Shows
People Jew Wanna KnowInvisible No More - Harper SperoIn this episode, Margarita interviews Harper Spero - business coach, community builder, and storyteller. Harper created Made Visible, a podcast and Storytellers Workshop that helps individuals with invisible illnesses find their voice. Margarita and Harper discuss invisible illness and how it affects people in the workplace. In this eye-opening conversation, Harper talks about her experience and how to empower others to advocate for themselves at work. She also talks about how she single-handedly raised $40,000 for Israel. Harper's inspiring story is the embodiment of "if there's a will, there's a way." Learn more about Harper...
2024-04-0145 min
Mile 40 PodcastEp 68 - Unveiling Invisibility: Featuring Harper SperoEpisode Promotional Partner: Kreatures of Habit Use Code: Mile40 at www.kreaturesofhabit.com for 15% off a one-time purchase OR the first subscription order payment.
Harper Spero is a resilient individual with a remarkable story. Harper endured a challenging journey of self-acceptance due to a rare disease that cast a shadow over her life from a young age. Despite the personal struggle and the fear of judgment, Harper successfully concealed her condition from even those closest to her.
Harper's eventual confession was a revelation, not just of her hidden illness, but also of her deep-seated insecuri...
2024-02-2249 min
Change from WithinLiving with an Invisible Illness with Harper SperoHarper Spero is on the podcast this week and she is sharing what it’s like to live with an invisible illness, specifically, a rare immunodeficiency called Hyper IgE Syndrome. Not only what her day to day life looks like living in this way, but also what it took to find a diagnosis and why she didn’t tell anyone outside of her immediate family about the illness for decades!Harper shares many parts of her journey including: finding the right doctors to help her, a turning point in her life that...
2023-06-2741 min
Made Visible115. Harper Spero, Sharing My Own Invisible Illness StoryThis episode provides an in-depth look into my life navigating a rare primary immunodeficiency, Hyper IgE Syndrome after ten years of not being diagnosed and almost three decades of hiding my condition. I share all the bumps along the way to launching Made Visible, and the how and why behind the show. For more information about my journey, what I'm up to next, or to sign up for writing classes, visit our website at madevisiblestories.com/podcast. Please note: This podcast is intended to provide information and education and is not inte...
2023-04-2521 min
Made Visible108. Serena Wolf and Katie Dalebout, Approaching Anxiety with Vulnerability and LaughterJoin Serena, Katie, and host, Harper Spero, for a special IG Live event on March 10th at 12:00 PM EST! Follow @madevisiblestories on Instagram to tune in. Serena Wolf and Katie Dalebout have embraced vulnerability when it comes to living with anxiety. They’re the hosts of Spiraling, dubbed an “optimistic” anxiety podcast, and they talk openly with me about what it means for them to live with anxiety, how they cultivate awareness around their mental health, and what strategies they’ve developed (or are in the process of developing) to manage day-to-day moments with anxiety. This episode features...
2023-03-0759 min
Made Visible107. Lara Bloom, Supporting People with Ehlers-Danlos Syndrome While Elevating Global AwarenessJoin Lara Bloom and host, Harper Spero, for a special IG Live event on March 1st at 11:00AM EST! Follow @madevisiblestories on Instagram to tune in. Before being diagnosed with Ehlers-Danlos syndrome at 24 years old, Lara Bloom endured 12 years of undiagnosed pain and mysterious symptoms. According to Lara, who is now the president and CEO of The Ehlers-Danlos Society, this experience isn’t uncommon. On today’s episode, Lara and I talk about why she’s dedicated her career to EDS awareness, why it’s important to her that The Ehlers-Danlos Society is in it for the l...
2023-02-2835 min
LEAVE YOUR MARK: Freshly Brewed Career Advice with Aliza LichtHarper Spero on the Impact and Advocacy of Invisible Illness in the Workplace and Why You Need to Meet People Where They AreIf you had to reflect on your life, what would be your defining moment? For Harper Spero, it was walking in NYC one day and, out of the blue, being unable to breathe. Harper has a rare Immunodeficiency called hyper IGE syndrome (there are only 300 people diagnosed in the world) and, after a life-altering surgery, decided to change the entire trajectory of her career.
"The doctor said, 'You have a cyst the size of a golf ball in your right lung, and you need surgery immediately to remove it.' Everything about my life is before that...
2023-02-2637 min
Made Visible106. Akilah Cadet Advocating for Herself As She Searches for a Primary DiagnosisJoin Akilah Cadet and host, Harper Spero, for a special IG Live event on February 22nd at 12:30pm EST! Follow @madevisiblestories on Instagram to tune in. Akilah has been diagnosed with pericarditis, coronary artery spasms, and orthostatic hypotension, but she’s still searching for a reason why she’s experiencing intense and chronic pain on the left side of her body. On today’s episode, we talk about how why she no longer thinks of her health journey as a temporary bump in the road, why she decided to start talking about her health with clients...
2023-02-2135 min
Made Visible105. Devri Velazquez, Living with Takayasu's Arteritis and Embracing Advocacy Through Owning Her IdentityJoin Devri Velazquez and host, Harper Spero, for a special IG Live event on February 15th at 11:00am EST! Follow @madevisiblestories on Instagram to tune in. When Devri Velazquez was diagnosed with Takayasu's arteritis at 20 years old, the prognosis was devastating. Doctors didn’t think she would live to age 21. On today’s episode, we talk about what Devri’s life looks like now, ten years after her diagnosis, and what it was like to hear such a scary prognosis when she was first diagnosed. We also talk about why, today, managing her physical stress and set...
2023-02-1438 min
Off The GramUncovering the Truth Behind Invisible Illnesses with Harper SperoHarper Spero was living a high-power corporate life in beauty PR, but when she received a surprise diagnosis of an extremely rare immunodeficiency called Hyper IgE Syndrome, her perspective shifted… and left her feeling that there were more important things in life than "tweeting about lipstick." Today, Harper is the definition of "making your mess your message" as the powerhouse behind "Made Visible," a podcast that sheds light on the often-misunderstood world of invisible illnesses. LISTEN TO THIS SHOW IF: You want to get the inside scoop on invisible illnesses and bust some common mythsLearn how comp...
2023-02-1332 min
Made Visible104. Hannah Olson, Showing Employers (and Beyond) the Value of Hiring People with Chronic Illness and DisabilityJoin Hannah Olson and host, Harper Spero, for a special IG Live event on February 8th at 12:00pm EST! Follow @madevisiblestories on Instagram to tune in. When employers come to Hannah Olson and ask her why they should hire people who have chronic illness, she has a lot to say. Hannah is the founder is Chronically Capable, a platform that connects people who are chronically ill or disabled with meaningful remote work. On today’s episode, Hannah and I talk about what it was like to balance her first post-grad job with managing Lyme disease, why...
2023-02-0727 min
Made Visible103. Genevieve Gorder, Designing a Life with Hashimoto’s Thyroiditis and Lyme DiseaseJoin Genevieve Gorder and host, Harper Spero, for a special IG Live event on February 1st at 11:30am EST! Follow @madevisiblestories on Instagram to tune in. Interior design star Genevieve Gorder wants to live in the light, not in her illness. What does that mean, exactly? For Genevieve, who has both Lyme disease and Hashimoto’s thyroiditis, it means refusing to stake her identity in her health challenges. On today’s episode, Genevieve talks to me about the role that learning plays in her journey with Lyme and Hashimoto’s, how a home can be healing...
2023-01-3153 min
Made Visible102. Ally Hilfiger, Changing the Lenses on Her Experience with Lyme DiseaseJoin Ally Hilfiger and host, Harper Spero for a special IG Live event on January 25th at ***2pm EST!*** (Rescheduled from 12:30pm EST) Follow @madevisiblestories on Instagram to tune in. Ally Hilfiger was bitten by a tick at age seven and battled severe physical and neurological symptoms throughout her childhood, but she wasn’t diagnosed with Lyme until after a hospitalization at age 18. On today’s episode, Ally and I talk about why she wrote a book chronicling her experience, the shift that occurred when she chose homeopathic treatments and lifestyle changes over antibiotics, and how...
2023-01-2441 min
Worthy for Thirty: Where stories of leaders doing good while doing well are told!Ep. 16: Harper Spero, Creator & Host, Made VisibleHello Everyone,The end of 2022 is nigh! Looking back, what are you most grateful for? What did 2022 teach you about YOU? For me, 2022 was a year of growth — I started this platform to elevate industry leaders’ stories about how they’re doing good while doing well. This begs for a separate post.Not to digress from the topic at hand, I had a chance to sit down and speak with a friend and former colleague, Harper Spero about her entrepreneurial journey since the time we worked together at Buddy Media in 2010. After leaving Buddy...
2022-12-2932 min
Good Enough For NowTrust Your Gut, Pivot with Purpose with Harper SperoIn this episode of Good Enough for Now, we turn the microphone on co-host Harper Spero and preview the next season of the show. Harper Spero is the founder of Made Visible, a 100-episode podcast that amplifies stories of people living with or affected by invisible illness. She facilitates writing classes for the Made Visible community and works with companies to create inclusivity and connection for their employees living with invisible illnesses through content, community, classes and workshops. Tune in to learn more! Here are three reasons why you should listen to this...
2022-12-2036 min
Building Better ManagersShining a Light on Hidden Disabilities in the Workplace with Harper SperoPeople with invisible illnesses may look fine, but that doesn't mean they aren't struggling. When Harper Spero was diagnosed with an extremely rare immunodeficiency disorder, she was determined to create her own narrative. And not only has Harper learned to embrace her invisible illness, but now she's on a mission to provide resources and hope to others who are silently struggling. Harper Spero is a business coach and consultant working with companies to create inclusivity and connection for their employees living with invisible illnesses through content, community, classes and workshops. After years of not finding content...
2022-11-2928 min
Find Your Voice, Speak Your Truth88. About looking out for each other, with Harper SperoIn 2012, Harper Spero learned she had a tumor in her lungs the size of a golf ball. After her subsequent surgery and that transformational experience, Harper began taking radically good care of herself. This included changing her health routines, and also starting her own business so she could be in charge of her work habits. When the pandemic hit, Harper became outspoken about her experience as an immunocompromised person, and the importance of making personal decisions that support the collective. In this heartfelt episode, Harper shares her story and speaks to the resistance many feel about getting vaccines and...
2021-12-0249 min
WANTcast: The Women Against Negative Talk Podcast123: On Feeling Seen + Navigating Invisible Illness with Harper SperoWhen business coach Harper Spero was diagnosed with an extremely rare immunodeficiency disorder known as Job's syndrome, she was determined to create her own narrative. She believes that battling an invisible illness should not define you. Not only has Harper learned to embrace her invisible illness, but she has carved a new path and given hope to many who feel equally veiled. Harper couldn't find podcasts featuring stories of people similar to her. In 2018, Harper launched the podcast Made Visible to help people with invisible illnesses (and those who care for them) feel more seen and heard. In 2020, she launched the...
2021-04-0252 min
Made VisibleMade Visible Writing Prompts & Class AnnouncementSubscribe to receive Made Visible writing prompts directly to your inbox every Sunday. Click here to subscribe. Want to be the first to be notified when we launch a new Made Visible Writing Class? Click here. Email hello@madevisiblepodcast.com with any questions. Follow @harper_spero on Twitter and Instagram for all updates in real time.
2021-03-0303 min
Made VisibleMade Visible Writing Class AnnouncementClick here to learn more and apply for the Made Visible Writing Class. Sign up for the Made Visible newsletter here. I promise we won't spam you! Follow Harper on Instagram and Twitter.
2021-01-1905 min
Made Visible100. Harry Spero (My Dad), Speaking With Me About My Health Story as We Celebrate 100 EpisodesI’m excited to be talking with my dad, Harry Spero, for this final episode of the podcast. We talk about how Job’s syndrome has impacted my life from childhood to the present, how he and my mom have supported me in different ways throughout my life, and his impression of me as a person who is resilient and determined. My dad told me between Episode #30 and #40 that he wanted to interview me on Episode #100, and I’m so thrilled to be able to celebrate 100 episodes with him as my guest. Learn more about my dad, Harry...
2020-10-2755 min
Made Visible93. Pamela Hunter, A Mother to a Daughter with Sensory Processing Disorder Who Gives Hugs with BlanketsSince Pamela Hunter’s daughter Ransom was diagnosed with sensory processing disorder at age two-and-a-half, Pamela has done everything she can to get her daughter the help she needs. On today’s episode, we talk about what it means to be a parent to a child with this condition. We also talk about how difficult moments have given Pamela the conviction to stick with her gut, and how Ransom’s story also led Pamela to found Sheltered.Co --a company selling handwoven weighted blankets made from deadstock. Learn more about Pamela and check out the show notes here.
2020-09-081h 00
Made Visible92. Este Haim, A Rocker Who Didn’t Let Her Type 1 Diabetes Diagnosis Cancel Out Her DreamFans know Este Haim for her ability to hold a killer baseline as part of HAIM, a band she formed with her two sisters, Danielle and Alana. Less well-known is the fact that Este was diagnosed with Type 1 diabetes in high school. On today’s episode, Este talks about how having a supportive family has meant that diabetes and music can always coexist in her life. We also talk about how Este manages her physical and mental health (especially while touring), and HAIM’s latest album, Women In Music Pt. III. Learn more about Este and check out t...
2020-09-0146 min
Made Visible91. Jen Pastiloff, Listening Fiercely with Profound Hearing Loss and TinnitusJen Pastiloff has built her identity and career around connecting with people. She also has profound hearing loss and tinnitus and is deaf without her hearing aids. As a result, she’s had to cultivate other ways of understanding and hearing. On today’s episode, Jen and I talk about the specific challenges that come with tinnitus and hearing loss, the assumptions people make if they don’t know that she’s hard of hearing, and how a sense of courageousness helped her carve out a space to truly be herself. This episode previously aired on October 23, 2018. Lea...
2020-08-2546 min
Made Visible90. Sonali Gupta, A Writer Chronicling the Muscular Dystrophy Diagnosis that Brought Her to IndiaAfter Sonali Gupta was diagnosed with limb-girdle muscular dystrophy in 2008, she went on a trip to India with her dad to explore options for healing. As an NYU grad, Sonali had been eyeing a career in the music industry, but she found a health journey in India instead. She now lives in Mumbai, and is writing a memoir about this experience. On today’s episode, Sonali and I talk about what that trip with her dad was like, how being aware of her needs gives her independence, and her identity as a writer. Learn more about Sonali and...
2020-08-1834 min
Made Visible89. Mira Mariah, A Tattoo Artist Who Thinks Tattoos and Disabled People Are Rock 'n' RollMira Mariah thinks tattoos are rock 'n' roll, and so are disabled people. As she says, disabled people have to be really “innovative and creative”--and what’s more rock 'n' roll than that? Though Mira didn’t always associate with the word “disabled,” that sense of herself shifted once she had amputation surgery and got a prosthetic leg. On today’s episode, I talk with Mira about fashion’s role in her life, the invisible challenges that amputees face, her career as a tattoo artist, and leaning in to joy. Learn more about Mira Mariah and check out the sho...
2020-08-1130 min
Made Visible88. Quentin Vennie, An Advocate for Humanity Managing His Anxiety with GardeningFor Quentin Vennie, despite having been diagnosed with acute anxiety and depression at 14, this wasn’t the focus as he grew up. The focus was on surviving, given that he lived in one of the most dangerous cities in America, had to contend with racism and prejudice, and lived in communities with limited resources. On today’s episode, I talk with Quentin about his decision to fight to live, why gardening is his “secret weapon” for his mental health, and how vulnerability helps remind him of his purpose. Learn more about Quentin and check out the show notes he...
2020-08-0441 min
Made Visible87. Devri Velazquez, Living with Takayasu's Arteritis and Embracing Advocacy Through Owning Her IdentityWhen Devri Velazquez was diagnosed with Takayasu's arteritis at 20 years old, the prognosis was devastating. Doctors didn’t think she would live to age 21. On today’s episode, we talk about what Devri’s life looks like now, ten years after her diagnosis, and what it was like to hear such a scary prognosis when she was first diagnosed. We also talk about why, today, managing her physical stress and setting boundaries is so important, and how owning her identity is so central to the advocacy work she does. Learn more about Devri and check out the show no...
2020-07-2838 min
The Second Degree with Emily MerrellFrom Invisible to Visible with Harper SperoSome people can’t hold onto a job for too long because they feel like it just isn’t a fit for them and they know that they need to find something more fulfilling. This is exactly what happened to Harper Spero, today’s guest, for 10 years until she discovered she was truly passionate about coaching. Nowadays, she is a business coach for individuals who are 0-5 years into launching their business, and she is the host of the Made Visible podcast, which shines a light on invisible illnesses.Highlights: Harper explains how she got int...
2020-07-2236 min
Made Visible86. Nikki Boyer, Sharing Her Best Friend's Story of Navigating Terminal Cancer Alongside Sexual AdventuresNikki Boyer put it best, when talking about her relationship with her best friend Molly: “We’re going to say the things that people don’t say.” On today’s episode, Nikki and I talk about “Dying for Sex,” the podcast she and Molly created to tell Molly’s story of navigating terminal cancer while also embracing sexual adventures. We also dig into the complicated and layered nature of caregiving, and talk about the profound ripple effect of Molly’s story and how it has helped Nikki keep Molly close. Learn more about Nikki and check out the show notes here...
2020-07-2145 min
Made Visible85. Jenn Donohue, Helping Her Son who Was Born Premature Approach His Invisible ChallengesJenn Donohue and her husband’s twins were born at 24 weeks, making them four months premature. On today’s episode, Jenn and I talk about how she and her husband navigated the “start and stop” feeling as they navigated their son’s health while also coping with the loss of their daughter, who passed away at one week old. We also talk about what the role of caregiving means to Jenn, and how she and her husband support their teenage son and the invisible challenges he faces due to complications from birth. Learn more about Jenn and check out...
2020-07-1431 min
Made Visible84. Dr. Alexandra Freeman, Helping Immunocompromised Patients Navigate the Time of COVID-19Dr. Alexandra Freeman is an infectious diseases physician at the National Institutes of Health, and as she explains, there are still a lot of unanswered questions about COVID-19. Dr. Freeman first spoke on Episode #24, and I wanted to have her back to talk about what the pandemic has been like for her and her patients, who are people with primary immunodeficiencies (like me). On today’s episode, we talk about the “new normal,” antibody testing, and possibilities for vaccine distribution. Learn more about Dr. Freeman and check out the show notes here. Check out her original episode here.
2020-07-0737 min
Made Visible83. Sarah Ramey, Writing Her Story as a Woman with Mysterious IllnessesSarah Ramey has a term for people like her. She calls herself a WOMI, or a “woman with a mysterious illness.” On today’s episode, Sarah tells me about the events that set her life as a WOMI in motion, and what it was like to be told over and over that her problems were psychosomatic. We also discuss her recently published book, The Lady’s Handbook for Her Mysterious Illness, and how she hopes it will change the experience for other patients with mysterious illnesses as they seek answers. Learn more about Sarah and check out the show...
2020-05-0740 min
Made Visible82. Alisa Vitti, Pioneering Modern Hormonal Healthcare and Rewriting the Female NarrativeAlisa Vitti wrote the book on women’s hormonal health--literally. WomanCode, her first book, was published in 2013, and it provides the education many women never knew they needed. A women’s hormone and functional nutrition expert, Alisa is the founder of FLOLiving.com. On today’s episode, we talk about her new book, how she developed the basis for the FLO Protocol through her experience with PCOS, and why she doesn’t buy into the narrative that women should accept pain and suffer in silence. Learn more about Alisa and check out the show notes here. Follo...
2020-04-3041 min
Made Visible81. John Boyle, Living with a Primary Immunodeficiency and Advocating for “Zebras” Like HimJohn Boyle was diagnosed with X-linked agammaglobulinemia (XLA) in 1978, when he was just six months old. On today’s episode, John and I talk about the routine management of his condition that allows him to live with minimal symptoms, and how taking care of his health was instilled in him at an early age. We also talk about his work with the Immune Deficiency Foundation, and why, after years of being attuned to his physical health, he realized it was time to give some attention to his mental health, too. Learn more about John and check out the...
2020-04-2335 min
Made Visible80. Dr. Krystal Lewis, Using Principles from CBT in Everyday Moments During the COVID-19 PandemicAs a clinical psychologist at the National Institute of Mental Health, Dr. Krystal Lewis is interested in how to make therapy, specifically cognitive behavioral therapy (CBT), more effective for children and adolescents.On today’s episode, Krystal and I talk about what led to her interest in psychology, and how CBT can treat anxiety and increase resilience. Then, we shift to the COVID-19 pandemic: how it’s affecting people on an emotional level and how principles from CBT can help us during this time. Learn more about Krystal and check out the show notes here. Follo...
2020-04-1635 min
Made Visible79. Jen Gotch, Recognizing the Power of Optimism in Life, Work, and Mental HealthRight now, ban.do founder and CCO Jen Gotch was supposed to be on tour for her first book, “The Upside of Being Down.” But because of the coronavirus pandemic, the tour was cancelled. While she did feel sadness about that, as Jen says, her knee-jerk reaction when most things happen is, “this is going to be okay.” On today’s episode, Jen and I talk about the meaning of that phrase and the power of optimism, why she doesn’t feel the stigma of mental illness, and how she’s choosing to get the news these days. Learn more...
2020-04-0946 min
Made Visible78. Jodi Taub, Protecting Her Health and Supporting Clients with Chronic Illness During COVID-19Like others with compromised immune systems, Jodi Taub’s life is at risk due to COVID-19. Jodi was diagnosed with primary immunodeficiency around 14 years ago, and she manages about 22 different health conditions as a result. On today’s episode, Jodi and I talk about recognizing that she felt unsafe in NYC, and what her new normal looks like. We also talk about how, as a psychotherapist, she’s helping clients with chronic illness navigate the emotional shifts and trauma that this pandemic has created. Learn more about Jodi and check out the show notes here. Follow...
2020-04-0233 min
Made Visible77. Past Guests of Made Visible Share How Coronavirus is Impacting Their Lives: Part 2The coronavirus pandemic has changed life as we know it. This crisis is a scary time for all of us, and it presents unique challenges for the invisible illness community. For this episode of Made Visible, we reached out to past podcast guests to hear how coronavirus is impacting their lives. As we face an era of physical distancing and isolation, we believe it’s more important than ever to connect with our community and hear their stories. We want to hear yours, too: https://www.speakpipe.com/MadeVisible.
2020-03-3142 min
Made Visible76. Past Guests of Made Visible Share How Coronavirus is Impacting Their Lives: Part 1The coronavirus pandemic has changed life as we know it. This crisis is a scary time for all of us, and it presents unique challenges for the invisible illness community. For this episode of Made Visible, we reached out to past podcast guests to hear how coronavirus is impacting their lives. As we face an era of physical distancing and isolation, we believe it’s more important than ever to connect with our community and hear their stories. We want to hear yours, too: https://www.speakpipe.com/MadeVisible. Follow Made Visible on Instagram. We wan...
2020-03-1940 min
Made Visible75. Coronavirus and Its Impact on People with Invisible and Chronic IllnessesOn today’s episode, we’re covering the recent coronavirus outbreak and the impact that global health challenges can have on people with invisible and chronic illnesses. To get expert perspectives, I spoke with Hernando Garzon, MD, an emergency medicine physician with experience in disaster response and global health; Andrew Kessler, founder of Scough, a company that makes scarves and bandanas that function as masks; and John Boyle, president and CEO of the Immune Deficiency Foundation. Learn more about Hernando, Andrew and John and check out the show notes here. Follow Made Visible on Instagram.
2020-03-1035 min
Made Visible74. Zach Iscol, Providing an Effective, Cost-Free Mental Health Program for Veterans with PTSDAs an officer in the Marine Corps, Zach Iscol was mentored by people who emphasized the importance of taking care of your people...and that lesson came home with him. After his service ended, he saw the heavy toll of PTSD and other military-related trauma on veterans. In particular, the suicide rate among veterans drove him to action. On today’s episode, Zach and I talk about how the Headstrong Project removes barriers for veterans seeking care, and the impact it’s had for over 1,500 veterans in 7 years. Learn more about Zach and check out the show notes...
2020-03-0324 min
Made Visible73. Aliza Licht, Turning a Private Health Experience into an Empowering Breast Cancer PSAWhen Aliza Licht was diagnosed with breast cancer in 2015, she didn’t tell anyone but close family. That changed in 2019, when she agreed to share her story in a TV segment for abc7NY. Only today’s episode, Aliza and I talk about why, after keeping her story to herself for so long, she decided she wanted people to know the facts of her diagnosis. We also chat about how life has changed for her since cancer happened, and why she thinks everyone has a responsibility to take the initiative in their health. Learn more about Aliza and c...
2020-02-2526 min
Made Visible72. Lara Bloom, Supporting People with Ehlers-Danlos Syndrome While Elevating Global AwarenessBefore being diagnosed with Ehlers-Danlos syndrome at 24 years old, Lara Bloom endured 12 years of undiagnosed pain and mysterious symptoms. According to Lara, who is now the president and CEO of The Ehlers-Danlos Society, this experience isn’t uncommon. On today’s episode, Lara and I talk about why she’s dedicated her career to EDS awareness, why it’s important to her that The Ehlers-Danlos Society is in it for the long haul, and how her life changed when she stopped waiting for a cure for EDS. Learn more about Lara and check out the show notes here....
2020-02-1837 min
Made Visible71. Shannon Shores, Facilitating Judgement-Free STD Testing and Sexual Health EmpowermentWhen Shannon Shores was diagnosed with a strain of HPV that can cause cervical cancer, it was an emotional and scary experience. But at the same time, it helped cement her new career path, validating her decision to build a product that would offer discreet and fast STD testing to people all over the country. On today’s episode, we talk about how education and empowerment factor into the mission of samedaystdtesting.com, and why shame and judgement don’t belong in conversations around sexual health. Learn more about Shannon and check out the show notes here.
2020-02-1135 min
Made Visible70. Shari Auth, Making Acupuncture and Herbs Accessible for a Larger AudienceDr. Shari Auth has been a healer for over 20 years. Now, as co-founder of WTHN, she’s helped thousands of people experience their first acupuncture treatment. On today’s episode, we discuss why many people no longer see holistic medicine as a last resort, but instead view it as a first stop. We also talk about how WTHN makes acupuncture, herbs, and cupping accessible for a larger audience, the symptoms people seek to alleviate through acupuncture, and why regular wellness treatments are key. Learn more about Shari and check out the show notes here. Follow Made...
2020-02-0429 min
Made Visible69. Simon and Martina Stawski, Navigating the Ups and Downs of Ehlers-Danlos Syndrome as a TeamYouTubers Simon and Martina Stawski share many aspects of their lives with their audience, including how they approach Martina’s diagnosis of Ehlers-Danlos syndrome (EDS). On today’s episode, I talk with Simon and Martina about how honest conversation plays a huge role in their team effort to manage EDS. We also talk about the ups and downs of managing a chronic illness, what they choose to share with their fans, and why the term “caregiver” doesn’t feel like the right way to describe Simon’s role. Learn more about Allie and check out the show notes here.
2020-01-2850 min
Made Visible68. Esther Crain, Illuminating Personal Narratives of Invisible Illness and MisdiagnosisAs deputy editor at Health.com, Esther Crain has developed features that reflect the hidden health experiences of people today. Focusing on women who have been misdiagnosed or diagnosed with invisible illnesses, she looks for stories that are relatable and help shine a light on different conditions and experiences with healthcare. On today’s episode, we talk about what led to her interest in health publishing, the power of personal narrative, and how the humanity in stories can make them hit home. Learn more about Esther and check out the show notes here. Follow Made Vis...
2020-01-2128 min
Made Visible67. Jessie Ace, Living with MS and Championing a New Vocabulary Around DisabilityFor the first few months after she was diagnosed with multiple sclerosis, Jessie Ace felt like her life was over. But, as she learned how to advocate for herself as a patient and reframe her mindset, her experience changed. On today’s episode, Jessie and I talk about what it was like to be diagnosed at age 22 and how she felt when she was suddenly labeled as having a disability. We also chat about her work as an illustrator, writer, and podcast host, and why she champions the term “enabled” vs. disabled. Learn more about Jessie and check...
2020-01-1433 min
Made Visible66. Lara Parker, Normalizing Vagina Problems by Writing and Talking About EndometriosisLara Parker deals with vagina problems (which is also the title of her book, coming in 2020). On today’s episode, Lara I talk about why she started being upfront and open about how endometriosis and other conditions have affected her life, and why she feels a responsibility to tell her story. Whether she’s talking about dating with penetrative sex off the table or giving advice to people who are navigating endometriosis, Lara talks candidly about her experience...because as she puts it, why wouldn’t she? Learn more about Lara and check out the show notes here.
2020-01-0733 min
Made Visible65. Mickey Trescott, Experimenting with Nutrition and Creating Her Own Road Map to HealthAt age 26, Mickey Trescott had been diagnosed with both Hashimoto’s thyroiditis and celiac disease. With her symptoms becoming increasingly unmanageable, she decided to take her health into her own hands. On today’s episode, Mickey and I talk about her drive to learn about the impact of diet on autoimmune conditions, the role that experimenting with diet has played in her health, and why educating people about the Autoimmune Protocol--which she calls a template, not a diet--is so important to her. Learn more about Mickey and check out the show notes here. Follow Made Visi...
2019-12-1748 min
The DISabled to ENabled podcast for people with chronic illnesses32. Harper Spero: I have mould constantly growing in my lungs. Made visible podcast hostTopics discussed in this episode:Being diagnosed at 10 years old with a mystery skin condition.Spending your teenage years covered in boils, warts and having your fingernails falling off whilst at school. Having a failing immune system and constant bouts of pneumonia at 11 years old.Being so self-conscious at school about having your arms or any skin on show it became normal to cover up - even when in fancy dress costume. Being told at 27 to have surgery to remove a cyst the size of a GOLF BALL in your lung then being told by another doctor not to...
2019-12-1100 min
Made Visible64. Molly O’Malley Pitman, Turning Tragedy into Empowerment and Hope for People with AutismMolly O’Malley Pitman’s son was diagnosed with autism before he was two years old. For Molly and her husband, the diagnosis was devastating, but it also gave her something to fight for. On today’s episode, Molly and I talk about how losing many family members to Huntington’s disease has influenced her life’s purpose, and how she aims to honor her family. We also talk about how her son’s life is impacted by his diagnosis, and her decision to start an activity center and preschool for kids of all abilities. Learn more about Molly a...
2019-12-1038 min
Made Visible63. Katie Dalebout and Serena Wolf, Approaching Anxiety with Vulnerability and LaughterKatie Dalebout and Serena Wolf have embraced vulnerability when it comes to living with anxiety. They’re the hosts of Spiraling, dubbed an “optimistic” anxiety podcast, and they talk openly with me about what it means for them to live with anxiety, how they cultivate awareness around their mental health, and what strategies they’ve developed (or are in the process of developing) to manage day-to-day moments with anxiety. This episode features tons of laughs and relatable moments of anxiety real talk. Learn more about Katie and Serena and check out the show notes here. Follow M...
2019-12-0359 min
Made Visible62. Elana Safar, Elana Safar, Giving Voice to MCS and Advocating for Fragrance-Free SpacesFor Elana Safar, navigating the world isn’t always simple. That’s because she has multiple chemical sensitivity (MCS), a condition where the body reacts to chemicals often found in perfumes, deodorants, cleaning solutions, and beyond. On today’s episode, Elana and I talk about the physical symptoms of MCS and how the condition impacts her day-to-day life. We also discuss why it’s uniquely hard to ask people to stop using perfumes, and her hope that, one day, fragrance-free spaces will be the norm. Learn more about Elana and check out the show notes here. Follow...
2019-11-2631 min
Made Visible61. Amy Lacey, Seeing Food as Medicine and Bringing Cauliflower Crust to Pizza NightAmy Lacey created a cauliflower crust in her kitchen after deciding she would need to make nutrition changes to manage her lupus diagnosis. On today’s episode, Amy and I talk about the physical and emotional challenges that her health presented, and how inventing a tasty, healthy pizza crust that she and her family could enjoy helped restore “normalcy” in her life. We also talk about the path to starting her business, Cali'flour Foods, and what’s next now that the company has seen such successful growth. Learn more about Amy and check out the show notes here....
2019-11-1938 min
Made Visible60. Catherine Rogers and Ben Samuel, Using Narrative Medicine to Foster Self-Expression and UnderstandingDeveloped at Columbia University in 2000, narrative medicine isn’t quite like any other discipline out there. On today’s episode, I talk with Catherine Rogers and Ben Samuel, who both teach writing in the Program in Narrative Medicine at Columbia. We discuss what students learn in narrative medicine creative writing classes, how an education in narrative medicine can translate to medical settings, and how the program, with its students from many different backgrounds, is like a one-room schoolhouse. Learn more about Catherine and Ben and check out the show notes here. Follow Made Visible on Insta...
2019-11-1238 min
Made Visible59. Hannah Olson, Showing Employers (and Beyond) the Value of Hiring People with Chronic Illness and DisabilityWhen employers come to Hannah Olson and ask her why they should hire people who have chronic illness, she has a lot to say. Hannah is the founder is Chronically Capable, a platform that connects people who are chronically ill or disabled with meaningful remote work. On today’s episode, Hannah and I talk about what it was like to balance her first post-grad job with managing Lyme disease, why the year 2020 looms so large, and what makes people with chronic illness so well equipped for the workforce. Learn more about Hannah and check out the show not...
2019-11-0527 min
Made Visible58. Beth Schrock, Creating Portraits of Invisible Illness while Living with Undiagnosed Pain“Unremarkable.” That’s the word doctors have used to describe Beth Schrock’s test results, and it signals that her tests are coming back normal. For Beth, who has been living with nerve pain and mobility issues since 2017, this means she still doesn’t have a diagnosis for her symptoms. On today’s episode, Beth and I talk about how she’s learned to deal with pain so that it doesn’t control her life, and how she’s using her talents as an art director and photographer to make invisible illness visible. Learn more about Beth and check out the s...
2019-10-2939 min
Made Visible57. Menna Olvera, a UZIT Practitioner Who Helps People Become Aware of the SelfIn 2007, Menna Olvera was introduced to Urban Zen Integrative Therapy, a healing modality founded by Donna Karan after her husband passed away. Now, as a UZIT practitioner, Menna supports patients and clients through five different healing modalities. On today’s episode, Menna and I talk about her journey to become a UZIT practitioner, and what patients and clients can gain from integrating UZIT practices. We also talk about the importance of self care, and why it’s not selfish to be kind to yourself. Learn more about Menna and check out the show notes here. Follo...
2019-10-2234 min
Made Visible56. Jaime Walden, Using Humor and Candor to Shed Light on Her Life with Crohn’s DiseaseAs Jaime Walden explains, navigating Crohn’s disease is a little different than navigating other illnesses. Long story short: you might spend a lot of time being trapped in the bathroom. On today’s episode, we talk about Jaime’s long journey to a diagnosis, how she manages the often painful symptoms of a Crohn’s flare, the emotional component of this invisible illness. This episode is the first time that Jaime is sharing a deep glimpse into her health, and she does so with incredible honesty and humor. Learn more about Jaime and check out the show not...
2019-10-1539 min
Made Visible55. Corinne Gray, Bringing Awareness to Neurodiversity while Living with DepressionCorinne Gray was diagnosed with depression during university, but for most of her 20s, she didn’t deal with her diagnosis head on. On today’s episode, Corinne and I talk about her decision to start managing her symptoms, and what living with depression has been like for her (including her experience as a caregiver for her husband, who has leukemia). We also talk about neurodiversity and inclusion, and the central role of these concepts in URevolution, a digital magazine she started with her husband. Learn more about Corinne and check out the show notes here. Fo...
2019-10-0834 min
Made Visible54. Erica Matluck, Supporting Patients’ Health and Self with Naturopathic Medicine and EducationFor Erica Matluck, part of her job as a naturopathic doctor is to be a teacher. By providing education to her patients, she aims to make them feel empowered about their health. On today’s episode, Erica and I talk about what drove her to explore naturopathic medicine, and why she looks at the big picture of physical, mental, spiritual, and emotional health. We also chat about the philosophies of naturopathic medicine, and her belief in the connection between our minds, belief systems, and ability to heal. Learn more about Erica and check out the show notes her...
2019-10-0139 min
Made Visible53. Ashley Weiss, Taking Life with POTS One Day at a TimeWhen Ashley Weiss was diagnosed with postural orthostatic tachycardia syndrome, or POTS, it changed everything in her life. On today’s episode, Ashley and I talk about the realities of living with POTS, the difficult diagnostic testing she went through, and the decision to postpone her wedding. We also talk about adjusting to life with chronic illness (including grieving for her old self), how chronic illness has opened her up to new opportunities, and why her mantra is to take things one day at a time. Learn more about Ashley and check out the show notes here....
2019-08-2047 min
Made Visible52. Adrienne Nolan-Smith, Getting to the Root of Her Health Challenges and Helping Others Do the SameAdrienne Nolan-Smith isn’t interested in healthcare approaches that slap a band-aid on the problem. For her, it’s about getting to the root cause. On today’s episode, Adrienne and I talk about her diagnosis with Lyme disease at age 9, and how her mom’s pursuit to find her treatment options led to some unconventional scenarios, but also helped her find remission. We also talk about the importance of root cause medicine, and how patients have to advocate for themselves in today’s healthcare system. Learn more about Adrienne and check out the show notes here. Fol...
2019-08-1339 min
Made Visible51. Russell Markus, Channeling Empathy and an Entrepreneurial Spirit into a CBD CompanyGrowing up, Russell Markus didn’t understand his mom’s chronic pain, but severe knee pain as an adult made him realize the reality of what she had been dealing with for decades. On today’s episode, Russell and I talk about his shift in awareness about his mom’s experience, and how he chose to start Lily CBD before CBD was the trend it is today. We also talk about the complexities of the cannabis world, the impact of pharmaceuticals, and what people should know if they’re new to CBD but ready to explore. Learn more about...
2019-08-0642 min
Made Visible50. Erika Stallings, Managing Her BRCA 2 Mutation on Her Own Terms with a Double MastectomyAfter undergoing a preventative double mastectomy in 2014, Erika Stallings told a therapist that she felt her life now had to have a lot of meaning. After all, she had just done this radical thing to save her own life. On today’s episode, Erika and I talk about why she didn’t immediately pursue BRCA testing after learning her mom has a mutation, the racial disparities in genetic testing that impact Black women, and how she navigated surgery and recovery with the help of some great friends and doctors. Learn more about Erika and check out the show...
2019-07-3041 min
Made Visible49. Martel Catalano, Embracing Teachable Moments while Living With a Degenerative Eye DiseaseAbout five years ago, Martel Catalano realized she couldn’t ignore her chronic condition (retinitis pigmentosa) any longer. On today’s episode, Martel and I talk about why she decided to lean into her diagnosis and address her stress about her condition, and how she hopes Beyond My Battle will help other people with illnesses and disabilities do the same. We also talk about what it’s like to live with a visual impairment that’s invisible to others, and how she handles moments of misunderstanding. Learn more about Martel and check out the show notes here. Fo...
2019-07-2335 min
Made Visible48. Genevieve Gorder, Designing a Life with Hashimoto’s Thyroiditis and Lyme DiseaseInterior design star Genevieve Gorder wants to live in the light, not in her illness. What does that mean, exactly? For Genevieve, who has both Lyme disease and Hashimoto’s thyroiditis, it means refusing to stake her identity in her health challenges. On today’s episode, Genevieve talks to me about the role that learning plays in her journey with Lyme and Hashimoto’s, how a home can be healing, and how she maintains her sense of positivity and remains mightier than her illness. This episode previously aired on February 5, 2019. Learn more about Genevieve and check ou...
2019-07-1654 min
Made Visible47. Rachel Trobman, Humanizing Chronic Pain While Living with Non-Specific Connective Tissue DiseaseWhen Rachel Trobman was diagnosed with non-specific connective tissue disease, the rheumatologist who diagnosed her showed her that healthcare could go beyond personalized: it could be humanized. Today, that principle plays out on Ouchie, an app for pain management created by Upside Health, the company she co-founded. On today’s episode, Rachel and I talk about treating the symptoms versus the disease, and how Ouchie supports people so that they can live their lives while managing their pain. Learn more about Rachel and check out the show notes here. Follow Made Visible on Instagram and Fac...
2019-07-0933 min
Made Visible46. Madelaine DeRose, Seeing the Big Picture While Managing DyslexiaWhen Madelaine DeRose was very young, her mom realized that she saw things differently than other kids, and Madelaine was ultimately diagnosed with dyslexia. On today’s episode, Madelaine and I discuss how people with dyslexia experience the world, and how being bilingual impacts her dyslexia. We also chat about the link between creativity and dyslexia, how she manages dyslexia in her professional life, and why she wants to correct misperceptions and raise awareness about the reality of the disorder. Learn more about Madelaine and check out the show notes here. Follow Made Visible on In...
2019-07-0227 min
Made Visible45. Sarah Harris, Using Humor to Talk About Living with a Chronic Skin ConditionWhen talking about her experience with eczema, Sarah Harris is not just thoughtful; she’s also laugh-out-loud funny. For instance, she calls her experience with eczema herpeticum “the best clickbait ever,” but also acknowledges that it was shocking to be told that her eczema had re-manifested as a dermatological emergency. On today’s episode, Sarah and I talk about what it’s like to have a condition that’s both visible and invisible, and why she wants to keep complicating the conversation around skin. Learn more about Sarah and check out the show notes here. Follow Made...
2019-06-2540 min
Made Visible44. Evan Golub, Building a Startup to Help People with Invisible and Chronic Illnesses Not Feel AloneIn 2017, after four years of misdiagnoses by 30 practitioners, Evan Golub was finally diagnosed with Lyme disease. Since then, he’s dedicated his life to educating himself on Lyme while supporting others who are also managing the condition. On today’s episode, Evan and I discuss why he gravitates towards functional medicine and is always up for exploring the latest in natural treatments. We also chat about why he founded Wana, a new digital health platform for people with chronic and invisible illnesses. Learn more about Evan and check out the show notes here. Follow Made Visib...
2019-06-1833 min
Made Visible43. Allie Kashkash, Making Life Better for Kids With Food AllergiesLiving in Israel, Allie Kashkash faces unique challenges when it comes to managing her son’s allergies. Not only is the most popular snack in Israel made of peanuts, she also discovered a lack of allergy resources in Hebrew. On today’s episode, Allie and I talk about the difference between how Americans and Israelis view allergies, how she protects her son while ensuring he can still experience many childhood activities, and why she started a business to provide resources and gear for allergy families. Learn more about Allie and check out the show notes here. Fo...
2019-06-1149 min
Made Visible42. Christopher Hooton, Living with Depression and Channeling Pain into CreativityChristopher Hooton was diagnosed with depression almost a decade ago, and he’s discovered that his symptoms are somewhat treatment-resistant. He’s had to find other ways to manage his mental health, and creativity plays a big role in that. On today’s episode, Christopher and I talk about why he recently transitioned from arts critic to arts creator, and how the evocative nature of The National’s music, which is the subject of his podcast, provides a jumping-off point to talk about mental health. Learn more about Christopher and check out the show notes here. Follow...
2019-06-0436 min
Made Visible41. Gunnar Esiason, Living with Cystic Fibrosis with a Healthy Dose of Humor*Listener Favorite* Gunnar Esiason believes cystic fibrosis drug development is in its golden age, and that’s good news for people like him. Gunnar was diagnosed with cystic fibrosis (CF) at age two, and since then, he’s relied on an intensive treatment regimen to manage his symptoms. On today’s episode, Gunnar and I talk about why he feels a sense of promise around CF research, how he copes with his condition using humor and transparency, and his two jobs, both of which he loves: CF advocacy and coaching ice hockey. Learn more about Gunnar...
2019-05-2849 min
Mind Of A MentorMind Of A Mentor #62 - Harper SperoHarper Spero is a business coach and consultant who specializes in working with individuals who want to live, work, and earn on their own terms. During the first decade of her career, Harper became well-versed in leveraging businesses through her work in marketing, PR, event production, and social media. She worked with major brands like Avon, Johnson & Johnson, and Disney, while new and rising career opportunities propelled her through eight jobs in ten years. While running the social media team at a beauty PR firm in 2012, Harper found that suddenly, she couldn’t breathe. After months of testing, doctors, and me...
2019-05-2244 min
Made Visible40. Sophia Saad, Helping Children and Young Adults Express Themselves Through Art TherapyWhen Sophia Saad was younger, learning wasn’t especially fun for her. Years later, as a teacher and art therapist, Sophia had the chance to provide students with learning opportunities that she didn’t have. Working with special education students, Sophia found her calling in the classroom. On today’s episode, we talk about her experience as a teacher and her transition to a private art therapy practice, the role art plays in her own life, and why her practice is ultimately about process, and not a finished work of art. Learn more about Sophia...
2019-04-2339 min
Made Visible39. Amanda Goldberg, Managing type 1 Diabetes by Listening to Her BodyBeing diagnosed with type 1 diabetes at age nine didn’t stop Amanda Goldberg from pursuing a competitive tennis career. Due to sports injuries, however, Amanda ultimately left tennis and joined the family business, Goldberg’s Famous Bagels. On today’s episode, Amanda and I talk about how tennis helped her develop the ability to really listen to her body, the value of having doctors that you trust, and how she juggles her health with her growing responsibilities at a family business she loves. Learn more about Amanda and check out the show notes here. ...
2019-04-1641 min
Made Visible38. Yali Szulanski, Navigating Recovery from Eating Disorders through Self-CompassionYali Szulanski has navigated eating disorders, anxiety, depression, self harm, and trauma. Around ten years ago, she realized that if she didn’t seek recovery, she would continue to lose relationships in her life. On today’s episode, Yali and I talk about the role her husband has played in her recovery (and how she tried to convince him not to date her), the importance of learning compassion for herself, and how she practices awareness and cares for her body now that she’s a mom to two kids. Learn more about Yali and check out the...
2019-04-0954 min
Made VisibleSusannah Meadows, In Pursuit of Medical Success Stories to Help Her Son, And OthersWhen journalist Susannah Meadows learned that her three-year-old son, Shepherd, had juvenile idiopathic arthritis, she was told there was no cure. Shepherd started medication, but not only was it ineffective, it made him feel sick. On today’s episode, Susannah and I talk about how experimentally changing Shepherd’s diet helped him completely recover, why she felt compelled to write a book that dug into the science behind his recovery (and beyond), and her belief in the power of medical success stories. Learn more about Susannah and check out the show notes here.
2019-04-0238 min
Made Visible36. CC Webster Marrone, Redefining Success While in Remission from Stage IV Hodgkin’s LymphomaAt age 29, CC Webster Marrone was an advertising executive specializing in pharmaceutical healthcare advertising. When she got her “cancer call” from the doctor who had performed her biopsy, she almost didn’t pick it up because she was in an important meeting. Now, as a Hodgkin's lymphoma survivor who is in remission, CC’s parameters for success have dramatically changed. On today’s episode, CC and I talk about why remission has been the hardest part of cancer and what her life and career look like today. Learn more about CC and check out the show n...
2019-03-2649 min
Made VisibleEmily Fletcher, Using Meditation to Move On to Her “New Now” After a MiscarriageEmily Fletcher found out she was having a miscarriage on her way to teach a meditation retreat. Or so she thought. As it turned out, when she had an ultrasound, the baby had a heartbeat. But at the three-month mark, she was told--again--that she had miscarried. This time, it was true. On today’s episode, Emily and I share a lot of laughs as we talk about how she broke the news of her second pregnancy to her husband with an inside joke, giving birth to her son, and why she’s open about her story.
2019-03-2247 min
Made VisibleBob Martin, Finding His Purpose as an Author, Grandparent, and Advocate for ChildrenAuthor Bob Martin writes books for children that bring more understanding to the chronic diseases and disorders that kids face. Bob lost a granddaughter to a highly terminal brain tumor and has a grandson who manages ADHD, so he writes from the heart on these issues. On today’s episode, Bob and I talk about his lifelong dedication to advocating for children, the unique role that grandparents can play, and how his grandson’s experience has helped him make sense of challenges from his own childhood. Learn more about Bob and check out the show...
2019-03-2227 min
Made Visible35. Emily Fletcher, Using Meditation to Move On to Her “New Now” After a MiscarriageEmily Fletcher found out she was having a miscarriage on her way to teach a meditation retreat. Or so she thought. As it turned out, when she had an ultrasound, the baby had a heartbeat. But at the three-month mark, she was told--again--that she had miscarried. This time, it was true. On today’s episode, Emily and I share a lot of laughs as we talk about how she broke the news of her second pregnancy to her husband with an inside joke, giving birth to her son, and why she’s open about her story. Learn more...
2019-03-1946 min
Made VisibleBob Martin, Finding His Purpose as an Author, Grandparent, and Advocate for ChildrenAuthor Bob Martin writes books for children that bring more understanding to the chronic diseases and disorders that kids face. Bob lost a granddaughter to a highly terminal brain tumor and has a grandson who manages ADHD, so he writes from the heart on these issues. On today’s episode, Bob and I talk about his lifelong dedication to advocating for children, the unique role that grandparents can play, and how his grandson’s experience has helped him make sense of challenges from his own childhood. Learn more about Bob and check out the show notes here.
2019-03-1227 min
Made Visible33. Ally Hilfiger, Changing the Lenses on Her Experience with Lyme DiseaseAlly Hilfiger was bitten by a tick at age seven and battled severe physical and neurological symptoms throughout her childhood, but she wasn’t diagnosed with Lyme until after a hospitalization at age 18. On today’s episode, Ally and I talk about why she wrote a book chronicling her experience, the shift that occurred when she chose homeopathic treatments and lifestyle changes over antibiotics, and how harnessing the power of changing her subconscious perspective has helped her heal. Learn more about Ally and check out the show notes here. Follow Made Visible on Instagram and Face...
2019-03-0540 min
Made Visible32. Melissa Marans, Rebuilding Her Body and Reorganizing Her Life with DermatomyositisFor most of her life, Melissa Marans didn’t have an invisible illness. That all changed in 2015, when she began showing signs of rapidly worsening muscle weakness and fatigue. She went to see her doctor, and in a week, had a diagnosis: a rare autoimmune disease called dermatomyositis. On today’s episode, Melissa and I talk about the challenges she has faced, why she went silent on social media for a period of time, and how she prioritizes her own ongoing health needs while also being a mom to her newborn. Learn more about Melissa and check out...
2019-02-2645 min
Made Visible31. Carly Stein, Healing Her Health with Products from the HiveBefore discovering bee products, Carly Stein was the person who was always sick. That all changed when she discovered magical natural products like propolis, royal jelly, bee pollen, and honey. On today’s episode, Carly and I talk about what led her to found Beekeeper’s Naturals, why education about bees is such an important part of her company’s mission, and how her own health has improved since she began integrating bee products into her everyday routine. Learn more about Carly and check out the show notes here. Follow Made Visible on Instagram and Facebo...
2019-02-1951 min
Made Visible30. Letty Cottin Pogrebin, Providing a Guide for Thoughtfully Supporting People Who Are SickAbout ten years ago, Letty Cottin Pogrebin (a founding editor of Ms. Magazine) was sitting in the waiting room at Memorial Sloan Kettering when she had the idea for a book. On today’s episode, Letty and I talk about her experience with breast cancer, and why it inspired her to write How to Be a Friend to a Friend Who’s Sick. We talk about the difficulty of finding the right words when you learn someone is sick, her tips for giving gifts, and why honesty should be the core of your efforts to be supportive.
2019-02-1247 min
Made Visible29. Genevieve Gorder, Designing a Life with Hashimoto’s Thyroiditis and Lyme DiseaseInterior design star Genevieve Gorder wants to live in the light, not in her illness. What does that mean, exactly? For Genevieve, who has both Lyme disease and Hashimoto’s thyroiditis, it means refusing to stake her identity in her health challenges. On today’s episode, Genevieve talks to me about the role that learning plays in her journey with Lyme and Hashimoto’s, how a home can be healing, and how she maintains her sense of positivity and remains mightier than her illness. Learn more about Genevieve and check out the show notes here. Follow...
2019-02-0552 min
Made Visible28. Monique Gore-Massy, Finding Hope and Purpose After Her Lupus DiagnosisMonique Gore-Massy is a lupus survivor living purposefully. At the beginning of her journey, her debilitating symptoms diminished her sense of hope, tested her faith, and challenged her identity. On today’s episode, Monique and I talk the incredible support system that helped lift her out of the darkest period of her condition, her advice for navigating relationships and chronic illness, and why--especially as a woman of color--she feels driven to use her voice to advocate for others with lupus. Learn more about Monique and check out the show notes here. Follow Made Visible on In...
2019-01-2941 min
Made Visible27. Norine Spero (My Mom), Caregiving by Letting Me Take the LeadThis week, I’m so thrilled to present a very special guest: my mom, Norine Spero, who has been a caregiver for me since I was born. My mom and I are very close, so I found it really incredible that there were parts of her story--and my story--that I had never heard before. On this episode, we talk about the long journey to obtain my Job’s syndrome diagnosis, the doctors who listened to me (and those who had less-than-great bedside manner) and why, above all, she follows my lead when it comes to my health. Lear...
2019-01-2234 min
Made Visible26. Nitika Chopra, Navigating Entrepreneurship, Psoriasis, and Self-Love with Her Heart as Her GuideNitika Chopra was diagnosed with psoriasis, a chronic skin condition, at age 10. At 19, she was also diagnosed with psoriatic arthritis. On today’s episode, Nitika and I talk about the emotional and physical challenges of growing up with a chronic illness, and how she came to embrace little acts of self-love--even if she didn’t call it that at the time. We also discuss her faith in God, her shift to pivot her business to serve the chronic illness community, and how her heart plays a role in all of it. Learn more about Nitika and check out...
2019-01-1543 min
Made Visible25. Gunnar Esiason, Living with Cystic Fibrosis with a Healthy Dose of HumorGunnar Esiason believes cystic fibrosis drug development is in its golden age, and that’s good news for people like him. Gunnar was diagnosed with cystic fibrosis (CF) at age two, and since then, he’s relied on an intensive treatment regimen to manage his symptoms. On today’s episode, Gunnar and I talk about why he feels a sense of promise around CF research, how he copes with his condition using humor and transparency, and his two jobs, both of which he loves: CF advocacy and coaching ice hockey. Learn more about Gunnar and check out the sh...
2019-01-0849 min
Made Visible24. Dr. Alexandra Freeman, Providing Patient-Focused Care for Primary Immune DeficienciesAs a physician at the NIH, Dr. Alexandra Freeman treats patients with rare diseases who have exhausted the easy options. On today’s episode, Dr. Freeman and I talk about what makes the NIH so different from other medical organizations--and how that impacts research and medical discoveries. We also discuss the challenging and rewarding aspects of her job, and why patient-focused care is so important to her work as a physician specializing in primary immune deficiencies (Job’s syndrome in particular). Learn more about Dr. Alexandra Freeman and check out the show notes here. Follow Made...
2018-12-1835 min
Made Visible23. Becca Skolnick: Honoring her Mother's Advice about Parenting with a Chronic IllnessWhile sorting through her mother’s belongings, Becca Skolnick made an interesting discovery: a printout of an article her mother had written. The article mirrored her real life in so many ways; it was advice that her mother had put into practice over the course of her 32-year journey with scleroderma. On today’s episode, Becca and I talk about who her mom was--a person who had a remarkable way of connecting with people--and someone who Becca seeks to continue to honor through her work and writing. Learn more about Becca and check out the show notes here...
2018-12-1127 min
Made Visible1. Introduction with Harper SperoI’m so excited to launch the first episode of Made Visible, an idea which has been a long time in the making. I didn’t always know that I wanted to launch a podcast, but I did know that I needed to do something to make people with invisible illnesses feel less alone and more supported. I only came to that realization once I started talking about my own illness, which I hid for many years. Talking about my story was so freeing. I wanted others to have that experience too. To learn more about why I cr...
2018-07-1713 min
Gap to GreatConquering Limiting Beliefs and Overwhelm In Your Career with Harper Spero
Harper Spero is a New York City-based lifestyle and career coach who left the corporate world after nearly 10 years working with brands like Johnson & Johnson, Disney and Ann Taylor.
In her work with clients now, she helps busy men and women figure out how to become the best versions of themselves and how to live their best lives.
In this podcast Harper discusses the freedom of running your own business, meditation and how anyone can break out of their rut to build their ideal life. If you're feeling disillusioned with the 9-to-5, give this episode a spin.
Full show notes avail...
2016-02-2849 min
Natural Born CoachesHarper Spero: How To Have Early Success As a CoachA health issue forced Harper Spero to reevaluate her life in corporate America and led her to coaching. She found early success with her blog and became a contributor to The Huffington Post. A fan of yoga and meditation, she uses her experiences to inspire, motivate, and drive people in the direction of their dreams through her one-on-one coaching!
2015-04-0423 min