Shows
Health Hats, the PodcastGive Me My Damn Data. Then What? Managing Permissions.Your health data belongs to you—but how can you share it safely? Fabienne Bourgeois, MD, exposes the complex truth about privacy, permissions, and data control.
Summary
According to Fabienne Bourgeois, MD, patients want control over their health data, but privacy preferences and constant changes complicate this. The discussion is relevant to people with disabilities, caregivers, and others navigating complex health information. About 80% of people share common privacy concerns that current systems can't address. The remaining 20% need more detailed controls and customization, though balancing autonomy with privacy remains challenging. Ownership means individuals have the right to participate in research and ma...
2025-11-0243 minHealth Hats, the PodcastCatch-22.0: AI Creates Problems It SolvesHealthcare AI isn't a tech problem—it's a mirror reflecting how our health system already fails. Uncomfortable truths from Datapalooza 2025.
Summary
We're asking the wrong questions about AI in healthcare. Instead of debating whether it's good or bad, we need to examine the system-eating-its-tail contradictions we've created: locking away vital data so AI learns from everything except what matters most, demanding transparency from inherently secretive companies, and fearing tools could make us lazy instead of more capable. Privacy teams protect data, tech companies build tools, regulators write rules—everyone's doing their part, but no one steps back to see the whol...
2025-10-0623 minDanny van Leeuwen Health HatsLetter: Trust Me, I’m SkepticalLetters beat emails for trustworthiness. A gullible skeptic reflects on navigating trust in a 50-year marriage, and the energy cost of distrust.
Click here to view the printable newsletter with images. More readable than a transcript, which can also be found below.
Please comment and ask questions:
at the comment section at the bottom of the show notes
on LinkedIn
via email
YouTube channel
DM on Instagram, TikTok to @healthhats
Production Team
Kayla Nelson: Web and Social Media Coach, Dissemination, Help Desk
Leon van Leeuwen: editing and site management
Oscar van L...
2025-09-0704 minHealth Hats, the PodcastLetter: Trust Me, I’m SkepticalLetters beat emails for trustworthiness. A gullible skeptic reflects on navigating trust in a 50-year marriage, and the energy cost of distrust.
Click here to view the printable newsletter with images. More readable than a transcript, which can also be found below.
Please comment and ask questions:
at the comment section at the bottom of the show notes
on LinkedIn
via email
YouTube channel
DM on Instagram, TikTok to @healthhats
Production Team
Kayla Nelson: Web and Social Media Coach, Dissemination, Help Desk
Leon van Leeuwen: editing and site management
Oscar van Leeuwen: video editing
Julia Higgins: Digital marketing therapy
Steve Heath...
2025-09-0704 minDanny van Leeuwen Health HatsListen First, Lead Together: Advocacy and Power DynamicsRonda Alexander on strategies to build inclusive health coalitions, manage power dynamics, center marginalized voices, & design sustainable governance.
Summary
In this episode of Health Hats, host Danny van Leeuwen talks with Ronda Alexander, a community health advocate and skilled facilitator, about the challenges of building and maintaining effective health coalitions. Alexander shares her journey from attending Detroit’s innovative Henry Ford Academy to working with Ford Partnership for Advanced Studies on workforce development, ultimately finding her calling at Vital Village Networks in Boston, where she spent seven years supporting national coalitions focused on he...
2025-08-1046 minHealth Hats, the PodcastListen First, Lead Together: Advocacy and Power DynamicsRonda Alexander on strategies to build inclusive health coalitions, manage power dynamics, center marginalized voices, & design sustainable governance.
Summary
In this episode of Health Hats, host Danny van Leeuwen talks with Ronda Alexander, a community health advocate and skilled facilitator, about the challenges of building and maintaining effective health coalitions. Alexander shares her journey from attending Detroit's innovative Henry Ford Academy to working with Ford Partnership for Advanced Studies on workforce development, ultimately finding her calling at Vital Village Networks in Boston, where she spent seven years supporting national coalitions focused on health equity and early childhood wellbeing.
The conversation...
2025-08-1046 minHealth Hats, the PodcastNever leave your shit on someone else’s farm!Exploring bird flu prevention with farm owner Shannon Hayes. Discover boot washing, flock protection with coyotes, and best practices in biosecurity.
Summary
🎯 The Lede: Bird flu cycles have shortened, forcing farmers like Shannon Hayes to reimagine their biosecurity protocols completely.
Farm owner Shannon Hayes reveals how her family protects their livestock from bird flu at Sap Bush Hollow Farm. Key strategies include washing boots with soap and vinegar solutions, timing poultry purchases for summer months, ending public farm tours, and maintaining coyote populations as natural buffers against wild waterfowl. Hayes emphasizes that bird flu prevention requires continuous practice and adaptation, not...
2025-07-2033 minDanny van Leeuwen Health HatsFirst We Listen, Then We Act. Informatics in Decision-MakingMS patient turned healthcare disruptor shares why your biggest “problem users” are actually your most valuable system improvers.
Summary
The Lede: Collaborate with patients, caregivers, and clinician partners to develop tools that truly inform health decisions.
From a reluctant keynote speaker who prefers hallway conversations comes wisdom about transforming healthcare through authentic partnership. At the American Nursing Informatics Association conference, Danny van Leeuwen shared how his MS diagnosis led to a revolutionary approach with his neurologist: “You don’t know anything about multiple sclerosis, but I don’t know anything about you.”
...
2025-06-2100 minHealth Hats, the PodcastFirst We Listen, Then We Act. Informatics in Decision-MakingMS patient turned healthcare disruptor shares why your biggest "problem users" are actually your most valuable system improvers.
Summary
🎯 The Lede: Collaborate with patients, caregivers, and clinician partners to develop tools that truly inform health decisions.
From a reluctant keynote speaker who prefers hallway conversations comes wisdom about transforming healthcare through authentic partnership. At the American Nursing Informatics Association conference, Danny van Leeuwen shared how his MS diagnosis led to a revolutionary approach with his neurologist: "You don't know anything about multiple sclerosis, but I don't know anything about you."
Key Insights:
Healthcare hackers aren't criminals—they're your most dedicated users...
2025-06-2100 minHealth Hats, the PodcastPod People, Participatory Governance during COVIDThese families created a pandemic pod with clear rules & shared childcare. While adults navigated anxiety, their kids called it "the best time of their lives."
Summary
Bevin Croft and David Weintraub talk about their experience forming a "pod" during the COVID-19 pandemic.
Health Hats introduces participatory governance - a concept I’ve studied throughout my life in various contexts, including families, communities, organizations, and healthcare. My history with governance spans from 1968, through college activism, homeschooling my children, living in an intentional community, and working in corporate settings.
The main segment features a conversation with Bevin and David, who formed a CO...
2025-05-2144 minHealth Hats, the PodcastAfro-Cuban Jazz and Helping Hands: Cuba’s Accessible BeatWho needs Spanish when you've got a saxophone? A music-lover proves that disability access is just another improvisation in Havana's jazz scene.
Best viewed as a video
https://youtu.be/Qz9Rm89LHD0
Summary
Danny, Health Hats, chronicles his week-long trip to Cuba in January for a music-cultural exchange. Using a wheelchair and playing baritone saxophone, he traveled with a group of 11 from the States, organized by Dan Fox and Arlington MA's Morningside Studios.
The group participated in a "Band Camp" hosted by the Havana Music School, receiving daily individual lessons, rehearsing in ensembles, and performing Cuban music at a...
2025-04-2434 minHealth Hats, the PodcastThe Missing Voice: Bridging Research and Real-World CareSuccessfully sharing & acting on research findings depends on active partnerships with the implementers – patients, caregivers, & their clinician partners.
Summary
Claude AI consulted to create this summary
The 2024 Academy Health Dissemination & Implementation (D&I) Science Conference revealed a significant gap between researchers and implementers (patients, caregivers, and their clinician partners). While D&I science studies how to share and apply research findings effectively, the conference highlighted that implementers—the very people meant to use these findings—were largely absent. Through interviews with attendees, key barriers emerged: high conference costs, lack of deliberate outreach, and content primarily designed for researchers. A compelling exampl...
2025-02-0931 minHealth Hats, the PodcastFrom Dick Tracy to AI: Out of Mind to Beyond MindDemystify AI's evolution, from Netflix recommendations to ChatGPT, exploring how neural networks learn & why even AI creators can't fully explain how it works.
Summary
Claude AI used in this summary
🎙️ What the Heck is AI, Anyway? I sit down with tech expert Eric Pinaud to demystify artificial intelligence. Whether AI-curious or AI-anxious, this conversation breaks down complex concepts into digestible insights.
We explore:
• The evolution from Narrow AI (like Netflix recommendations) to today's Broad AI (like ChatGPT)
• How AI learns through neural networks - similar to how we learn music or new skills
• Why even AI's creators can't fully explain how it work...
2024-12-1900 minDanny van Leeuwen Health HatsForeboding and Morbid CuriosityReflecting on community & self-care post-election. MS teaches patience. Adjusting media habits, finding strength in family history, music, & trusted connections.
Summary
Health Hats muses about physical, mental, and spiritual health, community connections, and self-care during these post-election times. He has changed his media consumption habits and is learning from his experiences with multiple sclerosis. He expresses anxiety and a dark curiosity about the future, drawing strength from family history, marriage, and music, and emphasizes the importance of staying connected with trusted communities and being open to help when needed.
Click here to...
2024-11-1406 minHealth Hats, the PodcastForeboding and Morbid CuriosityReflecting on community & self-care post-election. MS teaches patience. Adjusting media habits, finding strength in family history, music, & trusted connections.
Summary
Health Hats muses about physical, mental, and spiritual health, community connections, and self-care during these post-election times. He has changed his media consumption habits and is learning from his experiences with multiple sclerosis. He expresses anxiety and a dark curiosity about the future, drawing strength from family history, marriage, and music, and emphasizes the importance of staying connected with trusted communities and being open to help when needed.
Click here to view the printable newsletter with images. More readable than...
2024-11-1406 minHealth Hats, the PodcastAI: Neither Artificial nor Intelligent. Useful and SoberingWhat kind of Artificial Intelligence does Health Hats, the Podcast, use in production? Understanding types of AI, transparency, and ethical considerations.
Summary
Perplexity used in this summary
AI Tools in Use
Various AI-powered software and apps are utilized in production, including Zoom, Descript, Grammarly, DaVinci Resolve, Canva, Perplexity, and OpenArt AI.
Types of AI
The episode breaks down different categories of AI, including Narrow AI, Artificial General Intelligence (AGI), and Artificial Superintelligence (ASI).
AI functionalities are explained, from Reactive Machine AI to the theoretical Self-Aware AI.
Ethical Considerations
Transparency and disclosure of AI usage in content creation
Maintaining authenticity and...
2024-11-0316 minHealth Hats, the PodcastInsight to Impact: Patient Voices in Health Tech & PolicyEffective solutions & ethical guardrails for data-driven decision-making, care, & treatment require patient involvement in policy & technology development.
Summary
Patient Insights on Health Access, Technology, and Public Policy
Data should inform decision-making for a triad of patients, caregivers, and clinician partners.
Some patients desire data sovereignty - the ability to access, use, and share their health data.
However, managing personal health data can be overwhelming for individuals.
Transparency about data usage and privacy is crucial for building trust.
There are concerns about potential stigma and discrimination from data misuse.
Including patients in policy and technology development can lead to more effective solutions.
E...
2024-10-0637 minHealth Hats, the PodcastAccessible Off-Road Travel in an All-Terrain WheelchairPhilip Shadle, CEO, Aimee Copeland Foundation opens outdoor accessibility for disabled individuals with all-terrain wheelchairs. My endorphins flow. Yeehaw!
Summary
This podcast episode features an interview with Philip Shadle, CEO of the Aimee Copeland Foundation, discussing the transformative impact of all-terrain wheelchairs on accessibility and outdoor experiences for individuals with disabilities.
The podcast underscores the importance of accessibility and inclusion in outdoor activities, celebrating the collaborative efforts of organizations, individuals, and communities to enhance the lives of people with disabilities.
Click here to view the printable newsletter with images. More readable than a transcript, which can also be found below.
C...
2024-09-0827 minHealth Hats, the PodcastCommunication Ninjas: Practice, Trust, EvidenceAaron Carroll, CEO of Academy Health, discusses his journey to improve health systems & decision making through community engagement & repetitive communication.
Summary
Aaron Carroll, CEO of Academy Health, shares his journey, from his frustrations with the healthcare system as a pediatrician, and the role of mentorship and science communication in his career. He delves into his efforts to make complex health issues understandable to diverse audiences through various media, his role in improving health care decision making and systems, involving communities in research, and building trust through consistent and repetitive science communication. Dr. Carroll also touches on the importance of implementation...
2024-08-0440 minHealth Hats, the PodcastAdieu Mighty Casey, Flow OnFamily and friends dispersed Mighty Casey (Mary) Quinlan’s ashes in the Gulfstream, reflecting on her life and sharing outrageous and mundane pics and stories.
Summary
On May 24, 2024, Mighty Casey Quinlan's ashes were spread in the Gulfstream of the Atlantic Ocean near Stuart, Florida. This episode captures the layers of that experience, featuring an introduction conversation between Jan Oldenburg and Health Hats, recorded on June 27. The episode includes self-introductions of the dispersal party, a historical photo tour of Casey's life, and a reflection from Hank Burchard. The package of audiovisual pieces including a 17-minute video with introductions and a three-minute ph...
2024-07-0634 minHealth Hats, the PodcastExploring Long Covid One Spoonful at a TimeShana Davidson shares her day-to-day Long Covid challenges using the "spoon theory," a metaphor for the limited energy reserves people with chronic illness face
Summary
The episode explores the fascination with prolific enigmatic conditions, which are common yet complex and often misunderstood illnesses like fibromyalgia, chronic fatigue syndrome, lupus, endometriosis, and long covid. These conditions highlight systemic issues in healthcare, such as various biases and the complexities of corporate medicine and research. Shana Davidson, having personally experienced misdiagnosis and the challenges of navigating these conditions, emphasizes the intersectional barriers faced by women, people of color, and those with mental and...
2024-06-0200 minHealth Hats, the PodcastA Forrest Gump Career: Chance, Gifts, Support, and PrivilegeTurn-around: Grandson interviews Health Hats about his Zelig-like career path and choices: unpredictable, privileged, mentored, supported, and spiritually healthy.
Summary
Health Hats is interviewed by his editor, grandson Leon, delving into a discussion about his diverse and impactful career. The episode starts with Leon interviewing Health Hats about the origins and motivations behind the podcast, tracing back to a serendipitous naming and a road trip that solidified the podcast's visual identity.
Health Hats shares his journey from opting out of a higher-paying job that required him to cut his long hair to embracing a path in healthcare as a psychiatric...
2024-05-061h 00Health Hats, the PodcastCamden Coalition. The Jury’s In. Long-term Partnerships RuleKathleen Noonan’s quest to build bridges between communities & researchers with long-term relationships & respect for experience & expertise, just like juries.
Summary
Kathleen Noonan, the CEO, catalyzed the transformation of the Camden Coalition into a national platform for complex care. She focused on capacity building, bridging healthcare research with community organizations, and emphasizing the power of diverse partnerships. Noonan is a staunch advocate for community-driven healthcare, pushing institutions to incorporate local insights and foster long-term relationships that shape better research and policy outcomes.
Click here to view the printable newsletter with images. More readable than a transcript, which can also be fou...
2024-04-0746 minHealth Hats, the PodcastCoffee Insights: Flavor, Notes, Health, and JusticeExploring the journey of coffee from farm to cup with expert Jen Stone, delving into flavors, cupping, & the ethics of coffee production. Music & Health, too
Full 36-min episode on YouTube
Two five-minute clips on YouTube.
Click here to view or download the printable newsletter
Contents
Table of Contents
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EpisodeProemPodcast introIntroducing Jennifer StoneHealth is FragileProfound Knowledge of Coffee or CaffeineCaffeine Delivery SystemCoffee CupperCoffee Flavor Notes Call to actionCoffee Flavor Notes in My CuppaDifferent tastes and circumstancesFermentationTransparencySocial Justice in Coffee MakingMy PaletteSlow down and tasteYou’ve ruined me a bitEquipmentReflectionPodcast OutroPlease comment and ask questions:
Episode
Proem
When I take two minu...
2024-03-1637 minHealth Hats, the PodcastRebels in Health – the Enemy is DiseaseSusannah Fox’s "Rebel Health" on the power of Seekers, Networkers, Solvers, & Champions in driving patient-led innovation & the communal fight against disease.
Full 36-min episode on YouTube
Two five-minute clips on YouTube.
Click here to view or download the printable newsletter
Contents
Table of Contents
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EpisodeProemPodcast introRealizing the Fragility of HealthTransition from Research to ActivismThe Role of Perception in HealthcareA System Versus Community View of Healthcare InnovationHacking Healthcare and StartupsMotivation to Solve Call to actionSeekersNetworkersSolversChampionsNetworker, Seeker, Solver, ChampionNetworker, Champion, SolverPersisting BossLeading by Helping the HelpersActors on the Stage of InnovationEmergence of ChampionsServing CommunitiesRevolutionary Energy – Regina Holliday and Casey QuinlanDraft Counse...
2024-02-1836 minHealth Hats, the PodcastBonus #5: Continuous Learning in My SandboxCelebrating my audience. Describing my multimedia journey, stats, ongoing advocacy, future episodes and a musical bonus featuring the host on the Bari Sax.
Show Notes at the end.
Watch on YouTube
None today.
Read Newsletter
The same content as the podcast, but not a verbatim transcript. Could be a book chapter with images. download the printable transcript here
Contents
Table of Contents
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Watch on YouTubeRead NewsletterEpisodeProemPodcast introManaging my bandwidthStill learning in my sandbox.AdvocacyPodcast OutroEl QuitrinEpisode Notes
Episode
Proem
Welcome to this bonus episode of Health Hats, the Podcast for subscribers I appreciate. Life is good while I play...
2024-02-1110 minHealth Hats, the PodcastFear, Shame, Access, Connection -Privacy in Digital ExchangeFred Trotter on the balancing privacy & connection, the role of AI in societal judgment, and practical privacy protection strategies with a nod to Mighty Casey
Watch two five-minute podcast clips on YouTube.
Click here to view or download the printable newsletter with associated images
Contents
Table of Contents
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EpisodeProemPodcast introPrivacy in Digital CommunicationHarm reduction, safety, data aggregationCommunication minimalists and maximalistsPrivacy in small villages during the Bronze AgePrivacy in the viral modern ageJudicial enginePrivacy and shameDenied accessPeer-to-peer connection and privacy riskPeople-to-needs connectionA connection you don’t know you haveHarm reductionOversimplification of harm reductionRedliningAI Artificial IntelligenceCall to actionChatGPT and health coverageAggregating in...
2024-01-2700 minHealth Hats, the PodcastReflection on Advantage during the HolidaysLisa Stewart interviews Health Hats to discuss family, music, & listening to younger activists taking over navigation & reform of healthcare.
Watch on YouTube
Download the printable newsletter here
Contents
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EpisodeProemPodcast introWhy reflect? Accept and look forward.Bitch in bursts, not dribblesCatastrophizing, pathological optimistMusic, podcasting, grandsonsListening to younger activistsConnection through video, Instagram, YouTube shortsImpact Call to actionProgressing in musicProgressive condition and musicTravel with abilities in Costa RicaTravel with abilities in the USWords of wisdomReflection on AdvantagePodcast OutroPlease comment and ask questions:Production TeamCreditsInspired by and Grateful toLinks and referencesRelated episodes from Health HatsCreative Commons LicensingCC BY-NC-SADisclaimer
Episode
Proem
Bo...
2023-12-2447 minHealth Hats, the PodcastBrain Fertilizer, Soul Points, and a Bucket of PainPathways & switches of pain affect well-being & productivity. Amy Baxter, MD. explores recent insights about managing pain and learning coping mechanisms.
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EpisodeProemPodcast introLearning from lived experienceOldest and Best Survival SystemPain as opportunityThe thalamus conducts the switchboardPain: Your brain’s opinion of your safetyWhat’s going on? Communicating to physiciansSickle cell, self-knowledge, mu receptorsNeurotransmitters: on or offBrain FertilizerExercise as WD-40 loosening lubricantAcceptance and Commitment TherapyBuilding Resilience to Trauma and Pain Call to actionHolocaust PTSD, painMelissa versus FibromyalgiaHelpers: Child Life SpecialistsBrain’s survival systemPhlebotomists and clownsPain wuss or high toleranceFear and cont...
2023-12-0251 minHealth Hats, the PodcastBalancing Motherhood, Community, Trust, Money, & Sickle CellPersonal growth living with a chronic illness, sickle cell, the importance of open communication, building a supportive community, & advocating for oneself.
About the Show
Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. I'm the Rosetta Stone of Healthcare. We will listen and learn about w...
2023-10-2845 minHealth Hats, the PodcastUnplugged and Reconnected. A Day of Rest.Day starts with angst, leading to screen-free day, reservoir walk, visit to farm stand, reading real book. Revived with renewed sense of gratitude & well-being.
We respect Listeners, Watchers, and Readers. Show Notes at the end.
Watch on YouTube
None today.
Read Newsletter
The same content as the podcast, but not a verbatim transcript. Could be a book chapter with images. download the printable transcript here
Contents
Table of Contents
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Watch on YouTubeRead NewsletterContentsEpisodeProemPodcast introScreen-free dayWalking a mile around the ResFarm stand Call to actionBack homeDay’s endReflectionPodcast OutroEpisode NotesProduction TeamOther CreditsDisclaimerRelated podcastsCreative Commons Licensing
Episode
Proem
JoJo and Danny self...
2023-10-1515 minHealth Hats, the Podcast#11 View From Medicaid: Emerging Adults w Mental IllnessNewsletter subscribers: Apologies. My Mailchimp feed broke down, and I didn't notice until yesterday. You've missed 10 episodes!! I will repost an episode every other day until we're caught up. I'm so sorry!
Dr Herndon, former Medicaid CMO: challenges faced to improve mental health care for emerging adults. Better support systems for their transition to independence
Subscribers
About the Show
Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot...
2023-10-1042 minHealth Hats, the Podcast#15 Cultural Humility: Curiosity Failure Critique Respect GrowthImmersion into cultural humility needs curiosity, addresses power dynamics, embraces failure, meditates on self-critique, & fosters respectful relationships.
About the Show
Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to a...
2023-10-0147 minHealth Hats, the PodcastOpa Heaven: Titles, Maglevs, Hats, the Universe, SnarkinessDanny & Oscar muse about tension between thumbnails & descriptions, superconductors & the environment, health hats origin, life & bad habits, like snarkiness.
About the Show
Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. I'm the Rosetta Stone of Healthcare. We will listen and learn about what it t...
2023-09-2427 minHealth Hats, the PodcastPATIENTS Program: Building Community Research PartnershipsRodney Elliott discusses the PATIENTS Program, a community-research partnership for health equity. The podcast explores authenticity, engagement, & growth.
About the Show
Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes t...
2023-09-0525 minHealth Hats, the PodcastPATIENTS Program: Building Community Research PartnershipsRodney Elliott discusses the PATIENTS Program, a community-research partnership for health equity. The podcast explores authenticity, engagement, & growth.
About the Show
Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes t...
2023-09-0325 minHealth Hats, the PodcastBonus Episode 2: Apps, Beehives, and BobbleheadsJourney in adlibbed speaking, video editing, business growth strategies, & the ups/downs of personal life, including music & health challenges. Bobbleheads, too
About the Show
Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. I'm the Rosetta Stone of Healthcare. We will listen and learn about w...
2023-08-2308 minHealth Hats, the PodcastHealth Economics: #14 Emerging Adults w Mental IllnessDive into the intricate web of conflicting healthcare incentives. Dr. Wang explains how health economics guides resource allocation for better outcomes.
About the Show
Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. I'm the Rosetta Stone of Healthcare. We will listen and learn about w...
2023-08-1248 minHealth Hats, the PodcastPCORI Research Funding: #13 Emerging Adults w Mental IllnessPCORI’s Dr. Chue brings to light the complexities & challenges of conducting research, engaging stakeholders, and implementing findings in real-world settings.
About the Show
Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. I'm the Rosetta Stone of Healthcare. We will listen and learn about wha...
2023-07-2435 minHealth Hats, the PodcastResearch Community Link: #12 Emerging Adults w Mental IllnessDr. Motley studies emerging black males & females with mental illness compounded by racism & violence. They need support systems & a chance for upward mobility.
About the Show
Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. I'm the Rosetta Stone of Healthcare. We will listen and l...
2023-07-0939 minHealth Hats, the PodcastBonus #1: Exploring the World of Podcasting. Insights & MusingsExploring the world of podcasting and the challenges we face in storytelling, sound editing, & decision-making. We reflect on the evolution of our journeys.
About the Show
Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. I'm the Rosetta Stone of Healthcare. We will listen and l...
2023-06-2532 minHealth Hats, the Podcast#11 View From Medicaid: Emerging Adults w Mental IllnessDr Herndon, former Medicaid CMO: challenges faced to improve mental health care for emerging adults. Better support systems for their transition to independence
About the Show
Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. I'm the Rosetta Stone of Healthcare. We will listen and l...
2023-06-1842 minHealth Hats, the Podcast#10 Best Medical Care for Emerging Adults w Mental IllnessAbout McLean Hospital. Referrals, COVID impact, capacity, stigma. Still need more resources & shift towards treating mental health on par with physical health.
About the Show
Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. I'm the Rosetta Stone of Healthcare. We will listen and learn a...
2023-06-0435 minHealth Hats, the PodcastServe Plant Build Inspire #9 Emerging Adults w Mental IllnessExploring Youth Clubhouses, drop-in centers for youth in recovery from/at risk for substance use disorders, focusing on access, partnerships, & peer support.
About the Show
Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. I'm the Rosetta Stone of Healthcare. We will listen and learn a...
2023-05-2146 minHealth Hats, the Podcast24/7/365 Access: #8 Emerging Adults with Mental IllnessCOAST, a 24/7/365 access program in upstate NY, offers access to med-assisted treatment & wraparound services for substance use & mental health concerns
About the Show
Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. I'm the Rosetta Stone of Healthcare. We will listen and learn about what i...
2023-04-3037 minHealth Hats, the PodcastIntroducing Health Hats Patreon PageIntroducing you to my new Patreon page so that I can earn some revenue to help me keep the lights on. Fans can pay a $small amount each month for bonus rewards.
About the Show
Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. I'm t...
2023-04-1600 minHealth Hats, the PodcastEmergency Care: #7 Emerging Adults with Mental IllnessDr. Joel Hudgins muses on up and downstream changes to Peds ED for emerging adults with mental illness. Higher numbers & acuity, too few beds, services, & staff
About the Show
Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. I'm the Rosetta Stone of Healthcare. We w...
2023-04-1630 minHealth Hats, the PodcastThe Mighty Mouth Goes Quiet, Casey Quinlan, Mashup 2021-22Mid-March,Casey didn’t often sound lucid or humorous. She spun a yarn and offered wisdom sporadically. Grateful for her impact on the patient-caregiver movement
About the Show
Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. I'm the Rosetta Stone of Healthcare. We will lis...
2023-04-0141 minHealth Hats, the PodcastPrimary Care: #6 Emerging Adults with Mental IllnessDiscover how PCP Dr. Bonnie Engelbart manages the referral maze & limited resources when caring for emerging adults with mental illness.
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2023-03-1934 minHealth Hats, the PodcastCosta Rica – Travel with AbilitiesCosta Rica welcomes travelers with disabilities. Juve Acuna, travel guide, spent a week with us sharing his expertise in flora, fauna, history, & disabilities.
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2023-02-2626 minHealth Hats, the PodcastBelonging in School: #5 Emerging Adults with Mental IllnessMatt Neil, teacher, offers a hopeful story. Not focusing on mental health per se but on belonging and inclusion in a typically lonely time – high school.
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2023-02-1245 minHealth Hats, the PodcastCrossing Thresholds: #4 Emerging Adults with Mental IllnessAnnie Schneider with Bipolar II, experiencing abrupt and slow simmering transitions from home, hospital, school. Develops agency, control, and trust. Powerful!
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2023-01-2246 minHealth Hats, the PodcastHope for Mom of Emerging Adult with Mental Illness#3: Erika Blair, proud of son, Emeka Chima. Found professionals with lived experience, integrated teams, positive support & a sense of hope from other parents.
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2023-01-0833 minHealth Hats, the Podcast2023 AI Holiday Letter, Oh My!Since AI dissemination exploded in 2022, I wanted to create my holiday letter using a variety of AI apps. May you all have adventures, rest, and inspiration. Love ya.
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2022-12-2907 minHealth Hats, the PodcastLived Experience with Psychosis: #2 Emerging Adults with Mental IllnessEpisode #2: Emerging Adult living with Schizophrenia, finding help, using a toolbox to cope, giving back as peer specialist, leading with Students with Psychosis
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2022-12-1833 minHealth Hats, the PodcastEmerging Adults with Mental Illness: #1 Series IntroductionWe need our emerging adults healthy in spirit, mind, body. How can we learn more about their exploding mental illness? Start with people with lived experience.
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2022-12-0421 minHealth Hats, the PodcastSharing the Wealth: Mentoring Newbies to AdvocacyWhere do veteran advocates point people new to advocacy for skills, resources, and research? What are trusted resources? 15 interviews from Healthe Voices 22.
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2022-11-2722 minHealth Hats, the PodcastThanksgiving 2022: Status, Activities, MusingsTime for gratitude and appreciation for what is. Update on Health Hats, the person, family, music, connection, and activism. New feature: Nuggets from the Mine
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2022-11-2012 minHealth Hats, the PodcastRecognizing Success in Advocacy: Stories on the Ride.Patient advocates from the Healthe Voices 2022 conference describe how they recognize success in their advocacy.. Snapshots of diverse lived experiences.
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2022-11-1318 minHealth Hats, the PodcastMighty Casey Quinlan Unplugged #3Mighty Casey Quinlan, Healthcare Is Hilarious continues to cope with her breast cancer #MetsParty. We co-produce when her audience clammers for news and wit. SEE LINK TO YOUTUBE VERSION BELOW
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2022-11-0624 minHealth Hats, the PodcastHealth is Fragile: 26 Stories26 patient advocates from the Healthe Voices 2022 conference describe the moment when they realized health was fragile. Snapshots of diverse lived experiences.
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2022-10-3020 minHealth Hats, the PodcastLeadership in a Health Center. Managing Manageable Stress.Dr. Kiame Mahaniah, CEO, values his FQHC staff; feels for pts' life challenges; understands what he can control & can’t; & weeps for under-realized potential.
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2022-10-0942 minHealth Hats, the PodcastGeneration Patient. Hope for Young Adults Living to be AbleBuilding a powerhouse advocacy org for young adults with chronic conditions, Sneha Dave shares her path & vision: skill building, peer support, events, policy.
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2022-09-1844 minHealth Hats, the PodcastBe the Change. Move at the Speed of Trust.Chat with Isabelle Barbour, Truthteller Consulting, about partnerships, community advocacy, privilege, disparities, trust, and being your best self.
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2022-09-0454 minHealth Hats, the PodcastPlaying Baritone Saxophone with Disabilities. Can Be Done!Music in my life. Adjusting to changing abilities with my bari sax. An experiment in multimedia sharing. Listen, watch, read. Best to watch the YouTube video.
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2022-08-2025 minHealth Hats, the PodcastFirst-Responders and Research. Building a Bridge.Research matters to people where they live, work, play, worship, and learn. What questions do they ask? Will Parente, a bridge between firefighters and research
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2022-08-1424 minHealth Hats, the PodcastBUILD – Self-Confidence, Agency, Engagement in Young AdultsBUILD provides opportunities for young adults to find their footing and self-confidence through entrepreneurship. We need them. Betsy Neptune tells us more.
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2022-07-3132 minHealth Hats, the PodcastCultivating a Podcast. 10 Years Now. Still a Hoot and a Half.10 years of blogging and podcasting. Planting, fertilizing, growing, harvesting. Questions asked and answered about process, motivation, and future direction.
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2022-07-2409 minHealth Hats, the PodcastCaring About Apples to Apples, Risk AdjustedCost & quality. Compare & risk adjust. Measurement that serves people is complex, fraught, in its infancy. Chat with Dr. Bob Phillips to make some sense of it.
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2022-07-1732 minHealth Hats, the Podcast50 and 70. Connection and Age. Spiritual Strength.2-legged, cisgender, white man of privilege turning 70 enjoying life with friends of 50+ years. Still kicking-sort of-still enjoying life. Intentional families.
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2022-07-1005 minHealth Hats, the PodcastFamily, a Magic Lever of Best Health. 3 Danny van Leeuwen’sIntroducing 3 generations of Danny van Leeuwen's. Inclusive, blood, intentional family lore. Spiritual health can come from family. From the Holocaust to today.
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2022-06-2646 minHealth Hats, the PodcastCollaborative Notes, Engaged Partners, Fewer ErrorsPatients, care partners & clinicians can reduce record errors with collaborative notes. Dr. Peter Elias shares his note-writing with collaborative partners.
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2022-06-1230 minHealth Hats, the PodcastGarbage In Electronic Data is Faster GarbageHow can medical document errors become easy to fix, everywhere the error lives, & fit in the workflow? Virginia Lorenzi and HL7's Patient Empowerment Workgroup.
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2022-06-0540 minHealth Hats, the PodcastBurnout, Healthy Habits, American College of Lifestyle MedicineAn epidemic of burnout among health workers. Learn about the American College of Lifestyle Medicine's solutions 6 pillars and 3 teaching axioms from Dr. Robyn Tiger.
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2022-05-2229 minHealth Hats, the PodcastFrom Here to There: Accessibility on the Camino de SantiagoManaging rural and urban travel with my set of abilities. Roots, dips, inclines, Roman roads, elevators. falls. We did 170 miles (I did 70). A hoot and a half.
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2022-05-1505 minHealth Hats, the PodcastCamino de Santiago 2022: Pilgrimage with AngelsLost my wheelchair charge on Day 1. OMG. Busted. Until angels stepped in. Grateful, grateful, grateful
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2022-05-0805 minHealth Hats, the PodcastReprise: Camino de Santiago. Rejuvenated, Inspired #21 & #164Heading to Portugal. Ready. Listen to last episode from '19 Spanish Camino. Sounds of tapping of my canes, white storks, cathedral bells chiming. Stay tuned.
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2022-04-2420 minHealth Hats, the PodcastPatient Advocates on National Boards: Mind the SausageEngaging patients differs depending on the role. Those on national Boards lead, strategize, advocate, communicate. Adam Thompson is on the Board of NQF. Listen in.
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2022-04-1747 minHealth Hats, the PodcastPortugal Camino Pilgrimage: Training with Disabilities. Fun.Not about walking miles & managing shoes. My training includes mobility and audiovisual prep. Bear with my experiment. Podcast, YouTube, & article. A bit rough.
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2022-04-0309 minHealth Hats, the PodcastDecision Aids: Tools to Support Conversation About Choice.Decision aids with Dr. Daniel Matlock. Complexity of decisions, agency of decision-makers, timing, the black box, answering questions as they arise.
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2022-03-2034 minHealth Hats, the PodcastRisk Adjustment, Equity, Movement. Jumping in the Deep EndWhy measure health outcomes? What information comes from outcome data? What action does the information motivate? How do disparities figure in? Why risk adjust?
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2022-03-1313 minHealth Hats, the PodcastFeb 28th Rare Disease Day: Zebras and Equity #159Rare diseases as a health equity group. Rare doesn't mean never. Commonalities & differences.Learning from tiny populations. Chat with Doug Lindsay.
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2022-02-2734 minHealth Hats, the PodcastIn the Wild: Data to Info to Action & Back & Again #158Data is not info is not action. Data, cooked into Info could lead to action. People add context, values, culture, experiences, history, biases to data and info.
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2022-02-2039 minHealth Hats, the PodcastHealth Choices. Knowledge + Behavior. Your Life Depends on It.Healthcare decisions affect you and others. Complicated for everyone. Knowledge waiting to be implemented. Join this chat with Dr. Talya Miron-Shatz.
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2022-02-0643 minHealth Hats, the PodcastCamino de Santiago, Spain. Pilgrimage of sounds. #20 & 156I found myself on a pilgrimage of sounds. Disabled. Left out. Mobile. Podcasting in Spain from my wheelchair in 2019. Portugal Camino next. Anything different? Buen Camino
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2022-01-3019 minHealth Hats, the PodcastSustained Community Engagement-Rousing, Nimble, Complex #155The odyssey of sustained community engagement at Cambridge Health Alliance with Janice John and Jamila Xible. Cross-pollination of expertise and employment.
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Introducing...
2022-01-1640 minHealth Hats, the PodcastSound and Noise. Senses and Voice. A Reprise. #19 & 154Revisit 2019 travel to Spain with disabilities. A guest in other people's lives. Differentiating between sound and noise. Heightening senses, expanding voice.
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2022-01-0913 minHealth Hats, the PodcastCoaching for Peak Performance and Best Health – 2021 #153Coaching, critical to my success in life, art, politics, advocacy. Still need to do my own work & make choices. Listen to a session with one of my coaches, Jan Oldenburg.
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2022-01-0246 minHealth Hats, the PodcastEmbedded Researchers-Translators, Connectors, Stewards #152Embedded researcher, Matt Hudson. Partnerships, self-reflection, values, equity. Treat illness in service of community prosperity. An instruction manual.
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Introducing Matthew Hudson 00:41. 1
Introducing...
2021-12-1949 minHealth Hats, the PodcastTelling Stories for Different Brains #151Turn-around. Interview of Health Hats by Craig Constantine entitled, Rich, about my podcasting process. A ton of work to keep it fresh. Ruthless editing.
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2021-12-0520 minHealth Hats, the PodcastCommunity Engagement – Harmonizing to the Same Tune #150Dr. Kirsten Meisinger from the Cambridge Health Alliance engages long-standing community partners in telehealth usability with joy and grace. Deep.
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2021-11-2835 minHealth Hats, the PodcastFamily: Unconditional Love & BoundariesMy son. Mike, died 19 years ago, age 26. Wasn't born with a tattoo telling him how long he had to live. Blood, married, intentional families. Love & boundaries.
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2021-11-2131 minHealth Hats, the PodcastContinuously Learn What Works #148These three stories, my doctor and me, equity in health systems, care of children with severe heart problems, all contain a problem desperately needing fixing, choices – some based as research, others not – some action taken or no action. How can we continually learn from experience, share that cumulative experience to inform future choice-making and action?
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2021-11-1412 minHealth Hats, the PodcastBelonging, Intersection of Diversity, Equity, and Inclusion #147Duane Reynolds of the Just Health Collective reflects on a layered approach to combating racism. Individuals drive organizations that live within systems.
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2021-11-0736 minHealth Hats, the PodcastNo Dip Without a Rise #146I'm not the sharpest knife in the musician drawer. Disheartening. I wish I were better. If wishes made me play better… All I can do? Keep at it. In the last two years. I’ve gone from “I can’t do this, I’m quitting” to “I need to be better.” One foot in front of the other. If this were health, I’d advise that you never get better in a straight line- always many dips and rises. No dip, no rise. I do like the rise. Gotta live with the dips.
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2021-10-2408 minHealth Hats, the PodcastCost, In Any Other Language #145What does healthcare cost mean? I can’t explain it. Listen to Matt Pickering from Nat Quality Forum help us out. Consider serving as a patient rep with NQF.
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2021-10-1741 minHealth Hats, the PodcastInnovation, Local Persistence #144Innovation is not like switching on a lightbulb for the world. Rather it's local iterative, persistent steps. Thoughts from the Patient Experience Symposium.
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2021-10-0312 minHealth Hats, the PodcastPlenty of Poetry– Past and Present #143Take a brief break with several six-word caregiver poems, like 'Pillow, Pills, Poop, Piss, and Pain' plus a poem about me from The Good Listening Project.
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2021-09-2606 minHealth Hats, the PodcastCrises: Opportunity for Children to Cope #142Some people pull hand-over-hand for strands of hope and opportunity in the quicksand of tragedy. The entire family strains to recover from the grief of addiction. I appreciate Sarah Cloud’s person-first approach. People are expert in their own lives. Expert means they know much. Experts still need help connecting dots, creating and executing plans, facing pain, and loving self. Check out Sarah’s series about Mama and Papa Paca.
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2021-09-1928 minHealth Hats, the PodcastLegacy and Succession Planning for the Seasoned #141Are you a patient-caregiver activist winding down? Let's chat and hand off to younger people feeling their way & support them as they perceive their needs.
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2021-09-1209 min