Shows
The Hurdle2Hope® Show39. Hurdle2Hope®️ Stories: Meet Clare Reilly Living With MSHow can you embrace the outdoors and adventure when living with a condition like MS?In this episode of Wellbeing Interrupted, I chat with Clare Reilly, a passionate advocate for Multiple Sclerosis (MS) awareness. Diagnosed in 2017, Clare shares her journey of navigating the emotional and physical challenges of MS while continuing to live a fulfilling life. Clare has embraced her new reality and found a renewed sense of freedom and independence. A lover of the outdoors, Clare revisits her passion for camping and even returns to Tasmania’s Overland Track, this time in her wheelchair. 2024-10-0242 min
TransqatTransqat Episode 39: Rev. A. Reilly PaigeClare talks with the Rev. A. Reilly Paige from First Church in Guilford about faith, queer bodies, and the difference between Buffy the Vampire Slayer and Mighty Morphin' Power Rangers.Transqat is a safe space for respectful conversations about trans issues and queer people. Learn more at transqat.com.Show NotesRev. A. Reilly PaigeFirst Church GuilfordJames Blackstone Memorial LibraryKelly Latimore IconsEmma ThompsonStranger...2023-11-1751 min
Resilience MindsetWhispers of Resilience Our MS Stories Podcast S3 EP 21 - Clare ReillyClare Reilly (she/her) was diagnosed with Multiple Sclerosis (MS) in April 2017. With a background in outdoor education, Clare loves spending time outdoors. Clare lives on the Bellarine Peninsula, near Geelong, with her husband and son. Clare explores various arts and crafts, is passionate about environmental sustainability and enjoys sharing good food with loved ones. She is an advocate for those with MS and chronic illnesses, sharing thought-provoking posts on social media and hosting the podcast MS Understood. Clare's podcast has nearly 100 episodes, providing hope and understanding to newly diagnosed individuals and their...2023-09-2026 min
Menace to SobrietyI Was a Secret Drinker with Clare PooleyAddiction and alcoholism can take many shapes and forms, yet addicts' experiences can be strikingly similar and, in this episode, Daniel is joined by Clare Pooley, an ex-secret drinker to open up about her experience of alcoholism and sobriety. Clare talks about her viral blog “Mummy was a Secret Drinker”, her background in advertising and how that world fed her addiction, as well as how she has remained sober for over 7 years. Clare also talks about her memoir “The Sober Diaries” and her recent New York Times Bestseller book “The Authenticity Project”. CHECK OUT DAPPERS upcoming tou...2023-02-021h 03
MS UnderstoodSeeing yourself reflected in patients with chronic care nurse ChrisToday on MS Understood we chat with Chris. We talked about the skewed view of disease in the world but particularly when working as a chronic care nurse working with people who are quite debilitated from their multiple sclerosis diagnosis. Living with MS and working in that space is curious and a constant reminder to Chris that is really is a spectrum disease.
We talk about the guilt that arises in our relationships of not being able to do what we once did before diagnosis.
We also talk about toxic positivity and being in denial...2022-08-2136 minMS UnderstoodDeciding on HSCT as Treatment for multiple sclerosis with VictoriaOn today’s episode of MS understood I chat with Victoria, an English expat living in Hong Kong. Victoria talks about her journey to deciding to have HSCT, how her symptoms show up now and how before she was diagnosed, as with so many of us, her experiences and awareness was only with people who lived with physical symptoms of MS.
Victoria’s mum also has MS, so she has grown up with the disease but at the time for interviewing she hadn’t told her mum.
Victoria shares with us why she decided to start...2022-08-1441 min
Live and Love Your BrandFinding identity in illness with Clare ReillyMS Understood podcast host Clare Reilly shares how she navigates her identity with her chronic illness
Get to know Clare Reilly:
Clare is the host of the MS Understood Podcast, multiple sclerosis advocate and life coach to support women with chronic illnesses. Clare is passionate about creativity, learning and advocacy and loves to go for a swim at the beach most mornings.
Connect with Clare Reilly on the following channels:
Website: http://www.clarereilly.com
Instagram: http://www.Instagram.com/clare.reilly
Product: https://www.etsy.com/au/listing/1180149961...2022-06-2939 min
MS UnderstoodReshare: Difficult Diagnosis of Multiple Sclerosis with Ashleigh RoseMS Understood Listener Survey
Affirm. Affirmation Cards. A dose of daily inspiration for life with a chronic illness
Today on the MS Understood Podcast we chat with Ashleigh Rose, from The A Rose Collective. Ashleigh is a ray of light who shares her MS story on Instagram and her website pretty candidly. Today she shares her difficult diagnosis story. I think story is really important to share how difficult t can be because the initial diagnosis can be such an overwhelming experience and how it's worth finding the team that works for you. Ashleigh chats about how her faith has...2022-05-0146 min
The Pension Confident PodcastE5: The cost of living crisis with Lynn Beattie, Scott Mowbray and Clare ReillyThe Office for National Statistics reported that the price of consumer goods are increasing at the highest rate in almost 30 years. With people having to choose between heating their homes and buying their groceries, what can we do to cope with the current cost living crisis? What are the causes, when will it all be over and how does your pension fit into all of this? Our guests this month are: Personal Finance Expert, Managing Director of Mrs Mummypenny and PensionBee Customer; Lynn Beattie Co-Founder and CCO of Snoop; Scott Mowbray PensionBee’s Chief Engagement Officer; Cla...2022-04-2625 min
MS UnderstoodReshare: Art and MS with Justine MartinMS Understood Listener Survey
Affirm. Affirmation Cards. A dose of daily inspiration for life with a chronic illness
Today on MS Understood we chat with public speaker, resilience coach, artist and medical advocate Justine Martin. We talk about how her life has done a complete 180 since diagnosis, we speak about how art has changed her life, and so much more. I seriously loved her answer to my "what's been the best thing to happen to you because of your MS?', so make sure to stick around to the end of the episode to hear that.
Thank you so much...2022-04-2443 min
MS UnderstoodReshare: Comedy and Multiple Sclerosis with Tim FergusonMS Understood Listener Survey
Affirm. Affirmation Cards. A dose of daily inspiration for life with a chronic illness
Today on the MS Understood Podcast we chat with comedian, actor, writer, screen writing teacher and MS advocate Tim Ferguson. He shares about using MS as your gimmick, why he accepted of his MS, how he gets by day to day, why he decided to disclose his diagnosis to the world, why people should employ with with disabilities and so much more.
Links mentioned:
Tim Ferguson's Book Carry A Big Stick
Ep 5. Nina Crumpton
Thank you so much for listening to today's...2022-04-1737 min
Resilience MindsetResilience Mindset with Clare ReillyClare Reilly is a disability advocate who was diagnosed with Multiple Sclerosis (MS) in April 2017. She is passionate about supporting women going through a chronic illness diagnosis through her advocacy work on the MS Understood podcast, where she talks to experts on multiple sclerosis, either with lived experience or a support or healthcare professional. She also supports women through her peer support coaching and her newly released affirmation cards, AFFIRM a dose of daily inspiration for life with a chronic illness. Clare Reilly's Contact DetailsEma...2022-04-1329 min
MS UnderstoodReshare: Staying Fashionable and Having Multiple Sclerosis with Ardra ShepardMS Understood Listener Survey
Affirm. Affirmation Cards. A dose of daily inspiration for life with a chronic illness
Today on the MS Understood Podcast we chat with Ardra Shephard who shares her MS story through her blog and Instagram Tripping On Air. Today Ardra talks about how bladder and bowl issues effect her, and how they shouldn't be so stigmatised, about why she shares her life so publicly on her blog and Instagram account, about ableism and expectations around love and marriage and the power of media in changing perceptions of people living with disabilities well as so much more.
...2022-04-1042 min
MS UnderstoodReshare: Growing Up Disabled in Australia with Astrid EdwardsMS Understood Listener Survey
Affirm. Affirmation Cards. A dose of daily inspiration for life with a chronic illness
Today on the MS Understood Podcast we chat with interviewer, teacher, writer and advocate Astrid Edwards. We talked about her chapter in the newly published Growing Up Disabled in Australia. She shares talks about trusting yourself when you know something just isn't right in your body, she offers suggestions about how we can make studying more comfortable for students living with chronic illnesses. Astrid shares her incredible list of MS related symptoms and how she now refuses to feel shame in relation...2022-04-0338 min
MS UnderstoodReshare: Comedy and Multiple Sclerosis with Tim FergusonMS Understood Listener SurveyAffirm. Affirmation Cards. A dose of daily inspiration for life with a chronic illnessToday on the MS Understood Podcast we chat with comedian, actor, writer, screen writing teacher and MS advocate Tim Ferguson. He shares about using MS as your gimmick, why he accepted of his MS, how he gets by day to day, why he decided to disclose his diagnosis to the world, why people should employ with with disabilities and so much more.Links mentioned:Tim Ferguson’s Book Carry A Big StickEp 5. Nina CrumptonThank you so much for listening to...2022-04-0300 min
MS UnderstoodFinding Opportunities After A Multiple Sclerosis Diagnosis with Carol Cooke AM PLYToday on MS understood we chat with Carol Cooke. Carol like so many of us had a devastating diagnosis story. Through her story it is evident that mindset really is everything. After Carol was diagnosed she had to stop working and she created a whole new life herself. It's really true for Carol that there is a before and after her MS diagnosis. After her diagnosis she created a huge fundraiser that fund the MS Go For Gold scholarship, she became a Paralympian, she's written two books and is an incredible advocate for multiple sclerosis, What I love most about...2022-03-2753 min
MS UnderstoodNeuro Physiotherapy with Zoe and Rosie from Neurological Physiotherapy GeelongAFFIRM. daily inspiration for life with a chronic illness link
Today I'm chatting with Zoe and Rosie from Neurological Physiotherapy Geelong. We chat about the difference between muscular physio and a neurophysio. If and why you might see both types of physiotherapists. How an individual treatment plan is designed and how a neurophsyio can have a great wholistic understanding of our disease. I loved chatting with these ladies who have such a great overall understanding and kindness around life with MS. I hope you get something out of this chat and if you'd like to get in contact with them...2022-03-2035 min
Why I Am Still StandingGrowing via Motions of MS Grief with Clare ReillySo happy to introduce to you joyful and brave Clare Reilly sharing her motions of grief after being diagnosed with Multiple Sclerosis (MS) in April 2017.
Clare is an Outdoor Educator graduate, a Mum to 7 year old Elliot (who has appeared as a Guest on his Mum's Podcast this month) and wife to Jay.
Clare amplifies how her life has changed from the diagnosis of MS, and basically from the get-go, refusing to let MS define her.
In David Kessler’s book ‘Finding Meaning: The Sixth Stage of Grief’ he mentions “Love and grief are inextricably intertwined.” and “…Healing doesn’t mean the loss d...2022-03-2052 min
MS UnderstoodWorld's Strongest Disabled Man Competitions and Multiple Sclerosis with Dave WalshToday on MS understood we chat with Dave Walsh. Dave was training for able body strong man competition when he got his first MS symptoms. Having family members with MS didn't make Dave's diagnosis any easier. After grieving is love for the strong man competition he discovered disabled strong person events. Turns out this was great for rediscovering himself and steering away from toxic masculinity. He's now set to compete in the worlds strongest person events in Canada in June, and different to the abled bodied events, the disabled events are all self funded. Dave is running a crowd funding...2022-03-1336 min
MS UnderstoodMy Mum Has Multiple Sclerosis with Seven Year Old Elliot ReillyI sat and chatted with my seven year old son about what it's like to have a mum with multiple sclerosis. I was given my diagnosis when Elliot was just two and a half, so it'd really all he has ever known. I also don't have invisible symptoms and can't hide them, so we're very open about MS in our house. This is just Elliot's experience.
Thank you so much for listening to today's episode of MS Understood. You can find me on Instagram @Clare.Reilly. The best thing you can do to support this podcast is click follow on...2022-03-0610 min