Shows
Epilepsy Sparks InsightsCarers in Epilepsy: Quality of Life, Hidden Costs & Research - Dr. Florien BoeleHow much do carers really contribute to epilepsy care, & why are their struggles so often invisible? 💜
Dr. Florien Boele, a researcher in psychosocial oncology & caregiving, talks about the essential but often overlooked role of unpaid carers for adults with epilepsy.
Florien talks with Torie about:
Who carers are
The staggering £184 billion value that carers add to the UK economy
The personal costs of caregiving - sleep, stress, health, finances & relationships
Why epilepsy research rarely includes carers (compared with other diseases)
The importance of measuring carer outcomes through core outcome sets
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2025-10-0913 min
Neuro-Oncology: The PodcastQOL and cognitive functioning in patients with oligodendrogliomaDr. Iyad Alnahhas interviews Drs. Florien Boele and Martin Klein about their recent manuscript entitled: "Health-related quality of life and cognitive functioning in survivors of oligodendroglioma: An international cross-sectional investigation", published online in Neuro-Oncology in July 2025.
2025-09-2618 min