Shows
Perfectly Imperfect Me 365From Loss to Advocacy: Bryan and Danielle's JourneyIn this heartfelt conversation, Rachel speaks with Bryan and Danielle Docobo, a couple who have turned their personal tragedy into a mission of advocacy for rare disease families. Their boys, Liam and Ethan were both diagnosed with a rare genetic condition known as Coats Plus Syndrome by a team at Joe DiMaggio Children's Hospital. They share their journey of navigating grief after the loss of their son Ethan, while also fighting for the health of their other son, Liam. The couple discusses the importance of community support, spirituality, and finding meaning in their loss as they work to raise a...
2025-12-1057 min
Show Me the Way PodcastS1E52: Finding Strength Through Unimaginable Loss - with Danielle and Bryan DocoboSend us a textThis week marks a very special milestone—the 52nd episode of the Show Me the Way podcast! When I launched this podcast last September, my goal was to release a new episode every single week for a year—sharing perspective, encouragement, and proof of what consistency can build. Today, I’m beyond grateful to celebrate that with all of you.For this episode, I had the honor of sitting down with not one, but two incredible guests: Bryan and Danielle Docobo. This remarkable couple has faced life’s toughest...
2025-09-011h 06
GRIEF AND LIGHTGrieving One Child, Racing to Save Another: The Docobo Family’s Mission of HopeIn this moving episode of Grief and Light, host Nina Rodriguez sits down with Bryan and Danielle Docobo to explore their journey through profound loss, love, and advocacy following the death of their son Ethan, who passed away from the rare genetic disorder Coats Plus Syndrome. As parents navigating complex grief while raising their surviving son Liam, who lives with the same diagnosis, Bryan and Danielle speak candidly about the emotional, spiritual, and logistical realities of their path, as they work against time to save him.
2025-06-041h 10