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The ResearchWorks PodcastEpisode 205 (Dr Ashleigh Thornton and Dr Dayna Pool)All about knowledge translationA special episode with our illustrious hosts before we catch up with Professor Nick Gottardo, Professor Alicia Spittle, Professor Andrew Whitehouse, Dr Gareth Baynam, Assoc. Professor Nikki Milne and Assoc. Clinical Professor Anita Gross amongst many others!2025-03-2237 minThe ResearchWorks PodcastEpisode 201 (Dr Rainer Blank and Dr Sebastian Schroeder)To round off 2024 and as an extra special lead-in to a stellar 2025 ahead, we have a holiday special - all about the EACD & IAACD 2025 Conference to be held in Heidelberg Germany! đ©đȘIt's going to be a very unique conference this year as a combined EACD/IAACD event - so join with Dr Sebastian Schroeder and Dr Rainer Blank as they speak with our very own Dr Dayna Pool!From a behind the scenes look, to what you can expect from the conference this year, the pre-conference sessions at the breathtaking UNESCO Monastery Maulbronn (FREE shuttles includ...2024-12-2729 minThe ResearchWorks PodcastEpisode 200 (Marissa Smith, Dr Dayna Pool, Dr Ashleigh Thornton)incredible!The team at the ResearchWorks Podcast are celebrating 200 episodes! With over 4 seasons, invited collaborators with the EACD - European Academy of Childhood-onset Disabilities Conference and the AusACPDM - the Australasian Academy of Cerebral Palsy and Developmental Medicine and Transformative Practice Award Winners for 2024, it has been a stellar journey. đJoin us for a brilliant wrap up for Season 4 - we have some special standalone episodes coming and in 2025, we'll be back on tour again, this time supporting the incredible 2025 EACD/IAACD conference in Heidelberg Germany - so we'll see you the...2024-11-0257 minThe ResearchWorks PodcastEpisode 196 (Monica Toohey)Effectiveness of postural interventions in cerebral palsy: umbrella systematic review.Monica Toohey , Remy Blatch-Williams , Kristian Budini , Astrid Ferreira , Alexandra Griffin , Ashleigh Hines , Michelle Jackman , Karin Lind , Jill Massey , Maria Mc Namara , Jenna Mitchell , Catherine Morgan , Esther Norfolk , Madison CB. Paton , Daniel Polyblank , Sarah Reedman , Iona NovakDiscussionThe objective of this umbrella systematic review was to summarize and evaluate the evidence for postural management interventions in cerebral palsy published since Gough's 2009 paper. We have expanded the scope of the review from passive continuous postural management to include active...2024-10-0559 minThe ResearchWorks PodcastEpisode 193 (Marissa Smith and Dr Dayna Pool)The pod now has many (thousands!) of new listeners and we decided to bring forward our annual Q and A session with the hosts of the show. A little more backstory of each host, a look back at why we do what we do, some incredible highlights you might have missed and why the pod is a firm proponent of evidence based practices.We cover off many topics, including:Is the podcast a full-time gig? What the difference between evidence-based and evidence-informed practice is,Qualitative research and t...2024-09-1457 minThe ResearchWorks PodcastAusACPDM 2024 (A Summary of AusACDPM 2024)It's our final episode from the AusACPDM Conference for 2024, held in Cairns, North Queensland!Join us for a look back at another incredible conference and some of our highlights for the week and what we are looking forward to in the future!Also, fittingly during the Olympics games, Dayna and Ash won an award!The very prestigious Transformative Practice Award - given to clinicians who encourage evidence-based practice and translate research into practice! đ*Producer Ed is very proud of them both - he writes these little blurbs, so it's not the host...2024-08-0316 minThe ResearchWorks PodcastAusACPDM 2024 (Dr Ashleigh Hines)Free Paper Best practice interventions.Parent's experiences of early intervention for infants with or at risk of cerebral palsy: a qualitative systematic review.Recorded live at AusACPDM from the main exhibition hall - the pod is a little noisier than the regular episodes but it does make it feel like you're right here with us in Cairns North Queensland! đ2024-08-0117 minThe ResearchWorks PodcastEACD 2024 (A summary of EACD 2024: Dr Dayna Pool)EACD 2024 has been a symphonic masterpiece of a conference - see what we did there! đ This episode is our summary of the EACD conference for 2024, here in Bruges/Brugge Belgium. We take a look at the topics of conversation both here on the pod and throughout the conference, dinners, breakfasts, impromptu catchups and more.We hope you enjoy - and we'll see you at EACD conference 2025!2024-06-0127 minThe ResearchWorks PodcastEpisode 139 (Matthew Haddon)Kindy Moves: the feasibility of an intensive interdisciplinary programme on goal and motor outcomes for preschool-aged children with neurodisabilities requiring daily equipment and physical assistanceMatthew Haddon, Loren West, Catherine Elliott, Corrin Walmsley, Jane Valentine, Natasha Bear, Dayna Pool, Healthy Strides Research Advisory CouncilAbstractObjectives: To determine the feasibility of an intensive interdisciplinary programme in improving goal and motor outcomes for preschool-aged children with non-progressive neurodisabilities. The primary hypothesis was that the intervention would be feasible.Design: 2024-05-1854 minThe ResearchWorks PodcastEpisode 125 (A thematic analysis)Season 3 Wrap UpFinal episode of the season?!?As Ash and Dayna reflect on this incredible year, we pull together some key themes of the episodes and the ever so wonderful and brilliant guests we have had on the show. We are so grateful for all of the researchers who so generously gave their time to help spread the word on the current state of science in the field. We have learnt so much and we hope you have had some great takeaways too!In true Ash style, the qualitative researcher in her...2023-10-2952 minThe ResearchWorks PodcastEpisode 121 (Loren West, Marissa Smith, Dr Dayna Pool, Dr Ashleigh Thornton)A roundtable discussion about the clinical application of Mobility as a Human Right!Mobility is a fundamental human right and is supported by the United Nations and the ON Time Mobility framework. W Logan, Bethany M Sloane, Lisa K Kenyon, Heather A Feldner PMID: 37232636 PMCID: PMC10215286 DOI: 10.3390/bs13050399 Free PMC article Abstract Mobility is a fundamental human right and is supported by the United Nations and the ON Time Mobility framework. The purpose of this study was to understand the effect of a powere...2023-09-3033 minThe ResearchWorks PodcastEpisode 117 (Mid-Season 3)It has been an incredible week for the podcast this week. A quick debrief with Ash and Dayna and a look ahead to some exciting new epsiodes!2023-09-0104 minThe ResearchWorks PodcastEACD 2023 (Dr Dayna Pool)Dr Dayna PoolCurtin University and the Healthy Strides FoundationThe final words.... Thank you!2023-05-2702 minThe ResearchWorks PodcastEACD 2023 (Jorn Ockerman - PhD candidate)Jorn OckermanGhent UniversityPresentation title: Current measurement practices and use of technology among Flemish pediatric physiotherapists.2023-05-2515 minThe ResearchWorks PodcastEACD 2023 (Dr Ruslan Vasyutin)Dr Ruslan Vasyutin  Founder of DCP Help and Master GoalPresentation title: Challenges of comprehensive rehabilitation for children and families in time of war conflict.2023-05-2525 minThe ResearchWorks PodcastEACD 2023 (Dr Nathalie De Beukelaer)Dr Nathalie De Beukelaer KU-Leuven, University of GenevaPresentation title: Morphological muscle growth in infants and toddlers: a longitudinal study2023-05-2515 minThe ResearchWorks PodcastEACD 2023 (Rose Elekanachi - PhD candidate)Rose ElekanachiMcGill UniversityPoster title: The development and validation of a cost of care questionnaire for children with arthrogryposis multiplex congenita: a caregiver perspective2023-05-2514 minThe ResearchWorks PodcastEACD 2023 (Associate Professor Helen Bourke Taylor)Associate Professor Helen Bourke TaylorMonash UniversityPresentation title: Online Healthy Mothers Healthy Families workshops: positive health and lifestyle impact for mothers of children with disabilities.2023-05-2518 minThe ResearchWorks PodcastEpisode 81 (Associate Professor Daniel Navon)How do genetic tests answer questions about neurodevelopmental differences? A sociological takeDaniel NavonAbstractWhen it comes to neurodevelopmental differences, a genetic test result can provide compelling answers. However, it is not always clear what the relevant question is. If we want to understand the impact of a genetic diagnosis such as NGLY1 deficiency or the fragile X, trisomy X, or 22q11.2 deletion syndromes on people with neurodevelopmental differences, we must be mindful about what exactly a genetic test is supposed to tell us, where and for...2023-05-211h 01The ResearchWorks PodcastEpisode 80 (Connor Johnstone)An interview with Connor Johnstone - discussing his personal journey and lived experience, the f-words and what they meant to him and the article: Effects of voluntary exercise on muscle structure and function in cerebral palsy by Noelle G. Moreau and Richard L. Lieber - published in DMCN 2022.Connor is a personal trainer, support worker and table tennis coach currently studying at Edith Cowan University to become a Clinical Exercise Physiologist. Connor has completed a bachelor's degree in exercise and sport science and a master's degree in strength and conditioning. Connor was a participation officer a...2023-05-1448 minThe ResearchWorks PodcastResearchWorks will be at the EACD 2023 conference in Slovenia!ResearchWorks is going to EACD Slovenia! âïžđȘđșWe'll be at the conference for EACD - the annual European Academy of Childhood Disability Conference - this year held in Ljubljana Slovenia! đžđźWe will have a booth in the main conference hall and hope to see you there! đWe'll be live recording podcast episodes with many of the conference speakers and bringing you all the latest news from the conference.Stay tuned for the special EACD episodes from May 24 - May 27 and come by the booth and say hello - we'd love to speak with you!...2023-05-0802 minThe ResearchWorks PodcastEpisode 79 (Professor Diane Damiano and Dr Ginny Paleg)Rethinking our physical therapy approach (Redux)This was an inspiring conversation. We covered so much ground and this just reflects the expertise of our guests today. Diane has been such a driving force for evidence based interventions. Her work has significantly influenced global practices and her passion was so tangible throughout this conversation. Ginnyâs perspective is incredibly refreshing and honest. I love how she seeks out interventions when they look promising but âwhen it doesnât pan outâ, she has the ability to move on. There is so much to tak...2023-04-3059 minThe ResearchWorks PodcastEpisode 78 (Assistant Professor Bhooma Aravamuthan)Determinants of gait dystonia severity in cerebral palsyBhooma R Aravamuthan, Toni S Pearson, Keisuke Ueda, Hanyang Miao, Gazelle Zerafati-Jahromi, Laura Gilbert, Cynthia Comella, Joel S PerlmutterAffiliations expandPMID: 36701240DOI: 10.1111/dmcn.15524AbstractAim: To determine the movement features governing expert assessment of gait dystonia severity in individuals with cerebral palsy (CP).Method: In this prospective cohort study, three movement disorder neurologists graded lower extremity dystonia severity in gait videos of individuals with...2023-04-2254 minThe ResearchWorks PodcastEpisode 77 (Georgia McKenzie)'Finding what works for me' - a qualitative study of factors influencing community gym participation for young adults with cerebral palsyGeorgia McKenzie, Nora Shields , Claire Willis Affiliations expandPMID: 35694973DOI: 10.1080/09638288.2022.2083243AbstractPurpose: To understand the factors influencing participation in community-based gym exercise for young adults with cerebral palsy (CP).Methods: A qualitative study using semi-structured interviews was conducted. Interviews were completed with 39 young adults with CP (15-30 years, GMFCS I-IV) following...2023-04-1648 minThe ResearchWorks PodcastEpisode 76 (Dr Roslyn Ward and Dr Neville Hennessey)Watch the video-cast at the ResearchWorks Podcast YouTube Channel!https://www.youtube.com/watch?v=S0dzGX1k3bsImplementation of an Early Communication Intervention for Young Children with Cerebral Palsy Using Single-Subject Research DesignRoslyn Ward, Elizabeth Barty, Neville Hennessey, Catherine Elliott, Jane ValentineAffiliations expandPMID: 36615031PMCID: PMC9821676DOI: 10.3390/jcm12010232Free PMC articleAbstractThe implementation of an intervention protocol aimed at increasing vocal complexity in three pre-linguistic children with cerebral palsy (two males, starting...2023-04-0254 minThe ResearchWorks PodcastEpisode 75 (Professor Andrew Whitehouse)Watch the video-cast at the ResearchWorks Podcast YouTube Channel!https://youtu.be/hO7VkbrVZoEHow much is the right amount of therapy?Among the most common questions we are asked when it comes to therapy for autistic children is how much therapy should a child be receiving.This is a really logical question to ask. It reflects the love and concern that parents have for their child, and their strong desire to make decisions that will best support their child now and into the future.2023-03-2559 minThe ResearchWorks PodcastEpisode 74 (Dr Sarah McIntyre)Watch the video-cast at the ResearchWorks Podcast YouTube Channel!https://www.youtube.com/watch?v=fNMsXKfCHkcGlobal prevalence of cerebral palsy: A systematic analysisSarah McIntyre, Shona Goldsmith, Annabel Webb, Virginie Ehlinger, Sandra Julsen Hollung, Karen McConnell, Catherine Arnaud, Hayley Smithers-Sheedy, Maryam Oskoui, Gulam Khandaker, Kate Himmelmann; Global CP Prevalence Group*Free PMC articleAbstractAim: To determine trends and current estimates in regional and global prevalence of cerebral palsy (CP)....2023-03-1549 minThe ResearchWorks PodcastEpisode 73 (Professor Peter Rosenbaum)Parenting a Child with a Neurodevelopmental DisorderPeter L Rosenbaum, Monika Novak-PavlicWatch the video-cast at the ResearchWorks Podcast YouTube Channel!https://youtu.be/MUfMh5lYk_IFree PMC articleAbstractPurpose of review: Traditional thinking and focus in 'childhood disability' have been on the child with the impairment - with the imperative to make the right diagnosis and find the right treatments. The implicit if not direct expectation was that interventions should aim to 'fix' the...2023-03-121h 03The ResearchWorks PodcastEpisode 72 (Professor Mark Bellgrove)Evidence-Based Clinical Practice Guideline For Attention Deficit Hyperactivity Disorder (ADHD) .This clinical practice guideline is for the identification, diagnosis, and treatment of people with ADHD.It outlines a roadmap for ADHD clinical practice, research and policy, now and in the future, with a focus on everyday functioning and quality of life for people who are living with ADHD and those who support them.The Guideline includes eight chapters covering the identification, diagnosis, and treatment of people with ADHD, as well as considerations for subgroups, service & policy...2023-03-0554 minThe ResearchWorks PodcastEpisode 71 (We're back for Season 3!)Watch the video-cast at the ResearchWorks Podcast YouTube Channel!https://www.youtube.com/@researchworkspodcastThe ResearchWorks Team is back for Season 3 with an all-star lineup of brilliant researchers - starting with Professor Mark Bellgrove, Professor Peter Rosenbaum, Professor Andrew Whitehouse and Dr Sarah McIntyre!The episodes will release from March 5, 2023.For more information on the pod, or to catch up on previous seasons and episodes - visit our website: www.researchworks.net2023-02-2603 minThe ResearchWorks PodcastEpisode 70 (Emily Prior - a 2022/2023 holiday special)LIVED EXPERIENCE - AN INSIGHT ON THERAPY, THE F-WORDS, RESEARCH AND EVIDENCE BASED PRACTICES AND WHAT KIND OF IMPACT IT CAN HAVE.Todayâs episode is one of our wrap up episodes where we bring together all the topics of conversation from the past season. We will be referring to the work of Christine Imms and the Family of Participation Related Constructs, Physical Activity through sport and the work of Georgina Clutterbuck, HĂ©rcules Ribeiro Leite. Moving through different life stages and the reasons for doing what we do - highl...2023-01-0848 minThe ResearchWorks PodcastEpisode 69 (End of season wrap up - 2022)Welcome to Season 2's end of year wrap up episode!We have had so very many excellent guests on the pod - both in person and online and covered a plethora of topics over that time. For episodes up to 56 , you'll find our mid-season wrap up in episode 57.This weeks episode covers our conversations with:Dr Catherine MorganProfessor HĂ©rcules Ribeiro LeiteAssociate Professor Helen LeonardAssociate Professor Suze LeitĂŁoDr Elizabeth Hill & Dr Samuel CalderGinny Paleg & Clinical Associate Professor Roslyn LivingstoneDr Lisa Ma...2022-12-1049 minThe ResearchWorks PodcastEpisode 68 (Dr Kyla Smith)AN EVIDENCE BASED APPROACH TO HEALTHY EATINGDr Kyla Smith is a paediatric dietician with a passion for helping families to feed their children well without the overwhelm. Dr Smith has a PhD in childhood weight management and 15 years experience working with restrictive eaters both in her clinic and online programs. Dr Smith has developed a suite of online programs and resources to help families feed their children with confidence. As the first paediatric dietician on our show, I must say, what a way to start! This episode sets the foundation for a l...2022-11-271h 01The ResearchWorks PodcastEpisode 67 (Professor Veronique Bach and Dr Sue McCabe)Thermoregulation in wakefulness and sleep in humansVeronique Bach, Frederic Telliez, Karen Chardon, Pierre Tourneux, Virginie Cardot, Jean-Pierre LibertIn this episode, we talk more broadly about thermoregulation in wakefulness and sleep in humans - a bit of a deep dive into human physiology. We increasingly understand that there is a relationship between sleep, body temperature regulation and patterns of skin temperature. The functional consequences of this relationship is that sleep disturbances can be observed with thermoregulatory changes. Knowing that there is this relationship, there are a number of clinical i...2022-11-2054 minThe ResearchWorks PodcastEpisode 66 (Professor Christine Imms)Participation, both a means and an end: a conceptual analysis of processes and outcomes in childhood disabilityChristine Imms, Mats Granlund, Peter H Wilson, Bert Steenbergen, Peter L Rosenbaum, Andrew M GordonPMID: 27640996DOI: 10.1111/dmcn.13237Free articleAbstractThis review outlines a conceptual approach to inform research and practice aimed at supporting children whose lives are complicated by impairment and/or chronic medical conditions, and their families. 'Participation' in meaningful life activities should be an essential intervention goal, to meet t...2022-11-1345 minThe ResearchWorks PodcastEpisode 65 (Dr Emily Jackson)Word learning and verbal working memory in children with developmental language disorderEmily Jackson, Suze LeitĂŁo, Mary Claessen and Mark Boyes.https://doi.org/10.1177/23969415211004109https://orcid.org/0000-0002-2537-7387AbstractBackground and aimsPrevious research into word learning in children with developmental language disorder (DLD) indicates that the learning of word forms and meanings, rather than form-referent links, is problematic. This difficulty appears to arise with impaired encoding, while retention of word knowledge remains intact. Evidence also suggests that w...2022-11-0551 minThe ResearchWorks PodcastEpisode 64 (Dr Lisa Mailleux and Lize Kleeren)Somatosensation and bringing together current science and anatomical knowledge combined with some practical strategies that can support children with unilateral cerebral palsy.The pediatric rehabilitation research unit at KU Leuven, under supervision of professor Hilde Feys, is dedicated to the evaluation and rehabilitation in children with neurological disorders, and more specifically in children with cerebral palsy. The main focus of current research is on upper limb function in children with unilateral cerebral palsy. The team studies upper limb function from a clinical, biomechanical and neurological approach. Research methodologies have been developed, including a c...2022-10-2953 minThe ResearchWorks PodcastEpisode 63 (Clinical Assistant Professor Roslyn Livingstone & Dr Ginny Paleg)Evidence-informed clinical perspectives on postural management for hip health in children and adults with non-ambulant cerebral palsyGinny Paleg, Roslyn LivingstoneAffiliations expandPMID: 35275575DOI: 10.3233/PRM-220002AbstractPostural management is a multi-disciplinary approach incorporating a comprehensive schedule of daily and night-time positions, equipment and physical activity to help maintain or improve body structures and function and increase activity and participation. Postural management may play a role in preventing contracture, deformity, pain, and asymmetry. This article provides an overview of the evidence supporting use of postural management to p...2022-10-231h 00The ResearchWorks PodcastEpisode 62 (Dr Samuel Calder and Dr Elizabeth Hill)The prevalence of and potential risk factors for Developmental Language Disorder at 10 years in the Raine StudySamuel D Calder, Christopher G Brennan-Jones, Monique Robinson, Andrew Whitehouse, Elizabeth HillPMID: 35922883DOI: 10.1111/jpc.16149AbstractAim: This study sought to determine the prevalence of Developmental Language Disorder (DLD) in Australian school-aged children and associated potential risk factors for DLD at 10 years.Methods: This study used a cross-sectional design to estimate the prevalence of DLD in Generation 2 of the prospective Raine Study...2022-10-1655 minThe ResearchWorks PodcastEpisode 61 (Associate Professor Suze LeitĂŁo)Language and Literacy in Young PeopleAssociate Professor Suze LeitĂŁoThis week, we set the scene for many upcoming conversations from researchers in the area of language and literacy. We took a broad view of what Language and Literacy in Young People is, what research is currently being conducted and where we can look to for the most up to date research in the area. There are several strands of research that we discussed which include intervention, theory and assessment, justice and mental health. All of this research al...2022-10-0949 minThe ResearchWorks PodcastEpisode 60 (Associate Professor Helen Leonard)CDKL5 deficiency disorder: clinical features, diagnosis, and managementHelen Leonard, Jenny Downs, Tim A Benke, Lindsay Swanson, Heather Olson, Scott Demarest AbstractCDKL5 deficiency disorder (CDD) was first identified as a cause of human disease in 2004. Although initially considered a variant of Rett syndrome, CDD is now recognised as an independent disorder and classified as a developmental epileptic encephalopathy. It is characterised by early-onset (generally within the first 2 months of life) seizures that are usually refractory to polypharmacy. Development is severely i...2022-10-0248 minThe ResearchWorks PodcastEpisode 59 (Professor HĂ©rcules Ribeiro Leite)Moving together is better: a systematic review with meta-analysis of sports-focused interventions aiming to improve physical activity participation in children and adolescents with cerebral palsyRicardo Rodrigues de Sousa Junior, Deisiane Oliveira Souto, Ana Cristina Resende Camargos, Georgina L Clutterbuck, HĂ©rcules Ribeiro LeiteAbstractPurpose: To analyze the effectiveness of sports-focused interventions on the participation of children and adolescents with cerebral palsy (CP).Methods: Study searches were conducted on EMBASE, PubMed, Scielo, PEDro, CINAHL, SPORTDiscuss in June 2022. We i...2022-09-2539 minThe ResearchWorks PodcastEpisode 58 (Dr Catherine Morgan)Early Intervention for Children Aged 0 to 2 Years With or at High Risk of Cerebral Palsy: International Clinical Practice Guideline Based on Systematic ReviewsCatherine Morgan, Linda Fetters, Lars Adde, Nadia Badawi, Ada Bancale, Roslyn N Boyd, Olena Chorna, Giovanni Cioni, Diane L Damiano, Johanna Darrah, Linda S de Vries, Stacey Dusing, Christa Einspieler, Ann-Christin Eliasson, Donna Ferriero, Darcy Fehlings, Hans Forssberg, Andrew M Gordon, Susan Greaves, Andrea Guzzetta, Mijna Hadders-Algra, Regina Harbourne, Petra Karlsson, Lena Krumlinde-Sundholm, Beatrice Latal, Alison Loughran-Fowlds, Catherine Mak, Nathalie Maitre, Sarah McIntyre, Cristina Mei, Angela Morgan, Angelina Kakooza-Mwesige, Domenico M Romeo, Katherine...2022-09-181h 02The ResearchWorks PodcastEpisode 57 (A Mid Season Special!)A MID-SEASON RECAPCan you believe we are already halfway through season 2? In this weekâs episode, we endeavoured to bring everything together from all of the wonderful interviews so far in 2022. We identified 3 main themes which, as Ed pointed out - really does bring together the 3 components of evidence based practice (go Ed - we were impressed!). When you combine the power of co-design (which represents the patient or consumer values and priorities), along with our clinical expertise (which was really highlighted through the assessments and classifications we covered that...2022-07-3157 minThe ResearchWorks PodcastEpisode 56 (Dr Leanne Sakzewski and Dr Sarah Reedman Part 2)The 2nd part of a 2 part series of interviews with Dr Leanne Sakzewski and Dr Sarah Reedman. As part of the training for NHMRC research project Active Strides-CP, Dr Sakzewski and Dr Reedman were visiting the Healthy Strides Foundation for training on the STRIDE component of the study.It was a rare opportunity to interview 2 of Australia's finest about all things research - the NHMRC, the HABIT-ILE study, Active Strides-CP, RCTs (randomized controlled trials) what makes up evidence based practice, the truth behind neuroplasticity and so much more!2022-07-2435 minThe ResearchWorks PodcastEpisode 55 (Dr Leanne Sakzewski and Dr Sarah Reedman Part 1) A 2 part series of interviews with Dr Leanne Sakzewski and Dr Sarah Reedman. As part of the training for NHMRC research project Active Strides-CP, Dr Sakzewski and Dr Reedman were visiting the Healthy Strides Foundation for training on the STRIDE component of the study.It was a rare opportunity to interview 2 of Australia's finest about all things research - the NHMRC, the HABIT-ILE study, Active Strides-CP, RCTs (randomized controlled trials) what makes up evidence based practice, the truth behind neuroplasticity and so much more!2022-07-1731 minThe ResearchWorks PodcastEpisode 54 (Dr Magnus PĂ„hlman)Neuroimaging findings in children with cerebral palsy with autism and/or attention-deficit/hyperactivity disorder: a population-based studyMagnus PĂ„hlman, Christopher Gillberg, Kate HimmelmannAbstractAimTo compare neuroimaging patterns according to the Magnetic Resonance Imaging Classification System (MRICS) in children with cerebral palsy (CP) with and without autism and/or attention-deficit/hyperactivity disorder (ADHD).MethodThis population-based study assessed 184 children (97 males, 87 females) with CP born from 1999 to 2006 from the CP register of western Sweden, who had completed comprehensive screening and clinical assessment for neuropsychiatric d...2022-07-1045 minThe ResearchWorks PodcastEpisode 53 (Dr Ellen Armstrong)A qualitative analysis of the experiences of children with cerebral palsy and their caregivers in a goal-directed cycling programmeEllen L Armstrong, Roslyn N Boyd, Christopher P Carty, Megan J Kentish, Benjamin I Goodlich, Sean A Horan AbstractPurpose: This qualitative thematic analysis aimed to capture the experiences of children with cerebral palsy (CP) and caregivers who completed an 8-week goal-directed cycling programme, to provide insights on engagement and programme feasibility.Methods: Children with CP (6-18 years, Gross Motor Function...2022-07-0351 minThe ResearchWorks PodcastEpisode 52 (Nadine Smith)Effect of targeted movement interventions on pain and quality of life in children with dyskinetic cerebral palsy: a pilot single subject research design to test feasibility of parent-reported assessmentsNadine Smith, Simon Garbellini, Natasha Bear, Ashleigh Thornton, Peta Watts, Noula GibsonAbstractPurpose: To determine the feasibility of using parent-reported outcome measures of the Paediatric Pain Profile (PPP), Sleep Disturbance Scale for Children (SDSC) and Care and Comfort Hypertonicity Questionnaire (CCHQ) as repeated outcome measures of change at weekly intervals for children with dyskinetic cerebral palsy (CP). The secondary...2022-06-2650 minThe ResearchWorks PodcastEpisode 51 (Anna te Velde)Neurodevelopmental Therapy for Cerebral Palsy: A Meta-analysisAnna Te Velde, Catherine Morgan, Megan Finch-Edmondson, Lynda McNamara, Maria McNamara, Madison Claire Badawy Paton, Emma Stanton, Annabel Webb, Nadia Badawi, Iona NovakAbstractBackground and objective: Bobath therapy, or neurodevelopmental therapy (NDT) is widely practiced despite evidence other interventions are more effective in cerebral palsy (CP). The objective is to determine the efficacy of NDT in children and infants with CP or high risk of CP.Methods: Cumulative Index to Nursing and...2022-06-1955 minThe ResearchWorks PodcastEpisode 50 (Associate Professor Paula Chagas)Development of the Gross Motor Function Family Report (GMF-FR) for Children with Cerebral PalsyPaula S. C. Chagas, Peter Rosenbaum, F. Virginia Wright, Lesley Pritchard, Marilyn Wright, Aline Martins Toledo, Ana Cristina R Camargos, Egmar Longo, Hercules R. Leite.Purpose: To describe the initial steps in the development of a family-completed, modified version of the Gross...2022-06-1250 minThe ResearchWorks PodcastEpisode 49 (Associate Professor Mark Peterson)Psychological morbidity among adults with cerebral palsy and spina bifidaMark D Peterson, Paul Lin, Neil Kamdar, Elham Mahmoudi, Christina N Marsack-Topolewski, Heidi Haapala, Karin Muraszko, Edward A HurvitzPMID: 32713401DOI: 10.1017/S0033291720001981AbstractBackground: Very little is known about the risk of developing psychological morbidities among adults living with cerebral palsy (CP) or spina bifida (SB). The objective of this study was to compare the incidence of and adjusted hazards for psychological morbidities among adults with and without CP or SB.Methods: Privately insured...2022-06-0550 minThe ResearchWorks PodcastEpisode 48 (Dr Corrin Walmsley)Measurement of Upper Limb Range of Motion Using Wearable Sensors: A Systematic ReviewCorrin P Walmsley, SĂźan A Williams, Tiffany Grisbrook, Catherine Elliott, Christine Imms, Amity CampbellAffiliations expandPMID: 30499058PMCID: PMC6265374DOI: 10.1186/s40798-018-0167-7Free PMC articleAbstractBackground: Wearable sensors are portable measurement tools that are becoming increasingly popular for the measurement of joint angle in the upper limb. With many brands emerging on the market, each with variations in hardware a...2022-05-2948 minThe ResearchWorks PodcastEpisode 47 (Associate Professor Laura Miller)ENabling VISions And Growing Expectations (ENVISAGE): Parent reviewers' perspectives of a co-designed program to support parents raising a child with an early-onset neurodevelopmental disabilityLaura Miller, Grace Nickson, Kinga Pozniak, Debra Khan, Christine Imms, Jenny Ziviani, Andrea Cross, Rachel Martens, Vicki Cavalieros, Peter RosenbaumAffiliations expandPMID: 34942443DOI: 10.1016/j.ridd.2021.104150AbstractAims: This study reports parents' perspectives of, ENVISAGE: ENabling VISions And Growing Expectations. ENVISAGE - co-designed by parents...2022-05-2251 minThe ResearchWorks PodcastEpisode 46 (Dr Hayley Passmore)Reframe the Behaviour: Evaluation of a training intervention to increase capacity in managing detained youth with fetal alcohol spectrum disorder and neurodevelopmental impairmentsHayley M Passmore, Raewyn C Mutch, Rochelle Watkins, Sharyn Burns, Guy Hall, James Urquhart, Jonathan Carapetis, Carol Bower Affiliations expandPMID: 35530127PMCID: PMC9067986DOI: 10.1080/13218719.2020.1780643Free PMC articleAbstractThe first study to investigate the prevalence of fetal alcohol spectrum disorder (FASD) within an Australian juvenile detention centre has identified the highest known prevalence of FASD among a...2022-05-1539 minThe ResearchWorks PodcastEpisode 45 (Dr Simon Garbellini)The Neurological Hand Deformity Classification: Construct validity, test-retest, and inter-rater reliabilitySimon Garbellini, Melinda Randall, Michael Steele, Catherine Elliott, Christine ImmsAbstractBackground: The Neurological Hand Deformity Classification (NHDC) is an impairment-based tool that classifies hand deformity into one of two ordinal scales: flexion or extension deformities. Classification is made from live observation or from recorded video footage. Differentiation between the levels is determined by wrist position and wrist and finger movement.Purpose: To examine aspects of validity and reliability...2022-05-0850 minThe ResearchWorks PodcastEpisode 44 (Dr Georgina Clutterbuck)SPORTS STARS: a practitioner-led, peer-group sports intervention for ambulant children with cerebral palsy. Activity and participation outcomes of a randomised controlled trialGeorgina L Clutterbuck, Megan L Auld, Leanne M JohnstonAbstractPurpose: To investigate the effectiveness of a practitioner-led, peer-group sports intervention for children with CP at GMFCS Level I-II.Method: Children with CP (GMFCS I-II; 6-12 years) were randomised to Sports Stars or waitlist-control groups. Sports Stars included eight-weeks (eight hours) of physiotherapist-led, sports-specific gross motor activity training, sports education...2022-05-0148 minThe ResearchWorks PodcastEpisode 43 (Associate Professor Helen Bourke-Taylor)Peer mentor training: Pathway to competency for facilitators of Healthy Mothers Healthy Families workshopsHelen M. Bourke-Taylor, Sarah Grzegorczyn, Kahli S. JoyceAbstractBackgroundHealthy Mothers Healthy Families (HMHF) is a women's health and empowerment programme designed to promote the health and well-being of mothers of children with a disability. An ongoing need to extend the reach of HMHF to more mothers, and increase scalability, resulted in development of a training programme based in principles of adult and transformative learning, to credential...2022-04-2452 minThe ResearchWorks PodcastEpisode 42 (Dr Tayla Penny)Multiple doses of umbilical cord blood cells improve long-term brain injury in the neonatal ratTayla R Penny, Yen Pham, Amy E Sutherland, Jamie G Mihelakis, Joohyung Lee, Graham Jenkin, Michael C Fahey, Suzanne L Miller, Courtney A McDonaldAbstractBackground: Hypoxic ischemic (HI) insults during pregnancy and birth can result in neurodevelopmental disorders, such as cerebral palsy. We have previously shown that a single dose of umbilical cord blood (UCB) cells is effective at reducing short-term neuroinflammation and improves short and long-term behavioural outcomes in rat...2022-04-1039 minThe ResearchWorks PodcastEpisode 41 (Associate Professor Ben Jackson)The science of persuasion and communicationWhen it comes to communication, crafting messages, harnessing the power of people and providing support around healthy living through health promotional strategies, it is important to understand that there is a whole body of work and science behind motivation. Evidence tells us that those services/programs/initiatives are only useful if people adhere to and engage with them. A wonderful example of this is the work that has been done by PAHL (Psychology of Active Healthy Living) https://www.jcu.edu.au/pahl The...2022-04-0354 minThe ResearchWorks PodcastEpisode 40 (Dr Ashleigh Thornton)The Experience of Locomotor Training From the Perspectives of Therapists and Parents of Children With Cerebral PalsyDayna Pool 1,2,3*, Catherine Elliott 1,3,4, Claire Willis 5 and Ashleigh Thornton 4,61 School of Allied Health, Curtin University, Perth, WA, Australia2 The Healthy Strides Foundation, Perth, WA, Australia3 Telethon Kids Institute, Perth, WA, Australia4 Perth Children's Hospital, Perth, WA, Australia5 School of of Allied Health, Human Services and Sport, La Trobe University, Melbourne, VIC, Australia6 UWA Medical School, The University of Western Australia, Perth, WA, AustraliaObjective: The objective of this study was to explore th...2022-03-2748 min
The ResearchWorks PodcastHoliday Special - the year in review (2021)After Producer Ed gave us his highlights, the Dr's are back to host the final episode of Season 1 of the ResearchWorks podcast! Far from just being a highlights show, we cover off not just the amazing guests we've hosted, interviewed, interrogated and had the immense privilege of speaking with but we break them down for you into the various themes and content groups.If you missed an episode, if you were trying to remember which topics we covered off, if you wanted to know just how the F-words (all the G-rated ones) fit into each e...2021-12-1229 min
The ResearchWorks PodcastHoliday Special No. 1 (2021)It's the penultimate episode of Season 1 of the ResearchWorks podcast!We've had an incredible time interviewing researchers from across the globe. Thank to our many thousands of listeners - we hope you get as much joy from listening to our episodes as we do making them!Ash and Dayna will return with one final episode next week before a well deserved Summer/Christmas and New Year break and the team will return in 2022 with some fantastic guests, even better icebreaker questions, amazing Q and A's with authors from around the world and of course, more...2021-12-0534 minThe ResearchWorks PodcastEpisode 37 (Professor Sonya Girdler)KONTAKTÂź social skills group training for Australian adolescents with autism spectrum disorder: a randomized controlled trialBahareh Afsharnejad, Marita Falkmer, Melissa H Black, Tasha Alach, Fabian Lenhard, Anna Fridell, Christina Coco, Kelly Milne, Sven Bölte, Sonya GirdlerPMID: 34052908DOI: 10.1007/s00787-021-01814-6AbstractWhile there is a large body of evidence drawn from randomised controlled trials supporting the efficacy of SSGT in autistic adolescents, the control arms of these studies are almost exclusively treated either as usual or waitlist. Addressing this limitation, 90 verbal autistic adolescents (70% male) aged 12-17 ye...2021-11-2847 minThe ResearchWorks PodcastEpisode 36 (Dr Dave Parsons)A Randomised Controlled Trial of an Information Communication Technology Delivered Intervention for Children with Autism Spectrum Disorder Living in Regional AustraliaDave Parsons, Reinie Cordier, Hoe Lee, Torbjorn Falkmer, Sharmila Vaz PMID: 30209645DOI: 10.1007/s10803-018-3734-3AbstractThis exploratory randomised controlled trial tested the effectiveness of a tablet-based information communication technology early intervention application to augment existing therapy with the aim of improving visual motor, imitation, language and social skills in young children with ASD who reside in regional areas. Fifty-nine participants were recruited and randomised to e...2021-11-2153 minThe ResearchWorks PodcastEpisode 35 (Dr Michael Trevarrow)Microstructural changes in the spinal cord of adults with cerebral palsyMichael P Trevarrow, Sarah E Baker, Tony W Wilson, Max J KurzAbstractAim: To quantify the microstructural differences in the cervical-thoracic spinal cord of adults with cerebral palsy (CP).Method: Magnetic resonance imaging of the proximal spinal cord (C6-T3) was conducted on a cohort of adults with CP (n=13; mean age=31y 11mo, standard deviation [SD] 8y 7mo; range=20y 8mo-47y 6mo; eight females, five males) and population...2021-11-1438 minThe ResearchWorks PodcastEpisode 34 (Dr Jodie Armstrong)Randomised Controlled Trial of a Therapeutic Playgroup for Children with Developmental DelaysJodie Armstrong , Sonya Girdler, Emma Davidson, Joanne Mizen, Natasha Bear, John Wray, Catherine ElliottPMID: 32623539DOI: 10.1007/s10803-020-04580-7AbstractA single-blind randomised control trial investigated the effectiveness of the Learn, Engage and Play (LEaP) playgroup. Seventy-one children with developmental delay were randomly allocated to an 8-week LEaP playgroup or control group and followed up at 12 and 28 weeks. On the primary outcome measure, LEaP demonstrated significant within group changes at 28 w...2021-11-0747 minThe ResearchWorks PodcastEpisode 33 (Dr Rachel Toovey)Task-specific training for bicycle-riding goals in ambulant children with cerebral palsy: a randomized controlled trialRachel A M Toovey,Adrienne R Harvey,Jennifer L McGinley,Katherine J Lee,Sophy T F Shih,Alicia J Spittle,https://doi.org/10.1111/dmcn.15029AbstractAimTo determine whether a task-specific physiotherapist-led training approach is more effective than a non-specific parent-led home programme for attaining bicycle-riding goals in ambulant children with cerebral palsy (CP).MethodSixty-two ambulant children with CP aged 6 to 15 years (33...2021-10-3146 minThe ResearchWorks PodcastEpisode 32 (Jen Prior)The paradox of normalization through rehabilitation: growing up and growing older with cerebral palsyLaura R Moll , Cheryl A CottPMID: 23066918DOI: 10.3109/09638288.2012.726689AbstractPurpose: To examine the experience of normalization through rehabilitation for persons growing up & growing older with lifelong physical impairment (cerebral palsy [CP]).Method: A qualitative methodology consisting of narrative inquiry informed by the Life Course Perspective. Multiple (3-4), in-depth interviews were completed with each participant in order to co-construct their life stories. Data were systematically compared for themes and...2021-10-2451 minThe ResearchWorks PodcastEpisode 31 (Dr Terence Sanger)Deep brain stimulation for cerebral palsy: where are we now?Terence D Sanger Affiliations expandPMID: 31211420DOI: 10.1111/dmcn.14295Free articleAbstract in English, Spanish, PortugueseCerebral palsy (CP) is a complex disorder and children frequently have multiple impairments. Dystonia is a particularly frustrating impairment that interferes with rehabilitation and function and is difficult to treat. Of the available treatments, deep brain stimulation (DBS) has emerged as an option with the potential for large effect size in a subgroup of children. Wh...2021-10-1745 minThe ResearchWorks PodcastEpisode 30 (Dr Michelle Jackman)Interventions to improve physical function for children and young people with cerebral palsy: international clinical practice guidelineMichelle Jackman, Leanne Sakzewski, Catherine Morgan, Roslyn N Boyd, Sue E Brennan, Katherine Langdon, Rachel A M Toovey, Susan Greaves, Megan Thorley, Iona Novak,First published: 21 September 2021 https://doi.org/10.1111/dmcn.15055AbstractAimTo provide recommendations for interventions to improve physical function for children and young people with cerebral palsy.MethodAn expert panel prioritized questions and patient-important outcomes. Using Grading o...2021-10-1055 minThe ResearchWorks PodcastEpisode 29 (Associate Professor Jenny Downs)Environmental enrichment intervention for Rett syndrome: an individually randomised stepped wedge trialJenny Downs, Jenny Rodger, Chen Li , Xuesong Tan, Nan Hu, Kingsley Wong , Nicholas de Klerk , Helen LeonardAffiliations expandPMID: 29321033PMCID: PMC5764021DOI: 10.1186/s13023-017-0752-8Free PMC articleAbstractBackground: Rett syndrome is caused by a pathogenic mutation in the MECP2 gene with major consequences for motor and cognitive development. One of the effects of impaired MECP2 function is reduced production of Brain Derived Neurotrophic Factor (BDNF), a protein...2021-10-0346 minThe ResearchWorks PodcastEpisode 28 (Mid-Season Announcement!)Thank you for listening to the ResearchWorks podcast! It's our pleasure to bring you the behind the scenes stories and interviews with some of the best researchers from Australia and across the globe!Dr Ash and Dr Dayna are currently on a mid-season break but stay tuned for a special announcement about our future plans, the CPD reporting for 2021 and some amazing stats about the Pod!We do it all for our amazing community, in our spare time and it's all about bringing Evidence Based Practice (EBP) to the fore. The whole point of EBP...2021-09-2704 minThe ResearchWorks PodcastEpisode 27 (Dr Roslyn Ward)Clinical utilisation of the Infant Monitor of vocal Production (IMP) for early identification of communication impairment in young infants at-risk of cerebral palsy: a prospective cohort studyR Ward, N Hennessey, E Barty, C Elliott, J Valentine & R Cantle MooreABSTRACTAim: To report prospective longitudinal data of early vocalisations of infants identified âat-riskâ of cerebral palsy (CP) for early identification of communication impairment.Method: This case-control longitudinal prospective cohort study reports on the assessment of 36 infants, 18 identified as at-risk of CP at t...2021-09-1245 minThe ResearchWorks PodcastEpisode 26 (Professor Egmar Longo and Professor Ana Carolina de Campos)Let's make pediatric physical therapy a true evidence-based field! Can we count on you?Egmar Longo, Ana Carolina de Campos, and Robert J. PalisanoIt has been five years since the publication of the systematic review by Novak et al.1 that reported levels of evidence for 64 interventions for children with cerebral palsy (CP) across the world â green light (do it), yellow light (moderate evidence â assess the results) and lack of evidence (donât do it). We are challenged to think about what has changed in the national and international scenario: are we the same ph...2021-09-0351 minThe ResearchWorks PodcastEpisode 25 (Dr Melissa Licari)IMPACT FOR DCD (Developmental Coordination Disorder) Names of Investigators:Dr Melissa Licari, Dr Jacqueline Williams, Dr Gail Alvares, Charmain Bernie, Wesley Billingham, Dr Paola Chivers, Dr Matthew Cooper, Georgina Earl, A/Prof Jenny Downs, Brian Elbers, Samantha Elbers, Prof Catherine Elliott, Dr Kiah Evans, Dr Tamika Heiden, Dr Leanne Lester, A/Prof Fleur McIntyre, Dr Sarah McIntyre, Prof Jan Piek, Sarah Pillar, Dr Siobhan Reid, Dr Jess Reynolds, Prof Alicia Spittle, Dr Renee Teal, Dr Ashleigh Thornton, Prof Andrew WhitehouseWhat is Impact for DCD?Impact for...2021-08-2949 minThe ResearchWorks PodcastEpisode 24 (Dr Vivienne Travlos)Mental wellbeing in non-ambulant youth with neuromuscular disorders: What makes the difference?Vivienne Travlos , Jenny Downs , Andrew Wilson , Dana Hince , Shane Patman PMID: 30606465DOI: 10.1016/j.nmd.2018.08.013AbstractThe physical and social challenges associated with neuromuscular disorders may impact mental wellbeing in non-ambulant youth during the more vulnerable period of adolescence. This cross-sectional survey investigated non-ambulant youths' mental wellbeing and relationships with physical health, participation and social factors. The conceptual model was the International Classification of Functioning, Disability and Health (ICF). Thirty-seven youth aged 13-22 years old (m...2021-08-1540 minThe ResearchWorks PodcastEpisode 23 (Part 2 - Clinical Professor Gareth Baynam)DIGIT-ALL: RARE DISEASESRare Diseases - a 2 part special!Rare diseases are increasingly recognised as a global public health priority and contribute to significant and disproportionately high health system impacts. Accordingly, they present clinical and public health challenges, as well as opportunities for digital health solutions across the lifespan, including improved diagnosis, treatment, navigation and care coordination, and integration and coordination for broader societal and patient wellbeing. People living with rare diseases, individually and cumulatively, are digital disruptors. In this manuscript the authors describe some of the unique dynamics of the rare disease d...2021-08-0834 minThe ResearchWorks PodcastEpisode 22 (Part 1 - Clinical Professor Gareth Baynam)DIGIT-ALL: RARE DISEASESRare Diseases - a 2 part special!Rare diseases are increasingly recognised as a global public health priority and contribute to significant and disproportionately high health system impacts. Accordingly, they present clinical and public health challenges, as well as opportunities for digital health solutions across the lifespan, including improved diagnosis, treatment, navigation and care coordination, and integration and coordination for broader societal and patient wellbeing. People living with rare diseases, individually and cumulatively, are digital disruptors. In this manuscript the authors describe some of the unique dynamics of the rare disease d...2021-08-0131 minThe ResearchWorks PodcastEpisode 21 (Dr Ulrica Jonsson)Changes in walking ability, intellectual disability, and epilepsy in adults with cerebral palsy over 50 years: a population-based follow-up studyUlrica Jonsson, Meta Nyström Eek, Katharina Stibrant Sunnerhagen, Kate HimmelmannPMID: 33772773DOI: 10.1111/dmcn.14871AbstractAim: To determine if walking ability and presence of intellectual disability and epilepsy change from childhood to 50 years of age in individuals with cerebral palsy (CP), and if such changes are related to age, sex, or CP subtype.Method: This was a population-based follow-up study of 142 adults born from 1959 to 1978 (82 m...2021-07-2538 minThe ResearchWorks PodcastEpisode 20 (Mitch Adams)A special episode with Kids Rehab's own Research Operations Manager. Today we highlight the team based approach to modern research - with a focus on project management and tales of research endeavours. With pearls of wisdom that highlight what to look for in making research happen smoothly (and to learn from the missteps that can cause hiccups).As part of the Kids Rehab team at Telethon Kids Institute and Perth Children's Hospital, Mitch provides operational support to the research team including financial, data, and program management. It was a pleasure to speak with Mitch about p...2021-07-1845 minThe ResearchWorks PodcastEpisode 19 (Associate Professor Alison Salt)Detection vision development in infants and toddlers with congenital vision disorders and profound-severe visual impairmentAlison T Salt, Michelle A O'Reilly, Elena Sakkalou, Naomi J DalePMID: 32237151DOI: 10.1111/dmcn.14525AbstractAim: To investigate detection vision development in infants and toddlers with congenital disorders of the peripheral visual system (CDPVS) and severe to profound visual impairment (SVI/PVI).Method: This was a longitudinal observational investigation of a cohort of infants with CDPVS (entry age 8-16mo) followed up 12 months later. Detection vision (Near Detection Scale [NDS]) and resolution...2021-07-0440 minThe ResearchWorks PodcastEpisode 18 (Associate Professor Asha Bowen)Congenital Cytomegalovirus (CMV) and Covid-19.This topic of infectious diseases is a really timely one. Our job as clinicians is face to face with children - we might be at arms length away or we may also be really up close too! This not only presents as a potential spread of an infectious disease, but it is also a point of contact where families might have some questions or potentially may be sitting on some misinformation about diseases such as CMV or COVID-19. There is so much information out there and not everything we read o...2021-06-2928 minThe ResearchWorks PodcastEpisode 17 (Dr Bhooma Aravamuthan)Gait features of dystonia in cerebral palsyBhooma R Aravamuthan, Keisuke Ueda, Hanyang Miao, Laura Gilbert, Sarah E Smith, Toni S PearsonAffiliations expandPMID: 33411352DOI: 10.1111/dmcn.14802AbstractAim: To determine the features cited by motor phenotyping experts when identifying dystonia in people with cerebral palsy (CP).Method: Dystonia identification in CP, particularly when comorbid with spasticity, can be difficult. The dystonia diagnostic criterion standard remains subjective visual identification by expert consensus. For this qualitative study, we conducted an inductive thematic analysis of...2021-06-2046 minThe ResearchWorks PodcastEpisode 16 (Dr David Hobbs)Assistive technology products: a position paper from the first global research, innovation, and education on assistive technology (GREAT) summitAbstractThis paper is based on work from the Global Research, Innovation, and Education on Assistive Technology (GREAT) Summit that was coordinated by WHOâs Global Cooperation on Assistive Technology (GATE). The purpose of this paper is to describe the needs and opportunities embedded in the assistive product lifecycle as well as issues relating to the various stages of assistive product mobilization worldwide.The paper discusses assistive technology product terminology and the da...2021-06-1342 minThe ResearchWorks PodcastEpisode 15 (Annie Chappell)The effect of a running training intervention on ankle power generation in children and adolescents with cerebral palsy: A randomized controlled trialAbstractBackground: Children and adolescents with cerebral palsy who are classified as Gross Motor Function Classification Scale level I or II are usually able to run but lack ankle power generation for push-off. The aim of this study was to analyze the efficacy of a running training program in improving ankle power generation in children and adolescents with cerebral palsy.Methods: This randomized controlled trial compared kinematic...2021-06-0839 minThe ResearchWorks PodcastEpisode 14 (Loren West, Marissa Smith, Georgia Hoffman, Dr Dayna Pool)A ROUNDTABLE DISCUSSION WITH RESEARCHERS AND CLINICIANSA special Q and A - in conjunction with families and parentsThis is a unique podcast as we hit pause on our usual program to answer questions that families have been sending us. On the pod this week, we have Marissa Smith (Physiotherapist), Georgia Hoffman (Physiotherapist), Loren West (Occupational Therapist) and Dr Dayna Pool (Physiotherapist).How we actually put all the knowledge into practice is a big and important question. Even if we have all the knowledge available, unless we know how we...2021-05-3138 minThe ResearchWorks PodcastEpisode 13 (Rachel Byrne)Comparing parent and provider priorities in discussions of early detection and intervention for infants with and at risk of cerebral palsyRachel Byrne, Andrea Duncan, Tracy Pickar, Stephanie Burkhardt, Roslyn N Boyd, Mary Lauren Neel , Nathalie L Maitre AbstractBackground: Although literature suggests that parents need support when their child is diagnosed with cerebral palsy (CP), it is unclear to what extent providers implement these supports in practice and what parental perspectives surround provider early diagnosis and management of CP. Therefore, we aimed to characterize and compare experiences of...2021-05-1733 minThe ResearchWorks PodcastEpisode 12 (Dr Sarah Reedman)Participation predictors for leisure-time physical activity intervention in children with cerebral palsySarah E Reedman, Roslyn N Boyd, Jenny Ziviani, Catherine Elliott, Robert S Ware, Leanne Sakzewski AbstractAim: To determine the predictors of magnitude of change in response to a participation-focused leisure-time physical activity intervention in children with cerebral palsy (CP) using the ParticiPAte CP protocol.Method: We included 33 children (16 males, 17 females) aged 8 to 12 years (mean age=10y, SD=1y 6mo) with CP with pre/postintervention data from a wait-list randomized trial. T...2021-05-1044 minThe ResearchWorks PodcastEpisode 11 (Dr Belinda McLean)Somatosensory discrimination impairment in children with hemiplegic cerebral palsy as measured by the sense_assess© kidsBelinda McLean, Susan Taylor, Jane Valentine, Leeanne Carey, Ashleigh Thornton, Catherine ElliottPMID: 33738799DOI: 10.1111/1440-1630.12729AbstractIntroduction: To characterise somatosensory discrimination impairment of the upper-limb across domains of tactile discrimination, limb position sense and haptic object recognition using the sense_assess© kids and examine associations with upper-limb motor performance in children with hemiplegic cerebral palsy (CP).Methods: The sense_assess© kids was administered at one timepoint to 28 chi...2021-04-2637 minThe ResearchWorks PodcastEpisode 10 (Dr Magnus PĂ„hlman)Autism and attention-deficit/hyperactivity disorder in children with cerebral palsy: high prevalence rates in a population-based studyMagnus PĂ„hlman , Christopher Gillberg , Kate HimmelmannAbstractAim: To assess a total population of school-age children with cerebral palsy (CP) for autism and attention-deficit/hyperactivity disorder (ADHD) with a view to determining their prevalence and to relate findings to motor function, intellectual disability, and other associated impairments.Method: Of 264 children, born between 1999 and 2006, from the CP register of western Sweden, 200 children (109 males, 91 females, median age a...2021-04-1944 minThe ResearchWorks PodcastEpisode 9 (Dr Noula Gibson)Prevention and management of respiratory disease in young people with cerebral palsy: consensus statementNoula Gibson, Amanda M Blackmore, Anne B Chang, Monica S Cooper, Adam Jaffe, Wee-Ren Kong, Katherine Langdon, Lisa Moshovis, Karolina Pavleski, Andrew C WilsonAbstractin English, Spanish, PortugueseRespiratory illness is the leading cause of mortality in children with cerebral palsy (CP). Although risk factors for developing chronic respiratory illness have been identified, comprehensive clinical care recommendations for the prevention and management of respiratory illness do not currently exist. We invited over 200 clinicians a...2021-04-1135 minThe ResearchWorks PodcastEpisode 8 (Clinical Professor Jane Valentine)Botulinum toxin and surgical intervention in children and adolescents with cerebral palsy: who, when and why do we treat?Jane Valentine, Sue-Anne Davidson, Natasha Bear, Eve Blair, Roslyn Ward, Ashleigh Thornton , Katherine Stannage, Linda Watson, David Forbes, Catherine Elliott PMID: 31415723DOI: 10.1080/09638288.2019.1644381AbstractIntroduction: This audit aimed to increase understanding of the long-term outcomes of evidence-based medical and surgical interventions to improve gross motor function in children and adolescents with Cerebral Palsy.Methods: Retrospective audit of a birth cohort (2000-2009) attending a tertiary service in...2021-04-0535 minThe ResearchWorks PodcastEpisode 7 (Dr Claire Willis)A realist evaluation of a physical activity participation intervention for children and youth with disabilities: what works, for whom, in what circumstances, and how?C E Willis , S Reid , C Elliott , M Rosenberg , A Nyquist , R Jahnsen, S GirdlerAbstractBackground: The need to identify strategies that facilitate involvement in physical activity for children and youth with disabilities is recognised as an urgent priority. This study aimed to describe the association between context, mechanisms and outcome(s) of a participation-focused physical activity intervention to understand what works...2021-03-2840 minThe ResearchWorks PodcastEpisode 6 (Dr Sian Williams)Measuring skeletal muscle morphology and architecture with imaging modalities in children with cerebral palsy: a scoping reviewSĂźan A Williams 1 2, N Susan Stott 2 3, Jane Valentine 4 5, Catherine Elliott 4 6, SiobhĂĄn L Reid 7AbstractAim: To investigate the use of ultrasound and magnetic resonance imaging (MRI) methodologies to assess muscle morphology and architecture in children with cerebral palsy (CP).Method: A scoping review was conducted with systematic searches of Medline, Embase, Scopus, Web of Science, PubMed, and PsycInfo for all original ar...2021-03-2140 minThe ResearchWorks PodcastEpisode 5 (Assistant Professor Olaf Verschuren)24âhour activity for children with cerebral palsy: a clinical practice guideOlaf Verschuren Raquel Y Hulst Jeanine Voorman Sigrid Pillen Nicole Luitwieler Jeroen Dudink Jan Willem GorterThe association between physical activity and health has been clearly established, and the promotion of physical activity should be viewed as a costâeffective approach that is universally prescribed as a firstâline treatment for nearly every chronic disease. Health care providers involved in the care for individuals with cerebral palsy (CP) are encouraged to take an active role in promoting their health...2021-03-1439 minThe ResearchWorks PodcastEpisode 4 (Professor Andrew Whitehouse)Interventions for children on the autism spectrum: A synthesis of research evidence. There are many interventions available for children on the autism spectrum. Learning about and navigating these interventions can be challenging for families, clinical practitioners, and educators. Autism CRC has completed a report, entitled Interventions for children on the autism spectrum: A synthesis of research evidence. The report includes two reviews:âą narrative review, to provide an overview ofinterventions for children on the autism spectrumand their use in Australiaâą umbrella review, to understand and summarisethe evidence base for i...2021-03-0739 minThe ResearchWorks PodcastEpisode 3 (Professor Iona Novak)AbstractPurpose of review: Cerebral palsy is the most common physical disability of childhood, but the rate is falling, and severity is lessening. We conducted a systematic overview of best available evidence (2012-2019), appraising evidence using GRADE and the Evidence Alert Traffic Light System and then aggregated the new findings with our previous 2013 findings. This article summarises the best available evidence interventions for preventing and managing cerebral palsy in 2019.Recent findings: Effective prevention strategies include antenatal corticosteroids, magnesium sulfate, caffeine, and neonatal hypothermia. Effective allied health interventions include...2021-02-2839 minThe ResearchWorks PodcastEpisode 2 (Dr Sue McCabe)Welcome back - it's our second episode!Patterns and reliability of children's skin temperature prior to and during sleep in the home settingSusan M McCabe, Catherine Elliott, Katherine Langdon, Chris R AbbissPMID: 29885918DOI: 10.1016/j.physbeh.2018.06.005AbstractThe relationship between patterns of change in skin temperature and sleep is well recognised. In particular, there is a rapid rise in distal skin temperature (Tdistal) and slower rise in proximal skin temperature (Tproximal) prior to sleep onset. The difference between Tdistal and Tproximal is known as the d...2021-02-2037 minThe ResearchWorks PodcastEpisode 1 (Dr Dayna Pool)The Pilot episode!Locomotor and robotic assistive gait training for children with cerebral palsy Dayna Pool, Jane Valentine, Nicholas F Taylor, Natasha Bear, Catherine Elliotthttps://pubmed.ncbi.nlm.nih.gov/33225442/AbstractAim: To determine if robotic assisted gait training (RAGT) using surface muscle electrical stimulation and locomotor training enhances mobility outcomes when compared to locomotor training alone in children with cerebral palsy (CP).Method: Forty children (18 females, 22 males; mean age 8y 1mo, SD 2y 1mo; range 5y 1mo-12y 11mo) with C...2021-02-1033 min