Shows
Litter of Kings & Friends PodcastSeason 3, episode 12 - The return of the courgette and where did all the whistling go?Get ready for a thrilling Season 3 finale that stretches beyond Colchester and dives deep into the wider music scene! Justin and Peter are back, venturing out to uncover the stories that shape the vibrant world of original music in their part of East Anglia.Peter sits down with Seymour Quigley, the voice of the Bury St. Edmunds' music scene, to unravel the secrets behind Horse Party and the music scene they emerged from. Meanwhile, Justin catches up with Danny Hiles, the visionary behind Musicians Supporting the Homeless, as they explore the inspiring origins and impactful work of...2024-08-291h 01
TransplantLyfe brought to you by LyfebulbBonding Through the Transplant Journey with Danny HilesAlisha, a two-time liver recipient, sits down with Danny Hiles from the Transplant Strong podcast to discuss being inspired, connecting, and bonding with other transplant recipients worldwide.2024-08-0122 min
Danny ChatsDanny Chats Ep33 Wilson's Disease; Special Guest Margaret ElizabethDanny Chats Ep33 features special guest Margaret Elizabeth.
In this episode, Margaret tells us how in her early twenties, Wilson's Disease left her fighting for her life.
Over a very short period, Margaret became so ill she could barely walk, write or feed herself. As you can imagine, this was a hugely worrying time for her and her family.
Once the doctors had diagnosed Margaret with Wilson's Disease, she recalls how she had to dig deep and find her inner strength and determination to get her life back. ...2021-10-1831 minDanny ChatsDanny Chats Ep32 Wilson's Disease; Special Guest Emilia QuezgoDanny Chats Ep32 Wilson's Disease; Special Guest Emilia Quezgo.
My guest Emilia is from Mexico and she talks to me about her experience of being diagnosed with Wilson's Disease and how she has struggled to get the correct medication.
The main Wilson's Disease medications are not available in Mexico so Emilia has had to apply for a special permit and gets them from Canada or America.
As many of you will know, being without medication can be deadly to a Wilson's Disease patient so not having medication...2021-10-1834 minDanny ChatsDanny Chats Ep31 Wilson’s Disease; Special guest Caroline TancredyDanny Chats Episode 31 features special guest Caroline Tancredy.
In this episode Caroline tells me how Wilson's Disease affected her and her twin sister Marry, who sadly lost her life before being diagnosed. Caroline was asymptomatic but when tested for Wilson's Disease she still had very high copper levels and was put on medication immediately. Some of this medication Caroline took had side effects and she tells me more about this.
This is the first Wilson's Disease chat I have done where we go into more detail about...2021-09-2841 minDanny ChatsDanny Chats Ep 30 Wilson's Disease; Special Guest Jaskaran SinghDanny Chats Episode 30 features special guest Jaskaran Singh.
Jaskaran was diagnosed with Wilson's Disease in March 2017 but before that his Doctors had miss diagnosed him with Bipolar. Its very common for WD patients to be miss diagnosed at first as the symptoms also match up with many other diseases and illnesses.
Once on the medication, Jakarans copper levels started to drop but he still has many of the neurological effects.
Jakaran is a hugely positive and inspirational person who has been making videos on his Youtube...2021-09-1930 min
Danny ChatsDanny Chats Ep29 Liver Transplant & Glycogen Storage Disease; Special Guest Elisha EmeraldDanny Chats Episode 29 features special guest Elisha Emerald.
Elisha was diagnosed with Glycogen Storage Disease when she was 4 months old and this meant having lots of treatment and constantly having to worry about her health.
When Elisha reached her 20's the Doctors told her she would not live for much longer without having a liver transplant.
Elisha's brother became a living liver donor to her but unfortunately after 4 days Elisha needed another transplant.
I'm pleased to say Elisha is stable now and she is...2021-08-0122 minDanny ChatsDanny Chats Ep 28 Heart Transplant & Heartfelt help foundation, Special Guest Denise RedekerDanny Chats Episode 28 features special guest Denise Redeker.
Denise had a heart transplant in 2018 and is very open about her journey through recovery.
Denise faced a few obstacles along the way but is now doing really well and is often out running, hiking or holding charity events for Heartfelt Help Foundation.
Denise is the founder of Heartfelt Help Foundation and she tells me about why she set it up and what the the goals are for the future.
It really is a great charity and...2021-07-1834 minDanny ChatsDanny Chats Ep 27 Kidney Transplant, Lyrics For Life, Transplant Games Jeff & Ryan - The Kidney BoyzDanny Chats episode 27 features special guests Jeff and Ryan aka The Kidney Boyz
In this episode Jeff and Ryan tell me about their transplant experience and how that has lad them to join in at the Transplant Games and at Lyrics For Life.
After meeting each other at hospital and then learning that they both lived in the same area Jeff and Ryan began making music together and this where The Kidney Boyz was born.
The Kidney Boyz wrote original songs based around being transplant patients and...2021-06-1333 minDanny ChatsDanny Chats Ep26 Liver Transplant, Special guest Brooke GurradDanny Chats Episode 26 features special guest Brooke Gurrad.
After joining Brooke on her podcast The Bonus Years to talk about my transplant journey it was a pleasure to have her join me on Danny Chats.
Brookes need for a transplant was a huge surprise to her as she had had very good health up until her 20's.
Over a very short time Brookes liver started to fail and although she didn't realise it she would soon in need of a new liver in order to live. ...2021-06-0647 minDanny ChatsDanny Chats Episode Ep 25 Wilson's Disease; Special Guest Jareb GutierrezDanny Chats Episode 25 features special guest Jareb Gutierrez.
In this episode Jareb tells me about his experience with Wilson's Disease, like me Jareb was diagnosed in his early teens.
Like most Wilson's Disease patients the diagnosis took some time but one Jareb was diagnosed he was soon put onto medication.
Jareb has been able to live a happy stable life since being on the medication and over the years he has developed a passion for photography.
Jareb Instagram - @jnggtzphotography
2021-05-2113 minDanny ChatsDanny Chats Ep 24 Heart Transplant; Special Guest Hannah Sharma.Danny Chats Episode 24 features special guest Hannah Sharma and we are talking about heart transplants.
Up until 2019 Hannah had had no real bad health issues in her words she was living her life.
Then during 2019 she had a bout of Norovirus and that was getting worse and worse but the GP's kept giving her antibiotics and that's all. Hannah became so ill she had to move back to her parents house and from there she ended up in A&E and then admitted to hospital.
2021-05-1637 minDanny ChatsDanny Chats Ep 23 Lung Transplant; Special Guest Rachel McGrorryDanny Chats Episode 23 features special guest Rachel McGrorry and we are talking all things Lung Transplant.
Rachels medical story starts when she was just 4 years old and she was diagnosed with Rheumatoid Arthritis.
The doctors did not think this would be an issue for Rachels organs but in 2011 Rachel got pneumonia and from then on she started to develop problems with her lungs and the doctors started to do more testing.
After having a lung biopsy it was evident that Rachel would need a lung transplant. 2021-05-0738 minDanny ChatsDanny Chats Ep 22, Wilsons Disease; Special Guest Linda SchwebkeDanny Chats Episode 22 features special guest Linda Schwebke who is possible the oldest surviving Wilsons Disease Patient.
Linda's Wilson's Disease diagnosis came in 1974 after they had run many other tests on her due to being ill.
The diagnosis came after Linda was sent for an eye test and the optometrist noticed the Kayser-Fleischer rings (copper rings) in her eyes.
At this time there had been very few patients diagnosed with Wilson's Disease so as you could imagine Linda was the talk of the town for all...2021-04-1135 minDanny ChatsDanny Chats Ep 21, Double Liver and Kidney Transplant; Special Guest Aaron Jackson.Danny Chats Episode 21 features special guest Aaron Jackson.
Aaron was born with Biliary Atresia which is a disease that affects the bile ducts and in 2017 he started to become ill, forcing him out of work. Then on Nov 10th 2019 Aaron ended up in ICU with 5% liver function and he doesn't remember going to hospital, he was put to sleep and woke up on Nov 19th very confused as you would imagine.
Aaron was sedated again over Thanks Giving and he received his first liver transplant...2021-04-1128 minDanny ChatsDanny Chats Ep 20, Liver Transplants & The Transplant Games; Special Guest Jillian BestDanny Chats Episode 20 features special guest Jillian Best.
Jillian joins us from Canada and like all transplant patients she has an incredible story to tell.
Not only has Jillian had a liver transplant her mother has also had two liver transplants in her lifetime.
Jillian has not let having a transplant slow her down at all, since having her operation she has got back into swimming again. Jillian has now competed in a couple of the World Transplant Games and in...2021-03-1433 minDanny ChatsDanny Chats Ep 19, Liver Transplant & The Transplant Games; Special Guest Thomas StokesDanny Chats Episode 19 features special guest Thomas Stokes.
Thomas contracted hepatitis C which caused liver damage and eventually lead to his liver developing a Cancerous tumour. Thomas then needed a Liver transplant to save his life in 2017.
Thomas was a keen runner before his operation and kept up the training through his transplant process, he makes a good point in saying the fitter you are before the operation the better and faster your recovery will be after the liver transplant.
Thomas was soon back on his feet...2021-03-1438 minDanny ChatsDanny Chats Ep18, Liver Transplant & Transplant Games; Special Guest Nick StonehouseDanny Chats Episode 18 features special guest Nick Stonehouse.
Nick's liver failure came on extremely fast and unexpected during a time that was already very hard for him and his family. Luckily Nick got a transplant in time and he is able to tell me his story.
During this chat we talk about writing to the donors family and Nick tells me how he has meet his donors family at a Transplant Games event, as you could imagine that was a very emotional day all round.
We go into more...2021-02-2108 min
The Bonus Yearswhen your liver fails | a conversation with Danny HilesThis week Brooke is chatting with Wilson's disease survivor and liver transplant recipient Danny Hiles from the UK. You'll hear some talk of pranks, poo, and Cheetos, as well as some great advice on waiting for transplant and recovery. We also discuss what it's like to be high-risk during a global pandemic and how that affects one's mental health. Support the showPlease subscribe & rate our podcast. Every positive review helps us share more stories of connection and hope with the world. Website Instagram Facebook Youtube 2021-02-1246 minDanny ChatsDanny Chats Ep 17, Transplant and Transplant Games; Special Guest Tatiana NarveazDanny Chats Episode 17 features special guest Tatiana Narveaz.
In this episode Tatiana tells me about how she was being treated for a cancerous tumour for 2 years with Chemo before the doctors made the discovery that the tumour was not actually cancerous.
Tatiana describes this as a huge relief as it then meant she was eligible for a Liver Transplant and luckily she did not have to wait long for the life changing operation.
After having the life saving transplant Tatiana found she had a new passion for...2021-02-0722 min
OUinsider.com/247Sports: Under the Visor Sooners PodcastOUinsider.com/247Sports Under the Visor Podcast: 2021 class done, next three commits in 2022 predictions,5-star Raleek Brown, transfer DL Big Kat Bryant talk, top 10 hoops team & moreLincoln Riley, Alex Grinch, Dennis Simmons, and the Oklahoma staff just closed out their LincUp21 class and met with the media on Wednesday. Our OUInisder.com and 247Sports staffers Brandon Drumm, Collin Kennedy, and Parker Thune talk about that presser. Also, they talk about Riley's thoughts and quotes on why the Sooners took only 16 commits and along with having five incoming transfers so far.The OU staff seems overly excited about players, and early enrollees, like Billy Bowman, Caleb Williams, Ethan Downs, Clayton Smith, Danny Stutsman, Mario Williams, and also pinpointed transfer Key Lawrence...2021-02-052h 00Danny ChatsDanny Chats Ep16 Liver Transplant; Special Guest Transplant Coordinator Amy HoneycuttDanny Chats Episode 16 features special guest Amy Honeycutt.
In this episode Amy tells me about needing a Liver Transplant at just 26 years old due having a bad reaction to medication she was on at that time. Her liver failed and she needed an urgent transplant.
Luckily Amy got her transplant and she recovered well. Now 10years later she is working as transplant coordinator in America which is awesome.
Amy and I discuss the transplant procedure from a transplant coordinators point of view, we talk about going through the...2021-01-3049 minDanny ChatsDanny Chats Ep15 Wilson's Disease; Special Guest Rhonda RowlandDanny Chats Episode 15 features special guest Rhonda Rowland.
In this episode Rhonda tells me about her own experience of being diagnosed with Wilson's Disease and the medication she is now on to control her copper levels. Rhonda is a board member of the Wilson's Disease Association in America so we talk a bit about that and also the great work she has been doing to put a book together about Wilson's Disease.
Rhonda travelled to the UK to talk to Dr Walsh the man that invented the first medication for Wilson's Disease...2021-01-1827 min
A Doctor's ViewOrgan donation - A recipients viewIf you have any comments or suggestions, send us a text message!Danny Hiles, received a liver transplant which saved his life. He was diagnosed with Wilson's disease which is a rare autoimmune disease. He shares his story about receiving his diagnosis and what it means to be an organ recipient.Danny's YouTube page:https://www.youtube.com/channel/UC7XGBd1JjV7U2ddoGeFooiQDanny's Instagram:https://instagram.com/danny_hiles86?igshid=puzgnurvka08Thank you for listening! For more information please visit adoctorsview.ukemail: adoctorsview@gmail...2021-01-1830 minDanny ChatsDanny Chats Ep14 Liver Transplant. Special guest Jessica AliceDanny Chats Episode14 features special guest Jessica Alice.
In this episode Jessica talks about having a liver transplant when she was just 7yrs old and how for many years she was living a good healthy life. Jessica was in desperate need of her transplant so her Mum did what I think any mother would do and become a living donor.
Jessica tells me how getting sepsis in 2019 made her very ill and she spent a lot of time in and out of hospital getting it sorted and getting her immune system...2021-01-1133 minDanny ChatsDanny Chats Ep13 Pacemakers & Heart Transplant: Special Guest Armin MuzafirovicDanny Chats Episode 13 features special guest Armin Muzafirovic. In this episode Armin talks to me about his experience growing up with a pacemaker and eventual needing a heart transplant.
At around 17 years old Armin's heart was 3x as big as a normal heart and he was fitted with his first pacemaker. Armin tells me how he has been shocked back to life on multiple occasions and he even had the defibrillator used on him while he was still awake and conscious.
He had his first heart attack while up...2021-01-0543 minDanny ChatsDanny Chats Episode 12 features special guest Brandon Mouw.Danny Chats Episode 12 features special guest Brandon Mouw.
In this episode Brandon tells me about his journey with Type 1 Diabetes and how having that lead him to needing a Pancreas transplant. Brandon tells me how he was passing out 8-10 times a day before his operation and had to stop driving and give up work all this while having to find $250,00 to fund his transplant. Since his operation Brandon has been doing well but has had a few hospital visits with mild rejection and he tells me about his most recent...2020-12-1927 minDanny ChatsDanny Chats, EP11. Wilson's Disease and Liver transplants; Special Guest Elizabeth Cassidy.Danny Chats Episode 11 features special guest Elizabeth Cassidy. In this episode Elizabeth tells me about her journey with Wilson's Disease and eventually needing a liver transplant.
Like many Wilson's Disease patients Elizabeth went for many years unwell but without having the vital WD diagnosis she was told to go back to the doctors and eventually she was sent for a CAT scan which lead to more tests of the liver and eventually she was diagnosed with Wilson's Disease.
After many years on medication Elizabeth eventually needed a liver transplant and...2020-12-0835 minDanny ChatsDanny Chats, Ep10. Heart Transplant; Special Guest AroojDanny Chats Episode 10 features special guest Arooj.
In this episode Arooj tells me her story of having a heart transplant when she was just a child, we discuss the operation and the medication Arooj needed to take after the Op.
We talk about a range of things including the pros and cons of social media and the importance of taking time for your self.
You can find Arooj on Instagram - @littlemissnewheart If you enjoyed this video or found it interesting please give it a thumbs up...2020-11-1236 minDanny ChatsDanny Chats, Ep9. Special Guest Dr LoyDanny Chats Episode 9 features special guest Dr. Veronica Loy.
Dr. Loy is a transplant hepatologist from America and she kindly answers some of the most common questions people have regarding the liver and liver transplants, questions like 'Does the liver regenerate'.
I love the answer to this question! We also discuses how Drs train for some of their procedures and the different types of biopsy patients have to undergo.
Dr Loy tells me about the longevity of a liver transplant and the different types of...2020-11-0829 minDanny ChatsDanny Chats Ep8. Wilson's Disease; Special Guest Dan GottliebDanny Chats Episode 8 features special guest Dan Gottlieb.
We talk all things Wilson's Disease including diagnosis, having a raw food diet, doing sports, how Wilson's Disease can affect school and work plus loads more.
Check out Dan's website here - https://www.sproga.com
If you would like to join me on an episode or have any questions please feel free to message me on Facebook or Instagram. I have also added a link to my blog where I talk about life before and after a liver transplant. ...2020-11-0840 minDanny ChatsDanny Chats Ep7. Abernathy Syndrome & Liver Transplants; Guest Jamie Delf.Danny Chats Episode 7 features special guest Jamie Delf.
Jamie was diagnosed with a rare condition called Abernathy Syndrome which effects his cognitive function and caused tumours to develop on his liver.
In this episode Jamie talks all about going through different stages of diagnosis and being miss diagnosed for a long time. He explains how tumours developed on his liver and the treatment he was having to try to help fight them.
We also cover having a liver transplant, writing to the donor and life after transplant plus a few...2020-11-0824 minDanny ChatsDanny Chats Ep6. Wilson's Disease & Liver Transplants; Special Guest Beth Trudeau.Danny Chats Episode 6 features special guest Beth Trudeau.
In this episode we talk about miss diagnosis, liver biopsy, clinical depression and recovering from a transplant.
If you enjoyed or found this podcast interesting please give it a thumbs up and subscribe to the channel for future episodes.
If you would like to join me on an episode or have any questions please feel free to message me in Facebook or Instagram. I have also added a link to my blog where I talk about my life with Wilson's Disease and...2020-11-0819 minDanny ChatsDanny Chats Ep5. Wilson's Disease; Special Guest Rob HolcombeDanny Chats Episode 5 features special guest Rob Holcombe.
In this episode Rob and I talk about our experience of Wilson's Disease and the medical health system in the USA. Rob also talks about his diet, relationship and a few other things.
If you enjoyed the podcast or found it interesting please give it a thumbs up and subscribe to the channel for future episodes.
If you would like to join me on an episode or have any questions please feel free to message me on Facebook or Instagram. I have...2020-11-0824 minDanny ChatsDanny Chats Ep4. Wilson's Disease & Liver Transplants; Guest Virginia LeeDanny Chats Episode 4 features special guest Virginia Lee.
In this episode Virginia and I talk about our experience of Wilson's Disease and having a liver transplant, Virginia tells me about her life and we cover relationships, food and the current happenings (Covid-19).
If you enjoyed the podcast or found it interesting please give it a thumbs up and subscribe to the channel for future episodes.
If you would like to join me on an episode or have any questions please feel free to message me on Facebook or...2020-11-0828 minDanny ChatsDanny Chats Ep3. Wilson's Disease; Special Guest Michelle El NemnomDanny Chats Episode 3 features special guest Michelle El Nemnom.
In this episode Michelle and I talk about our experience with Wilson's Disease and Michelle tells me about the struggle she has with getting her medication to Beirut.
If you enjoyed this podcast or found it interesting please give it a thumbs up and subscribe to the channel for future episodes.
If you would like to join me on an episode or you have any questions please feel free to message me on Facebook or Instagram. I have...2020-11-0815 minDanny ChatsDanny Chats Ep.2 Wilson's Disease & Liver Transplants; Special Guest Heather LindsayDanny Chats Episode 2 features special guest Heather Lindsay.
In this episode Heather and I talk about our experience with Wilson's Disease, Heather opens up about her journey from diagnosis to transplant and tells me what its like 29 years later. Its great to share these stories and big thanks to Heather for joining me for a chat.
If you enjoyed this podcast or found it interesting please give it a thumbs up and subscribe for future episodes.
If you would like to join me on an episode or you have...2020-11-0821 minDanny ChatsDanny Chats Ep.1 Wilson's Disease & Liver Transplants; Special Guest Jessica WickersIn this episode I am joined by Jessica Wickers from the USA.
We discuss how Jessica's diagnoses came about and what treatment was needed to control her Wilson's Disease.
Jessica tells us about the Zinc treatment she is currently using and there is a link here - hhttps://www.extremev.com/zinc50mg.html
Discount code WDAGLUZIN
If you enjoyed or found this video interesting then please give it a thumbs up and subscribe to keep up to date with future videos. If you...2020-11-0821 minDanny ChatsDanny Chats My Introduction - Wilson's Disease and Liver TransplantsIn this episode of Danny Chats I talk about being diagnosis with Wilson's Disease (a rare liver condition) at 14yrs old and how my life progressed up until needing a liver transplant in 2019.
After sharing my story on YouTube I had massages from other people with similar stories and this is where the idea to create Danny Chats came from.
The plan is to share as many different inspirational stories as possible so please like, share and comment if you found this interesting. 2020-11-0814 min
Danny ChatsDanny Chats Podcast IntroductionWelcome to Danny Chats, this episode is a little introduction to the podcast and what it is about.
Thank you for listening I hope you find it informative and useful, if you do please remember to like, subscribe and comment on the video. 2020-11-0801 min