Shows
The Collective Mind: A CurePSP PodcastA Hidden Caregiving Crisis With Jennifer LevinAt 32, Jennifer Levin was celebrating her first TV writing credit when her father's PSP diagnosis changed everything. She immediately found herself managing medical appointments from across the country, becoming a healthcare proxy, coordinating care — all while trying to maintain her budding career. She felt completely alone.
Then she discovered a staggering truth: one in four millennials are caregivers. Over 10 million young adults are quietly reshaping their lives around responsibilities they never saw coming, contributing to the $600 billion in unpaid care that family caregivers provide annually across America.
She spoke to CurePSP about founding Caregiver Collective and wri...2025-08-061h 07
Life HappensBridging Care and Community: A Social Worker’s Role at HAPS"I think what people with Parkinson’s also realize they need is that community. Parkinson’s is a long-term diagnosis... they need peer support. And so being able to tune in and lock into a community that understands what they’re going through physically, emotionally, and medically is really important and something that we try and facilitate." ` Celeste Harris, LMSWTitle: Bridging Care and Community: A Social Worker’s Role at HAPSWelcome to another episode of Life Happens with Kim Hegwood! In today’s conversation, Kim sits down with Celeste Harris from the Houston Area Parkinson’s Society. Together, they dive into the vit...2025-07-1018 min
The Collective Mind: A CurePSP PodcastCherishing Each “One More Day” With Chris and MikeWelcome back for Season Two! This season is all about you: our dedicated community members. Your commitment is the glue of our organization, a guiding light that inspires others and grows our network. For community members Chris and Mike, commitment to each other — and to making the most out of every single day — has been transformative. It has allowed them to complete an incredible 118-mile pilgrimage on the Camino de Santiago, successfully advocate for federal legislation in Congress and redefine what partnership looks like in the face of a PSP diagnosis.
Chris was initially diagnosed with Parkinson's in 2015, but...2025-07-0936 min
Brain & LifeAdvocacy and Assistive Technology with Former Representative Jennifer WextonIn this episode of the Brain & Life Podcast, co-host Dr. Daniel Correa is joined by dedicated public servant and former U.S. Representative for Virginia's 10th congressional district Jennifer Wexton. She shares about her journey with progressive supranuclear palsy (PSP) and what she has learned from the PSP community. She also discusses the importance of advocacy and the use of assistive technology, including the AI-generated voice she uses during this episode. Dr. Correa is then joined by Dr. Janis Miyasaki, a movement disorders specialist who practices at the University of Alberta in Canada where she is the head of...2025-06-051h 10
The Collective Mind: A CurePSP PodcastInvestigating Blood-Based Biomarkers With Dr. Maura MalpettiClinical trials are urgently needed for PSP and CBD. Dr. Maura Malpetti and her team at the University of Cambridge have identified chronic brain inflammation as a key contributor to disease progression, and are developing a blood test for inflammation that will help track the effectiveness of clinical trials and treatments, thus accelerating the development of more clinical trials.
Dr. Malpetti spoke to us about the mysteries of brain inflammation, its role in PSP and CBD and how this research could revolutionize the way we diagnose, treat and understand these conditions.
With support from CurePSP’s Pipe...2025-02-0525 min
Set the PaceUltra Runner and Entrepreneur Randi Zuckerberg On Blazing New TrailsRandi Zuckerberg, yes that Randi Zuckerberg! (entrepreneur and bestselling author) joins Set the Pace this week to describe how her running journey has taken her from 10ks to 250 milers in only two years time, all while she balances her role as a mother of three and a leader in the tech and media industries. Hear about the powerful lessons ultra running has taught Randi about vulnerability, community, and mental toughness and find out how blazing new trails as an entrepreneur prepared her for blazing her own path to ultra running. Also joining for this week’s member moment is Ku...2025-01-231h 03
The Collective Mind: A CurePSP PodcastExploring Mitochondrial Dysfunction With Dr. Kat BowlesTauopathies remain some of the most mysterious diseases in science, with no current treatments available for conditions like PSP, CBD and MSA. Dr. Kathryn Bowles and her team at the University of Edinburgh are studying mutations in the MAPT gene, a known driver of tauopathies, and how these mutations alter mitochondrial function in brain cells. Using cutting-edge 3D organoid models, or “mini-brains” created from patient blood cells, they aim to unravel the complex relationship between tau and neuron survival. Dr. Bowles shares how understanding these mechanisms could open the door to novel treatments for primary tauopathies and prevent neuron death in the...2025-01-0825 min
The Collective Mind: A CurePSP PodcastCelebrating a Historic Year of Advocacy With Jessica and JulieAnyone affected by PSP, CBD or MSA knows the importance of advocating for yourself. After years of limited awareness, 2024 marked a turning point for PSP, CBD and MSA advocacy with the historic passage of the National Plan to End Parkinson’s Act. From Congresswoman Jennifer Wexton’s announcement of her PSP diagnosis to the numerous messages that our community members sent to their local representatives, several factors emerged to create the momentum necessary for this landmark moment.
To reflect on how we got here and what comes next, I spoke with two of CurePSP’s most dedicated advocates: Jessica...2024-12-0459 min
The Collective Mind: A CurePSP PodcastHow to Feel Prepared and Supported With the Flying Solo Support GroupEugenia Aguirre found herself at a crossroads when she was diagnosed with corticobasal degeneration (CBD). Overwhelmed by the rapid lifestyle changes that accompanied her diagnosis, she chose to make the most of every day and fight as hard as she could. Living alone meant managing the disease was a lonely and daunting journey, until she connected with the Flying Solo Support Group, where she met a group of similarly independent individuals. The group offered a space where members could be honest and discuss important topics like social anxiety, coping with symptoms and how to feel prepared as one’s situation ch...2024-11-0640 min
The Collective Mind: A CurePSP PodcastDecoding DNA With Dr. Jessica RexachThe causes of progressive supranuclear palsy (PSP) remain one of the biggest mysteries of the disease. Dr. Jessica Rexach and her team at UCLA have been scouring sequencing data from over 10,000 individuals searching for clues in the DNA that could explain how changes in the immune system might influence why some individuals develop the disease. Dr. Rexach spoke to me about the crucial role that the immune system seems to play in disease progression, the intriguing similarities and differences between PSP and Alzheimer's, and what can be learned from the success of immune system therapeutics in cancer and autoimmune disease.2024-10-0238 min
The Collective Mind: A CurePSP PodcastCare Partner Reflections With Robert B. WeideCaring for a loved one is a grueling journey that no care partner would ever turn away from. Bob Weide did not know what to expect when he started noticing little differences in his wife Linda’s balance and speech. He could not have known that these were the first symptoms of progressive supranuclear palsy (PSP), an uncompromising disease that requires seemingly endless amounts of patience and grace. Bob spoke to me almost two years after Linda’s death on the lessons he learned as a care partner, humor as a coping mechanism and the importance of grieving daily.
R...2024-09-0454 min
The Collective Mind: A CurePSP PodcastIntroducing The Collective MindMeet Oscar and learn more about this original series that will spotlight stories and insights from the CurePSP community and discuss the latest in cutting-edge research. 2024-08-0801 minBrain & LifeFinding Hope and Creating Change: Discussing Alzheimer’s Advocacy with Cynthia Stone and Walt DawsonIn this episode, Dr. Daniel Correa sits down with documentarian Cynthia Stone, and Walt Dawson, lifelong Alzheimer’s advocate and policy expert. Cynthia discusses the creation of Keys Bags Names Words, a documentary film about hope in aging and dementia. Walt shares how his father’s Alzheimer’s diagnosis when he was just ten years old led him to speak out and work towards policy change for Alzheimer’s Disease. Next, Dr. Correa speaks with Dr. Bruce Miller, a behavioral neurologist with the Global Brain Health Institute who studies the underlying mechanisms of neurocognitive disorders and is a world-renowned expert i...2023-12-1446 min
Substantial Matters: Life & Science of Parkinson’sAtypical Parkinsonism Series: Unique Care Needs of PSP, CBD and MSA and Helpful ResourcesConsidered “atypical Parkinsonian syndromes,” over half of people with progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and multiple system atrophy (MSA) are initially misdiagnosed with Parkinson’s disease (PD) due to similarities in early symptoms as well as lack of awareness of these rare, neurodegenerative diseases among many healthcare professionals and the general public. This is the third of three podcast episodes within our atypical parkinsonism podcast series, organized in partnership with CurePSP and designed to address the unique care needs across the disease stages of PSP, CBD and MSA. Jessica Shurer, Director of Clinical Affairs a...2023-10-1732 minSubstantial Matters: Life & Science of Parkinson’sAtypical Parkinsonism Series: Unique Care Needs of PSP, CBD and MSA and Helpful ResourcesConsidered “atypical Parkinsonian syndromes,” over half of people with progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and multiple system atrophy (MSA) are initially misdiagnosed with Parkinson’s disease (PD) due to similarities in early symptoms as well as lack of awareness of these rare, neurodegenerative diseases among many healthcare professionals and the general public. This is the third of three podcast episodes within our atypical parkinsonism podcast series, organized in partnership with CurePSP and designed to address the unique care needs across the disease stages of PSP, CBD and MSA. Jessica Shurer, Director of Clinical Affairs a...2023-10-1732 minSubstantial Matters: Life & Science of Parkinson’sAtypical Parkinsonism Series: Treatment and Interdisciplinary Approach to CareConsidered “atypical Parkinsonian syndromes,” over half of people with progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and multiple system atrophy (MSA) are initially misdiagnosed with Parkinson’s disease (PD) due to similarities in early symptoms as well as lack of awareness of these rare, neurodegenerative diseases among many healthcare professionals and the general public. This is the second of three podcast episodes within our atypical parkinsonism podcast series, organized in partnership with CurePSP and designed to address the treatment interdisciplinary approach of PSP, CBD and MSA. In this second episode of the series, Heather Cianci, Outpat...2023-10-0329 minSubstantial Matters: Life & Science of Parkinson’sAtypical Parkinsonism Series: Treatment and Interdisciplinary Approach to CareConsidered “atypical Parkinsonian syndromes,” over half of people with progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and multiple system atrophy (MSA) are initially misdiagnosed with Parkinson’s disease (PD) due to similarities in early symptoms as well as lack of awareness of these rare, neurodegenerative diseases among many healthcare professionals and the general public. This is the second of three podcast episodes within our atypical parkinsonism podcast series, organized in partnership with CurePSP and designed to address the treatment interdisciplinary approach of PSP, CBD and MSA. In this second episode of the series, Heather Cianci, Outpat...2023-10-0329 minBrain & LifeFamily Stories: Diagnosing a Neurodegenerative Condition This week the Brain & Life podcast collaborates with CurePSP, an organization that works to raise awareness, build community, and find a cure for neurodegenerative conditions like progressive supranuclear palsy (PSP). Dr. Daniel Correa interviews Audrey Stafford, care partner for her husband Jeff Golub who passed away from complications of the condition PSP. Audrey shares her story as a partner navigating a PSP diagnosis and how it impacted her family. Then Dr. Correa welcomes back to the podcast Dr. Alexander Pantelyat, Director of Atypical Parkinsonism Center at Johns Hopkins Medicine. Also joining the discussion is Salin Geevarghese, son and care partner for his mother who...2023-09-1443 minSubstantial Matters: Life & Science of Parkinson’sAtypical Parkinsonism Series: Overview, Diagnosis and PrevalenceConsidered “atypical Parkinsonian syndromes,” over half of people with progressive supranuclear palsy (PSP), corticobasal degeneration (CBD)/corticobasal syndrome (CBS), and multiple system atrophy (MSA) are initially misdiagnosed with Parkinson’s disease (PD) due to similarities in early symptoms as well as lack of awareness of these rare, neurodegenerative diseases among many healthcare professionals and the general public. This is the first of three podcast episodes within our atypical parkinsonism podcast series, organized in partnership with CurePSP and designed to address the overview, treatment and care of PSP, CBD and MSA. In this fir...2023-09-0532 minSubstantial Matters: Life & Science of Parkinson’sAtypical Parkinsonism Series: Overview, Diagnosis and PrevalenceConsidered “atypical Parkinsonian syndromes,” over half of people with progressive supranuclear palsy (PSP), corticobasal degeneration (CBD)/corticobasal syndrome (CBS), and multiple system atrophy (MSA) are initially misdiagnosed with Parkinson’s disease (PD) due to similarities in early symptoms as well as lack of awareness of these rare, neurodegenerative diseases among many healthcare professionals and the general public. This is the first of three podcast episodes within our atypical parkinsonism podcast series, organized in partnership with CurePSP and designed to address the overview, treatment and care of PSP, CBD and MSA. In this fir...2023-09-0532 minBrain & LifeHappening Now in Neurology: Brain Health, Disability Access, and Emerging Science This week, Dr. Daniel Correa brings our listeners on a tour of the American Academy of Neurology’s 75th Annual Meeting in Boston. Dr. Correa interviews researchers about the latest science of neurology on topics like brain health and disability access. Dr. Correa also speaks with Sjögren's Foundation, CurePSP, and the Association of Migraine Disorders about how they support people with neurologic conditions. Additional Resources: CurePSP2023-05-1146 min
Parkinson's Disease Education PodcastParkinson's Disease or NOT Parkinson's Disease?In this episode we will be comparing and contrasting Parkinson's Disease vs Parkinsonism or Parkinson's Plus. There are multiple neurological disorders that mimick the symptoms of PD, but are not PD. Resources you may find helpful: Lewy Body Dementia Association (800) 539-9767 www.lbda.org The Multiple System Atrophy Coalition (866) 737-5999 www.multiplesystematrophy.org Cure PSP: Foundation for PSP, CBD and Related Brain Diseases (800) 457-4777 info@curepsp.org www.psp.org Please be sure to check out our PD education playlist on YouTube in...2022-02-0915 min
Parkinson's Pathway Pals Tuesdays with TeresaEpisode #12 Bobby Hand, Doctor of Physical Therapy, Building Your Team: How a specialized Parkinson's physical therapist can improve quality of life and where to find themBobby is a board-certified clinical specialist in neurologic physical therapy. He graduated with his Doctor of Physical Therapy from the University of the Sciences in Philadelphia. Bobby has served the role of a full-time physical therapist for over seven years and works nearly exclusively within the Parkinson’s community. He is a member of the American Physical Therapy Association and International Parkinson and Movement Disorder Society. In 2018 Bobby was the recipient of the APTA Academy of Neurology Early Career Professional Award and Degenerative Disease Special Interest Group Volunteer Award.He has...2021-10-2641 min
Power Over Parkinson'sWhat is PSP? Understanding this Parkinsonian-like syndromeCurePSP President, David Kemp, discusses how his organization aids those with PSP, the similarities to Parkinson's Disease, and updates on the latest in neurological disease research. To learn how POP is supporting the Parkinson's community, visit us at poweroverpd.org.Support the show2021-04-1433 min
The Douglas Coleman ShowThe Douglas Coleman Show w_ Kathryn Leigh ScottKathryn Leigh Scott:Kathryn Leigh Scott's latest work Now With You, Now Without Out is the main work in a quartet of books she has written about caregiving her late husband through a terminal illness and the challenge to keep their marriage alive and her strength intact throughout. Last Dance was the first book. The Happy Hours, published fall 2017 as a Kindle Single by Grand Harbor, an Amazon imprint, chronicles how she introduced a Happy Hours event every day for friends to drop by in order to keep her husband's spirits up. Now With You was then released...2018-04-0959 minThe Douglas Coleman ShowThe Douglas Coleman Show w_ Kathryn Leigh ScottKathryn Leigh Scott:Kathryn Leigh Scott's latest work Now With You, Now Without Out is the main work in a quartet of books she has written about caregiving her late husband through a terminal illness and the challenge to keep their marriage alive and her strength intact throughout. Last Dance was the first book. The Happy Hours, published fall 2017 as a Kindle Single by Grand Harbor, an Amazon imprint, chronicles how she introduced a Happy Hours event every day for friends to drop by in order to keep her husband's spirits up. Now With You was then released...2018-04-0959 min
On The FinSide2017 Experts Mock Review & 2nd Round Miami Dolphins Big BoardAlright, NFL Draft Fans & Miami Dolphins Fans. Earlier today we released our 2017 Annual Experts Mock (If you missed it... you can find it here: https://www.youtube.com/watch?v=0iHCLxIkP9Y), now Cat & Paul sit down to review the results as well as to shape up a top 5 Big Board for the Dolphins in Round 2 based upon them!Participants in the Mock Draft for 2017 included:- Greg Likens (790TheTicket, Former Host of the FinSiders)- Ian Wharton (Bleacher Report & The Pod)- Alex Bente (TV Producer formerly with Showtime's "Inside the NFL" & NBC...2017-04-2715 min
On The FinSide2017 Annual Experts Mock Draft - w On The FinSideMiami Dolphins & NFL Draft fans alike, our On The FinSide Annual Experts Mock is here! We have a great crop of folks this year!- Greg Likens (790TheTicket, Former Host of the FinSiders)- Ian Wharton (Bleacher Report & The Pod)- Alex Bente (TV Producer formerly with Showtime's "Inside the NFL" & NBC Sports)- Pete Smith (NFL Spinzone)- Rebecca Toback & Anthony Cosenza (Cincy Jungle)- Jeff "LJ" Lloyd (Turn On The Jets Podcast, RSEN Network)- Ryan Day (Big Cat Country & SB Nation)- Brian "Cat" Catanzaro (OTFS Co-Host)...2017-04-2638 min
On The FinSide2017 Miami Dolphins Draft - Cat & Pauls Final Top 5 Dolphins First Round Big BoardMiami Dolphins & NFL Draft fans alike, last month Cat & Paul shared their initial Top 5 Big Board at 22, and with only days remaining til the NFL Draft kicks off, they revisit their big boards to provide a FINAL top 5 Big Board ahead of the draft! Tune in!Let us know YOUR thoughts on the conversation and make sure to like and/or subscribe! You can catch us numerous places, including:iTunes: https://itunes.apple.com/us/podcast/on-the-finside/id1146112484?mt=2YouTube: https://www.youtube.com/c/OnTheFinSideSpreaker: http://www.spreaker.com/user/onthefinside...2017-04-2613 min
On The FinSide2017 Miami Dolphins Draft Guide - Players to Avoid at All CostsMiami Dolphins & NFL Draft fans alike, we've spent a TON of time on the players to look at when the Dolphins are on the clock in Round 1, but in this episode we dive into the players to avoid (and why!). Get ready to love us, get ready to hate us... but we keep it real with who the Dolphins should avoid.Let us know YOUR thoughts on the conversation and make sure to like and/or subscribe! You can catch us numerous places, including:iTunes: https://itunes.apple.com/us/podcast/on-the-finside/id1146112484?mt=2YouTube...2017-04-2510 min
On The FinSide2017 Miami Dolphins Draft Guide - Linebacker ProspectsMiami Dolphins & NFL Draft fans alike, we continue our NFL Draft positional preview series & take a deep dive into the Linebacker position for the upcoming NFL Draft! Chris Kouffman joins us to discuss the prospects at the position. We cover a large number of Linebackers in the draft, discussing players that could come in and start, players that would be solid depth and more!Let us know YOUR thoughts on the conversation and make sure to like and/or subscribe! You can catch us numerous places, including:iTunes: https://itunes.apple.com/us/podcast/on-the-finside/id1146112484...2017-04-2320 min
On The FinSide2017 Miami Dolphins NFL Draft Guide - SafetiesMiami Dolphins & NFL Draft fans alike, we take a deep dive in this episode into the Safety position for the upcoming NFL Draft! Ian Wharton (author of one of the best draft guide's on the market - link below!) joins us to discuss the prospects at the position. We cover a large number of Safeties in the draft, discuss how players like Jabrill Peppers and Obi Melifonwu may or may not fit with the team, discuss the possibilities of moving to a 4-2-5 "Big Nickel" and more!Let us know YOUR thoughts on the conversation and make...2017-04-1617 min
Deep Dish Radio with Tim PowersKathryn Leigh Scott returns with "Last Dance at the Savoy"Actress and author When Kathryn Leigh Scott's husband was diagnosed with progressive supranuclear palsy (PSP), a neurological disease for which there is (so far) no cure, it was a devastating time for both of them, not least because so little is known about the cause or treatment of a disease that affects some 20,000 Americans, a number similar to that of Lou Gehrig’s disease (ALS). Last Dance at the Savoy is both a personal story about Scott's husband, Geoff Miller, the founding editor of Los Angeles magazine, who lived life fully despite having a terminal illness, and a sharing of he...2016-06-0752 min
CaregiverDave.comHow to keep the Romance alive when caring for a spouse, Katheryn Leigh ScottJoin us as Dave, The Caregiver's Caregiver, & co-host, Adrienne Gruberg, (The Caregiver Space), interview actress Katheryn Leigh Scott, author of "Last Dance At The Savoy"), and is also caregiver to her husband, as they discuss, "How To Keep The Romance Alive Caregiving Your Spouse" When Kathryn Leigh Scott's husband was diagnosed with progressive supranuclear palsy (PSP), a neurological disease for which there is (so far) no cure, it was a devastating time for both of them, not least because so little is known about the cause or treatment of a disease that affects some 20,000 Americans, a number similar to that...2016-04-0754 min
How to keep the Romance alive when caring for a spouse, Katheryn Leigh ScottJoin us as Dave, The Caregiver's Caregiver, & co-host, Adrienne Gruberg, (The Caregiver Space), interview actress Katheryn Leigh Scott, author of "Last Dance At The Savoy"), and is also caregiver to her husband, as they discuss, "How To Keep The Romance Alive Caregiving Your Spouse"
When Kathryn Leigh Scott's husband was diagnosed with progressive supranuclear palsy (PSP), a neurological disease for which there is (so far) no cure, it was a devastating time for both of them, not least because so little is known about the cause or treatment of a disease that affects some 20,000 Americans, a number similar to that...2016-04-0755 min
eCareDiary Caregiver Radio ShowsAssisting Families Struggling Against Atypical Parkinsonian DisorderseCareDiary will interview Trish Caruana, Vice President of Programs and Education at CurePSP, an international non-profit organization that funds research and provides education and support for people suffering from atypical Parkinson’s disorders.2014-05-2029 min