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Showing episodes and shows of
Dr. Renarda Jones
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Voices of Inclusive Research
Speaking the Language of Trust: Why Translation Matters in Research
"Translations aren't just helpful — they're essential."In this episode, Dr. Renarda Jones sits down with Ricky Ricardo Villa, owner of Casa Sur Hacienda and a dedicated community leader who has been helping Diverse Research Now bring clinical trial education to Spanish-speaking communities.They talk about the importance of accurate translation and interpretation at research events and how language is deeply connected to culture, trust, and access. Ricky shares why adapting messages to reflect community beliefs and backgrounds is key to building understanding and breaking down barriers. From health fairs to bilingual education, this episode explores wh...
2025-07-23
11 min
Voices of Inclusive Research
Prescreening Has Power and It’s a Good Step Toward Equity!
Prescreening gives us a chance to educate before decisions are made.In this solo episode, I talk about why prescreening is one of the most important and overlooked steps in the clinical trial process. At Diverse Research Now, we use Advocate Assisted Prescreening to bridge the gap between clinical trials and the communities that are too often left out.Through health fairs, community events, and real conversations, I have seen how trust and education help open doors. Inclusion does not begin when someone joins a study. It begins the moment we show up, listen, and...
2025-07-09
07 min
Voices of Inclusive Research
Healing the Delta: A Call for Research with Dr. Jazmine Crain
“Let’s stop just talking about inclusion. Let’s go do the work.”Host Dr. Ren Jones talks with Dr. Jazmine Crain, founder of Covalent Clinical Research, about building real trust and access in clinical research—starting in Mississippi. Dr. Crain shares how she meets communities where they are, from churches to clinics, making research visible and relevant. Together, they call on sponsors and researchers to invest in underserved areas, build infrastructure, and partner with local leaders. This episode is a clear message: inclusion isn’t just talk—it’s action.🎧 Listen in for an honest, boots...
2025-06-25
39 min
Voices of Inclusive Research
Shifting Gears, Staying Focused: A Community Update from Dr. Ren
“Just because we’re slowing down doesn’t mean we’re stopping.”In this special solo episode, I share some exciting updates, a few changes, and what’s ahead for Voices of Inclusive Research.We’re shifting from a biweekly release to a monthly schedule so I can pace myself and still show up with the energy this work deserves. Don’t worry—we’re still here, and I’m still committed to amplifying the voices of our community.I also share a behind-the-scenes look at our second annual Community Clinical Trial Health Forum—yes, clinical tr...
2025-06-12
07 min
Voices of Inclusive Research
Talking Pediatrics with Elisha Butts: Inclusive Research is a Family Affair - Part 2
What happens when a passion for research runs in the family?In this heartfelt episode of Voices of Inclusive Research, host Dr. Renarda Jones is joined by her sister, Elisha Butts—a clinical research professional with over 13 years of experience. Together, they reflect on their parallel journeys from Alzheimer’s research assistants to community-engaged advocates for inclusive science.Elisha shares her unique perspective as a coverage analyst in pediatric clinical trials, offering insights into study startup, parental consent, and how diversity plays out differently when children are involved. She also opens up about the unexpected ways...
2025-05-28
17 min
Voices of Inclusive Research
The Front Lines of Inclusion: Voices from the Health Equity Congress Conference
What does it take to move health equity from conversation to action?In this special episode, Dr. Renarda Jones brings us inside the Health Equity Congress—where powerful voices from across disciplines gathered to reimagine inclusion in research and care.From bedside insights to boardroom strategies, you’ll hear from public health professionals, researchers, and community leaders who are challenging systems and championing equity. These conversations underscore the urgency of cultural humility, trust-building, and dismantling barriers—especially for marginalized communities.This isn’t just a recap—it’s a real-time pulse check on what equity...
2025-05-14
12 min
Voices of Inclusive Research
Beyond the Diagnosis: A Caregiver's Voice in Facing the Wind
"I didn’t choose caregiving—it chose me."In this deeply moving episode of Voices of Inclusive Research, host Dr. Renarda Jones sits down with Carla Preyer, founder of From the Salon Chair to Self-Care and advocate for dementia caregivers. Carla shares the powerful story of caring for her husband, Patrick, through his eight-year battle with Lewy body dementia—a journey filled with misdiagnoses, delays, and the emotional toll of navigating a misunderstood condition.Carla also opens up about her role in the acclaimed documentary Facing the Wind, the isolation of being one of the few wo...
2025-04-30
30 min
Voices of Inclusive Research
Faith, Fear, and Inclusion: Dr. Dung Trinh on Healing Beyond Borders
“Research is not just data. It’s people, their stories, and their trust.”In this compelling episode of Voices of Inclusive Research, Dr. Ren sits down with Dr. Dung Trinh — a Vietnam War refugee turned physician, researcher, and global health advocate. His journey from a refugee camp to the forefront of Alzheimer's research and inclusive healthcare isn’t just inspirational — it’s transformative.Dr. Trinh shares how his early experiences in underserved communities shaped his passion for accessible, culturally competent research. He dives into the ethical and practical dimensions of clinical trials, especially for conditions like Alzheimer's di...
2025-04-16
21 min
Voices of Inclusive Research
Building Trust Together: Inclusive Research Is a Family Affair with Michael Jones
What does true representation in clinical research look like? And why does it matter?In this episode of Voices of Inclusive Research, host Dr. Ren sits down with a special guest, her husband Michael Jones to discuss the pressing need for diversity in clinical trials. They dive deep into the systemic barriers that prevent communities of color from participating in research and explore the real-world consequences of underrepresentation. Mike shares his firsthand experience as a participant in clinical trials, shedding light on how trust, awareness, and access play important roles in ensuring equitable healthcare outcomes....
2025-04-02
14 min
Voices of Inclusive Research
Thyroid Eye Disease: Breakthroughs, Barriers, and the Need for Diversity with Dr. Vivek Patel
Did you know that thyroid eye disease (TED) can cause vision loss, double vision, and even blindness?In this episode of Voices of Inclusive Research, host Renarda Jones sits down with Dr. Vivek Patel, Chief of Neuro-Ophthalmology at UC Irvine, to explore new breakthroughs in thyroid eye disease treatment and the critical need for diverse participation in clinical trials.Dr. Patel explains the warning signs of TED, who is most at risk, and why many clinical studies lack representation from communities of color. He breaks down the latest biological treatments beyond steroids and surgery, and...
2025-03-19
30 min
Voices of Inclusive Research
Community, Research, and Action: What’s Next for Inclusive Healthcare
What does inclusive research really look like in action?In this special solo episode of Voices of Inclusive Research, I share exciting community updates, upcoming events, and ways you can get involved in advancing inclusive healthcare research.From monthly Chow & Chat discussions on health topics like brain health and autoimmune diseases to major events like the Community Clinical Trial Health Forum, there are more opportunities than ever to learn, connect, and take action. Plus, don’t miss the Spring Into Action fundraising gala, a night dedicated to celebrating progress and raising support for impactful initiatives....
2025-03-07
06 min
Voices of Inclusive Research
Bridging Science and Business: How Dr. Denise Bronner is Driving Impact in Research
What happens when personal experiences collide with a passion for science and business?Dr. Denise Bronner, CEO and founder of Impactful Ventures, shares her journey from academia to consulting, pharma, and venture capital—all with the goal of driving meaningful change in healthcare.In this episode of Voices of Inclusive Research, host Dr. Ren and Dr. Bronner discuss the urgent need for diversity in clinical research, the importance of equitable healthcare, and how pharma can better engage communities. Drawing from her own family’s health struggles, Dr. Bronner highlights why representation in research is critical and...
2025-02-19
14 min
Voices of Inclusive Research
From Academia to Impact: Why Mental Health Research Must Include Every Voice with Dr. Krystal Lira
Can research truly serve as a resource for the community?In this episode of Voices of Inclusive Research, host Dr. Renarda Jones sits down with Dr. Krystal Lira, a Senior Research Associate at UCSD, to discuss the power of community-driven mental health research. Dr. Lira shares her journey from academia to real-world research, highlighting the importance of lived experience in shaping effective health solutions.The conversation dives into why diverse communities struggle to access mental health resources, the barriers they face in research participation, and the critical role of community engagement in building trust. Dr...
2025-02-05
32 min
Voices of Inclusive Research
Migraine Research, Mentorship, and Diversity: Dr. Aliya Frederick’s Story
How do we ensure that underrepresented communities benefit from clinical research?In this episode of Voices of Inclusive Research, Dr. Ren sits down with Dr. Aliya Frederick, a child neurologist and researcher specializing in pediatric migraines. Dr. Frederick shares her inspiring journey, from her early fascination with neuroscience to leading groundbreaking clinical trials at UCSD.Discover how Dr. Frederick uses her unique platform, Inspired Dream Bigger, to encourage young people of color to envision themselves in healthcare and research roles. The discussion highlights the prevalence and impact of migraines in children and adolescents, with Dr...
2025-01-22
07 min
Voices of Inclusive Research
How Purpose Drives Holistic Health and Equity
“True health starts with purpose—and purpose thrives in community.”In this episode of Voices of Inclusive Research, Renarda Jones talks with Justin Campbell, a UX designer turned health and mindset coach, about the intersection of personal growth, wellness, and inclusive health data. Justin shares how his shift from tech to health coaching was driven by a desire to help others achieve holistic well-being.He highlights the importance of aligning health goals with personal values, explaining that lasting wellness comes from purpose, not just discipline. This deeper connection, he argues, fosters sustainable habits and meaningful change...
2025-01-08
18 min
Voices of Inclusive Research
Christmas Gratitude: Celebrating Voices That Inspire Change
"Inclusive research isn’t just a goal—it’s a responsibility we all share."In this special holiday episode of Voices of Inclusive Research, host Dr. Renarda Jones takes a moment to celebrate the incredible journey of the podcast and reflect on the powerful lessons shared by past guests. From breaking misconceptions to fostering trust and advocating for representation, this episode revisits the pivotal conversations that have shaped the podcast’s mission.She highlights key moments, including Joseph Frazier’s wisdom on preventive research, Mary Futrell’s advocacy for Alzheimer’s awareness, Jen Lothridge’s insights on trus...
2024-12-25
06 min
Voices of Inclusive Research
Listening to the Body: A Journey of Diagnosis, Research, and Recovery with Tracy Phillips
Real change starts when every voice is heard.In this episode of Voices of Inclusive Research, Renarda Jones welcomes Tracy Phillips, a dedicated advocate for inclusion in clinical trials. Tracy shares her deep insights into the critical role genuine representation plays in transforming clinical research and ensuring no community is left behind. She emphasizes the importance of intentional outreach, offering thoughtful strategies to bridge the gaps in underrepresented communities and make clinical research more equitable and impactful.This conversation is packed with actionable insights, offering a practical roadmap for researchers, healthcare professionals, and advocates who...
2024-12-11
42 min
Voices of Inclusive Research
Thinking Outside the Box: Dan Sfera on Overcoming Challenges in Clinical Trials
Sometimes the best innovations come from just figuring it out as you go.In this Voices of Inclusive Research episode, Renarda sits down with Dan Sfera, the trailblazing "Clinical Trials Guru" and a seasoned research site owner. Dan opens up about his unplanned journey into clinical research, sharing the highs and lows that shaped his two-decade-long career. From his early days struggling as a pre-med student to becoming a go-to expert in the field, Dan’s story is one of resilience, creativity, and learning on the fly.Dan emphasizes the power of community engagement, the im...
2024-11-27
43 min
Voices of Inclusive Research
The Power of Participation in Research with Fannie Johnson
Welcome to the Voices of Inclusive Research Podcast.A space where we amplify the voices of underrepresented communities in clinical research, sharing stories and insights to foster diversity and inclusivity in healthcare. In this episode, Renarda welcomes Fannie Johnson, a long-time participant in clinical research, to share her journey and insights. She discusses her 20-year involvement in the Memory and Aging Project, emphasizing how clinical research has positively impacted her health and well-being. Together, they address the deep-seated fears in communities of color about participating in clinical trials and explore ways to transition fr...
2024-11-13
18 min
Voices of Inclusive Research
Snowballing Change: How Positive Experiences Drive Community Engagement in Research
"Without diversity in clinical trials, we're missing pieces of the puzzle that could save lives." This message is central to this episode of Voices of Inclusive Research, where host Renarda Jones chats with Jen Lothridge, a clinical trial participant and advocate, about how inclusive research can transform healthcare for underrepresented communities.Jen shares her journey in medical research, highlighting the importance of safety, ethics, and informed consent—especially for Black and Brown communities that have been historically mistreated in research. She stresses that trust and cultural competence are crucial to meaningful participation in clinical trials.Th...
2024-10-30
41 min
Voices of Inclusive Research
Fixing Cracks in Healthcare with Mary Futrell
Clinical research holds the power to change the future of healthcare for communities of color—but it can't happen without your voice. In this episode of Voices of Inclusive Research, Dr. Renarda Jones sits down with Mary Futrell, a community leader and seasoned research participant, to discuss the significance of involving underserved populations in clinical studies. Mary shares her experience in advocating for research in communities where access to healthcare and education is limited, but the need is great. She highlights the misconceptions and stigmas that often prevent participation, particularly in understanding diseases like Alzheimer’s.
2024-10-16
39 min
Voices of Inclusive Research
Breaking Misconceptions and Building Knowledge: A Conversation on Health and Research with community member, Joseph Frazier
Research is the bridge that connects our past health disparities with a future of equitable solutions, but only if we choose to cross it together.In this episode of Voices of Inclusive Research, Dr. Renarda Jones sits down with community member Joseph Frazier to discuss the critical role of clinical research in addressing health disparities in communities of color. Joseph shares his personal experience with vascular dementia in his family, highlighting how it has shaped his perspective on the importance of research. He opens up about the misconceptions many have, such as the fear of b...
2024-10-02
28 min
Voices of Inclusive Research
Bridging the Gap Between Research and Community Needs
Welcome to the Voices of Inclusive Research Podcast.A space dedicated to bridging the gap between researchers and the community, ensuring all voices are heard, and fostering a more inclusive research landscape.In our very first episode, Dr. Renarda Jones speaks directly to the community, emphasizing why research matters to everyone, not just scientists. She breaks down the barriers between research and everyday life, highlighting how inclusive research can lead to better health outcomes for all. Dr. Jones calls on both the community and researchers to engage, build trust, and ensure...
2024-09-18
07 min
Voices of Inclusive Research
Voices of Inclusive Research: Your Voice Matters
Voices of Inclusive Research is a podcast dedicated to exploring the diverse and dynamic world of inclusive research. Each episode features thought leaders, community members and advocates who we welcome to share their questions, concerns, insights, lived experiences and groundbreaking work. Our mission is to give the community a voice in clinical research. We aim to inspire and inform by highlighting the importance of diversity and inclusivity in clinical research.Follow Dr. Ren: Website Instagram LinkedIn We Want to Hear Your Voice!...
2024-09-11
01 min
The Longevity Podcast: Optimizing HealthSpan & MindSpan
Community Conversations: Addressing Healthcare Disparities
In this episode, we explore the complex landscape of health equity and the initiatives aimed at bridging gaps in healthcare access and outcomes. Join us as we delve into innovative strategies to empower underrepresented communities to navigate both healthcare and the clinical trial process effectively. We learn that the lifespan of a black person in the US is 7 years shorter than a white person. Throughout our conversation, we uncover the challenges faced by marginalized communities and the pressing need for targeted interventions. From the Safe Space Program to the Study Buddy Program of Diverse Research...
2024-05-02
35 min
Pharma Sessions
Improving Diversity in Clinical Trials: Challenges and Solutions
This episode is the second in Pharma Sessions' series of conversations about clinical trial diversity. The first episode was with a former pharma executive turned clinical trial consultant. In this episode we share a different, more community oriented perspective.Renarda Jones is a clinical trial professional with over 20 years’ experience in clinical research., mainly in Cancer and Alzheimer’s disease research.Starting as a research assistant, working her way up to study coordinator and clinical research associate, Renarda had the opportunity to work with underrepresented and underserved communities, specifically the black community. Personally witne...
2023-05-04
21 min
Pharma Sessions
Improving Diversity in Clinical Trials: Challenges and Solutions
This episode is the second in Pharma Sessions' series of conversations about clinical trial diversity. The first episode was with a former pharma executive turned clinical trial consultant. In this episode we share a different, more community oriented perspective.Renarda Jones is a clinical trial professional with over 20 years’ experience in clinical research., mainly in Cancer and Alzheimer’s disease research.Starting as a research assistant, working her way up to study coordinator and clinical research associate, Renarda had the opportunity to work with underrepresented and underserved communities, specifically the black community. Personally witne...
2023-05-04
21 min