Shows
The I Can't Stand PodcastClare Reilly on Wheelchair Meets Wilderness and her Accessible Outdoor AdventureWhen Clare Reilly was diagnosed with multiple sclerosis in 2017, she thought her days of outdoor adventure might be behind her. But the lifelong outdoors lover, podcaster, and mum is preparing to take on something extraordinary; a 1,072-kilometre ride along Western Australia’s Munda Biddi Trail using her off-road wheelchair. In this episode, Clare joins Peta to talk about the quiet courage it takes to attempt something you’re not sure you can do. She shares how Wheelchair Meets Wilderness began as an idea on a vision board, the logistics of tackling the world’s longest off-road cycling route...
2025-11-1729 min
Love Patty Podcast: Genuine Conversations on fertility, family, feminism, and life as a modern female49| Dr Elize O'Reilly Paediatric Allergist. Reflux, CMPA, FPIES, food sensitivities, elimination diets, anaphylaxis and starting solids.Welcome Dr Elize O’Reilly she specialises in paediatric immunology, autoimmune disease and across the full scope of allergic disease including food allergy, eczema, insect and drug allergy. Elize works locally on the Gold Coast and Clare has a personal connection with her as she helped manage George's FPIES allergy. Elize has expertise in managing children where there are concerns that their immune system does not work well, and she appreciates family concerns that have been labeled 'just unsettled baby'. We speak on the 'Red Flags' of food sensitivities in babies and how medical gaslighting exists, albeit with no ma...
2025-11-021h 28
The Hurdle2Hope® Show39. Hurdle2Hope®️ Stories: Meet Clare Reilly Living With MSHow can you embrace the outdoors and adventure when living with a condition like MS?In this episode of Wellbeing Interrupted, I chat with Clare Reilly, a passionate advocate for Multiple Sclerosis (MS) awareness. Diagnosed in 2017, Clare shares her journey of navigating the emotional and physical challenges of MS while continuing to live a fulfilling life. Clare has embraced her new reality and found a renewed sense of freedom and independence. A lover of the outdoors, Clare revisits her passion for camping and even returns to Tasmania’s Overland Track, this time in her wheelchair.
2024-10-0242 min
TransqatTransqat Episode 39: Rev. A. Reilly PaigeClare talks with the Rev. A. Reilly Paige from First Church in Guilford about faith, queer bodies, and the difference between Buffy the Vampire Slayer and Mighty Morphin' Power Rangers.Transqat is a safe space for respectful conversations about trans issues and queer people. Learn more at transqat.com.Show NotesRev. A. Reilly PaigeFirst Church GuilfordJames Blackstone Memorial LibraryKelly Latimore IconsEmma ThompsonStranger...
2023-11-1751 min
Resilience MindsetWhispers of Resilience Our MS Stories Podcast S3 EP 21 - Clare ReillyClare Reilly (she/her) was diagnosed with Multiple Sclerosis (MS) in April 2017. With a background in outdoor education, Clare loves spending time outdoors. Clare lives on the Bellarine Peninsula, near Geelong, with her husband and son. Clare explores various arts and crafts, is passionate about environmental sustainability and enjoys sharing good food with loved ones. She is an advocate for those with MS and chronic illnesses, sharing thought-provoking posts on social media and hosting the podcast MS Understood. Clare's podcast has nearly 100 episodes, providing hope and understanding to newly diagnosed individuals and their...
2023-09-2026 min
Menace to SobrietyI Was a Secret Drinker with Clare PooleyAddiction and alcoholism can take many shapes and forms, yet addicts' experiences can be strikingly similar and, in this episode, Daniel is joined by Clare Pooley, an ex-secret drinker to open up about her experience of alcoholism and sobriety. Clare talks about her viral blog “Mummy was a Secret Drinker”, her background in advertising and how that world fed her addiction, as well as how she has remained sober for over 7 years. Clare also talks about her memoir “The Sober Diaries” and her recent New York Times Bestseller book “The Authenticity Project”. CHECK OUT DAPPERS upcoming tou...
2023-02-021h 03
MS UnderstoodDeciding on HSCT as Treatment for multiple sclerosis with VictoriaOn today’s episode of MS understood I chat with Victoria, an English expat living in Hong Kong. Victoria talks about her journey to deciding to have HSCT, how her symptoms show up now and how before she was diagnosed, as with so many of us, her experiences and awareness was only with people who lived with physical symptoms of MS.
Victoria’s mum also has MS, so she has grown up with the disease but at the time for interviewing she hadn’t told her mum.
Victoria shares with us why she decided to start...
2022-08-1441 min
Live and Love Your BrandFinding identity in illness with Clare ReillyMS Understood podcast host Clare Reilly shares how she navigates her identity with her chronic illness
Get to know Clare Reilly:
Clare is the host of the MS Understood Podcast, multiple sclerosis advocate and life coach to support women with chronic illnesses. Clare is passionate about creativity, learning and advocacy and loves to go for a swim at the beach most mornings.
Connect with Clare Reilly on the following channels:
Website: http://www.clarereilly.com
Instagram: http://www.Instagram.com/clare.reilly
Product: https://www.etsy.com/au/listing/1180149961...
2022-06-2939 min
MS UnderstoodReshare: Difficult Diagnosis of Multiple Sclerosis with Ashleigh RoseMS Understood Listener Survey
Affirm. Affirmation Cards. A dose of daily inspiration for life with a chronic illness
Today on the MS Understood Podcast we chat with Ashleigh Rose, from The A Rose Collective. Ashleigh is a ray of light who shares her MS story on Instagram and her website pretty candidly. Today she shares her difficult diagnosis story. I think story is really important to share how difficult t can be because the initial diagnosis can be such an overwhelming experience and how it's worth finding the team that works for you. Ashleigh chats about how her faith has...
2022-05-0146 min
The Pension Confident PodcastE5: The cost of living crisis with Lynn Beattie, Scott Mowbray and Clare ReillyThe Office for National Statistics reported that the price of consumer goods are increasing at the highest rate in almost 30 years. With people having to choose between heating their homes and buying their groceries, what can we do to cope with the current cost living crisis? What are the causes, when will it all be over and how does your pension fit into all of this? Our guests this month are: Personal Finance Expert, Managing Director of Mrs Mummypenny and PensionBee Customer; Lynn Beattie Co-Founder and CCO of Snoop; Scott Mowbray PensionBee's Chief Engagement Officer; Clare...
2022-04-2625 min
MS UnderstoodReshare: Art and MS with Justine MartinMS Understood Listener Survey
Affirm. Affirmation Cards. A dose of daily inspiration for life with a chronic illness
Today on MS Understood we chat with public speaker, resilience coach, artist and medical advocate Justine Martin. We talk about how her life has done a complete 180 since diagnosis, we speak about how art has changed her life, and so much more. I seriously loved her answer to my "what's been the best thing to happen to you because of your MS?', so make sure to stick around to the end of the episode to hear that.
Thank you so much...
2022-04-2443 min
MS UnderstoodReshare: Comedy and Multiple Sclerosis with Tim FergusonMS Understood Listener Survey
Affirm. Affirmation Cards. A dose of daily inspiration for life with a chronic illness
Today on the MS Understood Podcast we chat with comedian, actor, writer, screen writing teacher and MS advocate Tim Ferguson. He shares about using MS as your gimmick, why he accepted of his MS, how he gets by day to day, why he decided to disclose his diagnosis to the world, why people should employ with with disabilities and so much more.
Links mentioned:
Tim Ferguson's Book Carry A Big Stick
Ep 5. Nina Crumpton
Thank you so much for listening to today's...
2022-04-1737 min
Resilience MindsetResilience Mindset with Clare ReillyClare Reilly is a disability advocate who was diagnosed with Multiple Sclerosis (MS) in April 2017. She is passionate about supporting women going through a chronic illness diagnosis through her advocacy work on the MS Understood podcast, where she talks to experts on multiple sclerosis, either with lived experience or a support or healthcare professional. She also supports women through her peer support coaching and her newly released affirmation cards, AFFIRM a dose of daily inspiration for life with a chronic illness. Clare Reilly's Contact DetailsEma...
2022-04-1329 min
MS UnderstoodReshare: Staying Fashionable and Having Multiple Sclerosis with Ardra ShepardMS Understood Listener Survey
Affirm. Affirmation Cards. A dose of daily inspiration for life with a chronic illness
Today on the MS Understood Podcast we chat with Ardra Shephard who shares her MS story through her blog and Instagram Tripping On Air. Today Ardra talks about how bladder and bowl issues effect her, and how they shouldn't be so stigmatised, about why she shares her life so publicly on her blog and Instagram account, about ableism and expectations around love and marriage and the power of media in changing perceptions of people living with disabilities well as so much more.
...
2022-04-1042 min
MS UnderstoodReshare: Growing Up Disabled in Australia with Astrid EdwardsMS Understood Listener Survey
Affirm. Affirmation Cards. A dose of daily inspiration for life with a chronic illness
Today on the MS Understood Podcast we chat with interviewer, teacher, writer and advocate Astrid Edwards. We talked about her chapter in the newly published Growing Up Disabled in Australia. She shares talks about trusting yourself when you know something just isn't right in your body, she offers suggestions about how we can make studying more comfortable for students living with chronic illnesses. Astrid shares her incredible list of MS related symptoms and how she now refuses to feel shame in relation...
2022-04-0338 min
MS UnderstoodReshare: Comedy and Multiple Sclerosis with Tim FergusonMS Understood Listener SurveyAffirm. Affirmation Cards. A dose of daily inspiration for life with a chronic illnessToday on the MS Understood Podcast we chat with comedian, actor, writer, screen writing teacher and MS advocate Tim Ferguson. He shares about using MS as your gimmick, why he accepted of his MS, how he gets by day to day, why he decided to disclose his diagnosis to the world, why people should employ with with disabilities and so much more.Links mentioned:Tim Ferguson’s Book Carry A Big StickEp 5. Nina CrumptonThank you so much for listening to...
2022-04-0300 min
MS UnderstoodFinding Opportunities After A Multiple Sclerosis Diagnosis with Carol Cooke AM PLYToday on MS understood we chat with Carol Cooke. Carol like so many of us had a devastating diagnosis story. Through her story it is evident that mindset really is everything. After Carol was diagnosed she had to stop working and she created a whole new life herself. It's really true for Carol that there is a before and after her MS diagnosis. After her diagnosis she created a huge fundraiser that fund the MS Go For Gold scholarship, she became a Paralympian, she's written two books and is an incredible advocate for multiple sclerosis, What I love most about...
2022-03-2753 min
MS UnderstoodNeuro Physiotherapy with Zoe and Rosie from Neurological Physiotherapy GeelongAFFIRM. daily inspiration for life with a chronic illness link
Today I'm chatting with Zoe and Rosie from Neurological Physiotherapy Geelong. We chat about the difference between muscular physio and a neurophysio. If and why you might see both types of physiotherapists. How an individual treatment plan is designed and how a neurophsyio can have a great wholistic understanding of our disease. I loved chatting with these ladies who have such a great overall understanding and kindness around life with MS. I hope you get something out of this chat and if you'd like to get in contact with them...
2022-03-2035 min
Why I Am Still StandingGrowing via Motions of MS Grief with Clare ReillySo happy to introduce to you joyful and brave Clare Reilly sharing her motions of grief after being diagnosed with Multiple Sclerosis (MS) in April 2017.
Clare is an Outdoor Educator graduate, a Mum to 7 year old Elliot (who has appeared as a Guest on his Mum's Podcast this month) and wife to Jay.
Clare amplifies how her life has changed from the diagnosis of MS, and basically from the get-go, refusing to let MS define her.
In David Kessler’s book ‘Finding Meaning: The Sixth Stage of Grief’ he mentions “Love and grief are inextricably intertwined.” and “…Healing doesn’t mean the loss d...
2022-03-2052 min
MS UnderstoodWorld's Strongest Disabled Man Competitions and Multiple Sclerosis with Dave WalshToday on MS understood we chat with Dave Walsh. Dave was training for able body strong man competition when he got his first MS symptoms. Having family members with MS didn't make Dave's diagnosis any easier. After grieving is love for the strong man competition he discovered disabled strong person events. Turns out this was great for rediscovering himself and steering away from toxic masculinity. He's now set to compete in the worlds strongest person events in Canada in June, and different to the abled bodied events, the disabled events are all self funded. Dave is running a crowd funding...
2022-03-1336 min
MS UnderstoodMy Mum Has Multiple Sclerosis with Seven Year Old Elliot ReillyI sat and chatted with my seven year old son about what it's like to have a mum with multiple sclerosis. I was given my diagnosis when Elliot was just two and a half, so it'd really all he has ever known. I also don't have invisible symptoms and can't hide them, so we're very open about MS in our house. This is just Elliot's experience.
Thank you so much for listening to today's episode of MS Understood. You can find me on Instagram @Clare.Reilly. The best thing you can do to support this podcast is click follow on...
2022-03-0610 min
MS UnderstoodIron Man and Multiple Sclerosis with Lissette GalarzaToday on MS understood we chat with Lissette Galarza. Lisette was passionate about changing her mindset but working towards small goals and took control of her life. Lisette went from struggling to walk to doing an Iron Man and she shares how she did that. We talk about how maintaining our health is stressful and a full time job.
Thank you so much for listening to today's episode of MS Understood. You can find me on Instagram @Clare.Reilly. The best thing you can do to support this podcast is click follow on Spotify, Subscribe on your other podcast listening...
2022-02-2739 min
MS UnderstoodSex and Multiple Sclerosis with Sexologist Chantelle OttenOn today's episode we chat with Chantelle Otten. Chantelle is a Melbourne based Psycho-sexologist who is passionate about empowering people to feel great about their sexual health, self-esteem, communication and education. Chantelle is well known for her gorgeous voice, her educational Instagram account and her passion for normalising sexuality. She has built an incredible career and business around shattering taboos around sex and supporting people from all walks of life to embrace their sexuality. In this episode we chat about scheduling sex, how our mind is our biggest sexual organ and how, when and why to get in contact with...
2022-02-2035 min
The Tortoise with Brooke McAlaryWhen simple living has to change with Clare ReillyToday's episode is, at its heart, about change. And if there’s something we’ve all experienced over the past two years, it’s been change. Specifically for our listeners, many of us find ourselves having to reframe our definition of "simple living" as the world has changed and so too our vision of slow or simple. Clare Reilly knows exactly this tension. After advocating a slower, simpler, more local life for many years, everything was turned on its head when she was diagnosed with multiple sclerosis - a progressive, neurological disease. In this conversation Clare a...
2022-02-1644 min
MS UnderstoodGenetically Optimistic and multiple sclerosis with Leann StickelToday on MS understood we chat with Leann Stickel. Who works as a life coach with people with MS. She shares her diagnosis story, how she talked to her 4 kids about her diagnosis. She says she's genetically optimistic, how we can learn to be more positive and how her positivity was tested after her diagnosis. Leann is so positive that it's a joy to hear her speak. Hope you get some light out of listening to this episode.
Thank you so much for listening to today's episode of MS Understood. You can find me on Instagram @Clare.Reilly. The best...
2022-02-1334 min
MS UnderstoodWhat is exercise physiology with Mike FitzsimonToday on MS Understood we hear from Mike Fitzsimon who is an exercise physiologist based in Melbourne. He excels at helping and supporting people to move well through life. Throughout this chat we talk about what an exercise physiologist is, why they can help, when we could start going to an EP and the difference between a physiotherapist, an EP and a personal trainer. I started seeing an EP after my chat with Jillian Kingsford Smith and swear by it. If you're considering checking out an EP, I highly recommend listening to this chat with Mike.
Thank you so much...
2022-02-0623 min
MS UnderstoodSome Days and Multiple Sclerosis with Julie StammToday on MS understood we chat with Julie Stamm. Wrote a beautiful book call Some Days. After having rough days and writing letters to her son she turned these heart felt letters into a gorgeous children's book. We spend a lot of time chatting about how we are raising our kids, and the guilt we feel when asking for help. Julie's sister also has MS and she talks about how heaps of people in her grade school or primary school who have been diagnosed with autoimmune diseases. We chat about grief 15 years after diagnosis and how it's ok to grieve...
2022-01-3038 min
Simply Complicated with Katie FordCLARE REILLY - LIFE ALONGSIDE MS Ep. 93Clare Reilly is passionate about wellness and living a simple + wholesome life, but is also living with a chronic illness known as MS, or Multiple Sclerosis. This autoimmune disease is no joke and while some suffer in silence, others' pain and hurdles are visible to the world. That hasn't stopped Clare and her passion to create community. I learned a lot in this weeks ep including
- How to support those who are struggling
- What not to say to someone with a diagnosis
- What actually is MS, how differently it presents f...
2022-01-2730 min
MS UnderstoodPositive Psychology and Multiple Sclerosis with Dr Sally ShawToday on MS understood we chat with Dr Sally Shaw. She is a psychologist who was diagnosed with MS over 20 years ago. Sally works with a lot of people who live with MS, which I think is so great. Imagine seeing a psychologist who understands exactly what you're going through. I loved this chat! We talked about realistic optimism, a phrase I am now absolutely in love with, we talk about finding ourselves post diagnosis and how must people really don't have to find themselves. Sally shares her diagnosis story, which I think is so cool coming from a professional...
2022-01-2353 min
MS UnderstoodMeditation and Multiple Sclerosis with Lexi UffFind the Reassess Your MS interactive assessment tool at reassess.com.au
Today on MS understood we chat with Lexi Uff. We talk a lot about staying aware of our symptoms and keeping an eye on ever the ever changing nature of our disease. We talk about meditation and how that has been the best thing Lexi has added to her arsenal and how we should all find what works for us. I noticed throughout this episode and Lexi agreed that even after 12 years, journeys of acceptance and learning about our diagnosis can move and weave back and forth as...
2022-01-1635 min
MS UnderstoodPrehabilitation and Multiple Sclerosis with Dr Samantha BalistreriToday on MS Understood we are chatting with Dr Samantha Balistreri. She's a physical therapist who works primarily with people who have multiple sclerosis and has even written a book for those wh have a new diagnosis called Breakthrough Multiple Sclerosis: For the Newly Diagnosed and Minimally Impaired. You can find the link check it out in the show notes. In this episode we talk about what prehabilitation is and why it's so important for those of us with MS, how there is primary and secondary fatigue in MS, how important it is to be the team captain of your...
2022-01-0926 min
MS UnderstoodBravery and Multiple Sclerosis with Christy BattaToday on MS understood we chat with Christy Batta. She has a beautiful hand lettering business called Human Plus Kind Co where she makes hand lettering about her MS experience. My favourite quote she shares is Because MS. We talk a lot today about the fears around others expectations of us living with an invisible disease and how this has impacted Christy's experiences. Christy talks about bravery, how there are different types of bravery and how some bravery quotes are really just toxic positivity. Christy so generously shares how she thought she had accepted her diagnosis 10 years ago but is...
2022-01-0235 min
MS UnderstoodMountaineering and Multiple Sclerosis with Katy GlenieOn this episode of MS Understood we have Katy back to talk about how her mountaineering trip went. Her story is really one that makes me want to get up and go, make some sweet goals and start moving towards them. I'm so excited to be able to share her story with you.
Find Katy on Instagram
2021-12-2619 min
MS UnderstoodReframing adventure and multiple sclerosis with Katy GlenieToday on MS understood we chat with Katy Glenie. We cover a lot of things in this episode. Katy talks about how she has a meditation break in the middle of the day, as this allows a mini reset so she can feel refreshed for the afternoon. Katy mentions that she sees her neurophysio over zoom and how well that works. Just as a reminder for those of us who don't have a neuro specific physio in our area. Katy also chats about reframing adventure and her next big adventure. In this chat we talks about her plans to go...
2021-12-1931 min
MS UnderstoodGrief and Multiple Sclerosis with Jo BetzToday on MS Understood we are chatting with Jo Betz, who is giving grief a voice. I first heard Jo's story about loosing her husband suddenly on another podcast and knew that I needed to talk with her for the MS Understood podcast about grief. We talk about the 5 stages of grief and how it's a great initial framework but doesn't list all of the emotions that we go through. We talk about the bullshit 'self care' and how on those days of deep grief it's really important to look after our basic needs. While Jo's experience of grief is...
2021-12-1248 min
MS UnderstoodFinding a team to support your multiple sclerosis with Ashley RatcliffToday on MS understood we chat with Ashley Ratcliff. Soon after Ashley was diagnosed with MS she wrote a part memoir, part self help book, Jesus Year: The first year of the rest of my life after I was diagnosed with MS to provide others with what she needed when she got diagnosed. Ashley is passionate about people being their own advocates, finding a team to support you and about asking for help.
Jesus Year: The first Year of the Rest of My Life After I Was Diagnosed With MS
Ashley Ratcliff Instagram
Clare Reilly Instagram
2021-12-0532 minThe Pension Confident PodcastE1: How to make a positive impact with your pension with Damien Fahy and Clare ReillyIn the first episode of The Pension Confident Podcast we ask the question: can you really help tackle climate change with your pension's investment choices? We also discuss how you may be able to get the equivalent of a £30,000 annual pension income by investing as little as £80 a month. Joining us in the studio are: Founder of Money to the Masses; Damien Fahy PensionBee's Chief Engagement Officer; Clare Reilly Catch up on the latest news, read our episode transcripts or watch on YouTube: The Pension Confident Podcast The Pension Confident Podcast on YouTube Follo...
2021-11-2934 min
MS UnderstoodYoga and Occupational Therapy for Multiple Sclerosis with Alanna from YO-TToday on MS Understood we are chatting with Alanna from YO-T, where she blends the benefits of yoga and occupational therapy interventions. We talk about the difference between occupational therapy and physiotherapy. We talk about mental health support with yoga and the connection to sense of self through this modality. We talk about strengths that Alanna has seen in his clients with multiple sclerosis. She says that sometimes our strengths get ignored.
YO-T website
Dr Gretchen Hawley website
YO-T Instagram
@Clare.Reilly on Instagram
2021-11-2837 min
MS UnderstoodUsing Multiple Sclerosis as a Crutch with Sarah PreissnerFind the Reassess Your MS interactive assessment tool at reassess.com.au
Today on MS Understood we chat with Sarah Preissner. Sarah's story takes us back to when she was
8 years old when she and her mother noticed that her hand writing was messy and she had no
control over it, she was then not diagnosed until the day after her 13th birthday. We talk about how
it grew with her and how grief for her looked so different to what it does for others given that she
was so young. She finds she now grieves for her parents having...
2021-11-2128 min
MS UnderstoodHow to get accepted into the NDIS with multiple sclerosis with Sarah CrookToday on MS Understood we are chatting with Sarah who was my local area coordinator with the NDIS. Today we talk about all things NDIS. She shares tips on how to get initially accepted access into the NDIS, and then talk through the next steps. She answers questions from Instagram like, what's completely unreasonable to ask for, how does she recommend creating a good application, and what's the most outrageous thing she has heard anyone requesting. I know NDIS can be tricky to navigate and I really hope this can help you with your application.
Project Euphoria website
Project Euphoria...
2021-11-1446 min
MS UnderstoodCultural Expectations and Multiple Sclerosis with Lance LugoFind the Reassess Your MS interactive assessment tool at reassess.com.au
Today on MS understood we chat with Lance Lugo. He reached out to me to share his story, as a
man who is Native American/Hispanic it's not a story we hear often. Today is a big one so buckle in.
Lance is so open about his battle with alcohol and how that impacts his MS symptoms. He has two
half sisters who also have MS and since his diagnosis has realised that he could have reached out to
them more before this diagnosis. We talk a bit...
2021-11-0749 min
MS UnderstoodMS Physiotherapy with Dr Gretchen HawleyToday on MS Understood is the first episode where I chat with someone doesn't have MS but can provide support to those who do. In the online MS community DR Gretchen Hawley needs no introduction. She is a physical therapist or physiotherapist who has trained specifically to support those with multiple sclerosis.
We talk about how improving walking can mean different things to different people, how preventative physiotherapy is so important, we talk about neuroplasticity and how our brains can find new pathways to send the messages, we also talked about how this process of improvement can take a long...
2021-10-3133 min
MS Understood12 Months of the MS Understood Podcast with host Clare ReillyToday is an interview with, well, me. When I interviewed Stephen way back when I started the podcast, we got off the recording he offered that if I ever wanted to be interviewed myself then he would be honoured to do that. So I reached out to him for my 12 month anniversary of starting the podcast to interview me.
In today's episode we talk about how the podcast has gone over the 12 months and tips that I've learnt from others while doing the podcast, how I feel about famous people getting diagnosed with MS, how having funding from the NDIS...
2021-10-2442 min
MS UnderstoodDiagnosed with MS during a pandemic with Rachel ReusToday on MS understood we chat with Rachel Reus. Rachel tells a story that will be all too common these days, being diagnosed during lockdown. We talk about having never met her neurologist in person. How she was diagnosed after having an epileptic fit. She yet another person living with the diagnosis of multiple sclerosis who has no symptoms. And we talk about her desire to have kids and how MS impacts how she looks at the future.
Multiple Sclerosis Mamas with Clarissa Hidalgo
Pregnancy, Breast Feeding and Multiple Sclerosis Clare Wilkin
Thank you so much for listening to today's...
2021-10-1726 min
MS UnderstoodPreventative Health, zero symptoms and multiple sclerosis with Dannii OrawiecToday on MS understood we chat with Dannii Orawiec. Dannii is an Emotional Health & Expression Coach; Holding her Bachelor of Health Science in Psychology and trained in emotional & energetic clearing, she now marries science with energetics to support epic healing and change for her clients. Her life mission is to show people that speaking their heart and showing their true selves - whether it's in the bedroom or the boardroom - can be safe, and create incredible depth, trust and intimacy in their relationships. We had a beautiful conversation about finding the diet that works for you, we talk about...
2021-10-1050 min
MS UnderstoodMusic and Multiple Sclerosis with Cara MolloyToday on MS understood we chat with Cara Molloy from Derry in the north of Ireland. When Cara was dealing with her per diagnosis symptoms she was living in London working in the career field of her dreams in the entertainment industry. Since moving back to Ireland because of both covid and her diagnosis she has started volunteering as a music therapist as is loving it. Throughout this chat Cara talks about having no zero days, a concept that I love, where she aims to do something, just one thing every day. She also talks about how she hasn't yet...
2021-10-0339 min
MS UnderstoodHolistic Modalities and Pharmaceutical Medication and Multiple Sclerosis with Bridge BotelhoToday on MS understood we chat with Bridget Botelho. She is a certified integrative health practitioner who helps women with autoimmune issues intuitively rebalance their bodies to reclaim their energy and power. After her own personal journey living with Multiple Sclerosis she became inspired to be a health practitioner. Today we talk about supporting ourselves through a holistic approach, how everyone is so different in what their body needs and how Bridget uses holistic modalities and takes pharmaceutical medication for her MS. Bridget talks about how long it took her to develop acceptance after being diagnosed at 17, and shares an...
2021-09-2647 min
MS UnderstoodA Stroke or Multiple Sclerosis with Leanne RobsonGet my 10 tips to living the simple life with a chronic illness ebook here - http://www.Clarereilly.com/newsletter
Today on MS understood we chat with Leanne Robson. Leanne is a mum of three girls who was diagnosed with multiple sclerosis in 2020. Leanne started having symptoms four years ago and had heaps of visits to the doctors regarding that, she was told her MRI was clear and that she had possibly had a stroke. Early in 2020, after having numbness down one side she ignored it because she had been brushed off so many times before. Finally she was diagnosed...
2021-09-1930 min
MS UnderstoodStressful Jobs and Multiple Sclerosis with Edie SohigianGet my 10 tips to living the simple life with a chronic illness ebook here - http://www.Clarereilly.com/newsletter
Today on MS understood we chat with Edie Sohigian. Edie was working as a vice principal when she was first diagnosed with multiple sclerosis, a high powered, stressful job and she had a stressful home life growing up and was unable to tolerate things very well. Throughout this chat about many things in this episode. Edie chats bout how and why her pool has been a life saver. How stress is one of her top triggers, and the things she's...
2021-09-1242 min
MS UnderstoodFitness and Multiple Sclerosis with Kate WainGet my 10 tips to living the simple life with a chronic illness ebook here - http://clarereilly.com/newsletter
Today on MS understood we chat with Kate Wain a passionate MS advocate who believes that the more we talk about our illness the more understanding there will be in the world. Throughout this lovely chat Kate talks about her passion for fitness and how she's fitter now then before her diagnosis. About how the MS community is one of the best things to come from her diagnosis, something echoed by some many guests on the podcast. We also chat about...
2021-09-0528 min
MS UnderstoodTo Disclose Your Multiple Sclerosis Diagnosis or Not with Fatima MeseToday on MS understood we chat with Fatima Mese is a hard working mum of two young-ins who works in the disability space as an NDIS support coordinator. Fatima has lived with her multiple sclerosis diagnosis for 10 years and while it's a part of her, she's so much more than her MS, as we all are. Today we chat about why Fatima didn't want to disclose her diagnosis and why she eventually decided to, we chat about different medications and how they effected her differently, and she shares some tips on how she lives her best life, and fits exercise...
2021-08-2931 min
Woman CEO PodcastClare Reilly >> Living a simple life with a chronic illness and disabilityWelcome back to the Strip. On today’s episode we welcome Clare Reilly to Strip. Clare is a mum and podcast host who loves simple living, making food from scratch, reducing waste and keeping chemicals out of her home. On this episode of The Strip, Clare tells us about her journey, how she has striped back her layers and found herself. After receiving her own diagnosis of Multiple Sclerosis, Clare created her own podcast, MS Understood, to hold space for people who have been effected by MS, whether that be someone who lives with it, a family member, spouse, nu...
2021-08-2936 min
MS UnderstoodSharing Lived Experiences on Rethink MS with Jessica WorsleyToday on MS understood we chat with Jess who is one half of Rethink MS. We chat about the life changing time of becoming a new mum and then having an MS diagnosis so soon after that. Jess shares how she's navigated the diagnosis process as part of the LGBTQI+ community and the assumptions made by medical professionals. Jess talked about Rethink MS the live stream podcast she and her friend started to share their lived experiences and what life is like for them with MS. Jess also talks about introducing medicinal canabis to her medical arsenal and how it's...
2021-08-2237 min
MS UnderstoodTeaching and Multiple Sclerosis with Elise OsmandToday on MS understood we chat with Elise from msbreakingbarriers on Instagram. Elise was diagnosed with multiple sclerosis within seven hours of her first symptoms in Athens, Greece. She talked about the huge difference between getting diagnosed in Greece and then having to come home to Australia and get diagnosed again. We talk a lot about medical gaslighting, which is not something that I have experienced. Elise talked about how her symptoms weren't taken seriously and she was told she was depressed. We talk about the amount of lesions versus the location of the lesions makes the biggest impact. We...
2021-08-1554 min
MS UnderstoodHow life with multiple sclerosis compares to what you imagined with Annette EvansToday we chat with Annette Evans. As a relatively private person Annette reached out to share story on MS Understood, after listening to the podcast and getting something out of each one. She thought that if she's got so much out of it, then someone might get something from her story. We chat about being a registered nurse and how that impacted her awareness around her diagnosis. We also talked about why Annette and her family decided it was time for her to stop work. Soon after her diagnosis Annette and her fiancé at the time decided to return home f...
2021-08-0838 min
MS UnderstoodMultiple Sclerosis Mamas with Clarissa HidalgoToday on MS understood we chat with Clarissa Hidalgo. Clarissa received her yoga teacher certification in 2017. She had begun practicing after her diagnosis of Multiple Sclerosis in 2010, and experiencing mobility issues in 2012. After becoming pregnant in 2015 she discovered and fell in love with prenatal yoga. He speciality has become accessible yoga, working with those of all bodies and abilities. After the birth of her second daughter Clarissa founded Multiple Sclerosis Mamas, a facebook support group for women with multiple sclerosis. And is currently creating a paid wellness program for women with multiple sclerosis. Throughout this chat we talked about being...
2021-08-0150 min
MS UnderstoodMedicinal Cannabis and Multiple Sclerosis with Marianna GaulToday on MS Understood we chat with Marianne Gaul. Marianne reach out to me after I shared Beardo's episode where we talk briefly about medical cannabis. I loved being able to continue the conversation MC and ask all of the questions. She explained the difference between off the street marijuana and medicinal cannabis. We also chatted about Peer Support through MS Connect in our states and how you can easily get incredible one on one or group support. Marianne talked about how she managed her huge work days, how changing medication changed her life and how her family support has...
2021-07-2539 min
MS UnderstoodMorning News Anchor Katie Collett Talks Multiple SclerosisToday on MS Understood we chat with news anchor Katie Collett. She shares about managing her MS symptoms while being a morning news anchor and why she talks about her MS symptoms with her viewers, she talks about what a day looks like for her and how she manages her fatigue, we've both got seven year old boys and we talk about talking with them about our multiple sclerosis. It was such a lovely chat, I really hope you enjoy it.
I'm honoured to be able to share stories from people living with MS from all works of life from...
2021-07-1834 min
MS UnderstoodHigh Heels and Multiple Sclerosis with MS Fighter Kelly WrightToday on MS Understood we chat with MS advocate Kelly Wright. Kelly's mum passed away from a common cold due to weakness caused by her multiple sclerosis, when Kelly was just 16. Even after having lived with it for her life, she still put her symptoms down to a pinched nerve. Kelly moved across the world to manage her temperature sensitive, and wears the highest heals she can because her feet are numb. In fact she wore gorgeous red stilettos on a fundraising walk across the Great Wall of China. We talk about how the grief of diagnosis never goes away.
...
2021-07-1142 min
MS UnderstoodRepresentation and Multiple Sclerosis with the Multiple Sclerosis Fashionista Roxy MurrayToday on MS Understood we chat with MS advocate Roxy Murray, she's passionate about Black representation in the MS community and sharing incredible style while having a disability and is a podcaster
We speak about changing the narrative of what the world sees as an MS patient, Roxy was so passionate about having Black representation that she jumped online and started sharing her story, after being diagnosed so young Roxy shares how she followed her creative passions. Roxy shares great tips on how she manages her MS day to day.We talked about the pros and cons of various disability...
2021-07-0443 min
MS UnderstoodMS Hope with Mathew EmbryToday on MS Understood we chat with acclaimed documentary writer, producer and director with a documentary called Living Proof. Mathew Embry is a passionate advocate for people and families who are living with MS after being diagnosed in 1995 today he's symptom free and living an incredible life after his dad, research scientist, Ashton Embry, developed an effective therapy using nutritional strategies to manage the disease.
Mathew has been diagnosed for 26 years. When he was first diagnosed he and his father created one of the first MS 'diets' that he started following within six weeks of his diagnosis. This diet and...
2021-06-2750 min
MS UnderstoodArt and MS with Justine MartinToday on MS Understood we chat with public speaker, resilience coach, artist and medical advocate Justine Martin. We talk about how her life has done a complete 180 since diagnosis, we speak about how art has changed her life, and so much more. I seriously loved her answer to my "what's been the best thing to happen to you because of your MS?', so make sure to stick around to the end of the episode to hear that.
Thank you so much for listening to today's episode of MS Understood. You can find Justine on Facebook at JUZT art Justine...
2021-06-2042 min
MS UnderstoodStem Cell Transplant and Multiple Sclerosis with Aaron MonheimToday on MS Understood we chat with Aaron Monheim. We talk about male incontinence which is something I don't think gets talked about enough, in-fact I don't think there's enough talk in general about men having multiple sclerosis. And on this same topic we also tough on not having knowledge about how the medications can effect male fertility. Aaron goes into some great explanations on HSCT - stem cell transplants and why he's trying to get it and why he can't right now. He talks with so much love about his daughter and how she is the motivation for everything...
2021-06-1348 min
MS UnderstoodMedical Marijuana and Multiple Sclerosis with Matthew 'Beardo' HerakovichToday on MS Understood we chat with Matthew, Beardo, who I met while getting tattooed at Hot Copper Studio in Melbourne. In the studio we bonded over our MS adventures, our meds and I thought his story would be great one to share. He shares about working in active duty military in America, he chats about using meditation and mindfulness and we talk a bit about medical marijuana.
NDIS and Multiple Sclerosis with Nina Crumptom
Sam Harris - Waking Up App
Alan Watts
Constant Pain and Multiple Sclerosis with Stephen Papadopolous
Thank you so much for listening to today's episode...
2021-06-0631 min
MS UnderstoodSpeech Pathology and MS with Annie SnodinToday on MS Understood we chat with Anna Snodin, a speech pathologist who had to experience being a patient in the same setting in which she worked. She makes these super cute enamel pins which you should definitely check out. We talk about work, how her hours have changed and she used the services of MS Limited employment services.
Anatomical Enamel Pins
Find Annie on Instagram @Anatomical_enamels
Thank you so much for listening to today's episode of MS Understood. You can find me on Instagram @Clare.Reilly or @MSUnderstoodPodcast. The best thing you can do to support this podcast...
2021-05-3034 min
MS UnderstoodDiagnosed with Multiple Sclerosis at 11 with Crystal BedoyaToday on MS Understood we chat with Crystal who was diagnosed with MS when she was 11. We chat about what it was like to be diagnosed so young, how she went through college and high school with multiple sclerosis, and how she's found a great community of people living with MS online.
Dr Gretchen - The MSing Link
IGTV with Dr Gretchen
Thank you so much for listening to today's episode of MS Understood. You can find me on Instagram @Clare.Reilly or @MSUnderstoodPodcast. The best thing you can do to support this podcast is click follow on Spotify, Subscribe...
2021-05-2343 min
MS Understood25 Years of Multiple Sclerosis with Yvette Jenkins O'DowdToday on MS Understood we chat with Yvette who was diagnosed with MS over 25 years ago. We chat a lot about how things have changed in terms of medications and support since then. We talk about what things are really important in life, and how Yvette talked to her kids and now her grand kids about living with MS. We talked about the NDIS and why we deserve the financial support. I found this chat super beneficial as someone who is relatively newly diagnosed, and how things may look into the future of me having MS. And I really hope...
2021-05-1651 min
MS UnderstoodDisclosing Multiple Sclerosis to 70k followers with Natalia AncoraToday we chat with Natalia Ancora, we start off straight away chatting about various diets and ways to eat. Natalia chats about her symptoms being brushed off for so many years, she also talks about how coming out with her diagnosis publicly to her almost 70 thousand followers made her feel free and found the her friends were so supportive, and she talks about working for herself with multiple sclerosis.
Thank you so much for listening to today's episode of MS Understood. You can find Natalia on Instagram @NataliaAncora, you can find me @Clare.Reilly or @MSUnderstoodPodcast. The best thing you...
2021-05-0934 min
MS UnderstoodDifficult Diagnosis of Multiple Sclerosis with Ashleigh RoseToday on the MS Understood Podcast we chat with Ashleigh Rose, from The A Rose Collective. Ashleigh is a ray of light who shares her MS story on Instagram and her website pretty candidly. Today she shares her difficult diagnosis story. I think story is really important to share how difficult t can be because the initial diagnosis can be such an overwhelming experience and how it's worth finding the team that works for you. Ashleigh chats about how her faith has helped her to accept her diagnosis. We talk about why she started sharing her MS life online, and...
2021-05-0246 min
MS UnderstoodAccessible Fashion and Multiple Sclerosis with Kelly FlemingToday we chat to Kelly Flemning who shares approachable fashion on Instagram at The Styling Suite by Kelly. In this episode she shares about how she's super into caring for her mental health and how therapy and laughing are key to managing her MS. We chat a lot about getting NDIS funding and how it's expensive have a disability. Kelly talks about working as a stylist and accessible clothes for people with a disability and how having a stylist can help.
NDIS and Multiple Sclerosis with Nina Crumpton
Say Hello by Carly Findlay
Thank you so much for listening to...
2021-04-2528 min
MS UnderstoodWin The Wilderness and Multiple Sclerosis with Emily PadfieldToday we chat with Emily Padfield, who I came across on the Netflix show Win the Wilderness. We chat a little about her time on this intensely physical reality show, but there are no spoilers, so head over to Netflix and check Emily out. I was so excited for this chat. Emily lives a very physical life, even now, running a farm with her partner Mark and we chat a bit about that. We speak about how hard it is to understand other peoples symptoms, let alone those without MS understanding. Emily talks about how when she disclosed her MS...
2021-04-1850 min
MS UnderstoodJust Eat Plants and Multiple Sclerosis with Rebecca StonorToday on the MS Understood Podcast we chat with Rebecca Stonor from @just_eat_plants. She chats about how she has no symptoms now, how she changed her diet quite early in her diagnosis journey, we chat a lot about the Overcoming MS lifestyle
If you enjoyed this chat I would also recommend listening to the episode Overcoming Multiple Sclerosis with Ashley Madden.
Thank you so much for listening to today's episode of MS Understood. Be sure to check out Rebecca on Instagram for her beautiful recipes at @just_eat_plants. You can find me @Clare.Reilly or @MSUnderstoodPodcast. The...
2021-04-1133 min
The Intentional Money Show with Clare WoodBuilding a more inclusive business with Louise O'ReillyIf you are wanting to build a more inclusive business, but you have no idea where to get started, then this episode is for you. In today's episode I chat with Louise O'Reilly, an inclusion and diversity coach, about how to get started in building a more diverse business and how having more inclusion in business, is actually really good for business. Full shownotes at https://clarewood.com/podcast/episode97/
2021-04-0539 min
MS UnderstoodWays to manage brain fog at work and multiple sclerosis with Liliana CubaToday on the MS Understood Podcast we chat with Liliana Cuba we chat loosing the ability to dance and how she's found a way to do it, how she's found great ways to manage her brain fog at work, becoming comfortable with using mobility aids and so much more.
Multiple Sclerosis, the Great Wake Up Call with Jillian Kingsford-Smith
A huge thank you to Monday Distillery for sponsoring this episode, grown-up, sugar free, non-alcoholic drinks.
https://mondaydistillery.com/
Thank you so much for listening to today's episode of MS Understood. You can find me @Clare.Reilly or @MSUnderstoodPodcast. The best...
2021-04-0436 min
MS UnderstoodGrowing Up Disabled in Australia and Multiple Sclerosis with Astrid EdwardsToday on the MS Understood Podcast we chat with interviewer, teacher, writer and advocate Astrid Edwards. We talked about her chapter in the newly published Growing Up Disabled in Australia. She shares talks about trusting yourself when you know something just isn't right in your body, she offers suggestions about how we can make studying more comfortable for students living with chronic illnesses. Astrid shares her incredible list of MS related symptoms and how she now refuses to feel shame in relation to her MS. We had such a full chat where we covered so many topics. I'm absolutely sure...
2021-03-2839 min
MS UnderstoodLoosing friends after MS diagnosis with Steph GaffToday on the MS Understood Podcast we chat with the lovely Steph Gaff. She shares talks about dating and telling new partners about having MS, loosing friends after your diagnosis and finding those who really get you. Steph talks with so much joy about her up coming wedding and her now husband being the best things to come from her diagnosis.
Thank you so much for listening to today's episode of MS Understood. You can find me @Clare.Reilly or @MSUnderstoodPodcast. The best thing you can do to support this podcast is click follow on Spotify, Subscribe on your other...
2021-03-2127 min
MS UnderstoodOvercoming Multiple Sclerosis with Ashley MaddenToday on the MS Understood Podcast we chat with the Ashley Madden. She shares how the first few years of her diagnosis were so rough, how she learnt about additional ways to manage her MS, how her diagnosis changed the course of her life, her beautiful new cookbook, The Plant-Based Cookbook which I am very excited to get my hands on and so much more.
Rise Shine Cook
The Plant-Based Cookbook: Vegan Gluten-free,Oil-Free Recipes for Lifelong Health by Ashley Madden
Overcoming Multiple Sclerosis Lifestyle
Thank you so much for listening to today's episode of MS Understood. You can find...
2021-03-1444 min
MS UnderstoodEssential Oils and Multiple Sclerosis with Deb BoutzetisToday on the MS Understood Podcast we chat with Deb Boutzetis. She shares about the day that is etched into her mind forever, grief in giving up for career, finding the right time to talk to her kids about her having MS, using essential oils to support her MS symptoms and so much more.
Links mentioned:
MS Understood Episode 4 with Jillian Kingsford Smith
Thank you so much for listening to today's episode of MS Understood. You can find Deb on Instagram at @misskiwideb. You can find me @Clare.Reilly or @MSUnderstoodPodcast. The best thing you can do to support this...
2021-03-0744 min
MS UnderstoodWorking for Yourself and Having Multiple Sclerosis with Katie SilverthorneToday on the MS Understood Podcast we chat with Katie Silverthorne. She shares about the relief of finally getting a diagnosis, how travelling made it clear to her as to the best ways to look after herself, how deciding to work for herself was a game changer, and so much more.
Thank you so much for listening to today's episode of MS Understood. You can find Katie on Instagram at @ms_is_my_superpower. You can find me @Clare.Reilly or @MSUnderstoodPodcast. I'm always looking for new guests for the MS Understood podcast, if this is you or someone you...
2021-02-2839 min
MS UnderstoodEp. 17 Kim CroxfordToday on the MS Understood Podcast we chat with Kim Croxford. She shares about relapses soon after pregnancy, deciding to have another child, about going blind for 3 months, how stress is the biggest impact on her MS symptoms, explained the difference between a new attack and a flare and so much more.
Thank you so much for listening to today's episode of MS Understood. You can find Kim on Instagram at @dont_ms_with_mylife. You can find me @Clare.Reilly or @MSUnderstoodPodcast. The best thing you can do to support this podcast is click follow on Spotify, Subscribe on...
2021-02-2133 min
MS UnderstoodEp. 16 Clare WilkinToday on the MS Understood Podcast we chat with Clare Wilkin. She shares about breast feeding and pregnancy while taking medication for her MS, managing the psychological side around the uncertainty of MS and how she hasn't yet talked to her kids about her diagnosis.
Thank you so much for listening to today's episode of MS Understood. You can find me @Clare.Reilly or @MSUnderstoodPodcast. The best thing you can do to support this podcast is click follow on Spotify, Subscribe on your other podcast listening platforms, and share this episode on you Instagram, don't forget to tag MSUnderstoodPodcast.
Thanks...
2021-02-1430 min
MS UnderstoodEp.15 Lindsey HolcombToday on the MS Understood Podcast we chat with Lindsey Holcomb. She shares about how how she used her art to help heal emotionally after her diagnosis, she talks about her amazing project Colors of MS, how she takes an MRI of peoples brains and turns it into a colourful interpretation and how you can get involved.
Links mentioned:
My Colors of MS Initiative
Doctor Gretchen
The Neuro Studio
Thank you so much for listening to today's episode of MS Understood. If you're interested in getting involved in Lindsey's My Colors of MS Initiative please check out the link on...
2021-02-0726 min
MS UnderstoodEp. 14 Tim FergusonToday on the MS Understood Podcast we chat with comedian, actor, writer, screen writing teacher and MS advocate Tim Ferguson. He shares about using MS as your gimmick, why he accepted of his MS, how he gets by day to day, why he decided to disclose his diagnosis to the world, why people should employ with with disabilities and so much more.
Links mentioned:
Tim Ferguson's Book Carry A Big Stick
Ep 5. Nina Crumpton
Thank you so much for listening to today's episode of MS Understood. You can find Tim on Instagram at @therealtimferguson. You can find me @Clare.Reilly...
2021-01-3135 min
MS UnderstoodEp. 13 Amanda CampbellToday on the MS Understood Podcast we chat with Amanda Campbell who shares her positivity on Instagram at AmandaCampbell_Speaker and her Sports Kinesiology business at Bendlikebamboo. She shares about changing her career because of her diagnosis, on eating good food, she shares the supports she uses and how she manages her changing symptoms, and so much more.
Thank you so much for listening to today's episode of MS Understood. You can find Amanda on Instagram at AmandaCampbell_Speaker, or BendLikeBamboo. You can find me @Clare.Reilly or @MSUnderstoodPodcast. The best thing you can do to support this podcast is...
2021-01-2436 min
MS UnderstoodStaying Fashionable and Having Multiple Sclerosis with Ardra ShepardToday on the MS Understood Podcast we chat with Ardra Shephard who shares her MS story through her blog and Instagram Tripping On Air. Today Ardra talks about how bladder and bowl issues effect her, and how they shouldn't be so stigmatised, about why she shares her life so publicly on her blog and Instagram account, about ableism and expectations around love and marriage and the power of media in changing perceptions of people living with disabilities well as so much more.
Thank you so much for listening to today's episode of MS Understood. You can find Ardra at MS...
2021-01-1741 min
MS UnderstoodEp. 11 Beck RaeToday on the MS Understood Podcast we chat with Beck Rae who shares her MS story on Instagram at Beck_makes_ms_her_bitch. She shares about coming out with MS, her partner having to moved away three weeks after her diagnosis, living up to expectations.
Thank you so much for listening to today's episode of MS Understood. You can find Beck at Beck_Makes_MS_Her_Bitch on Instagram. You can find me @Clare.Reilly or @MSUnderstoodPodcast. The best thing you can do to support this podcast is click follow on Spotify, Subscribe on you other podcast listening platforms...
2021-01-1033 min
MS UnderstoodEp. 10 Angie ThomasToday on MS Understood we chat with Angie Thomas. We chat about being newly married, how she talked to herds about her MS and what she would do differently if she could do her diagnosis over again.
Thank you so much for listening to today's episode of MS Understood. You can find me @Clare.Reilly or @MSUnderstoodPodcast. The best thing you can do to support this podcast is click follow on Spotify, subscribe on any other podcast listening platforms, and give a 5 star rating and review and share this episode on you Instagram, don't forget to tag MSUnderstoodPodcast.
Thanks again...
2021-01-0336 min
MS UnderstoodEp. 9 Marti HinesToday on MS Understood we chat with Marti Hines, Film maker, a ceo and all around phenomenal black women. We chat about living with denial about your diagnosis, loosing friends after finding out you have MS, her incredible but long work days and fertility and MS. Marti is in America, and the internet across the waters was a little temperamental, so there are a few bits where the sound is a little broken up, but stick with us, I promise, it's worth it.
Find Marti on Instagram and on Youtube
Find me on Instagram @clare.reilly or @MSUnderstoodPodcast
The best...
2020-12-2738 min
MS UnderstoodEp. 8 Katharine PartonKatharine, a musician and mother got her MS diagnosis just before an international move. Today we talk about little adjustments she's had to make to her career, how some days she's not sure if she'll be able to conduct and hold the button correctly, and how she disagrees with the term invisible illness.
You can find Katharine on Instagram.
You can find me at @clare.reilly or @MSUnderstoodPodcast.
If you'd like to support this show, please follow on Spotify, leave a 5 star review and rating in your favourite podcasting app, and please feel free to share a screenshot or photo...
2020-12-2035 min
MS Understood10 Years to Multiple Sclerosis Diagnosis with Jen WillisJen is a mother, a principal at a Buddhist inspired school and feels if she doesn't walk 10 km in a day she's having a lazy one. We go way back, to 2003, where we met when she was directing Wollangarra and was my boss for a year. Now we share Wollangarra and an MS diagnosis.
It was crazy to hear how long her diagnosis took and lovely to hear how she's doing now.
Find me at @clare.reilly or @MSUnderstoodPodcast on Instagram.
2020-12-1338 min
MS UnderstoodConstant Pain and Multiple Sclerosis with Stephen PapadopolousToday on the MS Understood Podcast we chat with Stephen who was diagnosed with Multiple Sclerosis at just 22. His symptoms of MS really are hidden, from the outside you'd never guess Stephen has MS but he lives in constant pain, when sleeping even hurts. He shares his wisdom about using canabis oil, his amazing job that he got because of having MS and why he puts on a positivity mask.
Thanks so much for listening to the MS Understood Podcast today.
You can find Stephen on Instagram at @StephenPapadopolous.
And you can find me at @Clare.Reilly or at @MSUnderstoodPodcast.
...
2020-12-0634 min
MS UnderstoodNDIS and Multiple Sclerosis with Nina CrumptonToday on the MS Understood Podcast we have Nina from Wheely Good Life on Instagram and Youtube. Nina had been living with Primary Progressive since 2013 and has learnt the best way to have her supports work for her. Today we chat about what Support workers she uses, where she finds them and why that's so important, she talks about why it's so great to use mobility aids and why she loves sharing tidbits of her life online. I found it really beneficial chatting with Nina about the NDIA and I hope you do to.
Find Nina on Instagram and Youtube
...
2020-11-2933 min
MS UnderstoodMultiple Sclerosis, the Great Wake Up Call with Jillian Kingsford SmithToday on MS Understood we have Jillian Kingsford Smith, international journalist, author and MS advocate. We chat about being a the full time job that's healthy human, sharing other peoples stories and the benefit of that, and why Jillian has decided not to be on treatment for her MS.
Find Jillian on Instagram - @jwksmith
Jillian's books - Take20Stories
Get Better Lab podcast
2020-11-2249 min
MS UnderstoodMultiple Sclerosis and Discrimination in the Work Place with Catherine BrooksToday on MS Understood we have Catherine Brooks, Mum of two and lawyer, who is now working in the not-for-profit sector. Catherine shares her story, which is closely linked with her Mum's diagnosis story. Being diagnosed at 21 Catherine didn't let having MS hold her back. Today we chat about taking care of yourself, advice on whether or not to disclose to employers and ways to find freedom.
Find Catherine: @letsmakeitworkbaby
Catherine's book - Let's Make It Work Baby
Overcoming MS
Mindspo Meditation
The Natural Supply co
2020-11-1541 min
MS UnderstoodFatigue Management and Multiple Sclerosis with Emma GiuntiIn todays episode we chat with Emma Giunti, Mum of two young girls, yogi and passionate MS ambassador who is ready to kiss goodbye to MS. Emma was diagnosed 10 years ago and hasn't let her diagnosis get in her way.
Links mentioned in episode:
Find Emma on Instagram - 31 Red Days
Garth McLean Yoga
2020-11-0832 min
MS UnderstoodMy Story with host Clare ReillyIn this episode Clare shares her diagnosis story, what medication she's taking, some of the therapists and supports she uses, the best thing to have come out of having MS for her and her tip to make MS more understood.
2020-11-0120 min
MS UnderstoodMS Understood Trailer - Coming SoonWelcome to MS Understood, a podcast coming soon that'll share weekly interviews with people who are effected by Multiple Sclerosis, be that family members, nurses, doctors or those who have the diagnosis. We all know that MS is a misunderstood disease and that everyone's symptoms are so widely different, and I know that it would have been great to have somewhere to turn after my diagnosis. Here we'll share so many different stories, you may find one that resonates with you. Thanks so much for listening.
2020-10-1900 min
O'Reilly RadarClare Bernard on Discovering, Organizing, and Visualizing Enterprise DataDr. Clare Bernard, a field engineer at Tamr, talks about integrating, cataloging, and preserving metadata.
2015-09-2228 min