Shows
The Dr. Raj PodcastWhat is Lewy Body Dementia with Mary Lou FalconeToday’s Guest
Mary Lou is a sought-after speaker and advocate on Lewy Body Dementia and Caregiving since writing her first book. I didn't see it coming. Scenes of love, loss, and Lewy Body Dementia. Mary Lou was inspired to write her memoir after her late husband, illustrator Nicky Zann, died from Lewy Body Dementia in 2020. Mary Lou's journey with Nicky was not her first time as a caregiver. When Mary Lou was 10 years old, her father at age 37 suffered a massive stroke that robbed him of his ability to speak as well as his employment.
T...2025-07-1636 min
Lewy Body Roller CoasterThe Last Goodbye: Planning Your Funeral Before Lewy Takes OverThis week, Curry shares with us his and his wife Linda's experience going to a funeral home to plan their funerals in advance so their children did not have to later on. He shares how he felt during the process and why he wanted to share with our listeners and members of our Facebook pages."I would hate to have left Linda to decide all that in a day or two," Curry confesses, his voice carrying the weight of nine years living with LBD. During a recent period when his symptoms have intensified—increased confusion, slurred speech, an...2025-06-0246 min
Press Play On The Most Immersive Full Audiobook Today!Lewy Body Blues by Harriet Williams, Briana NelsonPlease visithttps://thebookvoice.com/podcasts/2/audible/24243to listen full audiobooks.
Title: Lewy Body Blues
Author: Harriet Williams, Briana Nelson
Narrator: Mandy Grant-Grierson
Format: mp3
Length: 2 hrs and 13 mins
Release date: 04-07-25
Ratings: Not rated yet
Genres: Physical Illness & Disease
Publisher's Summary:
Lewy Body Blues: A Family’s Roller Coaster Experience with Lewy Body Dementia is an insider’s perspective on how one family adapted and learned to cope with this incredibly challenging and progressively debilitating disease. Based on a personal journey and filled with facts and strategies for handling Lewy Body Dementia, this book is essential listening for anyone desi...2025-04-072h 13Enjoy The Most Award-Winning Full Audiobook Today!Lewy Body Blues by Harriet Williams, Briana NelsonPlease visithttps://thebookvoice.com/podcasts/2/audible/24243to listen full audiobooks.
Title: Lewy Body Blues
Author: Harriet Williams, Briana Nelson
Narrator: Mandy Grant-Grierson
Format: mp3
Length: 2 hrs and 13 mins
Release date: 04-07-25
Ratings: Not rated yet
Genres: Physical Illness & Disease
Publisher's Summary:
Lewy Body Blues: A Family’s Roller Coaster Experience with Lewy Body Dementia is an insider’s perspective on how one family adapted and learned to cope with this incredibly challenging and progressively debilitating disease. Based on a personal journey and filled with facts and strategies for handling Lewy Body Dementia, this book is essential listening for anyone desi...2025-04-072h 13
Your History Your StoryS11 E2 "I Didn't See it Coming, Scenes of Love, Loss and Lewy Body Dememia"In this episode of Your History Your Story, our guest is Mary Lou Falcone. Mary Lou is an internationally known classical music publicist and an advocate for Lewy Body Dementia awareness. Today we will be talking about her powerful memoir, “I Didn’t See It Coming: Scenes of Love, Loss, and Lewy Body Dementia.”
In her memoir, Mary Lou shares deeply personal stories, such as her father’s devastating stroke in the 1950s when she was just a child and her journey as caregiver to her husband and soulmate, Nicky Zann. A 1950s rock ‘n’ roll musician turned celeb...2025-02-031h 18
All Home Care MattersThe Lewy Body Dementia Association with Julia Wood Director of Professional & Community EducationAll Home Care Matters and our host, Lance A. Slatton were honored to welcome Julia Wood, MOT, OTR/L the Director of Professional & Community Education for the Lewy Body Dementia Association (LBDA). About Julia Wood, MOT, OTR/L: Julia Wood, MOT, OTR/L is an occupational therapist and international educator specializing in assessment and treatment of people with Parkinson’s disease and related dementias. Julia joined the Lewy Body Dementia Association (LBDA) as director of Professional & Community Education in 2021. She co-authored the first American Occupational Therapy Association Pract...2025-01-1657 minLewy Body Roller CoasterNavigating the Complex Path to a Correct Lewy Body Dementia DiagnosisHow do you navigate the often confusing path to an accurate Lewy Body Dementia (LBD) diagnosis? This week we talk about what it’s like when Lewy gets ahold of you and many stories of how Lewy is misdiagnosed. We hope sharing these stories helps those seeking a diagnosis to better arm themselves with notes to take to the doctor as we unravel the complexities faced by those living with LBD and their caregivers. A shout out to all of our supporters! We couldn't do this without all of ya'll. xoShould you wish to...2024-12-1836 min
Continuum AudioLewy Body Dementia With Dr. James E. GalvinLewy body dementia is a common cause of cognitive impairment in older adults but is often subject to significant delays in diagnosis and treatment, increasing the burden on patients and family caregivers. Understanding key features of the disease and use of biomarkers will improve recognition. In this episode, Allison Weathers, MD, FAAN, speaks with James E. Galvin, MD, MPH, author of the article “Lewy Body Dementia,” in the Continuum December 2024 Dementia issue. Dr. Weathers is a Continuum® Audio interviewer associate chief medical information officer at the Cleveland Clinic in Cleveland, Ohio. Dr. Galvin is a...2024-12-1123 min
The Dr. Ward Bond ShowEP 417: Executive Producer Mary Lou Falcone Discusses Lewy Body Dementia Film Documentary & Film Documentary FACING THE WINDLadies and gentlemen, with honesty, tenderness and, yes, sometimes humor, the film Facing the Wind invites viewers into the lives of people with Lewy body dementia and their caregivers…real people in real time. FACING THE WIND, a sixty-minute documentary film, reveals how a mutual support community can be an antidote to despair, letting people know they are not alone. You will follow their journey, laughing and crying with them, while taking an unflinching look at dementia care with its overwhelming and isolating aspects. The struggle is real, but so is the love.
Ladies and gentlemen, Lewy body d...2024-11-1832 minThe Dr. Ward Bond ShowEP 416: Making of FACING THE WIND: Lewy Body Dementia Film DocumentaryLadies and gentlemen, with honesty, tenderness and, yes, sometimes humor, the film Facing the Wind invites viewers into the lives of people with Lewy body dementia and their caregivers…real people in real time. FACING THE WIND, a sixty-minute documentary film, reveals how a mutual support community can be an antidote to despair, letting people know they are not alone. You will follow their journey, laughing and crying with them, while taking an unflinching look at dementia care with its overwhelming and isolating aspects. The struggle is real, but so is the love.
Lewy body dementia is not a...2024-11-1839 minThe Dr. Ward Bond ShowEP 415: Founder Norma Loeb of the Lewy Body Resource Center Discusses Lewy Body Dementia and How They Can Help YouMy guest today is the founder and executive director of the Lewy body Resource Center.
Norma’s knowledge and experience with Lewy body dementia began with the personal care of her mother, Lillian, who had LBD for many years.
Norma has been facilitating the only New York Metro area LBD caregivers support groups since 2008. She also leads a national group for people living with LBD which has been lauded.
She served on the board of directors of the Lewy Body Dementia Association for three years before launching the LBD Resource Center in 2016 to prov...2024-11-1828 min
What The Dementia147 | Antipsychotics for Lewy Body Dementia – What Are the Risks?In this original What the Dementia episode, we will discuss the use of antipsychotic medications for people with Lewy body dementia.
This episode will cover:
— Risks associated with antipsychotics for Lewy body dementia.
— Differences between typical and atypical antipsychotics.
— FDA warnings on antipsychotic use in dementia care.
— Alternative approaches before considering medication.
— Key antipsychotics to avoid and those used with caution.
REFERENCES:
https://www.lbda.org/treatment-of-behavioral-symptoms-when-to-consider-antipsychotic-medications-in-lbd/
https://pmc.ncbi.nlm.nih.gov/articles/PMC6353494/
Treatment o...2024-10-2313 minLewy Body Roller CoasterLewy Buddy Meet-up Part 3Welcome back Podcast Family!This week we are sharing part three where some of those who were able to attend the Lewy Buddy Meet-Up in Caney Kansas on September 14, 2024 share how they felt meeting people they have only seen on zoom. For some, it was the first time they meet another person with Lewy Body Dementia in person. I know you will hear the Lewy Love shared by those who attended in Kansas. This needs to be in three parts because we recorded our first zoom meeting after the event and we wanted to give each person the...2024-10-1626 min
Think BIG and LOUD with LSVT GlobalEmpowering Caregivers in Parkinson's Disease and Lewy Body Dementia: Insights from the PERSEVERE study with Dr. Jori FleisherIn recognition of Lewy Body Dementia Awareness Month, this episode features Dr. Fleisher discussing the PERSEVERE study, which emphasizes the critical role of care partners in neurodegenerative disease research. The study tests an educational program for family caregivers of people with Parkinson's disease and dementia, dementia with Lewy bodies, and Lewy body dementia.
Dr. Fleisher shares surprising findings from home visits, unique challenges faced by underserved care partners, and the benefits of peer mentoring for caregivers. She explores potential new research directions and how the study's results can be implemented in clinical practice.
This episode h...2024-10-1033 minLewy Body Roller CoasterLewy Buddy Meet-Up Part 2Welcome back Podcast Family!This week we are sharing part two of three where some of those who were able to attend the Lewy Buddy Meet-Up in Caney Kansas on September 14, 2024 share how they felt meeting people they have only seen on zoom. For some, it was the first time they meet another person with Lewy Body Dementia in person. I know you will hear the Lewy Love shared by those who attended in Kansas. This needs to be in three parts because we recorded our first zoom meeting after the event and we wanted to give each...2024-10-0916 minLewy Body Roller CoasterLewy Buddy Meet-Up Part 1Welcome back Podcast Family!This week we are sharing part one of three where some of those who were able to attend the Lewy Buddy Meet-Up in Caney Kansas on September 14, 2024 share how they felt meeting people they have only seen on zoom. For some, it was the first time they meet another person with Lewy Body Dementia in person. I know you will hear the Lewy Love shared by those who attended in Kansas. This needs to be in three parts because we recorded our first zoom meeting after the event and we wanted to give each...2024-10-0228 min
The Revital Health PodcastOptimal Waves: Health and Performance with Lewy Finnegan“The dedication to recovery is just as important as the dedication to training.” - Lewy FinneganLewy Finnegan, professional bodyboarder and Revital Health ambassador, joins us to share his journey through the highs and lows of his career. Lewy opens up about the importance of recovery in maintaining peak physical performance and how it’s been a key element in his success.In this episode, we explore:Lewy’s career highs and lowsThe crucial role of recovery in sportsStrategies for maintaining physical performanceLewy’s personal approach to health and wellnessTo connect with Lewy...2024-07-2144 min
OneTalkEp.111 - Kid Lightning: Life as a Professional Boxer (Ft. Lewy Chad)On today's epiosde we're joined by Lewis Chadwick (Lewy Chad).Lewy is a Professional Boxer and the Oceania Orient Champion.On this episode we discuss Boxing, Life, Mindset, Lewy’s journey through boxing, up and coming fights, and so much more!To find Lewyhttps://www.instagram.com/lewychad/To find your host: https://www.instagram.com/onetalk_/2024-07-0149 min
Strong Talk#10 - Lewy Blackmore - Elite Level Coaching, Bodybuilding & PhilosophyI'm joined by Lewy Blackmore AKA @LewyBlackmore from Instagram. Lewy is an IFBB Pro, ex-pro footballer, high-level coach & all around top guy.
In this episode, we go into Lewy's approach of balancing evidence-based practice, his practical experience, how philosophy has shaped him and his worldview, and where he is within his own competitive journey.
Lewy is a rare breed in bodybuilding with his ability to be objective, his education and experience, and ability to coach himself to a very high level. I could have chatted for hours, so I really hope you fi...2024-06-181h 13
Research Renaissance: Exploring the Future of Brain ScienceParkinson's and Lewy Body Dementia - A Deep Dive into Cellular Mysteries with Dr. Matt LavoieIn this episode, Dr. Matt Lavoie discusses his pioneering work on Parkinson's disease, exploring the intricate genetic factors and potential pathologies related to Lewy body dementia. As a 2022 Toffler Scholar, Dr. Lavoie shares his journey from early inspiration to major scientific contributions in neurology, offering unique insights into the complexities of neurodegenerative diseases and their impact globally.Key Topics Covered:Personal Journey into Research: Dr. Lavoie shares how his upbringing and academic experiences shaped his research path.Significance of the Fixel Endowed Chair: Understanding the impact and honor of his role...2024-05-211h 03
Boomer Banter, Real Talk about Aging WellLove, Loss and Lewy Body DementiaSeason 7: Episode 185Episode Overview:Today we delve into matters of the heart and the harsh realities of dementia as we discuss "Love, Loss, and Lewy Body Dementia." Our host Wendy Green is joined by guest Mary Lou Falcone, who shares her deeply personal journey of caregiving for her husband, Nicky Zann, through his battle with Lewy Body Dementia. Mary Lou opens up about the challenges they faced, from Nicky's initial symptoms and diagnosis to the daily realities of managing this complex disease. Today's talk highlights not only the emotional toll but also the...2024-05-0646 min
Dementia Caregivers CommunityEpisode 18: Caregiver's Journey, Sandra Part 1 - The Lewy RoadSandra and John built a beautiful life together. Lewy Body dementia tried to derail that after John was diagnosed with Lewy Body Dementia and Atypical Parkinsonism in January, 2018. They walked the Lewy Road together. According to Sandra, their journey was messy, frustrating, sweet, tender, heartbreaking, funny; all the things that life is.
Sandra shares thoughts she had while on her active care partner journey and in the hopes it would be a help to those who are also caring for a loved one with LBD. Empathy is powerful!
Sandra writes a blog, "Lewy, Dewey, and Me...2024-05-0241 min
Inspired Caring157. Lewy Body Dementia with Mary Lou FalconeIntroduction: In this episode, we delve into the profound journey of Mary Lou, a dedicated caregiver to her husband, the renowned artist and rocker, Nicholas ‘Nicky’ Zann. Mary Lou candidly shares their story of navigating life with Lewy body dementia, shedding light on the challenges, resilience, and the importance of understanding and support.
Key Points Covered:
Understanding Lewy Body Dementia (LBD):
Mary Lou describes how LBD differs from Alzheimer’s, with fluctuating symptoms affecting memory and behavior. It's a condition affecting 1.4 million Americans and 11 million globally, though it remains relatively less known.
The Caregi...2024-05-0151 min
This Is Getting Old: Moving Towards an Age-Friendly World Podcast with Dr. MELISSA BATCHELOREP 175: What is Lewy Body Dementia?“Once diagnosed with Lewy body dementia, on average, individuals tend to live 5 to 8 years” —Melissa Batchelor, PhD, RN, FNP, FGSA, FAAN Lewy body dementia (LBD) is often misunderstood, misdiagnosed, or overlooked, yet it affects millions worldwide. Join me as I explain one of the complicated types of dementia. In this week’s episode, we’ll explore Lewy body dementia, understand its symptoms, causes, stages, and how it can be treated. WHAT IS LEWY BODY DEMENTIA? Lewy Body Dementia (LBD) is characterized by abnormal protein deposits in the brain...2024-04-0214 minLewy Body Roller CoasterLEWY BUDDY AND CAREGIVER MEET UP and Curry updates his healthWelcome back everyone!This week, we wanted to share about the Lewy Buddy and Cargiver Meet-Up happening September 14, 2024 in Caney Kansas. Gather 'round the warmth of our virtual fireside, as Linda and I, in a rare moment of quiet reflection, express our heartfelt thanks to you, our dedicated listeners. We're thrilled to extend an invitation to our first annual Lewy Buddies and Caregivers Meetup in Caney, Kansas, a beacon of connection and support in the tempest of Lewy Body Dementia. As we navigate the ebb and flow of this condition together, we welcome your stories and...2024-03-1842 minLewy Body Roller CoasterNavigating Love and Resilience: Bill and Linda's Journey with Lewy Body DementiaBill from Central Texas never foresaw becoming an expert in resilience and caregiving, but life's unpredictable turns have made him just that. As he opens up about his and Linda's encounters with Lewy Body Dementia, you'll find yourself moved by their tale of love, challenge, and unwavering commitment. Their story is a beacon of inspiration, guiding us through the murky waters of diagnosis and daily care.Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you...2024-03-0140 min
The Great American Senior ShowMary Lou Falcone, Author, I Didn't See It Coming -- Lewy Body DementiaText your grey haired host for a shout out on an upcoming show!Mary Lou Falcone, an internationally known classical music publicist/strategist and public relations expert has helped guide the careers of many acclaimed artists including Van Cliburn, Gustavo Dudamel, Renée Fleming, Sir Georg Solti, James Taylor, and many more. In this episode of the Great American Senior Show, Mary Lou joins host Sam Yates in talking about her first book, I Didn’t See It Coming: Scenes of Love, Loss, and Lewy Body Dementia, that describes a Lewy Body...2024-02-2333 min
The Whole Care NetworkDementia-Signs Symptoms Stories of Lewy-BodyDementia: Signs, Symptoms & Stories of Lewy Body. Dementia is a complex neurological condition that encompasses a range of cognitive impairments affecting memory, reasoning, and daily functioning. One specific form of dementia is Lewy body dementia (LBD), characterized by the presence of abnormal protein deposits called Lewy bodies in the brain. Recognizing the signs and symptoms of LBD is crucial for early diagnosis and effective management.
Common signs of Lewy Body dementia (LBD) include fluctuating cognitive abilities, visual hallucinations, and motor symptoms such as Parkinsonism. Patients may experience vivid and often distressing hallucinations, adding a unique dimension to...2024-02-1452 min
Navigating the World with Your Aging Loved OneLove, Loss and Lewy Body Dementia with Mary Lou Falcone, Caregiver, Author, and Internationally Renowned Classical Music Publicist & Strategist Love and loss can lead us to become champions for a cause we never expected to face. My guest today is Mary Lou Falcone, an internationally renowned classical music publicist and strategist, who has spent five decades shaping the careers of prominent artists and institutions. However, it's her personal story that brings an added layer of depth to her illustrious career. Faced with her partner's diagnosis of Lewy Body Dementia, Mary Lou found herself in the most challenging role of her life – that of a caregiver. Her journey through love, loss, and caregiving has led her to be...2024-02-1445 minLewy Body Roller CoasterNavigating the Tides of Early-Onset Lewy Body Dementia with Miriam OwensWhen Miriam Owens bravely faced her diagnosis of Lewy body dementia at 54, it was a stark reminder that our health can take unexpected turns. Her story, rich with challenges and resilience, is the centerpiece of our latest episode, offering insights into the nuances of living with early-onset dementia. Join us as Miriam opens up about the changes she's navigated, the importance of advocating for oneself in the healthcare journey, and the empowering role support groups play in fostering community for those affected by LBD. A big shout out to all of our supporters!!Thank you a...2024-02-0156 min
Lewy Body and Mindful Caregiving28: The Paradox of Self-Care in Lewy Body Dementia CaregivingIn this episode of our podcast, we delve deep into the essential topic of self-care while navigating the challenges of Lewy Body Dementia caregiving. As a caregiver, I share my personal experiences, discussing the paradoxes of self-care and the importance of mindfulness, intention, and personal needs. Aiming to be both informative and supportive, this episode aims to provide you with practical strategies and emotional comfort when confronting Lewy Body Dementia.
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FIRST TIME HERE? Hey, there! I’m Krystal Jakosky - a teacher, writer, and transformational life coach based in CO. I release weekly podcasts about se...2024-02-0112 min
Alzheimer's SpeaksLiving with Lewy Body Dementia - Kevin Dill Talks about Living with Purpose & ArtworkOur Host, Lori La Bey talks with Kevin Dill who has been diagnosed with Lewy Body Dementia since 2019. He is a proud Military Veteran, retired Police Officer, and Director of Veterans Affairs. Kevin gives us all kinds of wonderful insights as to what it is like to live with Ley Body Dementia, both for himself and his family.
Copy and paste the URL below into your browser if you prefer listening via podcast.
Apple Podcast
https://podcasts.apple.com/us/podcast/kevin-dill-shares-his-story-of-living-with-lewy-body/id986940432?i=1000603184183
Spotify Podcast
https://open.spotify...2024-01-0159 min
Brain Talk | Being Patient for Alzheimer's Patients and CaregiversMary Lou Falcone: Love, Loss, and Lewy Body Dementia in "I Didn’t See It Coming" | Live TalkClassical music publicist, educator, performer, and dementia advocate Mary Lou Falcone joins Being Patient Live Talks to discuss her book, I Didn’t See It Coming. In this memoir of “love, loss, and Lewy Body dementia,” Falcone details the caregiving journey for her late husband, Nicholas ‘Nicky’ Zann, whose illustrations introduce each chapter.
Falcone is an internationally known classical music publicist/strategist who has helped guide the careers of celebrated artists like Van Cliburn, Gustavo Dudamel, Renée Fleming, Sir Georg Solti, and James Taylor for fifty years. She’s also advised institutions like Carnegie Hall, Chicago Symphony, Los Angeles Philh...2023-12-1133 min
Alzheimer's SpeaksLewy WHO?Lori La Bey talks with Mary Lou Falcone, known internationally as a classical music publicist/strategist. She has also been a performer and educator, who now is an author and advocate of Lewy body dementia awareness, having just published her first book: I DIDN’T SEE IT COMING- Scenes of Love, Loss and Lewy Body Dementia.
Learn:
How was Mary Lou touched by dementia?
What is Lewy Body Dementia?
Why did Mary Lou write a book about her journey with dementia?
Why is it important for people to share their experiences with caring for a loved one...2023-11-2754 minAlzheimer's SpeaksLewy WHO?Lori La Bey talks with Mary Lou Falcone, known internationally as a classical music publicist/strategist. She has also been a performer and educator, who now is an author and advocate of Lewy body dementia awareness, having just published her first book: I DIDN’T SEE IT COMING- Scenes of Love, Loss and Lewy Body Dementia. Learn: How was Mary Lou touched by dementia? What is Lewy Body Dementia? Why did Mary Lou write a book about her journey with dementia? Why is it important for people to share their experiences with caring for a loved one...2023-11-2754 min
The Whole Care NetworkMARY LOU FALCONE: I Didn't See it Coming: Scenes of Love, Loss, and Lewy Body DementiaMy co-host , Don, and I have been blessed with so many amazing guests, but truth be told, our 81st guest, Mary Lou Falcone , ranks as one of our very favorites!! We fell in love with this EXTRAORDINARY woman and we have no doubt you will, too.
For over 50 years, Mary helped guide the careers of celebrated artists – Van Cliburn, Gustavo Dudamel, Renée Fleming, Sir Georg Solti, James Taylor – and advised many institutions including Carnegie Hall, Chicago Symphony, Los Angeles Philharmonic, Philadelphia Orchestra, New York Philharmonic, Vienna Philharmonic. Then combining communication skills with her background as a perfo...2023-11-161h 01
Love Conquers AlzMARY LOU FALCONE: I Didn't See it Coming: Scenes of Love, Loss, and Lewy Body DementiaMy co-host , Don, and I have been blessed with so many amazing guests, but truth be told, our 81st guest, Mary Lou Falcone , ranks as one of our very favorites!! We fell in love with this EXTRAORDINARY woman and we have no doubt you will, too.For over 50 years, Mary helped guide the careers of celebrated artists – Van Cliburn, Gustavo Dudamel, Renée Fleming, Sir Georg Solti, James Taylor – and advised many institutions including Carnegie Hall, Chicago Symphony, Los Angeles Philharmonic, Philadelphia Orchestra, New York Philharmonic, Vienna Philharmonic. Then combining communication skills with her background as a perfor...2023-11-161h 01Lewy Body and Mindful Caregiving16: Unexpected Causes of Death in Lewy Body Dementia.In this deeply personal episode of "Lewy Body and Mindful Caregiving", I tackle the realities and complexities of caring for my mom who is battling Lewy Body dementia. I take you on a journey that confronts the often-unspoken truth about managing the disease's decline and the unpredictability of what finally leads to the end of life.
I recount my struggles with balancing the pursuits of prolonging my mom's life with preserving her overall well-being and quality of life. Sharing my mom's end-of-life wishes and our conversations about mortality, I hope to shed more light on these difficult...2023-11-0926 min
End-of-Life UniversityEp. 428 Love and Loss as a Caregiver Dealing with Lewy Body Dementia with Mary Lou Falcone
Learn about Lewy Body Dementia, why it is difficult to diagnose, and the special challenges faced by caregivers.
My guest Mary Lou Falcone has been an advocate for Lewy body dementia awareness since her dear husband Nicky Zann died of the disease in 2020. Mary Lou is internationally known as a classical music publicist who has guided the careers of many celebrated artists such as Van Cliburn, Renée Fleming, and James Taylor. Her communication and strategy skills make her well-suited to be an ambassador for LBD awareness and she is committed to sharing her experience and factual i...2023-11-0659 min
Eldercare SuccessLewy Body Dementia, Myth Busting!What’s it like to be diagnosed with Lewy Body Dementia when you’re an entrepreneur running a successful business? How can you recognize its symptoms for yourself or a loved one? Can good things come out of a Lewy Body diagnosis? Can someone continue to lead a meaningful life, run their business, and contribute to the world, society, or community after diagnosis? How do family and friends usually behave, once they hear about the diagnosis? What are the “silver bullets” that can help someone with Lewy Body Dementia now and as the disease prog...2023-09-2045 min
Alzheimer's SpeaksThe Lewy Body Dementia Resource CenterToday Lori La Bey, host of Alzheimer’s Speaks talks with Norma Loeb, Founder & Executive Director of the Lewy Body Dementia Resource Center. The founder and leaders of LBDRC are former care partners of loved ones with Lewy body dementia, so they understand the experience and are here with loving support to help you through it.
Although a cure would be wonderful, their vision is to foster early diagnosis and enhance the quality of life for people with Lewy Body Dementia and their care partners with an all-inclusive website, call center, and devoted care. They advocate for inc...2023-08-1054 minAlzheimer's SpeaksThe Lewy Body Dementia Resource CenterToday Lori La Bey, host of Alzheimer’s Speaks talks with Norma Loeb, Founder & Executive Director of the Lewy Body Dementia Resource Center. The founder and leaders of LBDRC are former care partners of loved ones with Lewy body dementia, so they understand the experience and are here with loving support to help you through it. Although a cure would be wonderful, their vision is to foster early diagnosis and enhance the quality of life for people with Lewy Body Dementia and their care partners with an all-inclusive website, call center, and devoted care. They advocate for inc...2023-08-1054 minLewy Body and Mindful Caregiving01: What is Lewy Body? Welcome to the premiere episode of "Lewy Body and Mindful Caregiving." A heart wrenching yet inspiring podcast dedicated to sharing the life-altering journey of a caregiver. Our host, navigating the role of a caregiver to her mother diagnosed with Lewy Body dementia, serves as your guide through the ups and downs.
In this episode, we dive deep into understanding Lewy Body Dementia by comparing the functioning of the human brain to an orchestra. Every section of the orchestra represents different parts of the brain with the frontal lobe taking up the conductor's role. But what happens when...2023-07-2713 min
Ask Dr. Mia: Answers For Dementia CaregivingLewy Body Dementia with Dr. Trey BatemanSend us a textIn this episode, Dr. Mia talks with Dr. Trey Bateman about Lewy Body dementia, unique challenges in diagnosis, different treatment options compared to Alzheimer's dementia, and his research on Mild Behavioral Impairment. Dr. James (Trey) Bateman is a behavioral neurologist at Wake Forest University School of Medicine and the Salisbury Veterans Affairs Medical Center. His clinical care is spread across both Wake Forest and the Salisbury VA, where he focuses on the evaluation and care of people with neurodegenerative conditions, especially those with prominent neuropsychiatric symptoms. His research is focused on...2023-05-2330 min
Fatta forskningLewy body demensLewy body sjukdom, eller Lewy body demens, är en för allmänheten relativt okänd demenssjukdom. Elisabet Londos är läkare, psykiater och professor med en lång bakgrund inom kognitiv forskning. Elisabet har i många år forskat om och arbetat med Lewy body sjukdom. Lewykroppar är små förändringar, proteinansamlingar, i hjärnans nervceller som ger flera olika symptom som till exempel livlig och lång sömn, synhallucinationer och stelhet i kroppen. I det här avsnittet berättar Elisabet mer om Lewy body. Vad beror sjukdomen på, vilka får den? Hur behandlas dessa patienter och...2023-05-1642 min
MedLink Neurology PodcastBrainWaves #164 Lewy body dementiaMedLink Neurology Podcast is delighted to feature selected episodes from BrainWaves, courtesy of James E Siegler MD, its originator and host. BrainWaves is an academic audio podcast whose mission is to educate medical providers through clinical cases and topical reviews in neurology, medicine, and the humanities, and episodes originally aired from 2016 to 2021. Originally released: May 28, 2020 Lewy body dementia may be the second most common neuropathologic cause of dementia behind Alzheimer disease, but it remains largely a clinical diagnosis with limited treatment options. This week on BrainWaves, Dr. Amy Colcher (Cooper University Ho...2023-03-1423 min
Être proche aimantEp. 20 - Trouble neurocognitif majeur à Corps de LewyÊtre informé sur les différents troubles neurocognitifs majeurs peuvent t'aider dans ton rôle de proche aimant!
-Faciliter la compréhension des
changements chez ton proche
-Diminuer tes questionnements/ ta charge émotive
-Faciliter l'adaptation dans les changements à venir
-Ajuster ta communication avec ton proche
-Être mieux préparé à un rendez-vous médical
et encore plus!
Dans l'épisode cette semaine je te parle du trouble neurocognitif majeur à Corps de Lewy.
Bonne écoute!
Si tu...2023-02-2318 min
The Keeper League - AFL Fantasy PodcastPre-season 2023: Richmond Tigers Preview feat. Lewy (The Point of Difference Podcast)In this episode, we take a look at Richmond with Lewy from the PODPOD
Topics:
- Dusty Martin's value
- Jacob Hopper's prospects at Richmond
- Tom Lynch as a value option
- Hugo Ralphsmith and the Richmond defence
- Does Jack Ross get his chance?
- Jack Graham - hold until he's traded?
At the end of the episode, we'll answer some questions sent in on Facebook and Twitter.
Listen to The Point of Difference: https://open.spotify.com/show/2A0vTbHQbcpP5PwbmTydND?si=e12dfc82a56048a7
Support the podcast by becoming a member! Sign up: bit.ly/38...2023-02-1420 min
Alzheimer's SpeaksLewy Body Dementia Is On Increase And So Is Support For Those Dealing With ItLori La Bey talks with Norma Loeb, Founder & Executive Director of the Lewy Body Dementia Resource Center. Norma and leaders of LBDRC are former care partners of loved ones with Lewy body dementia, so they understand the experience, and are here with loving support to help you through it. A cure would be wonderful, but their vision is to foster early diagnosis and enhance the quality of life for people with Lewy Body Dementia and their care partners. Their website is all-inclusive.
We are live today so call in and ask your questions (323) 870-4602
Contact Lewy Body...2023-01-1954 minAlzheimer's SpeaksLewy Body Dementia Is On Increase And So Is Support For Those Dealing With ItLori La Bey talks with Norma Loeb, Founder & Executive Director of the Lewy Body Dementia Resource Center. Norma and leaders of LBDRC are former care partners of loved ones with Lewy body dementia, so they understand the experience, and are here with loving support to help you through it. A cure would be wonderful, but their vision is to foster early diagnosis and enhance the quality of life for people with Lewy Body Dementia and their care partners. Their website is all-inclusive. We are live today so call in and ask your questions (323) 870-4602 Contact Lewy Body...2023-01-1954 min
Dementia Research Charity ChatathonClinical Trials, Lewy Bodies & what Sleep can tell usRecorded at the Dementia Research Charity #Chatathon 2022 - Adam Smith interviews Olga Borejko, Project Manager at King's College London and Victoria Grace Gabb, Research Associate at University of Bristol & Southmead Hospital
Olga Borejko - I manage a portfolio of clinical studies and commercial trials for patients with dementia with Lewy bodies (DLB) and Mild Cognitive Impairment (MCI) due to Alzheimer’s disease, at Old Age Psychiatry, King’s College London. I’m responsible for setting up the studies, recruitment and completing clinical/cognitive assessments with patients. My main research interest lies within understanding better how clinical and biologi...2022-12-0929 min
Alzheimer's SpeaksGrandpa & Lewy – A Children’s Book of Hope and UnderstandingLori La Bey talks with Jennifer Randazzo, author of Grandpa & Lewy: A Story of Hope and Empowerment for Children Touched by Lewy Body Dementia. Her own father battle Lewy body dementia. Jennifer was determined to raise awareness and provide a resource that her family never had. Join Lori and listen to Jennifer’s story. By sharing experiences and tools we make the journey easier for everyone.
Contact Jennifer Randazzo Website Email Instagram Facebook Pinterest
Twitter @JRandazzoAuthor Linkedin @Jennifer Randazzo
Contact Lori La Beywith questions or visit www.AlzheimersSpeaks.com
Alzheimer's Speaks Radio - Shifting dementia care from...2022-10-2154 min
Doctor Vs ComedianEpisode 86: Robin Williams / Lewy Body DementiaToday, Ali and Asif discuss the career of the legendary actor and comedian Robin Williams. The guys start off by discussing their early exposure to Robin Williams including ‘Popeye’, ‘Mork and Mindy’ Robin’s early HBO specials (including Comic Relief). They then discuss some interesting facts about Robin’s early life. They go over some interesting trivia about Robin, his pivotal movies and his legacy in stand-up comedy. Then Ali asks Asif about Dementia with Lewy Bodies, which Robin suffered from. Asif starts off by defining what Lewy Bodies are and their connection to dementia and Parkinson’s disease. They then disc...2022-10-2154 min
Experiences in CaregivingLewy Body DementiaOctober is Lewy Body Dementia Awareness month so we are talking all things Lewy Body - what it is, how it differs from other more common forms of dementia, how caregivers approach Lewy Body in light of those differences, and potential resources and support for caregivers struggling with how to manage Lewy Body. For more information about episodes, links to resources, and to give us your thoughts and ideas for new topics, visit https://www.experiencesincaregiving.com/2022-10-201h 10Experiences in CaregivingLewy Body DementiaOctober is Lewy Body Dementia Awareness month so we are talking all things Lewy Body - what it is, how it differs from other more common forms of dementia, how caregivers approach Lewy Body in light of those differences, and potential resources and support for caregivers struggling with how to manage Lewy Body. For more information about episodes, links to resources, and to give us your thoughts and ideas for new topics, visit https://www.experiencesincaregiving.com/2022-10-201h 10Lewy Body Roller CoasterTake 2: Lewy Terms Defined Pt 2Podcast Linda is taking 2 weeks off for her birthday…so enjoy the replay of Lewy Terms Defined part 2 with Dr. Sara .Just a reminder- we are not giving medical advice, merely sharing our experiences.This week, Sara returns to help us talk about the many terms you may hear that relate to some aspect of Lewy Body Dementia. When you listen, you will hear the technical definition of the terms and then hear examples from personal experiences which helps us have a better understanding for each terms discussed. There were so many terms many of you sen...2022-08-0647 minLewy Body Roller CoasterTake 2:Lewy Terms Defined Pt 1Podcast Linda taking 2 weeks off for her birthday so enjoy the replay of Lewy Terms Defined part 1 with Dr. Sara .Just a reminder- we are not giving medical advice, merely sharing our experiences.This week, Sara returns to help us talk about the many terms you may hear that relate to some aspect of Lewy Body Dementia. When you listen, you will hear the technical definition of the terms and then hear examples from personal experiences which helps us have a better understanding for each terms discussed. There were so many terms many of you sent m...2022-07-2739 min
Answers For Elders Radio NetworkClinical trial for Lewy body dementia, part 4This segment focuses on misconceptions of clinical trials and who qualifies for the Lewy body dementia clinical trial. Dr. Daniel Burdick, a physician's investigator at Evergreen Hospital Medical Center in Kirkland, Washington, covers these topics with Suzanne Newman. Regarding misconceptions, Dr. Burdick says he's often asked about placebos. He explains that people have an expectation that the the reason to go into a clinical trial is because it will benefit them. And of course they hope it will, but they don't know that it will for sure. When people hear there's a chance of getting a placebo...2022-05-1413 min
Answers For Elders Radio NetworkClinical trial for Lewy body dementia, part 1Dr. Daniel Burdick from the Evergreen Hospital Medical Center in Kirkland, Washingon, joins Suzanne Newman to talk about a type of dementia that's rarely discussed at Answers for Elders. Dr. Burdick is a physician's investigator trained in movement and neuro-psychiatric disorders. Lewy body dementia encompasses two separate disorders: Parkinson's dementia and Dementia with Lewy Bodies, which are very similar. They're different from other forms of dementia in that they come with motor symptoms like tremors, slowness, stiffness, and trouble moving, and commonly include hallucinations and delusions. The distinction between the two is the timing of symptoms. In...2022-05-1412 min
HersenHelden#9: Evelien Lemstra en Tim de Greve: Lewy body dementieBij dementie denken we vaak aan alzheimer, maar er zijn nog zeker vijftig andere ziektes die ons denkvermogen aantasten. Een veelvoorkomende, maar veel minder bekende is Lewy body dementie. Daarover praten we met twee deskundigen. Evelien Lemstra is neuroloog en onderzoeker in Alzheimercentrum Amsterdam. Ze is gespecialiseerd in Lewy body dementie en wordt gezien als de expert in Nederland. Tim de Greve verloor zijn vader op jonge leeftijd aan deze aandoening en zet zich sindsdien in als pleitbezorger voor meer aandacht en meer onderzoek. Samen vertellen ze wat de ziekte inhoudt, waarom een juiste diagnose van belang is en...2022-04-191h 15Lewy Body Roller CoasterPositive Words for Caregivers and Discussion About Lewy Ups and DownsThis week is another of our fireside chats where we share topics of discussion relating to LBD. First, we talk about how one can be down with Lewy symptoms for awhile and then bounce back. We all need to be thankful for that part of this crazy disease. We then shared some moving tips and suggestions caregivers shared with each other on how to cope while caring for a loved one with LBD. We are in this together and need to lean on one another. If you don't belong to a support group or attend support meetings...we...2022-04-0633 min
Brain BeatCaregiving and Lewy Body DementiaHelen Bundy Medsger, LBD Peer Mentor, Support Group Facilitator and Support Services Volunteer, Lewy Body Dementia Association, is Heidi’s very special guest on today’s episode. For over 30 years, Helen has been the primary caregiver and health care advocate for two generations of her family who have suffered from Parkinson’s Disease with Lewy Body Dementia, and three members of her family have succumbed to the disease: her father, sister and youngest brother. In addition to being an advisor to Lewy Body Ireland, she is the facilitator of the North Bay Lewy Body Dementia Support Group, is a suppor...2022-03-1158 min
Regenerati Neurologia - Dr. Willian RezendeO Que é Demência LewyO Que é Demência Lewy
🎯 Consulte Com Um Especialista Agora (Online ou Presencial)! https://willianrezende.com.br/alzheimer
A demência com corpos de Lewy é o segundo tipo de demência mais comum, logo após o mal de Alzheimer. Esta doença degenerativa surge com o avançar da idade e provoca a perda de capacidades mentais. Porém, como ainda é pouco conhecida, esta doença é muitas vezes diagnosticada como Alzheimer, Parkinson ou até mesmo uma combinação de ambas. Assista ao vídeo e conheça como o diagnóstico da demência com corpos de Lewy é um d...2022-01-0902 min
Health4Naija30: Health educator, Dr. Onuoha discusses Dementia with lewy bodies, also known as Lewy body DementiaThe terminology: Dementia with lewy bodies (DLB) in United Kingdom, also known as Lewy body Dementia (LBD) in United States.
Lewy body dementia is the second most common type of Dementia in the world. In American, 1 million people have Lewy body Dementia.
Physician and health educator, Dr. Ngozi Onuoha discusses Dementia with lewy bodies.
#Dementia #LewyBodyDementia #Health4NaijaPodcast
This podcast is for education content and not medical advice.
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Support this podcast: https://podcasters.spotify.com/pod/show/health4naija/support2021-11-2110 minLewy Body Roller CoasterAnxiety, walking issues and advice for caregivers from two people with LewyWelcome back Derek S and our Curry as we ask them questions on things that can help caregivers and medical professionals better understand the disease from anxiety, walking issues, fears and ways to help or not help those with with LBD.A shout out to all of our supporters! We couldn't do this without all of ya'll. xoWelcome some of our newest supporters:Judy Pressley, Jane Wakerman, Toby Gorelick, James May, Julie Salamone and Paul and Debbie LannonShould you wish to bless us with your support you can u...2021-11-1047 minLewy Body Roller CoasterThings to help Lewy life and tips on Moving with LBDThis week we share ideas that could help when moving someone with dementia and some great ideas on things to get that will help not only those with dementia but their caregivers.A shout out to our new and past Patreon and Go Fund Me SupportersWe couldn't do this podcast without all of you who support us!Should you wish to bless us with your support you can :Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page at...2021-09-2232 min
Ulysses Neuro PodcastLiving With Lewy body DementiaEach September, people from around the world raise awareness for dementia and the 21st is World Alzheimer's Day. Alzheimer's disease is the most common cause of dementia and accounts for 60-80-% of cases, but there are over 400 other different types of dementia. A few other causes are vascular dementia, Parkinson's disease, and dementia with Lewy bodies. In this episode of the Ulysses Neuroscience podcast, we discuss living with Lewy body dementia (LBD), as it is underdiagnosed and often misdiagnosed in Ireland.During this podcast, we hear from Kevin and Helena Quaid. Kevin is the vice-chairperson of...2021-09-211h 19