of the True Crime ABCs podcast! It’s Dani’s birthday week, so be sure to send her some love on our social media! This week is lucky #13 and we are finally feeling ORGANIZED. Because M is for Mafia…organized crime…see what we did there?
Connect with us on social media @truecrimeabcpodcast or email us your thoughts, ideas, or listener stories to truecrimeabcpodcast@gmail.com!
We are back in the Midwest this week. Dani tells the story of Chicago’s St. Valentine’s Day Massacre and...
2023-10-2239 min
ABCs of Disability PlanningA Zebra's Guide to Disability AdvocacySarah Semnyetzky is the author of "A Zebra's Guide to Disability Advocacy". Focusing specifically on the domains of academia, medical care, and interpersonal relationships and support networks, in the book Sarah focuses on helping disabled individuals and their loved ones navigate their own, diverse journeys.
She explores these topics using her personal and professional experience, and insight into the complexities of the disabled community. She analyzes how these complexities impact our needs as disabled individuals, using step-by-step guidance, detailed explanations, and personal anecdotes to illustrate her points. She also includes a specialized guide for those with ADHD...
2023-10-1644 min
True Crime ABCsS1E12: L is for...Lady KillersWelcome back for another week of the True Crime ABCs podcast! After a week off, we can’t wait to hear what you think of episode 12. This week, L is for Lady Killers!
Connect with us on social media @truecrimeabcpodcast or email us your thoughts, ideas, or listener stories to truecrimeabcpodcast@gmail.com!
Both stories follow the twisted paths of charming, handsome, and deadly men. Dani tells the story of Argentinian native, Ricardo Caputo, a serial killer who murdered women in the United States, and possibly in Central and So...
2023-10-1548 min
ABCs of Disability PlanningHow will I know? The "impossible choice" - Palliative or Hospice CareJuli and Chris Henderson have lived through one of the toughest times any parent can face, the loss of their son. In this interview, we have a very candid discussion about what they wish they'd known. The catalyst for this discussion was Juli's blog post "How will I know?".
Dr. Chris Henderson is a Critical Care Intensivist at CHRISTUS Santa Rosa (CSR) Westover Hills Hospital in San Antonio, Texas, and serves as a Member of the South Texas Regional Advisory Council Pandemic Medical Operations Workgroup. He is Board Certified in Critical Care, Pulmonary Medicine, Internal Medicine, and...
2023-10-0257 min
True Crime ABCsS1E11: K is for...KidnappingWelcome to another week of the True Crime ABCs podcast! This week, K is for Kidnapping.
Connect with us on social media @truecrimeabcpodcast or email us your thoughts, ideas, or listener stories to truecrimeabcpodcast@gmail.com!
Dani tells the amazing survival stories of Michelle Knight, Amanda Berry, and Gina DeJesus, after being held in captivity for years by Ariel Castro in the Cleveland area. Sarah covers the 1991 kidnapping of Jaycee Dugard. Jaycee was found alive after 18 years as Paul and Nancy Garrido’s captive in their Antioch, CA home....
2023-10-0151 min
ABCs of Disability PlanningEmpowering people and families impacted by Duchenne muscular dystrophyJett Foundation empowers people and families impacted by Duchenne muscular dystrophy through the development of transformative programming, educational opportunities, and ongoing support for every stage of a Duchenne journey.
Dan & DMD book - https://amzn.to/3QvfAV8
Transcript to the episode: https://docs.google.com/document/d/1uWsfzSjthW_69wVRFUdRCiG_GSz2gqGw/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
Connect to learn more:
Web: https://www.jettfoundation.org/
Email: info@jettfoundation.org
Facebook: https://www.facebook.com/jettfoundation/?ref=aymt_homepage_panel
IG...
2023-09-2555 min
ABCs of Disability PlanningRemove barriers and understand what helps your child thriveBeMe empowers Autistic individuals, their families, and care teams with the tools they need to thrive. BeMe combines medical, behavioral, and environmental factors in an insight-generating app designed specifically to support Autistic children. It was founded by and is comprised of a team very active in Autism care and advocacy. They are an organization including parents and caregivers, domain experts, and Autistic individuals. They know and have lived through many struggles and joys and come from a place of understanding. BeMe.ai is effortless to use, combining wearable technology and a smartphone app to simplify data entry. Their powerful A...
2023-09-1840 min
ABCs of Disability PlanningConnecting families affected by disability to recommended businessesEmpowered Together - Connecting families affected by disability to recommended businesses. They envision a world where tools and accommodations are in place for all people to meaningfully access and participate in their communities. While parenting her daughter with a developmental disability, Sarah Spear learned firsthand how isolating that journey can be and that other parents on similar journeys were feeling all alone. She recognized the value of sharing support and knowledge with one another and Empowered Together was born.
Connect to learn more:
Empowered Together (ET) Website: https://empoweredtogether.us/
...
2023-09-1232 min
True Crime ABCsS1E8: H is for HijackPlease donate to the Never Forget Fund, which raises money for the 9/11 Memorial Museum and provides education on the history of 9/11.
Dani and Sarah are hijacking your hearts (see what we did there?) with a new episode of the True Crime ABCs podcast. This week, H is for Hijack! While we did not intend for this week to sync up with Patriot's Day, we decided to roll with it. Dani tells the story of the Brillante Virtuoso, a tanker ship in the Gulf of Aden, while Sarah discusses the only unsolved aviation hijacking case in U.S. history, that of...
2023-09-1052 min
ABCs of Disability PlanningVideos to teach daily living skills - PICKLE SystemVideos to teach daily living skills - PICKLE SystemPickle System's mission is to improve the lives of individuals with autism and developmental disabilities by providing a personal, accessible, and hands-off resource utilizing video models, image-based content, and evidence-based guidance.Acquisition, maintenance, and generalization of daily living skills may increase independence, quality of life, employment outcomes, and post-school education opportunities for individuals with disabilities. Daily living skills are comprised of three domains - Personal, Domestic, and Community.Connect to learn more:Web: https://www.picklesystem...
2023-09-0439 min
True Crime ABCsS1E7: G is for...GuillotineIt's Episode 7 of the True Crime ABCs podcast and heads are ROLLING! Why? Because G is for GUILLOTINE!
Follow us on social media @truecrimeabcpodcast or email us your thoughts, ideas, and listener stories at truecrimeabcpodcast@gmail.com
This week, Dani tells the story of French woman, Charlotte Corday, who was executed by guillotine for assassinating a political leader during the French revolution. Sarah Covers Johann Reichhart, the official executioner in Germany from 1924-1946, notably during World War II.
Reading Recommendations:
Hitler’s Henchman: Nazi Executioners and How They Escaped Justice After WWII by Helmut Ortner
Beware Madame la Guillotine: Travel to...
2023-09-0339 min
ABCs of Disability PlanningMeet. Support. Advance. Raising awareness of another Rare Disease - TBRS CommunityMeet. Support. Advance. Raising awareness of another Rare Disease - TBRS CommunityTatton Brown Rahman Syndrome (TBRS) is a rare genetic disease caused by pathogenic variants (previously called mutations) in the DNMT3A gene and for that reason, it is also called DNMT3A Overgrowth Syndrome. Individuals with TBRS have overgrowth—typically, tall stature, increased weight, and large head circumference (also known as macrocephaly)—mild to severe intellectual disability, and subtle but distinctive facial characteristics. There are a variety of other symptoms that are al...
2023-08-2848 min
True Crime ABCsS1E6: F is for...FaithWelcome back to another week of the True Crime ABCs podcast! This episode is supported by the letter F and F is for...FAITH! We're talking cults this week, folks. Dani describes the church of the lamb of god, founded by Ervil LeBaron, a former LDS church member and polygamist. Sarah discusses the Rajneeshee community in 1980s oregon, started by Bhagwan Shree Rajneesh.
Follow us on social media @truecrimeabcpodcast or email us your thoughts, ideas, and listener stories to truecrimeabcpodcast@gmail.com.
Book Recommendations:
Rajneeshpuram: Inside the Cult of Bhagwan and Its Failed American Utopia by Russel King...
2023-08-2737 min
ABCs of Disability PlanningReach. Climb. Go. If you're a wheelchair user get your iBot Personal Mobility DeviceReach. Climb. Go. If you're a wheelchair users get your iBot Personal Mobility Device. One device, with 6 modes. Go beyond powered mobility in this revolutionary power wheelchair.
The world is not as accessible as it should be. The iBOT® PMD provides a unique multi-modal experience in personal mobility. Custom-fit to each user, with an iBOT® PMD the world opens up.
From Mobius Mobility's website: If the ATV had a quieter, smarter cousin, its name would be the iBOT® PMD. The iBOT® PMD engages four large drive wheels while automatically keeping the seat level. This allows users to trav...
2023-08-2157 min
True Crime ABCsS1E5: E is for EscapeWelcome back to another week of the True Crime ABCs podcast! This episode is supported by the letter E and E is for ESCAPE! Dani shares the 1978 story of Gary Tison's escape from an Arizona prison with the help of his sons. Sarah tells the story of the Texas Seven: seven inmates who escaped a Texas prison and went on a crime spree in 2000.
Follow us on social media @truecrimeabcpodcast or email us your thoughts, ideas, and listener stories to truecrimeabcpodcast@gmail.com.
Book Recommendations:
The Texas Seven: A True Story o...
2023-08-2032 min
ABCs of Disability PlanningEmpowering Kids Through Songwriting - Hear Your SongHear Your Song empowers children and teens with serious illnesses and complex health needs to make their voices heard through collaborative songwriting.
In their kid-driven process, Hear Your Song volunteers help kids write their song lyrics, which are then set to music and recorded, based on the kid’s musical ideas.
Hear Your Song provides support and training for undergraduate leaders who facilitate songwriting sessions with kids through local community partnerships.
Hear Your Song shares the extraordinary songs that kids write to celebrate each songwriter’s passion, imagination, and creative vision.
Connect to lear...
2023-08-1444 min
True Crime ABCsS1E4: D is for...DrugsWelcome back to another week of the True Crime ABCs podcast! This episode is supported by the letter D and D is for DRUGS! Run time is a bit shorter this week, due to some unforeseen audio issues and Sarah being back in the classroom!
Dani discusses the murders by Dr. Carl Coppolino, in a love-triangle–gone-wrong. Sarah covers the conspiracy theories surrounding the death of biochemist Frank Olson, and his involvement in the CIA’s MKUltra program.
SAMSHA Hotline for Substance Abuse and Mental Health (USA): 1-800-622-4357
Fol...
2023-08-1331 min
True Crime ABCsS1E3: C is for...CampusSchool’s back in session! Join Dani & Sarah for another episode of the True Crime ABCs podcast, where we take a journey through true crime, one letter at a time!
This week, C is for Campus. Sarah details the absolutely vile crimes of Ed Kemper, California’s Co-Ed Killer. Dani covers the serial killer that rocked Ann Arbor, MI in the 1960s, John Norman Collins.
Book Recommendations:
Mindhunter: Inside the FBI’s Elite Serial Crime Unit by John Douglas and Mark Olshaker
Terror in Ypsilanti: John Normal Collins Unmasked by Gregory A Four...
2023-08-0639 min
ABCs of Disability PlanningProtecting and advancing the rights of individuals with intellectual and developmental disabilities - Together for ChoiceTogether for Choice's Mission is to unite to protect and advance the rights of individuals with intellectual and developmental disabilities (I/DD) to live, work and thrive in a community or setting of their choice.
Ashley Kim Weiss is a social entrepreneur and disability advocate who currently serves as the Executive Director for Together for Choice.
She is also the President & CEO of Elevare Community, which provides consulting services in housing development, residential placement, and life planning for adults with intellectual and developmental disabilities. Prior to Elevare, Ashley was the co-founder and Executive Director of Villa de...
2023-07-3151 min
ABCs of Disability PlanningExcellence powered by a neurodivergent team - AspiritechMore than 90 percent of the Aspiritech team members are on the autism spectrum. TAspiretech hires and trains team members and aims to pair them with a client and project that matches their strengths and passions. The team members of Aspiritech represent a diverse group of individuals who’ve created a strong community and a world-class business model supporting Fortune 500 companies and small businesses alike.
Mission: Aspiritech is a world-class QA testing company that empowers individuals on the autism spectrum to fulfill their potential through meaningful employment combined with social opportunity.
Vision: Working togeth...
2023-07-2445 min
True Crime ABCsS1E1: A is for...AxesJoin Dani & Sarah for the FIRST EPISODE of the True Crime ABCs podcast, where we take a journey through our alphabet of true crime, one letter at a time!
A is for...Axes
Book Recommendations:
To Hell I Must Go by Rod Sadler
The Man from the Train: Discovering America's Most Elusive Serial Killer by Bill James and Rachel McCarthy James
This week, Dani and Sarah are delving into a few historical axe murders. Sarah shares the strange story of Martha Haney, also known as Michigan's Lizzie Borden. Dani discusses...
2023-07-2355 min
True Crime ABCsTrue Crime ABCs Season 1 TrailerListen in to True Crime ABCs Podcast! Join Dani & Sarah as they journey through their alphabet of true crime, one letter at a time! New episodes drop Sundays!
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Support this podcast: https://podcasters.spotify.com/pod/show/truecrimeabcpodcast/support
2023-07-1900 min
ABCs of Disability PlanningDevelopmental Disabilities and Sexuality. Elevatus helps you have these essential conversations.Developmental Disabilities and Sexuality. Elevatus helps you have these essential conversations. As national leaders in the field of sexuality and intellectual, developmental disabilities, and autism they offer evidence and trauma-informed curriculum, online training, in-services, and workshops to help professionals, educators, self-advocates, and parents skillfully and confidently navigate the topic of sexuality.
When it comes to talking about sexuality, people with disabilities are often excluded; almost as if they’re incapable of having sexual thoughts, feelings, and needs. In reality, they too are sexual beings who need the information and skills for making healthy decisions about sexuality. Though ag...
2023-07-1750 min
ABCs of Disability PlanningRaising Kellan - Empowering, connecting, and educating parents raising children with a disability. For Parents. By Parents.Raising Kellan Started in 2019. Most non-profits about children with a disability begin with a heart-rending story and the endless search on how to fix the disability.
The start of Raising Kellan wasn’t about that. You see, in June 2019, while visiting family in South Africa, Marsh Naidoo was asked to give a speech to health professionals at the Open Air School in Durban, and the feedback she received was unexpected. Sure, people were engaged. But, could she share her perspective as a physical therapist and mother of a child with cerebral palsy with other parents raising children with...
2023-07-1041 min
ABCs of Disability PlanningNo parent should feel alone. Ever. Parent to Parent USA is here to make sure you don't.Parent to Parent's Vision: Parent to Parent USA will support a network of viable, sustainable, fully-functioning, and effective Parent to Parent programs in all 50 states through hands-on support, training and technical assistance, and high-quality tools and resources. Our network’s parent leadership and engaged membership will serve as strong advocates, provide robust mentoring opportunities, and develop the working partnerships with funders, service providers, and others needed to sustain and grow the program nationwide.
Parent to Parent of the United States (Parent to Parent USA) was created in 2003 with funding from the Robert Wood Johnson Foundation to ensure tha...
2023-07-0341 min
ABCs of Disability PlanningIntroduction to the Job Accommodation NetworkThe Job Accommodation Network (JAN) is the leading source of free, expert, and confidential guidance on job accommodations and disability employment issues. Serving customers across the United States and around the world for more than 35 years, JAN provides free one-on-one practical guidance and technical assistance on job accommodation solutions, Title I of the Americans with Disabilities Act (ADA) and related legislation, and self-employment and entrepreneurship options for people with disabilities. JAN provides individualized consultation to assist:
Employers and their representatives seeking guidance on practical ways to engage in the interactive process, provide job accommodation solutions, and comply with...
2023-06-2643 min
ABCs of Disability PlanningThe Internet should be Accessible to Everyone!After over 11,000 Lawsuits, the Trend is Going Parabolic. There was a time when it was possible to get away with having a website that didn’t work for people with disabilities. But those days are long gone, and ADA regulations for web accessibility are being enforced in court.
Comply with ADA law and conform with WCAG 2.1 guidelines at every step of your web accessibility journey. Protect your website from accessibility-related lawsuits with the world's strongest automated solution for accessibility. Accessibility sets your website apart and showcases your commitment to inclusion - all while boosting SEO, search rankings, conversions, and you...
2023-06-1250 minABCs of Disability PlanningEric Presents "Putting It All Together - A Diagnosis to Adulthood Guide"In this bonus episode, Eric presents what parents and professionals should think about at various life stages, starting with receiving the diagnosis and ending when the child turns 21. Included are the question and answer sessions.
Here are the transition time stamps if you'd prefer to skip to the life stage you're currently in or approaching.
Introduction and Overview 3:09
Diagnosis 9:52
School Years 25:52
18 and older 44:30
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you...
2023-06-091h 30
ABCs of Disability PlanningBullied Brain Episode 1: Unraveling the Caricature: A Journey Through Personality Disorders and Self-Discovery"You were in a wasteland. And not only were you in a wasteland, but the two of them were predatory. I mean it's pretty unbelievable."
Link to download the transcript - https://docs.google.com/document/d/1_DWFHwg1VYGdXogg_Erp5tZlc5VfDwWg/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
Jennifer Fraser is the author of "The Bullied Brain: Heal Your Scars and Restore Your Health". She has a PhD in Comparative Literature and The Bullied Brain is her fourth book. She draws on medical, neuroscientific, and neurobiological research...
2023-06-071h 01
ABCs of Disability PlanningBecoming rentABLE - the Accessible Short-Term Rental ExpertsAfter 20 years of frustration, with very limited vacation options, Lorraine Woodward's family of four, three of whom have mobility issues due to muscular dystrophy, took it upon themselves to create their own accessible property. In 2014, Lorraine’s "A Place of No Worries" was realized. Their fully accessible property was not only a way to meet their own family vacation needs, but also a way to serve as an investment property that could be a resource for other families who needed the same accessibility features/needs.
Becoming rentABLE was founded in 2021, after years of struggling to find accessible short-term rental pr...
2023-06-051h 11
ABCs of Disability PlanningTrailer: Bullied Brain: Healing from, and overcoming, TraumaThis is the first episode of a joint venture between Jennifer Fraser and myself.
Jennifer Fraser is the author of The Bullied Brain: Heal Your Scars and Restore Your Health. She has a PhD in Comparative Literature and The Bullied Brain is her fourth book. She draws on medical, neuroscientific, and neurobiological research to examine what happens to brains that are bullied and abused. Jennifer's an award-winning educator and works as a coach, consultant, and international presenter.
The podcast is a dialogue that works in the first season like a...
2023-06-0101 min
ABCs of Disability PlanningEstate Planning For A Child With A Disability: Beyond the BasicsKim Martin is a trusts and estates attorney licensed in Georgia and Illinois whose practice focuses on estate planning for families with a special needs family member. Her areas of expertise also include guardianship, divorce settlement agreements in cases that involve a special needs child, and tax planning.
Kim’s publications include articles in Trusts and Estates Magazine and Family Lawyer Magazine. She has appeared on several podcasts, most notably Wealth Matters and ABC’s of Disability Planning. She recently recorded an informational video for True Link on the subject of Divorce and Special Needs Children. Hear more of Kim’s...
2023-05-2951 min
ABCs of Disability PlanningProviding assistance for our loved ones with communication issuesIf I Need Help understands the panic that can overtake a special needs loved one, caretakers, and the community when a loved one with special needs goes missing. Not being able to communicate with others due to a disability or disorder can be frightening and overwhelming. It doesn't have to be, and If I Need Help … can help.
If I Need Help reunites those who might become lost, disoriented, or need assistance in a critical moment with their families, loved ones, and caregivers using modern technologies in practical, accessible, and affordable ways.
Founders Bruce & Erin Wilson...
2023-05-2241 min
ABCs of Disability PlanningHow families and First Responders can work together to ensure the safety of our childrenStefan served as a patrol sergeant in the Chicago (IL) suburbs for ~ 19 years. He started Blue Line Spectrum Safety to provide comprehensive training relating to the unique challenges of those affected by Autism and intellectual disabilities to promote a greater understanding between all.
Stefan is an instructor for North East Multi-Regional Training (NEMRT), Tri-River Police Training Region, and is also an approved instructor regarding Autism and Intellectual/Developmental Disabilities for the Basic CIT Course with the Illinois Law Enforcement Training and Standards Board.
Stefan has written articles for the International Law Enforcement Educators & Trainers Association (IL...
2023-05-1556 min
ABCs of Disability PlanningEquipping Teens with a communication toolkit for social emotional well-beingSocial Optics is a web app that delivers direct instruction in a fun, anime environment. Their software collects data on a student's understanding of communication fundamentals, tracks progress, and provides feedback for students, teachers, administrators, and parents on individual dashboards.
Social Optics is part of a research study with the University of Montana MIND Lab. The mission of the MIND (Meaningful Intervention for NeuroDiversity) Lab at the University of Montana is to investigate the effectiveness of evidence-based practices for people that experience autism and neurodiversity across the lifespan and explore pedagogy related to adult learning.
T...
2023-05-0846 min
ABCs of Disability PlanningBehavior & Crisis Consulting w/ Barbara ValenzuelaBarbara Valenzuela started her company, T&K Innovators, to help families in crisis. They offer training and consulting for adults, with a focus on how to prevent the crisis before it happens. She likes to ask "What brings the caregiver and the person they are supporting joy?". Although it's still in the beginning stages, her plans are to put together a curriculum and build a community. Her advice for caregivers and parents when there is a crisis requiring law enforcement involvement is to tell the operator about the individual's disability, stressing what the person needs.
2023-05-0140 min
ABCs of Disability PlanningMedicine's dark side, how healthcare is failing some of usMarion Davis is a Marketing Strategist who develops Outreach Campaigns for Disabled Consumers. She's also a writer on Healthcare Accessibility Topics for the Millions of Homebound & Bedbound Patients in the US. She
In this episode, she shares the experiences she's had with US healthcare. Speaking for myself, I was horrified. No one should be subjected to this type of behavior. It's one thing to read statistics about how much abuse occurs in the United States, especially to women with disabilities. It's quite another to hear about it first-hand.
I hope this raises...
2023-04-241h 09
ABCs of Disability PlanningCan we stop with the "Inspiration Porn"?!
John Loeppky is a disabled freelance writer, actor, and creative currently living in Regina, Saskatchewan. He is the former editor-in-chief of the University of Regina's student newspaper, the carillon. He has published work with Passage, Media Co-op, CBC, Accessibility.com, Ricochet, IndieGraf, and FiveThirtyEight. He can be reached at John@Jloeppky.com.
Below is the article that caught my attention and led to this interview.
https://www.cbc.ca/news/canada/saskatoon/taking-a-sitting-stand-disability-representation-opinion-1.6744704
Connect to learn more:
Website: https://www.jloeppky.com/
Email: John@Jloeppky.com
Twitter: @Cymru_Et_C...
2023-04-1756 min
ABCs of Disability PlanningMaking sure families with Neurological Conditions aren't on the journey alone - Child Neurology FoundationThe Child Neurology Foundation connects partners from all areas of the child neurology community so those navigating the journey of disease diagnosis, management, and care have ongoing support from those dedicated to treatments and cures. Their expanding network of patients and caregivers, volunteers and advocates, researchers and clinicians are committed to helping one another along the path that leads to the best quality of care — and the highest quality of life—for every child.
Vision: "A world in which all children affected by neurologic disorders reach their full potential."
Mission: "To serve as a collaborative cent...
2023-04-0340 min
ABCs of Disability PlanningSTEERus - the world's first soft skills academySTEERus believes everyone can learn – but only if they’re willing to put in the work. While some behaviors require extended life coaching or business coaching to see an improved outcome, you can begin making changes in your life with “micro-burst” coaching and navigation sessions. Their Coaching Capsules are designed to be consumed in about 15 minutes and they set you up with workbooks and exercises and recommended reading. Follow-ups with 1:1 private coaching sessions (even as little as 15 min can make a difference) or group coaching sessions can help you navigate your personal and professional development.
Employee training is the k...
2023-03-2753 min
ABCs of Disability PlanningThe role of a Geriatric/Life Care ManagerThe Option Group is dedicated to offering comprehensive care management services for older adults, adults with disabilities, and adults with chronic illnesses. From Life Care Management services to family caregiver support, their goal is to give your loved one and your family the best quality of life possible. The Option Group works with family caregivers, medical professionals, and professional family advisors to ensure successful patient outcomes.
The Option Group has eight core knowledge areas that guide their care for adults with disabilities:
1) Crisis Intervention
2) Healthcare Navigation
3) Facility Placement
4) Healthcare...
2023-03-2043 min
ABCs of Disability PlanningJacob Levy - Career Coach to the NeurodivergentJacob teaches job seekers of all abilities how to identify opportunities OUTSIDE of their network by utilizing the LinkedIn algorithm, as well as content creation based on one’s subject matter expertise and targeting/adding value to decision makers behind any job in the world.
**STRONG supporter of jobseekers with DISABILITIES AND UNDERREPRESENTED populations**
Contact:
Email: jacob.a.levy@gmail.com
LinkedIn: https://www.linkedin.com/in/searchable4u/
Website: https://searchable.work/
As an Amazon Associate, I earn commissions from qualifying pu...
2023-03-1349 min
ABCs of Disability PlanningSensory-Friendly Healthcare - helping dentists & physicians reduce sensory triggersThere are unavoidable sensory triggers in healthcare settings. A dentist cannot work without putting tools in a patient’s mouth, and a doctor cannot forgo a necessary shot. However, there are many aspects of a healthcare visit that can be improved upon, better supporting a patient’s sensory needs. Sensory Health supports providers in both making the necessary environmental modifications as well as providing a foundational training program to support provider confidence.
Connect to learn more
Website: https://www.sensory.health/
Email: info@sensory.health
Phone: 469-305-7469
FB: http...
2023-03-061h 11
ABCs of Disability PlanningAxis for Autism - making Autism evaluations accessible and timelyAxis for Autism provides Arizona children, adolescents, and adults with the highest-quality autism evaluations. They’ve built Arizona’s most extensive diagnostic system with a deep bench of doctorate-level psychologists, allowing them to serve hundreds of patients monthly. Their highly trained clinical team uses multiple, scientifically validated diagnostic tools and extensive QA protocols to deliver gold-standard evaluations, including ADOS.
Axis for Autism’s deep bench of licensed doctorate-level psychologists has extensive backgrounds in child development and neurodevelopmental disorders. With each one specializing in a different stage of life — preschool children, adolescents, and adults — they can see hundreds of patient...
2023-02-2748 min
ABCs of Disability PlanningRobokind: robots helping Autistic students learnRoboKind is an education technology company that builds next-generation assistive robots and social-emotional curricula for autistic students. Over 400 districts work with RoboKind's CASE-endorsed program which includes facially-expressive robots and an SEL curriculum based on a multidisciplinary developmental behavioral approach, leveraging speech-language pathology, occupational therapy, applied behavioral analysis (ABA) principles, and developed with the assistance of subject-matter experts, professionals, and educators.
Each robot replicates most human facial expressions and speaks 20% slower than most people. The embedded chest screen displays core vocabulary and icons, an important evidence-based practice. Every robot also has a name, inspired by the values and...
2023-02-2053 min
ABCs of Disability PlanningIntroduction to Protection and Advocacy Agencies w/ Morna MurrayFrom the Administration for Community Living (ACL):
Protection and Advocacy Systems (P&As) work at the state level to protect individuals with disabilities by empowering them and advocating on their behalf. There are 57 P&As in the U.S. and its territories. Each operates independently and may partner with agencies that provide other services.
Along with the other AoD grantees, P&As are dedicated to the ongoing fight for the personal and civil rights of individuals with disabilities. P&As provide legal support to traditionally unserved or underserved populations to help them navigate the legal s...
2023-02-1358 min
ABCs of Disability PlanningUncommon Sense Parenting with Allana RobinsonAllana Robinson is a Parenting Coach and CEO of Uncommon Sense Parenting, as well as a Registered Early Childhood Educator, Mom of two, and military wife. Her mission is to make the mysterious inner workings of your child’s brain not such a mystery anymore. She wants you to feel like the expert on your own child, ready to take on the world. But she knows you don’t have time (or the desire) to go out and spend the time (not to mention the money!) on all the certifications, learning all the different methods, and reading all the book...
2023-01-2347 min
ABCs of Disability PlanningWheelchairs don't have to take away your independenceBrianna Paauwe became a wheelchair user after a car accident left her with a spinal cord injury. Since the accident, she found her love of helping others through volunteering and going back to school for Human Services, Social Work, and Criminal Justice. Brianna helped launch a fitness app for wheelchair users, Wheel With Me Fitness.
Links to resources mentioned:
Think and Grow Rich
Nolu - dating app
Connect to learn more:
Wheel With Me Fitness: https://wheelwithmefitness.com/
Wheel With Me Foundation: https://www.wheelwithmefoundation.org/
2023-01-1645 min
ABCs of Disability PlanningAdapt, Move, & Gain with Paralympian Swimmer Alyssa GialamasDon't let your disability keep you from exercising, especially if it's something you enjoy! All of AMG Fitness' programs are free for participants. The workouts in each program are the same, they're adapted to meet an individual's needs - seated, seated and standing, or standing. Each program has ~ 20 workouts. As a nonprofit AMG Fitness relies on the generosity of donors like you. Please use this link if you would like to support their mission.
The mission for AMG Fitness is three-pronged:
Workout Plans: Create numerous workout routines that are easily customizable for varying types of...
2023-01-0931 min
ABCs of Disability PlanningHow do you protect yourself, or your children, from abuse - w/ Amy SaltzmanThere is an epidemic of abuse in society.
Reports of abuse surface on an almost weekly basis across organizations and industries.
Gymnasts abused by Larry Nassar, and in the Olympic programs of at least 6 other countries, female soccer players abused by multiple youths and NWSL coaches, high school rowers abused in Maryland, bobsledders, rugby players and rowers abused in Canada, football players abused by the team doctor at the University of Michigan, US snowboarders, NHL hockey players…And those are just the stories that have made the news.
Research indicates children are most vu...
2023-01-0242 min
ABCs of Disability PlanningAre you empowering AAC users, or censoring, and maybe even accidentally hurting, them?Are you empowering AAC users, or censoring, and maybe even accidentally hurting them? AAC users have little to no control over what words they have to communicate. They rely on whoever programs their device. This could lead to well-meaning individuals inadvertently censoring an AAC user. Worse, it leaves AAC users unable to say anything about the abuse they may be suffering.
Ms. Hali Strickler is an AAC Services Coordinator for TechOWL at the Institute for our Whole Lives. She provides AAC, assistive technology support, and services to individuals with complex communication needs. Hali received...
2022-12-2655 min
ABCs of Disability PlanningAbuse Red Flags with Marvie Corbett, LCSWAbuse Red Flags - do you know what you should be looking for? It's not always blatant. In this episode Marvie shares what parents and professionals can do to spot abuse.
Marvie Corbett serves as a Director of Psychotherapy and our Director of Educational Advocacy with Rebecca Resnik and Associates. Marvie is a Licensed Clinical Social Worker (LCSW-C) in the state of Maryland. She has been in the field for over 10 years. Marvie earned her Master's in Social Work at the University of Maryland, Baltimore in 2013. Marvie graduated from West Virginia University in 2008 with a...
2022-12-1954 min
ABCs of Disability PlanningMarital therapy for parents of Special Needs children with Eleni Paris, LMFTEleni Paris is a licensed marriage and family therapist in the Tampa Bay area with a bachelor's degree in psychology and a master's degree in marriage and family therapy, both from Virginia Polytechnic Institute and State University. She has over 20 years of professional experience including clinical work, workshop and seminar presentations, discussion and support groups, writing contributions, collaborative work with various health professionals, and wellness coaching. Eleni is a clinical member of the American Association for Marriage and Family Therapy and has been published in the Journal of Marital and Family Therapy.
Eleni is married and has t...
2022-12-1250 min
ABCs of Disability PlanningImproving assessment and treatment services for children with autism spectrum disorders w/ Blaire Donnelly-MasonThe Vanderbilt Kennedy Center Treatment and Research Institute for Autism Spectrum Disorders (TRIAD) is dedicated to improving assessment and treatment services for children with autism spectrum disorders and their families while advancing knowledge and training.
Since its inception and evolution, TRIAD has provided services to thousands of children and families throughout Tennessee and beyond. TRIAD programs address community needs for cutting-edge information, high-quality support, and innovative interventions for children with autism spectrum disorders. TRIAD’s specialized outreach staff provides training and direct consultation in state-of-the-art behavioral and educational assessment and intervention strategies in schools th...
2022-12-0550 min
ABCs of Disability PlanningHow your State's Developmental Disability Council is helping you - Rachel London, Executive Director Maryland Developmental Disability CouncilCreating Change • Improving Lives
The Maryland Developmental Disabilities Council creates change to make it possible for people with developmental disabilities to live the lives they want with the support they need.
Their vision is that people with and without disabilities in Maryland live, learn, work, and play together.
The Maryland Developmental Disabilities Council (Council) has been creating change to improve the lives of people with developmental disabilities since 1971. They focus on children, family, and adult issues. The Council is an independent state agency. They are led by people with developmental disabilities and family mem...
2022-11-2846 min
ABCs of Disability PlanningThe role of a Pooled Trust - Denise Fike, Executive Director of First Maryland Disability TrustFirst Maryland Disability Trust specializes in cost-effective, special needs disability trustee services designed to enhance beneficiaries’ quality of life. They provide families, friends, and individuals with the tools to plan for current and future needs. All while protecting eligibility for public disability benefits.
Supporting and encouraging families to plan for the future, including:
Special Needs Trusts
Special Needs Planning
Settlements
Inheritance & Unplanned Funds
Social Security Administration (SSA) Awards
Connect to learn more:
Web: https://www.firstmdtrust.org/
Phone: 410-296-4408
As an Amazon Associate, I ea...
2022-11-2147 min
ABCs of Disability PlanningHelping you create successful habits - Executive Function Coach, Fawzya KhostiExecutive Function Coach helps individuals diagnosed with giftedness, 2e, dyslexia, dysgraphia, AD/HD, ODD, dyscalculia, anxiety, "high-functioning Autism", memory problems, and minor traumatic brain injury ("m TBI") improve their executive function skills. They customize their services to meet their client's individual needs.
Resources Mentioned:
Tower of Hanoi
Mindprint
Focus on Success Radio
Executive Function Magazine
Luminosity
Connect to learn more:
Web: https://executivefunctioncoachaz.com/
Facebook: https://www.facebook.com/focusonsuccess11/
IG: @executive_function_coach
A...
2022-11-1450 min
ABCs of Disability PlanningSee the Sunshine in Every Child - Sunshine FoundationSunshine Foundation’s sole purpose is to answer the dreams of chronically ill, seriously ill, physically challenged, and abused children ages three to eighteen, whose families cannot fulfill their requests due to the financial strain that the child’s illness may cause.
Sunshine Foundation’s special dreams can be anything from a celebrity meet and greet, a family trip, a shopping spree, or adaptive medical or therapeutic equipment! Our dreamers have requested and received items such as above-ground swimming pools, outdoor play equipment, sensory rooms, and many other amazing dream items.
When asked the question, “If you co...
2022-11-0751 min
ABCs of Disability PlanningHelp individuals with cognitive disabilities to achieve independence across all of life’s domains - Avail by CentralReachFounded & launched in 2017 by Lisa Marie Clinton, avail® was developed from a desire to both raise public expectations and empower individuals to achieve their goals. Lisa questioned how to revolutionize how individuals were supported and equip them with the tools to self-manage their day and have ownership. The advances in technology can now support such an approach.
In addition, they wanted to support organizations to be in line with best practice guidelines, and implement evidence-based programs which report and achieve data-driven outcomes.
This has been achieved, and today the solution is funded globally by many l...
2022-10-3149 min
ABCs of Disability PlanningRestoring hope for families with Autism - NuroluxNuroLux is a movement to restore hope for families impacted by Autism by providing them with the team, clinical and educational technology tools, and a plan to light the path ahead.
Their Logo & Alliance
As reflected by the three hands protecting the heart in their logo, they believe a balanced Alliance between (1) the family, (2) the multi-disciplinary professional team, and (3) the community will significantly improve the lives of families impacted by Autism. This Alliance must be managed as your impacted child has new teachers, care teams, and experiences. NuroLux will provide families with the tools to...
2022-10-2434 min
ABCs of Disability PlanningRODS Heroes - Helping orphaned children with Down Syndrome come home to loving familiesAround the world, children with Down syndrome are routinely abandoned and institutionalized for life. This widespread problem seems overwhelming, but there is hope. RODS Heroes wholeheartedly believe that when you become actively engaged in good work, whether that be adopting a child or helping create opportunities for others to adopt, you will witness miracles. People will help you, partnerships will be forged, and all of the necessary components of your plan will fall into place. But you have to be willing to take a leap of faith.
RODS Heroes is a nonprofit committed to finding a loving...
2022-10-1741 min
ABCs of Disability PlanningSpecial Abilities Network - Empowering Children with Special Needs Through Smart PlanningThe Special Abilities Network (SAN) is a team of financial planners who are members of the special needs community professionally and/or personally. They’ve made it their life’s work to empower families in the special needs community because they understand what it means to wake up in the middle of the night with fears of the future.
The founders of SAN prefer the term “special abilities” rather than “special needs.” This is because their own experience with their own children has been that, although they do need more help than typically developing individuals would, their children do h...
2022-10-1046 min
ABCs of Disability PlanningIntroduction to the FD / MAS Alliance with Adrienne McBride & Anne CorvelleWhat is FD/MAS?
The name of this condition, Fibrous Dysplasia/McCune-Albright syndrome (FD/MAS), can sometimes be confusing. Some people only have affected bones, in which case it might be called FD. When bones and other tissues are affected, it is called MAS. Since both FD and MAS are caused by the exact same gene mutation, and since many people with FD also have other tissues involved, the FD/MAS Alliance and doctors have decided to call it FD/MAS. It is a rare condition caused by a mutation in the gene GNAS. The mutated gene p...
2022-10-031h 07
ABCs of Disability PlanningNolu - a new kind of dating app, because emotional inclusion mattersNolu is a new kind of dating app specifically designed for people living with disabilities providing a fun, safe, and inclusive community for dating. It's a cultural movement, an equal opportunity for romance, love, and companionship.
Nolu is open to all and welcomes everyone looking for emotional inclusion! It was designed to cater primarily, but not exclusively, to the needs of people with disabilities, as opposed to traditional applications that leave very little room for inclusion and diversity. Their dating community is fully inclusive and encourages authenticity and transparency.
Nolu's mission is to help as...
2022-09-2646 min
ABCs of Disability PlanningDivorce: How a Coach can help you "cross the bridge from pain to peace and crisis to calm" with Dr. Susan BernsteinDr. Susan Bernstein is a Certified Divorce Coach and Certified High Conflict Divorce Coach with a specialty in Post Divorce Recovery and Transition and Post Separation Abuse, she will help you go through the changes of divorce with ease. She helps clients achieve their goals and get to where they want to be.
Susan helps many clients who want to get out of toxic relationships get what they need and deserve related to their children and finances. Susan is a leader for Vesta Divorce and the National Association of Divorce Professionals (NADP). She teaches a mastermind class and is...
2022-09-1941 min
ABCs of Disability PlanningzPods - the Future of Sleep for Sleepless ChildrenzPods - "Dream, Play, Sleep"
zPods is the first U.S.-based company to provide kids with a customizable, sensory-friendly sleeping pod. These regenerative spaces come jam-packed with intelligent lighting control, white noise generation, Bluetooth speakers, and more. zPods believes children can find better sleep with these tools, helping parents sleep better.
The American Academy of Family Physicians is saying that up to 50% of children will experience some sort of sleep challenge. If this statistic is true it's likely parents are going to have issues sleeping. Especially, if their children are having difficulty. Not...
2022-09-1247 min
ABCs of Disability PlanningTraveling Different: Vacation Strategies for Parents of the Anxious, the Inflexible, and the Neurodiverse"Traveling Different: Vacation Strategies for Parents of the Anxious, the Inflexible, and the Neurodiverse"
Dawn M. Barclay is an award-winning author who has spent a career working in different aspects of the travel industry. She started as an agent with her parents’ firms, Barclay Travel Ltd and Barclay International Group Short-Term Apartment Rentals, and then branched out into travel trade reporting with senior or contributing editor positions at Travel Agent Magazine, Travel Life, Travel Market Report, and most recently, Insider Travel Report. She is a mother of two and resides in New York’s scenic Hudson Valley. She...
2022-09-0540 min
ABCs of Disability PlanningAccessible Housing Matters with Stephen BeardStephen Beard is a Real Estate Agent, Accessibility Specialist, and host of the "Accessible Housing Matters" podcast. We talk about the challenges individuals face with disabilities when trying to find not only affordable but accessible housing. If you're interested in more episodes about housing, I have links to several of Stephen's shows we mentioned below.
How Tennessee integrates enabling technology
Making Universal Design sexy
Disaster Planning
Want to learn more:
Website: https://accessiblehousingmatters.com/
Email: Stephen@AccessibleHousingMatters.com
Facebook: @AccessibleHousingMatters
Twitter: @AccessHousMat
2022-08-2940 min
ABCs of Disability PlanningKoolway Sports - Outerwear for individuals with disabilitiesKoolway Sports designs and manufactures outerwear for individuals with disabilities, enabling them to achieve their maximum level of independence in all aspects of their life!
Learn more: Website: https://koolwaysports.com/
Facebook: @Koolwaysports
Twitter: @Koolwaysports
Email: info@koolwaysports.com
Phone: 905-493-3188
Lori's Voice - https://www.lorisvoice.org/
Runway of Dreams - https://www.runwayofdreams.org/
Christopher Reeve's Books - https://amzn.to/3e3lueY
Mattie Stephanik's Books - https://amzn.to/3AtvrKj
As an Amazon Associate, I e...
2022-08-2255 min
ABCs of Disability PlanningDebra Ruh - Disability Inclusion MasterDebra Ruh is a Master when it comes to Disability and Inclusion. Her accomplishments are many and varied. They include:
- Working as a consultant for UN ILO Global Business and Disability Network (GBDN)
- Partner with ztudium and citiesABC
- Expert Partner with The Valuable 500
- Global Speaker for the US State Dept
- Expert technologist and communications inclusion expert
She's authored several books:
"Inclusion Branding" - https://amzn.to/3cuevLk
"Find Your Voice using Social Media: Follow your Passion and Change the Wor...
2022-08-151h 02
ABCs of Disability PlanningAutism Doesn’t Need To Mean Loneliness. Live The Social Life You Deserve.Autism Doesn’t Need To Mean Loneliness. Live The Social Life You Deserve.
Jeremy Hamburgh invites you to learn more about My Best Social Life - https://mybestsociallife.com/
Most social strategies just don’t work for people with autism. Dating sites. Social networks. Online forums. There are millions of options. And yet 91% of people on the spectrum will never find someone special.
Jeremy teaches his students cutting-edge social techniques that really work for people with autism. And he gives you world-class support so you know who to meet, where to meet them, and h...
2022-08-081h 03
ABCs of Disability PlanningThe Margaret Hackett Family Program in CNS Congenital AnomaliesJudie Holleman, APRM, PCNP-BC, CPNP-AC, CCRN, is a Nurse Practitioner for the Margaret Hackett Family Program. During this interview, we explore what the Margaret Hackett Family Program (MHFP) does and how families can advocate for themselves. I feel it's important to stress this program is available to ANYONE from ANYWHERE in the country.
Through a generous donation from the Margaret Hackett Family Center, the Margaret Hackett Family Program (MHFP) is available to help patients and families with CNS congenital anomalies navigate UChicago Medicine’s resources and establish collaborative communication between patients and their providers. The...
2022-07-0445 min
Cancer ABCs From Surviving To Thriving - How to Thrive with CancerNBA Basketball Superstar Grant Hill Discusses Racial Disparities in Prostate CancerNBA superstar Grant Hill, also an Atlanta Hawks co-owner, and African American health advocate, has teamed up with Dendreon to combat the prostate cancer racial disparities experienced by African American men. He discusses, along with Cancer ABCs CEO Joel Nowak, how men, particularly African American men, can combat the disparities. They focus on how a man can develop their own playbook to beat prostate cancer, what role a man should play with his doctor and the importance of becoming an educated patient. Mr. Hill shared a program he has started with Dendreon called Start Strong. Start S...
2022-06-0927 minCancer ABCs From Surviving To Thriving - How to Thrive with CancerNode Positive Prostate Cancer – Treatment and SurvivalOverall survival and cancer-specific survival for those with node-positive prostate cancer treated with surgery lived longer than those who elected radiation treatment. Men diagnosed with node positive prostate cancer need to decide if they want to include a targeted treatment to their prostate gland along with a systemic treatment like hormonal therapy. Most men who elect to include a targeted therapy will choose between either surgery or radiation. A retrospective observational study concluded that men who did elect to use surgery as opposed to radiation lived longe.Read the study at;https://onl...
2022-03-2102 minCancer ABCs From Surviving To Thriving - How to Thrive with CancerMethotrexate and the COVID Vaccine -WARNINGhttps://ard.bmj.com/content/early/2021/08/22/annrheumdis-2021-220597 As per the link above, individuals taking the drug methotrexate experience an up to 62% reduced rate of an immunological response when given a mRNA Covid-19 vaccination like to Pfizer and Moderna vaccines. This finding suggests that patients on methotrexate may need alternate vaccination strategies such as additional doses of vaccine, dose modification of methotrexate or even a temporary discontinuation of this drug.In this podcast, Joel Nowak from Cancer ABCs, who is taking methotrexate, after having is booster shot of the Moderna vaccine was informed by his do...
2021-08-2906 minCancer ABCs From Surviving To Thriving - How to Thrive with CancerA Special Message for Someone Diagnosed with CancerWhen you are first diagnosed with cancer, when the doctor says to you have cancer, you are likely to have many different responses. Among these first possible responses are fear, apprehension, disbelief, sadness, anger, dread, or even denial. Any and all of these reactions are reasonable and normal.The question is how do you chose to deal with these feelings? Everyone's cancer is different and how we as individuals deal with our cancer is also different. However, developing a specific mindset, taking personal responsibility for yourself and your medical care, learning about your disease and de...
2021-08-2407 minCancer ABCs From Surviving To Thriving - How to Thrive with CancerNew Orleans Music Producer Shane Norris Diagnosed with Prostate Cancer During Covid Shares His Journey with HIFU TreatmentJoel Nowak and Shane Norris discuss his unusual Covid Pandemic Journey with a new prostate cancer diagnosis. Shane, a well-respected music producer and gig worker, joined with other New Orleans artists to raise funds for out-of-work musicians. As he began to create a fund raising vehicle he was diagnosed with prostate cancer. Shane shares the experience he had navigating the Covid pandemic as he searched for the prostate cancer treatment that he felt best suited his needs. With financial support raised from a GO-Fund-Me project as well as help and guidance from a number of resources, including medi...
2021-06-2226 minCancer ABCs From Surviving To Thriving - How to Thrive with CancerUnderstanding the Importance of Radiopharmaceutical Scans and Why They Might Not Be Available for Us When We Need ThemRadiopharmaceutical scans (PETS) are a vital tool in our fight against cancer. These special PET scans allow us to make earlier cancer diagnoses while a cancer is still contained in the original organ. With an earlier diagnosis, treatments can still stop the cancer before it is able to move to other parts of the body, or become metastatic. These special scans also are our best tools to evaluate whether our treatments are working, or if we have developed resistance to the treatments. FDA approved treatments are limited, so we have to take full advantage of them...
2021-04-2312 minCancer ABCs From Surviving To Thriving - How to Thrive with CancerSurvival with Provenge - Real World Data Along with A Peek Into the Future of TreatmentJoel T Nowak from Cancer ABCs discusses with Dr. Rana McKay, Associate Professor of Medicine at the Moores Cancer Center at the University of California in San Diego, her recently published article that analysizes real world data that demonstrates that Provenge (sipuleucel-T), an immune therapy for castrate resistant metastatic prostate cancer (mCRPC), can reduce the risk of death over and above the newer hormone treatments that have been FDA approved . Dr, McKay evaluated a large medicare data base and determined that despite the addition of the many second generation hormone treatments like Zytiga and Xtandi, Provenge continues to lo...
2020-12-2125 minCancer ABCs From Surviving To Thriving - How to Thrive with CancerIs ADT Hormone Therapy Necessary When You Take Abiraterone Acetate aka Zytiga?One of the most common question men with prostate cancer ask us at Cancer ABCs is if they can stop their hormone therapy (ADT) when they go on a second generation hormone treatment like abiraterone (Zytiga).A recent analysis of the SPARE Trial points us in the direction that it might be possible to halt ADT when you are taking Zytiga. SPARE was a small trial which needs to be replicated by a larger trial before we can gain confidence in this conclusion. SPARE did not evaluate what, if any change. stopping ADT when you are...
2020-10-1506 minCancer ABCs From Surviving To Thriving - How to Thrive with CancerUsing the Oncotype DX Genomic Prostate Score to Decide if You Are A Candidate for Active SurveillanceWritten Transcript at:https://www.cancerabcs.org/transcript-oncotype-prostate-sore-and-active-surveillanceMr. Anson Tharayanil, a Medical Science Liaison from Genomic Health rejoins Joel Nowak from Cancer ABCs to talk about another test for men diagnosed with low or favorable medium risk prostate cancer, the Oncotype DX Genomic Prostate Score.The test should be used along side the traditional measures we use like biopsy Gleason Grade and scans to help a man decide if he is a good candidate for Active Surveillance (AS) as opposed to having surgical or a radiation intervention. Biopsies only sample 1% of a...
2019-07-1921 minCancer ABCs From Surviving To Thriving - How to Thrive with CancerMark Hall's Metastatic Prostate Cancer Journey with Dr. Snuffy Meyers and Provenge (sipuleucel-T)Written Transcript at:https://www.cancerabcs.org/transcriptMark Hall was diagnosed with metastatic prostate cancer with a PSA of 4,400 and a Gleason Score of 8. Despite these terrible numbers he has been thriving the last four years with an undetectable PSA and a fantastic quality of life!Mark shares his journey, where under the guidance of Dr. Charles (Snuffy) Meyers he went through a heavy regime of hormone therapy treatments as well as the immunotherapy Provenge (sipuleucel-T). Mark has been experiencing a profound four year remission of his probate cancer. Mark attributes his...
2019-05-1630 minCancer ABCs From Surviving To Thriving - How to Thrive with CancerRemediating Hormone Therapy (ADT) Side Effects for Men with Prostate CancerJoel T Nowak from Cancer ABCs along with oncology nurse Fran Fanning (co-owner of Heavenly Hash) participated in a prostate cancer patient conference sponsored by Prostate Cancer International. The conference was held in Ft. Meyers Florida in March of 2019.They offered a live presentation that described how hormone therapy worked, how it is achieved, its side effects as well as some "grassroots" methods used by men to control the side effects caused by ADT (hormone therapy). Fran's presentation included information and a discussion about the role of CBD and THC (marijuana) in cancer care.Both Fr...
2019-03-1342 min