Shows
Stories of Community ResilienceChanging the Landscape of Sickle Cell Advocacy: Agnes NsofwaGlobal Health Advocate & Advocacy Consultant, Agnes Nsofwa speaks with Ruhee Meghani about a rare blood condition. Agnes was motivated to establish an organisation to advocate for Sickle Cell, after her youngest daughter was diagnosed. Transcript Available Here. More information: https://agesnsofwa.com.au/ https://aussicklecelladvocacy.org/ Support & Donate to Sickle Cell Advocacy organisation: https://aussicklecelladvocacy.org/donate/ Tickets for upcoming women's events in Perth.Sydney Books by Agnes can be purchased here: Interviewer: Ruhee Meghani is an inclusive facilitator and public speaker with...2024-01-2235 min
Stories that StirEverything Happens for a Reason - Agnes NsofwaHaving a child born with a chronic illness seemed like the end of the world for Agnes over 10 years
ago. But her purpose was just beginning. She will share how dealing with her daughter's
unexpected illness, dramatically changed her life forever.
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Speaker application form:
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Social media handles:
@storiesthatstir
Event links:
events.humanitix.com/stories-that-stir-freedom
Patreon:
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2023-06-2316 min
Reggae Uprising PodcastAustralia's Covid Story (...from a nurses perspective)Send us a textThis weeks guest Agnes Nsofwa is a registered nurse, data analyst, author, Global Health Advocate, Managing Director of Unique Living Options, Advocacy Consultant at AMN Advocacy Consulting Services specialising in Sickle Cell Disease (SCD) and Mental Health, founder of Amplify Sickle Cell Voices International Inc (ASVI) and Zambian Network For Sickle Cell Disease, as well as being the Founder and CEO of Australian Sickle Cell Advocacy Inc (ASCA) - Australia’s first charity exclusively dedicated to serving the sickle cell community.Welcome to the final episode of Agnes' three part feature on...2022-12-0751 min
Reggae Uprising PodcastSickle Cell's Story; the impact on one family and how it changed AustraliaSend us a textThis weeks guest Agnes Nsofwa is a registered nurse, data analyst, author, Global Health Advocate, Managing Director of Unique Living Options, Advocacy Consultant at AMN Advocacy Consulting Services specialising in Sickle Cell Disease (SCD) and Mental Health, founder of Amplify Sickle Cell Voices International Inc (ASVI) and Zambian Network For Sickle Cell Disease, as well as being the Founder and CEO of Australian Sickle Cell Advocacy Inc (ASCA) - Australia’s first charity exclusively dedicated to serving the sickle cell community.Agnes' journey could not be experienced through one episode, so th...2022-11-301h 22
Reggae Uprising PodcastFrom Zambia to Australia (...& everything in between)Send us a textThis weeks guest Agnes Nsofwa is a registered nurse, data analyst, author, Global Health Advocate, Managing Director of Unique Living Options, Advocacy Consultant at AMN Advocacy Consulting Services specialising in Sickle Cell Disease (SCD) and Mental Health, founder of Amplify Sickle Cell Voices International Inc (ASVI) and Zambian Network For Sickle Cell Disease, as well as being the Founder and CEO of Australian Sickle Cell Advocacy Inc (ASCA) - Australia’s first charity exclusively dedicated to serving the sickle cell community.This weeks guest's journey could not be experienced through one ep...2022-11-2357 min
The Patient Voice PodcastAgnes Nsofwa and her advocacy for sickle cell patientsAfter Agnes' daughter was diagnosed with sickle cell disease at 14 months old, she learned everything she could and soon discovered the limited treatment options that patients had access to.Since then, she's become an advocate for sickle cell patients. With each person that's diagnosed having such a different experience with the disease, Agnes knew that greater knowledge and information was needed as much for patients as for their families.2022-02-2449 min
PodcastDXSickle Cell During CovidPatients with Sickle Cell Disease (SCD), often have underlying cardiopulmonary co-morbidities that may predispose them to poor outcomes if they become infected with SARS-CoV-2.
Our returning guest today is Agnes Nsofwa RN,MsN,BBA Founder and Executive Director Australian Sickle Cell Advocacy Inc. 2022-01-0436 min
PodcastDXSickle Cell During CovidPatients with Sickle Cell Disease (SCD), often have underlying cardiopulmonary co-morbidities that may predispose them to poor outcomes if they become infected with SARS-CoV-2. Our returning guest today is Agnes Nsofwa RN,MsN,BBA Founder and Executive Director Australian Sickle Cell Advocacy Inc. 2022-01-0436 min
The Art of OthernessAgnes Nsofwa the Global Health AdvocateJune 19 is world sickle cell day and in this month’s episode, we are shining the light on sickle cell disease with Agnes Nsofwa the Founder and Executive Director of Australian Sickle Cell Advocacy (ASCA) and Amplify Sickle Cell Voices International.
Our conversation is on the challenges of advocacy, knocking on doors of manufacturers to have Hydroxyurea doses reduced for sickle cell patients, newborn screening and the power of connection.
“You have no control over who opens doors. We have knocked on many policymakers and organisations doors and people did not respond. But when I beli...2021-06-1733 min
Radio GoolarriMatt J IV with Agnes Nsofwa 190620.WAVgnes is a mother of four, their youngest child was born with sickle cell anaemia. Agnes is a Registered Nurse / Data Analyst by profession, working in the aged care industry. In 2012, Agnes changed careers from Business to Nursing so that she could understand SCD and what their child was going through. Agnes also has a bachelor’s degree in Business and Diploma of accounting with experiences in the taxation and banking industries. Agnes is the co-founder of Australian Sickle Cell Advocacy Inc. Her passion to advocate for Sickle Cell Disease (SCD) was as a result of having their youngest child be...2020-06-2509 min