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Nonprofits TodayNonprofits TodayNPT 06 - Empowering CRPS Warriors: Deborah Jankowski’s Fight for Awareness & SupportIn this moving episode of Nonprofits Today, we’re joined by Deborah Jankowski, founder of the CRPS Warriors Foundation—a powerhouse nonprofit providing global support, education, and hope for people living with Complex Regional Pain Syndrome (CRPS).A survivor and advocate herself, Deborah transformed her personal battle with this debilitating nerve condition into a mission that spans continents. From navigating misdiagnoses and life-threatening surgeries to building a foundation with 40 global volunteers, Deborah’s journey is a testament to the power of community, resilience, and unwavering hope.In this episode, we talk about...2025-06-1026 minTABOOBSTABOOBSThe Girl On Fire (CRPS) with CourtneySend us a textIn continuation with our Women's Health mini series, Courtney joins us to discuss her battle with CRPS. CRPS stands for Complex Regional Pain Syndrome and it is a neurological disease. Between 5-8 million people suffer from CRPS and there is no modern medicine to combat this. It is known as the suicide disease because of the prevalence of people committing suicide due to the pain. Luckily, Courtney was able to find some relief through a more holistic approach at the Spero Clinic in Arkansas. Listen to hear what her journey looked like, when...2025-05-061h 20The CRPS CompassThe CRPS CompassEpisode 8: A CRPS StoryIn this episode of The CRPS Compass, my dad, Matthew Smith, opens up about his personal journey with CRPS—the struggles, the triumphs, and everything in between. He shares his experiences with occupational therapy and the invaluable lessons he’s learned along the way. His story is one of resilience, hope, and unwavering strength.DISCLAIMER: This episode features a personal testimony from an individual diagnosed with CRPS. Listener discretion is advised. If you or someone you know is affected, support and resources are available.The views expressed in this podcast are those of the hosts and...2025-04-0914 minThe CRPS CompassThe CRPS CompassEpisode 7: Unpacking The Research On CRPSOn this episode of The CRPS Compass, join me and Dr. Tara Packham, PhD, OT Reg. (Ont.), as we discuss Tara's incredible research contributions to CRPS, her primary findings, and more!Dr. Tara Packham, PhD, OT Reg. (Ont.) is an occupational therapist and certified hand therapist with 25+ years of experience in upper limb and hand rehabilitation. Tara additionally serves as an educator at McMaster University in Hamilton, Ontario, Canada. Tara completed her PhD on CRPS and has completed an extensive amount of research dedicated to CRPS and chronic pain conditions. Tara is a current member of the...2025-04-0959 minThe CRPS CompassThe CRPS CompassEpisode 6: A Hand Therapist's Role In CRPS ManagementIn this episode of The CRPS Compass, join Grace Griffiths and I as we discuss how hand therapy can assist with CRPS management and treatment, as well as discuss Grace's research on CRPS and her primary findings!Grace Griffiths is an OT and Certified Hand Therapist at Lower Hutt Hospital, in Wellington, New Zealand. Grace is currently pursuing her PhD at University of Otago, completing various research projects on upper-limb CRPS.To view Grace's published research articles, click the links below:https://pmc.ncbi.nlm.nih.gov/articles/PMC10690851/https://pmc...2025-04-0927 minThe CRPS CompassThe CRPS CompassEpisode 4: A Physical Therapist's Role in CRPS Management Pt. 2On this episode of The CRPS Compass, join Dr. Brittany Kim, PT, DPT, OCS, and I as we continue to discuss physical therapy's role in CRPS management, current and upcoming research, common physical therapy interventions used in the clinical setting, and resources for individuals living with CRPS.Dr. Brittany Kim, PT, DPT, OCS received her Doctor of Physical Therapy degree from USC. After finishing the program, she participated in USC's Orthopedic Physical Therapy Residency Program to earn in OCS. She is a guest lecturer on the topic of Centralized Pain in USC's DPT program and has taught...2025-04-0942 minThe CRPS CompassThe CRPS CompassEpisode 3: A Physical Therapist's Role In CRPS Management Pt. 1In this episode, I explore how physical therapy, in conjunction with occupational therapy and additional healthcare disciplines, can play a pivotal role in managing and alleviating CRPS symptoms. Join me as I chat with Dr. Michael Chung, PT, DPT from Re-Active Physical Therapy, and discuss how a multi-discipline care team can assist individuals with CRPS recovery, Michael's role as the CRPS program director, what the CRPS program offers, and more!Dr. Michael Chung, PT, DPT, graduated from USC Doctor of Physical Therapy program and is a practicing physical therapist and CRPS program director at Re-Active Physical Therapy...2025-04-0916 minThe Chronic Pain BreakupThe Chronic Pain BreakupLife-Changing Help For CRPS (Leslie's Recovery Story)In this inspiring interview, I’m joined by Leslie—an Ironman triathlete, cyclist, and CRPS advocate—who shares how she reclaimed her life after being diagnosed with Complex Regional Pain Syndrome (CRPS) following foot surgery. Leslie opens up about: ✔️ How she used the strategies inside The Chronic Pain Breakup Method to dramatically reduce her pain, and get back to the activities she loves (yes, including hiking 10 miles and biking 30+ miles!) ✔️ Her biggest “aha” moments that shifted her recovery ✔️ When she realized emotions and anger were holding her back and keeping her from healing ✔️ Why these techniques helpe...2025-04-0441 minKetamine ConnectionsKetamine ConnectionsEpisode 35 | From Chronic Pain to Contact: CRPS, Ketamine, and an Extraterrestrial EncounterIn this powerful episode of Ketamine Connections, we explore the deeply personal story of Kevin VanHeesch, who has lived with Complex Regional Pain Syndrome (CRPS) for nearly a decade. Kevin shares his experience navigating a labyrinth of treatments — including spinal cord stimulation and ketamine infusions — and how he ultimately found relief and transformation through psychedelic therapy.Joining us in spirit is Kristen Johnson, founder of Ketamine Pain Center, the clinic that helped guide Kevin toward healing. Kristen has over 30 years of healthcare experience and founded Mountain View Clinical Research before opening one of Colo...2025-04-0259 minThe Pain PodcastThe Pain PodcastEpisode 63: The Hidden Connection Between Movement & Pain (CRPS & FND Explored)🎙️ Hosts: Tim Beames & Bart Van Buchem What if pain isn’t just about injury—but about how we predict movement? In this episode, Tim Beames and Bart Van Buchem unravel the deep connections between Complex Regional Pain Syndrome (CRPS) and Functional Neurological Disorders (FND), exploring how pain and movement disorders often overlap and what that means for recovery. 🔍 What you'll learn: ✅ Why pain and movement disorders frequently co-exist ✅ The predictive nature of movement—how our brain shapes our motor responses ✅ The debate: Should rehab focus on pushing through pain or finding comfort in movement? ✅ T...2025-03-1231 minRozmowy KonopneRozmowy Konopne083 Jak CRPS i fibromialgia odbierają ludziom życie dr Adam Zgliński🌿W dzisiejszym odcinku zajmiemy się zagadnieniem jakim jest fibromialgia i CRPS w kontekście przewlekłego bólu, który niszczy życie tysięcy osób. Razem z dr Adamem Zglińskim, specjalistą chorób wewnętrznych i geriatrą, omawiamy przypadki pacjentów, dla których medyczna marihuana stała się przełomem. Fibromialgia i CRPS to choroby o których będziemy rozmawiać. Poznacie historię kobiety uzależnionej od morfiny, która dzięki konopiom odzyskała normalne funkcjonowanie.Zgłębimy tajniki CRPS i fibromialgii – chorób niezrozumianych nawet przez lekarzy. Czy psychoterapia może być skuteczniejsza niż leki przeciwbólowe ? Jakie odmia...2025-02-281h 05Healing Hub PodcastHealing Hub PodcastUnderstanding the Invisible Struggles of CRPSUnderstanding the Invisible Struggles – whether it’s CRPS, chronic pain or even PTSD.When dealing with CRPS, chronic pain, anxiety or PTSD – we can feel overwhelmed, and we feel misunderstood. We get really good at putting up the façade… We’re good at saying we’re OK. The reality is - we feel judged, and we feel like we have to defend how we feel or what’s going on. This is why it’s so important for more people to understand the invisible struggles that patients face. This has to be done to bring awa...2024-10-2422 minPain SpeakPain SpeakOvercoming Pain - Diving deep into CRPSSend us a textDr. Ravindran's presentation, "Complex regional pain syndrome: Trauma informed CRPS Care An integrated approach," focuses on trauma-informed care for CRPS patients. This was presented at the UK annual conference organised by CRPS UK. This podcast was a summary of that talk and the source files used by Dr Ravindran for his presentation and generated using the Noteook LM by Google.Dr. Ravindran emphasises the importance of communication and understanding in a trauma-informed approach to CRPS care. He points out common issues that can arise, including miscommunication between...2024-10-1510 minLife Shouldn\'t HurtLife Shouldn't HurtOn CRPS with Guest Laurie JohnstonJoin us today with Laurie Johnston. Laurie has been dealing with CRPS, also known as complex regional pain syndrome. What began as a simple attempt to break a branch over her knee led to a lifetime of pain. Unfortunately, CRPS is a condition that health professionals still do not fully understand.Laurie shares her experience with CRPS and the limitations it imposes on her daily life. Tune in to hear her story and gain insights into living with this challenging condition.2024-07-1640 minThe Pain Game PodcastThe Pain Game PodcastUnderstanding The Many Faces of CRPSStep into the raw and unfiltered world of chronic pain and resilience with this compelling episode of The Pain Game Podcast. Your host, Lyndsay Soprano, dives deep into the complexities of living with chronic pain and trauma, sharing her personal journey and the relentless pursuit of finding purpose amidst suffering. This episode features a heartfelt conversation with Audrey Marie, an author, anti-trafficking advocate, and fellow CRPS warrior, who brings her unique perspective on managing pain and trauma while striving for empowerment and healing.Audrey's story is one of unimaginable pain, beginning with a mysterious lump in her armpit...2024-06-0447 minThe Chronic Pain BreakupThe Chronic Pain BreakupCLIENT STORY: The Reality of Recovery from CRPS (Complex Regional Pain Syndrome)Former client and Chronic Pain Breakup Method grad, Anke, joins me in this episode as we shed some light on the complex and elusive recovery from CRPS (Complex Regional Pain Syndrome).In this episode, Anke shares her story about what the path to recovery is really like, what challenges she faced along the way, and misconceptions about recovery potential with CRPS.She shares her tips for others struggling with CRPS including taking accountability in your care rather than relying on doctors and the medical system, being patient and consistent even when progress seems slow or ch...2024-04-221h 04MEC ConnectMEC ConnectComplex Regional Pain Syndrome (CRPS) and Reflex Sympathetic Dystrophy (RSD) with Dr. Fernando BrancoHosts Matt Yehling and Patty Reinecke sit down with Dr. Fernando Branco, MEC's Chief Medical Officer, to discuss Complex Regional Pain Syndrome (CRPS) and Reflex Sympathetic Dystrophy (RSD). Dr. Branco shares his expertise on these challenging diagnoses, explaining how they can develop from seemingly minor injuries and the difficulties in accurately diagnosing and treating these conditions.Discussion Points:Sprains and Strains Progressing to CRPS/RSD: Dr. Branco explains that it's common for minor injuries like sprains and strains to progress into CRPS or RSD, especially in the excess claims world. He notes...2024-04-1527 minHealing Hub PodcastHealing Hub PodcastThe Connection Between CRPS and Cortisol What is the connection between CRPS and Cortisol, and a lot of the odd ball symptoms we endure with CRPS?Now, anyone living with CRPS or chronic pain knows the pain creates stress… which leads to anxiety, for some – depression, and for most it leads to insomnia too.Stress and pain are interweaved at multiple levels. This impact - in turn - manifests in other ways in the body.One of the big things I talk to CRPS and chronic pain patients about in the office is the connection between the central nervous syst...2024-03-1529 minThe E3 Rehab PodcastThe E3 Rehab Podcast138. Complex Regional Pain Syndrome (CRPS) w/ Brittany KimChris sat down with Brittany Kim to discuss Complex Regional Pain Syndrome (CRPS). Brittany outlines the diagnostic criteria, prognosis, communication recommendations, treatment pathways, rehabilitation management strategies, and major misconceptions involving CRPS. Watch the full episode here: https://youtu.be/Adcd9FNJZfY  More about Brittany: Brittany’s Website Brittany’s Instagram CRPS Resources: CRPS Diagnostic Toolkit Clinical Resources  Interdisciplinary Therapy Program  --- Follow Us: YouTube: https://www.youtube.com/e3rehab  Instagram: https://www.instagram.com/e3rehab/...2024-03-051h 08CE Podcasts for NursesCE Podcasts for NursesInvisible Agony: Navigating Complex Regional Pain Syndrome - Episode 1: CRPS: Navigating the DiagnosisThis is episode 1 of the series: Invisible Agony: Navigating Complex Regional Pain Syndrome. In Episode 1, we review the complex regional pain syndrome and discuss how to navigate such a life-changing, rare syndrome. This course delves into the complexities of Chronic Regional Pain Syndrome (CRPS), equipping healthcare professionals with the knowledge needed to better support patients grappling with this condition. It offers a profound understanding of CRPS, its impact on patients and families, and explores evidence-based assessment and treatment strategies. Participants embark on an exploration with the goal of creating a meaningful impact in the lives of i...2024-01-0529 minFinding God in Our PainFinding God in Our PainLiving with Unrelenting Pain, CRPS with Darci SteinerIf you’re dealing with overwhelming pain my guest Darci Steiner has a testimony of amazing resilience as she lives out the debilitating affects of Complex Regional Pain Syndrome or CRPS. In her book, Beauty Beyond the Thorns, Darci reveals how God cares for us in the darkest valleys in life. What she shares can benefit anyone who is dealing with pain that makes it seem like there's no way out. While we didn’t discuss in detail the medical side of self-care I wanted to mention it now. If you’re experiencing a crisis of mental health...2023-12-201h 10A Contagious Smile PodcastA Contagious Smile PodcastUnraveling the Enigma of CRPS: A Deep Dive into Chronic Pain Management, Innovative Treatments, and the Power of Resilience and Self-LoveSend us a textHave you ever wondered what life is like for someone living with complex regional pain syndrome (CRPS)? As someone who has personally battled with CRPS, I invite you to join me, your host, and our expert guests in a raw and candid discussion about this mysterious condition. In this episode, we unpack my personal journey with CRPS, from diagnosis to numerous procedures, and even touching on the sensitive subject of amputation, which is usually the last resort.We push the envelope even further by exploring innovative treatments for CRPS, such as...2023-12-1741 min