Shows
CFStrong: Inform. Educate. Empower.Newly Diagnosed: What I Now Know 4 years on - A Mothers Personal Experience of having a child living with cystic fibrosisIn this heartfelt episode, host Lyndall Grace speaks with Mandy Ali — early childhood educator, CF Together team member, and mum to four-year-old Rory, who lives with cystic fibrosis (CF). Mandy shares the emotional experience of Rory’s diagnosis through newborn screening, describing how she felt deeply overwhelmed then she and her partner focused on working together as a team, drawing on the strength of their family unit to find creative, consistent ways to care for Rory.Mandy reflects on how her early childhood background has shaped her parenting—transforming daily cystic fibrosis care into moments of connection, play...2025-05-191h 02
CFStrong: Inform. Educate. Empower.Podcast: Parenting a child with CFIn this CFStrong podcast episode, Alexa, a mother from Melbourne, shares her emotional journey after receiving her daughter Zoe's diagnosis of cystic fibrosis.
Alexa vividly recounts the moment she received the news, the overwhelming emotions that followed, and the subsequent whirlwind of appointments and reactions from family and friends.
Despite initial struggles and feelings of isolation, Alexa shares the importance of allowing oneself to feel the range of emotions, seeking information, and finding support. She offers reassurance to other parents facing similar situations, highlighting the gradual acceptance and adjustment process, and emphasising that while the journey may be daunting, there...2024-05-0623 minCFStrong: Inform. Educate. Empower.TRANSITION | Philosophy for Life and CFIn this final episode of the current CFStrong podcast series, co-host Brad Dryburgh engages six young adults living with cystic fibrosis (CF) in a profound discussion about their philosophy for leading fulfilling lives despite the challenges posed by the condition.
Through heartfelt reflections, the guests share their deeply personal perspectives on resilience, acceptance, and positivity in the face of adversity.
They emphasise the importance of embracing life's unpredictability, maintaining a positive mindset, and finding strength in vulnerability.
From acknowledging the unfairness of living with CF to harnessing the power of trust and resilience, each guest offers unique insights into navigating...2024-04-0919 minCFStrong: Inform. Educate. Empower.TRANSITION | The future and CFIn this episode of the CFStrong podcast series, co-host Brad Dryburgh engages in candid discussions with six individuals living with cystic fibrosis (CF) in their 20s.
Addressing the question of fears and worries for the future while living with CF, each guest shares their unique perspective.
From concerns about the broader CF community and the impact of treatment disparities to personal reflections on life expectancy, relationships, career aspirations, and the emotional toll of witnessing loved ones' mortality, the conversation delves into the complexities of navigating life with CF.
Despite these fears, the episode highlights the resilience and self-awareness of the...2024-04-0209 minCFStrong: Inform. Educate. Empower.TRANSITION | How to navigate body image and CFIn this episode of the CF Strong podcast, co-host Brad Dryburgh engages in an open dialogue with six young adults living with cystic fibrosis (CF) about the often-sensitive topic of body image.
As the eighth episode in the series, each guest, reflects on their personal experiences and struggles with body image, shedding light on the unique challenges faced by individuals with CF.
The candid conversations touch upon issues such as acne, weight gain, societal perceptions, and the journey towards self-acceptance. The guests share their personal triumphs and the liberating moments when they embraced their bodies.
Tune in to the Podcast...2024-03-2611 minCFStrong: Inform. Educate. Empower.TRANSITION | How to navigate finances and CFIn this episode of the CFStrong podcast series, Brad Drybugh explores the financial challenges faced by individuals living with cystic fibrosis (CF).
Through engaging conversations with six guests, the episode addresses the impact of CF on financial planning and explores benefit schemes that have helped along the way.
The guests share candidly about their struggles, successes, and strategies for managing finances, touching on topics such as relying on mobility allowance and grappling with fluctuating incomes to navigating the complexities of purchasing a home and managing expenses related to CF treatments and healthcare.
Tune in to the Podcast to hear first-person...2024-03-1711 minCFStrong: Inform. Educate. Empower.TRANSITION | How to navigate jobs and CFIn this episode of the CFStrong podcast, co-host Brad Dryburgh explores the world of careers for individuals in their 20s living with cystic fibrosis (CF).
Featuring insights from six guests, the episode addresses the question of whether they are pursuing their ideal careers and if they've faced job rejections due to CF.
The candid responses reveal diverse experiences, From finding fulfillment in music and stand-up comedy to challenges in securing employment due to health-related limitations, the guests reflect on the impact of CF on their professional journeys. Despite encountering obstacles and misconceptions, they remain resilient, determined to follow their passions...2024-03-1315 minCFStrong: Inform. Educate. Empower.TRANSITION | How to navigate romantic relationships and CFIn this episode of the CFStrong podcast, co-host Brad Dryburgh leads a candid discussion on the complexities of explaining cystic fibrosis (CF) to romantic partners.
Through the experiences of six individuals living with CF, listeners gain valuable insights into the challenges and triumphs of disclosing their condition in relationships.
From grappling with feelings of burden and anxiety to finding acceptance and support, the guests share their personal journeys of opening up about CF to their partners. Some recount initial struggles and misconceptions, while others reflect on the importance of honesty and self-acceptance in fostering meaningful connections.
Tune in to the...2024-03-0413 minCFStrong: Inform. Educate. Empower.TRANSITION | Fitness and wellness routines and CFIn this episode of the CFStrong podcast, co-host Brad Dryburgh guides listeners through a discussion on fitness and wellness routines among individuals living with cystic fibrosis (CF).
With a focus on the experiences of six young adults with CF, the episode explores how their fitness regimens have evolved over time and the benefits they've experienced.
From traditional physiotherapy routines to post-Trikafta adjustments, the guests share their diverse approaches to staying active and maintaining well-being. While some engage in activities like running, Pilates, and weightlifting, others find solace in more unconventional pursuits like drumming and golf.
Despite the challenges posed by...2024-02-2618 minCFStrong: Inform. Educate. Empower.TRANSITION | How to manage mental health and CFIn this engaging episode of the CFStrong podcast, co-host Brad Dryburgh explores the intricate relationship between cystic fibrosis (CF) and mental health.
The third episode of the series features candid insights from six guests – all in their 20s - as they share their personal journeys and strategies in navigating the complex intersection of CF and mental well-being.
From the challenges of social anxiety and the pressure to explain their disease to others, to the impact of CF on life choices and the importance of seeking mental health support, the guests delve into the highs and lows of their mental health ex...2024-02-0512 minCFStrong: Inform. Educate. Empower.TRANSITION | How to navigate vaping and CFIn this engaging episode of the CF Strong podcast, co-host Brad Dryburgh delves into the unique perspectives of six guests, as they discuss vaping and how it intersects with the challenges of cystic fibrosis.
The candid conversations reveal a spectrum of attitudes towards vaping, from relaxed approaches to strict stances against it.
The guests share personal struggles, experiences with peer pressure, and the complexities of dealing with vaping in social settings. As Brad aptly guides the discussion, the episode sheds light on the invisible struggles faced by those with cystic fibrosis and the delicate balance required to navigate decisions around...2024-02-0510 minCFStrong: Inform. Educate. Empower.TRANSITION | How to juggle friends, a social life and CFHave you ever wondered how to balance a social life while living with cystic fibrosis?
You are not alone.
Hosted by Bradley Dryburgh, himself a young person living with cystic fibrosis (CF), this latest series of the CFStrong podcast delves deep into the perspectives of six young adults facing similar challenges.
In this opening episode, Adam, Blake, Caitlin, Ellie, Sam, and Tayla share candid accounts of how they navigate a social life while managing their CF. From Adam's seamless integration of CF into friendships to Tayla's candid admission of hermit tendencies, each story offers a unique perspective into the delicate...2024-01-3109 minCFStrong: Inform. Educate. Empower.CFStrong: MenopauseIn this podcast, Jen Hauser, CFPhysio.com founder and physiotherapist, caught up with Dr Sue Keating and Nicki to learn more about menopause in CF.
This discussion shares some of Nicki’s journey navigating CF symptoms, post lung-transplant symptoms/medication side effects, and possible menopause.
With the increasing age of survival in CF, menopause is becoming a health experience that women with CF are having to navigate, and the literature would suggest a 2-3 years earlier onset than those women without CF.
This podcast discussion is only the tip of the iceberg. More resources are in the making to help wo...2023-10-1859 minCFStrong: Inform. Educate. Empower.YOUTH | What happens if I vape?In this episode, CF Strong podcast co-host Sarah and Clinical Nurse Consultant Kate Johnson discuss vaping and CF.
Transcript
Voice Over : Welcome to the CF Strong Podcast. CF Strong covers the successes and challenges faced by those living with cystic fibrosis. You'll hear first person stories, conversations with health professionals, friends and partners. Just a heads up, guests may share their personal views about treatments and health management, but please remember this is not medical advice and you should always follow the advice of your clinic team regarding your health.
Sarah: Hello everybody and welcome to this quick fire one...2023-08-2205 minCFStrong: Inform. Educate. Empower.TRANSITION | Why do I get thrush?In this episode, CF Strong podcast co-host Sarah and Clinical Nurse Consultant Kate Johnson discuss thrush and CF.
Kate explains that females with CF, in particular, are prone to yeast infections, manifesting as thrush in the mouth or throat and fungal vaginitis in the vaginal area. Kate discusses the causes, including disruptions in pH balance due to antibiotics and corticosteroids used to treat lung infections. She recommends over-the-counter antifungal treatments and discusses potential prescription medications for severe cases. Kate encourages open communication with the healthcare team, emphasising the importance of seeking help without embarrassment.
Transcript
Voice Over: Welcome to the C...2023-08-1504 minCFStrong: Inform. Educate. Empower.YOUTH | Balancing Partying and CFIn this episode, CF Strong podcast co-host Sam Lefoe chats with Clinical Nurse Consultant Kate Johnson about how to balance fun and partying while living with Cystic Fibrosis.
Kate discusses the considerations for individuals with CF regarding alcohol consumption, highlighting the increased risk of liver damage due to the strain on the liver from processing alcohol. Additionally, she emphasises the importance of moderation, safety, and communication with the healthcare team. Regarding smoking, Kate advises avoidance due to its detrimental effects on lung health and encourages open discussions about the risks and support for those trying to quit.
The views, experiences...2023-08-0806 minCFStrong: Inform. Educate. Empower.TRANSITION | Balancing Life and CFIn this episode, CF Strong podcast co-host Sam Lefoe chats with Clinical Nurse Consultant Kate Johnson about how to balance time with friends while living with Cystic Fibrosis.
Kate delves into the challenges of balancing cystic fibrosis (CF) responsibilities, such as medication adherence, with the desire to partake in typical teenage activities. She suggests normalizing CF as part of one's identity rather than letting it define them. She discusses strategies to integrate treatments into daily life, suggesting morning medication routines and incorporating physical activities like sports or walks as incidental physio. Kate encourages individuals to consider how they perceive others...2023-08-0104 minCFStrong: Inform. Educate. Empower.YOUTH | Do I need to use protection when I have sex?In this episode, CF Strong podcast co-host Sam Lefoe and Clinical Nurse Consultant Kate Johnson discuss sex and protection for people living with CF.
Kate emphasises the importance of safe sex practices for everyone, as individuals with CF face the same risks of contracting sexually transmitted diseases. She provides insights into the potential impact on health, fertility, and the transmission of diseases, highlighting the need for protection in various types of sexual activities. Kate discusses contraceptive options, including condoms, intrauterine devices, and hormonal implants, and encourages open communication with healthcare teams for personalised advice.
Transcript
Voice Over: Welcome to the...2023-07-2503 minCFStrong: Inform. Educate. Empower.YOUTH | Will my kids get CF too?In this episode, CF Strong podcast co-host Sam Lefoe and Clinical Nurse Consultant Kate Johnson discuss whether the kids of those living with CF, will get CF too.
Kate explains the recessive nature of the CF gene, clarifying that for a child to have CF, both parents must carry or have CF mutations. She discusses the different scenarios, explaining that if both partners have CF, there's a 100% chance of the child having CF. If one partner is a carrier, the chance is 50%, and if both are carriers, there's a 25% chance. Kate encourages individuals to undergo genetic screening when considering starting...2023-07-1804 minCFStrong: Inform. Educate. Empower.TRANSITION | Am I able to have kids if I have CF?In this episode, CF Strong podcast co-host Sam Lefoe and Clinical Nurse Consultant Kate Johnson discuss having kids while living with Cystic Fibrosis.
Kate highlights the advancements in medical technology, gene modulator therapy, and improved overall health, leading to increased fertility among CF patients. She discusses the challenges and options for both males and females and the positive impact of gene modulator therapy on female fertility. The episode aims to educate and dispel misconceptions about parenthood for individuals with CF.
The views, experiences or comments shared on this website are not medical advice and may not reflect opinions or beliefs...2023-07-1104 minCFStrong: Inform. Educate. Empower.YOUTH | Will my periods be later because of CF?In this episode, CF Strong podcast co-host Sarah and Clinical Nurse Consultant Kate Johnson discuss late development and periods while living with Cystic Fibrosis.
The views, experiences or comments shared on this website are not medical advice and may not reflect opinions or beliefs of Cystic Fibrosis Community Care. Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health.
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Rafi, 41, was diagnosed with Cystic Fibrosis at birth. However, he says CF gave him a unique perspective on life and death, which fueled his curiosity and desire to explore. This exploration led him to storytelling through photography and filmmaking, allowing him to share his life story and experiences.
One of Rafi’s notable projects is a hip hop album titled "Life Expectancy," which delves into the complexities of living with CF. The album also includes a d...2022-12-0620 min
CFStrong: Inform. Educate. Empower.Podcast: Murray on transplantMurray on transplant
In this episode of the CFStrong podcast, we speak with Murray who had a double lung transplant ten years ago. We discuss Murray's experience pre and post-transplant, how he managed the mental and emotional side of transplant, what he's been up to for the last decade and his advice for approaching transplant.
Transcript
Coming soon.
This podcast was published in November 2022. If you would like to share your story, please contact us at admin@cfcc.org.au. We’d love to hear from you and so would our listeners. 2022-11-2229 minCFStrong: Inform. Educate. Empower.Podcast: Tony on clinical trialsTony on clinical trials
Curious about clinical trials? Interested to learn more about how to take part? Keen to hear from someone who has been there and done that? In this episode of the CFStrong podcast we chat with Tony about his experience getting involved in clinical trials. Tony shares his experience and his advice for anyone interested in putting their hand up for a clinical trial.
”Look, I would say it's important they do the homework, read a little bit about the medication, if you can. Nine times out of 10, it's there's nothing about on the internet, but in sa...2022-11-0816 minCFStrong: Inform. Educate. Empower.Podcast: Sinus and CFSinus and CF
In this episode of the CFStrong podcast, we discuss sinus and CF with ear, nose and throat specialist, Dr Catherine Banks; president of CFPhysio and experienced physiotherapist, Jen Hauser; and co-host of the CFStrong podcast and adult with CF, Sam Lefoe. The wide-ranging conversations covers just what our sinuses are, what the symptoms of sinus disease are and why it can be challenging to diagnose for people with CF. We also cover what the treatment options are and where to find more information.
Transcript
Coming Soon.
This podcast was published in October 2022. If you would like to s...2022-10-2533 minCFStrong: Inform. Educate. Empower.Podcast: Bryce on travelling with CFBryce on travelling with CF
Travelling with CF can sometimes feel daunting. There's a lot to think about. But Bryce, a teacher from NSW who lives with CF, says the effort is more than worth it. In this episode, Bryce chats about travelling with CF, the tips and tricks that worked for them and their advice to anyone wanting to travel.
Transcript
Coming soon.
This podcast was published in October 2022. If you would like to share your story, please contact us at projects@cfcc.org.au. We’d love to hear from you and so would our listeners. 2022-10-1130 minCFStrong: Inform. Educate. Empower.Podcast: CFPhysio and navigating fatherhood—part 2CFPhysio and navigating fatherhood part 2
This episode of the CFStrong podcast is thanks to our collaboration with CFPhysio
This is the second episode to navigating fatherhood with CF. Sam, a young man with a dedication to his daily routine, and his health shares with us some of his journey with CF. Sam, who has a very full plate of life, on top of juggling a chronic health condition walks us through some of the challenges, the ups and downs, and the decisions when starting a family. Sam is honest in sharing his experiences learning how to prioritise the things that...2022-09-2730 minCFStrong: Inform. Educate. Empower.Podcast: CFPhysio and navigating fatherhood—part 1CFPhysio and navigating fatherhood part 1
This episode of the CFStrong podcast is thanks to our collaboration with CFPhysio
Sam, a young man with a dedication to his daily routine, and his health shares with us some of his journey with CF. Sam, who has a very full plate of life, on top of juggling a chronic health condition walks us through some of the challenges, the ups and downs, and the decisions when starting a family. Sam is honest in sharing his experiences learning how to prioritise the things that bring him joy whilst upholding the tasks that keep his...2022-09-2725 minCFStrong: Inform. Educate. Empower.Podcast: Kate on parenting with CFKate on parenting and CF
In this episode of the CFStrong podcast, we speak with Kate about navigating CF and parenting. We discuss Kate's journey to becoming a parent, how she manages her health while parenting and how she talks with her son about CF and what the future looks like.
”Now as he's a teenager, it's easy. But when he was little, I really focused massively on my health as well as parenting... you look at people that have got multiple kids, child three or four just fits in, right. So that's sort of the approach I took with my...2022-09-0628 minCFStrong: Inform. Educate. Empower.Podcast: Bryce on work, family and CFBryce on work, family and CF
In this episode of the CFStrong podcast, we speak with Bryce, a teacher from NSW, about work and family and how he manages both while also taking care of his health.
”A lot of people who are coming in to having a family think that they need to be on top of it all the time, you just, you can't be and it's hard. And it's tough. And it's not going to be easy all the time. There's certain things you can do to make it easier. But sometimes I'm just not and it's, so...2022-08-1629 minCFStrong: Inform. Educate. Empower.Podcast: CF and the NDISCF and the NDIS
In this episode of the CFStrong podcast we speak with Ben from Trusted Care, a subsidiary of CF Queensland, about the NDIS. We explore what the NDIS is, how people with CF are accessing support from the NDIS and what advice Ben has for anyone thinking about applying for the NDIS.
”It's about educating people in the NDIS. That's real advocacy, helping people become educated and better equipped to understand and learn the way to speak about the NDIS, the way to approach the NDIA, the way to access all of that. It's all an education pro...2022-07-2924 minCFStrong: Inform. Educate. Empower.Podcast: CFPhysio on exploring the huffCFPhysio on exploring the huff
This episode of the CFStrong podcast is thanks to our collaboration with CFPhysio. Sit down with experts in their field, Dr Brenda Button, Kathleen Hall, and Esta Tannenbaum, physiotherapists who have worked with individuals with CF across the lifespan, and learn more about huffing. This technique is integral to all airway clearance in CF. Understanding more about what is being achieved in the airways when performing this technique will empower you to develop a huff that works for your airways. This is suitable for healthcare professionals and individuals with CF.
”The ears are, as physio's, ou...2022-07-0840 minCFStrong: Inform. Educate. Empower.Podcast: Scott on fatherhood and CFScott on fatherhood and CF
In this episode of the CFStrong podcast, we speak with Scott about being a dad, his journey to fatherhood and his advice for others thinking about having a family of their own.
This podcast was published in June 2022. If you would like to share your story, please contact us at admin@cfcc.org.au. We’d love to hear from you and so would our listeners. 2022-06-2822 minCFStrong: Inform. Educate. Empower.Podcast: CFPhysio and Alex on parenting with CFAlex on parenting and CF
This episode of the CFStrong Podcast is thanks to our collaboration with CFPhysio. Dive into the second chapter to “It Takes a Village” with Alex and Dr Benda Button. Alex once again shares with sensational vulnerability, courage and honesty her journey being a mum. Alex has amazing insight, and she has learnt over time, and with reflection the importance of prioritising her oxygen first when parenting.
”You can't compare yourself to other parents who don't live with a chronic illness because it's such a different experience. —Alex
”I absolutely love being a mother, but I really nee...2022-05-2537 minCFStrong: Inform. Educate. Empower.Podcast: James on staying active and sharing his CF storyJames on staying active and sharing his CF story
In this episode of the CFStrong podcast we speak with James about growing up with four brothers, keeping active and playing sport and what helped him to open up about and share his CF story with his teammates.
"I kept it a secret, you know, as much as I could from pretty well most people... But then when I got towards 27 I started slowing down a bit more again. And that's when I started to open up... It actually worked out pretty well. And I do probably wish I probably did s...2022-03-2324 minCFStrong: Inform. Educate. Empower.Podcast: CFPhysio and AlexAlex on pregnancy and parenthood
This episode of the CFStrong Podcast is thanks to our collaboration with CFPhysio. Take a journey with Alex, as she shares her experience with Dr Brenda Button of planning, preparing and embarking on pregnancy with CF. Alex is a talented photographer, partner, mother, and strong advocate for her healthcare. This podcast provides insight on so many aspects of living with CF, with the key message: rally your team, create your village, and live the life you maybe never dreamed of.
”...what I would say, if someone was thinking about falling pregnant, is just make sure yo...2022-03-031h 04CFStrong: Inform. Educate. Empower.Podcast: Amanda on why asking for help makes you strongAmanda on why asking for help makes you strong
In this episode of the CFStrong podcast we hear from Amanda about her experience living with CF. Amanda discusses what she is most proud of, the importance of the CF community and the challenges of losing friends with CF. She talks about the value of being ok with not being ok and why you should ask for help when you need it.
This is the second episode of our two-episode chat with Amanda.
“…the help is there. But you've got to ask, and it's not—you don't look weak, you don't look s...2022-02-1518 minCFStrong: Inform. Educate. Empower.Podcast: Amanda on kicking goals and the value of strong support networksAmanda on kicking goals and the value of strong support networks: part one
In this episode of the CFStrong podcast we hear from Amanda about her experience growing up with CF, the importance of her support network and—literally—kicking goals. Amanda discusses playing contact sport, how she dealt with her health taking her away from the sport she loved and her decision to get back on the football field. This is the first episode of our two-episode chat with Amanda.
“…as I was growing up, I kind of found that they were the reason why you got through the hospital...2022-02-1522 minCFStrong: Inform. Educate. Empower.Podcast: CFPhysio and MegThis episode of the CFStrong Podcast is thanks to our collaboration with CFPhysio. In this episode, Jen Hauser, a physiotherapist with nearly twenty years experience, speaks with Meg about her physiotherapy routine and the value of building positive relationships with your healthcare team.
Meg, a young woman with CF, shares her insights on working together with her healthcare team for better outcomes. Meg also talks about how she has learnt over time to modify her daily treatments to get the best out of techniques depending on what her body is telling her. There is some helpful discussions around timing of...2021-12-1620 minCFStrong: Inform. Educate. Empower.CFStrong: Alex on switching gearsAlex on switching gears and managing CF
In this episode of the CFStrong podcast we hear from Alex who for a long time let his treatment take a backseat. He discusses how he used to approach his health care, what helped him get to a point where he could take his treatment seriously and how he approached switching gears and managing CF.
"I also wouldn't change a lot of the decisions, even the bad ones, that I've made, because they've helped me learn, and they've helped sort of teach me what is important. So it's not just about managing, like...2021-12-1420 minCFStrong: Inform. Educate. Empower.Podcast: CFPhysio and LukeThis episode of the CFStrong Podcast is thanks to our collaboration with CFPhysio. In this episode, Jen Hauser, a physiotherapist with nearly twenty years experience, speaks with Luke about how he manages his CF and physiotherapy and how he stays motivated to keep active.
Luke, a young man with CF, shares some of his journey with developing a routine for life, including aspects of lung hygiene and exercise. Luke talks about his strategies for motivating himself and staying on track, especially when there might not be any obvious symptoms to treat, or immediate improvement in health outcomes when he does...2021-11-3030 minCFStrong: Inform. Educate. Empower.Podcast: Mike on strength of body and mindMike on strength of body and mind
In this episode of the CFStrong Podcast we speak with Mike about how exercise and bodybuilding have helped him both physically and mentally.
"For me, it became a passion. After only six months to a year of doing it, when I was about 16 years old, it became almost an obsession, I would say. And the benefits were just so massive that it was, it was so easy to maintain, and to keep doing it, you know. When I started training, when I was 15, I weighed 44 kilos. And by the time I was 19, I...2021-11-2219 minCFStrong: Inform. Educate. Empower.CFStrong: SamThis podcast is raw, honest and reflective of the challenges people living with CF have to go through when disclosing their illness to loved ones and acquaintances2021-07-1531 minCFStrong: Inform. Educate. Empower.CFStrong: SamThis podcast is raw, honest and reflective of the challenges people living with CF have to go through when disclosing their illness to loved ones and acquaintances. Sam talks openly about how he finds it difficult to raise his illness with friends, the responses he has received, and how he’s coming to terms with who he is.
Sam is passionate about sharing his journey to help those who are in a similar situation to become more confident with accepting themselves as they are. With his parents support, Sam realised that it was more important to accept who he was, ra...2021-07-1520 minCFStrong: Inform. Educate. Empower.CFStrong: Sam
This podcast is raw, honest and reflective of the challenges people living with CF have to go through when disclosing their illness to loved ones and acquaintances. Sam talks openly about how he finds it difficult to raise his illness with friends, the responses he has received, and how he’s coming to terms with who he is.
2021-07-1531 min
CFStrong: Inform. Educate. Empower.CFStrong: DanLiving Remotely
In this podcast, Dan talks about the benefits and challenges of living remotely with CF. He chats about his adventurous life with his good friend Shaun. Dan talks about the logistics of managing his health from growing up in regional Victoria, then moving to the Northern Territory after completing his studies, over to Ireland and briefly touching down in Nepal. Dan's journeys are interesting and he shares the comforting knowledge that careful planning and patient care from health professionals, in Australia and overseas, have always supported his travels.
Want to learn more about Dan? Read about his adventures h...2021-06-0120 minCFStrong: Inform. Educate. Empower.CFStrong: DanCFStrong: Dan2021-06-0126 min
CFStrong: Inform. Educate. Empower.CFStrong: KristyIn this podcast, Kristy shares her experience of going from consistently good health for most of her life, to being on and off the transplant list. Kristy talks about her love for working and keeping incredibly busy, from running restaurants, working as a youth worker and to now studying social sciences. Kristy also shares her story on becoming a mum and the challenges and blessings of raising a child with a chronic illness. Kristy is full of gratitude, warmth and wonderful energy. We hope you enjoy her story.2021-02-1618 minCFStrong: Inform. Educate. Empower.CFStrong: LaurenIn this podcast, Lauren shares her experience of life with cystic fibrosis. Although still young, she has had an amazing career progression from working in law, to film production, then a Department of Foreign Affairs and Trade (DFAT) government role that took her overseas, to today as she starts her own business.
While she was working for DFAT, she got a posting to Port Vila in Vanuatu in the South Pacific, and she talks about the logistics, challenges and positives of her time living overseas with cystic fibrosis. She also discusses her views on natural therapies and what she finds...2021-02-1620 minCFStrong: Inform. Educate. Empower.CFStrong: PeterPeter, now in his 50s and a Sydney native, talks about his lifetime commitment to dancing, both practicing and teaching, and now running Australia’s largest Showcase dance competitions. Dance, both competing and working, has taken Peter to China, Malaysia and the USA. He candidly shares his life story including being adopted, struggling with weight gain growing up, being homosexual with CF, establishing his business and his perspective of embracing hospital admissions with a positive mindset.2021-02-1319 min