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Akii Ngo & Marijo Pozega

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Chronically ChilledChronically ChilledMargherita Coppolino: Disability InclusionMargherita Coppolino joined us to talk about her work focused on creating inclusion and change in many and various spaces.. Margherita is an influential disability and inclusion consultant.With an outstanding network of contacts in government, business and social justice organisations, Margherita has a proven ability to inspire and influence a wide range of stakeholders on disability and inclusion issues. She has strong commercial acumen and ability to frame disability and inclusion issues in a commercial context. Margherita is also a powerful speaker and motivator.You can connect with Margherita through her website here: About | Margherita Coppolino2022-11-0200 minChronically ChilledChronically ChilledSimon Katterl: Improving the Mental Health system & the conversations we have around itChronically Chilled speaks with Mental Health advocate Simon Katterl to discuss his work in improving the Mental Health system, an update on the Royal Commision and how we can have better public conversations about Mental Health. Simon Katterl is a lived experience workforce member who has worked in community development, advocacy, regulation, and law reform. Simon’s work is grounded in his lived experience of mental health issues, as well as his studies in law, politics, psychology and regulation. Simon previously worked for the Victorian Equal Opportunity and Human Rights Commission, the Mental Health Complaints Commissioner, Victoria Legal Aid, RMIT Uni...2022-09-0700 minChronically ChilledChronically ChilledEliza Hull: On performing, touring internationally & navigating the music industryChronically Chilled speaks with musician, writer and disability advocate Eliza Hull about what it’s like performing live, touring internationally and navigating the music industry as a disabled woman. Eliza has performed everywhere from South by South West in Texas to Dylan Alcott’s Ability Festival here in Naarm, and from The iconic Corner Hotel to her local Bridge Hotel. She's also appeared on The Guilty Feminist Podcast, Q&A, Big Night In, ABC Radio and many more amazing panel discussions.To stay up to date with her upcoming gigs, writing and advocacy work, visit elizahull.com2022-08-0300 minChronically ChilledChronically ChilledGraeme Innes: Discrimination by the Airline IndustryAustralia's (and the world’s!) airline industries have frequently sought & received exemptions from the Disability Discrimination Act, often under the broad veil of 'air safety'. Once again, people with disabilities are the exception to the rule and their are negative consequences as a result. Freedom of travel is a human right. Chronically Chilled catches up with human rights advocate and former Disability Discrimination Commissioner of 9 years, Graeme Innes to discuss his experiences with the industry, current advocacy efforts, and what the public can do to support. This after one of our co-hosts, Akii Ngo, experienced an extremely traumatic event days af...2022-07-0600 minChronically ChilledChronically ChilledAndrew Gurza: Sex & DisabilityChronically Chilled talks sex and disability and why #DisabledPeopleAreHot this week with Disability Awareness Consultant, Disabled Porn Star, Host of Disability After Dark, and Chief Disability Officer/Co-founder of accessible sex toy company Bump'n, Andrew Gurza. Hosted by Bridget McArthur. This episode of Chronically Chilled was recorded as part of 3CR's 2022 Radiothon. Support the show by donating at givenow.com.au/cr/chronicallychilled3cr.  You can follow Andrew at @andrewgurza1 on Instagram and Twitter, hear more of their voice at the Disability After Dark podcast, and #FundAnOrgasm at getbumpn.com/pages/fund-an-orgasm.2022-06-0100 minChronically ChilledChronically ChilledElly Desmarchelier: Election 2022 & Defending our NDISAkii Ngo and Bridget McArthur sit down with special guest Elly Desmarchelier, a passionate advocate and campaigner to discuss all things disability rights for all Australians with disability this upcoming federal election, the importance of the Every Australian Counts #DefendOurNDIS campaign and how you can make a positive difference to support disabled Australians.We also discuss general electoral promises made by political parties and how they will shape the lives and futures of many Australia. Content note: this episode mentions #Robodebt and the devastating impact that scheme had on the community and mentions of suicide. Elly Desmarchelier (she/her) is a...2022-05-0400 minChronically ChilledChronically ChilledLeah Filley: Chronic Pain & Gender IntersectionsAkii Ngo sits down to have a frank, open discussion about chronic pain and it’s gender interactions with Leah Filley - actor, advocate, writer and producer who’s lived with chronic pelvic pain for over 20 years . Akii (they/them) and Leah (she/her) share their similar experiences of being brushed off while suffering in silence. They discuss everything from medical sexism and bias to the  continued challenges of finding (or not finding) a diagnosis, and the upcoming documentary Leah and associate news editor and journalist, Gabrielle Jackson, author of Pain & Prejudice are working on to highlight the ongoing challenges that w...2022-03-0200 minChronically ChilledChronically ChilledIntroducing the new team!We are back and with a new team!  Akii Ngo and Bridget McArthur join Marijo Pozega to make up the new Chronically Chilled team in 2022 and beyond!They  provide a follow up on the 3CR Disability Day special that focused on the plight of asylum seekers at the Park Hotel and they discuss the let it rip politics of the pandemic and what that means for chronically ill and disabled folks.2022-02-0200 minRefugee RadioRefugee RadioRefugee Radio - Interview with Mohammad Mousavi Medivac refugee and a Speech from Free West Papua - No Victims Climate WarriorsWe listen to a recording about the Medivac Refugees from the Disability day prodcast. "Presented by Bridget McArthur, Akii Ngo & Marijo Pozega (Chronically Chilled)A deep-dive on the disability cycle created and perpetuated by Australia’s detainment approach to asylum seekers, with a focus on the Medevac refugees, who sought nothing but medical attention and safety but were instead met with imprisonment. 3CR's Chronically Chilled team speaks with Mohammad Mousavi, currently being held in Park Hotel, on his experiences of disability and mental health in detention," We also listen to part of a speech from "Free West Papua - No Vict...2021-12-1200 minChronically ChilledChronically ChilledDisability Day Special: Chronically Cruel - a story of disability, detention and indifference.Making their Chronically Chilled debut, Bridget McArthur takes a deep-dive on the disability cycle created and perpetuated by Australia’s detainment approach to asylum seekers, with a focus on the Medevac refugees, who sought nothing but medical attention and safety but were instead met with imprisonment.Bridget speaks with Mohammad Mousavi, currently being held in Park Hotel, on his experiences of disability and mental health in detention, as well as Sahar Okhovat, Senior Policy Officer for the Refugee Council of Australia, on their recent submission on the experiences of people with disability in immigration detention to the Royal Commission into Viol...2021-12-0100 minChronically ChilledChronically ChilledKristin O'Connell: Fairer Welfare & Fairer WorkKristin O'Connell joined Naomi and Marijo to discuss the campaign work of the Australian Unemployed Workers Union and the Antipoverty Centre.  Kristin talks about her own experience in accessing the disability support pension, how it informed her campaign work, what is wrong with Employment Services, the ways in which the current welfare system causes harm and what we need to do to create change! To find out how to support the Australian Unemployment Workers Union, you can find their website at:  http://auwu.org.au/.  You can also follow them on twitter @AusUnemployment.To find out how to support The Antipo...2021-05-0500 minChronically ChilledChronically ChilledJordon Steele-John: Proposed changes to the NDISSenator Jordon Steele-John joined the show to talk about his experiences in the Senate, why the Disability Royal Commission should be extended, what the Government is attempting to achieve by changing the NDIS and what we can do to fight to save it.Jordon Steele-John is a member of the Australian Senate representing Western Australia for the Australian Greens.2021-04-0700 minChronically ChilledChronically ChilledAndi Snelling: Award Winning show 'Happy-Go-Wrong' & Lyme DiseaseActor, dancer, acrobat and performing artist Andi Snelling joined the show to discuss being an Ambassador for the Lyme Disease Association of Australia and her award winning show 'Happy-Go-Wrong,' which will be playing at the Adelaide Fringe Festival from the 10th-20th March.  You can find the details and get your tickets here: Happy-Go-Wrong | Adelaide FringeConnect with Andi on Twitter at: @AndiSnelling2021-03-0300 minChronically ChilledChronically ChilledCarly Findlay & El Gibbs: Growing Up Disabled in AustraliaCarly Findlay and El Gibbs joined the show to talk about the release of the wonderful new book - Growing Up Disabled in Australia.  They talk about the process of how the book came together, ensuring accessibility throughout and why the book is so important. Growing Up Disabled in Australia is out now!2021-02-0300 minChronically ChilledChronically ChilledJacinta Parsons: Unseen - The Secret World of Chronic IllnessJacinta Parsons joined the show to discuss her new book, Unseen - the secret world of chronic illness. Jacinta generously talked about the process of writing the book, the complexity of living with chronic illness, her experiences with the medical system and on the eve of International Day of People with Disability, we ask what the day means to us. Jacinta Parsons is a broadcaster, radio maker, writer, and public speaker. She currently hosts Afternoons on ABC Melbourne.  Jacinta has lived with Crohn’s disease for over 20 years and is an ambassador for the Crohn’s and Colitis Association and speaks a...2020-12-0200 minChronically ChilledChronically ChilledShakira Hussein: Talking Visible and Invisible Disability/IllnessShakira Hussein joined the show to discuss invisible and visible disability/illness. We ask about the usefulness of using these terms and also talk about how to make space for all experiences in the disability community. Shakira Hussein is the author of From Victims to Suspects: Muslim Women Since 9/11 and a contributor to the anthology #MeToo: Stories from the Australian Movement. She is a research fellow at The University of Melbourne, and has published on topics including racism, gender violence and disability. Connect with Skaira on twitter at: @shakirahussein2020-11-0400 minChronically ChilledChronically ChilledKaitlyn Blythe: Pandemic Frustrations, Disability Support Pension & (Un)affordable HousingKaitlyn Blythe joined Marijo Požega in an honest conversation that explored cultural and ideological ideas that impact on people with chronic illness/disability, while discussing COVID-19, the disability support pension and housing (un)affordibility.Kaitlyn Blythe (formerly Kaitlyn Plyley) is a Melbourne-based writer and performer. Her writing has been published by Junkee, The Sydney Morning Herald, Seizure, The Lifted Brow, and more. In 2019, Kaitlyn received Copyright Agency's Ignite Grant and The Wheeler Centre's Hot Desk Fellowship to work on her chronic illness memoir, Suddenly 80.Kaitlyn trained in storytelling under teachers from LA's The Moth and NYC's Upright Citizens Brigade, and...2020-10-0700 minChronically ChilledChronically ChilledAkii Ngo: Chronic Pain & IntersectionsAkii Ngo spoke with Naomi Chainey and Marijo Požega about Chronic Pain Australia, the many systemic barriers faced by people living with chronic pain, their own lived experience, COVID-19 and the Royal Comission into Disability.  Akii also discussed mental health and the way it is connected with chronic pain/illness, as well as how gender, culture and sexuality intersect with disability. Akii recently joined Chronic Pain Australia as executive director. They are a public health nutritionist and health promotion practitioner with 10 years’ experience in advocacy, health policy, and systemic health promotion practice. Akii is also a board director and treasure...2020-09-0200 minChronically ChilledChronically ChilledEl Gibbs: Disability Royal CommissionEl Gibbs from People With Disability Australia joined Naomi and Marijo to talk about the Royal Commission into violence, abuse, neglect and exploitation of disabled people.  El talked about the impact of COVID-19, the importance of the commission, some of the barriers to engagement and explained the submission process and supports available for chronically ill and disabled people wanting to make a submission. For more information about the Royal Commission and to make a submission, visit the Royal Commission official website here: https://disability.royalcommission.gov.au.For more information, you can also visit People with Disability Australia here: https://pwd.org...2020-08-0500 minChronically ChilledChronically ChilledVanamali Hermans: Black Lives Matter, Abolition & Mutual AidVanamali Hermans joined Marijo Požega to discuss the current Black Lives Matter movement, what abolition could look like from a disability justice perspective, the role of social workers (if any) in abolitionist politics and her experiences in mutual aid organising. Vanamali (Mali) Hermans is a Wiradjuri, Irish & Flemish woman living on Ngunnawal and Ngambri land. She is a disabled organiser and writer and has had work published in Overland, The Guardian and New Matilda, and has appeared on podcasts such as Living the Dream and Movement Memos with Kelly Hayes, among others. Mali is a board member of Women with Disabili...2020-07-0100 minChronically ChilledChronically ChilledLarissa MacFarlane: Disability PrideLarissa MacFarlane joined Naomi Chainey to discuss Disability Pride and what it means for people with chronic illness.  They also discuss internalised abelism and more.2020-06-0300 minChronically ChilledChronically ChilledIntroducing the new team & COVID-19We're back after a long break between shows and with a brand new team!Naomi Chainey, Millie Baylis and Marijo Pozega discuss what it has been like experiencing the COVID-19 pandemic from the perspective of being chronically ill.Given the closure of 3CR due to COVID-19, this episode of Chronically Chilled was recorded remotely so apologies for any sound quality issues.You can connect with the team via twitter at:Chronically Chilled Naomi Chainey Millie BaylisMarijo Pozega2020-05-0600 minChronically ChilledChronically ChilledNicole Lee: Women with Disabilities and Family ViolenceSurvivor/Avocate of Family and Domestic Violence, Nicole Lee, joined the show to mark 'International day of People with Disability' and '16 Days of Activism,' a worldwide campaign that calls for the elimination of violence against women.Nicole spoke to Marijo Pozega about her campaign and advocacy work, lived experience of family violence, improving the service system to increase safety for women with disabilities and the 'Do Your Thing' project by Women with Disabilities Victoria.  You can learn more about WDV and check out the 'Do Your Thing' project at:Website: https://www.wdv.org.auFacebook page: https://www.fa...2019-12-0400 minChronically ChilledChronically ChilledMillie Baylis: Small Days & Resisting Harmful Ideas of ProductivityMillie Baylis joined Marijo to discuss her work, 'small days', and resisting harmful ideas of productivity and the wellness trends. We also ask why accessing public transport is still such a challenge for people with a disability. Millie Baylis is a writer living in Melbourne, on Wurundjeri land. She studies Professional Writing and Editing and is developing memoir, essays and short stories. In 2019 she is a Wheeler Centre Hot Desk Fellow, and an Express Media participant of Toolkits: Memoir and Toolkits Fiction. Her work has recently appeared in Kill Your Darlings and Overland Online. Millie was also recently the managing edit...2019-11-0600 minChronically ChilledChronically ChilledA Tribute to MaryseFriends Leigh, Loretta and Marijo got together to remember and pay tribute to Maryse Leonard.  Maryse was the co-founder and co-presenter of Chronically Chilled and a valued member of the 3CR Community.2019-10-0200 minChronically ChilledChronically ChilledAyan Shirwa: Social Anxiety, Racism & HealthAyan Shirwa joined the show to talk about their experiences of social anxiety and depression.  Ayan also shared their experience of juggling often competing cultural expectations, spoke of the health cost of racism and made an important contribution to the current Newstart debate.Ayan is a Somali Australian presenter and producer for Accent of Women and Tuesday Breakfast at 3CR Community Radio.You can find Ayan on twitter at: @waa_ayaanListen to 3CR Tuesday Breakfast here: https://www.3cr.org.au/tuesday-breakfast and follow them on Instagram and Facebook. Listen to Accent of Women here: https://www.3cr.org.au/accento...2019-08-0700 minChronically ChilledChronically ChilledMonique Evans: Being a Young Person with Chronic IllnessMae joined the show to talk about their experiences of being a young person living with chronic illness, the impact it has had on relationships, her lived experience of out of home care and her advocacy work to change the system! Mae is a freelance photopgrapher and youth delegate for Create Foundation.You can find Mae via Instagram here: https://www.instagram.com/xomoniqueevans/To learn more about Create Foundation go to: https://create.org.au2019-07-0300 minChronically ChilledChronically ChilledIt's Radiothon... and Maryse is back!!!It's Radiothon time!  And to mark the occasion we have Maryse making her return to the show!  Amongst talking about all things Radiothon, we catch up with Maryse and somehow end up having a conversation about the importance of advocacy and how it is bound up in power and privelege. It's 3CR's annual Radiothon where we ask you, our valued listeners, to help keep media in the hands of the community where it belongs.  We would be grateful for any donations that will go towards sustaining our show and 3CR Community Radio station.You can contribute by calling 3CR on 9419 8377, go to...2019-06-0500 minChronically ChilledChronically ChilledVikki Reynolds: Resisting the neutral and medicalised language of psychologyVikki Reynolds joined the show to talk about the way psychological based responses and language can cause harm and obscure the impact of oppression and social structures on the wellbeing of people and communities.  Vikki talked about the limitations of self care, collective care and spoke in the context of the current opioid epedemic in Vancouver, Canada. Vikki is a Psychotherapist, Adjunct Professor and Activist based in Canada, where she supervises and supports frontline workers and activists who work alongside marginalised communities.  Vikki has a deep commitment to social justice and her work is based on an anti-oppression and decolonizing fra...2019-04-0300 minChronically ChilledChronically ChilledMaryann: Grief, Burden and Chronic IllnessMaryann joined the show to talk about her experiences living with chronic illness, the burden attached, grief, the intersection of being from a culturally and linguistically diverse background (CALD) background and much more.Maryann is a Health and Community Development Officer.2019-03-0600 minChronically ChilledChronically ChilledCB Mako & Pauline Vetuna: Disabled People of ColourCB Mako and Pauline Vetuna joined the show to talk about their experiences as disabled people of colour, intersectionality, the lack of representation in disability advocacy spaces & much more!CB Mako is a non-fiction and fan-fiction writer.  Winner of the Grace Marion Wilson Emerging Writers Competition (for non-fiction) and shortlisted for the Overland Fair Australia Prize, cubbie has been published in the Suburban Review, The Lifted Brow, The Victorian Writer, Peril Magazine, Mascara Literary Review, Djed Press among others. Cubbie has also performed as artist and panelist at Emerging Writers' Festival, Digital Writers Festival, Melbourne Fringe Festival, and Melbourne Writers Fe...2019-02-0600 minChronically ChilledChronically ChilledAsher Wolf: Ehlers-Danlos SyndromeAsher Wolf is a freelance journalist, social media analyst and internaut. She was a recipient of an Amnesty International Australian Media Award in 2014. Her history of campaign work and activism includes Occupy, the push to end Robodebt, CenusFail, MyHealthRecord opt-out, and the international privacy and security movement known as Cryptoparty.Asher is currently advocating for genetic diagnostic access and multidisciplinary, centralised treatment clinics for Australians with Ehlers-Danlos Syndrome.She is a sole parent and likes to bake in her spare time.You can follow Asher on Twitter at @Asher_Wolf.2019-01-0200 minChronically ChilledChronically ChilledRicky Buchanan: Medical Access Issues for Homebound/Bedridden PersonsIn this special episode for 'International Day of People With Disability', we speak to Ricky Buchanan. Ricky is an independent disability activist, assistive technology innovator and artist who is passionate about disability and chronic illness and has recently written a report, titled:  ‘Just Invisible - Medical Access Issues for Homebound/Bedridden Persons'. This episode is also available in Auslan here: https://vimeo.com/303963863 You can follow Ricky on Twitter at @jeshyr and visit her website notdoneliving.net2018-12-0500 minChronically ChilledChronically ChilledDominic Golding: RISE Refugee, Survivors and Ex-DetaineesDominic Golding is the Ability Rights Coordinator at RISE: Refugee, Survivors and Ex-Detainees and recently released an advocacy report titiled, ' Ex-detainess, asylum seekers and refugees with disabilities: our needs and perception of disability.'  Dominic joined the show to talk about the report, the systemic barriers that refugees and asylum seekers with disabilities face when accessing support, and the change that needs to occur. RISE: Refugees, Survivors and Ex-Detainees is the first and only refugee and asylum seeker welfare and advocacy organisation in Australia, entirely governed by refugees, asylum seekers, and ex-detainees.  To support the work of RISE and to...2018-11-0700 minChronically ChilledChronically ChilledGemma Mahadeo: Mental Health Awareness WeekIn the lead up to Mental Health Awareness Week, Gemma Mahadeo joined the show to talk about her work, lived experience of mental illness, stigma and the mental health system.Gemma is a Melbourne based Poet born in the UK.You can follow Gemma on Twitter at @snarkattack2018-10-0300 minChronically ChilledChronically ChilledNaomi Chainey: Social Model of Disability, Netflix docuseries 'Afflicted'Naomi Chainey joined us on the show.  Naomi is a writer and media producer on disability and feminism with ME/CFS.  Naomi discussed the Social Model of Disability in relation to chronic and invisible illness, as well as the damaging new Netflix docuseries 'Afflicted'.You can follow Naomi on twitter at @GnomesChainey2018-09-0500 minChronically ChilledChronically ChilledHannah Morphy-Walsh, 'From Fifth to First - More than Action' forum.Hannah Morphy-Walsh talks about the 'From Fifth to First - More than Action' forum coming up at Footscray Community Arts Centre.You can find more information about the forum and how to attend here: http://footscrayarts.com/event/from-fifth-to-first-more-than-access/"From Fifth to First, a disability-led forum covering the lives and cultures of people with disabilities, is more about action than access. Through a series of discussions, panels and presentations, participants will have the opportunity to drive conversation and develop actionable outcomes."WHEN:Day One: Conversation and Working GroupsFriday 10 August, 10am – 4pm(Exclusive for self-identified people with disabilities, and their carers and...2018-08-0100 minChronically ChilledChronically ChilledAlistair Baldwin: Comedy, Representation and AccessibilityComedian and writer Alistair Baldwin joined us on the show.2018-07-0400 minChronically ChilledChronically ChilledRadiothon & Critiquing the Medical Model of CareIt's Radiothon time!  We talk about the importance of Radiothon and what makes 3CR such a special radio station.  Any donations to support the show and the station are greatly appreciated as Chronically Chilled tries to reach our target of $400.  You can donate/pledge by calling the station on 9419 8377, or via the Chronically Chilled GiveNow page.  In addition to Radiothon, we also discuss and critique the medical model of care.2018-06-0600 minChronically ChilledChronically ChilledThe Intersection of Physical and Mental HealthWe discuss the intersection of physical and mental health, with a particular focus on anxiety.  We share our own experiences and talk about societal attitudes towards mental illness.2018-05-0200 minChronically ChilledChronically ChilledLarissa MacFarlane: Art and ActivismArtist and activist Larissa MacFarlane joined us on the show.Larissa spoke about her art, disability pride and her experiences living with an ABI.2018-04-0400 minChronically ChilledChronically ChilledEvan YoungWriter and journalist Evan Young joined us on the show.We discussed Evan's work at Overland Journal, experiences of discrimination and the lack of representation of people with chronic illness and disability in politics and the media.2018-02-0700 minChronically ChilledChronically ChilledSpoon Theory & Unhelpful AdviceWe discuss spoon theory, the challenges of managing energy generally.  We also discuss the impact of unhelpful responses and advice to people living with chronic and invisible illness.2017-12-0600 minChronically ChilledChronically ChilledIntroduction to the show & International Day of People with DisabilityIn our first ever show, we talk about how the show came about, our own experiences of chronic & invisible illness, identity & International Day of People with Disability.2017-11-0100 min