Shows
Bendy Bodies with Dr. Linda BluesteinGluten, MTHFR, Mast Cells, and More | Office Hours (Ep 155)In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein tackles a series of complex listener questions originally submitted by clinicians after her guest appearance on The Curbsiders internal medicine podcast. From the flaws in the EDS diagnostic criteria to the misunderstood role of MTHFR gene (methylenetetrahydrofolate reductase), SVT (supraventricular tachycardia), celiac disease, and mast cell medications, she offers guidance, clarity, and practical advice. She also digs into how to find a provider who actually understands dysautonomia and shares personal hacks that empower patients to ask smarter questions during appointments. This episode is a toolkit for patients a...2025-07-2454 minBendy Bodies with Dr. Linda BluesteinRevising the Hypermobile EDS Criteria with Dr. Pradeep Chopra (Ep 154)In this compelling episode of the Bendy Bodies Podcast, Dr. Linda Bluestein is joined by her longtime mentor and internationally respected EDS expert, Dr. Pradeep Chopra. Together, they tackle some of the most frustrating—and frequently misunderstood—questions surrounding hypermobile Ehlers-Danlos Syndrome (hEDS). From major flaws in the 2017 diagnostic criteria to the hidden surgical risks that could lead to serious complications like CCI (craniocervical instability), this conversation dives deep into clinical insights and lived experience. Listeners will also hear the surprising story of how Dr. Chopra helped inspire Dr. Bluestein to open her own practice. Whether you're a patient, paren...2025-07-171h 18Bendy Bodies with Dr. Linda BluesteinWhat’s Behind the Rise in Chemical Sensitivity? | Office Hours (Ep 146)What if your symptoms weren’t isolated… but signals in a much larger system breakdown? In this wide-ranging solo Q&A, Dr. Linda Bluestein uncovers the hidden threads connecting uncontrolled pain before surgery, unexplained eye issues, MCAS, multiple chemical sensitivity, Alpha-gal syndrome, and even autism risk.
From the scar tissue no one warned you about to the medication that works—but doctors won’t prescribe—it’s all here. Dr. Bluestein shares eye-opening research on TILT (Toxicant-Induced Loss of Tolerance), fragrance-triggered flares, and why standard pre-op care fails patients with connective tissue disorders.
And woven throughout it a...2025-05-2247 minBendy Bodies with Dr. Linda BluesteinIs Your EDS Party Trick Causing Long-Term Damage? | Office Hours (EP 142)What if the very things you do to feel or look better are quietly making you worse? In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein answers listener questions—but what begins as a practical Q&A quickly dives into rarely discussed truths about cosmetic procedures, EMFs, neuroinflammation, and even fragrances as dangerous triggers.You’ll hear surprising stories from patients who’ve suffered unexpected complications—and discover how seemingly harmless habits, like party tricks or perfume, could be tipping the scale toward long-term damage. Plus, Dr. Bluestein unpacks the case for rena...2025-04-2445 minBendy Bodies with Dr. Linda BluesteinLower Your EDS Pain | Office Hours (EP 138)In this solo Q&A episode, Dr. Linda Bluestein answers your biggest hypermobility questions, tackling topics like whether getting an official EDS (Ehlers-Danlos Syndromes) diagnosis is worth it, which pain medications actually help, how to improve posture, and the growing stigma around EDS. She also discusses visceroptosis (organ prolapse), posture braces, and the legalities of medical centers refusing EDS patients. Dr. Bluestein shares practical hypermobility hacks and gives insight into the challenges patients face when seeking care. If you’ve ever wondered how to advocate for yourself, manage pain, or improve daily function, this episode is packed with expert ad...2025-03-2745 minBendy Bodies with Dr. Linda BluesteinThe Truth About Hormone Therapy | Office Hours (EP 135)In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein dives deep into the complex world of hormones, menopause, and connective tissue disorders. She explores how estrogen, progesterone, and testosterone impact joint health, the benefits and risks of hormone replacement therapy (HRT), and why menopause can worsen EDS symptoms. Dr. Bluestein also breaks down gender-affirming hormone therapy, the role of mast cells in hormonal responses, and why some testosterone clinics may not have your best interests at heart. Whether you're considering HRT, navigating menopause with hypermobility, or wondering how hormones influence mast cells, this episode is packed with practi...2025-03-0650 minBendy Bodies with Dr. Linda BluesteinReversing Brain Fog & Inflammation with Dr. Ilene Ruhoy (Ep 132)In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Ilene Ruhoy, a board-certified neurologist and environmental toxicologist, for an in-depth discussion on brain fog, cognitive dysfunction, and chronic fatigue in conditions like Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome (MCAS), and dysautonomia. Dr. Ruhoy shares insights on the immune system’s role in neurological symptoms, the impact of mast cell activation, and the role of treatments like peptides, IVIG (intravenous gammaglobulin), plasmapheresis, and immune modulators. They also discuss the hidden effects of histamine on the brain, how sensory sensitivity contributes to fatigue, and the role of...2025-02-131h 24Bendy Bodies with Dr. Linda BluesteinTestosterone is Essential for Women with Dr. Kelly Casperson (Ep 131)In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein chats with Dr. Kelly Casperson, a urologist and sexual health expert, about hormones, libido, and sexual wellness—especially for those with hypermobility, Ehlers-Danlos Syndrome (EDS), and related conditions. They dive into testosterone in women, hormone myths, bladder health, vaginal estrogen, and why pelvic floor therapy is a must. Dr. Casperson debunks common hormone fears, explains the role of mast cells and bladder issues, and shares insights on navigating intimacy with chronic illness. This episode is packed with must-know information on aging, sexual health, and proactive care for those wi...2025-02-0655 minBendy Bodies with Dr. Linda BluesteinHidden Causes of Painful Sex with Dr. Irwin Goldstein & Sue Goldstein (Ep 130)In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein speaks with sexual health experts Dr. Irwin Goldstein & Sue Goldstein. This amazing husband and wife team share insights on common issues such as vestibulodynia, libido challenges, and treatment options ranging from physical therapy to hormone therapy. They explore the often-overlooked intersection of joint hypermobility conditions like Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome (MCAS), and Postural Orthostatic Tachycardia Syndrome (POTS) with sexual dysfunction. They discuss how connective tissue disorders impact sexual health, the role of the sacral nerve in arousal and pain, and how patients can advocate for b...2025-01-301h 24Bendy Bodies with Dr. Linda BluesteinMast Cells: A Hidden Trigger with Dr. Jill Carnahan (Ep 129In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein chats with functional medicine expert Dr. Jill Carnahan about tackling complex conditions like Mast Cell Activation Syndrome (MCAS), Ehlers-Danlos Syndrome (EDS), and POTS. A Breast Cancer and Crohn's disease survivor, Dr. Carnahan shares her unique approach to identifying root causes of chronic illness using functional medicine principles. They explore the triad of MCAS, EDS, and dysautonomia, and discuss tools like the limbic system, toxin reduction, and gut healing to improve patient outcomes. This episode is packed with practical insights for navigating chronic illness and optimizing your health.2025-01-2354 minBendy Bodies with Dr. Linda BluesteinIV Fluids, Surgery, and Supplements | Office Hours (Ep 128)In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein tackles your most pressing questions about preparing for surgery with conditions like Ehlers-Danlos Syndrome (EDS), POTS, and MCAS. Dr. Bluestein explains how the recent IV fluid shortage may affect you, which supplements to stop before surgery, and why hydration is key for successful outcomes. She also addresses the importance of communicating with your surgeon about your unique medical needs and provides practical pre- and post-surgery hacks to optimize recovery. Packed with valuable tips, this episode is a must-listen for anyone navigating surgery with chronic conditions.2025-01-1636 minBendy Bodies with Dr. Linda BluesteinPelvic Floor Secrets for Hypermobility with Dr. Emily Bohan (Ep 127)In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein speaks with her personal physical therapist, Dr. Emily Bohan, about the often-overlooked role of pelvic floor health in people with hypermobility, EDS, and related conditions. Emily explains why pelvic floor dysfunction can cause issues like low back pain, hip instability, urinary incontinence, and constipation. She shares her expertise on how to strengthen and relax the pelvic floor safely, emphasizing why Kegels aren't always the answer. Packed with practical tips, including "stop power peeing" and incremental exercise strategies, this episode provides actionable insights to help anyone dealing with pelvic...2025-01-091h 07Bendy Bodies with Dr. Linda BluesteinNavigating College with EDS: A Firsthand Experience with Lauren Vasko (EP 126)In this deeply meaningful episode of the Bendy Bodies Podcast, Dr. Linda Bluestein reconnects with her very first EDS patient, Lauren Vasko. Lauren shares her remarkable story of resilience, from navigating life in a wheelchair, managing Cranial-Cervical Instability (CCI), and battling POTS, to regaining her independence and teaching art in Kenya. She reflects on her challenges with misdiagnoses, traumatic medical experiences, and the importance of self-advocacy. Lauren reveals the tools, treatments, and mindset shifts that helped her heal, including physical therapy, medications, supplements, and setting boundaries. Her message of hope reminds us that even the hardest journeys can lead...2025-01-021h 09Bendy Bodies with Dr. Linda BluesteinStrategies for POTS Relief with Dr. Satish Raj (Ep 125)In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with leading autonomic specialist Dr. Satish Raj about POTS (Postural Orthostatic Tachycardia Syndrome), dysautonomia, and orthostatic intolerance. Dr. Raj delves into the complexity of these conditions, including their diverse causes, challenges in diagnosis, and innovative treatments. Learn why POTS is a "feeling faint" disorder rather than a fainting disorder, the role of compression garments and increased sodium intake, and how non-pharmacological treatments form the foundation of care. Packed with practical advice and expert insights, this episode is essential listening for anyone navigating POTS or related conditions.2024-12-261h 22Bendy Bodies with Dr. Linda BluesteinThe Truth About Food Allergy Testing | Office Hours (Ep 124)In this informative solo episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, dives into pressing topics impacting the hypermobility community. Learn about the new anesthesia time limit policy from Anthem Blue Cross (that was then reversed), how to manage Mast Cell Activation Syndrome (MCAS), understand food allergy testing, and find the best coaching options for those with complex conditions. Takeaways:New Anesthesia Policy Impacts EDS Patients: Anthem Blue Cross introduced time limits on anesthesia coverage, potentially shifting extra costs to patients if surgeries exceed these limits, making communication wit...2024-12-1954 minBendy Bodies with Dr. Linda BluesteinHow EDS Affects the Ears, Nose, and Throat with Dr. DasIn this enlightening episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with otolaryngologist Dr. Shu Das about the unique ENT challenges faced by people with Ehlers-Danlos Syndrome (EDS). Dr. Das shares his expertise on common issues like tonsil stones, chronic sore throats, and sinus infections, while diving deep into how EDS impacts vocal cords, nasal health, and even hearing. He offers practical tips for managing symptoms, from antibiotic courses to alternative surgical approaches. Packed with advice on avoiding unnecessary surgeries and improving overall quality of life, this episode is a must-listen for anyone navigating EDS and ENT-related...2024-12-121h 16Bendy Bodies with Dr. Linda BluesteinThe Next Generation of EDS Experts with Jeevan Mann and Delaney KenneyIn this episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with two brilliant young researchers, Jeevan Mann and Delaney Kenney, about their groundbreaking work in Ehlers-Danlos Syndromes (EDS). Jeevan shares insights into using 3D skin models for understanding hypermobile EDS, while Delaney discusses her biorepository project and the hope for future treatments. They also share personal experiences navigating life with chronic illness, the importance of advocating for accommodations, and the role of community in supporting those with EDS. This inspiring conversation highlights the innovative research that could transform EDS care and diagnosis.T...2024-12-051h 09Bendy Bodies with Dr. Linda BluesteinFinding the Right PT for You with Wendy WagnerIn this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, welcomes Chicago-based physical therapist Wendy Wagner to discuss the unique challenges of physical therapy for hypermobility and Ehlers-Danlos Syndrome (EDS). Wendy, who personally manages EDS, postural orthostatic tachycardia syndrome (POTS), and mast cell activation syndrome (MCAS), shares her journey, insights on cervical instability, and tips for choosing the right physical therapist. They dive into the importance of “starting low and going slow” in exercise, strategies for avoiding flares, and how to tailor physical therapy to individual needs. Whether you’re looking to build strength or simply...2024-11-211h 21Bendy Bodies with Dr. Linda BluesteinFood, Fiber, and Flexibility with Lorna RyanIn this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, explores the impact of nutrition on joint hypermobility with Lorna Ryan, chair of the Diet and Nutrition Working Group for the Ehlers Danlos Society. Lorna shares essential advice on how to nourish the body for better pain management, improved gut health, and more energy. From the importance of fiber to balancing nutrients and understanding food sensitivities, this conversation is packed with practical tips. Lorna also shares her favorite recipes and explains how the right foods can help reduce EDS (Ehlers-Danlos Syndrome) symptoms and support gut...2024-11-141h 12Bendy Bodies with Dr. Linda BluesteinBiomarkers - Are we Close? with Dr. Clair FrancomanoIn this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, has an in-depth conversation with Dr. Clair Francomano, a leading expert on connective tissue disorders and Chair of the Medical and Scientific Advisory Board for the Ehlers-Danlos Society. Dr. Francomano shares her insights on diagnosing hypermobile Ehlers-Danlos Syndrome (hEDS) versus hypermobility spectrum disorders (HSD), the current state of genetic testing, and emerging biomarkers (are we close?) that could revolutionize hEDS diagnosis. She discusses the potential connections between EDS, mast cell activation syndrome (MCAS), and postural orthostatic tachycardia syndrome (POTS), offering advice for patients navigating this...2024-11-071h 13Bendy Bodies with Dr. Linda BluesteinMy Life With EDS | Office HoursIn this personal solo episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, opens up about her journey from aspiring ballet dancer to renowned hypermobility expert. Dr. Bluestein shares her struggles with joint pain, dislocations, and chronic illness, which led to her diagnosis of Ehlers-Danlos Syndrome (EDS). Along with her personal story, Dr. Bluestein reveals the hacks and strategies that have helped her regain function, manage pain, and improve her quality of life. From practical tips to movement strategies, this episode is packed with advice on navigating hypermobility and chronic pain. Whether you’re newly diagnosed or...2024-10-3156 minBendy Bodies with Dr. Linda BluesteinTarlov Cysts Truths with my Surgeon, Dr. Frank FeigenbaumIn this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, reconnects with her neurosurgeon, Dr. Frank Feigenbaum, who performed her Tarlov cyst surgery in 2011. Dr. Feigenbaum, a leading expert in Tarlov cyst treatment, shares the complexities of diagnosing these cysts, how they affect the nerves, and the groundbreaking surgical techniques he developed. Dr. Bluestein reflects on her personal journey through surgery and recovery, providing listeners with a unique patient-surgeon perspective. Tune in to learn about Tarlov cyst symptoms, diagnostic challenges, and how surgery can restore quality of life.Takeaways:Tarlov Cysts...2024-10-241h 22Bendy Bodies with Dr. Linda BluesteinThe Untold Secrets to Dance Strength with Adji CissokoIn this inspiring episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, interviews Adji Cissoko, principal dancer with the Lines Ballet Company. Adji shares her incredible journey of balancing natural flexibility with the strength needed to thrive in professional ballet. From dealing with injuries to discussing the importance of sleep, nutrition, and cross-training, Adji provides a glimpse into the discipline required to succeed in dance while taking care of her body. Listeners will learn valuable lessons on injury prevention, building strength, and listening to your body, straight from one of the most captivating dancers in the...2024-10-1756 minBendy Bodies with Dr. Linda BluesteinYoga Warning: Are You Putting Your Joints at Risk? with Lara HeimannIn this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down with physical therapist and yoga expert Lara Heimann to uncover the hidden dangers of yoga for hypermobile individuals. As the creator of the LYT Method, Lara combines yoga with functional anatomy to ensure that movement is safe and effective for those with joint instability. Lara shares why traditional yoga practices may be putting hypermobile people at risk and offers crucial advice on how to avoid injury, build strength, and prioritize stability. Don’t miss this eye-opening discussion on how to practice yoga safely wi...2024-10-101h 10Bendy Bodies with Dr. Linda BluesteinOrthobiologics with the Centeno-Schultz Clinic (Ep 113)In this special on-site episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down face to face with Dr. John Pitts! Dr. Pitts, is an expert in regenerative medicine, about cutting-edge treatments for hypermobility and chronic pain. Dr. Pitts discusses prolotherapy, protein rich plasma (PRP), and "stem cell" therapies and explains how these treatments can heal tissues and improve function without surgery. He shares insights on treating conditions like Ehlers-Danlos Syndrome (EDS), Hypermobility Spectrum Disorder (HSD), and joint instability, focusing on helping the body heal itself. Whether you’re dealing with nagging pain or seeking al...2024-10-031h 09Bendy Bodies with Dr. Linda BluesteinGenetic Testing in EDS with Dr. Paldeep AtwalIn this enlightening episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, is joined by renowned clinical geneticist Dr. Paldeep Atwal to delve into the complexities of genetics in hypermobile Ehlers-Danlos Syndrome (hEDS) and related conditions. Dr. Atwal explains the importance of genetic testing, the significance of variants of uncertain significance (VUSs), and the complexities of gene interactions in understanding EDS. They also explore the future of genetic research and what patients should know about genetic testing to avoid misinformation and unnecessary stress. Whether you're new to the world of EDS or looking for cutting-edge insights...2024-09-261h 12Bendy Bodies with Dr. Linda BluesteinMy Essential EDS Advice (Office Hours)In this unique solo episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, answers listener-submitted questions about hypermobile Ehlers-Danlos syndrome (hEDS), POTS, and related conditions. From understanding the importance of a correct diagnosis to tips for managing symptoms, Dr. Bluestein offers valuable insights on living with chronic illness. Learn what to ask your doctor, how to pace yourself with hEDS and POTS, and discover Dr. Bluestein’s favorite hypermobility hacks. Whether you’re newly diagnosed or have been managing symptoms for years, this episode provides practical advice for navigating the complexities of hypermobility.Takeaways:2024-09-1958 minBendy Bodies with Dr. Linda BluesteinhEDS vs HSD: Controversies in Diagnosis with Alan Hakim, MDIn this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, welcomes Dr. Alan Hakim, a world-renowned rheumatologist and expert in Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD). Dr. Hakim reveals for the first time something about his own health. Listen in to find out what Dr. Hakim really thinks about the Beighton Score and the 2017 hEDS Classification Criteria. He also shares when he feels genetic testing is indicated and how to interpret variants of uncertain significance (VUSs). Takeaways:Difference Between Connective Tissue Disorders: Dr. Hakim clarifies the diffe...2024-09-121h 19Bendy Bodies with Dr. Linda BluesteinHow EDS and HSD Impact Fascia and Pain with Tina Wang, MDIn this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, welcomes Dr. Tina Wang, a leading expert in physical medicine, rehabilitation, and fascia research. Dr. Wang delves into the complexities of fascia, particularly its role in Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorders (HSD). She explains how fascial dysfunction contributes to myofascial pain, joint instability, and other challenges faced by individuals with hypermobility. Dr. Wang also discusses innovative diagnostic techniques and treatment approaches, including the use of ultrasound and manual therapy. This episode is a must-listen for anyone who wants to better understand their pain...2024-09-051h 13Bendy Bodies with Dr. Linda BluesteinOvercoming Pain in EDS: Building Stronger Bodies with Whealth Founders Katie & Andrew DettelbachIn this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, chats with Katie and Andrew Dettelbach, founders of Whealth, a program dedicated to helping people with hypermobility and chronic pain. Both Katie and Andrew have hypermobile Ehlers-Danlos Syndrome (hEDS) and have turned their personal struggles into a platform that empowers others to manage their pain and regain strength. Katie, a critical care nurse, and Andrew, a kinesiologist, discuss their journeys, challenges with hypermobility, and the innovative methods they’ve developed to help thousands worldwide overcome chronic pain. Learn how movement, strength, and understanding your body ca...2024-08-291h 17Bendy Bodies with Dr. Linda BluesteinGrief, Healing, and Mental Health Strategies for Chronic Illness with Natasha Trujillo, PhDIn this insightful episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with Dr. Natasha Trujillo, a licensed sports psychologist specializing in grief, loss, and chronic illness. Dr. Trujillo and Dr. Bluestien both work with the Colorado Ballet. Dr. Trujillo discusses the complex emotional landscape of grieving when faced with chronic pain, disability, and the loss of identity. She shares valuable strategies for processing grief, moving towards acceptance, and navigating self-compassion. Whether you’ve experienced grief from illness, injury, or significant life changes, this episode provides tools and approaches to living a fuller, more resilient life.2024-08-221h 04Bendy Bodies with Dr. Linda BluesteinGroup Rehabilitation for POTS with Emily Rich, OTIn this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down with Emily Rich, an occupational therapist specializing in POTS (Postural orthostatic tachycardia syndrome), Ehlers-Danlos syndromes, and other chronic conditions. Emily, who is also a patient with hypermobile EDS and POTS, shares her insights on how occupational therapy can help individuals regain control over their daily lives. From adaptive tools to fatigue management strategies, Emily provides practical advice and discusses her groundbreaking research on group rehabilitation programs for POTS. Tune in to learn how to manage symptoms and improve your quality of life with...2024-08-1556 minBendy Bodies with Dr. Linda BluesteinUnderstanding the Brain's Role in Chronic Pain with Kaitlin Touza, PhDIn this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, engages in an enlightening conversation with Dr. Kaitlin Touza, a renowned pain psychologist. Dr. Touza delves into the complexities of chronic pain, explaining how the nervous system, brain processes, and psychological factors contribute to pain experiences. She discusses multiple different pain management techniques while emphasizing the benefits of understanding pain neuroscience. Dr. Touza also highlights the value of self-compassion and psychological flexibility in improving quality of life for those with chronic pain.Takeaways:Psychological Factors and Pain: Psychological...2024-08-081h 06Bendy Bodies with Dr. Linda BluesteinConnective Tissue Disorders and Lipedema with Karen Herbst, MDIn this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, hosts an enlightening discussion with Dr. Karen Herbst, a leading expert on lipedema and other adipose connective tissue diseases. Dr. Herbst shares her extensive knowledge on the complexities of lipedema, Dercum's disease, and their connection to connective tissue disorders, inflammation, and hormonal factors. Learn about the latest research, diagnostic challenges, and effective treatments, including diet, supplements, and surgery. Don't miss the valuable insights and practical advice shared in this episode.Takeaways:Lipedema Misdiagnosis: Lipedema is often misdiagnosed as...2024-08-011h 16Bendy Bodies with Dr. Linda BluesteinLinking Mast Cell Activation, Autoimmunity, and EDS with Kara Wada, MDIn this episode, Dr. Linda Bluestein, the Hypermobility MD, delves into the intricate connections between the immune system and hypermobility disorders with Dr. Kara Wada. A quadruple board-certified physician and Sjogren's patient, Dr. Wada shares her expertise on mast cell activation syndrome, autoimmunity, and the role of inflammation. Discover holistic approaches to managing these conditions and gain valuable insights into the latest research and treatments. Don't miss the special hypermobility hacks at the end!Takeaways:Interplay Between Immune System and EDS: The immune system plays a significant role in hypermobility disorders, with...2024-07-251h 01Bendy Bodies with Dr. Linda BluesteinExamining The Future of EDS Diagnosis and Care with EDS Society CEO Lara BloomIn this episode, Dr. Linda Bluestein, the Hypermobility MD, hosts a captivating conversation with Lara Bloom, President and CEO of the Ehlers-Danlos Society. Lara shares her journey in advocating for rare diseases, the progress made in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), and the upcoming updates in diagnostic criteria. Tune in to learn about the challenges, successes, and future directions in EDS research and patient care.Takeaways:Global Progress: The Ehlers-Danlos Society has significantly advanced global awareness and research on EDS and HSD.Diagnosis Challenges: Misdiagnosis and lack...2024-07-181h 05Bendy Bodies with Dr. Linda BluesteinSeason 4 Wrap: Reading Your CommentsWelcome back, every Bendy Body! In this special episode, I wrap up season four and share exciting plans for season five. Join me as I reflect on our journey, from focusing on high-risk populations like dancers and gymnasts to diving deep into medical topics. Listen in for gratitude-filled shoutouts from our wonderful listeners as I read their heartwarming reviews! See you soon for Season 5!Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, us...2024-06-1307 minBendy Bodies with Dr. Linda BluesteinBreaking the Vicious Cycle of Chronic Illness with Ashok GuptaIn this conversation, Dr. Linda Bluestein interviews Ashok Gupta about his experience breaking the vicious cycle of chronic illness when he had ME-CFS. They discuss the impact of chronic conditions, the brain's priority of survival, and the vicious cycle of symptoms. Ashok explains the Gupta Program, which aims to make patients aware of subtle danger signals in the brain and retrain the brain's response. They also explore the concept of neuroimmune conditioned syndromes and address common myths about brain retraining. With a focus on hypermobility, they discuss the time commitment required to see results, different ways to engage with t...2024-06-061h 01Bendy Bodies with Dr. Linda BluesteinMilestones and Reflections: 100 Episodes of Bendy Bodies with Linda Bluestein, MDDr. Linda Bluestein celebrates 100 episodes of Bendy Bodies discussing the most rewarding part of hosting the podcast and the challenges of podcasting. She emphasizes the importance of balancing the complexity of EDS and the need for healthcare professionals to understand and empathize with the struggles of patients with hypermobility conditions. Dr. Bluestein discusses the symptom burden experienced by individuals with EDS and the challenges they face in getting their symptoms understood and validated by healthcare professionals. She shares her approach to treatment as well as the top three concerns among EDS patients. Dr. Linda Bluestein and guest host Kate C...2024-05-301h 19Bendy Bodies with Dr. Linda BluesteinFrom News Anchor to Advocate: A POTS and EDS Journey with Summer DasheSummer Dashe, a former news anchor and advocate for the chronically ill, shares her POTS and EDS journey. She covers how she manages her symptoms in everyday life and the challenges of getting diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome) and EDS (Ehlers-Danlos Syndrome). #dysautonomia #ChronicIllness #POTSAwareness Takeaways
Getting a POTS diagnosis can be challenging, and it often takes multiple visits to different doctors before receiving a proper diagnosis.
Awareness about POTS among doctors has improved over the years, but there is still a need for more education and understanding.
Fin...2024-05-2359 minBendy Bodies with Dr. Linda BluesteinEnvironmental Triggers of Mast Cell Disease with Tania Dempsey, MDSummaryDr. Tania Dempsey discusses mast cell activation syndrome (MCAS) with a focus on environmental triggers of mast cell disease. Takeaways
Infections can trigger mast cell reactions and people with MCAS may react differently than those without.
Identifying and addressing environmental triggers, such as mold and plastics, is important in managing MCAS.
Immunotherapy for allergies and asthma may impact MCAS symptoms.
Treatment options like Xolair (Omalizumab), ketotifen, cromolyn, and low dose naltrexone (LDN) are discussed.
Nutrition, particularly protein intake, supports overall health and affects MCAS symptoms.
Fish can be a...2024-05-161h 16Bendy Bodies with Dr. Linda BluesteinLearning to Spot the Signs of Ehlers-Danlos Syndromes with Guest Host, Kate ColbertIn this special “EDS Awareness Month” episode of the Bendy Bodies Podcast, founder Dr. Linda Bluestein and guest host Kate Colbert discuss how everyone can learn to spot the signs ofEhlers-Danlos Syndromes.Dr. Bluestein emphasizes the importance of EDS awareness, as many people are still not getting the evaluations and care they need. She also debunks several myths about EDS, including the misconception that EDS does not cause pain and that only geneticists can diagnose it. She emphasizes the importance of early intervention and appropriate treatment for better patient outcomes. ...2024-05-091h 06Bendy Bodies with Dr. Linda BluesteinCoping with Dance Injuries and Career Transitions with Chelsea Pierotti, PhD and Guest Cohost, Jennifer MilnerIn this episode, Dr. Chelsea Pierotti discusses coping with dance injuries and transitions, both from a physical and psychological perspective. She explains that the way dancers appraise their injuries and their emotional response to them can greatly impact their coping mechanisms. Dr. Pierotti emphasizes the importance of shifting the mindset from seeing an injury as a disaster to viewing it as a challenge that can be overcome. She also highlights the role of social support in the recovery process and the need for dancers to define success in ways that are within their control. Additionally, Dr. Pierotti addresses the...2024-04-2543 minBendy Bodies with Dr. Linda Bluestein95. Pain Care Redefined: Non-Drug Therapies for Pain Relief with Heather Tick, MDDr. Heather Tick, a renowned pain expert, discusses non-drug therapies for pain relief; applying the principles of integrative medicine for comprehensive pain care. She emphasizes the need for education and understanding of pain neuroscience to empower patients. Dr. Tick also highlights the significance of nutrition in reducing chronic pain and inflammation. Additionally, she explores various modalities, such as acupuncture and manual therapies, as effective strategies for pain relief. Dr. Heather Tick discusses the impact of habits on movement and the importance of developing healthy movement practices. She also explores various modalities for pain relief, including heat, cold, Epsom salt...2024-04-111h 41Bendy Bodies with Dr. Linda Bluestein94. Support and Bracing for Hypermobile Joints with Susan Chalela, MPT, and Guest Cohost, Scott BorjesonIn this Bendy Bodies with the Hypermobility MD podcast, Susan Chalela, MPT discusses support and bracing for hypermobile joints. She shares how her personal and professional experience with joint hypermobility led her to develop the Finding Functional Foundations approach which is being taught as part of The Ehlers-Danlos Society EDS ECHO program. She emphasizes the importance of proper alignment and biomechanics in everyday activities and explains why traditional physical therapy approaches may not be effective for hypermobile patients. Susan also discusses the role of bracing and supports in providing stability and controlling motion. She explains the benefits of using d...2024-04-041h 06Bendy Bodies with Dr. Linda Bluestein93. Unveiling Taming the Zebra: A Discussion with Physical Therapists Patricia Stott and Heather Purdin
This episode centers around unveiling 'Taming the Zebra', a book co-authored by physical therapists, Dr. Patty Stott and Heather Purdin. The book aims to fill a void in understanding and provide therapists with the knowledge to effectively work with patients with hypermobility spectrum disorders (HSD) and Ehlers-Danlos Syndromes (EDS). It covers the impact of connective tissue disorders on various body systems and provides practical tips for modifying physical therapy approaches. The book emphasizes the importance of addressing primary issues and understanding the complexity of each individual's presentation. The chapters cover topics such as modifying movement for gentle exercise, addressing d...2024-03-071h 00Bendy Bodies with Dr. Linda Bluestein92. Empowering Zebra Warriors: THE Guide to Effective Physical Therapy for EDS and HSD with Lilian Holm, DPT
In this Bendy Bodies podcast episode, Dr. Lillian Holm discusses effective physical therapy for EDS and HSD and the importance of correcting function to achieve pain relief and tolerance for exercise. She explains why physical therapy may not always lead to the expected outcome, emphasizing the need for specialized therapists and individualized treatment. She addresses common misconceptions about physical therapy and highlights the importance of communication and realistic expectations. Dr. Linda Bluestein and Dr. Holm cover topics such as progress and setbacks, balancing stretching with strengthening, starting to walk again after severe limitations, physical therapy for scoliosis, and helpful...2024-02-291h 07Bendy Bodies with Dr. Linda Bluestein91. Hand Problems in EDS with Corinne McLees, OT and Hand Coach
In this episode, Dr. Linda Bluestein and Corinne McLees discuss hand problems in EDS including pain, weakness, and injuries. This conversation covers various topics related to hand problems, including ring splints, hand exercises, avoiding strain and hyperextension, tips for traveling, challenges of the medical system for chronic pain, hand pain with writing, hand pain and numbness in sleep, thumb pain and De Quervain's tendonitis, cubital tunnel syndrome, TFCC tear, trigger finger and so much more. Takeaways
Hand pain, weakness, and injuries are common in individuals with joint hypermobility.
Hand pain in...2024-02-221h 24
Bendy Bodies with Dr. Linda Bluestein90. Decoding Brain Fog: Expert Insights with Ilene Ruhoy, MD, PhD
In this episode, Dr. Linda Bluestein interviews Dr. Ilene Ruhoy about causes of brain fog, as well as its relationship to various conditions such as mast cell activation syndrome, craniocervical instability, dysautonomia, and CSF leaks. She explains how these conditions contribute to cognitive dysfunction and the importance of identifying underlying causes. Dr. Ruhoy emphasizes the need for a comprehensive evaluation and individualized treatment approach for patients experiencing brain fog. They delve into the role of nutrition in cognitive function, emphasizing the impact of food choices on inflammation. They highlight the importance of avoiding processed foods and sugar, increasing vegetable c...2024-02-1549 min
Bendy Bodies with Dr. Linda Bluestein89. Conquering the Sleep Struggle with Roger Seheult, MD
In this episode, Dr. Linda Bluestein interviews Dr. Roger Seheult about the importance of sleep for people with chronic illness, chronic pain, and joint hypermobility. Dr Seheult, a quadruple board-certified physician with expertise in sleep medicine, discusses various topics related to sleep, including the circadian rhythm, the impact of light on sleep, the effect of blue light on sleep, ideal bedtime, the impact of electronics on sleep, the role of melatonin, and the timing of eating and its effect on sleep. Other topics include challenges of working from home, sleep schedules and chronic illness, shifting sleep patterns, sleep apnea an...2024-02-081h 32
Bendy Bodies with Dr. Linda Bluestein88. Service Dogs and Disability Rights with Tiffany Lee, JD
In this episode, Professor Tiffany Lee is interviewed about service dogs and disability rights and accommodations. They discuss the Americans with Disabilities Act, the definition of disability, and disability benefits. They also explore reasonable accommodations in the workplace and education settings, as well as the challenges and advocacy involved. The conversation covers topics such as disclosing disabilities to employers and universities, getting a service dog, dealing with unresponsive disability lawyers, appealing denied disability benefits, and correcting inaccuracies in medical records. The episode provides valuable insights and guidance for individuals with disabilities navigating legal and practical aspects of their rights...2024-02-011h 10
Bendy Bodies with Dr. Linda Bluestein87. Disordered Eating in Dance with Josh Spell, LICSW, and Guest Co-Host Jennifer Milner
In this episode, psychologist Josh Spell discusses disordered eating in dance. Josh shares insights into the coping mechanisms behind eating disorders and offers advice for directors, teachers, and friends who suspect someone may be struggling with an eating disorder. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.YOUR guest co-host is Jennifer Milner, former professional ballet and Broadway dancer and founder of Bodies In:Motion. Takeaways
Dancers, especially those with hypermobility, are at a higher risk for de...2024-01-2549 min
Bendy Bodies with Dr. Linda Bluestein86. The Unfair EDS Journey with Amanda Cassil, PhD
In this episode, psychologist Dr. Amanda Cassil discusses the unfair EDS journey (Ehlers-Danlos Syndromes) and provides strategies for effectively communicating with healthcare providers. Dr. Cassil provides valuable insights and tools for navigating the healthcare system and improving the quality of life for individuals with chronic illnesses. In this conversation, Dr. Amanda Cassil and Linda Bluestein, MD discuss the challenges faced by patients with hypermobility disorders (like Ehlers-Danlos Syndromes) and chronic illnesses.YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.Takeaways
Approach advocacy f...2024-01-181h 08
Bendy Bodies with Dr. Linda Bluestein85. Making a MCAS Documentary with Drs. Weinstock, Dempsey, Bluestein, Afrin, Kinsella & Jill Brook, MA
In this Bendy Bodies with the Hypermobility MD podcast episode, making a MCAS documentary is discussed. Distinguished participants in this collaborative effort include Dr. Leonard Weinstock, Dr. Larry Afrin, Dr. Tania Dempsey, Dr. Laurence Kinsella, and Dr. Linda Bluestein, alongside dedicated patient advocate Jill Brook. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.Key Highlights:1. The initiative incorporates both a documentary and an online educational library strategically designed to elevate awareness surrounding MCAS, Dysautonomia, and Hypermobility Spectrum Disorders.2. Renowned healthcare professionals, namely Dr. Leonard Weinstock, Dr. Larry Afrin, Dr...2024-01-1158 min
Bendy Bodies with Dr. Linda Bluestein84. Slipping Rib Surgery in EDS with Adam Hansen, MD
In this episode, join thoracic surgeon and chest wall reconstruction expert Adam Hansen, MD, to learn about slipping rib surgery in EDS. Well known for his innovative surgeries for slipping rib syndrome (SRS), Dr Hansen has treated close to 1000 SRS patients. Many of his patients are challenged with Ehlers-Danlos Syndrome and other skeletal hypermobility disorders. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.Takeaways
Slipping rib syndrome and other chest wall disorders are often related to skeletal hypermobility.
Evaluation and diagnosis of chest wall problems require a thorough physical exam and ima...2024-01-041h 27
Bendy Bodies with Dr. Linda Bluestein83. Expert Insights: Breath Work in Pain Management with Jill Miller
In this episode, YOUR guest is Jill Miller, author of the book 'Body by Breath: The Science and Practice of Physical and Emotional Resilience.' Jill has 30 years of corrective movement expertise that forges links between the worlds of yoga, massage, athletics, and pain management. Her signature self-care fitness programs, Yoga Tune Up® and The Roll Model® are found at gyms, yoga studios, hospitals, athletic training facilities and corporations worldwide. Jill is the former anatomy columnist for Yoga Journal, has been featured in New York Times, Wall Street Journal, Shape, Women’s Health, O, the Today Show, and is a con...2023-12-211h 18
Bendy Bodies with Dr. Linda Bluestein82. The Impact of Clinician-Associated Trauma on EDS and HSD with Colin Halverson, PhD
In this episode, YOUR guest is Colin Halverson, PhD. He received his Ph.D. in linguistic and medical anthropology from the University of Chicago, where he studied communication issues in medical genetics, based on fieldwork at Mayo Clinic. At Chicago, he also completed a fellowship in clinical ethics, and then a postdoctoral fellowship in medical ethics at Vanderbilt. He is currently a professor at Indiana University School of Medicine, where his research focuses on ethical care for patients with rare disease, in particular Ehlers-Danlos Syndrome (EDS).YOUR host, as always, is Dr. Linda Bluestein, t...2023-12-1454 min
Bendy Bodies with Dr. Linda Bluestein81. Foot Pain 101: Everything You Need to Know with EDS and HSD with Lisa Ralston, PT
In this episode, YOUR guest is Lisa Ralston, a physical therapist with over 30 years of experience in orthopedics, joint hypermobility, foot pain, and sports medicine. Since 2009, she has traveled internationally treating Team USA Olympians and World level figure skaters. Lisa was the physical therapist for Team USA figure skating for the 2022 Winter Olympics in Beijing. Lisa is the owner and founder of Ralston Physical Therapy and Wellness in Arvada, CO. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.Takeaways
Posture and alignment pl...2023-12-071h 15
Bendy Bodies with Dr. Linda Bluestein80. A Multidimensional Approach to EDS and HSD Care with Dacre Knight, MD
In this episode, YOUR guest is Dacre Knight, MD. Dr. Knight established a specialty clinic for treating patients with hypermobility syndromes including hypermobile Ehlers-Danlos Syndrome (hEDS) and hypermobility syndrome disorder (HSD) at Mayo Clinic Jacksonville, Florida in 2019. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Explored in this episode:· What specialty evaluations are most important for patients with hypermobility syndromes· What tests he feels are most helpful for patients with Ehlers-Danlos Syndromes (EDS) and HSD· How they determine when to perform genetic testing and the findi...2023-11-301h 20
Bendy Bodies with Dr. Linda Bluestein79. Gastrointestinal Problems in Hypermobile EDS: Learning to Treat and Spot them with Leonard Weinstock, MD
In this episode, YOUR guest is gastroenterologist Leonard Weinstock, MD, author of over 150 peer-reviewed journal articles. His extensive research on MCAS (Mast Cell Activation Syndrome) and diseases of the esophagus, stomach, small intestine, and colon has been presented at national and international conferences. He is actively researching the connection of the gut and small intestinal bacterial overgrowth (SIBO) with several medical problems, including restless legs syndrome (RLS) and chronic pelvic pain syndromes. He presented several lectures in Oregon at the first SIBO symposium and in France at the international rosacea study group.YOUR host, as always, is D...2023-11-1659 min
Bendy Bodies with Dr. Linda Bluestein79. Gastrointestinal Problems in Hypermobile EDS: Learning to Treat and Spot them with Leonard Weinstock, MDIt's YOUR time to access information that #BendyBodies need, crave, and deserve. Medical insights, science-based information, inspiring stories, empathy and support, hypermobility hacks, and news you can use. In this episode, YOUR guest is gastroenterologist Leonard Weinstock, MD, author of over 150 peer-reviewed journal articles. His extensive research on MCAS (Mast Cell Activation Syndrome) and diseases of the esophagus, stomach, small intestine, and colon has been presented at national and international conferences. He is actively researching the connection of the gut and small intestinal bacterial overgrowth (SIBO) with several medical problems, including restless legs syndrome (RLS) an...2023-11-1658 min
Bendy Bodies with Dr. Linda Bluestein78. Uncovering Inequality in Healthcare with Brianna Cardenas, DMSC, PA-C
In this episode, YOUR guest is Brianna Cardenas, DMSC, PA-C, ATC and the founder of Healed and Empowered. Brianna courageously shares her own personal journey with Ehlers-Danlos Syndrome (EDS), cervical instability, spinal CSF leak, and dysautonomia, shedding light on the mistreatments she endured - both as a patient and a healthcare professional. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Explored in this episode:· Inequality in healthcare and how we can best advocate for ourselves· Why we should prioritize diversity, equity, and inclusion in medi...2023-11-091h 06
Bendy Bodies with Dr. Linda Bluestein77. Neurosurgical Insights from Paolo Bolognese, MD and Guest Cohost Pradeep Chopra, MD
In this episode, YOUR guest is neurosurgeon, Paolo Bolognese, MD, founder of the Chiari Neurosurgical Center in New York. Dr. Bolognese is also on the Board of Directors of the American Syringomyelia & Chiari Alliance Project, Inc. (ASAP), on the Scientific Education and Advisory Board of the Chiari Syringomyelia Foundation (CSF), and is a member of the International Consortium on EDS, HSD, and Related Disorders. The Chiari EDS Center is focused on the diagnosis and treatment of Chiari I Malformation, Syringomyelia, Craniocervical Instability, Tethered Cord, Eagle Syndrome, Idiopathic Intracranial Hypertension, and Intracranial Hypotension. Dr Bolognese’s surgical experience includes more than...2023-11-022h 14
Bendy Bodies with Dr. Linda Bluestein76. Orofacial Pain with Robinson-Smith, DDS
In this episode, YOUR guest is Julie Robinson-Smith, DDS, diplomate of the American Board of Oral Medicine, a diplomate of the American Board of Orofacial Pain and an instructor of Orofacial Pain at the University of Colorado Anschutz School of Dental Medicine. Following dental school, she served in the US Air Force for five years as a general dentist. After her time in the Air Force, she completed a two-year residency in Orofacial Pain and Oral Medicine at the University of Southern California. Dr Smith is also Dr. Bluestein’s amazing TMD (jaw and facial pain) doctor! 2023-10-1942 min
Bendy Bodies with Dr. Linda Bluestein75. Cervical Instability: Thinking Beyond the Neck with Patty Stott, DPT
In this episode, YOUR guest is Patricia Stott, DPT, physical therapist with expertise in Ehlers-Danlos Syndromes and related conditions. Dr Stott and Dr Bluestein presented together on integrative approaches to pain management at the EDS Society Global Learning Conference in August 2023 in Dublin, Ireland. Dr Stott is the founder of Elevation Wellness, and is also trained in visceral manipulation, neural manipulation, fascial Counterstrain, Craniosacral Therapy, and is certified in Reiki. She frequently addresses instability and neck pain in her patients and is currently enrolled in a PhD program for integrative medicine. YOUR host, as alwa...2023-10-121h 02
Bendy Bodies with Dr. Linda Bluestein74. Podcast Secrets and Sneak Peeks with Guest Host Kate Colbert
In this episode, where we close out Season 3 of the podcast and kick off Season 4, YOUR guest (and host!) is Bendy Bodies founder, Dr. Linda Bluestein, the Hypermobility MD. YOUR guest co-host – serving up questions to Dr. Bluestein – is Kate Colbert, outspoken EDS advocate, world-renowned marketer, and award-winning healthcare and higher-education writer. Explored in this episode:
How the Bendy Bodies Podcast has evolved since its founding in 2020 from a resource for hypermobile dancers to a resource for EVERYONE with hypermobility (and their medical providers too!).
What it’s like for Dr. Bluest...2023-10-051h 18
Bendy Bodies with Dr. Linda Bluestein69. Traveling with a Chronic Disorder with Dr. Linda Bluestein, Kristin Koskinen RDN, and Jennifer Milner NCPT
Travel comes with a lot of uncertainty: flights get canceled, hotel reservations are lost, luggage never turns up. But add the complications of traveling with a chronic disorder like Ehlers-Danlos Syndrome, and voyaging becomes even more complicated.How can you plan for contingencies, guard yourself against flares, and still have a fantastic time while traveling? The Bendy Bodies team shares their favorite tips on traveling during this round table discussion. We share suggestions for actions to take leading up to the trip, reveal items we cannot live without on a trip, and look at ways t...2023-06-0853 min
Bendy Bodies with Dr. Linda Bluestein68. Fostering Hope for Hypermobility with Cortney Gensemer, PhD, Victoria Daylor, and Linda Bluestein, MD
Symptomatic joint hypermobility can be difficult to understand and can present in so many different ways. Recently, Victoria Daylor, Dr. Cortney Gensemer, Dr. Russell Norris, and Dr. Linda Bluestein published a CME two-part series titled “Hope for Hypermobility - An Integrative Approach to Treating Symptomatic Joint Hypermobility”. We were able to sit down with Dr. Gensemer, Ms. Daylor, and Dr. Bluestein to discuss their research and the results.They share how the collaboration came about and the developmental process they went through. The co-authors reveal their intentions behind the articles, and three things they want people to know...2023-05-2547 min
Bendy Bodies with Dr. Linda Bluestein61. Getting Back Up Again with Keeya Steel
Life with multiple chronic illnesses is physically and mentally challenging. Feelings of exhaustion and emotional fatigue crowd in with physical symptoms and can be overwhelming in your daily life.How do you find balance? How do you find a way forward and regain joy in your life?We posed these questions to Keeya Steel, founder of the popular Hells Bells and Mast Cells on social media. As someone who lives with POTS (postural orthostatic tachycardia syndrome), MCAS (mast cell activation syndrome), and hEDS (hypermobile Ehlers-Danlos Syndrome), she is all too experienced at trying to find...2023-02-0945 min
Bendy Bodies with Dr. Linda Bluestein59. Preparing for Competitions: A Round Table with Kristin Koskinen RDN, Linda Bluestein MD, and Jennifer Milner NCPT
For most artistic athletes, competition is a part of life. Whether you’re a dancer, skater, gymnast, or cheerleader chances are you’re competing at some point.Competitions can be grueling, multi-day events consisting of 14-hour days, multiple performances, and little access to fresh whole foods. So how do you prepare for a competition, and what can you do during the event to make sure you are at the top of your game and come out of it injury-free?We decided to approach this topic from a multi-disciplinary angle, so Jennifer, Dr. Bluestein, and resident Bend...2023-01-121h 07
Bendy Bodies with Dr. Linda Bluestein58. Preparing for Surgery with Linda Bluestein, MD
Hypermobility disorders can lead to health complications that may require surgery. Joint hypermobility and associated conditions can present complications for surgery, anesthesia, and more. If you’re anticipating surgery, how can you, your surgeon and anesthesia care team be as prepared as possible for those hypermobile “quirks”?Bendy Bodies founder Dr. Linda Bluestein spent years in the operating room as a top anesthesiologist. We asked her for advice on this often-overlooked aspect of dealing with symptomatic joint hypermobility.Dr. Bluestein discusses the possible medication reactions that often accompany connective tissue disorders and associated conditions. She talks abo...2022-12-151h 01
Bendy Bodies with Dr. Linda Bluestein54. Managing Mast Cell Pain with Linda Bluestein, MD
Mast cell disorders are prevalent in the hypermobile population, but can often go undiagnosed. Persistent pain can be initiated and perpetuated by mast cells, which have also been referred to as “gatekeepers of pain”. How can someone who suspects mast cell issues go about seeking relief for mast cell-related pain? How can medical professionals accurately seek to diagnose and treat mast cell pain?For this conversation, we put Bendy Bodies founder, Linda Bluestein, MD, in the hot seat. With her many years as a practicing anesthesiologist and her long career treating people with hypermobility disorders, she’s been i...2022-10-2047 min
Bendy Bodies with Dr. Linda Bluestein44. Navigating Pregnancy with Shanda Dorff, MD
Pregnancy can be a time of new physical challenges, and hypermobility may make the season even more complex. Hormones can change tissue elasticity and the body may struggle to adapt.Dr. Shanda Dorff began working with connective tissue disorders in 2008 and has helped countless women through pregnancies and beyond. She imparts her hard-learned wisdom to Bendy Bodies on this complicated subject.Dr. Dorff shares important considerations for someone with connective tissue disorders to consider in a pregnancy, and discusses higher-risk issues with various types of Ehlers-Danlos syndromes. She lists things to watch for during pregnancy...2022-02-171h 02
Bendy Bodies with Dr. Linda Bluestein42. Pursuing a Diagnosis with Linda Bluestein, MD
Hypermobility disorders can be difficult to diagnose, with no one clear path forward. Without an obvious road to walk, people with chronic pain who suspect hypermobility disorders may feel defeated and overwhelmed, struggling to find the help they need.In this episode, Bendy Bodies founder Linda Bluestein, MD opens up about her own journey getting an EDS diagnosis and starting her work as a hypermobility specialist.Dr. Bluestein breaks down the different types of connective tissue disorders and how they might be diagnosed. She discusses reasons medical professionals might encourage someone to seek a diagnosis...2022-01-2043 min
Bendy Bodies with Dr. Linda Bluestein40. Understanding Overstretching with Jennifer Milner, NCPT
What is overstretching, and why should we talk about it?As the artistic world seems to demand ever more extreme ranges of motion from its dancers and athletes, many people turn to overstretching as a way to stay competitive, forcing an artificial hypermobility in some joints.Dr. Linda Bluestein interviews Bendy Bodies’ own Jennifer Milner, NCPT, on the subject of overstretching and forced hypermobility. Jennifer discusses why a joint might be hypermobile, and what issues she sees in the hypermobile population versus the non-hypermobile population.Jennifer explores overstretching, how it affects the body, and...2021-12-1642 min
Bendy Bodies with Dr. Linda Bluestein37. Advocating for Yourself with Aidan Leslie
Navigating medical care can be a daunting task at the best of times, but when you have a chronic disorder that is largely an invisible illness, you may find yourself bewildered and frustrated trying to get the care you need. Often, a diagnosis like Hypermobile Ehlers-Danlos syndrome or hypermobility spectrum disorder can come with co-morbidities such as POTS (Postural Orthostatic Tachycardia syndrome), MALS (Median Arcuate Ligament syndrome), MCAS (Mast Cell Activation syndrome), and more.And with multiple diagnoses comes multiple doctors’ visits.Bendy Bodies chats with our own wellness ambassador, Aidan Leslie, a retired dancer wh...2021-11-0446 min
Bendy Bodies with Dr. Linda Bluestein35. Reeducating Mast Cells with Anne Maitland, MD, PhD
Mast cells: interesting and mysterious. You can’t be born without them, but they don’t show up in blood tests. They’re found throughout the body and can affect multiple systems in vastly different ways. What makes them misbehave?We spoke with renowned Allergy and Immunology physician, Anne Maitland, MD, about the role of mast cells in the body, what happens when they go “off script”, and what we can do about it.Dr. Maitland explains that mast cells are necessary for recognizing and healing tissue injury, and make a decision on how to react. But...2021-09-301h 00
Bendy Bodies with Dr. Linda Bluestein28. Caring for the Adolescent Artist
What support does a hypermobile young artist need?Hint: a lot.Hypermobile dancers, gymnasts, skaters, circus artists: the same hypermobility that gives them extraordinary lines and range of motion, also makes them vulnerable to injury, mental health issues, and more. They have unique needs and susceptibilities - so how do we help them?For this episode, several members of Team Bendy Bodies sit down to discuss a whole-body (and mind) approach to caring for adolescent artists. Specialist Linda Bluestein MD, trainer and ballet coach Jennifer Milner, nutritionist Kristin Koskinen, and EDS Wellness ambassador...2021-02-2549 min
Bendy Bodies with Dr. Linda Bluestein25. Addressing Pain in Hypermobility Disorders with Linda Bluestein, M.D.
Why are hypermobility disorders painful and what can be done about it? When discussing conditions associated with hypermobility, like Ehlers-Danlos Syndromes (EDS) or hypermobility spectrum disorders (HSD), pain is often mysteriously left out of the conversation despite the fact that persistent pain can be very much a part of many peoples’ lives. Addressing pain early in the process is vital for long-term health and well-being. Bendy Bodies founder, Dr. Bluestein, takes the guest seat in this episode as she peels back the onion-like layers of the development of chronic pain and options for managing it. She discusses fac...2021-01-1459 min
Bendy Bodies with Dr. Linda Bluestein23. Empowering Patients with Multisystemic Diseases with Jill Schofield, M.D.
Dr. Jill Schofield, founder and director of the Center for Multisystem Disease, is back to discuss multisystemic diseases and what she wishes everyone knew about them. She offers insight into how to get better care (and what to avoid), the pros and cons of having more or less lenient diagnostic criteria for diseases such as hypermobile Ehlers-Danlos Syndrome (hEDS), and advice on what to do if you suspect you have MCAS. Dr. Schofield explores possible reasons for the increased incidence of autoimmune disease, and gives guidance on finding the help you need in today’s online world. If...2020-12-0336 min
Bendy Bodies with Dr. Linda Bluestein22. Managing Dysautonomia with Svetlana Blitshteyn, M.D.
In this second interview with Dr. Svetlana Blitshteyn, board-certified neurologist and director of the Dysautonomia Clinic, we go beyond identifying common disorders such as POTS (Postural Orthostatic Tachycardia Syndrome), and take a look at how people with these conditions can improve their quality of life. Dr. Blitshteyn talks about effective exercises for people with POTS, easy steps to boost sodium and fluid intake, and how important it is to address sleep disorders in this population. She discusses why people might need to be tested for comorbidities such as EDS (Ehlers-Danlos Syndromes) or autoimmune disorders, the difficulty in t...2020-11-1949 min
Bendy Bodies with Dr. Linda Bluestein21. Demystifying Dysautonomia with Svetlana Blitshteyn, M.D.
Dysautonomia is an umbrella term used to describe disorders of the autonomic nervous system (which controls all the automatic functions of the body like blood pressure, heart rate, digestion, temperature regulation, etc.). Dr. Svetlana Blitshteyn, a board-certified neurologist and director of the Dysautonomia Clinic, joins us as we dig into these disorders and explore their defining features. POTS (Postural Orthostatic Tachycardia Syndrome), small-fiber neuropathy, and neurocardiogenic syncope are frequent comorbidities with EDS (Ehlers-Danlos Syndromes), Marfan Syndrome, and other disorders of connective tissue. Dr. Blitshteyn discusses who is considered high-risk for POTS, explains neurocardiogenic syncope and small-fiber neuropathy, a...2020-11-0544 min
Bendy Bodies with Dr. Linda Bluestein19. Living fully with a Hypermobility Disorder with Linda Bluestein, M.D.
In this second interview with Bendy Bodies host Dr. Linda Bluestein, she explores the realities of living with a connective tissue disorder. As a renowned hypermobility expert, Dr. Bluestein discusses issues that can exist alongside Hypermobility Spectrum Disorder (HSD) or Ehlers-Danlos Syndromes (EDS), such as autoimmune issues, dysautonomia, and more. She shares her acronym for maintaining a high quality of life, discusses the small changes that can add up to meaningful improvement in quality of life, and reveals her hopes for the future of HSD/EDS research and treatment. Learn more about Dr. Linda Bluestein, the Hypermobility M...2020-10-0850 min
Bendy Bodies with Dr. Linda Bluestein18. Molding Healthy, Successful Artists with Mariaelena Ruiz
How do you prepare a hypermobile student for the rigors of the professional dance world, finding that balance of exploring their gifts while moving cautiously to avoid injury? In this episode, we are joined by Mariaelena Ruiz, director of Cary Ballet Conservatory’s Professional Training Program and recipient of the 2019 Outstanding Teacher Award at the Youth America Grand Prix NYC Finals. She discusses her experiences training high-level dancers who wrestle with their hypermobility. Mariaelena brings her decades as a professional ballerina with a wonky body to her classroom and has a personal understanding of the struggles hypermobile dan...2020-09-2557 min
Bendy Bodies with Dr. Linda Bluestein17. Training the Hypermobile Dancer with Jennifer Milner
For people working with artistic athletes such as dancers, circus artists, and gymnasts, training the hypermobile body brings its own set of challenges. Shepherding a “wonky body” through healthy training may feel overwhelming and frustrating and, at times, like you’re spinning your wheels. Dr. Linda Bluestein turns the tables to chat with Bendy Bodies' regular guest co-host Jennifer Milner about what it takes to train a hypermobile dancer or athlete. Jennifer brings her almost twenty years of cross-training dancers across the globe to the conversation, revealing what she’s learned from her dancers and her own dance car...2020-09-101h 00
Bendy Bodies with Dr. Linda Bluestein16. Empowering Flexibility with Dr. Jen Crane, DPT
Extreme flexibility has permeated social media and influenced every physical art form, from dance to ice skating and of course circus arts. As artistic athletes are asked to explore greater and more unstable end ranges of motion, performers are often left to figure out how to stay healthy for themselves. For those artists and athletes, the question isn’t IF they should work in an end range of motion, but HOW. Dr. Jen Crane, a physical therapist specializing in circus arts, chats with us on how to do just that. She talks about the difference between productive dis...2020-08-2852 min
Bendy Bodies with Dr. Linda Bluestein14. Stabilizing the Hypermobile Body through Circus Arts with Emily Scherb, PT, DPT
Nowhere is flexibility and hypermobility more valued and explored than in the circus arts! But while circus artists are highly skilled and extremely strong, working in extreme end ranges of motion comes with its own set of issues and potential injuries. In this podcast, we chat with Dr. Emily Scherb, a DPT who specializes in circus and performing arts. Emily examines what’s similar (and different) between circus and performing arts, looks at what is “normal” for the circus population, and outlines when to push into your end range and when not to. We explore the differences in reha...2020-07-3053 min
Bendy Bodies with Dr. Linda Bluestein13. Healing the Brain Holistically with Ilene Ruhoy M.D., Ph.D.
Many conditions found in "bendy" people have a neurologic basis, impacting both the brain and nervous system. In this Bendy Bodies episode, Dr. Ilene Ruhoy, the Medical Director and Founder of the Center for Healing Neurology, walks us through the integrative approach she takes to healing the brain and the body. Dr. Ruhoy discusses the “cross talk” between the gut and the brain and explains how the food we eat and the way we exercise affects our most vital organ, the brain. She covers migraines, myofascial pain, neck pain, “brain fog”, dysautonomia, and more. She shares her approach...2020-07-171h 06
Bendy Bodies with Dr. Linda Bluestein12. Investigating Autoimmune Disorders with Jill Schofield, M.D.
World renowned expert in autoimmune disorders and the Founder and Director of the Center for Multisystem Disease, Dr. Jill Schofield, generously chatted with us in a recent interview. Autoimmunity (dysregulation of the immune system) is genetically inherited and will often have multiple triggers. Dr. Schofield discusses the relationship between autoimmune diseases, Ehlers-Danlos Syndromes, and dysautonomia (abnormal function of the autonomic nervous system). She dives into the difference between autoimmune and non-autoimmune dysautonomia and small-fiber neuropathy. She explores diagnoses like antiphospholipid antibody syndrome (APS), when you might seek a work up for APS, and issues a call for action for...2020-07-021h 07
Bendy Bodies with Dr. Linda Bluestein11. Understanding Hypermobility Disorders with Linda Bluestein, M.D.
In this episode, guest co-host Jennifer Milner interviews Bendy Bodies’ own host, Dr. Linda Bluestein! Hypermobility disorders can be frustratingly hard to diagnose or even define. From symptomatic joint laxity to connective tissue disorders like Ehlers-Danlos Syndromes (EDS) or Marfan Syndrome, the umbrella of hypermobility disorders covers a number of conditions and up-to-date information can be hard to find. Bendy Bodies' host, Linda Bluestein, M.D., shares her expertise with Jennifer Milner in this episode, opening up on how she turned the challenge of her own hypermobility disorder into a blessing for others as she made...2020-06-1828 min
Bendy Bodies with Dr. Linda Bluestein10. Cultivating Psychological Skills with Bonnie Robson, M.D.
Living with stress and anxiety has become the rule rather than the exception in today’s world. Everyone develops coping strategies of some kind, but without encouragement and guidance these strategies can be dysfunctional and even harmful. Dr. Bonnie Robson talks through the risks inherent in social and physical isolation and how to develop strategies that can support and encourage long-term mental and physical health. She explores how and why sleep is affected by stress offering ways to better regulate this crucial component of the circadian cycle. Dr. Robson walks through developing a safe place, the...2020-05-281h 15
Bendy Bodies with Dr. Linda Bluestein9. Educating the Dance Community with Lisa Howell
Dancing with a hypermobile body brings its own set of challenges, from a general lack of stability to a slower recovery time. As a young pre-professional, a dancer might not understand why she must find conscious strength before subconscious strength; why daily activities must be examined through the same placement lens as a dance class; and why “boring” and “tedious” can equal “good for you”. As a parent, helping a hypermobile dancer through the pre-professional years can be bewildering and frustrating for people who don’t understand why their daughter must wait another six months to go on pointe, or w...2020-05-151h 15
Bendy Bodies with Dr. Linda Bluestein8. Demystifying Genetics with Paldeep Atwal, M.D.
Your DNA holds many secrets. Why do drugs work on some people and not on others? Why are conditions expressed so differently in different family members? How might hypermobility disorders, dysautonomia (like POTS) and Mast Cell Activation Syndrome (MCAS) be related and how does coronavirus fit into all of this? Listen in as top geneticist, Dr. Paldeep Atwal, shared his expertise on the following:
Hypermobility disorders - Why are Bendy people so different from each other yet can also share many common traits?
Ehlers-Danlos Syndromes - Why is it taking so long to find “the hEDS gene”
E...2020-04-2956 min
Bendy Bodies with Dr. Linda Bluestein7. Understanding and Preparing for Coronavirus with Immunologist, Dwight McKee, M.D.
PLEASE NOTE***: The following episode was recorded in mid-April 2020, just four weeks after the World Health Organization declared the spread of SARS-CoV-2 (the virus that causes the disease known as COVID-19) as a global pandemic. At that time, schools and all non-essential businesses had been closed and people around the world were being asked to stay home. Scientists were learning a lot at this point, but it was unclear how many people would become ill and what the excess mortality would be. Although there had been some understanding of post viral syndromes prior to the COVID pandemic (like dysautonomia f...2020-04-171h 07
Bendy Bodies with Dr. Linda Bluestein6. Minding the Mental Health Gap with Kathleen McGuire Gaines
Traits that can make a dancer so valuable in the dance world - drive, perfectionism, obsessing over details - also put them at higher risk for mental health disorders. And while physical health resources become ever more commonplace in the dance world, mental health resources remain woefully lacking, oftentimes uncomfortably left in a hidden half-shadow. A few years ago, Kathleen McGuire Gaines wrote an article, “Why are we still so bad at addressing dancers’ mental health?” for Dance Magazine. The article went viral, becoming one of the most-read articles in the history of the publication, and the respon...2020-04-1255 min
Bendy Bodies with Dr. Linda Bluestein5. Optimizing Nutrition to Support a Dancer’s Health with Kristin Koskinen, RDN
While many dancers strive to fuel healthily, making the most out of your meals can be overwhelming. In today’s world especially, dancers need strong immune systems and healthy bodies ready for whatever challenge may come next. Registered dietician nutritionist Kristin Koskinen discusses nutritional needs for dancers and how to shape lifelong healthy eating habits. Kristin examines common mistakes dancers make in fueling choices, and how you can shape a flexible diet built to shift around external factors. She’ll explore creating flexible strategies like a Ballet Bento Box and discuss the base requirements of any foundationally stro...2020-04-041h 03
Bendy Bodies with Dr. Linda Bluestein4. Supporting a Dancer’s Mental Health with Psychotherapist, Terry Hyde
Dancers train constantly to attain peak performance, working long hours to achieve physical and artistic perfection. Unfortunately, mental health is often sacrificed for that perfection. Terry Hyde, former dancer with the Royal Ballet and psychotherapist with patients all over the world, joins Linda and Jennifer to explore this often-neglected aspect of dancer health, and discusses how hypermobility can bring unique mental health problems of its own. Terry discusses the high incidence of anxiety, depression, and OCD (obsessive compulsive disorder) in hypermobile dancers and explores how a dancer’s perfectionism can be both a blessing and a curse. He...2020-03-301h 19
Bendy Bodies with Dr. Linda Bluestein3. Preserving the Hip with Orthopedic Surgeon, Joel Wells, M.D.
Hypermobility can affect every joint, but perhaps the most complicated one to understand and train is the hip. With a high prevalence of hip injuries in hypermobile dancers and athletes, proper diagnosis and treatment is critical. From hip dysplasia to labral tears, dance science and medicine’s understanding of the hip continues to evolve even as we work to find the most effective ways to treat and strengthen it. Listen in as Dr. Wells discusses his role as a hip preservationist, why educating a dancer on pathology and proper kinematics is so essential, and how hips are lik...2020-03-1254 min
Bendy Bodies with Dr. Linda Bluestein2. Ensuring Longevity: Screening, Strengthening and Supporting, with Physiotherapist Moira McCormackIn this continuation of our discussion with Moira McCormack, we delve deeper into Moira’s work as a researcher and tireless advocate for dance science and medicine in the studio setting. Moira talks through the basic screening tests used at the start of each season to help define a dancer’s strength and maintenance program for the year, explains what teachers of hypermobile dancers must understand, and reveals that “It’s never too late to build something else into your body. Nothing is insurmountable." Learn more about Dr. Linda Bluestein, the Hypermobility MD at our websites and be sure t...2020-03-0544 min
Bendy Bodies with Dr. Linda BluesteinReducing Injury and Increasing Education with Royal Ballet Physiotherapist, Moira McCormackMoira’s tireless work with Royal Ballet and the Royal Ballet school have helped build the Royal Ballet into an oft-emulated model of treatment and intervention for ballet dancers. Join us as Moira describes how important a dancer’s early training is - movement patterns, alignment, biomechanics - to increase their career longevity. Moira lists concrete, basic rules for training a hypermobile body, emphasizing the importance of strength work, patience in training, and the necessity of recovery time. It is not overstating it to say that Moira’s research, work, and advocacy have made it possible for hypermo...2020-02-2644 min