Shows
Jon Myer PodcastEp#222 EverythingALS & Compass UOL: Using AI to Fight Brain DiseaseIn this special episode from AWS re:Invent 2024, Jon Myer brings together leaders from EverythingALS and Compass UOL to discuss their groundbreaking partnership in the fight against ALS and other neurodegenerative diseases. Learn how they're combining AI expertise with healthcare innovation to accelerate research, democratize data, and transform patient care. Discover the inspiring story behind EverythingALS and how technology partnerships are helping to revolutionize healthcare research.
Key Takeaways:
🧬 Data-driven approach to cure brain diseases
🤖 AI & ML expertise meets healthcare innovation
🎓 Investing in education and scholarships
🤝 Strategic partnerships drive breakthroughs
💡 Open source approach accelerates research
📊 Citizen-driven research platform
🌟 Peter Cohen's legacy lives on
⚡ One...2025-01-2431 min
Tom Bilyeu's Mindset PlaybookThe Hidden Causes of Alzheimer’s—and How to Prevent Them | Jay LombardYouth has a way of making you feel near invincible. Your body handles long nights, limited sleep, and poor diets much easier. The problem is those choices have a cumulative effect. What you eat, how often you eat also impacts the health of your brain. There is a Chinese proverb that says, “the best time to plant a tree was 20 years ago, and the second best time is now.” It is easy to disregard neurodegenerative diseases as something for older people, but understanding how leaky brain and neurodegeneration begins to happen is better learned now, than waiting till later if y...2024-12-1949 min
The Michael Dukes ShowTuesday // 6 - 11 - 24 // Weekly Top 3, Walk for ALS & LIfecoachingToday we're diving right in with our Weekly Top 3 from Brad Keithley from Alaskans for Sustainable Budgets. This weeks topics: the scrutiny of the PF Board increases; ADN starts hyperventilating; seriously...where is the phase 2 report? Then in hour two we'll have a quick chat with Indu Navar, founder of EverythingALS to talk about The Walk to Defeat ALS Alaska. Finally at the end of hour two we'll catch up with Chris Story and get our weekly PMA boost and life coaching lesson.2024-06-111h 58
Open||Source||DataHealthcare Infrastructure, ALS Research and Reliable Data with Indu NavarThis episode features an interview with Indu Navar, CEO and Founder of EverythingALS, a patient-driven non-profit, bringing technological innovations and data science to support efforts from care to cure, for people with ALS. Indu’s impressive career includes being an original member of the WebMD engineering team, where she was instrumental in using emerging technologies to achieve application scalability and performance.In this episode, Sam sits down with Indu to discuss healthcare infrastructure applications, her strategies for providing reliable patient data, and the future of ALS research.-------------------“We said, ‘Okay, we're going to mak...2022-11-0946 min
Distributed Future PodcastBuilding a community for crowdsourced medical research - EverythingALS.orgHow can a networked community contribute to medical advances? We talk to Indu Navar about EverythingALS and the change it brings to treatment of brain disease.2022-07-0746 min
Be The Good with KateEp. 47: Indu Navar, EverythingALSLosing the love of her life to ALS was today’s guest’s impetus to create a non-profit with a goal to change the outcome for future patients.
ALS is a progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord. It has been known for a hundred years, yet minimal progress has been made throughout this entire time. Indu Navar and her non-profit EverythingALS are making incredible strides to change that.
There are no tests to diagnose ALS so patients suffer for years not knowing what is wrong. And even if they...2022-04-2928 min
Stories and Innovations in ALSEpisode # 24: Her ALS Story, with guest Leah Stavenhagen, Sunny Brous and Macey Hoaglund.In this episode, Lisa and McFinn are joined by guests Leah Stavenhagen, Sunny Brous and Macey Hoaglund, who all have something in common - they were diagnosed with ALS in their late 20’s. They part of Her ALS Story, which is a group of women all diagnosed with ALS before their 35th birthdays.
We talk about their involvement with Her ALS Story and personal stories. Her ALS Story provides a place for young women with ALS to not feel alone, and they raise money for research and their advocacy efforts include working with female lawlmakers to improve in...2022-04-2134 min
Stories and Innovations in ALSEpisode #23: Not Going Quietly with Ady Barkan and Rachael KingIn this episode, Lisa and McFinn are joined by American healthcare activist and lawyer Ady Barkan. Ady was diagnosed with ALS shortly after the birth of his son Carl, at the young age of 32. He joins us with his wife Rachael King by his side. Rachael is the mother to their two young children, Carl and Willow. She is a professor at UCSB and manages to balance motherhood, working, and being the pillar of strength for their family.
We will take you through Ady’s journey on the challenges he faces having ALS and the amazing things he...2022-04-0727 min
Stories and Innovations in ALSEpisode #22: Nutrition Essentials for ALS, with guest Coco Newton.In this episode, Lisa and McFinn are joined by Coco Newton, MPH, RD, CNS, who is a Registered Dietitian & Certified Nutrition Specialist and has worked with many people living with ALS.
We will take you through Coco’s nutritional journey, discussing how she works with each individual, helping to understanding their unique circumstances, belief systems, personal/spiritual strengths and challenges. Coco tailors a program that more realistically addresses each individuals nutritional needs and expectations. Coco has a lot of passion in working with many people diagnosed with ALS over the years to help them with their nutritional nee...2022-03-2636 min
Stories and Innovations in ALSEpisode #21 Pursuit of HappinessWelcome to Stories and Innovations in ALS
Episode #21: Pursuit of Happiness
In this episode, Lisa and McFinn are joined by Mayuri and Mayank Saxena. Mayuri was diagnosed with ALS 2.5 years after the onset of symptoms, at the young age of 32. Mayuri is joined by her brother Mayank, who has been instrumental throughout her journey even though they are bi-coastal.
We will take you through Mayanks journey and role as a caregiver for his sister, and also Mayuri’s advocacy efforts of standing up for others and herself. Through eye gaze technology to share her voi...2022-03-1031 min
Stories and Innovations in ALSEpisode #20: ALS has not Defined Us with Lori and Brian Andre.In this episode, Lisa and McFinn are joined by Lori and Brian Andre. Brian has slow progressing ALS, he was diagnosed in 2016 after 2 years of symptoms. They have been married for 40 years and are huge assets to the ALS community, working on community outreach and education for clinical trials with I AM ALS.
We will take you through Lori and Brian's journey with ALS and now they are still living a full life, not letting it define who they are.
McFinn and Lisa are part of EverythingALS.org, whose mission is to accelerate treatments for ALS...2022-02-2538 min
Stories and Innovations in ALSEpisode #19: Detoxification & Biochemical ResilienceWelcome to Stories and Innovations in ALS
Episode #19: Detoxification & Biochemical Resilience
In this episode, Lisa and McFinn are joined by Dr. Christopher Shade, who is the CEO and Founder of Quicksilver Scientific.
We will take you through what Dr. Shade and Quicksilver Scientific have created to help rid the body and mind of toxins that impair mind and body function. Dr. Shade will walk us through his solutions on restoring a balanced system to help you get rid of toxins and attain a state of wellbeing.
McFinn and Lisa are part o...2022-02-1547 min
Stories and Innovations in ALSEpisode #18 Podcast Youtube Description Allison BulatWelcome to Stories and Innovations in ALS
Episode #18: I can’t Look Away
In this episode, Lisa and McFinn are joined by Allison Bulat who lost her first husband, Jeff Pogmiller, to a fast progressing bulbar onset of ALS.
We will take you through Allison’s journey along Jeff’s side as his primary caregiver and also her advocacy efforts and how she has not turned away from helping others with this devastating disease.
McFinn and Lisa are part of EverythingALS.org, whose mission is to accelerate treatments for ALS through citizen...2022-01-3137 min
Stories and Innovations in ALSEpisode #17: My Dedication To Study and Care For People With ALSIn this episode, Lisa and McFinn are joined by Dr. Merit Cudkowicz who has over 25+ years working in ALS. Dr. Cudkowicz is the Chief of the Massachusetts General Hospital Neurology Service, Director, Sean M. Healey & AMG Center for ALS at Massachusetts General Hospital and the Julieanne Dorn Professor of Neurology at Harvard Medical School in Boston.
We will take you through Dr. Cudkowicz’s work in ALS as she feels this is not a job for her but a community that works together to solve ALS. She talks of the HEALEY Platform Trial that is working to cont...2022-01-1337 min
Stories and Innovations in ALSEpisode #16: Keep On Ticking - With guests Dr. Hira Ahluwalia & MaggieWelcome to Stories and Innovations in ALS
Episode #16: Keep On Ticking
In this episode, Lisa and McFinn are joined by Dr. Hira Ahluwalia and his wife, Maggie. Hira talks about his journey with ALS, how it took 3.5 years to get a diagnosis, and what he thinks might have contributed to getting this disease.
We will take you through their journey as they open up about difficult decisions, family roles, caregiving challenges, and more. Hira is the author of a book called Keep On Ticking - One Man’s Approach to Chronic Progressive Disease.
...2021-12-1539 min
Good News To Go: Health & WellnessALS, Lou Gehrig's Disease, takes many lives, Everything ALS is doingDeb Fabricatore lost her younger brother to ALS in 2014, and became involved in ALS advocacy. Indu Navar lost her husband in 2019 and immediately stepped up into action by building a nonprofit devoted to honoring her husband. Both women and the members of the EverythingALS team have vowed to create a legacy of treatment and cure for their loved ones lost to ALS by building a non-profit determined to tackle the mission of Care to Cure for those diagnosed with ALS...for video and more info, go to https://goodnewsplanet.com/als-lou-gehrigs-disease-takes-many-lives-everything-als-is-doing/#deb #fabricatore #als #indu #navar...2021-12-0727 min
Stories and Innovations in ALSEpisode #15: Passion, Perseverance, and Advocacy - With guest Austen Eadie-FriedmannWelcome to Stories and Innovations in ALS
Episode #15: Passion, Perseverance, and Advocacy
In this episode, Lisa and McFinn are joined by Austen Eadie-Friedmann, who -- still only in his 30s -- got diagnosed with ALS in 2019. We will take you through his long journey to get diagnosed, his daily challenges, and how he feels the drug development paradigm needs to be changed. He also talks about treatments and the need for access to world-class healthcare for patients.
McFinn and Lisa are part of EverythingALS.org, whose mission is to accelerate treatments for ALS...2021-12-0136 min
Stories and Innovations in ALSEpisode #14: Audiovisual Assessments for ALS - With guest David Suendermann-OeftWelcome to Stories and Innovations in ALS
Episode #14: Audiovisual Assessments for ALS
In this episode, Lisa and McFinn are joined by David Suendermann-Oeft, founder and CEO of Modality.a.i. Modality has developed a conversational software program that can be used remotely by anyone with a computing device that produces accurate metrics of facial and speech behaviors that are predictive of neurological diseases like ALS. Modality is paving the way for more efficient, effective, less costly clinical trials.
We will take you through the company’s journey: only six months after kick-off of th...2021-11-1535 min
That GD ShowEp 10 // "Everything ALS" with Indu NavarDave Warnock was diagnosed with ALS on February 26, 2019, and was told that it was a terminal illness with no real treatment. Indu Navar lost her husband to ALS a few months later on August 13, 2019. During her husband's illness Indu struggled with the realization that although there were promising therapies for ALS in trials, treatments had little chance of being FDA approved without clinical biomarkers to show a treatment is working. Biomarkers are a standard measurement tool that amazingly this disease does not really have. Currently ALS progression is measured mostly subjectively through manual muscle tests and a pen and p...2021-11-101h 27
Stories and Innovations in ALSEpisode #13: Fashionably Fighting ALS! With guest Dr. Richard BedlackEpisode #13:
In this episode, they are joined by a world renowned neurologist, Dr. Richard Bedlack who is currently a professor of Neurology at Duke University and Director of the Duke ALS Clinic. In his 23+ years of experience, he has seen over 3000 patients living with ALS. He is also well known for creating the Duke ALS Clinic in 2001.
Dr. Bedlack discusses his work in ALS and the challenges he faces, like the need for more time and resources to help find a cure for ALS. There are no doctors that focus on ALS full time because of...2021-11-0140 min
Stories and Innovations in ALSEpisode #12: Community and ALS - With guest Shea HardenWelcome to Stories and Innovations in ALS
Episode #12: Community and ALS
In this episode, Lisa and McFinn are joined by Shea Harden who is an amazing ALS advocate.
We will take you through Shea’s journey with her younger brother, Graham, who just recently passed away from ALS. Shea was instrumental in helping her brother by fundraising, getting disability benefits, finding qualified medical care, and working through the tracheotomy process. Shea opens up about the importance of community, and how to not be afraid of asking for help.
McFinn and Lisa are...2021-11-0139 min
Stories and Innovations in ALSEpisode #11: Dying Out Loud - With guests Dave Warnock & Bevin JettWelcome to Stories and Innovations in ALS
Episode #11: Dying Out Loud
In this episode, Lisa and McFinn are joined by Dave Warnock, who was diagnosed with ALS in 2019 and his partner and caregiver, Bevin Jett.
We will take you through Dave’s journey of getting a diagnosis and how he spends his limited energy living with ALS with Bevin by his side. Dave and Bevin open up about what they’ve learned and the important role as a caretaker that Bevin plays in Dave’s life. Dave and Bevin also share their advocacy work with...2021-10-3037 min
Stories and Innovations in ALSEpisode #10: Biomarkers Lead To Results - With guest Dr. Aria AnvarWelcome to Stories and Innovations in ALS
Episode #10: Biomarkers Lead To Results
In this episode, Lisa and McFinn are joined by Dr. Aria Anvar, who has been a practicing physician for more than 22+years. Dr. Anvar brings his expertise as Principal Investigator on the EverythingALS Digital Biomarker Voice research study.
In this podcast, we will take you through our citizen-driven research to help develop biomarkers as well as commercialized tools for measuring clinical endpoints in ALS. The goal of this research is to expedite clinical trials and eliminate the need for placebos. Dr. An...2021-10-3037 min
Stories and Innovations in ALSEpisode #09: ALS Reversal #42 - With guest McFinn LovereWelcome to Stories and Innovations in ALS
Episode #09: ALS Reversal #42
In this episode, Lisa Deegan interviews her co-host McFinn Lovere, who experienced a rare ALS reversal. His case is documented and was studied as ALS reversal #42 at Duke University.
We will take you through McFinn’s unique journey with ALS, how he recovered, and what his important role as an ALS advocate on the EverythingALS team means to him. McFinn shares details of his role dedicating his time to helping others throughout their ALS journey. In addition, McFinn has written a book entitled The...2021-10-3029 min
Stories and Innovations in ALSEpisode #08: Why ALS is Unresolved - With guest Murgesh NavarWelcome to Stories and Innovations in ALS
Episode #08: Why ALS is Unresolved
In this episode, Lisa and McFinn are joined by Murgesh Navar, who lost his brother-in-law, Peter Cohen, to ALS in 2019. Murgesh is a Silicon Valley entrepreneur, who is passionate about finding a cure for ALS after seeing his sister, Indu Navar, care for her husband and face the challenges of ALS.
We will take you through Murgesh’s journey as well as his views on why ALS still lacks treatments and a cure, and his efforts as an advocate.
McFi...2021-10-3026 min
Stories and Innovations in ALSEpisode #07: Tragedy to Triumph - With guest Lisa DeeganWelcome to Stories and Innovations in ALS
Episode #07: Tragedy to Triumph
In this episode, McFinn Lovere interviews Lisa Deegan, his co-host and team member at EverythingALS. Lisa lost her younger brother John Pecoraro to ALS in 2018.
We will take you through Lisa’s journey with her brother, their challenges, and how she became an advocate for ALS. She talks about turning her tragedy into positive actions and now puts her energy into EverythingALS to help others.
McFinn and Lisa are part of EverythingALS.org, whose mission is to accelerate treatments for ALS...2021-10-2933 min
Stories and Innovations in ALSEpisode #06: A Brothers Legacy, A Sister’s Love - With guest Deb FabricatoreWelcome to Stories and Innovations in ALS
Episode #06: A Brothers Legacy, A Sister’s Love
In this episode, Lisa and McFinn are joined by Deb Fabricatore, who has been an ALS advocate for many years after losing her younger brother, Johnny, to ALS. We will take you through Deb’s journey with her brother, how she helped him, and how she also kept her spirits up throughout his diagnosis. Deb also talks about how she got involved with EverythingALS and her contribution to our research project.
McFinn and Lisa are part of EverythingALS.org...2021-10-2736 min
Stories and Innovations in ALSEpisode #05: My Journey to CEO of EverythingALS - With guest Indu NavarWelcome to Stories and Innovations in ALS
Episode #05: My Journey to CEO of EverythingALS
In this episode, Lisa and McFinn are joined by the CEO and Founder of EverythingALS, Indu Navar. Indu is a Silicon Valley entrepreneur, investor, and an unstoppable force, who started EverythingALS after losing her husband, Peter Cohen, to ALS in 2019.
We will take you through Indu’s journey with her husband, the treatments they tried, and her vision for changing the face of ALS.
McFinn and Lisa are part of EverythingALS.org, whose mission is to accelerate tre...2021-10-2732 min
Stories and Innovations in ALSEpisode #04: In Honor of My Dad, Dan Diaz. With guest Sarah DiazWelcome to Stories and Innovations in ALS
Episode #04: In Honor of My Dad, Dan Diaz
In this episode, Lisa and McFinn are joined by Sarah Diaz, who lost her father, Dan Diaz, to ALS in 2019.
We will take you through Sarah’s journey with her father, what role she took on to help him, and how she honors him today. Sarah also talks about how she got involved with EverythingALS and her hopes for progress in ALS. Sarah is currently studying to be a neurologist.
McFinn and Lisa are part of Eve...2021-10-2740 min
Stories and Innovations in ALSEpisode #03: A Wife's Journey with ALS - With guest Nadia SethiIn this episode, Lisa and McFinn are joined by Nadia Sethi, who lost her husband, Sundeep Sethi, to ALS earlier this year. Nadia talks about Sundeep’s life with ALS and her role as caregiver.
We will take you through Nadia’s journey with her husband, how she kept her spirits up, and her champions throughout this experience. She tells us how she got involved with EverythingALS.
McFinn and Lisa are part of EverythingALS.org, whose mission is to accelerate treatments for ALS through citizen-driven research.
To learn more about EverythingALS, please visit: http...2021-10-2730 min
Neura Pod (All Things Neuralink)Episode 53: Neuralink Update – October 2021Watch in video form here.
Elon Impersonator Job Position: [https://neurapod.webflow.io/]
EverythingALS Research Study: [https://www.everythingals.org/research]
Elon at Italian Tech Week: [https://youtu.be/4_LAXD-f9e0?t=1680]
Director of Software Engineering position, Neuralink: [https://boards.greenhouse.io/neuralink/jobs/4732325003]
Neuralink Careers: [https://neuralink.com/careers/](https://neuralink.com/careers/)
Mark Zuckerberg on The Vergecast Podcast: [https://open.spotify.com/episode/0ouoP9Qb96XMgfT5kt5ZEk?si=p4yIEuVAT5e8SSBOvGSzBw]
Shivon Zilis Top 10: [https://aimagazine.com/top10...2021-10-2608 min
Passion Struck with John R. MilesDr. Jay Lombard On: Brain Science for Better Lives EP 75Dr. Jay Lombard is an internationally acclaimed neurologist, author, and keynote speaker who creates solutions for brain health and intractable neurological disorders. He sits down with John R Miles to talk about brain science for better lives and his research that are allowing both the prevention and treatment of neurological disorders such as ALS, Parkinson’s disease, and Alzheimer’s.
New to the passion-struck podcast? Check out our starter packs which are our favorite episodes grouped by topic, to allow you to get a sense of all the podcast has to offer. Go to https://passionstruck.com/star...2021-10-2656 min
Stories and Innovations in ALSEpisode #02: ALS and the Wild Wild West of Medicine - With guest Neil OlsonWelcome to Stories and Innovations in ALS
Episode #02: ALS and the Wild Wild West of Medicine
In this episode, Lisa and McFinn are joined by Neil Olson, whose father lost his battle to ALS in 2020. We will take you through Neil’s journey with his father, the treatments they tried, and what he has chosen to do with the knowledge from his experience. Neil also talks about his advocacy work and efforts with EverythingALS.
McFinn and Lisa are part of EverythingALS.org, whose mission is to accelerate treatments for ALS through citizen-driven research....2021-09-2129 min
Stories and Innovations in ALSEpisode #01: Misdiagnosed! With guest Richard SperryEpisode #01:
In this episode, we are joined by guest Richard Sperry who was misdiagnosed with ALS. We will take you through Richard's long journey of getting diagnosed, how he got a new diagnosis of MMN, and what he has chosen to do with his knowledge from his experience.
McFinn, Lisa and Richard are part of EverythingALS.org whose mission is Care to Cure with the ultimate goal of accelerating treatments for ALS through citizen driven research.
To learn more about EverythingALS please visit: https://www.everythingals.org/
Get Involved in ALS Rese...2021-09-2137 min
Neura Pod (All Things Neuralink)Episode 46: Neuralink Update - July 2021Everything ALS Research: https://www.everythingals.org/research
2021 Shivon Zilis @ AI Conference: https://youtu.be/CkUcCcRq_eM?t=26
Kernel Company Spotlight link:
2021 Bryan Johnson x Lex Fridman: https://youtu.be/1YbcB6b4A2U?t=5028
2019 Bryan Johnson - A Plan for Humanity: https://youtu.be/hdRNGnlWntw?t=402
2021 Neuralink Team Lead Q&A w/ IEEE Spectrum: https://spectrum.ieee.org/tech-talk/biomedical/bionics/exclusive-neuralinks-goal-of-bestinworld-bmi
Dr. Joseph O'Doherty CV: http://neuroengineer.com/odoherty_cv.pdf
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Support this podcast: https://podcasters.spotify.com/pod/show/neura-pod/support2021-07-2513 min
Healthcare Goes DigitalOpen-Data Platforms for Direct Engagement with Patients, Researchers, and Pharma with Indu Navar, CEO and Founder of EverythingALSIndu Navar, CEO and Founder of EverythingALS, explores the roles of Artificial Intelligence, Machine Learning, and Brain Computer Interface in the search for a cure for ALS. She will also share innovative research studies on ALS detection, how Pharma can work with and support ALS patient advocates, and her key leadership lessons for digital health entrepreneurs and innovators.To find out more about Impetus: https://www.meetwithimpetus.comNatalie Yeadon LinkedIn: https://www.linkedin.com/in/natalieyeadon/Impetus Digital Website: https://www.impetusdigital.com/Impetus Digital LinkedIn: https://www.linkedin.com...2021-06-2556 min