Shows
Post-Exertional MayonnaiseLiving with the fluctuations of ME and chronic illnessIn this episode of Post-Exertional Mayonnaise, Dov Zeller, Litsa Dremousis and Daniel Moore discuss the challenges of living with ME and chronic illness, focusing on the fluctuations in health and the emotional costs associated with these ups and downs. They share personal experiences, listener contributions, and coping strategies, emphasizing the importance of community support and understanding in navigating these challenges. In this conversation, the speakers discuss the complexities of living with chronic illnesses such as ME and long COVID. They explore the emotional challenges, the importance of self-compassion, and the need for community support. The conversation also touches on...2025-05-0554 minPost-Exertional MayonnaiseME, Chronic Illness and Toxic Religion & SpiritualityIn this episode of Post-Exertional Mayonnaise, the hosts, Daniel Moore, Litsa Dremousis and Dov Zeller delve into the intersection of chronic illness and toxic religion, exploring the emotional and spiritual harm that can arise from religious beliefs. They discuss Kate Bowler's book, 'Everything Happens for a Reason and Other Lies I've Loved,' which addresses the imposition of reasons for illness by others. The conversation highlights the burden of blame often placed on individuals with chronic illnesses and the impact of generational curses and forgiveness narratives within religious contexts. In this conversation, the speakers delve into the...2025-03-1456 minPost-Exertional MayonnaiseNavigating an online life whilst living with chronic illnessIn this episode, Daniel Moore, Litsa Dremousis and Dov Zeller discuss the complexities of living with ME and the role of social media in building community and relationships. They explore the impact of isolation, the significance of online friendships, and the challenges of navigating medical misinformation. The conversation emphasizes the importance of finding balance in online interactions and the comfort found in shared experiences within the ME community.Tell us your 'bring a thing'! Is there anything that has brought you joy recently?https://pempod.com/pempodcast23@gmail.com2025-02-1849 minPost-Exertional MayonnaiseLiving with ME in a world of changeIn this episode of the Post-Exertional Mayonnaise podcast, Daniel Moore, Litsa Dremousis, and Dov Zeller discuss the challenges of living with ME and chronic illness, the impact of recent losses in the community, and the importance of navigating personal and political changes. They reflect on coping mechanisms, the significance of community support, and the role of media in providing comfort. The conversation emphasizes the need for understanding and empathy in a world that often overlooks the realities of chronic illness.
Follow us on Bluesky!
Dov: @dovsz.bsky.social
Litsa: @litsadremousis.bsky.social
Daniel: @talmandaniel.bsky.social
Book mentioned by...2025-01-2754 minPost-Exertional MayonnaiseMerel van der Knoop and the Long Covid ChoirsIn this episode of the Post-Exertional Mayonnaise podcast, host Daniel Moore speaks with Merel van der Noop, the music director of the Long COVID Choir and Long COVID Kids Choir. They discuss Merel's personal journey with Long COVID, the challenges of navigating healthcare, and the transformative power of music in coping with chronic illness. The conversation highlights the importance of community, support, and creative expression in the healing process, as well as the unique experiences of children with Long COVID. Merel shares insights into the formation of the Long COVID Choir, the activities they engage in, and the significance...2024-11-1135 minPost-Exertional MayonnaiseME and managing a limited social lifeIn this episode of Post-Exertional Mayonnaise, hosts Dov and Daniel explore the themes of social isolation and sensory overload experienced by those living with ME and chronic illness. They discuss the impact of these conditions on social lives, the challenges of navigating social interactions, and the absurdity of medical care. The conversation highlights the emotional toll of social deconditioning, the importance of community, and the joy found in mundane social interactions. Through humour and shared experiences, they reflect on the complexities of maintaining connections in a world that often feels distant and overwhelming.#chronicillness #myalgicencephalomyelitis #socialisolation
Contact us:
pempodcast23...2024-10-281h 01Post-Exertional MayonnaiseLisanne Jacobs: Singing songs that err on the side of hopeIn this episode of the Post-Exertional Mayonnaise podcast, Daniel Moore speaks with Lisanne Jacobs, a songwriter and chronic illness advocate, about her journey with ME and the role of creativity in coping with chronic illness. Lisanne shares her personal story, including her diagnosis, struggles with healthcare, and the importance of music as a form of expression and healing. They discuss the challenges of navigating the healthcare system, the impact of chronic illness on daily life, and the hope that can be found in small improvements. Lisanne also reflects on her songwriting process and the influence of other artists on...2024-10-1056 minPost-Exertional MayonnaiseOonagh Carr: Living with Long Covid and CancerIn this episode, our third and final part of our chronic illness and cancer mini-series, Oonagh Carr talks to Daniel about her profound journey living with long COVID and a subsequent breast cancer diagnosis. She discusses the drastic changes in her life, the challenges of navigating the healthcare system, and the importance of community support. Oonagh emphasizes the need for better understanding and research into long COVID, as well as the emotional toll of living with chronic illness. Through her story, she highlights the resilience required to cope with these overlapping health challenges and the significance of advocating for...2024-10-0239 minPost-Exertional MayonnaiseCatherine Hale & the legacy of the Chronic Illness Inclusion ProjectCatherine Hale shares her chronic illness story and the journey of founding the Chronic Illness Inclusion Project. She discusses the challenges of living with ME and the impact it has had on her life, including the loss of being a parent and the realization that her future may be cut short. She also talks about the difficulties of finding flexible work opportunities and the lack of representation for people with chronic illness in the disability rights movement. The Chronic Illness Inclusion Project aimed to bridge the gap between the chronic illness community and the disability rights movement, but ultimately...2024-09-0251 minPost-Exertional MayonnaiseME and Cancer - a discussionThis episode of the Post-Exertional Mayonnaise podcast features a conversation about living with ME and cancer. Jennifer Smith shares her experience of being diagnosed with ME in 2020 and later being diagnosed with breast cancer. She discusses the challenges of navigating medical appointments and treatments while dealing with severe ME symptoms. Litsa Dremousis also shares her experience of being diagnosed with thyroid cancer and the difficulties she faced whilst interacting with physicians. Both guests highlight the importance of finding supportive healthcare professionals and the need for better information and resources for individuals with ME and cancer. In this conversation, Jennifer...2024-08-231h 06Post-Exertional MayonnaiseAnneke Vliegen: Recognise ME - a memoir on medical gaslightingAnneke Vliegen, author of Recognise ME, shares her memoir about medical gaslighting and living with chronic illness. She discusses her journey from childhood to adulthood, experiencing various symptoms and misdiagnoses along the way. Anneke emphasizes the importance of open and honest communication in her relationships. She reflects on the challenges of losing friendships and offers advice to others in similar situations. Anneke’s book sheds light on the emotional impact of chronic illness and the need for understanding and support. In this conversation, Anneke discusses medical gaslighting and the importance of being taken seriously as a patient. We talk ab...2024-08-131h 10Post-Exertional MayonnaiseJess Dove London: Turnto - a new app for ME and Long CovidJessica Dove London, founder of the Turnto app, joins Daniel to discuss her journey and the purpose of the app. The app aims to bridge the knowledge translation gap in healthcare by providing people with ME and Long Covid with curated research, lived experiences, tips, and insights related to their specific health conditions. The app delivers personalized updates on a daily basis, allowing users to stay informed without feeling overwhelmed. The community-driven platform also allows users to share their own experiences and engage with others. The app is currently focused on cerebral palsy and ME/Long COVID. The app...2024-08-0547 minPost-Exertional MayonnaiseRe-release: The Writing of Maeve Owen read by Sarah BoothbyIn memory of Maeve Boothby O'Neill, we re-release this episode from 2023 whereby Sarah Boothby reads excerpts from Maeve's unpublished novel, The Alchemists; or Economic Consequences of the peace.
In a small Dartmoor village, the postman goes missing and is found unconscious in a hedge. The villagers speculate about what could have happened, but the truth remains a mystery. The story explores the themes of community and class differences. The author plays with the genre of detective fiction, creating suspense without a dead body. The arrival of a detective from Exeter adds intrigue to the story. The conversation explores various...2024-07-271h 08Post-Exertional MayonnaiseRachel Riggs: Food Phenom, on creating a cookbook whilst living with MEIn Which Daniel Tries a Smoothie and Learns that GET was sold for $20,000:
Rachel Riggs, also known as the food phenom on Instagram, joins Daniel to discuss her journey living with ME and her passion for food and nutrition. Rachel shares how Jason Mraz came to endorse her upcoming book, All in Good Taste, and the challenges she faced in the publishing industry as a disabled cookbook author. She also talks about her misdiagnosis of MS and her experience with different treatments. Rachel emphasizes the importance of nutrition whilst living with chronic illness and shares her strategies for creating...2024-07-1551 minPost-Exertional MayonnaisePatreon Launch Special!Dan and Dov catch up to launch our new patreon service. Patreon is a website and app which enables you to give regularly to support the podcast. We will also sporadically be posting exclusive shorter episodes directly to Patreon for members. If you choose a paid support level of $5 per month or more, we'll send you a podcast tote bag or mug as our gift to you! Once you've signed up to our paid patreon, then please e-mail us to let us know your address and choice of gift!
At present our gifts are only available to listeners in...2024-07-1013 minPost-Exertional MayonnaiseJeremy Jeffs & The Emotional Impact of Photographing People with MEApologies for initial sound problems. We had some technical difficulties at first and needed to try and clean up the sound. Please do stick with us though!
In this conversation, Dan, Dov, and Jeremy Jeffs discuss Jeremy's project of photographing people with ME. Jeremy shares his own experience with ME and how he got into filmmaking and photography. They explore the different challenges and rewards of photographing people with ME, including the intimate nature of the process and the importance of informed consent. They also discuss the significance of the photographs in capturing the lived experiences of people with...2024-07-0145 minPost-Exertional MayonnaiseJeffery Smith: My life with ME and Stage 4 CancerContent Warning: Discussion includes end of life care and Medical Assistance In Dying.
Jeffery Smith shares his experience living with ME and cancer. He discusses the challenges he faced as a queer individual growing up in a small town and the impact of societal stigma on his self-perception. Jeffery talks about his journey with ME, starting with a bout of Mono (Glandular Fever) that eventually led to a diagnosis of ME. He describes the daily struggles and limitations he faces due to the illness. Jeffery also opens up about his experience with cancer, including the delayed diagnosis and the...2024-06-2354 minPost-Exertional MayonnaiseOonagh Cousins & the dangers of the Lightning ProcessDaniel meets Oonagh Cousins, a research fellow studying Long Covid at Oxford University. Oonagh is also a former professional rower with team GB. We talk about her personal experience of long covid, processing chronic illness guilt and grief, and her brief engagement with the Lightning Process, a programme which claims to treat ME and Long Covid through a form of brain retraining.
https://www.bbc.co.uk/news/health-69040592
Radio Episode: Mind Over Matter:
https://www.bbc.co.uk/sounds/play/m001zg5q
Long Covid Support website:
https://www.longcovid.org/
pempod.com
pempodcast23@gmail.com
2024-06-121h 01Post-Exertional MayonnaiseMama Chill & The ME ScandalDan meets rapper and hip hop artist, Mama Chill, A.K.A, Stacy Hart to discuss her recently released track, 'The ME Scandal' as part of ME awareness month.
Stacy shares with great openness about her love of hip hop, as well as her ME story and how she was gaslit and neglected by medical professionals. She explains how she waited many years for diagnosis and support. After two years of waiting for a specialist clinic, it quickly became apparent to Stacy that the service did not offer her anything of benefit for her ME.
Mama Chill's website can...2024-06-0458 minPost-Exertional MayonnaisePempod: Celebrating being a year old!Dov and Dan get together to review the first year of the podcast, looking back to how it all started and looking ahead to what we hope to achieve going forwards. It's been quite a year. If you have been with us since the beginning. Thanks for sticking with us. If you've just found us, welcome!
We had technical issues on this episode, so backup video was used for the first five minutes and then quality improves.
Just to make it clear, Dan's ears don't stick out like in the image, for some reason AI d...2024-05-2849 minPost-Exertional MayonnaiseDirect Action!! The Chronic Collaboration speak up, and they need us!Daniel meets with Steve Topple and Nicola Jeffrey from The Chronic Collaboration. Here, they discuss how they met, their own personal values around campaigning in the areas of disability and chronic illness and the need for change with regard to how campaigning is undertaken for people with ME and other intersecting chronic illness conditions.
Whilst we talk in this episode about mainly UK issues within the ME and chronic illness landscape, the issues that we discuss can often resonate universally.
The views expressed in this episode are not necessarily those of Daniel Moore, Dov Zeller or Post-Exertional Mayonnaise.
The...2024-05-201h 06Post-Exertional MayonnaiseEliza Charley: ME and the cult-like nature of psychologisationAhead of world ME day 2024 Daniel spoke to Australian Actress and Activist Eliza Charley. Eliza tells her own very personal Myalgic Encephalomyelitis story and reflects on her experiences of Graded Exercise and Brain re-training programmes and stresses how ultimately these left her more ill and questioning her sense of self. We also talked about finding language to express ourselves and the importance of recognising human worth in ourselves and others.
Contact us:
www.pempod.com
Pempodcast23@gmail.com
2024-05-1256 minPost-Exertional MayonnaiseLia Pas on Meditation, Flow States, Embroidery and Chronic Illness.Daniel speaks in this episode to Lia Pas, a multi-disciplinary artist and composer from Saskatoon, Canada. In this wide ranging discussion we talk about whether its possible to flourish whilst living with ME.
The Hum on ko-fi: https://ko-fi.com/s/872acbb154
Modern Stoicism Stoic Week info: https://modernstoicism.com/stoic-week/
Instagram (piano improvs and embroidery work): https://www.instagram.com/lia_pas/
LinkTree which has all Lia's links in it: https://linktr.ee/lia_pas
To contact the podcast, e-mail us at pempodcast23@gmail.com
www.pempod.com
2024-05-061h 00Post-Exertional MayonnaiseMyalgic Encephalomyelitis and a history of disbelief with Dr Nigel SpeightDaniel meets his childhood paediatrician, Dr Nigel Speight again after almost 30 years. We talk about the history of disbelief that comes with an ME diagnosis, his work with families who are accused of Fabricated or Induced Illness (FII) and his hopes and fears for the future.
www.pempod.com
Contact us: pempodcast23@gmail.com
2024-04-1855 minPost-Exertional MayonnaiseBecky Holmes: Exposing online romance fraud whilst living with MEDaniel chats to Becky Holmes, a British writer who lives with ME. In her book, 'Keanu Reeves is not in love with you', Becky explores 'the murky world of online romance fraud'. Becky discusses her own experience of becoming ill with ME and how she developed her book idea.
Book available here:
https://amzn.eu/d/dAYDJZJ
www.pempod.com
pempodcast23@gmail.com
2024-04-0454 minPost-Exertional MayonnaiseOn Making Meaning whilst living with ME and chronic illnessDov and Dan catch up and talk about a range of issues relating to living with ME/CFS. We talk about how we go about explaining our chronic illness to others, the recent article in the Guardian by George Monbiot and the challenges of getting your hair cut!
https://www.theguardian.com/commentisfree/2024/mar/12/chronic-fatigue-syndrome-me-treatments-social-services
Ivan Illich: The Right to Useful Unemployment
https://archive.ica.art/sites/default/files/downloads/Ivan%20Illich_%20The%20Right%20to%20Useful%20Unemployment/index.pdf
Contact us:
www.pempod.com
pempodcast23@gmail.com
2024-03-2954 minPost-Exertional MayonnaiseAmy Arthur: Pace Yourself
Daniel is joined by award winning health science writer, Amy Arthur, who has written a book about pacing. Pace Yourself: How to have energy in an exhausting world, brings Amy's experience of living with ME into a book for anyone dealing with fatigue. We talked about the challenges of writing a book about fatigue and pacing, the importance of rest, the impact of emotional energy output, social media use and becoming unconsciously competent at managing our energy levels.
Amy has seen positive benefits of pacing within her own chronic illness journey, however she is also very clear during the...2024-03-2055 minPost-Exertional MayonnaiseAnna Redshaw: Blue Sunday and Tea Party for MEDaniel is joined by Anna Redshaw, creator of Blue Sunday: Tea Party for ME. Blue Sunday takes place each year during ME Awareness month. The aim is simple - to raise awareness of ME and money for ME charities, whilst having a cup of tea and a piece of cake! Anna explains how the initiative began and grew into something that has raised over £100,000 for ME organisations over the last 12 years.
Find out more about Blue Sunday on Anna's blog page, M.E. myself and I...https://the-slow-lane.com/
Anna can be found on Instagram as theslowlane.me and v...2024-03-1336 minPost-Exertional MayonnaiseBear Lawrence: The Embleton Murders. Writing a character with ME.Bear Lawrence joins Daniel to tell us about his recent debut fiction publication: The Embleton Murders, A DCI Parrish Crime Thriller.
We talk about Bear's experience of becoming ill with Myalgic Encephalomyelitis and how he was led to write about his experiences and ultimately write a crime thriller centred on a character with ME.
Bear's books can be purchased through Amazon:
https://amzn.eu/d/cp1Fakl
www.pempod.com
contact us: pempodcast23@gmail.com
2024-03-0745 minPost-Exertional MayonnaiseWriting a teenage disability TV series with Sacha KentonIn this episode Daniel chats to Sacha Kenton, a screenwriter from New England living with ME who has written a dark comedy tv series called 'I Meow Back'. A proof of concept is being recorded this summer and it is hoped that a large streaming service will pick up the series to produce it going forward. Sacha is passionate about portraying disability in the mainstream. If you would like to support the project financially please check out the fundraiser here:
https://www.indiegogo.com/projects/i-meow-back-a-dark-comedy-short-film#/
Contact the podcast:
pempodcast23@gmail.com
www.pempod.com
2024-02-2139 minPost-Exertional MayonnaiseOn recent events in the ME worldDan and Dov catch up. We talk about the impact of recent deaths within the ME community, delve further into the Dragons' Den debacle and review recent episodes of the podcast and our grief series.
Beth Mazur obituary:
https://www.meaction.net/2024/01/10/beth-mazur-celebration-of-life-service/
Steve Topple article on Dragons' Den for the Canary:
https://www.thecanary.co/opinion/2024/01/24/acu-seeds-dragons-den-2/
Animal Joy by Nuar Alsadir - book mentioned by Dov
https://amzn.eu/d/1tNiBSX
https://www.pempod.com/
pempodcast23@gmail.com
2024-02-1353 minPost-Exertional MayonnaiseGrief Stories #Series finale: GriefSick with Emily BazalgetteWe end our Grief Stories series with a conversation with Emily Bazalgette who set up and runs GriefSick: a project exploring and bearing witness to chronic illness grief. Emily saw the need to provide a space where chronically ill people could explore the subject of grief, and is training in grief tending. Emily shares her own story and explains some of her findings from her research into grief and how models around grief may or may not apply to the unique experience of chronic illness. We talked about the importance of collective witnessing of grief and how as a...2024-02-0355 minPost-Exertional MayonnaiseHollie-Anne Brooks: Discussing Dragon's Den, Ear Seeds and MEOn the 18th January an episode of Dragons Den was aired in the UK. A pitch was made to business people asking for an investment into a company which sells acupuncture ear seeds. A claim was made by the entrepreneur that the ear seeds had aided her recovery from ME. Daniel is joined by Hollie-Anne Brooks, a journalist with ME who responded quickly with an article in Digital Spy which stressed why the segment was so damaging for people with ME. We talk about the episode, holistic therapies, media coverage, the role of the BBC and the hope that...2024-01-271h 01Post-Exertional MayonnaiseGrief Stories #9: Florencia explains the impact of life with Osteosarcoma and Arthrofibrosis
Daniel is joined by Florencia who lives in Scotland. In 2014 Florencia was diagnosed with a rare bone cancer called Ewing Sarcoma. Following surgery she developed Arthrofibrosis which has impacted her significantly in the years since. Florencia explains the debilitating and limiting nature of Arthrofibrosis on her life and how whilst there are possible treatments, these are inaccessible to her.
Contact us for details of Ewing Sarcoma and Osteosarcoma facebook support group.
2024-01-2032 minPost-Exertional MayonnaiseCrash! Judith Schossboeck & Matthias Mollner reflect on severe ME art exhibitionIn the summer of 2023, Judith who lives with Severe ME and her partner, Matthias, a visual and performance artist, organised an exhibition in a prestigious gallery in Vienna, Austria. Here, over a period of months, Judith and Matthais recorded video responses to Daniel's questions about ME and the creative process, and about arranging the exhibition with contributions from severe ME patients from all over the world.
Content warning: Contains swearing. Piece at the end of the episode may be emotionally draining for some to experience.
You can explore Judith and Matthias' work in more detail on their website:
https...2024-01-1153 minPost-Exertional MayonnaiseGrief Stories #8: Rebecca on accepting a new reality with MERebecca talks to Daniel from Senegal about her experience of becoming ill with ME and adjusting to a new way of life, having to adjust when being a single parent and the guilt that ME brings. Rebecca places importance of living in the present and aiming to replace negative emotions with peace, calmness, joy and kindness. We had some technical issues, so apologies for the sound quality and drift.
https://www.pempod.com/
pempodcast23@gmail.com
2023-12-3038 minPost-Exertional MayonnaiseLitsa Dremousis: Author, Essayist and Activist on writing and life with MEDaniel is joined by Litsa and her dog Jordan (who she describes as an inveterate cuddler and the primary reason she's alive). Litsa shares from her 30 year history of life with ME and we explore how she's navigated a writing career: interviewing famous music artists, publishing her own deeply personal stories, and raising awareness of the reality of ME at the highest levels.
Millions missing episode:
https://open.spotify.com/episode/1adUN7Qd0Quli2KEGbrvTx?si=EvhKekMJShyWkSD39RFzXw
https://litsadremousis.com/
Susan Sontag (illness as metaphor) info:
Illness as Metaphor https://g.co/kgs/JFg1yh
Get in touch: pempodcast23...2023-12-211h 06Post-Exertional MayonnaiseChat with Mayonnaise: Managing the holiday season with MEMichael Brooks from Chat with M.E. podcast joins Daniel for a joint episode where we talk about the challenges of getting through Christmas/Hannukah/Yule whilst living with Myalgic Encephalomyelitis.
Michael's podcast can be found wherever you listen to podcasts!
Michael mentioned the National Theatre at Home's subscription which can be found here: https://www.ntathome.com/
Get in touch: pempodcast23@gmail.com
www.pempod.com
2023-12-1538 minPost-Exertional MayonnaiseGrief Stories #7: dSavannah on living with, and managing the grief of ME and chronic illnessdSavannah joins us from Georgia in the US to share her life with ME and chronic illness. She shares her history, the grief over the things she has lost to ME and practical ways of managing grief on a daily basis, such as channelling anger and utilising gratitude.
pempodcast23@gmail.com
www.pempod.com
2023-12-0637 minPost-Exertional MayonnaiseGrief Stories #6: Ash offers his perspective on life with MEAsh lives in Sheffield in the UK. He has been living with POTs and ME for a number of years. In this episode he shares the challenges of spending the majority of his time in bed and the grief that comes with that. We discuss long distance relationships, and the benefits of having a good therapist.
www.pempod.com
pempodcast23@gmail.com
2023-11-3032 minPost-Exertional MayonnaiseJennie Jacques: ME/CFS and Vikings!In this episode we talk to Jennie Jacques who played Queen Judith in the History Channel Vikings series. Jennie talks about her experience of becoming ill with ME/CFS in 2018 and her passion for the science around the illness. Jennie asserts that this is not a mystery illness and stresses a desire to make a difference for the ME community. We also hear about her famous missing ear and related zebra print knickers!
Jennie organises the Bake4MECFS initiative to raise money for ME charities. You can also purchase mugs through the website!
https://bake4mecfs.com/
Contact the...2023-11-241h 06Post-Exertional MayonnaiseGrief Stories: Mid-Season review - Dov and Dan reflectDov returns and we discuss the project so far and our own reflections on grief. We read three written contributions from Lydia, Kirstie and Pamela.
We have five more Grief Stories episodes to come in the following weeks.
www.pempod.com
Email us at pempodcast23@gmail.com
2023-11-2149 minPost-Exertional MayonnaiseGrief Stories #5: Colleen shares a long-term perspective on ME/CFSColleen has been living with ME/CFS since 1989, as she says 'it's been a while'. Colleen oversees two facebook groups:
ME-ICC & Other marginalised diseases (public group)
ME-ICC Info (Private group)
She also writes a substack: View from the Trenches of Myalgic Encephalomyelitis which you can find here:
https://colleensteckelmeiccinfo.substack.com/
Contact the podcast:
pempodcast23@gmail.com
https://www.pempod.com/
2023-11-1711 minPost-Exertional MayonnaisePatricia Fortlage: Fine art photographer chronicles her Chronic Illness and ME/CFS journey - episode 15Patricia Fortlage is an award-winning photographic long-form storyteller and fine art photographer. In this episode we talk about her project 'Lemonade' which uses dramatic, personal and sometimes comical images to express her 'love letter to the chronic illness community'.
If you have the energy, we'd recommend visiting Patricia's website while you listen so that you can view her lemonade project and see the images we're discussing.
You can find Patricia's portfolio on her website:
https://www.patriciafortlage.com/
Contact us at: pempodcast23@gmail.com
https://www.pempod.com/2023-11-1049 minPost-Exertional MayonnaiseGrief Stories #4: Tamara's response to life with ME/CFSTamara shares her experience of becoming ill with ME/CFS and her attempts to adjust to life "as a jailed Tiger".
https://www.pempod.com/
pempodcast23@gmail.com
2023-11-0820 minPost-Exertional MayonnaiseSally Doherty: Toby and the Silver Blood Witches - Episode 14Sally Doherty is a children's author living with ME/CFS in England. Sally has two books published in the Toby trilogy with further work to come in the year ahead. Here Sally talks to us about her ME journey, the importance of writing characters with ME into her work and how she manages her writing alongside living with ME.
Sally's books can be found on Amazon here: https://amzn.eu/d/6GF2Sql
Or through all good book sellers.
Contact the podcast via e-mail: pempodcast23@gmail.com
Or via our website: www.pempod.com
2023-11-0325 minPost-Exertional MayonnaiseGrief Stories #3: Rachel Horton, Health Coach reflects on ME/CFS & Chronic Illness griefRachel Horton is a Health Coach living in Michigan USA. She shares from her own experience of CFS as well as reflecting on her work in the health profession.
Rachel referred to the writing of Victor Frankl, who's work can be found here:
https://amzn.eu/d/966D42Q
www.pempod.com
pempodcast23@gmail.com
2023-10-3121 minPost-Exertional MayonnaiseChristina Baltais, ME/CFS and the art of letting go - Episode 13We meet Christina Baltais who uses her art to express her experiences of life with ME/CFS.
Christina's art and writing can be found through her website: https://www.wordsasmedicine.com/ and https://seemeexpo.com/christina-baltais.
You can learn more about bake4ME/CFS here: https://bake4mecfs.com/
Post-Exertional Mayonnaise: https://www.pempod.com/
E-mail us at pempodcast23@gmail.com
2023-10-2738 minPost-Exertional MayonnaiseGrief Stories #2: Squiggle shares her CFS/ME story
In this episode Rachel aka Squiggle shares her own personal CFS/ME journey and the impact of grieving through this process.
You can join Rachel's online communities through discord and twitch here:
Discord: https://t.co/1wZGDoAo4B
Twitch: https://t.co/uSsk1Hgyy4
Contact the podcast at: pempodcast23@gmail.com
Website: pempod.com
2023-10-2528 minPost-Exertional MayonnaiseGrief Stories: ME/CFS and Chronic Illness #1In this episode we hear six unique voices of individuals living with Chronic Illness: Laura, Steph, Katie, Jo, Joy and Paul. Each reflects on the topic of grief and how Chronic Illness has impacted them in different way with regard to living grief.
The song, 'Nobody Knows', used throughout, is by Laura Vitale (who shares her own experience). Her music can be found here:
https://www.youtube.com/@UCbS9EGciD8gKmMNCYzg7aKQ
Please e-mail us with any weird symptoms or ideas for Exhaustion Enterprises you'd like to share!
We're also accepting poetry submissions.
Also, let us know what item...2023-10-221h 00Post-Exertional MayonnaiseA Girl Beyond Closed Doors with Jessica Taylor-Bearman - Episode 12In this episode we talk to Jessica Taylor-Bearman who spent her teenage and young adult years living with very severe ME/CFS. We talk about her life as portrayed through her first two autobiographical books and look forward to the release of her third book, A Girl Beyond Closed Doors.
A Girl Beyond Closed Doors is released on the 19th October 2023 and can be ordered here along with Jessica's previous books: https://amzn.eu/d/iAFoU9K
Please e-mail us with any weird symptoms or ideas for Exhaustion Enterprises you'd like to share!
We're also accepting poetry submissions.
Also...2023-09-211h 06Post-Exertional MayonnaiseChewing the Cud: Quality of life decisions when living with ME/CFS - Episode 11In this episode Dov and Dan catch up and 'chew the cud' over a range of issues relating to life with ME. We review recent interview episodes, chat about how we can involve people with severe ME in the podcast, navigating hospital visits, talk about decision-making and how this impacts quality of life, and go where the conversation takes us!
Memes/articles mentioned by Dov:
https://www.tumblr.com/ididit-allofit-foryou/720266316884426752
https://www.tumblr.com/mortallycrispygardener/724773725806952448/wow-this-is-great-i-think-ive-been
UK government consultation: interim delivery plan:
https://www.gov.uk/government/consultations/improving-the-experiences-of-people-with-mecfs-interim-delivery-plan/consultation-document-the-interim-delivery-plan-on-mecfs#:~:text=The%20consultation%20will%20run%20for,available%20on%20the%20...2023-09-081h 08Post-Exertional MayonnaiseThe Alchemists; Maeve Owen read by Sarah Boothby - Part 2In this episode Sarah Boothby reads from the unpublished novel of her daughter, Maeve Owen who died from ME in 2021. The novel is titled (as yet unpublished): The Alchemists; or Economic Consequences of the Peace. Character list and excerpts are available for viewing from www.pempod.com. If you haven't read part 1, we'd suggest you start there!
Artwork for the thumbnail by Amy Koller Anderson.
Please e-mail us with any weird symptoms or ideas for Exhaustion Enterprises you'd like to share!
We're also accepting poetry submissions.
Also, let us know what item you love that really helps you live...2023-09-031h 07Post-Exertional MayonnaiseThe Writing of Maeve Owen with Sarah Boothby - Part 1In this episode we talk to Sarah Boothby, who's daughter Maeve Owen died from ME in 2021. Sarah and Dan talk about Maeve and her writing. In part 2, Sarah reads from Maeve's novel: The Alchemists; or Economic Consequences of the Peace.
Artwork for thumbnail by Amy Koller Anderson.
Please e-mail us with any weird symptoms or ideas for Exhaustion Enterprises you'd like to share!
We're also accepting poetry submissions.
Also, let us know what item you love that really helps you live with chronic illness!
Email us at pempodcast23@gmail.com
Twitter: @pempodcast23
Website: pempod.com
Dov can be found...2023-09-0338 minPost-Exertional MayonnaiseAmplifying Absence with Alison Larkman - Episode 9In this episode we talk to Alison Larkman, an artist living with ME in Bristol, UK. Alison is planning a significant roaming art installation project next summer called I Would Be Here If I Could. You can learn more and take part at:
https://www.iwouldbehereificould.com/
Alison's other work can be seen at:
www.Alisonlarkman.com
To listen to Michael Brooks' podcast on Decode ME, search for Chat with M.E. podcast with your podcast provider. The Decode ME episode is number 7.
Dov will be back with us soon!
Please e-mail us with any weird symptoms or ideas...2023-08-2548 minPost-Exertional MayonnaiseRedefining Gravity with Sally Callow - Episode 8In this episode, we talk to Sally Callow who is organising a significant music event in the summer of 2024 to raise awareness of ME and to fund ME research.
You can learn more and get involved at:
redefininggravity.co.uk
Follow ME Foggy Dog at:
www.mefoggydog.org
Please e-mail us with any weird symptoms you'd like to share!
We're also accepting poetry submissions.
Also, let us know what item you love that really helps you live with chronic illness!
Email us at pempodcast23@gmail.com
Twitter: @pempodcast23
Website: pempod.com
Dov can be found on Instagram: dovshlomo
Art...2023-08-1757 minPost-Exertional MayonnaiseME and Identity - Episode 7In this episode Dov and Dan talk about trying to find a sense of self whilst living with ME and chronic illness. Apologies for the background noise. Will try and sort for next time!
Poems are provided by Lizzy Horn and Maija Haavisto. You can listen to Maija reading her poem and talking about chronic illness here: https://poets.org/poem/shipplum
You can listen to more of Ramy's music on twitter @ramyisback
Please e-mail us with any weird symptoms you'd like to share!
We're also accepting poetry submissions.
Also, let us know what item you love that really...2023-08-041h 07Post-Exertional MayonnaiseChallenging Perceptions with Vlad Vexler - Episode 6In this long form discussion, Dan meets Vlad Vexler, philosopher in politics and musical aesthetics to discuss his ME journey and his successful YouTube career. We talk about challenging persisting psychologisation narratives around ME, as well as Beethoven, and transhumanism.
You can find Vlad's YouTube Channels here:
ME diary:
/ @ucf3qsb15b2_wzbx...
Main channel:
/ @vladvexler
Chat channel:
/ @ucn7xhziw6eugsux...
Philosophy channel:
/ @ucl2ddwc5glhezu2...
Vlad's favourite Beethoven piece via Spotify:
https://open.spotify.com/album/5BZui2...
Please e-mail us with any weird symptoms you'd like to share!
We're also accepting poetry submissions.
Also, let us know what item you love that reall...2023-07-211h 23Post-Exertional MayonnaiseMagical Thinking and Living with ME - Episode 5
In this episode Dov and Dan discuss the pitfalls of magical thinking when living with ME and chronic illness. This is a longer episode and covers some heavy themes, so please listen at your own pace.
The clip we played by Carrie Poppy on retrospective bias and trauma hunting is part of a talk she gave to the Skeptics in the Pub channel on Mental Health Pseudoscience on Social Media and can be found here: https://youtu.be/urq3GT2coDw
Please e-mail us with any weird symptoms you'd like to share!
We're also accepting poetry submissions.
Also, let...2023-07-141h 06Post-Exertional MayonnaiseTalking Time - Episode 4We talk about time and how we process time and manage it while living with ME. Also, Dov interviews Dan about his creative songwriting process.
Please e-mail us with any weird symptoms you'd like to share!
We're also accepting poetry submissions.
Also, let us know what item you love that really helps you live with chronic illness!
Email us at pempodcast23@gmail.com
Twitter: @pempodcast23
Dov can be found on Instagram: dovshlomo
Art logo design by Lu Baker: www.lubakerart.com
Lu's Instagram: lubakerart
Intro music by Dan. You can find his music at @thelowside6867 on youtube.
Dov's books...2023-06-1658 minPost-Exertional MayonnaiseAnna's Ornithological JourneyAnna Wood tells us about her book, 25 Birds, and her ME story.
You can contact Anna via twitter @Annakwood or contact our podcast e-mail below if you would like her to send you the audio for her book and we'll pass details on.
Anna's book, 25 Birds can be purchased on Amazon here:
https://www.amazon.co.uk/25-Birds-Anna-K-Wood/dp/1739139100
If you're interested in taking part in the ME/CFS Art Auction, you can find the facebook group here:
https://www.facebook.com/groups/mecfsartauction/
Please e-mail us with any weird symptoms you'd like to share!
Also, let us know...2023-06-0941 minPost-Exertional MayonnaiseDan's storyListen to Daniel tell his ME story. Cog fog corner returns and we have a poignant poem by Jo Bruce (@therealmecfs on twitter). Exhaustion enterprises attempt to sell us a new service!
Note from Dan:
Dan here. I just wanted to clarify my comment about ME not being degenerative. While many of us experience ebbs and flows with our illness, for some with severe ME, the condition very much can be progressive and on reflection I didn't want that to go unrecognised. As Jo said in her poem, we have lost too many to this illness and my comment was...2023-06-0240 minPost-Exertional MayonnaiseDov's storyGet to know Dov as he tells a little of his ME story. We talk about the challenges of cognitive dysfunction, hear from our new questionable 'sponsor' Exhaustion Enterprises and finish with a poem. This episode is 40 minutes long. Please feel free to watch in stages as your health allows!
Email us at pempodcast23@gmail.com
Twitter: @pempodcast23
Dov can be found on Instagram: dovshlomo
Art logo design by Lu Baker: www.lubakerart.com
Lu's Instagram: lubakerart
Intro music by Dan. You can find his music at @thelowside6867 on you tube.
Dov's books can be accessed on amazon kindle...2023-05-2639 minPost-Exertional MayonnaiseIntroductionIntroduction to our podcast about living with ME/CFS, creativity and making meaning with Dov Zeller and Daniel Moore.
E-mail us at pempodcast23@gmail.com
Find us on social media (coming soon!)2023-05-1919 min