Shows
Reality 2.0Episode 122: Health Data and Human RightsDoc Searls and Katherine Druckman talk to Adrian Gropper, CTO of Patient Privacy Rights, about health data and human rights, delegating patient agency, and health data standards.Special Guest: Adrian Gropper.Support Reality 2.0Links:Patient Privacy Rights — Patient Privacy Rights’ purpose is to honor and empower the individual’s right to privacy through personal control of health information wherever such information is collected and used. We educate, collaborate and partner with people to ensure privacy in law, policy, technology, and maximize the benefits from the use of personal health information with consent.The Ag...2022-08-191h 13
The ContraMinds Podcast#027: Adrian Gropper on The Intersection of Data, Technology, and Individual RightsAdrian Gropper, MD, is the CTO of Patient Privacy Rights, an organisation representing 10.3 million patients and is among the foremost open data advocates in the United States.
Adrian’s work focuses on solving critical problems of patient matching, cybersecurity, transparency, access, and delegation to family caregivers.
We had a wide-ranging conversation with Adrian where he spoke to us about Patient Privacy, Data Platforms, and the chasm between Science and the Law.2022-05-021h 22
The ContraMinds Podcast#027: Adrian Gropper on The Intersection of Data, Technology, and Individual RightsAdrian Gropper, MD, is the CTO of Patient Privacy Rights, an organisation representing 10.3 million patients and is among the foremost open data advocates in the United States. Adrian’s work focuses on solving critical problems of patient matching, cybersecurity, transparency, access, and delegation to family caregivers. We had a wide-ranging conversation with Adrian where he spoke to us about Patient Privacy, Data Platforms, and the chasm between Science and the Law.2022-05-021h 22
Health Hats, the PodcastHealth Choices. Knowledge + Behavior. Your Life Depends on It.Healthcare decisions affect you and others. Complicated for everyone. Knowledge waiting to be implemented. Join this chat with Dr. Talya Miron-Shatz.
Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post.
Subscribe to Health Hats, the Podcast, on your favorite podcast player
Please support my blog and podcast.
CONTRIBUTE HERE
Episode Notes
Prefer to read, experience impaired hearing or deafness?
Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here
Contents with Time-Stamped Headings
to listen where you want to listen or read where you want to...2022-02-0643 min
PSA TodayPSA Today #26: Kaliya & Seth talk with Adrian Gropper, Privacy Engineer, about Fiduciaries, Generative Layers, Human Rights, and Self SovereigntyAdrian Gropper (https://twitter.com/agropper) graduated from MIT in the late 70's and has been a Privacy Engineer ever since. Along the way he has started a number of ventures in the medical devices space. He joined us for a fascinating conversation about the evolution of privacy from the late 70's pre-Internet to today's surveillance capitalism regime. We discuss the need for privacy fiduciaries, generative layers on top of internet protocols, self-sovereign technologies, human rights, and some of the roads not travelled that led us to the situation we find ourselves in today. Particular emphasis on the three A's o...2020-12-031h 01
The Redox Podcast#2 2019 Redox Interoperability Summit - RecapThe 2019 Redox Healthcare Interoperability Summit was a tremendous success. Innovators, entrepreneurs and experts from provider organizations gathered in Boston to exchange ideas and experiences on efforts to overcome interoperability challenges and find creative, new ways to serve patients better. In this short podcast, you’ll hear some of the “voices” of this year’s Summit. Respected industry leaders such as:
Jitin Asnaani, executive director of the CommonWell Health Alliance
Shahid Shah, publisher of Netspective Media
Taylor Lehmann, CISO at athenahealth
Lindsey Babb, a software engineer at Color
Adrian Gropper, CTO for the Patient Privacy Rights Foundation
In addition...2019-12-0206 min
Audioguía-La Ciudad Eterna (Roma)S01E05 - Adrian GropperAdrian is trained as an engineer and a physician and his career has been as a medical device entrepreneur. All of his startup products were aimed at the physician-patient relationship. Adrian currently works as an advocate and volunteer CTO of the patient Privacy Rights non-profit continues this passion.
Adrian sees technology and policy in terms of human agency and human dignity. This means that he sees physicians and other licensed clinicians as fiduciaries to their patients and not as employees of some institution. “We need our lawyers and
doctors to be un-conflicted and working only for us”, Adrian says. Adrian sees...2018-07-0449 min
MyData PodcastS01E05 - Adrian GropperAdrian is trained as an engineer and a physician and his career has been as a medical device entrepreneur. All of his startup products were aimed at the physician-patient relationship. Adrian currently works as an advocate and volunteer CTO of the patient Privacy Rights non-profit continues this passion.
Adrian sees technology and policy in terms of human agency and human dignity. This means that he sees physicians and other licensed clinicians as fiduciaries to their patients and not as employees of some institution. “We need our lawyers and
doctors to be un-conflicted and working only for us”, Adrian says. Adrian sees...2018-07-0349 min
Berkman Klein Center for Internet & SocietyDigital Health @ Harvard, January 2017 – Free Independent Health RecordsDr. Adrian Gropper is working to put patients in charge of their health records, arguably the most valuable and most personal kinds of connected information about a person. They encompass elements of anonymous, pseudonymous, and verified identity and they interact with both regulated institutions and licensed professionals. Gropper’s research centers on self-sovereign technology for management of personal information both in control of the individual and as hosted or curated by others. The HIE of One project is a free software reference implementation and currently the only standards-based patient-centered record. The work implements a self-sovereign UMA Authorization Server and is ad...2017-04-221h 07
It's about the triple aim!#health2con Fall Conference 2016: Meet Adrian Gropper MD @agropperThe annual 'fall classic' aka the Health 2.0 Fall Conference convened at the Santa Clara Convention Center for it's 10th Annual gathering from September 25th - 28th, 2016.
In this session Douglas Goldstein debriefs with Adrian Gropper, MD, patient-centered health information evangelist and medical device developer. For some of Adrian's insights mentioned in the interview on Blockchain applications in healthcare, see 'Blockchains Power the Physician-Patient Relationship'.
Segment filmed and produced for Health Innovation Media by Gregg Masters, MPH.
Enjoy!2016-10-2415 min
The Health Care BlogThe #CommonWell Open Discussion ForumBy Adrian Gropper, MD The EHR vendor lock-in business model is under attack by frustrated physicians and patients and the reality that health care cost and quality are more opaque than ever.Continue reading...2013-03-1800 min