Shows
EAHADMeet the Author: Daniel Cristian OgrezeanuCheck out our latest Meet the Author interview with Daniel C. Ogrezeanu discussing his recent paper on "Acute neuromuscular and perceptual responses to blood flow restriction exercise in adults with severe haemophilia: a pilot study". Learn more on the safety and effects of blood flow restriction exercise in people with severe haemophilia. Read the full article: https://onlinelibrary.wiley.com/doi/10.1111/hae.15084Contact the author: daniel.ogrezeanu@uv.es2025-06-1616 min
EAHADMeet the Author Ep. 6: Exercise-based telerehabilitation for the management of chronic pain in people with severe haemophilia: a mixed-methods feasibility studyThis episode features Paul Mclaughlin and Paula Loughnane interviewing him about his recent paper "Exercise-based telerehabilitation for the management of chronic pain in people with severe haemophilia: a mixed-methods feasibility study".📰 Read the article: https://pilotfeasibilitystudies.biomedcentral.com/articles/10.1186/s40814-024-01550-z2025-03-1023 min
halimeh & habermann#104 Neues aus der Welt: EAHAD 2025 - Die wichtigsten Erkenntnisse aus Mailand
Jedes Jahr kommen Europas führende Experten für Hämophilie und verwandte Gerinnungsstörungen auf dem Kongress der European Association for Haemophilia and Allied Disorders (EAHAD) zusammen. 2025 fand das Treffen in Mailand statt – ein Ort des intensiven Austauschs, neuer wissenschaftlicher Erkenntnisse und wichtiger Netzwerkbildung. Kollegen berichten, welche Themen sie besonders beeindruckt haben.
Susan und Björn euch gehen nochmal die Highlights des Kongresses durch:
Warum in diesem Jahr Frauen mit Hämophilie besonders im Fokus standen,
Welche Rolle innovative Therapien spielen, die keinen klassischen Gerinnungsfaktor ersetzen, gerade für sehr seltene Erkrankungen spielen,
Und welches große Pro...2025-02-1228 min
EAHADMeet the Author Ep. 5: A Clinical Practice Guideline for Primary Care Physiotherapy in Patients with HaemophiliaThis episode features Johan Blokzijl and Paula Loughnane interviewing him about his recent paper "A Clinical Practice Guideline for Primary Care Physiotherapy in Patients with Haemophilia".
📰 Read the article on the EAHAD Website: https://www.eahad.org/eahad-projects/physiotherapists-committee-projects/
🎥 Watch the episode on the EAHAD Academy: https://academy.eahad.org/eahad/2024/meet-the-author-series-johan-blokzijl/41502662024-12-0212 min
EAHADE-Learning Ep. 13: Surgery in patients with haemophilia with inhibitorsWelcome to our podcast series, today we interview Maria Elisa Mancuso, Senior Hematology Consultant Center for Thrombosis and Hemorrhagic Diseases, IRCCS Humanitas Research Hospital Milan, and Yesim Dargaud,
head of the Clinical Haemostasis Unit at Lyon University Hospitals and the coordinator of the French reference centre for haemophilia to discuss the critical topic of managing surgery in haemophilia patients with inhibitors. Major surgeries for this unique patient population demand specialized expertise, a coordinated multidisciplinary team, and cutting-edge therapeutic strategies.
🎥 The full module is available on the EAHAD Academy: https://academy.eahad.org/eahad/2024/module-132-surgery-in-patients-with-haemophilia/4147547
2024-10-1725 min
EAHADE-Learning Ep. 12: Surgery in patients with haemophiliaWelcome to our podcast series, today we interview Maria Elisa Mancuso, Senior Hematology Consultant Center for Thrombosis and Hemorrhagic Diseases, IRCCS Humanitas Research Hospital Milan, and Yesim Dargaud,
head of the Clinical Haemostasis Unit at Lyon University Hospitals and the coordinator of the French reference centre for haemophilia to discuss the best practices for managing surgery in patients with haemophilia.
🎥 The full module is available on the EAHAD Academy: https://academy.eahad.org/eahad/2024/module-131-surgery-in-patients-with-haemophilia/41457602024-09-0216 min
EAHADMeet the Author Ep. 4: ACTIVLIM-Hemo: A new self-reported, unidimensional and linear measure of activity limitations in persons with haemophiliaThis episode features Sébastien Lobet who is currently a Physiotherapist and Researcher at the Haemostasis and Thrombosis Unit at the Cliniques Universitaires Saint-Luc at Université Catholique de Louvain in Brussels, Belgium. He was also chair of the EAHAD Physiotherapists Committee.Paul Mclaughlin will interview him about his recent paper titled "ACTIVLIM-Hemo: A new self-reported, unidimensional and linear measure of activity limitations in persons with haemophilia".
📰 Read the full article on the Haemophilia Journal: https://onlinelibrary.wiley.com/doi/full/10.1111/hae.14705
🎥 Watch the episode on the EAHAD Academy: https://academy.eahad.org/eahad/2024/meet-the-author-sbastien-lobet/41424992024-08-0322 min
EAHADE-Learning Ep. 11: How can we improve the efficacy and safety of gene therapy?Welcome to our podcast series, today we interview Prof. Thierry VandenDriessche to discuss how to enhance the efficacy and safety of gene therapy for haemophilia A and B. Despite achieving multiyear therapeutic levels of factor VIII and factor IX in patients, challenges remain. Variability in expression, gradual decline of factor VIII levels, and frequent incidence of transaminitis present ongoing hurdles.
In this episode, we delve into these challenges and discuss strategies to overcome them, with a focus on the use of adeno-associated viral vectors (AAV). We also examine the advancements and limitations of integrating vector systems, such...2024-07-2320 min
EAHADE-Learning Ep. 10: Clinical Experience in Haemophilia Gene TherapyDive deep into understanding the Clinical Experience in Haemophilia Gene Therapy with Johnny Mahlangu.
🎥 Watch the full module on the EAHAD Academy: https://academy.eahad.org/eahad/2024/module-11-clinical-experience-in-haemophilia-gene/4173352024-07-0920 min
EAHADE-Learning Ep. 9: Basic Science of Haemophilia Gene TherapyThis new episode on the Basic Science of Haemophilia Gene Therapy with Paul Batty introduces the science underlying this new therapy. Itprovides an overview of different gene therapy approaches, focussing on adeno-associated viral (AAV) vectors that are used for the treatment of haemophilia.
🎥 Watch the full module on the EAHAD Academy: https://academy.eahad.org/eahad/2024/module-10-basic-science-of-haemophilia-gene-thera/4114612024-07-0121 min
EAHADE-Learning Ep. 8: Peripartum management of women with von Willebrand DiseaseIn this episode, we explore the complexities of managing Von Willebrand Disease in women during childbirth. This in-depth discussion goes beyond the basics, addressing the unique challenges faced by women and highlighting the essential considerations for providing optimal care. This presentation refers to all people with the ability to menstruate.
🎥 Watch the full module on the EAHAD Academy: https://academy.eahad.org/eahad/2024/module-9-peripartum-management-of-women-with-von/4088732024-06-1323 min
EAHADMeet the Author Ep. 3: Physical activity, physical fitness and cardiometabolic risk amongst adults with moderate and severe haemophiliaThis episode features Megan Kennedy talking with
Paula Loughnane, a member of the EAHAD
Physiotherapists Committee, about her recent research on the physical well-being of adults with moderate and severe haemophilia. The study delves into the realms of physical activity, fitness, and cardiometabolic risks among this population.
📰 Read the full article on the Haemophilia Journal: https://onlinelibrary.wiley.com/doi/full/10.1111/hae.14653
🎥 Watch the episode on the EAHAD Academy: https://academy.eahad.org/eahad/2024/meet-the-author-megan-kennedy/4098702024-06-0309 min
EAHADMeet the Author Ep. 2: Pain interferes with daily activities, emotions and sleep in adults with severe, moderate and mild haemophilia: A national cross-sectional surveyThis time, we're thrilled to host Valérie-Anne Chantrain, delving into her groundbreaking article "Pain interferes with daily activities, emotions and sleep in adults with severe, moderate and mild haemophilia: a national cross-sectional survey".
Pain poses a significant challenge for individuals with haemophilia, impacting daily life, emotions, and even sleep. Valérie-Anne's study is an exploration within a biopsychosocial framework, shedding light on the prevalence and interference of pain in severe, moderate, and mild haemophilia. Surveying 185 respondents, the findings are eye-opening. A staggering 67% reported pain, with varying degrees across severity levels. Beyond statistics, the study unravels the int...2024-06-0303 min
EAHADMeet the Author Ep. 1: Monitoring recovery of joints after bleeding. Physical examination and ultrasound are complementaryWelcome to the EAHAD Podcast for the "Meet the Author" series. Today, we are joined by Flora van Leeuwen, author of the article "Monitoring recovery of joints after bleeding: physical examination and ultrasound are complementary". In this episode,
Magnus Aspdahl, a member of the EAHAD Physiotherapists Committee, interviews Flora about her insights and findings.
📰 Read the full article on the Haemophilia Journal: https://onlinelibrary.wiley.com/doi/full/10.1111/hae.14791
🎥 Watch the episode on the EAHAD Academy: https://academy.eahad.org/eahad/2023/meet-the-author-flora-van-leeuwen/4027562024-06-0307 min
Na vlastní žílyE02: Hemofilie z pohledu psycholožky PetryV nové epizodě podcastu "Na vlastní žíly" se moderátor Michal Bereň, sám hemofilik a otec dítěte s hemofilií, setkává s psycholožkou Petrou Bučkovou. Petra pracuje jako klinická psycholožka ve Fakultní nemocnici Brno a je členkou pracovní skupiny pro psychosociální péči v mezinárodní organizaci EAHAD. Diskutují o tom, jaký vliv má hemofilie na život dětí a jejich rodin, a proč je důležité tuto nemoc pochopit a přijmout. Petra vysvětluje, jak mohou rodiče a děti zvládat stres spojený s diagnózou hemofilie. Zdůrazňuje, že klíčovým fakto...2024-05-2333 min
HaemcastIn conversation with Kate Khair: reflecting on a lifetime's achievement in haemophilia and bleeding disordersIn this episode of Haemcast, we speak to our very own Dr Kate Khair following her Lifetime Achievement award at EAHAD 2024.
Tune in to hear about Kate's journet into nursing, the first patient she met with a bleeding disorder and how they influenced her career, and the many years dedicated to researching the lived experience of those with haemophilia and bleeding disorders. You don't want to miss out on hearing from one of the undisputed legends of the bleeding disorders community.
Be sure to follow us on Twitter & LinkedIn, and you can...2024-03-2043 minhalimeh & habermann#52 Die Relevanz des Faktor VIII
Faktor VIII ist relevant – und die Themen hierzu sind vielfältig. Das zeigte eine hervorragende Veranstaltung mit wissenschaftlichen Vorträgen im Vorfeld des EAHAD 2024 in Frankfurt.
Wann beginnt die Prophylaxe im Kindesalter? Brauchen wir einen Peak in durch Faktorsubstitution? Was ist bei Operationen zu beachten? Was haben Blutplättchen mit der Faktorsubstitution zu tun? Und was können wir in Zukunft erwarten? Susan und Björn haben international bekannte Spezialisten nach ihren Vorträgen interviewt und spannende Aussagen gesammelt. Aussagen, die zum Teil die sehr persönliche Einstellung der Referenten zu ihren Herzensthemen wiedergeben. Und trotz aller Diskussio...2024-02-1419 min
EAHADE-Learning Ep. 7: Prophylactic management of patients with von Willebrand diseaseIn this E-Learning podcast, you will have the opportunity to learn about the prophylactic management of patients with von Willebrand disease (VWD), a common inherited bleeding disorder. The module is presented by two experts in the field: Prof. Roberta Gualtierotti and Prof. Flora Peyvandi.
🎥 Watch the full module on the EAHAD Academy: https://academy.eahad.org/eahad/2023/module-5-prophylactic-management-of-patients-with/3939182024-01-1918 min
EAHADE-Learning Ep. 6: Menstrual problems and inherited bleeding disordersDive deep into understanding Menstrual Problems and Inherited Bleeding Disorders with Karin van Galen on behalf of the EAHAD Women and Girls with Bleeding Disorders Working Group.
🎥 Watch the full module on the EAHAD Academy: https://academy.eahad.org/eahad/2023/module-7-menstrual-problems-and-inherited-bleedin/4052192023-11-0721 min
EAHADE-Learning Ep. 5: How to manage Gastrointestinal bleeding in patients with von Willebrand DiseaseGastrointestinal bleeding presents a recurrent and intricate challenge in patients with Von Willebrand Disease (VWD). In this podcast, we explore the standard of care protocols, and typical patient scenarios, with a special focus on angiodysplasia. The module is presented by Prof. Sophie Susen.
🎥 Watch the full module on the EAHAD Academy: https://academy.eahad.org/eahad/2023/module-6-module-6-how-to-manage-gastrointestinal/401306
2023-10-2721 min
EAHADE-Learning Insights with Prof. Pier Mannuccio Mannucci: Innovations in Haemophilia Treatment, 50 Years of Progress and BeyondIn this podcast, we delve into the remarkable 50-year evolution of haemophilia care, as chronicled in Professor Mannucci's groundbreaking article published in JTH. We'll travel through time, exploring the distant and recent past, lingering in the present, and casting our eyes toward the future of hemophilia treatment.
Our journey begins by turning back the clock to Professor Mannucci's pivotal encounter with Judith Pool and her groundbreaking discovery of the cryoprecipitation principle, setting the stage for incredible developments in haemophilia care. Don't miss this captivating exploration of the past, present, and future of haemophilia care.
Join...2023-10-2527 min
EAHADE-Learning Ep. 4: von Willebrand diseaseE-learning Module 4 on von Willebrand disease with Luciano Baronciani and Omid Seidizadeh focuses on the diagnosis of this complex bleeding disorder. The module provides an update on the current literature regarding von Willebrand disease and covers various aspects of diagnosis, including laboratory testing, and differential diagnosis. Through this module, learners will gain a better understanding of the challenges involved in diagnosing von Willebrand disease and the importance of accurate diagnosis for the effective management of patients with this disorder.2023-07-3121 min
EAHADE-Learning Ep. 3: Factor VIII (FVIII) inhibitors during non-replacement therapyWelcome to E-Learning module 3 on Factor VIII (FVIII) inhibitors during non-replacement therapy. Our speakers Jan Astermark And Christoph Königs will be sharing valuable insights into the pathophysiology of FVIII inhibitors, factors contributing to their development, and strategies to manage patients with FVIII inhibitors during non-replacement therapy.
Learn more and watch the full module on EAHAD Academy: https://academy.eahad.org/eahad/2023/module-3-fviii-inhibitors-during-non-replacemen/3851372023-06-1915 min
EAHADE-Learning Ep. 2: ITI in the era of emicizumabWelcome to the second module of the EAHAD E-Learning Working Group podcast, where we are excited to feature Carmen Escuriola-Ettingshausen as our guest speaker. In this episode, Carmen will be discussing the topic of "ITI in the era of emicizumab".
Emicizumab, a new therapeutic option for people with hemophilia A, has introduced new challenges for clinicians and patients, particularly in the realm of immune tolerance induction therapy. Carmen will delve into the impact of emicizumab on ITI therapy and provide practical insights into managing patients undergoing this treatment. So, sit back, relax, and join us in this...2023-05-0817 min
EAHADE-Learning Ep. 1: How to manage acute cardiovascular disorders in haemophiliaWelcome to the first episode of the EAHAD Podcast, where we bring you expert insights on bleeding and clotting disorders. In this episode, we focus on the management of acute cardiovascular disorders in patients with haemophilia. Our speakers, Robert Klamroth and Cedric Hermans, are renowned experts in this field and will provide a comprehensive overview of the topic.
During this episode, Cedric Hermans and Robert Klamroth will introduce the background of cardiovascular disease in haemophilia and discuss the management of a specific patient. They will also review recent literature and recommendations on this topic, highlighting the complexity...2023-04-0513 min
GeneTherapy.ISTH.orgHistory of EAHAD and the Upcoming CongressHistory of EAHAD and the Upcoming Congress by ISTH2020-12-2006 minGeneTherapy.ISTH.orgEAHAD Gene Therapy Work GroupEAHAD Gene Therapy Work Group by ISTH2020-12-1907 minGeneTherapy.ISTH.orgISTH Gene Therapy for Hemophilia Initiative and EAHAD’s RoleISTH Gene Therapy for Hemophilia Initiative and EAHAD’s Role by ISTH2020-12-1907 min