Shows
Parkinson's Disease Education PodcastLiving My Parkinson | Parkinson's Life Coach Mariam BennounaI had the distinct pleasure of speaking with PwP and Certified Life Coach Mariam Bennouna. You will discover how she turned her Parkinson's diagnosis into a passion for helping others to learn to live with the disease, particularly those who have Young Onset Parkinson's Disease. Video version is here To sign up for a free consultation and to get in touch with Mariam, please use the following links: Website Free call Living My Parkinson on Facebook Join this channel to get access to member's only content and p...2023-12-1336 min
Parkinson's EmpowermentTransforming Lives with Parkinson's: The Power of Urban Polling's Activator PolesEver wondered how a tool as simple as walking poles could transform the lives of those battling Parkinson's disease? Brace yourself for an enlightening conversation with Joy Cochran, a clinical evidence specialist for urban polling. Discover the fascinating history of urban polling and the unique features of activator poles that have become game-changers in our clinical practice. Hear heartening stories of improved posture and relief from joint pain, testaments to the power of these tools.Switch gears as we delve into the remarkable benefits of the activator poles for Parkinson's patients. Our experience as physical therapists comes...2023-12-0927 min
Parkinson's Disease Education PodcastEmbracing Parkinson's Disease | Interview with Frank Antonicelli Part 2In our second installment of this interview, you will discover how Frank has Embraced Parkinson's disease in terms of what supplements have worked best for him, the impact of stress management on PD symptoms, his top three tips on dealing with PD, and how to access the audiobook. Frank Antonicelli is a PwP diagnosed in 2007 and has co-authored a book with his MDS Dr. Joe Green entitled "Embracing Parkinson's - A Personal Account of Acceptance and Healing." Video version of this episode is here. You can access the book and Frank's other media through the fo...2023-11-2927 min
Parkinson's Disease Education PodcastEmbracing Parkinson's Disease | Interview with Frank Antonicelli Part 1In this first installment I sit down with PwP and author Frank Antonicelli and discuss his journey with PD diagnosis, meeting his MDS, and his life-changing experience of having DBS surgery in 2019. He has lived with PD since diagnosis in 2007 and has co-authored a book with his MDS Dr. Joe Green entitled "Embracing Parkinson's - A Personal Account of Acceptance and Healing." In order to gain access to the book and to see the full conversation, be sure to stick around for part 2! The video version is here. If you want access to the entire conversation, uninterrupted, please consider...2023-11-1632 min
Parkinson's Disease Education PodcastThe Impact of Protein on Levodopa AbsorptionIn this episode (video version is here) you will find out the potential impact of the protein that you eat and how that can interfere with absorption of your levodopa. Also, how you time medications around meals is crucial, regardless of how much protein you consume. To read more about this topic you can reference this article at the Davis K. Phinney Foundation: https://davisphinneyfoundation.org/medication-protein-and-parkinsons/ Here is another more recent article from UF Norman Fixel Institute that cross-references the nature.com article mentioned in the video: https://fixel.ufhealth.org/2023/08/02/managing-levodopa-and-eating-protein-not-a-one-size-fits-all-approach/ J...2023-10-2511 minParkinson's EmpowermentHow StrivePD is Changing the Game in Parkinson's TreatmentYou've heard of smartwatches tracking your steps, but what about tracking Parkinson's symptoms? That's the reality with StrivePD, an incredible app developed by the team at Rune Labs. In a unique conversation, Brianna unveils how this free app, compatible with the Apple ecosystem, enables Parkinson's patients to closely monitor their symptoms, including tremors and dyskinesia. Originally created by Aura Oslapas, a PD patient herself, StrivePD was acquired by Rune Labs in 2018. Brianna shares how StrivePD can revolutionize the way patients and clinicians communicate, leading to a more informed health journey. It's time to get savvy about your health, and...2023-10-2220 min
Parkinson's Disease Education PodcastShould You Hide Parkinson's Diagnosis? - Conversation with Ian Robertson Part 3Several weeks ago I sat down with friend of the channel Ian Robertson, who is a person with PD diagnosed for the last 11 years. In part 3, we discuss more about freezing, whether or not one should disclose their PD diagnosis to others, and the "4 Ps" of practice/movement/exercise. The video version is here: https://youtu.be/4hTQM2j6pIs Please be sure to look Ian up with this contact information: Website: https://parkinsonsmysuperpower.ca/ Facebook: https://www.facebook.com/ParkinsonsMySuperPower/ Parkinsons-My Super Power Po Box 400 522 McKenzie st. 2023-10-1125 minParkinson's EmpowermentNavigating Swallowing Difficulties in Parkinson's with Brittany Peck, SLP, of BPeck Speech and SwallowingJoin us on a fascinating journey with Speech Language Pathologist, Brittany Peck, as we unravel the complexities of swallowing and what people with Parkinson's may be experiencing. Brittany's expertise illuminates how the reduction of dopamine, can lead to a slow-down in the oral musculature, causing difficulties in swallowing. Yet, as we learn, there's a beacon of hope with retraining and awareness. We discuss the clinical swallow evaluation process, potential treatments, and even share some handy tricks for taking medication. If you're in a remote location, fret not! Brittany enlightens us about her home-based practice in the Finger Lake...2023-10-0520 min
Parkinson's Disease Education PodcastHow to Improve Turns and Freezing of Gait (FoG) in PD - Conversation with Ian Robertson Part 2Several weeks ago I sat down with friend of the channel Ian Robertson, who is a person with PD diagnosed for the last 11 years. In part 2, we discuss how to improve turns while walking and performing activities of daily living (ADLs) and how Ian breaks out of freezing episodes (and what might trigger them for him). The video version is here: https://youtu.be/5dmFaQc_nKY For access to the full, raw, unedited version be sure to joint any of our channel memberships with this link: https://www.youtube.com/channel/UC0g3abv8hkaqZbGD8y1dfYQ...2023-09-2718 min
Parkinson's Disease Education PodcastIs Exercise During Parkinson's "Off" Times Safe? - Conversation with Ian Robertson Part 1In this episode I sat down with friend of the channel Ian Robertson. He is a person with PD and has been on the channel in the last few months. In part 1, we discuss off times and whether or not it is a good idea to exercise when wearing off and also in training both sides of the body to move at their best. For access to the full, raw, unedited version be sure to joint any of our channel memberships with this link: https://www.youtube.com/channel/UC0g3abv8hkaqZbGD8y1dfYQ/join 2023-09-1315 min
Parkinson's Disease Education PodcastTemperature Regulation and Parkinson's DiseaseWhat do temperature regulation and Parkinson's Disease have in common? They are both HOT topics!! In all seriousness, temperature dysregulation can be a big problem for PwP and is no joking matter. Be sure to watch/listen to the entire episode to get practical tips on coping with this issue. Be sure to check out Comfort Linen on David's channel Life with Parkinsons using this link: https://www.youtube.com/watch?v=o3rCGqQkzIM Join our memberships to get an even more personalized experience: https://www.youtube.com/channel/UC0g3abv8hkaqZbGD8y1dfYQ/join ...2023-08-3009 minParkinson's EmpowermentConstipation and Parkinson's with Dr. Stuart GillimOn today's podcast Dr. Gillum and I discuss the gut brain connection and Parkinson's, constipation and the steps you can take to ameliorate your symptoms and the connection between diabetes and Parkinson disease. Dr. Gillim received his medical degree from Stanford University School of MedicineAnd studied internal medicine and gastroenterology at Cornell University in NYC. Thank you taking the time to be on the podcast Dr. Gillim!Buzzsprout - Let's get your podcast launched! Start for FREE Check out our website www.safeathompt.com2023-08-2224 min
Parkinson's Disease Education PodcastFatigue in Parkinson's DiseaseIn this episode you will learn about PD related fatigue and possible ways to deal with this often debilitating non-motor symptom. If you want to watch the video version please click here. Join our memberships to get an even more personalized experience: https://www.youtube.com/channel/UC0g3abv8hkaqZbGD8y1dfYQ/join Medical Disclaimer: All information, content, and material of this video is for informational purposes only and not intended to serve as a substitute for the consultation, diagnosis, and/or medical treatment of a qualified physician or healthcare provider. ...2023-08-1611 min
Parkinson's Disease Education PodcastDiagnosed with YOPD - Conversation with David Gebhart Part 2In this episode we continue conversation shared between myself and David Gebhart of the @LifewithParkinsons channel. In part 2 you will hear about David's experience with #exercise in managing Parkinson's, as well as the importance of community and his work to establish a #community on #youtube, plus the *worst* experience that he has had as a PWP in dealing with a medical professional. Please click here to watch the video version on YouTube. Please be sure to check out the links below! Check out David's channel here: https://www.youtube.com/@UCfI0Ie0gEdMdl-VSUeA0SXA Become a...2023-08-0916 min
Parkinson's Disease Education PodcastDiagnosed with YOPD - Conversation with David Gebhart Part 1In this episode we share a conversation between myself and David Gebhart of the @LifewithParkinsons channel. In part 1 you will hear about David's journey from brushing off symptoms that together pointing to PD to official diagnosis. He also shares his experience living with Mild Cognitive Impairment and "off times." Click here to watch the video version of the podcast on YouTube. Be sure to subscribe and shake the notification bell so be ready for the release of part 2! Check out David's channel here: https://www.youtube.com/@UCfI0Ie0gEdMdl-VSUeA0SXA Become a member of our c...2023-08-0221 min
Parkinson's Disease Education PodcastPD Myth Bust #6 (2023): Is Parkinson's Disease a Condition of Old Age?The majority of persons with PD are over the age of 65, but does that make it a disease of old age. I'll tell you what's getting long in the tooth... this myth! Listen or watch this video today to learn the actual statistics of Parkinson's and age ranges that are existing today. Here is the full-length video recording of Episode #6 of PD Myth Bust 2023 on the Parkinson's Disease Eduction YouTube Channel: https://youtu.be/D1r5F5mLMto Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon...2023-07-2612 min
Parkinson's Disease Education PodcastPD Myth Bust #5 (2023): Besides Medication There Isn't Much You Can Do About Parkinson's DiseaseMedication is really important for persons with PD, but is it the only option for relief from symptoms? That's the topic of our next myth! Here is a video recording of Episode #5 of PD Myth Bust 2023 on the Parkinson's Disease Eduction YouTube Channel: https://youtu.be/ci4EzVCcUB4 Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, you can leave a one time tip in our virtual tip jar at: https://paypal.me/hylandptw2023-06-2916 minParkinson's Disease Education PodcastPD Myth Bust #4 (2023) - DBS is Experimental TreatmentApparently, some folks still believe that DBS is experimental treatment. Really?? Let's put this one to bed! Here is a video recording of Episode #4 of PD Myth Bust 2023 on the Parkinson's Disease Eduction YouTube Channel: https://youtu.be/x-568zYdMTc Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, you can leave a one time tip in our virtual tip jar at: https://paypal.me/hylandptw2023-06-2811 minParkinson's Disease Education PodcastPD Myth Bust #3 (2023) - Parkinson's Disease is FATAL!Some people see Parkinson's Disease as a death sentence, but is it really? The truth is when first diagnosed, most folks don't really know what they don't know... you know? Here is a video recording of Episode #3 of PD Myth Bust 2023 on the Parkinson's Disease Eduction YouTube Channel: https://youtu.be/A7X9xvZ7amY Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, you can leave a one time tip in our virtual tip jar a...2023-06-1415 minParkinson's Disease Education PodcastPD Myth Bust #2 (2023) - Parkinson's Is ONLY a Movement DisorderSome people believe that Parkinson's Disease is ONLY a movement disorder and does not have an impact on other body systems. Boy is that the furtherst thing from the truth. Today we continue round 2 of the PD Myth Bust series. As with last week's episode there is a video recording of Episode #2 of PD Myth Bust 2023 and that can be found here: https://youtu.be/KnE8Gk2ClO0 Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Al...2023-06-0707 minParkinson's Disease Education PodcastPD Myth Bust #1 (2023) - All People with PD Have TremorsWhat do you think? Do ALL persons with Parkinson's have tremors? It's round 2 of the PD Myth Bust series. This is not a repeat of last year's recordings, this is a new recording, but this time there is video to go with the audio if you would prefer that! Episode #1 of PD Myth Bust 2023 comes from our Parkinson's Disease Education Podcast on YouTube. The video version can be found here: https://youtu.be/dZVxOV1FF7Q Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here a...2023-05-3107 minParkinson's Disease Education PodcastPD Medications, Purpose, and Mechanisms - LevodopaThis week we are dicussing the Gold Standard medication for PD treatment and that is Levodopa. You can find more details here Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, you can leave a one time tip in our virtual tip jar at: https://paypal.me/hylandptw Don't forget about our YouTube channel!!2023-05-1213 minParkinson's Disease Education PodcastPD Medications, Purpose, and Mechanisms - Adenosine A2A AntagonistsThis week we are dicussing Adenosine A2A Antagonists. You can find more details here Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, you can leave a one time tip in our virtual tip jar at: https://paypal.me/hylandptw Don't forget about our YouTube channel!!2023-05-0308 minParkinson's Disease Education PodcastPD Medications, Purpose, and Mechanisms - MAO-B InhibitorsThis week we are dicussing MAO-B Inhibitors. You can find more details here Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, you can leave a one time tip in our virtual tip jar at: https://paypal.me/hylandptw Don't forget about our YouTube channel!!2023-04-2706 minParkinson's Disease Education PodcastPD Medications, Purpose, and Mechanisms - AnticholinergicsHave you been more forgetful lately? Confused? Hallucinating?? Have you had dry mouth associated with your PD medications? It's not just YOU! This week we are discussing Anticholinergic medications. You can find more details here Please be sure to check out the Aware in Care Kit from Parkinson's Foundation. It could be a true gamechanger in the event of a hospitalization, even an elective one. We discussed in this episode of the PWP: Episode 5: Hospital Stays and PWP - Aware in Care Please support this podcast and our endeavors by becoming a co-producer of the s...2023-04-1908 minParkinson's Disease Education PodcastPD Medications, Purpose, and Mechanisms - AmantadineMedications shouldn't be a bitter pill to swallow. That's why we are continuing this mini series discussing Amantadine. You can find more details here Please be sure to check out the Aware in Care Kit from Parkinson's Foundation. It could be a true gamechanger in the event of a hospitalization, even an elective one. We discussed in this episode of the PWP: Episode 5: Hospital Stays and PWP - Aware in Care Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.p...2023-04-0510 minParkinson's Disease Education PodcastIncorporating Visual Focus Into Parkinson's ExerciseTime for our first interview of 2023! Mr. Ian Robertson, a gentleman with PD, was gracious enough to have this conversation with me about his use of vision and visual focus during exercise to enhance movement when he exercises. This is an awesome concept and I was grateful to be able to discuss with him and get his permission to share with you! Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, you can leave a one...2023-03-2938 minParkinson's Disease Education PodcastPD Medications, Purpose, and Mechanisms - Dopamine AgonistsMedications can be a hard pill to swallow (I know, I said that last week, but when you're on a roll...) and that's why these episodes are short and easy to digest. This week we discuss Dopamine Agonists. You can find more details here Please be sure to check out these podcasts and/or videos referenced in this episode with regard to side effects and conditions associated with PD. Can Parkinson's Disease Cause Restless Legs Syndrome (RLS)? PWP Episode 55: Psychosis, Hallucinations, and Paranoia, Oh My! PWP Episode 30: Addictive Behaviors and PD Excessive Daytime Sleepiness an...2023-03-2207 minParkinson's Disease Education PodcastPD Medications, Purpose, and Mechanisms - COMT InhibitorsMedications can be a hot topic for persons living with PD, so we wanted to do our best to unpack this topic, one episode at a time, so that its, um, well... easier to swallow. I'm sorry I couldn't resist. :-D This week we highlight COMT Inhibitors. You can find more details here. Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, you can leave a one time tip in our virtual tip jar a...2023-03-1507 minParkinson's Disease Education PodcastReversing PD Through Fast Walking and What the Heck is GDNF??In this episode I wanted to address the claims made by one particular gentleman with PD, John Pepper, who recently posted a video discussing the role fast walking has played in what he claims is reversing his PD as well as how the protein GDNF can be increased through fast walking. The video where he talks about this can be found here, but know that it is a bit lengthy. Please know that research is ongoing and there is no certain evidence that fast walking will reverse PD, though it is a fact that it does have a...2023-03-0814 minParkinson's Disease Education PodcastPsychosis, Hallucinations, and Paranoia Oh My!In this episode we will dive into Parkinson's Disease Psychosis (PDP) how commonly it can occur, causes, and treatments. Here is a link to the Parkinson's Foundation for more detailed information: https://www.parkinson.org/understanding-parkinsons/non-movement-symptoms/hallucinations-delusions Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, you can leave a one time tip in our virtual tip jar at: https://paypal.me/hylandptw Don't forget about our YouTube channel!!2023-03-0113 minParkinson's Disease Education PodcastFronto-Temporal Dementia vs Parkinson's DiseaseActor Bruce Willis was just diagnosed with Fronto-Temporal Dementia as of early 2023. Are you familiar with this form of dementia? I wasn't either! In this episode we will discuss Fronto-Temporal Dementia compared to Parkinson's Disease. It can by very hard to distinguish between the symptoms without further diagnostic tests. This page from the NIH is very informative and will be a good start towards understanding this condition. Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, yo...2023-02-2208 minParkinson's Disease Education PodcastMobile Therapy for Parkinson'sWhat is Mobile Therapy? That is what you are going to find out! In this episode we discuss what Mobile Therapy is, how it is distinct from Home Health Care, and how it could be a great benefit to you as a person with Parkinson's. Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, you can leave a one time tip in our virtual tip jar at: https://paypal.me/hylandptw Don't forget about ou...2023-02-1812 minParkinson's Disease Education PodcastLewy Body Dementia vs Parkinson's DementiaIn this episode we will discuss Lewy Body Dementia compared to Parkinson's dementia. It can by very hard to distinguish between the two, so pay close attention. Also, here is a link to learn more about LBD from the NIH: https://www.nia.nih.gov/health/what-lewy-body-dementia-causes-symptoms-and-treatments Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, you can leave a one time tip in our virtual tip jar at: https://paypal.me/hylandptw Don't f...2023-02-1611 min
Parkinson's Disease Education Podcast5 Reasons Why LSVT BIG/LOUD Works!LSVT BIG and LSVT LOUD have been around for a while now. These programs have resulted in great success in helping persons with Parkinson's Disease and other neurological conditions all over the world, quite literally, to AMPLIFY their lives. Why do these programs work? There is hard neuroscience involved, but those principles are discussed in this episode in simple terms provided by LSVT Global in their own training. The 5 principles discussed here are the key to success in these programs. Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a...2023-02-0110 min
Parkinson's Disease Education Podcast1 YEAR Anniversary/50th Episode Special - A Reflection2023-01-2511 minParkinson's EmpowermentVal talks about taking her meds on time. What a difference!Val had heard about boxing and Parkinson's and had been meaning to look into the program. She saw the Rock Steady Boxing Victor Magnet on a car at one of her medical appointments, and knew it was a sign. She took a picture of it and gave us a call. The trip to our clinic/gym was her first time meeting other people with Parkinson's. Listen to this episode and learn more about how Parkinson's presented initially and what she is doing about it now. Check out our website www.safeathompt.comgive us a call at...2023-01-2113 min
Parkinson's Disease Education PodcastBEST Therapy Programs for Parkinson's Disease#podcast #parkinsonsawareness #parkinsonsdisease #parkinsons #therapy #LSVTBIG #LSVTLOUD In this episide we discuss the best therapy programs available for folks with PD. This includes PT, OT, and SLP programs available that are the best and most evidence based. Here is a list and the links to find out more: LSVT BIG/LOUD Parkinson's Wellness Recovery (PWR!) SPEAK OUT/Parkinson's Voice Project Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors A...2023-01-1817 min
Parkinson's Disease Education PodcastParkinson's DyskinesiaHAPPY NEW YEAR!! In the inaugural episode of 2023 we will be discussing Parkinson's Dyskinesia, root causes, and possible treatments. Information shared in today's episode is from Parkinson's Foundation. Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, you can leave a one time tip in our virtual tip jar at: https://paypal.me/hylandptw Don't forget about our YouTube channel!!2023-01-0612 min
Parkinson's Disease Education PodcastStiff Person Syndrome Vs Parkinson's DiseaseIf you have payed attention to the news recently you may have seen that Celine Dion was recently diagnosed with a condition called "Stiff Person Syndrome" or SPS. In this episide we compare and contrast the two conditions, as sometimes SPS can be mistaken for PD! The information shared today can be found here on the NIH National Institure of Neurological Disorders and Stroke webpage. The monoclonal antibody that I was trying to remember in the episode is called rituximab. Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a...2022-12-2810 min
Parkinson's Disease Education PodcastBreathing Problems and PD Part 2: TreatmentIn this episode we slow down and take a breath... literally. Breathing keeps us above the ground and PD can sometimes cause difficulty with breathing. In part 2 we discuss treatment options for those with breathing issues along with their PD. Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, you can leave a one time tip in our virtual tip jar at: https://paypal.me/hylandptw Don't forget about our YouTube channel!!2022-12-2112 min
Parkinson's Disease Education PodcastBreathing Problems and PD Part 1: An OverviewIn this episode we slow down and take a breath... literally. Breathing keeps us above the ground and PD can sometimes cause difficulty with breathing. Find out how by listening! Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, you can leave a one time tip in our virtual tip jar at: https://paypal.me/hylandptw Don't forget about our YouTube channel!!2022-12-1414 min
Parkinson's Disease Education PodcastVitamin B6 Toxicity - DON'T Let This Happen to You!In this episode we discuss Vitamin B6 toxicity due to oversupplementation. Who knew?? This has also been covered in a recent YouTube video on our channel here. ***Don't hesitate to support the show with these links below*** Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, you can leave a one time tip in our virtual tip jar at: https://paypal.me/hylandptw Don't forget about our YouTube channel!!2022-12-0709 min
Parkinson's Disease Education PodcastMixed Motor and Non-Motor Symptoms of PD: Speech, Swallowing, Drooling, and MoreWe are BACK! Hope all had a great Thanksgiving holiday here in the USA. In this episode we discuss the notion of mixed motor/non-motor symptoms of PD, which specifically pertains to speech and swallowing combined with issues of drooling and/or dry mouth and the negative impact that this can have on PWP. Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, you can leave a one time tip in our virtual tip jar at: htt...2022-11-3006 min
Parkinson's Disease Education PodcastMovement Disorder Specialist vs General Neurologist: Which Is Right for You?In this episode I discuss the difference between a Neurologist and a Movement Disorder Specialistand why as a Person with Parkinson's it is important to seek out a physician who specializes in treating your type of condition. You can seek out a list of Movement Disorder Specialists in the USA and sites around the world by going to this link: https://mds.movementdisorders.org/directory/ *Note that this directory is not all-inclusive and some MDS may not be listed as they must choose to be a member or be included on this registry from the International Parkinson's and Movement...2022-11-1608 min
Parkinson's Disease Education PodcastGastroparesis and Parkinson'sIn a past episode we discussed constipation as a common non-motor symptom of Parkinson's Disease. This time, we had a gut feeling that you would need to hear about gastroparesis and how this can potentially lead to major issues such as malnutrition and dehydration and result in changes in quality of life as you live with PD. Details found in the episode may be read here on the Davis Phinney Foudnation website article. Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.pa...2022-11-0919 minParkinson's Disease Education PodcastProtein and Parkinson's MedicationsListen in to find out what the beef is about protein and medication absorption... see what I did there? Seriously though, it is very important to avoid high protein meals as a person with PD, specifically when you are taking Levodopa or Carbidopa/Levodopa. In this episode we will talk about why that is a concern and what can be done about it. Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, you can leave a on...2022-11-0211 minParkinson's Disease Education PodcastParkinson's Care Partners - The Unsung HeroesIn this episode I discuss the importance of the role of a carepartner in living with Parkinson's Disease. This can be a loved one, spouse, etc. A carepartner can also be a therapist, a counselor, a physician. It takes a village... and with all of these unsung heroes you will not be alone. Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, you can leave a one time tip in our virtual tip jar at: https://pay...2022-10-2611 min
Parkinson's Disease Education PodcastThe Syn-One Test: The Cutting Edge in PD Diagnosis?#diagnosis #diagnostics #parkinsons #parkinsonsdisease #parkinsonsawareness #parkinsonism In this episode we learn about the Syn-One test, which is one of the newest clinical tests for Parksinson's Disease (only around two years old) and could be one of the best tests in existence to help to diagnose PD and other forms of Parkinsonism. Here is the APDA article about the Syn-One Test: https://www.apdaparkinson.org/article/new-laboratory-tests-for-parkinsons-disease/ Here is the CND Life Sciences site and more information on the test: https://cndlifesciences.com/syn-one-test/ Please support this podcast and our endeavors by b...2022-10-1911 minParkinson's EmpowermentOpen Enrollment, Insurance information for everyone and things to consider when you have Parkinson Disease. Valerie Hall of Valerie's Medicare Corner is full of great information.Valerie Hall, a Medicare Advisor, has some great information on things to consider with open enrollment. Valerie's Medicare Corner (585)490-9491vhall052@gmail.comThere is great information in this podcast for people with and without Parkinson Disease. In network, out out of network.... what does that mean for you? Important information you should know before choosing a plan. Check out our website www.safeathompt.comgive us a call at (585)398-6050or send us an email at robin@safeathomept.comThanks for listening!2022-10-1532 min
Parkinson's Disease Education Podcast4 Reasons Why Drinking Water is CRUCIAL in Managing PD#hydration #water #parkinsons #parkinsonsdisease #parkinsonsawareness In this episode I discuss the importance of drinking water as a PwP. Believe me with PD, water could just as important as your medication. Please watch the video on this topic on our YouTube channel here Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, you can leave a one time tip in our virtual tip jar at: https://paypal.me/hylandptw2022-10-1206 min
Parkinson's Disease Education PodcastCan DaT Scan Diagnose Parkinson's Disease?In today's episode of the PWP Dr. Hyland discusses the DaT scan; what it is and whether or not it is worth your time. It may not be all DAT... Sorry I just couldn't resist. Dr. Michael Okun, MD discussed this topic right after the test was FDA approved back in 2011. You can find his article from which some of his statements were paraphrased here. Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, yo...2022-10-0508 minParkinson's Disease Education PodcastLoss of Smell and Parkinson's DiseaseLoss of smell can be one of the earliest signs of PD prior to diagnosis. In this episode we talk about how often that happens and how it can even have an impact on nutrition. Here are two pages of interest to read up on the topic: Parkinson's Foundation - Loss of Smell Michael J. Fox Foundation - Smell Loss Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, you c...2022-09-2806 min
Parkinson's Disease Education PodcastPain and Parkinson's DiseaseIf you have ever been told by physicians that Parkinson's does not cause pain then you are not alone. In fact, that's just wrong! In this podcast episide we break down the potential causes of pain associated with Parkinson's Disease and the remedies to help that pain. This episide is extracted audio from a video that was recorded on the topic a few months ago on our YouTube. Please consider watching the full video on YouTube, give it a like, comment, and SUBSCRIBE! Please support this podcast and our endeavors by becoming a co-producer of t...2022-09-2113 minParkinson's EmpowermentIvana gives us an update after participating in a couple months of Parkinson specific exercise classes.See what has changed for Ivana since completing high frequency physical therapy and beginning PD exercise classes at Safe at Home Physical Therapy. Check out our website www.safeathompt.comgive us a call at (585)398-6050or send us an email at robin@safeathomept.comThanks for listening!2022-09-1605 min
Parkinson's Disease Education PodcastNeuropathy and Parkinson's DiseaseIt may be *shocking* to find out, but your nerve health can be directly impacted by PD. As you will find out in this episode, your nerve sheaths may be impacted by specific vitamin deficiencies and, similiarly to electrical wires, the nerve sheaths keep the electrical impulses of your nerves traveling in the right direction. A recent study by researchers at University of Florida discussed the possibility of the brain-gut connection and implications for PD. That study can be found here. Please support this podcast and our endeavors by becoming a co-producer of the show! Si...2022-09-0809 min
Parkinson's Disease Education PodcastRunny Nose and Parkinson's DiseaseWere you born upside down? In other words does your nose run and your feet smell? In this week's episode Dr. Hyland talks about runny nose and how this can be directly connected to PD. Who knew... well, the nose knows. Ok, we will stop there. :-) Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, you can leave a one time tip in our virtual tip jar at: https://paypal.me/hylandptw2022-08-3110 minParkinson's Disease Education PodcastDry Mouth, Oral/Dental Care, and PDIn this week's episode Dr. Hyland discusses dry mouth and PD and oral hygiene/dental care. This can be a huge problem for PWP and could potentially result in losing some of all of your teeth as well as high risk for issues like aspiration pneumonia. If you have dry mouth these can be over the counter remedies that can be of help*: Biotene rinse: https://amzn.to/3jJ6Lps Trident gum: https://amzn.to/3vSrqMN *As an Amazon affiliate I may earn a small commision from qualifying purchases. Ple...2022-08-2411 minParkinson's EmpowermentVeteran Terry Martin Joins Us Today. We talk about how boxing helps people with PD.Boxing exercises include training for agility, speed, reaction time, endurance, focus, hand-eye coordination, footwork and strength. Exercise to help slow progression and reduce symptoms must push the participants beyond what they perceive they are capable of performing. Our Rock Steady Classes in Victor, NY, are offered at two different levels so that participants get the most out of them, and those that need to can work up to being able to get to the level of working out with intensity. We also offer PWR! Moves classes which are more moderately paced and focus on functional movements (getting up o...2022-08-1816 minParkinson's Disease Education PodcastAddictive Behaviors and PDIn this week's episode of the PWP Dr. Hyland discusses the possibility of developing addictive behaviors that can be associated with some drugs that treat the symptoms of PD. Be aware of this and discuss with your healthcare providers and care partners. Dopamine agonists are particularly linked to these problems. Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, you can leave a one time tip in our virtual tip jar at: https://paypal.me/hylandptw...2022-08-1707 min
Parkinson's Disease Education PodcastParkinson's Disease and Erectile DysfunctionGentlemen with PD, are you having trouble rising to the occasion? In this week's episode of the PWP Dr. Michael talks about men and women's sexual health and PD, specifically ED. Here are the links to the sexual health pages from the Parkinson's Foundation: Male Sexual Health Female Sexual Health Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, you can leave a one time tip in our virtual tip j...2022-08-1007 minParkinson's Disease Education PodcastPregnancy and Parkinson's DiseaseIn this week's episode of the PWP Dr. Michael talks about a topic many would not necessarily consider when discussing PD. What happens if you become pregnant while having PD? Well... that's a deep subject that you will just have to listen to to find out more! Source of today's information is here. Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, you can leave a one time tip in our virtual tip jar at...2022-07-2710 minParkinson's Disease Education PodcastCan't Take the Heat? Hint: It Could Be PD!Well, it's most definitely summer here in the central USA. As Dr. Hyland sweated to get this episide out on time, it was apparent that heat intolerance would be a timely topic for a midsummer night's stream (see what I did there). Puns aside, you won't want to skip this one as it could be vital for your safety as you enjoy the outdoors and exercise this summer as you live with ol' Parky. Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://w...2022-07-2008 min
Parkinson's Disease Education PodcastDystonia and Parkinson's DiseaseIn this episode Dr. Hyland discusses what dystonia is and how it can relate to PD and also how it could even be a separate diagnosis in many cases. Also, some resources for understanding dystonia are provided with links below: MJFF page on dystonia with infographic Parkinson's Foundation page on dystonia DBS/Dystonia Support Group on Facebook Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, you can leave a on...2022-07-1310 min
Parkinson's Disease Education PodcastThink LOUD and Move BIG! An Interview with Dr. Cynthia Fox, PhD, CCC-SLPThis is our ***25th EPISODE!!!*** In this episode of the PWP, Dr. Hyland interviews special guest Dr. Cynthia Fox, Speech Language Pathologist. Dr. Fox is the current CEO and co-founder of LSVT Global, Inc. that is the parent company for the therapy treatment programs LSVT LOUD and LSVT BIG. In the interview you will get to hear the history of Dr. Fox's career as well as how she and Dr. Lorraine Ramig met and ended up collaborating on the clinical research that led to developing the programs and also "what's in the name" when it comes to the LSVT...2022-07-0635 min
Parkinson's Disease Education PodcastPD Myth Bust #6: Besides Medication There Isn't Much You Can Do About Parkinson's DiseaseAs we continue our PD Myth Bust mini-series Dr. Hyland debunks common myths and misconceptions about Parkinson's Disease. In episode 6, we will dive into the statement or idea that other than medication there isn't much you can do to help Parkinson's disease. Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, you can leave a one time tip in our virtual tip jar at: https://paypal.me/hylandptw Don't forget about our YouTube channel!!2022-06-2913 min
Parkinson's Disease Education PodcastPD Myth Bust #5: Deep Brain Stimulation... Experimental Treatment?As we continue our PD Myth Bust mini-series Dr. Hyland debunks common myths and misconceptions about Parkinson's Disease. In episode 5, we ask the question "Is DBS experimental treatment?" Please see the DBS Fact Sheet from APDA here. Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, you can leave a one time tip in our virtual tip jar at: https://paypal.me/hylandptw2022-06-2208 min
Parkinson's Disease Education PodcastPD Myth Bust #4: Parkinson's Disease is FATAL... As we continue our PD Myth Bust mini-series Dr. Hyland debunks common myths and misconceptions about Parkinson's Disease. In episode 4, the focus will be on the statement that Parkinson's Disease is FATAL... Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, you can leave a one time tip in our virtual tip jar at: https://paypal.me/hylandptw 2022-06-1512 minParkinson's EmpowermentIvana Graduated from LSVT BIG with flying colors. She talks about the relief and benefit of letting people know she had Parkinson's instead of hiding the diagnosis.Ivana, a retired kindergarten /4th grade teacher, and I talk about the improvements she saw in her balance and posture and overall mobility soon after starting the LSVT BIG program. She talks about her Urban Poling Stability poles and the benefits she has had since starting to walk with them. We talk about knee replacements, one last year and another scheduled for the end of this summer, and which class to begin after she graduates from this round of physical therapy. Ivana mentions that she does not have tremors. According to the Parkinson's Foundation about 70% of people...2022-06-0924 min
Parkinson's Disease Education PodcastPD Myth Bust #3: Parkinson's Disease is ONLY a motor disorderAs we continue our PD Myth Bust mini-series Dr. Hyland debunks common myths and misconceptions about Parkinson's Disease. In episode 3, we cover the myth that Parkinson's Disease is only a movement or motor disorder. Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, you can leave a one time tip in our virtual tip jar at: https://paypal.me/hylandptw2022-06-0807 minParkinson's Disease Education PodcastPD Myth Bust #2: Everybody with Parkinson's Disease Has a Tremor...As we continue our PD Myth Bust mini-series Dr. Hyland debunks common myths and misconceptions about Parkinson's Disease. In episode 2, we cover the myth that everybody with Parkinson's Disease has a tremor. Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, you can leave a one time tip in our virtual tip jar at: https://paypal.me/hylandptw 2022-06-0105 min
Parkinson's Disease Education PodcastPD Myth Bust #1: Only medicine helps with Parkinson's??In this new mini-series Dr. Hyland debunks common myths and misconceptions about Parkinson's Disease. In episode 1, we cover the myth of medication being "the only hope" for persons with Parkinson's disease and that exercise doesn't really make much difference. Don't get me started! Check out Parkinson's Lifestyle Management and the great information there at https://parkinsonslifestylemanagement.com/ Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, you can leave a one time tip...2022-05-2508 min
Parkinson's Disease Education PodcastSleep Disorders and Parkinson's Disease Pt. 4 - REM Sleep Behavior DisorderIn the fourth and final part of PD-related sleep disorders, Dr. Hyland discusses Rapid Eye Movement Sleep Behavior Disorder (RBD) and potential treatment options to improve this issue that tends to result in acting out dreams. To read more about this please access this page: https://www.parkinson.org/Understanding-Parkinsons/Symptoms/Non-Movement-Symptoms/Sleep-Disorders Photo by Nick Fewings on Unsplash Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, you can leave a on...2022-05-1804 min
Parkinson's Disease Education PodcastInterview with Dr. Dian Ginsberg, MD, FACOG of The Ginstitute of Functional MedicineIn this episode Dr. Hyland interviews Dr. Dian Ginsberg, MD who is an OB/GYN turned functional medicine specialist. She specliazes in helping individuals with fertility issues, but also helps people with Parkinson's Disease to treat some of the causes of PD at the core through innovative treatment methods. To learn more about her work and to get in touch, please visit her website at https://www.dianginsbergmd.com/ You can also view a host of incredible videos on her YouTube channel at https://www.youtube.com/c/WomensSpecialtyHealthcareWellness/ Please support this podcast and our e...2022-05-1137 min
Parkinson's Disease Education PodcastSleep Disorders and Parkinson's Disease Pt. 3 - Excessive Daytime SleepinessIn part 3 of PD-related sleep disorders, Dr. Hyland discusses Excessive Daytime Sleepiness (EDS) and potential remedies for when the eyelids get heavy. Please support this podcast and our endeavors by becoming a co-producer of the show! Sign up as a Patreon supporter here at https://www.patreon.com/pdwarriors Also, you can leave a one time tip in our virtual tip jar at https://paypal.me/hylandptw ALSO please be sure to check out our PD education playlist on YouTube in addition to our podcast. 2022-05-0407 min
Parkinson's Disease Education PodcastInterview with Shana Gatschet, OTR/L of Parkinson's Connect, LLCIn this episode Dr. Hyland interviews Shana Gatschet, OTR/L founder and CEO of Parkinson's Connect, LLC. Parkinson's Connect is a Parkinson's Disease specialty practice that offers mobile outpatient PT, OT, and SLP services under insurance as well as wellness services and PD fitness classes. In addition, she and her business partner have established a non-profit to help person's with PD in the Wichita, KS area to be able to have support group meetings, counceling, and many more services in addition to exercise classes. To find Parkinson's Connect their contact information is here: https://www.parkinsonsconnect.org2022-04-2725 minParkinson's EmpowermentBoxer, Baker and Pizza Maker...Some of John's past and current talents. He shares his PD story.After being diagnosed 6 years ago, John shares what he is doing now to reduce the symptoms and progression of Parkinson disease, getting over the anger of having Parkinson's and how joining a group exercise class has helped him. We talk about making things automatic again other classes we offer in addition to Rock Steady Boxing Victor. Check out our website www.safeathompt.comgive us a call at (585)398-6050or send us an email at robin@safeathomept.comThanks for listening!2022-04-2318 min