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ESSTS
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Gilles is in the air
The Art of Treating Tics and Tourette
Our guest today (the episode was recorded in late April 2025) is Dr Noa Benaroya Milstein, Head of the Child Psychiatry Division Schneider's Children Medical Centre of Israel, where she also serves as Head of the Tourette Clinic. She is a Senior Lecturer at the Tel Aviv University Faculty of Medicine and actively involved in local and multi-centre studies specialised in Tourette syndrome and associated disorders. We talk about first-line pharmacological treatments, co-occurring condition-treatment-prioritisation cases, assessing tic-related impairment, botulinum toxin injections, DBS, promising molecules, the effects of pregnancy and postpartum period on tics and the current landscape and a...
2025-06-21
37 min
Gilles is in the air
Neuroleptic and other drug-induced tics
We are pleased to welcome today Tamara Pringsheim, who is a Professor with the Department of Clinical Neurosciences, Psychiatry, Paediatrics and Community Health Sciences at the University of Calgary. She also works as an evidence-based medicine methodologist for the American Academy of Neurology. Tamara is the president of the Tourette OCD Alberta Network, a nonprofit organisation that supports people living with Tourette syndrome and Obsessive-Compulsive Disorder in Alberta, and provides education and training on these disorders to healthcare providers. Suggested article: "The Impact of Montelukast Duration on the Risk of Neuropsychiatric Disorders in Chil...
2025-06-21
16 min
Gilles is in the air
Median nerve stimulation in tic disorders
A long-awaited episode with Professor Stephen Jackson and Dr Barbara Morera from the University of Nottingham and Neurotherapeutics Ltd. They have been developing "a safe and effective non-drug treatment that reduces tics and the urge to tic, through gentle stimulation of the median nerve in the wrist". We are grateful to them for taking the time to answer very important questions that help us understand the effect of median nerve stimulation on tic suppression. Please find below the questions addressed and the key points of our conversation. Why is non-invasive stimulation of inte...
2025-03-09
23 min
Gilles is in the air
Gilles de la Tourette syndrome in pregnancy
Our guest for the 7th episode of "Gilles is in the air" is Dr Anna Castrioto from the Grenoble Alps University Hospital in France. View her research works. We talk about hormonal changes and tics, contraception methods in association with anti-tic treatments, tic changes during pregnancy and post-partum, treatments that are not recommended during pregnancy and the ones that are harmless. We address the same questions in relation to breast-feeding, enquire about concerns for DBS in women with TS during pregnancy and the difficulties they encounter in coping with TS in their role as m...
2024-12-19
14 min
Gilles is in the air
Symptom severity and health impacts of functional tic-like behaviours in youth
For our 6th episode, Christelle Nilles interviews Lindsay Berg, a special guest, who is very knowledgeable about today's particularly important topic. Lindsay Berg is a Master’s student at the University of Calgary in the Clinical Psychology Program. Her current research focuses on care equity and on examining barriers and facilitators of medical and mental health care for trans and gender diverse youth. She previously worked in the Movement disorders clinic investigating functional tic-like behaviours. (We apologise for the suboptimal audio quality at certain parts.)
2024-12-16
29 min
Gilles is in the air
Tourette syndrome at school; challenges and perspectives
For our 5th episode of "Gilles is in the air", we reach out to parents and teachers to hear about the challenges that they and their children are encountering within the school environment, and the solutions and mechanisms that help them in various situations. Christelle Nilles interviews Lucy Toghill, Education Manager at Tourettes Action UK, Jose Rosa and Phillip Schöne from Spain and New Zealand respectively and currently based in Valencia, and Christina Papakaliati, founder of the newly formed, Tourette Greece. We are very grateful for their time and willingness to share their stories!...
2024-07-31
59 min
Gilles is in the air
Early-Life and Family Risk Factors for Tic Disorder Persistence into Adulthood
For our 4th episode of "Gilles is in the air", Christelle Nilles talks to Professor David Mataix-Cols who works at the Department of Clinical Neuroscience at the Karolinska Institutet in Stockholm, as a Professor of Child and Adolescent Psychiatric Science. We are delighted to hear about his very important article “Early-Life and Family Risk Factors for Tic Disorder Persistence into Adulthood”, published in Movement Disorders in 2023.
2024-05-22
16 min
Rozmowy Konopne
061 Zastosowanie fitokannabinoidów w walce z objawami Tourette’a dr n. med. Natalia Szejko
🎙️ Rozmowy Konopne – Odcinek z dr Natalią Szejko! 🌿W dzisiejszym odcinku mamy zaszczyt gościć dr nauk medycznych dr Natalię Szejko, wybitną specjalistkę w dziedzinie neurologii klinicznej. Dr Szejko pracuje na Wydziale Neurologii Klinicznej Uniwersytetu Calgary w Kanadzie oraz pełni rolę adiunkta w Zakładzie Bioetyki Warszawskiego Uniwersytetu Medycznego.Podczas naszej rozmowy zanurzymy się w świat tików, zespołu Tourette’a, zaburzeń ruchu oraz neuropsychiatrii. Dr Natalia Szejko podzieli się swoją bogatą wiedzą i doświadczeniem, ukazując złożoność tych schorzeń oraz nowoczesne podejścia do ich leczenia.Jeżeli int...
2024-05-20
47 min
Gilles is in the air
Accepting Tourette; before and after the diagnosis
Inspiring, honest and enlightening stories For our 3rd "Gilles is in the air episode", we welcome E.G. Gidner (USA), Devyn LaCroix (USA) and Paul Stevenson (UK). We discuss amongst other things about the chronology of their first tics, if/how bothersome they were, how they were perceived by their close ones, the diagnosis –the announcement and its effect, the term "Tourette", available resources and the current landscape; acceptance and understanding. To find out more about our guests: E.G Gidner, X, LinkedIn, Facebook Devyn LaCroix Paul Stevenson, X, Li...
2024-04-08
58 min
Gilles is in the air
Cannabis-based medicines for the treatment of tics
For our second episode of "Gilles is in the air", Christelle Nilles co-hosts the interview with Dr Natalia Szejko and together they ask important questions on cannabis-based medicines as a treatment strategy for improving tics. Our guest today, is Professor Kirsten Müller-Vahl from the Hannover Medical School, specialised in neurology and adult psychiatry. Over the past 30 years, she has investigated Tourette syndrome in more than 3,000 patients. She is the President of the International Alliance for Cannabinoid Medicines (IACM), and past Chair of the ESSTS. References, studies and papers cited: CA...
2024-02-28
16 min
Gilles is in the air
Gilles is in the air
For 2024 we introduce "Gilles is in the air", our new podcast series hosted by Christelle Nilles. We discuss the latest findings on Tourette syndrome, share stories, and create connections. Every month, (we are only warming up!), we will talk about tics, associated comorbidities and lived experiences; our episodes are aimed at researchers, clinicians, patients and their families. We shall interview authors whose papers have caught our attention, discuss hot topics that may seem controversial, share different ways of educating the community on TS and hopefully, we will all learn something about Tourette that...
2024-02-01
00 min
Gilles is in the air
Promising results on a clinical trial to explore the safety and efficacy of Sepranolone in pediatric and adult patients with Tourette syndrome
By Heidi Biernat
2024-02-01
07 min
Gilles is in the air
Tourette syndrome; myths, misconceptions and ways forward
For the first episode of "Gilles is in the air", Christelle Nilles talks to Dr Andreas Hartmann, a movement disorder neurologist at the Pitié Salpêtrière Hospital in Paris, France and coordinator of the French Centre of Excellence (centre de référence) for Tourette syndrome. References, studies and papers cited: Fat MJ, Sell E, Barrowman N, Doja A. Public perception of Tourette syndrome on YouTube. J Child Neurol. 2012 Aug;27(8):1011-6. doi: 10.1177/0883073811432294. PMID: 22821136. Müller-Vahl KR, Sambrani T, Jakubovski E. Tic disorders revisited: introduction of the term "tic spectrum disorders". Eur Child Adolesc Psychiatry. 2019 Aug;28(8):1129-1135. doi: 10.1007/s00787...
2024-01-31
14 min
Gilles is in the air
Experiences of self-identification, diagnosis and support for adults seeking a late diagnosis of tic disorders in the United Kingdom
By Danni Phoenix-Kane
2023-06-01
04 min
Gilles is in the air
(FR) Surveillance study of a UK cohort of adolescents presenting with functional tic-like behaviours (FTLB)
By Alexandra Ducroizet
2023-06-01
06 min
Gilles is in the air
(EN) Surveillance study of a UK cohort of adolescents presenting with functional tic-like behaviours (FTLB)-EN version
By Alexandra Ducroizet
2023-06-01
06 min
Gilles is in the air
Exploring Clinical Pathways for Tics and Tourette Syndrome: Perspectives from Healthcare Professionals and Patients
By Johanna Marie Luise Fijn van Draat
2023-06-01
03 min
Gilles is in the air
Evaluation of diagnostic instruments for Autism-spectrum-disorder (ASD) in adults
By Daniel Alvarez-Fischer
2023-05-28
14 min
Gilles is in the air
Differential diagnosis of autism-spectrum-disorder (ASD) in adults
By Daniel Alvarez-Fischer
2023-05-28
10 min
Gilles is in the air
Representation of Gilles de la Tourette syndrome in visual art
By Natalia Szejko
2023-05-28
09 min
Gilles is in the air
“For the love of God just refer me” - A coproduced qualitative project into the struggles of accessing health care services for those living with Tourette Syndrome in the UK
By Camilla Babbage
2023-05-28
06 min
Gilles is in the air
Premonitory urge and tic severity, comorbidities, and quality of life in chronic tic disorders
By Natalia Szejko
2023-05-28
17 min
Gilles is in the air
Literature review and clinical perspective in the management of functional tic-like behaviours within a tertiary children’s hospital in England
By Laavanya Damodaran & Edward Palmer
2023-05-28
07 min
Gilles is in the air
Microaggressions Experienced by Emerging Adults (16-25 years old) with Tourette Syndrome
By Coralie Beaulieu
2023-05-28
06 min