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Showing episodes and shows of
Chelsey Storteboom
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My Immune System Hates Me!
Grand Finale
That's right, it's the Grand Finale of My Immune System Hates Me! Tune in to hear updates on Chelsey, her mom, and why it's time to put the show to an end.
2022-04-08
11 min
My Immune System Hates Me!
Making it Count with Dani
At the age of 16, Dani was a promising young athlete with goals of pursuing a sports career, but her life took an unexpected turn when she was diagnosed with Rheumatoid Arthritis. Like so many warriors, she turned her hardships into life lessons and has helped spread joy and movement around the world. Now, though the pendulum is always swinging, she’s back to being her athletic self and is an incredible advocate for the whole community.
2022-03-25
42 min
My Immune System Hates Me!
Rheumatoid Arthritis with Antoinette
Antoinette’s RA started as a small sensation in her thumb, and before she knew it, she was in a wheelchair. Today, she’s back on her feet, sometimes even in heels, and she’s spreading motivation and inspiration wherever she goes.
2022-03-11
34 min
My Immune System Hates Me!
Juvenile Rheumatoid Arthritis
Jen was diagnosed with Juvenile Rheumatoid Arthritis when she was only a year old. As a kid, she was in and out of doctors offices every week, on heavy medications, and even in casts at some points. Today, she’s learned from her experiences and is eager to share her story and advice to those who need to hear it.
2022-02-25
21 min
My Immune System Hates Me!
Acral Lentiginous Melanoma
Terry has been battling a rare form of cancer for the last decade, and when I say battling, I’m not exaggerating. Both the cancer and his treatments have wreaked havoc on his body, but Terry isn’t letting that stop him from leading an extraordinary life.
2022-02-18
31 min
My Immune System Hates Me!
Chelsey's R.A. Update
Chelsey updates you on how she's been doing and then answers listener questions.
2022-01-21
19 min
My Immune System Hates Me!
Lyme Disease + Postpartum Depression
When Ashley Bernardi was at her lowest with Lyme Disease and Postpartum Depression, she knew she had some work to do. The trauma she had been carrying since childhood began to boil over and she had no choice but to learn how to give herself permission to feel, and begin to heal.
2022-01-14
32 min
My Immune System Hates Me!
Charcot-Marie-Tooth Disease
When Chris’s foot started acting weird, he casually mentioned it at his next doctors appointment. The doctor quickly instructed him to do further testing, which led him to being diagnosed with Charcot-Marie-Tooth Disease. After processing his diagnosis, he wasted no time learning more and is currently participating in a clinical trial in order to help others with this disease.
2021-12-17
28 min
My Immune System Hates Me!
Autoimmune Encephalitis
What started out as dizziness soon turned into erratic behavior, memory loss, and many other symptoms that looked like bipolar, schizophrenia, and dementia. What Elly really had was Autoimmune Encephalitis, an autoimmune disease that attacks your brain.
2021-12-10
32 min
My Immune System Hates Me!
Limb Difference + Rheumatoid Arthritis
Colleen was born with a limb difference so when she was diagnosed with Rheumatoid Arthritis, she knew it would complicate things. Luckily, her positive attitude and adaptability has led her to finding a Colleen Way of doing things, and now she’s able to educate and inspire others.
2021-12-03
28 min
My Immune System Hates Me!
M.S. Stands for Mindset Shift
Patti was diagnosed with MS shortly after beginning her career as a PE teacher. After being turned down for many job opportunities, she decided to pursue a new purpose - teaching women with MS how to shift their mindset.
2021-11-19
27 min
My Immune System Hates Me!
Congenital Heart Defect
Tori has had 2 separate heart defects and had her first open heart surgery when she was only 4 days old. Now, she’s feeling great and is encouraging and supporting other Congenital Heart Defect warriors through her instagram page, blog, and book.
2021-11-12
21 min
My Immune System Hates Me!
Alopecia Areata + Psoriasis
Trenton has Alopecia Areata and Psoriasis. When the standard steroid cream the dermatologist gave him made his Alopecia worse, he started looking into retraining his immune system
2021-11-05
26 min
My Immune System Hates Me!
R.A. Treatments Gone Wrong
You know in those medication commercials, how they list off all the possible rare side-effects? Well those warnings are for Jenni. Jenni has Rheumatoid Arthritis and has tried a bunch of medications, almost all of them came with strange side effects. Now, she’s an RA advocate and she’s here to tell her tale.
2021-10-29
33 min
My Immune System Hates Me!
Crohn's Disease with Lauren
Lauren’s experience with Crohn’s Disease is a wild one. From her first symptoms in high school, to surgeries, ostomy bags, and secondary syndromes, she’s been through the ringer. Now, she’s a recipe developer who has created an ebook of recipes that are easily digestible.
2021-10-22
33 min
My Immune System Hates Me!
Barrett's Esophagus + Rheumatoid Arthritis + Lupus + More!
Taylor discusses her experiences with Barrett's Esophagus, Rheumatoid Arthritis, Lupus, Endometriosis, and Ehlers-Danlos. Her pet pig, Chops, makes a few appearances too, so sorry about the background noise!
2021-10-15
31 min
My Immune System Hates Me!
Rheumatoid Arthritis with Denise
Denise is a dancer and dance teacher with Rheumatoid Arthritis. She’s been in and out of remission since her diagnosis and has noticed the affect it’s had on her mental health.
2021-10-08
19 min
My Immune System Hates Me!
Preparing for Pregnancy with an Autoimmune Disease
After years of being on medications to treat Psoriatic Arthritis and Vaculitis, Jessica is ready to start a family. Unfortunately, when you have an autoimmune disease, preparing for pregnancy comes with a unique set of challenges.
2021-10-01
36 min
MS and SEX
Chelsey Storteboom interviews me!
This is a featured episode of "My Immune System Hates Me!". Chelsey produces a great podcast where she interviews folx with autoimmune disorders, and in this episode she interviews me. As someone who has been on the other side of the mic stand/camera for decades- this felt vulnerable and like a loss of control. Interestingly, this is one of the many topics we covered in this interview. I talk about what M.S. is, my diagnosis, and how I took denial so far it could have cost me my life. We talk about the ways in which chronic illness...
2021-09-25
36 min
My Immune System Hates Me!
Chronic Illness and Sexuality
Cara is a sex educator and podcaster with Multiple Sclerosis. While training to become a sex educator, she was forced to face her own internalized ableism in regard to sex and sexuality. She talks about her experience with MS, how to adjust your sexuality as your body changes, and how kink may be beneficial to the chronically ill. *This episode contains conversations about sex, sexuality, and briefly, sexual assault. Listener discretion is advised.
2021-09-24
36 min
My Immune System Hates Me!
Rheumatoid Arthritis with Laura
It's Season 2! Today’s guest is Laura. She's a dancer and personal trainer with Rheumatoid Arthritis. When her symptoms started slowing her down, she knew it was time to fix it. She hasn't had the easiest time treating her sickness, but she's still thriving!
2021-09-17
33 min
MS and SEX
My Immune System Hates Me! with Chelsey Storteboom
The charming and delightful Chelsey Storteboom is my guest this month. She seems to have dealt with her autoimmune diagnosis with an "eyes wide open bravery that I could not muster when I was diagnosed. Her podcast is "My Immune System Hates Me!" In this engaging podcast, she not only gets real about her own diagnosis of rheumatoid arthritis but she interviews other folks with autoimmune disorders.
2021-09-15
38 min
My Immune System Hates Me!
Season 1 Finale
It's the Season 1 Finale! Rather than giving you the usual conversation, Chelsey's bringing back some old friends! She reached out to this year’s guests and asked them to send a quick update on their conditions, treatments, and lives. As we all know by now, chronic conditions are always surprising us and keeping us on our toes, so even the guests that were on more recently have got updates for us.
2021-07-23
38 min
My Immune System Hates Me!
Ehlers-Danlos Syndrome with Mom and Vanessa (Part 2)
In Part 2 of Ehlers-Danlos Syndrome with Mom and Vanessa, Vanessa gives Chelsey's mom more information about EDS. Then, her and Chelsey try to come up with a game plan for getting her mom some help. If you haven’t listened to Part 1 yet, we highly recommend going back and listening to that first.
2021-07-16
28 min
My Immune System Hates Me!
Ehlers-Danlos Syndrome with Mom and Vanessa (Part 1)
Vanessa was recently diagnosed with Ehlers-Danlos Syndrome. When she heard Chelsey's mom describing her symptoms on the podcast, she related with almost all of them. She contacted Chelsey and asked if they could chat. She wanted to pass on some advice and support to Chelsey and her mom. (This is Part 1 of 2)
2021-07-09
38 min
My Immune System Hates Me!
Multiple Sclerosis
After being diagnosed with MS, Elizabeth knew it was time to take a good look at her diet.
2021-07-02
37 min
My Immune System Hates Me!
Can RA Affect Your Brain?
David was diagnosed with rheumatoid arthritis earlier this year but recently, his condition took a turn and now he's ready to share his story.
2021-06-25
42 min
My Immune System Hates Me!
Graves Disease + Meniere's Disease + More!
Ruth has an array of different conditions, spanning from autoimmune diseases to mental illness with a slew of chronic conditions in between.
2021-06-04
10 min
My Immune System Hates Me!
Rheumatoid Arthritis with Ray
More RA talk this week! Ray has tried an array of different RA meds, some have worked better than others, some came with really strange side effects. With all the trial and error he’s done, he’s found what works for him and has some tips for you!
2021-05-28
33 min
My Immune System Hates Me!
Fibromyalgia + Thyroid Cancer
As a belly dancer in her twenties, Dimitra was diagnosed with both fibromyalgia, and thyroid cancer.
2021-05-21
14 min
My Immune System Hates Me!
Rheumatoid Arthritis with Lys
Though Lys and Chelsey both have the same condition, they found that our experiences with rheumatoid arthritis have been quite different.
2021-05-14
36 min
My Immune System Hates Me!
Sepsis + Post Sepsis
After having a life threatening experience with Sepsis, Laura thought things would get back to normal, but as she found out, post sepsis comes with it’s own complications.
2021-05-07
19 min
My Immune System Hates Me!
Rheumatoid Arthritis Coach
As a nurse practitioner with rheumatoid arthritis, Stefanie is a Rheumatoid Arthritis coach with a special skill set to help autoimmune sufferers live their best life. Then, stay tuned to the end for another update on Chelsey's rheumatoid arthritis.
2021-04-30
20 min
My Immune System Hates Me!
Brittle Diabetes + Pancreas Transplant
Brandon Mouw grew up with Type 1 Diabetes but after having a completely unrelated medical issue, his T1D took a devastating turn. Luckily, he’s here to tell you the tale!
2021-04-23
34 min
My Immune System Hates Me!
Alcohol Addiction
Gillian was addicted to alcohol for 7 years, but after hitting rock bottom twice, she knew it was time to quit drinking... for good. This episode contains discussion of addiction and suicidal ideations. If you are someone who struggles with addiction or depression, please listen with care.
2021-04-16
23 min
My Immune System Hates Me!
Spontaneous Coronary Artery Dissection
Listening to the way Mary laughs when she talks about her life with SCAD, you'd never know it almost killed her.
2021-04-09
24 min
My Immune System Hates Me!
Gout
Today, we’re talking about Gout with Spiro Koulouris!
2021-03-19
14 min
My Immune System Hates Me!
Bipolar Disorder
This week, you'll hear from Amelia, who has bipolar disorder. She is passionate about normalizing conversations around mental illness, starting in her own home. This episode contains discussion of sexual assault, depression, and suicidal ideations. Please proceed with caution. If you or someone you know is suicidal or in emotional distress, please call the National Suicide Prevention Lifeline at 1-800-273-8255, If you are outside of the US, you can find your country’s resources at suicide.org.
2021-03-12
31 min
My Immune System Hates Me!
COVID-19 Vaccine
Have you wondered how the COVID-19 Vaccine will affect people with autoimmune or chronic conditions? Well Chelsey is fully vaccinated and is ready to share her experience! Plus, it's been 6 months since you've heard how she's coping with RA... time for an update!
2021-03-05
13 min
My Immune System Hates Me!
A Theory on Gluten and Autoimmune Disease
Today’s guest doesn’t have a chronic condition, but she has a theory on autoimmune disease that she wanted to share. Ava is the founder of the School of Holistic medicine and she’s got some opinions on gluten... ***Any information discussed in this podcast is strictly my opinion and those of my guests and are for informational purposes only. We are speaking from our personal experiences and you should always consult with your doctor or medical team.
2021-02-26
18 min
My Immune System Hates Me!
Sarcoidosis + Hypopituitarism + Celiac Disease + More!
Debi has a myriad of chronic conditions; Sarcoidosis, Hypopituitarism, Celiac Disease, Endometriosis, Fibromyalgia, Hashimoto’s Thyroiditis, Crohn's Disease, and Type 2 Diabetes. Often, her doctor would reference an earlier diagnosis as the root of her new symptoms, but she knew there was more going on and she didn’t give up until she was satisfied!
2021-02-19
25 min
My Immune System Hates Me!
"Be Good To Yourself"
In honor of Valentine's Day, Chelsey has 3 guests for you. Each of them will share a bit about their chronic illnesses, as well as a few things they’ve learned along the way. All 3 of these women have similar messages, and they all have to do with taking care of yourself. What better time to love yourself than on Valentine's Day?!
2021-02-12
31 min
My Immune System Hates Me!
The Sugar Linings of Type 1 Diabetes
Christina was diagnosed with Type 1 Diabetes 20 years ago and in that time, she’s discovered that diabetes does have some silver linings, or as she calls them, sugar linings!
2021-02-05
33 min
My Immune System Hates Me!
Hashimoto's Thyroiditis + Rheumatoid Arthritis + Hypoglycemia
Anna kept being told by doctors that her symptoms were all in her head, so she took her health into her own hands by experimenting with different diets, supplements, and tests. She’s learned a lot on her journey and is excited to share it with you!
2021-01-29
30 min
My Immune System Hates Me!
Metastatic Breast Cancer + Fibromyalgia + Mixed Connective Tissue Disease
This week, Chelsey is chatting with Merle, who has Metastatic Breast Cancer, Fibromyalgia, and Mixed Connective Tissue Disease. On top of discussing these conditions, they chat about self-advocacy, how to choose the right doctor, and even a bit about ageism and sexism toward patients.
2021-01-22
27 min
My Immune System Hates Me!
Fibromyalgia + Endometriosis + Rheumatoid Arthritis
As a teen, Jana started experiencing classic autoimmune symptoms - fatigue, weightloss, muscle pain, etc. but had a hard time getting a diagnosis. Today, she has a total of 3 autoimmune conditions and is using her knowledge and experience to help coach others.
2021-01-15
31 min
My Immune System Hates Me!
Mom Update #2
As you may remember, after a fairly disappointing first appointment, my mom's rheumatologist sent her in for some more blood tests. We sat down and recorded this conversation after her virtual follow up. If you haven’t listened to them yet, you’ll probably want to go back and listen to the "Fibromyalgia” episode and to “Mom Update #1".
2021-01-08
13 min
My Immune System Hates Me!
Hashimoto's Thyroiditis + Endometriosis + ?????
Nancie has Hashimoto’s Thyroiditis, endometriosis, and is now searching for a diagnosis for a mystery illness. She has a long history with doctors and is using her gained knowledge to teach others how to advocate for themselves. If you’d like to get in touch with Nancie, you sign up for her mailing list at http://www.compherb.com/ or you can email her at DrNance@compherb.com.
2020-12-18
29 min
My Immune System Hates Me!
Hashimoto's Thyroiditis
After being diagnosed with Hashimoto’s Thyroiditis, Claire was determined to find a holistic path to treatment. Not only did she find it, but she’s now a certified coach and is helping other autoimmune sufferers improve their health.
2020-12-11
15 min
My Immune System Hates Me!
Congenital Heart Defect + Ehlers-Danlos Syndrome
On top of a congenital heart defect, Misti Blu has Ehlers-Danlos Syndrome. She has not had an easy road, but she is passionate about helping others through education and advocacy.
2020-12-04
28 min
My Immune System Hates Me!
Barrett's Esophagus
You all know by now that Chelsey has Rheumatoid Arthritis (and if you don't, now you do!). What you may not know, is that she's also been battling Barrett's Esophagus for years. Listen to her journey through diagnosis and treatment.
2020-11-20
10 min
My Immune System Hates Me!
Depression
Depression is a really tough topic to talk about, yet somehow, Samantha still manages to make this episode feel light-hearted! Listen to her journey through depression and how she is handling it today.
2020-11-13
24 min
My Immune System Hates Me!
Graves Disease + Rheumatoid Arthritis
Christine is the lucky winner of 2 autoimmune diseases: Graves Disease, and Rheumatoid Arthritis. At one point, her RA was so severe that she was unable to walk. After working with a team of doctors, including a physical and occupational therapist, she’s back on her feet and is on a mission to raise awareness about life with autoimmune disorders.
2020-11-06
22 min
My Immune System Hates Me!
Mom Update #1
An update on Chelsey's mom's quest for treatment. Make sure to listen to Episode 2: Fibromyalgia first!
2020-10-30
16 min
My Immune System Hates Me!
Type 1 Diabetes
Treatment for Type 1 Diabetes has evolved since Mikki was first diagnosed. She’s no longer stabbing herself with insulin injections or pricking her fingers to check her blood sugar. However, even with these technological advances, Type 1 Diabetes is still a full-time job!
2020-10-23
23 min
My Immune System Hates Me!
Crohn's Disease
This week, Chelsey is talking with Shawna who has been through a lot with her Crohn’s Disease (as well as her other issues... she collects them). Yet, somehow, she’s got a great sense of humor about it and won’t let her illness take over her life.
2020-10-16
31 min
My Immune System Hates Me!
Anxiety
Much like with an autoimmune disease, Emily has to manage her anxiety on a daily basis. By eliminating triggering foods and going for lots of walks, she is no longer having 8 panic attacks a day (yes, a day!). And to help her get through the extra stressful days, she’s got her best pal/emotional support animal, Charlie.
2020-10-09
26 min
My Immune System Hates Me!
Mast Cell Activation Syndrome
Pro tip: If you're going into anaphylaxis multiple times a week for months on end, you might have an immunological condition. That's what happened to Megan, Chelsey's boss/best friend. After suffering through constant allergic reactions and using dozens of EpiPens, Megan was finally diagnosed with Mast Cell Activation Syndrome.
2020-10-02
36 min
My Immune System Hates Me!
Sjögren's Syndrome
Natalie has struggled with autoimmune issues for a long time and it hasn't been easy. She's been diagnosed, misdiagnosed, and has even battled cancer while pregnant. Somehow, she's kept an upbeat attitude and isn't letting her illness stop her!
2020-09-25
38 min
My Immune System Hates Me!
Celiac Disease
This episode, Chelsey's friend Jenelle tells us about her experience with celiac disease and how it has affected her. Warning: bowel movements are discussed in this episode, so maybe don't eat while listening...
2020-09-18
34 min
My Immune System Hates Me!
Fibromyalgia
This episode, Chelsey has a super special guest: her mom! Kelley has been struggling with fibromyalgia for over 30 years but has never received appropriate treatment. Why hasn't she been treated? What is fibromyalgia? And will there be juicy mother/daughter drama? Take a listen and find out!
2020-09-11
29 min
My Immune System Hates Me!
Rheumatoid Arthritis
Welcome to My Immune System Hates Me! Chelsey was recently diagnosed with Rheumatoid Arthritis and is curious to learn more about overcoming chronic illness. In this introductory episode, you'll get to know your host and how she was eventually diagnosed with this autoimmune disease.
2020-09-04
11 min