Shows
Gilles is in the airResults from phase III study of Ecopipam for Tourette SyndromeKey findings, limitations and clinical perspectives on the important phase III study of Ecopipam for TS; taking a closer look with Dr Don Gilbert.
Dr Gilbert is Professor of Neurology at Cincinnati Children’s Hospital Medical Center, where he established the Movement Disorders and Tourette Clinics in 1998 and conducts translational research and clinical trials.
Key references
Gilbert DL, Budman CL, Singer HS, Kurlan R, Chipkin RE. A D1 Receptor Antagonist, Ecopipam, for treatment of tics in Tourette Syndrome. Clinical Neuropharmacology, 2014. 37:26-30.
Gilbert DL, Murphy TK, Jankovic J, Budman CL, Black KJ, Kurlan RM, Co...
2025-11-1421 minGilles is in the airPremonitory urge in tic disorders–a scoping reviewFor our latest "Gilles is in the air" episode, we remain...across the pond and get the chance to hear more about premonitory urge, the sensory phenomenon described and characterised in numerous studies and publications for more than 30 years.
Our guests today have conducted a scoping review of premonitory urge in primary tic disorders to identify and address limitations and knowledge gaps.
"Knowledge of the clinical characteristics, measurement, and neural mechanisms of premonitory urge has advanced considerably in recent years, but important knowledge gaps remain in each of these domains. Addressing these knowledge gaps will be...
2025-08-2637 minGilles is in the airWhen you’re (not) the stereotype: coprolalia stigma in the lives of adults with Tourette syndromeOur guest today is Rena Zito, associate professor of sociology in the Department of Sociology and Anthropology at Elon University in North Carolina, U.S.A and a person with Tourette Syndrome.
Her research focuses on social stigma, including how stigmatised populations form identities, preserve dignity, and combat social exclusion.
Drawing on interviews with 30 adults diagnosed with TS, she explores how this narrow stereotype circulates in media and everyday interactions, and how adults with TS push back against it, sometimes with unintended consequences for those whose tics confirm the stereotype.
Rena concludes that correcting myths about TS is vital, but it sho...
2025-08-2238 minGilles is in the airThe Art of Treating Tics and TouretteOur guest today (the episode was recorded in late April 2025) is Dr Noa Benaroya Milstein, Head of the Child Psychiatry Division Schneider's Children Medical Centre of Israel, where she also serves as Head of the Tourette Clinic. She is a Senior Lecturer at the Tel Aviv University Faculty of Medicine and actively involved in local and multi-centre studies specialised in Tourette syndrome and associated disorders.
We talk about first-line pharmacological treatments, co-occurring condition-treatment-prioritisation cases, assessing tic-related impairment, botulinum toxin injections, DBS, promising molecules, the effects of pregnancy and postpartum period on tics and the current landscape and a...
2025-06-2137 minGilles is in the airNeuroleptic and other drug-induced ticsWe are pleased to welcome today Tamara Pringsheim, who is a Professor with the Department of Clinical Neurosciences, Psychiatry, Paediatrics and Community Health Sciences at the University of Calgary. She also works as an evidence-based medicine methodologist for the American Academy of Neurology.
Tamara is the president of the Tourette OCD Alberta Network, a nonprofit organisation that supports people living with Tourette syndrome and Obsessive-Compulsive Disorder in Alberta, and provides education and training on these disorders to healthcare providers.
Suggested article:
"The Impact of Montelukast Duration on the Risk of Neuropsychiatric Disorders in Chil...
2025-06-2116 minGilles is in the airMedian nerve stimulation in tic disordersA long-awaited episode with Professor Stephen Jackson and Dr Barbara Morera from the University of Nottingham and Neurotherapeutics Ltd.
They have been developing "a safe and effective non-drug treatment that reduces tics and the urge to tic, through gentle stimulation of the median nerve in the wrist".
We are grateful to them for taking the time to answer very important questions that help us understand the effect of median nerve stimulation on tic suppression.
Please find below the questions addressed and the key points of our conversation.
Why is non-invasive stimulation of inte...
2025-03-0923 minGilles is in the airGilles de la Tourette syndrome in pregnancyOur guest for the 7th episode of "Gilles is in the air" is Dr Anna Castrioto from the Grenoble Alps University Hospital in France.
View her research works.
We talk about hormonal changes and tics, contraception methods in association with anti-tic treatments, tic changes during pregnancy and post-partum, treatments that are not recommended during pregnancy and the ones that are harmless.
We address the same questions in relation to breast-feeding, enquire about concerns for DBS in women with TS during pregnancy and the difficulties they encounter in coping with TS in their role as m...
2024-12-1914 minGilles is in the airSymptom severity and health impacts of functional tic-like behaviours in youthFor our 6th episode, Christelle Nilles interviews Lindsay Berg, a special guest, who is very knowledgeable about today's particularly important topic.
Lindsay Berg is a Master’s student at the University of Calgary in the Clinical Psychology Program.
Her current research focuses on care equity and on examining barriers and facilitators of medical and mental health care for trans and gender diverse youth.
She previously worked in the Movement disorders clinic investigating functional tic-like behaviours.
(We apologise for the suboptimal audio quality at certain parts.)
2024-12-1629 minGilles is in the airTourette syndrome at school; challenges and perspectivesFor our 5th episode of "Gilles is in the air", we reach out to parents and teachers to hear about the challenges that they and their children are encountering within the school environment, and the solutions and mechanisms that help them in various situations.
Christelle Nilles interviews Lucy Toghill, Education Manager at Tourettes Action UK, Jose Rosa and Phillip Schöne from Spain and New Zealand respectively and currently based in Valencia, and Christina Papakaliati, founder of the newly formed, Tourette Greece.
We are very grateful for their time and willingness to share their stories!...
2024-07-3159 minGilles is in the airEarly-Life and Family Risk Factors for Tic Disorder Persistence into AdulthoodFor our 4th episode of "Gilles is in the air", Christelle Nilles talks to Professor David Mataix-Cols who works at the Department of Clinical Neuroscience at the Karolinska Institutet in Stockholm, as a Professor of Child and Adolescent Psychiatric Science.
We are delighted to hear about his very important article “Early-Life and Family Risk Factors for Tic Disorder Persistence into Adulthood”, published in Movement Disorders in 2023.
2024-05-2216 min
Rozmowy Konopne061 Zastosowanie fitokannabinoidów w walce z objawami Tourette’a dr n. med. Natalia Szejko🎙️ Rozmowy Konopne – Odcinek z dr Natalią Szejko! 🌿W dzisiejszym odcinku mamy zaszczyt gościć dr nauk medycznych dr Natalię Szejko, wybitną specjalistkę w dziedzinie neurologii klinicznej. Dr Szejko pracuje na Wydziale Neurologii Klinicznej Uniwersytetu Calgary w Kanadzie oraz pełni rolę adiunkta w Zakładzie Bioetyki Warszawskiego Uniwersytetu Medycznego.Podczas naszej rozmowy zanurzymy się w świat tików, zespołu Tourette’a, zaburzeń ruchu oraz neuropsychiatrii. Dr Natalia Szejko podzieli się swoją bogatą wiedzą i doświadczeniem, ukazując złożoność tych schorzeń oraz nowoczesne podejścia do ich leczenia.Jeżeli int...
2024-05-2047 minGilles is in the airAccepting Tourette; before and after the diagnosisInspiring, honest and enlightening stories
For our 3rd "Gilles is in the air episode", we welcome E.G. Gidner (USA), Devyn LaCroix (USA) and Paul Stevenson (UK).
We discuss amongst other things about the chronology of their first tics, if/how bothersome they were, how they were perceived by their close ones, the diagnosis –the announcement and its effect, the term "Tourette", available resources and the current landscape; acceptance and understanding.
To find out more about our guests:
E.G Gidner, X, LinkedIn, Facebook
Devyn LaCroix
Paul Stevenson, X, Li...
2024-04-0858 minGilles is in the airCannabis-based medicines for the treatment of ticsFor our second episode of "Gilles is in the air", Christelle Nilles co-hosts the interview with Dr Natalia Szejko and together they ask important questions on cannabis-based medicines as a treatment strategy for improving tics.
Our guest today, is Professor Kirsten Müller-Vahl from the Hannover Medical School, specialised in neurology and adult psychiatry. Over the past 30 years, she has investigated Tourette syndrome in more than 3,000 patients.
She is the President of the International Alliance for Cannabinoid Medicines (IACM), and past Chair of the ESSTS.
References, studies and papers cited:
CA...
2024-02-2816 minGilles is in the airGilles is in the airFor 2024 we introduce "Gilles is in the air", our new podcast series hosted by Christelle Nilles.
We discuss the latest findings on Tourette syndrome, share stories, and create connections.
Every month, (we are only warming up!), we will talk about tics, associated comorbidities and lived experiences; our episodes are aimed at researchers, clinicians, patients and their families.
We shall interview authors whose papers have caught our attention, discuss hot topics that may seem controversial, share different ways of educating the community on TS and hopefully, we will all learn something about Tourette that...
2024-02-0100 min
Gilles is in the airPromising results on a clinical trial to explore the safety and efficacy of Sepranolone in pediatric and adult patients with Tourette syndromeBy Heidi Biernat
2024-02-0107 minGilles is in the airTourette syndrome; myths, misconceptions and ways forwardFor the first episode of "Gilles is in the air", Christelle Nilles talks to Dr Andreas Hartmann, a movement disorder neurologist at the Pitié Salpêtrière Hospital in Paris, France and coordinator of the French Centre of Excellence (centre de référence) for Tourette syndrome.
References, studies and papers cited:
Fat MJ, Sell E, Barrowman N, Doja A. Public perception of Tourette syndrome on YouTube. J Child Neurol. 2012 Aug;27(8):1011-6. doi: 10.1177/0883073811432294. PMID: 22821136.
Müller-Vahl KR, Sambrani T, Jakubovski E. Tic disorders revisited: introduction of the term "tic spectrum disorders". Eur Child Adolesc Psychiatry. 2019 Aug;28(8):1129-1135. doi: 10.1007/s00787...
2024-01-3114 min
Gilles is in the airExperiences of self-identification, diagnosis and support for adults seeking a late diagnosis of tic disorders in the United KingdomBy Danni Phoenix-Kane
2023-06-0104 min
Gilles is in the air(FR) Surveillance study of a UK cohort of adolescents presenting with functional tic-like behaviours (FTLB)By Alexandra Ducroizet
2023-06-0106 min
Gilles is in the air(EN) Surveillance study of a UK cohort of adolescents presenting with functional tic-like behaviours (FTLB)-EN versionBy Alexandra Ducroizet
2023-06-0106 minGilles is in the airExploring Clinical Pathways for Tics and Tourette Syndrome: Perspectives from Healthcare Professionals and PatientsBy Johanna Marie Luise Fijn van Draat
2023-06-0103 min
Gilles is in the airEvaluation of diagnostic instruments for Autism-spectrum-disorder (ASD) in adultsBy Daniel Alvarez-Fischer
2023-05-2814 minGilles is in the airDifferential diagnosis of autism-spectrum-disorder (ASD) in adultsBy Daniel Alvarez-Fischer
2023-05-2810 min
2023-05-2809 min
Gilles is in the air“For the love of God just refer me” - A coproduced qualitative project into the struggles of accessing health care services for those living with Tourette Syndrome in the UKBy Camilla Babbage
2023-05-2806 min
Gilles is in the airPremonitory urge and tic severity, comorbidities, and quality of life in chronic tic disordersBy Natalia Szejko
2023-05-2817 min
Gilles is in the airLiterature review and clinical perspective in the management of functional tic-like behaviours within a tertiary children’s hospital in EnglandBy Laavanya Damodaran & Edward Palmer
2023-05-2807 min
Gilles is in the airMicroaggressions Experienced by Emerging Adults (16-25 years old) with Tourette SyndromeBy Coralie Beaulieu
2023-05-2806 min