Shows
PEP TalksCytomegalovirus with Laija Beaulieu, Caroline Leroux, Lisa Robinson, Marcia Bruce & Dr. Eliana Castillo (PaCER Series: EP 4)Send us a textIn episode 4 of the PaCER series, we talk about the complexities of Congenital Cytomegalovirus (cCMV), a common virus that can affect 1 in 200 unborn children during pregnancy. Join us as we discuss a parent-led peer-to-peer Patient and Community Engagement Research (PaCER) study about the impact of cCMV on newborns, including potential lifelong health and developmental challenges such as hearing loss, visual impairments, and developmental delays. We will discuss the importance of early diagnosis, prevention strategies, and the controversial topic of universal newborn screening for cCMV. Our guests, PaCER graduates, parents with lived experiences, and...2024-08-231h 18
PEP Talks'The Pain Killers' with Jamie Hodge, Marcia Bruce, and Dr. Elena Lopatina (PaCER Series: EP 3)Send us a textIn Episode 3 of the PaCER Series, our guests Jamie Hodge, Marcia Bruce, and Dr. Elena Lopatina talk about the Patient and Community Engagement Research (PaCER) internship study: "Understanding the chronic pain journey and coping strategies that patients use to manage their chronic pain, a qualitative, patient-led, Canadian study."BiosMarcia Bruce is a patient advisor for Alberta Health Services and a patient research partner at the University of Calgary. As a Patient and Community Engagement Researcher, she is focused on using patient-informed research evidence to inform and improve...2024-05-0740 min