Shows
About IBDReclaiming Joy in Eating with IBD Featuring Stacey Collins, MA, RDN/LDNPeople with Crohn's disease or ulcerative colitis (forms of inflammatory bowel disease, or IBD) were told for many decades that diet didn't affect the disease. Even today, some patients are still told this, even though there is now significant evidence that diet absolutely matters in IBD. Stacey Collins, MA, RDN/LDN describes how her journey with ulcerative colitis led to j-pouch surgery. Her philosophy as a registered dietician is one of “nutrition by addition" rather than by dietary restriction. Stacey also focuses on the emotional aspects of eating with IBD, including the understandable fear and anxiety around food. Topics discussed: The...2025-04-2257 min
About IBDHow to Thrive as a Parent with IBD Featuring Jaime HollandAmber hands over hosting duties to Jamie Holland, a patient advocate with Crohn's disease. They discuss their personal experiences with inflammatory bowel disease (IBD). They focus on Amber's decision to have j-pouch surgery after being diagnosed with dysplasia and the effects it had on her fertility. Jamie asks Amber to share about the emotional and physical challenges of motherhood with IBD, including fatigue and guilt. They also touch on the possibility of passing IBD on to children and the importance of community and support. Concepts discussed on this episode: Xue M, Leibovitzh H, Jingcheng S, et al. Environmental Factors Associated W...2025-01-2840 min
About IBDParenting With IBD (With Alison McGauley)Amber interviews Alison McGauley, a teacher and author of "Kenzie's Little Tree," a children's book about a girl whose mother lives with chronic illness. Alison shares her journey with ulcerative colitis, irritable bowel syndrome (IBS), and ankylosing spondylitis, and how her hospitalization impacted her two daughters. She emphasizes the importance of talking about illness with children to help them process their emotions. Alison’s book, set to release in March 2025, aims to provide a narrative for families dealing with chronic illness. Pre-orders are available, with proceeds donated to Crohn's and Colitis Canada and the Arthritis Society. Buy Al...2024-10-1534 min
About IBDIBD and the Patient-Physician RelationshipThe relationship between patient and physician in inflammatory bowel disease (IBD, Crohn's disease, ulcerative colitis) is so critical to the success of the management of the disease. Both the patient and the physician have roles to play in developing and maintaining a good working relationship. One such example of a truly special and inspirational patient-physician relationship is illustrated here between Dr Julie Spivack, a gastroenterologist with Connecticut GI, and Rosa, her patient. Rosa and Dr Spivack discuss their close bond and how the listening, empathy, honesty, and open-mindedness work to build trust and achieve successful outcomes in patient-physician relationships2024-08-1325 min
About IBDIBD and Accommodations at Work With Katie ConnellyAmber Tresca and Katie Connelly discuss the challenges and importance of workplace accommodations for individuals with inflammatory bowel disease (IBD). Katie has been through the process of asking for accommodations with different employers and shares her personal experience, emphasizing the need for understanding the Americans with Disabilities Act (ADA). She relates her experience and gives advice to both employers and employees on how to manage the accommodation journey. Plus, she gives the resources that she found most helpful to help her learn about her rights as an employee. Find Katie Connelly at: Spotify: Katie Connelly Web...2024-07-3051 min
About IBDMen's Health and IBDThere tend to be more women than men who share their journey with inflammatory bowel disease (IBD, Crohn's disease, ulcerative colitis). The reasons are challenging to uncover, but what's clear is that more can be done to raise the visibility of men living with an IBD, ostomy, or other digestive condition. My guest is Jordan William Henry Aggen, also known as Crohn's Trooper. Jordan emphasizes the importance of open communication, pre-planning, and finding support from friends, family, and social media to cope with the disease. Concepts discussed on this episode: Which is Nerdier: Star Wars or...2024-06-2538 min
About IBDIBD and Somatic Therapy With Abri BernsteinPeople with IBD are more likely to live with anxiety, depression, or other mood disorders than people who don't live with one of these conditions. For that reason, caring for mental health is as important as caring for physical health. But it doesn't always work out that way, as patients may not know how important their mental health is to their physical health, or may not have access to a mental health professional. Abri Bernstein shares her personal journey with ulcerative colitis (UC) and how somatic psychotherapy helped her cope with living with the disease. Abri explains somatic psychotherapy...2024-04-1653 min
About IBDIBD Connect With Lisa FournierA diagnosis of inflammatory bowel disease (Crohn’s disease, ulcerative colitis, IBD) affects the entire family. When it’s a child that’s diagnosed, it changes so many things and brings a host of challenges. Families experience many unmet needs related to IBD. My guest is Lisa Fournier of IBD Connect. Lisa is the mother of two children who live with IBD. Her experiences in helping them manage IBD at different stages in life compelled her to be a support for others. She worked with her local hospital to start a support group and eventually founded IBD Connect. Learn about the pr...2024-01-1636 min
About IBDPost-Traumatic Stress Disorder and IBD With Stephanie Brenner, LCSW, MSWMy guest is Stephanie Brenner of Chronic Illness Psychotherapy. Stephanie is a Licensed Clinical Social Worker who has experience in working with clients with chronic illnesses. She has also taken on a variety of roles in GI space, including previously serving on both the advisory team for the Pediatric Crohn’s Guidebook and the recruitment committee for the Rome Foundation’s GastroPsych organization. Stephanie lives with Crohn’s disease and a permanent ileostomy and is also a cancer survivor. I asked her to help us better understand PTSD and PTS as they relate to having a chronic illnes...2023-12-1946 min
About IBDIBD in the Hispanic Community With Oriana Damas, MDAs an assistant professor of medicine in the Division of Gastroenterology at the University of Miami Miller School of Medicine, and the Director of Translational Studies for the Crohn’s and Colitis Center, Dr. Damas sheds light on the misconception that IBD only affects certain ethnicities. Her extensive research explores the connection between of environment and genetics in the development of IBD, with a special focus on its impact on immigrants from Latin America. Dr. Damas shares insights into the challenges of studying the role of diet in IBD, revealing key findings from her research and explaining how her wo...2023-12-0539 min
About IBDPositivity Beats IBD With Josef MillerWhat is it like to be a teen living with Crohn’s disease? If you’re like Josef Miller, you channel the challenges of the diagnosis and management of IBD into action. Josef has written a book about his experiences, entitled "The Purple Rose," and created an initiative called "Positivity Beats IBD," which creates inspirational cards for people living with IBD and other conditions. Learn about Josef's journey with Crohn's, his multicultural background, and how and why he decided to write a book. Find Josef Miller at: Instagram — Positivity Beats IBD: @positivity_beats_ibd Instagram — Josef Miller...2023-11-2839 min
About IBDCoping With IBD While in Military Service With Dr Anish PatelWhat do all the new oral drugs available for treating IBD have to do with military service? Being diagnosed with IBD might mean leaving the military for some service members. Part of the reason is that it’s not possible to be deployed while receiving a drug that’s an injection or an infusion. But when a medication works well and happens to be in pill form: that’s a game-changer. Dr Anish Patel, the Medical Director of the Inflammatory Bowel Disease Center at Brooke Army Medical Center gives an update on how IBD is treated in the military, what he sees...2023-11-0844 min
About IBDLearning to Accept IBD Being diagnosed with a chronic condition is a major adjustment. Digestive conditions like IBD (Crohn’s disease and ulcerative colitis) wind up affecting every part of our lives. Learning to accept the ways in which the disease affects life can be helpful. But it’s important to make the distinction between acceptance and complacency. Maalvika Bhuvansunder, a young adult patient living with Crohn’s disease, uses her experiences to help bring the concept of acceptance into focus for other people who are living with a chronic condition. Concepts discussed on this episode: What Is a Bowel Obstruction?: https://www.verywellhealth.com/what-i...2023-10-2428 min
About IBDIBD and MenopauseMenopause is a topic that's not well understood in general and there's even less information when it comes to menopause and inflammatory bowel disease (IBD, Crohn’s disease and ulcerative colitis). October is World menopause Awareness Month. World Menopause Day is on October 18 every year. The purpose of the day is to raise awareness of menopause and the support options available for improving health and well being. Learn more about how IBD may affect perimenopause and menopause, as well as the reverse. Concepts discussed on this episode: World Menopause Day: https://www.imsociety.org/education/world-menopause-day/ The North American Menopause Soc...2023-10-1714 min
About IBDManaging IBD Diet and Lifestyle With Clemmie OliverDiet does matter in inflammatory bowel disease (IBD). Not only in how it affects the digestive system, but also in overall health. Adults with IBD have greater incidences of heart disease, lung disease, cancer, diabetes, arthritis, kidney disease, liver disease, and ulcers than do people without IBD. For those reasons and more: thinking about diet and how it affects all these other body systems, as well as the IBD, is important. To discuss how diet relates to IBD, Amber talks to Clemmie Oliver, IBD Specialist Registered Associate Nutritionist and Nutritional Therapist (MSc, ANutr, Dip ION, mBANT, CNHC). Clemmie shares her per...2023-09-1251 min
About IBDWhere to Invest Money: Healthcare Disparities in IBDInflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds. One of the barriers to addressing disparities is money. It's an unfortunate fact that the healthcare system in the United States is intertwined with money. In some cases, access to care and other equity issues might be solved by putting some funding towards the problems. That's why I asked my guests a really broad question: If you received grant money, where would you allocate it in order to...2023-08-0821 min
About IBDI Wanted People to Know That They're Not Alone With Fasika Shimeles Teferra, MD: Healthcare Disparities in IBDInflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds. IBD is still considered rare in some parts of the world, but incidence is increasing. Fasika Shimeles Teferra, MD of Ethiopia describes her journey to a diagnosis of Crohn’s disease. Being a medical doctor, she has been able to make connections in order to help other IBD patients in her country. Patients face stigma, less than optimal care, and a lack of educational resources for themselves and th...2023-07-2529 min
About IBDI'm Letting You In With Cedric Pulliam, PhD: Healthcare Disparities in IBDInflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds. What is it like to not have anyone on your medical team that looks like you or understands your concerns? The diversity of the human experience is often not reflected in the healthcare system. In fact, there's little research into some areas of IBD, including the experience of LGBTQIA+ patients. Dr Cedric Pulliam, Senior Public Health Advisor at the Centers for Disease Control and Prevention, had...2023-07-1140 min
About IBDI Want Someone Who's Going to Understand Where I'm Coming From With Selvi Vasudevan, MD: Healthcare Disparities in IBDInflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds. Nutrition is a major component of managing digestive disease. Yet people living with Crohn's disease, ulcerative colitis, or indeterminate colitis may not be offered access to help managing their diet. Dr Selvi Vasudevan, founder of Dr Selvi's Keys to Ease Crohn's, discusses her Crohn's disease journey and how it led her to pursue the role diet and nutrition play in wellness as well as the cultural...2023-07-0433 min
About IBDYou Have to Genuinely and Authentically Connect With Leaders in This Space With Melodie Narain-Blackwell: Healthcare Disparities in IBDInflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds. Why do women of color encounter so many barriers when accessing care? Where are the spaces for black and brown patients to share their knowledge, experiences, and support around Crohn's disease, ulcerative colitis, and other immune-mediated and autoimmune conditions? Melodie Narain-Blackwell, founder of Color of Crohn's and Chronic Illness, discusses her Crohn's disease journey and how it led her to become a voice for the IBD...2023-06-2735 min
About IBDThese Disparities Have Been Going on for a Very Long Time With Dr Aline Charabaty: Healthcare Disparities in IBDIn this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds who live with IBD. Why is there a lack of people of diverse backgrounds who live with Crohn's disease or ulcerative colitis represented in clinical trials? Why are there so many barriers for people of color in accessing IBD care? Dr Aline Charabaty, Director of the IBD Center at Johns Hopkins Sibley Memorial Hospital and founder of Monday Night IBD on Twitter discusses the scope of inequalities in research and access to care in IBD. What's more: she...2023-06-2041 min
About IBDPregnancy and IBD: The PIANO Study With Uma Mahadevan, MDPregnancy while living with inflammatory bowel disease (IBD) feels scary. But thanks to the groundbreaking Pregnancy Inflammatory bowel disease And Neonatal Outcomes (PIANO) study, there is now so much more data and information to help moms and their doctors make decisions. Dr Mahadevan began the PIANO registry in 2007, which followed women and their babies through pregnancy and after. What was learned from this registry was how IBD medications, and especially biologics, affected pregnancy, birth, and infants. Learn how Dr Mahadevan has grown PIANO over the years, the most important findings so far, and how pregnant women can join the...2023-06-0625 min
About IBDYoga for IBD With Desiree SchmidtDesiree Schmidt, a 500-hour yoga instructor and owner of a personal training business, shares her passion for helping people with chronic illnesses, which is inspired by her own experience with Crohn's disease. She discusses how yoga has been key in her journey, both physically and mentally. Amber and Desiree discuss the benefits of different yoga forms and how to choose the right practice based on whether one is in a flare-up or in remission. Desiree points out how it is important to modify poses when living with a health condition, including IBD, to ensure comfort and safety...2023-05-2338 min
About IBDAccommodations for IBD in College With Sari GrossmanWhat happens when your professional life and your IBD overlap? Sari Grossman is a research scientist, Crohn's disease patient, and advocate for patients with chronic illnesses. She shares her experience with Crohn's disease, including her family history of IBD, diagnosis at a young age, her unusual symptoms, and the impact it had on her life. She speaks candidly about the physical and emotional challenges of living with a chronic illness, and how she has learned to cope with the ups and downs of her condition. Find Sari Grossman at: Twitter: @saribari99 Instagram: @saribari99 LinkedIn: @Sari Grossman 2023-03-2844 min
About IBDUp and Adam: A Patient's Experience on Winning with IBDIs it possible for kids to look at their touchpoints with medical care as empowering experiences? Adam Finkelstein, a medical student and author, shared his experiences of living with IBD from a young age, and how he coped with surgeries and doctor's appointments as a child. Adam provides tips for helping kids develop positive associations with going to the doctor, which include building trust with healthcare professionals, being honest about what to expect during appointments, and creating a comfortable environment for kids. Adam's book, "Up and Adam," is a resource for children with IBD and their families. ...2023-03-1429 min
About IBDLiving with IBD: How Caitlin McGinnis, LCSW Supports Mental HealthCaitlin McGinnis, LCSW was diagnosed with ulcerative colitis at the age of 22 and had her entire colon removed. This experience prompted her to become a social worker and specialize in providing mental health support for patients with various digestive health issues. Through her own experiences and connecting with support groups, Caitlin has learned the importance of creating communities, bringing awareness, and being a source of support for those going through similar struggles. She strives to provide her patients with the support she did not have when she was diagnosed. Find Caitlin McGinnis, LCSW on: Psychology Today...2023-02-2828 min
About IBDIBD and Biomarkers: What You Need to Know With Andres Hurtado-Lorenzo, PhDWhat if we knew which patients would have severe Crohn’s disease or ulcerative colitis? And which wouldn’t? How about if we could tell which drug would work best in which patient? Knowing these things would change how inflammatory bowel disease (IBD) is diagnosed and treated. Plus, more importantly: it would improve lives. Dr Andres Hurtado-Lorenzo, Vice President of Translational research and IBD Ventures at the Crohn's and Colitis Foundation explains biomarkers and how they may play into the future of how IBD is diagnosed, managed, and treated. Resources: Crohn’s & Colitis Foundation:https://www.crohns...2022-07-1129 min
About IBDAbout IBD Podcast Episode 120 - Don’t Google Your Symptoms With CJ PapuroThere aren’t as many men who are vocal in the inflammatory bowel disease (IBD) space as there are women. Crohn’s disease and ulcerative colitis affect men as often as they do women, but fewer men seem comfortable being public about their disease. That’s why Carlos “CJ" Cabrera, who also goes by CJ Papuro, entered the IBD community after his diagnosis of Crohn’s. He gives an overview of how difficult it was to be diagnosed as a US veteran using the Veterans Health Administration, his struggles with finding his way with nutrition, the ways in which IBD has affected...2022-06-2732 min
About IBDCannabis and IBDThere are significant unmet needs for IBD patients that include pain control, sleep disturbances, anxiety, and depression. Some patients turn to medical cannabis for these symptoms. But is that a good idea, does it work, and what should patients and their doctors know about medical cannabis? To answer these questions and more, Amber talks to cannabis and IBD expert Dr Jami Kinnucan, who is a Senior Associate Consultant in the Section of Gastroenterology and Hepatology at the Mayo Clinic in Jacksonville, Florida. Get lots more information and a transcript at https://bit.ly/AIBD118 Find...2022-06-0648 min
About IBDHow Physical Therapy Can Help People With IBDWhen you think of Crohn’s disease or ulcerative colitis, you might not think of physical therapy. But physical therapy and pelvic floor therapy can be integral to helping with function, pain, and having better bowel movements. To learn more, I connected with Nancy Cullinane, who is a Board-Certified Women’s Health Clinical Specialist at Overlake Hospital and Clinics Outpatient Rehab in Washington State, and Christine Morgan, who is a Board-Certified Sports Clinical Specialist and the Director of Clinical Education at the Florida Southern College School of Physical Therapy. They describe the ways in which a physical therapist can help with...2022-05-2337 min
About IBDHow to Be Happy & Healthy With IBD: The Psychosocial Impact of IBDThere are tools available to address the psychosocial impact of inflammatory bowel disease (IBD). Learn what’s available to you from Dr Jessica Naftaly, a GI behavioral health fellow at the University of Michigan and Amy Bugwadia, higher education coordinator for Generation Patient, Teaching Assistant at Stanford University School of Medicine, ulcerative colitis patient, and key opinion leader in the IBD community. Concepts discussed on this episode include: The Rome Foundation Gastropsych Directory Psychology Today Find a Therapist Diaphragmatic Breathing [Video] With Megan Riehl, Psy.D. National Council of College Leaders Crohns & Colitis Foundation's Power of Two...2022-05-1634 min
About IBDHow to Be Happy & Healthy With IBD: Reducing the Day-to-Day BurdenWhether in remission or not, the day-to-day of life with IBD can be challenging. Living with Crohn’s disease or ulcerative colitis, even when feeling well, might mean making lifestyle changes, going to doctor’s appointments, and taking medications. Many people are diagnosed young, at a time when their friends aren’t going through anything similar. To understand how people might deal effectively with these changes, Amber talks with Dr Sandra Quezada, a gastroenterologist who specializes in IBD at the University of Maryland Medical Center and Varada Srivastava, a Crohn’s disease patient and biotechnology major who is also a 2022 Cr...2022-05-0235 min
About IBDCommon Misconceptions About IBDMyths and misconceptions about IBD are common. Even amongst patients, there’s things that take time and education to understand because the things that swirl around in the public consciousness are not always true. To help understand why we can’t get rid of some of these common misconceptions, Amber Tresca is joined by gastroenterologist and IBDologist Siobhan Proksell, MD, and ulcerative colitis and irritable bowel syndrome (IBS) patient advocate Molly Dunham-Friel, MPH of Better Bellies By Molly. Concepts discussed on this episode include: IBD Parenthood Project How Gut-Directed Hypnosis Helps IBS, IBD and Other GI Disord...2022-04-1839 min
About IBDHow to Be Happy & Healthy With IBD: Tips for Navigating Health InsurancePeople who live with chronic illness don’t get training on how to deal with health insurance. Yet it is a major part of living with conditions such as Crohn’s disease or ulcerative colitis. Plus, it not only affects patients living with IBD, but our doctors and other healthcare providers are also frustrated and overburdened with dealing with red tape such as prior authorizations. Dr Shubha Bhat, a gastroenterology clinical pharmacist at the Cleveland Clinic and Jaime Holland, who is a healthcare activist and Crohn’s disease patient tell me how they handle health insurance complications and what we can...2022-04-0441 min
About IBDHow to Be Happy & Healthy With IBD: Discussing IBD With Family and FriendsPeople who live with Crohn’s disease or ulcerative colitis don’t want to feel like a burden. They may feel guilty about changing or canceling plans. Sometimes, people with IBD may not even want to make plans in the first place. A strong support system can help overcome these issues and help patients manage their new normal. Dr Alexandra Fuss, a clinical health psychologist and an Assistant Professor of Psychiatry in the Department of Psychiatry at Yale School of Medicine and Brooke Abbott, ulcerative colitis patient, founder of The Crazy Creole Mommy Chronicles, and co-founder of IBDMoms tell me h...2022-03-2142 min
About IBDFatherhood and IBD With Jordan McConnellThe patient advocacy space is lacking the voices of men and especially men of color. The result is that the IBD community is not diverse enough to provide the kind of support that they need. Jordan McConnell, the founder of Crohn’s Veteran, is looking to change the dynamics of the online IBD space. Jordan served in the military and was eventually discharged due to his Crohn’s disease. It was a shock and changed his career plans unexpectedly. His disease journey showed him that he needed to be the change and he developed his podcast and his...2021-06-2039 min
B2B Sales and Marketing #FriTalks1: Unlocking international markets: practical learnings and insights.In the inaugural session of the Sales and Marketing Fri Talks, Andrejs Juščenko is set to interrogate Rolands Ozoliņš to try and squeeze out everything Rolands knows about breaking into international B2B markets.
During this live event, we will discuss:
- the most frequent wrong assumptions companies have about expansion to international markets
- the difference between Local and International sales
- why things are not the same, and how to make them work for B2B companies.
Andrejs and Rolands are both founders of IBD Consulting and former Microsoft exec...2021-06-0230 minAbout IBDSingle Motherhood and IBD With Brooke AbbottMotherhood comes in all shapes and sizes. The intersection of inflammatory bowel disease (IBD) and motherhood is often left out of the discussion and single motherhood and IBD is pretty much ignored altogether. That's why I asked my close friend and co-founder of IBDMoms, Brooke Abbott of The Crazy Creole Mommy Chronicles, to tell me about her challenges and her successes living with IBD, a j-pouch, and being a single mom of a young son. Concepts discussed in this episode: What Are the Five Love Languages? An Overview of Asacol (Oral Mesalamine) How Does Implicit Bias...2021-05-3131 min
IBD podcastMarianna Gierszewska - moja historia z chorobą | #21Dzisiejszym gościem Jacka Hołuba jest aktorka młodego pokolenia – Marianna Gierszewska. Opowie Wam swoją historię od diagnozy wrzodziejącego zapalenia jelita grubego, poprzez kolejne lata zmagania się z chorobą. Mamy nadzieję, że ta historia zainspiruje pacjentów zmagających się NChZJ, do życia i brania z każdego dnia 100%. Zwłaszcza dziś, kiedy w dniu premiery obchodzimy World IBD Day, czyli Światowy Dzień Chorób Zapalnych Jelit.Drodzy Słuchacze, przesyłajcie do nas swoje uwagi czy sugestie tematów. Jeżeli chcecie podzielić się swoja opinią na temat IBD podcast, to adres jest dla Was: IBDpodcast@takeda.com2021-05-1952 min
About IBDIBD and Pregnancy With Jill Gaidos, MDWe used to be told that women with IBD couldn’t have children. We were also told people with IBD shouldn’t have children. The truth is this: women with IBD get pregnant and have healthy pregnancies and babies. We have more evidence and guidance than ever before. Gastroenterologist Dr Jill Gaidos, Associate Professor of Medicine in the section of Digestive Diseases and the Director of Clinical Research for the Yale Inflammatory Bowel Diseases Program discusses the finer points of pregnancy and IBD. When to seek help for fertility, what medications should be continued in pregnancy, and the...2021-05-0336 min
About IBDHealthcare Disparities in IBDHey, it's Amber. I want to tell you about my limited podcast series, Healthcare Disparities in IBD. IBD used to be thought of as a Western disease. Something that happened in developed countries like the United States, Canada, the UK, and Australia. IBD was also thought to mainly affect White people and people of Jewish heritage. However, these demographics are changing, and IBD is now considered a global disease.[1] A harmful and pervasive misconception is that IBD does not affect people of various ethnic and cultural backgrounds. Minority patients are sometimes told that they can't...2021-04-0501 min
IBD podcastŚcieżka pacjenta IBD | #18Ścieżka pacjenta z NChZJ: od rozpoznania do podjęcia leczenia biologicznego. Rozmowa ze śląskim konsultantem wojewódzkim w dziedzinie gastroenterologii o drodze pacjenta od rozpoznania nieswoistej choroby zapalnej jelit, poprzez leczenie tzw. konwencjonalne aż do leczenia biologicznego. Co o procesie leczenia mówią wytyczne europejskie? Czy mamy w Polsce zespoły multidyscyplinarne? Co to są programy lekowe i jaka jest do nich dostępność w Polsce? Na te i inne pytania odpowie, w rozmowie z Pauliną Batóg, dr Tomasz Romańczyk. Zachęcamy do kontaktu z nami: ibdpodcast@takeda.com(rozmowa zarejestrowana w listopadzie 2020 r.)C-ANPROM/PL/ENTY/01742021-03-1644 min
IBD podcastSex i NChZJ w oczach gastrologa | #17Porozmawiajmy o seksie, z gastrologiem. Kolejny etap odkrywania obszaru seksualności pacjentów z NChZJ. Będziemy mówić między innymi o bezpiecznej antykoncepcji dla pacjentek z nieswoistymi chorobami zapalnymi jelit, o bólu w trakcie zbliżenia i o tym jak można go złagodzić. Jacek Hołub zapyta także dzisiejszego gościa, dr n. med. Magdalenę Kaniewską, o seks w chorobie z przetokami, o seksie analnym i stosunku po operacji jelita.Zachęcamy do przesyłania swoich uwag, sugestii czy zamawiania materiałów informacyjnych na temat IBD podcast do gabinetów i poradni: IBDpodcast@ta...2021-02-2347 min
About IBDLiving With IBD and a Rare DiseaseLiving with one disease is bad enough, but living with two adds more than two times the complexity. As a young man, Aaron Blocker was diagnosed with Crohn’s disease after years of coping with strange and seemingly disconnected signs and symptoms. He continued to have problems which resulted in two hip replacements that were blamed on prednisone. However, after one of those hip replacements became dislocated, Aaron went looking for more answers and wound up suspecting that he also had an ultra-rare condition called hypophosphatasia. Concepts discussed on this episode: Osteonecrosis (Avascular Necrosis) Explained What Is...2021-02-2137 min
IBD Message Audio#ByTheWord Psalm 91:3-4Mag-iisang taon na tayong nasa gitna ng pandemya. Alalahanin natin ngayong gabi kung paano tayo iningatan ng Panginoon sa mga nakaraang araw at ang mga pangako Niya na nakalaan sa atin sa hinaharap sa ating #ByTheWord, kasama si Bro. Christopher Cabeza mula sa IBD Central. #BTW #IBDFamily2021-02-0904 min
IBD Message Audio#ByTheWord Revelation 21:4Minsan ba'y naiisip mong walang katapusan ang mga problema at mga pagsubok na dumadaan sa buhay mo hanggang sa ikaw ay sumuko na at ayaw magpatuloy? May pangako ang Panginoon na dapat nating panghawakan! Alamin natin ito sa #ByTheWord kasama si Sis. Raquel Santos mula sa IBD Tibagan. #BTW #IBDFamily2021-01-2603 min
IBD podcastKolonoskopia w NChZJ | #15Rola kolonoskopii w diagnostyce i monitorowaniu NChZJ. W dzisiejszej rozmowie gastroenterolog, Pani dr n. med. Karolina Radwan wyjaśni jak ważną rolę pełni badanie kolonoskopowe w diagnostyce i monitorowaniu nieswoistych chorób zapalnych jelit. Co to jest nadzór endoskopowy? Jak często należy wykonywać kolonoskopię? Jak ważne jest przygotowanie jelit przez pacjenta? Czy kolonoskopia boli oraz czy może być wykonana w sedacji? Rozmowę prowadzi rzecznik Towarzystwa J-elita, znany już z poprzednich odcinków – Pan Jacek Hołub.Będzie nam miło poznać Państwa opinię o IBD podcast, pomysły na nowe tematy czy sugest...2021-01-2639 min
IBD podcastPielęgniarka IBD w zespole medycznym | #13Jak ważna jest rola pielęgniarki w zespole medycznym IBD. Pani Magdalena Golik, znana z jednego z wcześniejszych odcinków, opowie dziś jak ważna jest rola pielęgniarki jako członka zespołu prowadzącego pacjentów z NChZJ. C-ANPROM/PL/ENTY/0003 (10.2020); C-ANPROM/PL/ENTY/0004 (10.2020)2020-12-1540 min
IBD podcastEmocje w IBD | #12Jakie emocje towarzyszą pacjentom z NChZJ i jak sobie z nimi radzić. Lęk, wstyd, smutek… To tylko niektóre z wielu emocji towarzyszących pacjentom z nieswoistymi chorobami zapalnymi jelit w życiu codziennym. Jak sobie z nimi radzić? Gdzie szukać pomocy? Między innymi na te pytania odpowie znana z jednego z poprzednich odcinków Pani psycholog - Agata Rudnik. C-ANPROM/PL/ENTY/0017; C-ANPROM/PL/ENTY/00162020-11-2433 min
IBD podcastKariera z IBD | #8Praca zawodowa z nieswoistymi chorobami zapalnymi jelit. Z wrzodziejącym zapaleniem jelita grubego i chorobą Leśniowskiego-Crohna zmagają się głównie osoby młode. Jak pogodzić pracę z chorobą opowie w rozmowie z panem Jackiem Hołubem z Towarzystwa J-elita pani Magdalena Sajak-Szczerba.C-ANPROM/PL//0486, C-ANPROM/PL//04872020-09-1527 min
IBD podcastPodróżowanie z IBD | #7Nieswoiste choroby zapalne jelit a podróże bliskie i dalekie. Biegunka, ból brzucha i dieta sprawiają, że podróże potrafią być dla chorych prawdziwym wyzwaniem. Jak podróżować z nieswoistymi chorobami zapalnymi jelit? Co zrobić, żeby choroba nie odbierała nam radości z bliskich wypadów i dalekich wojaży?C-ANPROM/PL//0440, C-ANPROM/PL//04412020-08-2523 minAbout IBDAbout IBD Preview - Crohn's Disease and Ulcerative ColitisWhile everyone who lives with inflammatory bowel disease (Crohn's disease, ulcerative colitis, indeterminate colitis), or IBD, has their own story, there are major themes. Finding someone whose story is similar to yours is both validating and empowering. This is why Amber Tresca, who lives with ulcerative colitis and a j-pouch, developed the About IBD Podcast. IBD is not only isolating but it also affects every aspect of the lives of those who live with these diseases. It touches relationships, finances, and careers. On About IBD, Amber talks to caregivers and people living with IBD to get their stories so that t...2020-08-0901 min
IBD podcastDieta w IBD cz. 2 | #6Czy istnieje skuteczne leczenie bez żywienia? Prawidłowy stan odżywienia ma istotne znaczenie w leczeniu chorób przewodu pokarmowego. W drugiej część rozmowy z dietetykiem, mgr inż. Małgorzatą Matuszczyk poruszymy tematy związane zarówno ze stanem odżywienia pacjentów z IBD, jak i leczeniem żywieniowym – dojelitowym i pozajelitowym. Dowiemy się również czy istnieje współpraca między lekarzami a dietetykami oraz czy dla pacjentów z wyłonioną stomią, występują konkretne zalecenia żywieniowe. Zapraszamy do wysłuchania kolejnego odcinka IBD podcast.PL/EYV/20/0036ad, PL/EYV/20/0036ac2020-08-0426 min
IBD podcastCo niepokoi u chorego z IBD? | #5Sytuacje szczególne i alarmowe u chorych z rozpoznanym już IBD. Pacjenci z IBD mogą prezentować niepokojące objawy zarówno w przebiegu swojej choroby podstawowej, ale także z powodu działań niepożądanych leków. Mogą też u nich występować współchorobowości wymagające pilnej interwencji. Jak interpretować te objawy, jak je różnicować i czym leczyć?PL/EYV/20/0036t, PL/EYV/20/0036u2020-07-2114 min
IBD podcastTwój pacjent z IBD | #4Monitorowanie w POZ pacjenta z już rozpoznaną nieswoistą chorobą zapalną jelit. Nadzór nad osobami z postawionym już rozpoznaniem IBD wymaga okresowej oceny ich stanu ogólnego, nasilenia objawów, kontynuacji przewlekłego leczenia i badań okresowych. Na co zwracać szczególną uwagę w codziennej praktyce lekarskiej?PL/EYV/20/0036r, PL/EYV/20/0036q2020-07-0709 min
IBD podcastDieta w IBD cz.1 | #3Czy istnieją konkretne zalecenia żywieniowe dla pacjentów z IBD? Dieta u pacjentów z IBD ma fundamentalne znaczenie. O tym, że żywienie powinno być integralną częścią leczenia nie powinniśmy nikogo przekonywać. Jak wyglądają zalecenia żywieniowe, co może, a czego nie powinien jeść taki pacjent, jak przygotować się do wizyty u dietetyka, a także na wiele innych pytań związanych z tematyką żywienia w tej grupie chorych odpowie Pani mgr inż. Małgorzata Matuszczyk, dietetyk w zespole IBD w Centrum Zdrowia Dziecka, specjalizująca się w leczeniu żywieniowym dzieci i dorosłych z nieswoistymi chorobami zapalnymi...2020-06-2325 min
IBD podcastRozpoznanie IBD | #1Jak spośród wielu chorych z biegunką rozpoznać pacjenta z nieswoistą chorobą zapalną jelit? Najczęstszą przyczyną ostrej biegunki, z jaką spotyka się lekarz w swoim gabinecie jest infekcja, a w przypadkach biegunki przewlekłej to zaburzenia czynnościowe. Jak wśród licznych przypadków rozpoznać te związane z nieswoistą chorobą zapalną jelit? Kluczowe wskazówki dla praktyków zbierających wywiad i planujących pierwsze kroki diagnostyczne w inspirującej rozmowie ze specjalistą z ośrodka akademickiego w Lublinie – dr Agatą Michalak. PL/EYV/20/0036a, PL/EYV/20/0036e2020-05-2615 min
IBD podcastIntro | #0Nieswoiste choroby zapalne jelit bez tajemnic? IBD podcast to przede wszystkim praktyczna wiedza, za która stoją lata doświadczeń. Posłuchaj naszych rozmów z lekarzami praktykami, którzy na co dzień leczą pacjentów z wrzodziejącym zapaleniem jelita grubego oraz chorobą Leśniowskiego-Crohn’a. PL/EYV/20/0036i, PL/EYV/20/0036h2020-05-2601 min
About IBDWhat It's Like to Have IBD and COVID-19People living with IBD who have suppressed immune systems because of medication are understandably concerned about their risks surrounding the novel coronavirus and COVID-19. Jamie Horrigan, a medical student and founder of "Sweetened By Nature," lives with Crohn’s disease and gastroparesis and was diagnosed with COVID-19. She describes her experiences with symptoms, diagnosis, isolation, and recovery. She also gives some insight on why a common complication of coronaviruses, called a cytokine storm, may be an important factor of COVID-19 for people with IBD. Concepts discussed on this episode: Coronavirus (COVID-19) testing: What you should know (UC...2020-04-1331 min
About IBDHealth Insurance, Accommodations, and IBD at WorkPeople who live with Crohn’s disease or ulcerative colitis have more to consider when it comes to the workplace. The cost of inflammatory bowel disease (IBD) means that a comprehensive insurance plan is a must, which may limit job choices. A flare-up or complication that results in absences can lead to poor performance reviews or difficulties with supervisors or co-workers. How can people with IBD cope? Three women who live with IBD, Megan Starshak, Mary Elizabeth Ulliman, and Tina Aswani Omprakash, tell their stories about missing work, being underinsured, and changing jobs while managing IBD. Information di...2020-02-1128 min
About IBDManaging IBD and a CareerHow does having Crohn’s disease or ulcerative colitis have an impact on your career? The symptoms of IBD, as well as the cost, can affect the ability to work in the same way as healthy people. Three women who live with IBD, Megan Starshak, Mary Elizabeth Ulliman, and Tina Aswani Omprakash, tell their stories about coping with college, first jobs, and career derailment as a result of their disease. Information discussed in this episode includes Clostridium difficile (C diff) Infection, Short-Term Disability Insurance, Colectomy Surgery, J-pouch Surgery, and IBD and the Americans With Disabilities Act. F...2020-01-2822 min
About IBDReporting from Advances in IBD 2019: Getting Out of the BathroomIn December 2019 I went to Advances in IBD, which is a medical meeting that's focused entirely on Crohn's disease and ulcerative colitis. The understanding that IBD is more than a "bathroom disease" has finally hit home, and attendees (which include healthcare professionals such as nurses, dietitians, gastroenterologists, GI psychologists, and colorectal surgeons) were educated on a variety of topics. In this episode I provide some of the highlights of the meeting including sessions on diet, medication risks, and pregnancy. Articles and information discussed in this episode include a discussion of absolute risk, "Don't Forget that 5-ASAs Also...2020-01-1415 min
IBD ja muut suolistosairaudet ry - Suoli SuoranaSuoli suorana - Kausi 2 - 5 Kaverit ja perheKun kaveri salakuljettaa sinulle hampurilaisaterian sairaalaan tai kun puoliso auttaa huuhtelemaan takapuolen leikkaushaavoja, voi luottaa siihen, että läheisten tuki ja ymmärrys ovat tällöin kohdillaan.
Suoli suorana -podcastin toinen kausi saa ansaitsemansa päätöksen, kun IBD-viikon kunniaksi vakiojuontajiemme Simon ja Henna-Marian seuraan saapuu Crohn ja Colitis ry:n sometiimiläinen ja tubettaja Sanni!
Tässä jaksossa keskustellaan sosiaalisista suhteista ja siitä, miten kaverit, perhe ja läheiset suhtautuvat suolistosairauteen? Kolmikko pohtii mm. sitä, millaista läheisten suhtautuminen on silloin kun sairaus puhkeaa jo lapsuudessa tai silloin kun sairaus tulee osaksi nuorten aikuisten parisuhdetta? Entä miten sairaus vaikuttaa lapsip...2019-12-0300 min
About IBDEpisode 60: Managing IBD Is a Team Sport With Dr Aline CharabatyThis episode is sponsored by AbbVie. How do you think about your connection with your gastroenterologist? The patient/physician relationship is important in managing inflammatory bowel disease. I talk with Dr. Aline Charabaty, Associate Professor of Medicine, Director of the IBD Center at Johns Hopkins Sibley Memorial Hospital, and winner of the 2019 Healio Gastroenterology Social Media Influencer Award, about how patients and doctors can better understand one another and better communicate about managing your disease. Find out how doctors can help patients in addition to finding the appropriate treatment for them, including what kinds of questions both...2019-12-0229 minIBD ja muut suolistosairaudet ry - Suoli SuoranaSuoli suorana - Kausi 2 - 4 FistelitTiedätkö miksi kutsutaan iholle, suoliston osien tai elimien välille muodostuvaa epäluonnollista yhteyttä?
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Oikea vastaus on fisteli.
Siitä miten fisteli muodostuu, oireilee, miten se vaikuttaa sairastavan elämään ja miten fisteleitä hoidetaan kertoo tarkemmin gastroenterologi Sinikka Salmenkylä. Kokemuspuheenvuoron aiheeseen antaan Crohn ja Colitis ry:n järjestökoordinaattori Carita Sinkkonen.
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Suoli suorana on Crohn ja Colitis ry:n podcast-sarja elämästä IBD:n kanssa. Sarjaan äänensä antavat IBD:tä sairastavat Simo ja Henna-Maria, sekä alan asiantuntijat.
Tervetuloa mukaan!
Sarja on tuotettu yhteistyössä lääkeyhtiö Takedan sekä strategia- ja sisältötoimisto Myy Agencyn kanssa.2019-11-1900 minIBD ja muut suolistosairaudet ry - Suoli SuoranaSuoli suorana - Kausi 2 - 3 Henkinen jaksaminenKun pönttö näyttää Quetin Tarantinon leffalta ja koulumatkat pitää suunnitella vessojen mukaan, voi olla melko vaikeaa uskotella itselleen, ettei sairaus vaikuta elämään. Vai onko?
Tässä jaksossa vakiojuontajamme Simo ja Henna-Maria kertovat kokemuksistaan IBD:n, sairauden aiheuttamien oireiden ja avanteen hyväksymisestä. Juontajat keskustelevat myös siitä, mikä merkitys yhdistyksellä on ollut sairauden hyväksymisessä. Asiantuntijanäkökulman aiheeseen antaa nuorten mielenterveysseura Yeesin Katariina Haapanen.
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Suoli suorana on Crohn ja Colitis ry:n podcast-sarja elämästä IBD:n kanssa. Sarjaan äänensä antavat IBD:tä sairastavat Simo ja Henna-Maria, sekä alan asiantuntijat.
Tervetuloa mukaan!
Sarja on tuotettu yhteistyössä lääke...2019-11-0500 minIBD ja muut suolistosairaudet ry - Suoli SuoranaSuoli suorana - Kausi 2 - 2 LiitännäissairaudetIBD eikä siinä vielä kaikki!
Tässä jaksossa keskustellaan IBD:n liitännäissairauksista. IBD:n eli tulehduksellisen suolistosairauden kaveriksi sairastavat voivat saada esimerkiksi nivelkipuja, erilaisia iho- ja silmäoireita tai munuaismuutoksia.
IBD:n tavoin myös liitännäissairaudet ovat yksilöllisiä. Toisilla liitännäissairauksia ei esiinny lainkaan ja toisilla liitännäissairaudet oireilevat IBD:tä pahemmin. Näistä kokemuksista keskustelemassa podcastin vakiojuontajat Simo ja Henna-Maria sekä asiantuntijapuheenvuoronsa antava gastroenterologi Tuire Ilus.
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Suoli suorana on Crohn ja Colitis ry:n podcast-sarja elämästä IBD:n kanssa. Sarjaan äänensä antavat IBD:tä sairastavat Simo ja Henna-Maria, sekä alan asiantuntijat.
Tervetul...2019-10-2200 minIBD ja muut suolistosairaudet ry - Suoli SuoranaSuoli Suorana - Kausi 2 - 1 Seksuaalisuus ja parisuhdeSuoli suorana -podcastin uuden kauden avausjakso nyt Spotifyssa ja Soundcloudissa!
Himmentäkää valoja, ripotelkaa ruusunterälehdet ja sytyttäkää tuoksukynttilät. Nyt keskustellaan IBD:stä ja seksistä!
Tässä jaksossa vakiojuontajamme Simo ja Henna-Maria pohtivat mm. sitä, miten ja missä vaiheessa IBD:stä kannattaa kertoa uudelle kumppanille ja miten sairaus vaikuttaa deittailuun, parisuhteeseen ja seksuaalisuuteen. Asiantuntijan näkökulman aiheeseen antaa Crohn ja Colitis ry:n järjestösuunnittelija Maria Joutsen, joka tarkastelee pitkäaikaissairautta parisuhteessa kumppanin näkökulmasta - miten olla tukena ja mistä itse saada voimavaroja silloin, kun puoliso sairastaa?
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Suoli suorana on Crohn ja Colitis ry:n podcast-sarja eläm...2019-10-0800 minIBD ja muut suolistosairaudet ry - Suoli SuoranaSuoli Suorana - 5 MatkustaminenTässä ensimmäisen kauden viimeisessä Suoli suorana -podcastin jaksossa puhutaan matkustamisesta. IBD:tä sairastavilla matkustaminen saattaa vaatia hiukan normaalia enemmän suunnittelua. IBD:tä sairastava saattaa joutua pohtimaan, miten vessareissut ajoitetaan matkalla kotoa Helsinki-Vantaalle. Tai mitä jos akuutein vessahätä iskee lentokoneessa juuri turvavyön merkkivalon palaessa? Entä millaisia vessat ovat kohteessa?
Jaksossa omia onnistuneita ja ei niin onnistuneita kokemuksiaan jakavat podcastin juontajat Simo ja Henna-Maria. Jaksossa paljastuu mm. miten Henna-Marian kävi, kun hänen avannepussiaan luultiin lentokentällä salakuljetuskätköksi. Tai kun ruskaretkeilijät yllättivät luonnon helmasta helpotusta hakeneen Simon. Asiantuntijan puheenvuoron pitää gastroenterologian erikoislääkäri Nina Eri...2019-06-1000 minIBD ja muut suolistosairaudet ry - Suoli SuoranaSuoli Suorana - 4 Hoitoon sitoutuminenTässä jaksossa Henna-Maria ja Simo puhuvat hoitoon sitoutumisesta, tutkimuksista ja lääkehoidosta.
Juontajat kertovat mm. sairautensa ensioireista, diagnoosin saamisesta sekä siitä, miksi Henna-Marian peräsuoli on ollut osana kahvipöytäkeskusteluja?
Näiden lisäksi keskustelua käydään vertaistuesta, sen merkityksestä ja siitä kuinka tärkeää on löytää kaltaisiaan, joiden seurassa vessassa ravaamistaan ei tarvitse selitellä.
Suoli suorana on Crohn ja Colitis ry:n podcast-sarja elämästä IBD:n kanssa. Sarjaan äänensä antavat IBD:tä sairastavat Simo ja Henna-Maria, sekä alan asiantuntijat.
Tervetuloa mukaan!
Sarja on tuotettu yhteistyössä lääkeyhtiö Takedan sekä strategia- ja sisältötoimisto Myy Agencyn kanssa.2019-05-2700 minIBD ja muut suolistosairaudet ry - Suoli SuoranaSuoli Suorana - 3 MyytinmurtajatSunnuntaina 19.5. vietetään Maailman IBD-päivää!
Päivän kunniaksi Simo ja Henna-Maria lukevat uusimmassa Suoli suorana -podcastissa seuraajiemme lähettämiä IBD-aiheisia myyttejä ja uskomuksia.
Jaksosta saat selville mm. voiko j-pussin päälle istua, mikä ihme on "soma" j-pussi ja pitääkö avannepussille varata oma paikka lentokoneesta?
Suoli suorana on Crohn ja Colitis ry:n podcast-sarja elämästä IBD:n kanssa. Sarjaan äänensä antavat IBD:tä sairastavat Simo ja Henna-Maria, sekä alan asiantuntijat.
Tervetuloa mukaan!
Sarja on tuotettu yhteistyössä lääkeyhtiö Takedan sekä strategia- ja sisältötoimisto Myy Agencyn kanssa.2019-05-1300 minIBD ja muut suolistosairaudet ry - Suoli SuoranaSuoli Suorana - 2 RavitsemusTänään puhutaan ruoasta ja ravitsemuksesta!
"Kaali pierettää normaalia ihmistä, niin sen kun kerrot kymmenellä tai viidelläkymmenellä, niin sit saat ehkä IBD-potilaan vaikutuksen."
Tässä jaksossa kerrotaan tarinaa muun muassa kokonaisista kirsikkatomaateista, kaalisalaatista ja mikrotetusta piparista - luettuna tylsää, mutta kuultuna kutkuttaa nauruhermoja!
Jaksossa asiantuntijana laillistettu ravitsemusterapeutti Anne Pohju kertoo IBD:tä sairastavan ruokavaliosta.
Suoli suorana on Crohn ja Colitis ry:n podcast-sarja elämästä IBD:n kanssa. Sarjaan äänensä antavat IBD:tä sairastavat Simo ja Henna-Maria, sekä alan asiantuntijat.
Tervetuloa mukaan!
Sarja on tuotettu yhteistyössä lääkeyhtiö Takedan sekä strategia- ja sisältötoimisto Myy Agencyn kanssa.2019-04-2900 minIBD ja muut suolistosairaudet ry - Suoli SuoranaSuoli Suorana - 1 Mitkä Terveet ElämäntavatMitkä terveet elämäntavat?!
"Heti kun heräsin - vessaan. Ensimmäinen hörppy kahvia - vessaan. Ennenkun lähen kouluun - vessaan."
Tässä jaksossa pohditaan erilaisia elämäntapoja, kun matkassa on mukana myös IBD.
Asiantuntijana gastroenterologi Perttu Lahtinen.
Suoli suorana on Crohn ja Colitis ry:n podcast-sarja elämästä IBD:n kanssa. Sarjaan äänensä antavat IBD:tä sairastavat Simo ja Henna-Maria, sekä alan asiantuntijat.
Tervetuloa mukaan!
Sarja on tuotettu yhteistyössä lääkeyhtiö Takedan sekä strategia- ja sisältötoimisto Myy Agencyn kanssa.2019-04-1500 minIBD ja muut suolistosairaudet ry - Suoli SuoranaSuoli Suorana - INTRO, kausi 1Suoli suorana on Crohn ja Colitis ry:n podcast-sarja elämästä IBD:n kanssa. Sarjaan äänensä antavat IBD:tä sairastavat Simo ja Henna-Maria, sekä alan asiantuntijat.
Ensimmäinen jakso julkaistiin maanantaina 15.4.2019. Jaksoja ilmestyi kevään ja alkukesän 2019 aikana yhteensä viisi. Jaksoissa käsitellään terveitä elämäntapoja, ravitsemusta, IBD:hen liittyviä olettamuksia ja myyttejä, hoitoon sitoutumista, tutkimuksia ja lääkehoitoa sekä matkailua ja rokotuksia. Jokaisessa jaksossa sairastavat kertovat omia ja kavereiden kokemuksia aiheeseen liittyen, sekä kuullaan asiantuntijoiden faktatietoa.
Tervetuloa mukaan!
Sarja on tuotettu yhteistyössä lääkeyhtiö Takedan sekä strategia- ja sisältötoimisto Myy Agencyn kanssa.2019-04-1200 minAbout IBDHow to Apply Critical Thinking to IBD ResearchThe internet runs on advertising, which means that editors and writers are often tasked with getting the most possible eyeballs on their story. That can mean that there’s pressure to write a controversial or sensational headline to get those clicks. In this episode, I invite experienced medical writer and university instructor, Shereen Lehman, to weigh in and tell you how to figure out if a story about IBD is good reporting — or if it’s crap. Articles on critical thinking and research: Should IBD Patients Look To Mouse Studies For Hope?: http://aboutibd.com/2015/02/27/should-ibd-patients-look-to-mouse-studies-for-hope/ 5 Keys to Uncovering Poor IBD Infor...2019-01-1530 minAbout IBDWrapping Up About IBD for 2018I wanted to let you know what’s happening in the About IBD world and how you can stay in touch and keep up with all the great progress that’s happening! Find IBD Moms at: Facebook: https://www.facebook.com/IBDMoms/ Twitter: https://twitter.com/ibdmoms Instagram: https://www.instagram.com/ibdmoms/ Find National Ulcerative Colitis Alliance (NUCA) at: Take the survey! https://nuca.life/about-nuca/nuca-survey/ Blog: https://nuca.life/did-uc-blog/ Facebook: https://www.facebook.com/NUCALife/ Twitter: https://twitter.com/nuca_life Instagram: https://www.instagram.com/about_IBD/ LinkedIn: https://twitter.com/NUCALife Find Amber J Tresca at: Very...2018-12-0405 min
Guts and GloryPACE IBD Telemedicine ProgramWe chat with Peter Habashi, a research coordinator at Mount Sinai Hospital who’s main work is in coordinating the PACE (Promoting Access and Care through Centers of Excellence) IBD Telemedicine Program funded by Crohn’s and Colitis...2018-08-1633 minGuts and GloryMeet Dr Vivian Huang a GI doctor who is also an IBD sufferer.In this episode we meet Dr Vivian Huang.We discuss her recent IBD surgery, and how it has impacted her GI practise.2018-04-161h 05
About IBDAmber Answers the IBD Advocacy Tag QuestionsMegan Johnson of The Front Butt YouTuber has presented 5 questions for people with IBD to answer and then tag someone else using #IBDAdvocacyTag. It’s a great way to get to know people in the community better and hear different perspectives. My answer to the form of IBD I have is not going to be what you expect and my socially awkward moment is pretty epic: I remember every detail about it, even though it happened almost two decades ago. And who did I tag? Well, I do that in my own way, too. If you decide to participate, use #IB...2018-03-2032 min
About IBDWhen IBD Gets Married With Jaime WeinsteinGetting married is a joyful time in one’s life. Until you have to bring your IBD and body image difficulties along when you shop for your wedding dress, that is. Learn how Crohn’s disease affected Jaime’s perceptions about body image throughout her life and how it all culminated in a trip to a bridal shop that left her angry and frustrated. Plus, we share our best tips for making the dress shopping, and eventual wedding day attire wearing, go more smoothly if IBD decides to make make an appearance. Ideas and products mentioned in this podcast: The Bridal...2018-02-1948 min
About IBDAbout IBD Podcast 16 - We Are Not Unique With Christy Stone of Crohnie BolognaAre you unique? Do you represent most patients with IBD? Christy Stone of Crohnie Bologna tells the story of her disease journey, how she feels that she’s not unique as an inflammatory bowel disease patient, why she chooses kindness, and why these things make her a better advocate.
Find Christy Stone, Crohnie Bologna, at:
Blog: http://www.crohniebolognaibd.com/
Facebook: https://www.facebook.com/CrohnieBolognaIbd/
Twitter: https://twitter.com/CrohnieBologna
Instagram: https://www.instagram.com/crohnie_bologna_ibd/
Find Amber J Tresca at:
Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
Blog: http://aboutibd.com/
Facebook: https://www.facebook.com/ibdcrohns/
Tw...2018-02-0638 minAbout IBDAbout IBD Podcast 15 - 2017 Year End Wrap-UpWelcome to the year-end wrap up show! I put together clips from my first 14 shows that drop the heaviest knowledge bombs about how life with IBD affects us, our careers, our relationships, and our stress levels.
Do you have an IBD Elevator Speech? I got you, here’s where you can learn to create yours after you listen to Brooke Abbott give hers: https://www.verywell.com/how-to-create-your-ibd-elevator-speech-1942452
Find Christy Stone, Crohnie Bologna, at:
Blog: http://www.crohniebolognaibd.com/
Facebook: https://www.facebook.com/CrohnieBolognaIbd/
Twitter: https://twitter.com/CrohnieBologna
Instagram: https://www.instagram.com/crohnie_bologna_ibd/
Find Ryan St...2018-01-0333 minAbout IBDAbout IBD Podcast 14 - We Are All Capable of More Than We Think With Brian GreenbergWhat are your goals? Are you taking steps each day to move towards those goals? Brian Greenberg, endurance athlete and president of Chronically Better You, tells us how he moved from goals after surgery—getting out of bed and making his own lunch—to training for an Ironman in 2018. People with IBD know the value of structure and Brian explains how he has learned to manage his life with Crohn’s disease and an ostomy through careful planning and setting goals.
2:35: Why sitting still actually makes Brian feel worse.
3:18: Why a routine is important
4:33: What’s a Half Ironman?
6:41: How to set g...2017-12-0342 min
About IBDGrowing Up IBD with Brian GreenbergBeing diagnosed with IBD as a child presents special challenges for kids and for parents. Learn how Brian Greenberg of Intense Intestines Foundation dealt with a Crohn’s disease diagnosis at a young age and transitioned from being a child reliant on parents to help manage his IBD to learning how to manage it all himself. 2:15: Brian spent a lot of time in detention as a kid! 3:15: The hardest part of going to school with IBD. 5:00: Brian's first resection: at 21. 7:00: Deciding to get an ostomy and what that meant for the fu...2017-11-0231 minAbout IBDAbout IBD Podcast 13 - Growing Up IBD with Brian GreenbergBeing diagnosed with IBD as a child presents special challenges for kids and for parents. Learn how Brian Greenberg of Intense Intestines Foundation dealt with a Crohn’s disease diagnosis at a young age and transitioned from being a child reliant on parents to help manage his IBD to learning how to manage it all himself.
2:15: Brian spent a lot of time in detention as a kid!
3:15: The hardest part of going to school with IBD.
5:00: Brian's first resection: at 21.
7:00: Deciding to get an ostomy and what that meant for the future.
9:00: How an ostomy and a Ken butt made li...2017-11-0231 min
About IBDDon't Let IBD Ruin Your DayDid you know that more than 70% of people with IBD have reported bathroom accidents (fecal incontinence)? Did you also know that only around 20% ask for help from their physicians? It’s a sensitive topic, to be sure, which is why I offer advice on how to cope with this problem and how to avoid it in the first place. If you’re struggling with this issue I have tips that you can use today but the best advice is to talk to your doctor about it (and I discuss that also!). 2:53: IBD is not a pooping disease! 2017-10-1700 minAbout IBDAbout IBD Podcast 12 - Don't Let IBD Ruin Your DayDid you know that more than 70% of people with IBD have reported bathroom accidents (fecal incontinence)? Did you also know that only around 20% ask for help from their physicians? It’s a sensitive topic, to be sure, which is why I offer advice on how to cope with this problem and how to avoid it in the first place. If you’re struggling with this issue I have tips that you can use today but the best advice is to talk to your doctor about it (and I discuss that also!).
2:53: IBD is not a pooping disease!
3:34: 8AM classes — everyone else h...2017-10-1628 minAbout IBDAbout IBD Podcast 11 - Getting Stress Relief With Dr Tiffany TaftHow does stress affect IBD? We know that stress does not cause IBD but it does affect the disease. How does IBD cause stress, and what can we do to balance our lives in such a way that it does not affect us in a negative way? I talk with my guest, Dr Tiffany Taft, about how she advises patients with chronic diseases on relieving stress and the tips and tools that have worked for her and her patients in integrating a comprehensive stress relief program into daily life.
:28 The role of stress as it applies to IBD. (No, it’s...2017-09-2646 minAbout IBDAbout IBD Podcast 10 - Advocacy With Brooke AbbottAre you ready to tell your story? Your legislators in Washington D.C., in your state, and your home town want to hear from you about how IBD has affected your life and the legislation you care about. Brooke Abbott of The Crazy Creole Mommy Chronicles and Amber tell you how to get started in health activism and how to make your voice heard in our government!
6:00: What’s an IBD Elevator Speech? Hear Brooke’s and then use the tools here to create your own: https://www.verywell.com/how-to-create-your-ibd-elevator-speech-1942452
7:15: Find out what happens when you meet with the staf...2017-08-301h 06About IBDAbout IBD Podcast 9 - Why Are You Grateful for Your IBD?If I asked you what about your IBD you were grateful for, what would you say? This is exactly what I asked IBD Advocates, and their answers are as complex, rich, and varied as they are. As you listen to their responses, you will undoubtedly find yourself nodding in agreement with some ideas and seeing your life from a different perspective with others. I hope this episode is as fulfilling for you to listen to as it was for me to produce.
4:45: Hear why Alison Rothbaum of Empowering Patients wouldn't give back these 2 things.
6:25: Brooke Abbott of The Crazy Creole...2017-08-0518 min
About IBDWhy Are You Grateful for Your IBD?If I asked you what about your IBD you were grateful for, what would you say? This is exactly what I asked IBD Advocates, and their answers are as complex, rich, and varied as they are. As you listen to their responses, you will undoubtedly find yourself nodding in agreement with some ideas and seeing your life from a different perspective with others. I hope this episode is as fulfilling for you to listen to as it was for me to produce. 4:45: Hear why Alison Rothbaum of Empowering Patients wouldn't give back these 2 things. 6:25: Brooke...2017-08-0518 minAbout IBDAbout IBD Podcast 7 - Michael Osso - Crohns & Colitis FoundationOn this episode of About IBD, I talk with Michael Osso of Crohn's & Colitis Foundation and learn how important clinical trials are to patients with Crohn's disease and ulcerative colitis, including how we can do better to ensure trials are completed. This podcast will answer many of your questions about clinical trials, plus we discuss the brand new resource the Foundation has launching later this month!
Featured Guest:
Michael Osso
President and CEO
Crohn's & Colitis Foundation
http://www.crohnscolitisfoundation.org/about/staff/
Website: http://www.crohnscolitisfoundation.org/
Facebook: https://www.facebook.com/ccfafb/
Twitter: https://twitter.com/CrohnsColitisFn
Need Help...2017-07-0629 minAbout IBDAbout IBD Podcast 6 - Traveling With IBD - Jaime WeinsteinWhen you fly, do you board early? Once you get on the plane, what's the first thing you do? What's the second? Veteran traveler Jaime Weinstein, who lives with Crohn's disease, answers these questions and more based on her personal experiences when flying the friendly skies.
Featured Guest:
Jaime Weinstein
Twitter: @JaimeEditor
Instagram: @slightlyjaided
Web Site: http://prettyrottenguts.tumblr.com/
Facebook Groups: https://www.facebook.com/groups/ibdjourney/
https://www.facebook.com/SupportIBD/
Music: Buddy - Bensound.com - www.bensound.com/royalty-free-music
Music: Memories - Bensound.com - www.bensound.com/royalty-free-music2017-06-221h 00Guts and GlorySports & IBDChantel and Lisa talk with Mike Short as they discuss the role sports play in their lives while living with IBD.2017-05-291h 08About IBDAbout IBD Episode 4 - Ryan Stevens - Crohn's GuyWhat's it like to be a competitive swimmer and one day develop Crohn's disease? Well, you don't stop swimming! Hear Ryan Stevens, Crohn's Guy, talk about the work he's doing to raise awareness of IBD.
Featured Guest:
Ryan Stevens
Twitter: @ryan_crohnsguy
Facebook: https://www.facebook.com/IBDSwimmer/
Web site: www.crohnsguy.com
Swimming With Courage & Crohn's: http://www.janssen.com/making-a-splash-with-patient-advocacy
Finely Tuned: http://www.finelytuned.com/
Music: Moose - Bensound.com - www.bensound.com/royalty-free-music2017-05-1636 minAbout IBDAbout IBD Podcast 3 - My J-Pouch Is My BFFOn this episode of the About IBD Podcast, I discuss j-pouches and bust some of the misconceptions that surround them. I also give my firsthand experience as a poucher, a j-poucher who gave birth twice, and let you in on what it's like for me to have a midline scar.
Music: Dance - Bensound.com - www.bensound.com/royalty-free-music2017-04-2630 minAbout IBDAbout IBD Podcast 2 - Let's Talk About "The Talk" With Your PartnerThe second edition of the About IBD Podcast where I talk with 3 women with IBD about their experiences in telling their partners about their illness.
Featured Guests:
Jaime Weinstein
prettyrottenguts.tumblr.com
@JaimeEditor
Brooke Abbott
crazycreolemommy.com
@CrzyCreoleMommy
Christy Stone
crohniebolognaibd.com
@CrohnieBologna
Music: Funky Element - Bensound.com - www.bensound.com/royalty-free-music2017-04-1233 minAbout IBDAbout IBD Podcast 1 - Let's Talk About That Fungus ThingThe first edition of my About IBD Podcast where I talk about this fungus fracas, how it relates to IBD, and why I'm not too worked up about IBD research done on mice.
Music: Happy Rock - Bensound.com - http://www.bensound.com/royalty-free-music2017-03-2627 minGuts and GloryIBD; Websites, Organizations, Resources and more.Chantel and Lisa share websites, organizations, resources, etc. that they trust and value when it comes to information about IBD. The following URLs for IBD organizations were mentioned in this episode: Crohn’s and Colitis USA: ccfa.org Crohn’s...2017-01-3057 minGuts and GloryGuts and GloryTwo Toronto based women discuss their experiences living with IBD. Lisa has Crohn’s and Chantel has Crohns and ulcerative colitis. Together they share their ups and downs battling IBD. Lisa and Chantel explore what it...2016-12-2126 min