Shows
PEP TalksStrengthening Health Systems Through Indigenous Research with Kienan Williams (EP 27)Send us a text2025-03-071h 14
PEP TalksMeasuring Patient Experience with Kyle Kemp (EP 4)Send us a text2025-02-0620 minPEP TalksPalliative Care with Sadia Ahmed (EP 3)Send us a text2025-02-0620 minPEP TalksLearning Health Systems with Dr. Charles Friedman (EP 1)Send us a text2025-02-0632 minPEP TalksThe Patient Story Experience: Cost or Benefit from SPORcast (Engaging in Storytelling Part 1)Send us a text2025-01-0642 minPEP TalksOrganizations and Patient Stories from Matters of Engagement (Engaging in Storytelling Part 2)Send us a text2025-01-0654 minPEP TalksCreating Safe Spaces for Storytellers with PEP Talks (Engaging in Storytelling Part 3)Send us a text2025-01-0636 minPEP TalksStrategy for Patient-Oriented Research with Nancy Mason-MacLellan (EP 5)Send us a text2025-01-0630 minPEP TalksPartnering in Chronic Kidney Disease Research with Mary Beaucage (EP 11)Send us a text2024-12-0631 minPEP TalksPatient Research Partners with Sandra Zelinsky (EP 2)Send us a text2024-12-0635 minPEP TalksCareful and Kind Care For All with Dr. Victor Montori (EP 8)Send us a text2024-12-0640 minPEP TalksThe Power of Storytelling Through Photovoice with Anna Anastasiou & Dr. Dave Campbell (EP 9)Send us a text2024-12-0629 minPEP TalksThe Value of Experiential Knowledge in Patient-Oriented Research with Nicolas Fernandez (EP 10)Send us a text2024-12-0638 min
PEP TalksRePORT Patient Advisory Council: Part 2 with Kim Giroux, Anni Rychtera, and Nancy VerdinSend us a textEpisode IntroductionIn this episode, Part 2 of 2, we explore how deliberate and flexible strategies can create an ecology of inclusiveness, support, mutual respect, and co-building for meaningful patient engagement in health research. Patient Research Partners are integral members of the team, informing project design, participant recruitment strategies, data collection and analysis, and knowledge translation activities. Patient Research Partners are also involved in the implementation and dissemination of research results. Join us as we discuss the importance of patient engagement and involvement in the Re-Purposing the Ordering of Routine laboratory Tests...2024-11-141h 07PEP TalksEnhancing Person-Centred Care with Dr. Kimberly Manilili (EP 12)Send us a text2024-11-0432 minPEP TalksShared Vision with Lisa Ridgway (EP 6)Send us a text2024-11-0418 min
PEP TalksRe-Purposing the Ordering of Routine laboratory Tests (RePORT) Study: Part 1 with Anni Rychtera and Dr. Anshula AmbastaSend us a textEpisode IntroductionIn this episode, we talk about the Re-Purposing the Ordering of Routine laboratory Tests (RePORT) study, which is being conducted and implemented in Alberta and British Columbia. Hospitals frequently conduct routine blood tests, which not only cause patient discomfort but also significantly contribute to healthcare waste. Choosing Wisely Canada highlights that repetitive, “routine” blood tests are linked to increased mortality risks, advising against their repetitive testing in hospitalized patients.The RePORT study adopts an innovative approach by involving individuals with lived experiences as active and equal partners thro...2024-11-0155 min
PEP TalksCytomegalovirus with Laija Beaulieu, Caroline Leroux, Lisa Robinson, Marcia Bruce & Dr. Eliana Castillo (PaCER Series: EP 4)Send us a textIn episode 4 of the PaCER series, we talk about the complexities of Congenital Cytomegalovirus (cCMV), a common virus that can affect 1 in 200 unborn children during pregnancy. Join us as we discuss a parent-led peer-to-peer Patient and Community Engagement Research (PaCER) study about the impact of cCMV on newborns, including potential lifelong health and developmental challenges such as hearing loss, visual impairments, and developmental delays. We will discuss the importance of early diagnosis, prevention strategies, and the controversial topic of universal newborn screening for cCMV. Our guests, PaCER graduates, parents with lived experiences, and...2024-08-231h 18PEP TalksNewfoundland and Labrador SPOR SUPPORT Unit with Mike Warren and Holly Etchegary (EP 24)Send us a textIn episode 24 of PEP Talks, we talk about the Newfoundland and Labrador SPOR SUPPORT Unit and how it works to improve the lives of patients by empowering them to support research that is important to them as patient research partners. Their lived experiences and personal healthcare journeys bring important perspectives to the table that help identify research priorities. Today, we speak with Mike Warren: a patient and family partner for the NL SUPPORT Unit, and Holly Etchegary: the patient engagement academic lead for the NL SUPPORT Unit and a health services researcher at...2024-08-0730 minPEP TalksAlberta's Patient & Family Advisors and PaCERs with Colin Penman (EP 23)Send us a textIn episode 23 of PEP Talks, Colin Penman talks about how people with lived experiences can engage with healthcare and health research. Penman is a graduate of the Patient and Community Engagement Research (PaCER) program at the University of Calgary. He shares his learning as a patient partner in research, as well as a patient and family advisor with the Alberta Strategic Clinical Networks (SCNs). Colin Penman describes the positive as well as the negative experiences he has had as a patient partner, and what can be done to mitigate those negative experiences. Meaningful...2024-08-0716 minPEP TalksKidsPRO with Sumedh Bele (EP 7)Send us a text2024-08-0722 minPEP TalksPartnering in Research with Annette McKinnon (EP 13)Send us a text2024-08-0730 minPEP TalksPatient and Community Engagement Research, Cohort 1 with Jean Miller (EP 14)Send us a text2024-08-0725 minPEP TalksHuman Factors Engineering and Patient Oriented Research with Dr. Holly Witteman (EP 15)Send us a text2024-08-0731 minPEP TalksPartnering for Pain with Dr. Katie Birnie (EP 16)Send us a text2024-08-0728 minPEP TalksAuthentic Patient Engagement with Heather Thiessen (EP 17)Send us a text2024-08-0720 minPEP TalksFamily Engagement in Research (FER) with Rachel Martens (EP 18)Send us a text2024-08-0723 minPEP TalksTranslating Research in Elder Care (TREC) with Dr. Andrea Gruneir (EP 20)Send us a text2024-08-0721 minPEP TalksPatient and Family Centered Care with Dr. Gail MacKean (EP 22)Send us a text2024-08-0737 minPEP TalksTrauma-Informed Engagement with Carolyn Shimmin (EP 21)Send us a text2024-08-0718 minPEP TalksBarriers and Facilitators in Patient & Family Engagement with Frank McGavin (EP 25)Send us a textIn episode 25 of PEP Talks, we speak with Frank Gavin, the former chair of the Public Advisory Council for the Health Data Research Network Canada and former director of Citizen Engagement for the National Child Bright Research Network. Gavin shares his knowledge and insights on patient engagement in health research and person-centered care, discussing what works well and what could be improved. We will also explore advice and suggestions for researchers as well as patient and family partners, and how to engage with each other in a meaningful and productive way.2024-08-0236 minPEP TalksBarriers and Facilitators in Patient and Family Engagement with Frank Gavin (EP 25)Send us a Text Message.2024-05-2536 minPEP TalksAlberta Strategic Clinical Networks (SCNs) with Tracy Wasylak (EP 19)Send us a text2024-05-2517 min
PEP TalksThe PaCER Program with Dr. Maria Santana and Ingrid Nielssen (PaCER Series: EP 1)Send us a textIn episode 1 of the PaCER series, we speak to Dr. Maria Santana and Ingrid Nielssen about the Patient and Community Engagement Research (PaCER) program at the University of Calgary which teaches patient, family, and community members to bring patient-informed health research evidence into health care planning, practice, and policy. This innovative program teaches health research methodology, competencies, and skills to learners so they can more meaningfully collaborate on the research projects that matter to them and their communities. Join us in this episode to learn more about the PaCER program!...2024-05-0940 min
PEP TalksImmigrant Youth Mental Health with Farwa Naqvi (EP 26)Send us a textIn episode 26 of PEP Talks, Master's student at the University of Calgary Farwa Naqvi shares her methods for and insights from her mixed-methods thesis study on mental health challenges faced by immigrant and refugee youth in Alberta. We delve into the lived experiences of these youth, their priorities, and how their voices and insights can drive positive change to shape improvements in health care. Youth from Calgary, Edmonton, Cold Lake, Brooks, Red Deer, Lethbridge, and more were recruited to participate in focus groups for this study. Naqvi expands on her findings of what...2024-05-0949 min
PEP TalksDiabetes Virtual Care with Dorothy Nelson and Veronika Kiryanova (PaCER Series: EP 2)Send us a textIn Episode 2 of the PaCER series, our guests Veronika Kiryanova and Dorothy Nelson talk about their PaCER internship study, "Understanding Virtual Healthcare Experiences of Adults Living with Diabetes and/or their Caregivers in Alberta during the COVID-19 Pandemic", a patient-led peer-to-peer study. Veronika and Dorothy, recent graduates of the Patient and Community Engagement Research (PaCER) program at the University of Calgary, share patient insights, concerns, and recommendations, from their PaCER internship study. The PaCER program works toward transforming the role of patients in health system research, practice, planning, and policy, striving to foster...2024-05-0933 min
PEP Talks'The Pain Killers' with Jamie Hodge, Marcia Bruce, and Dr. Elena Lopatina (PaCER Series: EP 3)Send us a textIn Episode 3 of the PaCER Series, our guests Jamie Hodge, Marcia Bruce, and Dr. Elena Lopatina talk about the Patient and Community Engagement Research (PaCER) internship study: "Understanding the chronic pain journey and coping strategies that patients use to manage their chronic pain, a qualitative, patient-led, Canadian study."BiosMarcia Bruce is a patient advisor for Alberta Health Services and a patient research partner at the University of Calgary. As a Patient and Community Engagement Researcher, she is focused on using patient-informed research evidence to inform and improve...2024-05-0740 min