Shows
From The Heart: The HeartKids Podcast100 Episodes of From the Heart: Stories, Lessons and What’s NextThis special 100th episode brings Sammy and Rachel together to revisit the moments, people and insights that have defined From the Heart. They explore the power of shared stories, the evolving experiences of heart parents and heart adults, and how community connection continues to shape the podcast. A warm, open conversation that celebrates the stories that brought us here — and those still to come.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by childhood-onset heart disease.Fo...
2025-12-1232 min
From The Heart: The HeartKids PodcastNavigating Life and Health: Brodie’s Journey Through Two Heart TransplantsIn this episode of the HeartKids Podcast, host Rachel Knowles speaks with 20-year-old Brodie and his mum, Annie, from Tasmania. Brodie has lived with childhood-onset heart disease and has undergone not one, but two heart transplants — the first during the height of COVID-19, and the second just last year.Brodie and Annie share the early signs that something wasn’t right, the frightening dash from regional Tasmania to Melbourne for lifesaving treatment, and the long months spent away from home due to border closures and hospital restrictions. They reflect on the intense isolation of that time, the powe...
2025-11-2227 min
From The Heart: The HeartKids PodcastTanya Hall from Hearts4heart: The Power of the Patient VoiceTanya Hall, CEO and founder of Hearts4heart and member of the World Heart Federation Board, joins us to share how lived experience can reshape care, policy and community. Diagnosed in infancy and navigating a complex journey that includes open heart surgery, arrhythmias, ablations and a pacemaker, Tanya describes the isolation that led her to start Hearts4heart in 2011 and how it has grown into a national organisation supporting, educating and empowering adults with heart conditions.We discuss the moment her story shifted a decade of stalled advocacy in Parliament, why patient voices must be equal stakeholders...
2025-11-0840 min
From The Heart: The HeartKids PodcastShaping Better Care Through Education with Mark EdmondsIn this episode, host Sami Glastonbury speaks with Mark Edmonds, Education Project Coordinator at HeartKids, about the power of co-design and education in transforming care for people living with childhood-onset heart disease. Mark shares how his background in neurophysiology and teaching has shaped his approach to developing national education modules for healthcare professionals, ensuring care is holistic, evidence-based, and grounded in lived experience. Together, they explore how education is helping clinicians across Australia better understand the complexities of lifelong heart conditions, strengthen communication and mental health awareness, and ultimately improve outcomes fo...
2025-10-2237 min
From The Heart: The HeartKids PodcastSupporting Heart Families in WA and Beyond with Natasha D'SouzaIn this episode, host Sami is joined by Natasha D'Souza, one of our dedicated Family Support Coordinators in Western Australia. Drawing on her own experience as a heart parent, Tash shares how she and the WA team walk alongside families through hospital stays, unexpected admissions, and the life-changing reality of having to travel interstate for cardiac care. From practical tips on preparing for the journey, to the compassion of support that stretches across states and siblings at home, Tash opens up about a decade of standing with families through their hardest mo...
2025-10-0433 min
From The Heart: The HeartKids PodcastCHD, RHD and Cultural Identity with Heart Mum Maria TassIn this episode of From The Heart, Angela Webb, our Aboriginal and Torres Strait Islander Community Engagement Manager, speaks with Maria Tass and her twin sons, Benson and Albert, from Mackay, Queensland. Born with congenital heart conditions in 2015 and later diagnosed with rheumatic heart disease, the boys went through multiple surgeries and were among the first patients at Queensland Children’s Hospital.Maria reflects on the challenges of caring for twins with complex needs, the vital role of culture and community, and the support she received from HeartKids. Benson and Albert also share their own voices, talking ab...
2025-09-2024 min
From The Heart: The HeartKids PodcastFontan Surgery, ANZFAC and Lived Experience with Jonathan MackleyIn this episode of From the Heart, Jonathan Mackley shares his journey from being born with a complex heart condition and undergoing one of the earliest Fontan surgeries, to becoming a strong voice in the HeartKids community. Jonathan talks about growing up in the 70s and 80s, the shift from limited supports to today’s networks, and how connection with others living with congenital heart disease transformed his perspective. He reflects on advocacy, co-founding the Australian and New Zealand Fontan Community, and why lived experience is so vital in shaping research, healthcare, and everyday choice.
2025-09-041h 04
From The Heart: The HeartKids PodcastHugo and Louise Taheny: Sport, Advocacy and Life with CHD and Down SyndromeIn this episode of From the Heart, host Sami Glastonbury speaks with world champion athlete and health ambassador Hugo Taheny and his mum, Louise. Hugo is a Heart Kid living with Down syndrome, along with vision and hearing impairments. His journey has been shaped by resilience, family, and community.Hugo shares how sport became his passion, earning him the nickname “Rockstar” and leading him to represent Australia on the world stage. Louise reflects on Hugo’s early health challenges, the strength of rural community support, and the importance of inclusion in both healthcare and sport.Togeth...
2025-08-2147 min
From The Heart: The HeartKids PodcastInside Paediatric Heart Surgery with Dr Stephanie PerrierIn this episode of From the Heart, host Sami Glastonbury sits down with Dr Stephanie Perrier, Paediatric and Congenital Cardiac Surgeon at the Royal Children's Hospital Melbourne. From her early training in France to performing life-changing surgeries in Australia, Stephanie shares her path into cardiac surgery and why she still sees the heart as magical.They explore what a typical surgery day looks like, who’s in the room during an operation, and what families can expect before, during and after their child’s surgery. Stephanie also shares insights into fast-track recovery, the impact of small changes in c...
2025-08-0741 min
From The Heart: The HeartKids PodcastFeeding and Speech Development with Speech Therapist Emily HayesIn this episode of From The Heart Sami chats with Emily Hayes, a speech pathologist and feeding specialist who works closely with babies and young children, including those who’ve had surgery or spent time in intensive care. Listen as Sami and Emily discuss nasogastric (NG) tubes, feeding difficulties, speech delays as well as what to expect during recovery, how to support your child at home, and when it might be time to seek extra help.Emily HayesEmily Hayes is the founder of SA-based Hayes Speech Pathology. Established in 2015, Hayes Spe...
2025-07-2435 min
From The Heart: The HeartKids Podcast23 Surgeries Before 23 with Annabel TurnerIn this episode of 'From The Heart', our host Rachael chats to Annabel Turner - a young heart adult who has tricuspid artresia. Listen as Rachael and Annabel chat about having a heart condition has not stopped Annabel from living a full, rich and exciting life. HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by childhood-onset heart disease.For support, information or guidance on your CoHD journey, call the HeartKids Helpline on 1800 432 785 or visit the website a...
2025-07-1031 min
From The Heart: The HeartKids PodcastSexual Health and Wellbeing with Sexologist Stacey MicallefIn this episode of 'From The Heart', our host Rachael chats to Stacey Micallef - a sexologist and relationship & trauma counsellor based in Geelong, Victoria. Listen as Rachael and Stacey chat about how CoHD can impact sexual health and relationships, and the strategies you can employ to build healthy, fulfilling sexual relationships.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by childhood-onset heart disease.For support, information or guidance on your CoHD journey, call the HeartKids...
2025-06-2854 min
From The Heart: The HeartKids PodcastMedical Trauma with clinical psychologist Carlye CrankIn this episode of 'From The Heart', our host Rachael chats to clinical psychologist Carlye Crank about mental health, medical trauma and the unique ways in which physical health can impact your mental health.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by childhood-onset heart disease.For support, information or guidance on your CoHD journey, call the HeartKids Helpline on 1800 432 785 or visit the website at https://www.heartkids.org.auCarlye Crank
2025-06-1235 min
From The Heart: The HeartKids PodcastRHD and Better Community Care with Tanika Parker and Genavie TabuaiIn this special episode for Reconciliation Week, Angela Webb, HeartKids’ Aboriginal and Torres Strait Islander Community Engagement Manager, has a yarn with Tanika Parker, RHD Nurse Navigator, and Genavie Tabuai, Health Worker Coordinator for Maternal, Child and Family Health Programs, both from Torres and Cape Hospital and Health Service.Tanika and Genavie speak about the realities of delivering care across remote communities in Far North Queensland, with a strong focus on preventing and managing rheumatic heart disease (RHD). They discuss the importance of culturally safe care, early intervention, and empowering health wo...
2025-05-3034 min
From The Heart: The HeartKids PodcastMitch McGovern: An Ambassador in Honour of his Friend's MemoryIn this episode of "From the Heart," join our host, Sami, for a conversation with Mitch McGovern.Mitch is a football player with Carlton, and a HeartKids Ambassador. Sami and Mitch chat about Mitch's connection with CoHD, and how his trajectory changed after his best friend, Logan, passed away due to complications with his condition.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by childhood-onset heart disease.For support, information or...
2025-04-1524 min
From The Heart: The HeartKids PodcastAcknowledging and Supporting the Sibling Journey - Dr Shannon Schedlich of Siblings AustraliaIn this episode of "From the Heart," join our host, Sami, for a conversation with Dr Shannon Schedlich.Shannon joins the podcast this episode, to chat with Sami about strengthening family units, and promoting nuanced support for all members. Shannon shares critical insights in acknowledging emotions, allowing space and an opportunity for siblings to share time with parents, and the significance of a siblings' understanding of their brother or sister's disability or chronic health condition.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national n...
2025-04-0136 min
From The Heart: The HeartKids PodcastCurtis McGrath: Paralympian, Soldier, Order of Australia Recipient, and Heart DadIn this episode of "From the Heart," join our host, Sami, for a conversation with Curtis McGrath.Curtis is an Australian Paralympic gold medalist in paracanoe who lost both his legs while serving as a combat engineer in Afghanistan. His extraordinary evolution from soldier to Paralympic icon has inspired millions worldwide, with his journey taking on new meaning in 2024 when he and his wife Rachel welcomed their son Monty, born with transposition of the great arteries (TGA), adding another chapter of resilience to their family's remarkable story. Sami and Curtis chat through the Mc...
2025-03-1838 min
From The Heart: The HeartKids PodcastManaging my Complex CHD... Mahan Ahmadiram's StoryIn this episode of "From the Heart," join our host, Sami, for a conversation with Mahan Ahmadiram, an adult navigating her life with CHD, with CH-FIT, community, and exceptional strength.Sami and Mahan discuss the significant journey Mahan and her family have experienced across several countries, and the many surgeries and supports that have bolstered her resolve and strength to this day.Mahan has recently volunteered at a HeartKids camp, and is actively involved in the CH-FIT program offering critical exercise support to those with CoHD.HEARTKIDSFrom...
2025-03-0434 min
From The Heart: The HeartKids PodcastA Grandparent's Care... Cindy Hutchison's StoryIn this episode of "From the Heart," join our host, Sami, for a conversation with Cindy Hutchison.Cindy and Sami chat about Cindy's extraordinary experiences with supporting her daughter Maddi, and grandson York, through their exceptionally challenging heart journey.Cindy shares incredible insight as to support and routines she offered, and the ways in which the whole family rallied around their newest member.Content Warning: This episode contains some discussion regarding termination for medical reasons. If you choose to listen, please listen in a safe space and remember you can pause if you...
2025-02-1834 min
From The Heart: The HeartKids PodcastSupporting the Sibling... Chloe Peck's Heart Sibling Journey.Welcome to From the Heart: The HeartKids Podcast, Season 4.In this episode of "From the Heart," join our host, Sami, for a conversation with Chloe Peck, a young adult who is a sibling to a heart teen.Join Sami and Chloe as they discuss the complexities of a heart journey, for siblings and extended family members, and the extraordinary efforts and routines Chloe's family implemented to bolster their whole support network.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on...
2025-02-0427 min
From The Heart: The HeartKids PodcastFrom the Heart: 2024 Wrapped. Erin Ferguson and Happy Heart ClinicWelcome to From the Heart: 2024 Wrapped!As we have closed off 2024 and into 2025, we're bringing you some fan favourite episodes of From the Heart, season 3.Here is Encore #5 - Erin FergusonIn this episode of From the Heart, Tahnee Jash is joined by Erin Ferguson, a dedicated paediatric Rheumatic Heart Disease (RHD) clinical nurse consultant from the Happy Heart Clinic in Far North Queensland. Erin discusses her team's efforts to improve healthcare experiences for young patients with RHD, focusing on their practical and supportive approaches. Learn about the strategies...
2025-01-2137 min
From The Heart: The HeartKids PodcastFrom the Heart: 2024 Wrapped. Danielle Green's StoryWelcome to From the Heart: 2024 Wrapped!As we have closed off 2024 and looking into 2025, we're bringing you some fan favourite episodes of From the Heart, season 3.Here is Encore #4 - Danielle GreenDanielle is a mother to two children, Sonny and Airlie, who have both passed away due to a rare genetic condition known only as PPA2.Sami and Danielle chat about Danielle and her husband Leon's journey with this extremely rare condition, advocating for genetic testing and counselling, and the importance of family and community during the most difficult of...
2025-01-0750 min
From The Heart: The HeartKids PodcastFrom the Heart: 2024 Wrapped. Amber Adamson: Ask a Nurse Anything!Welcome to From the Heart: 2024 Wrapped!As we close off the end of this year, we're bringing you some fan favourite episodes of From the Heart, season 3.Here is Encore #3 - Amber Adamson: Ask a NurseIn this episode Rachael chats with Amber Adamson, a dedicated Clinical Nurse Consultant at Prince Charles Hospital, who specialises in Adult Congenital Heart Disease.Before the episode was recorded, we put out a call on social media for young people and adults to submit questions to be answered on air, and you responded with thoughtful...
2024-12-2438 min
From The Heart: The HeartKids PodcastFrom the Heart: 2024 Wrapped. Kate Strickland's StoryWelcome to From the Heart: 2024 Wrapped!As we close off the end of this year, we're bringing you some fan favourite episodes of From the Heart, season 3.Here is Encore #2 - Kate Strickland, Child Life Therapist.Kate is a Child Life Therapist, who works in the community with children - one of the first Child Life Therapists to work outside of a hospital framework.Sami and Kate chat about how to prepare a child for surgery, what to expect, and how to process the event after families return home. Kate offers...
2024-12-1035 min
From The Heart: The HeartKids PodcastFrom the Heart: 2024 Wrapped. Elijah Hill's StoryWelcome to From the Heart: 2024 Wrapped!As we close off the end of this year, we're bringing you some fan favourite episodes of From the Heart, season 3.Here is Encore #1 - Elijah's StoryElijah, a proud Kamilaroi/Wiradjuri man, shares his remarkable journey living with childhood-onset heart disease (CoHD) with our host, Tahnee Jash.Elijah works as an Indigenous Liaison Officer for the Department of Infrastructure in Meanjin. Diagnosed with pulmonary atresia with VSD at birth, Elijah has faced numerous challenges and undergone several surgeries, including a significant operation two...
2024-11-2630 min
From The Heart: The HeartKids PodcastNavigating a New Diagnosis Pathway, for Heart Kid # 2... Sami Glastonbury's Life UpdatesIn this episode of "From the Heart," join our host, Sami, for a catch-up conversation with podcast producer, Mel.Mel and Sami chat about Sami's current pathway to seeking a diagnosis for her daughter, as well as updates from all the incredible events and outcomes from HeartKids for the year.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by childhood-onset heart disease.For support, information or guidance on your CoHD journey, call the H...
2024-11-1230 min
From The Heart: The HeartKids PodcastSupporting a Heart Kid, to a Heart Teen... Amy Heafield's StoryIn this episode of "From the Heart," join our host, Sami, for a conversation with Amy Heafield.Many families who have spent time at the Royal Children's Hospital in Melbourne will have crossed paths with Amy; Amy is a Support Coordinator with HeartKids, and a parent to a heart teen.Amy and Sami chat about what HeartKids Support looks like, the joys of supporting teens on teen camp, and considerations in supporting a heart kid, as they transition through childhood, to their teen years, and beyond. HEARTKIDSFrom T...
2024-10-2930 min
From The Heart: The HeartKids PodcastLife as an Adult with CHD... Jaden Dixon's StoryIn this episode of "From the Heart," join our host, Rachael, for a conversation with Jaden Dixon.Jaden is a 29-year-old from Brisbane who was born with Hypoplastic Left Heart Syndrome (HLHS). Jaden studied social work and now works for Queensland Health. Listen in as Rachael and Jaden discuss their heart journeys, Jaden's involvement with HeartKids, the importance of connecting with the peer community, finding your people, and living life with a heart condition! HEARTKIDS From The Heart is brought to you by HeartKids, the only national not-for-profit so...
2024-10-1540 min
From The Heart: The HeartKids PodcastThe Complete Race Driver... Wes McDougall's journey with Tetralogy of FallotIn this episode of "From the Heart," join our host, Sami, for a conversation with Wes McDougall.Wes is a heart adult, who has a stunning career as a racing engineer – now working with Supercheap Auto as chief engineer, as well as an instructional coach for his own business, the Complete Race Driver.Wes and Sami connect about his experiences growing up as a heart kid, surgery as an adult, and pursuing an exciting career. HEARTKIDS From The Heart is brought to you by HeartKids, the only national not-for-profit solely foc...
2024-10-0142 min
From The Heart: The HeartKids PodcastMy CHD Journey: Audrey KeillorIn this episode of "From the Heart," join our host, Rachael, for a conversation with Audrey Keillor.Audrey is a 19-year-old heart adult, who was born with Tetralogy of Fallot. Audrey and Rachael connect over their experiences as young adults with CHD, transitioning to adult care, and the importance of community and connecting with peers.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by childhood-onset heart disease.For support, information or guidance on y...
2024-09-1727 min
From The Heart: The HeartKids PodcastPPA2: Rare Genetic Conditions - Danielle Green's StoryIn this episode of "From the Heart," join our host, Sami, for a conversation with Danielle Green. Danielle is a mother to two children, Sonny and Airlie, who have both passed away due to a rare genetic condition known only as PPA2. Sami and Danielle chat about Danielle and her husband Leon's journey with this extremely rare condition, advocating for genetic testing and counselling, and the importance of family and community during the most difficult of times.A content warning: This episode will touch on grief, and bereavement that some may find...
2024-08-2750 min
From The Heart: The HeartKids PodcastChild Life Therapy and CoHD: Kate StricklandIn this episode of "From the Heart," join our host, Sami, for a conversation with Kate Strickland. Kate is a Child Life Therapist, who works in the community with children - one of the first Child Life Therapists to work outside of a hospital framework.Sami and Kate chat about how to prepare a child for surgery, what to expect, and how to process the event after families return home. Kate offers fantastic tips, resources, and information to anyone bolstering support around their HeartKid throughout their childhood. HEARTKIDSFrom The Heart is b...
2024-08-1335 min
From The Heart: The HeartKids PodcastHealth, happiness and connection: Emma Psaros CHD journeyIn this episode of From the Heart, host Rachael chats with Emma Psaros, a 25-year-old who has grown up with congenital heart disease (CHD). Emma shares her journey of managing her heart condition while leading a balanced and full life.Emma discusses her transition from paediatric to adult care, the importance of open communication with healthcare professionals, and the support she receives from family and friends. She highlights her strategies for managing mental health, including therapy and having a strong support system.Emma also talks about her love for Pilates and how she adapts her...
2024-07-3037 min
From The Heart: The HeartKids PodcastAn active and full life with CHD: Jeremy Richardson's StoryJoin our host Rachael Knowles as she chats with Jeremy Richardson, an adventurous adult in his 30s living with truncus arteriosus. Jeremy leads an active life filled with travel, a passion for the snow fields, and has a family history connected to the origins of HeartKids.Tune in to hear about Jeremy's journey from growing up in South Australia to moving overseas to pursue a videography career, filming snowboarding in Canada! He shares his experiences with multiple heart surgeries, the importance of mental health, and the pivotal role his parents played in establishing HeartKids SA....
2024-07-0444 min
From The Heart: The HeartKids PodcastResilience & Discovery: Sarah's heart journeyIn this episode, Rachael chats to Sarah Purdom, a wonderful heart adult who is not only navigating life with a heart condition (Transposition of the Great Arteries (DTGA) and pulmonary stenosis) but is also excelling in her academic and personal pursuits. Sarah is currently in her Honours year in Geology at the University of Tasmania, where she has been exploring the origins of gold within granite formations (wow)!Beyond her academic achievements, Sarah manages part-time work while exploring in her passions for science fiction, outdoor activities, and video games. In today's episode, Sarah shares her heart journey...
2024-04-2126 min
From The Heart: The HeartKids PodcastCreativity, optimism, and community: CJ's journey with bicuspid aortic valveIn this episode, meet CJ , a 17-year-old from Melbourne, Victoria, who shares his experiences of growing up with bicuspid aortic valve. Tune in to hear CJ's story, how he managed his surgeries, and finds positivity through art and support through friends and community.CREDITSHost: Rachael KnowlesGuest: CJ GagliardiProducer: Becky OakleyHEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by Childhood-onset Heart Disease. For support, information or guidance on your C...
2024-04-0815 min
From The Heart: The HeartKids PodcastAmber Adamson - Ask a nurse anything!Welcome to a very special episode of the HeartKids From The Heart. n this episode Rachael chats with Amber Adamson, a dedicated Clinical Nurse Consultant at Prince Charles Hospital, who specialises in Adult Congenital Heart Disease. Before the episode was recorded, we put out a call on social media for young people and adults to submit questions to be answered on air, and you responded with thoughtful topics and queries about navigating life and healthcare with a heart condition. So, in this episode Amber is here to help, specifically addressing the concerns and questions of young people...
2024-03-2138 min
From The Heart: The HeartKids PodcastMy heart kid dad journey: From childhood to adulthood - Matt's StoryIn this episode of "From the Heart," join our host, Sami, for a conversation with Matt Tognini. Matt is the father of a heart kid, Alessandra, who was born with a complex congenital heart condition.Sami and Matt chat about the impacts of flying across the country for heart surgery, the parent perspective of the process of transition from paediatric care to adult care, and supporting his heart kid adult as she prepares for upcoming surgery.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit...
2024-03-0226 min
From The Heart: The HeartKids PodcastMissing School, and the impact of critical health on education, and social experiences - Megan GilmourIn this episode of "From the Heart," join our host, Sami, for a conversation with Missing School CEO Megan Gilmour.Sami and Megan chat about the impact of periods of absence from school, for those with critical health concerns. Megan takes us through initiatives that Missing School can put in place, or connections to additional supports, that assist kids who are experiencing loneliness, and gaps in learning while away from the classroom.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting...
2024-02-1739 min
From The Heart: The HeartKids PodcastWhat is Childhood-onset Heart Disease? HeartKids CEO Lesley Jordan takes us through this termIn this episode of "From the Heart," join our host, Sami, for a conversation with HeartKids CEO Lesley Jordan.Sami and Lesley chat about congenital heart disease, as well as the term Childhood-onset Heart Disease (CoHD) and what this means. Lesley gives us a quick catch-up on all things CoHD for new listeners, and takes us through some exciting upcoming events.Be sure to stick around and hear the Love Letters to the CoHD Community segment, where we play your dedications, shout-outs, and anonymous messages of love to those in the community, in acknowledgement of the...
2024-02-0322 min
From The Heart: The HeartKids Podcast2023 Encore #3: What is Genetic Counselling? Laura YeatesThis summer (in Australia!), we're bringing you some fan favourite episodes of From the Heart Season 2, 2023! Here is Encore #3 - Genetic Counselling with Laura Yeates.Laura is a cardiac genetic counsellor and current PhD candidate with research projects focusing on inherited cardiomyopathy and arrhythmia. In this episode, Laura talks about what genetic counselling is, who can access it, and how genetic counselling is used to understand more about health conditions, and accessing the right supports around those conditions.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit...
2024-01-2129 min
From The Heart: The HeartKids Podcast2023 Encore #2: How Cardiomyopathy Impacted My Family... Matt Nelson's StoryThis summer (in Australia!), we're bringing you some fan favourite episodes of From the Heart Season 2, 2023! Here is Encore #2 - Matt Nelson's StoryMatt has been touched by childhood heart disease (CHD) as both a husband and a father. Matt’s first wife Tina passed away in 2013 due to complications from hypertrophic cardiomyopathy. Two of Matt’s sons also live with this condition. In this episode Matt talks about the complexity of navigating diagnoses, bereavement, and the strength of his sons.Content WarningThis episode contains information about bereavement. Please liste...
2024-01-0725 min
From The Heart: The HeartKids Podcast2023 Encore #1: Growing Up With A Heart Condition... Eve's StoryThis summer (in Australia!), we're bringing you some fan favourite episodes of From the Heart Season 2, 2023! Here is Encore #1 - Eve's StoryEve is a 23-year-old from Melbourne who lives with a congenital heart condition. Eve is a keen skier, ice hockey player and cold water swimmer! In this episode, Eve talks about how having a heart condition has impacted her body image and relationship with her body, her journey to becoming more independent with her health care, and the importance of support networks. LINKSJoin HeartKids' Instagram for teens and young p...
2023-12-2431 min
From The Heart: The HeartKids PodcastLife, footy and supporting the HeartKids community with Jaidyn Stephenson, HeartKids AmbassadorIn this episode of "From the Heart," join our host, Rachel, for a special conversation with Jaidyn Stephenson, North Melbourne AFL Player, and dedicated HeartKids Ambassador. Rachel and Jaidyn discuss navigating his heart condition and achieving success in his AFL career. Tune in as Jaidyn shares insights into the special bond he has forged with HeartKids.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by congenital and childhood heart disease. For support, information or guidance on your CHD journey...
2023-12-0912 min
From The Heart: The HeartKids PodcastHigh school and life beyond as a HeartKid - Monica's StoryOn this episode of From The Heart, we’re getting to know Monica Tolic – a heart teen from Adelaide who recently finished her last day of high school! With big goals in sight for her future, Rachael chats to Monica about growing up with a heart condition and managing through the highs chool years. Monica shares her thoughts on mental health, creating balance and becoming independent with her heart health.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by cong...
2023-11-2529 min
From The Heart: The HeartKids PodcastNavigating the financial aspects of Childhood Heart Disease with Elle PendrickIn this episode of From the Heart, we're joined by Elle Pendrick, a HeartKid herself and member of our HeartKids Board. Elle is also the founder of Adulting Well - on a mission to empower and educate people with chronic illnesses. In this episode Elle discusses navigating the financial aspects of living with, or caring for someone, with a childhood heart condition.For those new to From the Heart we highly recommend you check out an earlier interview we conducted with Elle on preparing for Open Heart Surgery.For more information and tips, check out E...
2023-11-1128 min
From The Heart: The HeartKids PodcastMy Adult Congenital Heart Disease Diagnosis Journey: Tess' StoryIn this episode of From the Heart, we're joined by Tess Waterhouse who shares her remarkable journey of receiving a diagnosis of Congenital Heart Disease (CHD) at age 23. Tess shares her experience with open-heart surgery for her atrial septal defect (ASD) and reflects on her recovery process, coping strategies, and the crucial support networks that helped her. She offers valuable insights on self-advocacy and a message of hope and guidance for others facing a similar diagnosis. HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting...
2023-10-2831 min
From The Heart: The HeartKids PodcastDeadly Heart Trek, and Rheumatic Heart Disease: Dr Gavin WheatonThis episode, Sami chats to Dr Gavin Wheaton about Rheumatic Heart Disease, and the Deadly Heart Trek.Dr Wheaton is a paediatric cardiologist at Adelaide’s Women and Children’s Hospital, and part of the Deadly Heart Trek.Deadly Heart Trek is a group of experienced doctors, local health workers and aboriginal leaders visiting communities across Australia to diagnose, treat and help prevent RHD, while learning and responding to the needs of communities.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not...
2023-10-1433 min
From The Heart: The HeartKids PodcastCHD Community and Me: Ellen Mitchell's StoryThis episode, Sami chats to Ellen Mitchell about the impact of becoming a Heart Mum, and how she gives back to the CHD community.Ellen is the Regional Community Coordinator for HeartKids in South Australia. Through her work, Ellen attends regional cardiac clinics, assists in facilitating community events, connecting peers across South Australia, and supporting the community in innovative ways.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by congenital and childhood heart disease...
2023-09-3035 min
From The Heart: The HeartKids PodcastExercise Physiology and CHD - Fitness for Life: Dr Derek TranThis episode, Sami chats to Dr Derek Tran, about exercise physiology, and supporting fitness for those with Congenital or Childhood-Onset Heart Disease (CHD)Dr Tran is a lecturer at the University of Sydney School of Medicine and Senior Exercise Physiologist at the Department of Cardiology, Royal Prince Alfred Hospital. Derek is also the co-coordinator of the world’s largest, and most inclusive CHD exercise clinical trials, called CH-FIT – striving to optimise exercise prescription and delivery for those with CHD. HEARTKIDSFrom The Heart is brought to you by Hea...
2023-09-1625 min
From The Heart: The HeartKids PodcastEmpowering Health: A Conversation with RN Jayhrani Nicholls on supporting young people with Rheumatic Heart DiseaseThis episode, Tahnee chats with Jayhrani Nicholls, a registered nurse and Aboriginal woman who works at Ngak Min Health, located on the Djarragun College campus in Gordonvale, Queensland. With a passion for empowering individuals to take control of their own health, Jayhrani has been dedicating her skills and expertise to supporting patients with Rheumatic Heart Disease (RHD).HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by congenital and childhood heart disease. For support, information or guidance on your CHD...
2023-09-0222 min
From The Heart: The HeartKids PodcastFrom Heart Transplant to Wheelchair Sport: Ahmad's Incredible JourneyIn this episode, Rachael chats with Ahmad, a remarkable 17-year-old who faced a life-saving heart transplant during the pandemic. His journey is a testament to unwavering resilience, overcoming challenges which included a leg amputation in his journey with CHD. Get ready to be inspired by Ahmad's indomitable spirit and unwavering determination to embrace all that life has to offer.Content note: The content touches on medical procedures and challenges faced. If you or someone you know may find this content distressing, we encourage you to approach this episode with care or consider listening with a supportive presence.
2023-08-1920 min
From The Heart: The HeartKids PodcastCardiac Surgery Care: May Chan and Bambang KurniaIn this episode, Rachael interviews May Chan and Bambang Kurnia, from the Royal Children's Hospital in Melbourne. May is an experienced Clinical Nurse Consultant in Cardiac Surgery, with a tenure at RCH since 1985. Her primary role involves managing and coordinating teams for cardiac surgeries, ensuring the highest standard of care for patients and their families. Joining May is her colleague Bambang Kurnia, an Associate Unit Manager at RCH. Bambang works closely with May in the cardiac theatre team, contributing his expertise to enhance the quality of healthcare provided.Content note: The content touches on the topic of...
2023-08-0527 min
From The Heart: The HeartKids PodcastHeartKid Sibling and Health Care Advocate: Syeda's StoryIn this episode of From the Heart, Rachael Knowles speaks with Syeda Sultana a devoted sibling and steadfast advocate for her brother who sadly passed away in 2022. A passionate advocate for equitable healthcare, Syeda is now an aspiring medical student with a keen interest in congenital heart defects, hoping to one day to make a difference in the field of paediatric cardiology.Content note: This episode of From the Heart contains discussions of loss and grief related to a congenital heart defect. The content also touches on the topic of pediatric cardiology and the challenges faced in...
2023-07-2233 min
From The Heart: The HeartKids Podcast1800 Helpline: How Can I Be the Support You Need? ... Mel Clarke's StoryMel is a project coordinator at HeartKids, as part of the National Action Plan, implemented to reduce the impact of childhood heart disease in Australia and achieve the goal that people with childhood-onset heart disease live longer, healthier and more productive lives. In this episode, Mel chats about the projects she runs at HeartKids, focusing on increasing support for families online, and over the phone.HEARTKIDS From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by congenital and c...
2023-07-0826 min
From The Heart: The HeartKids PodcastPaediatric CHD Surgery: Dr Prem VenugopalDr Prem is cardiothoracic surgeon based in Queensland, at Queensland Children’s Hospital. He performs lifesaving surgeries on children with CHD, and is involved in cardiac initiatives across the state and overseas. In this episode, Prem talks about CHD surgery, the close-knit team of professionals he works alongside, and his everlasting bond with each of the children he operates on.CONTENT WARNINGThis episode contains information about surgery. Please listen in a safe space and remember you can pause if you need to. If any of the inf...
2023-06-2442 min
From The Heart: The HeartKids PodcastWhat is Genetic Counselling? Laura YeatesLaura is a cardiac genetic counsellor and current PhD candidate with research projects focusing on inherited cardiomyopathy and arrhythmia. In this episode, Laura talks about what genetic counselling is, who can access it, and how genetic counselling is used to understand more about health conditions, and accessing the right supports around those conditions.HEARTKIDS From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by congenital and childhood heart disease. For support, information or guidance on your CHD journey, call the HeartKids...
2023-06-1029 min
From The Heart: The HeartKids PodcastLiving with CHD in the '60s... Marjorie Doyle's StoryMarjorie is a Kombumerri woman, who was born with Tetralogy of Fallot, and had surgery at the age of 13, in 1968. In this episode, Marjorie talks about her surgery, the support available for those in 1968 with CHD, and raising awareness of other adults living with CHD.HEARTKIDS From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by congenital and childhood heart disease. For support, information or guidance on your CHD journey, call the HeartKids Helpline on 1800 432 785 or visit the w...
2023-05-2737 min
From The Heart: The HeartKids PodcastChampioning for Change: My Rheumatic Heart Disease Journey... Kenya McAdam's storyKenya was diagnosed with a heart condition at the age of 14. In this episode, Kenya talks about travelling for open heart surgery, her connection with her family, and raising awareness of Rheumatic Heart Disease (RHD) through her film making work and Champions 4 Change. HEARTKIDS From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by congenital and childhood heart disease. For support, information or guidance on your CHD journey, call the HeartKids Helpline on 1800 432 785 or visit the website at https://www.h...
2023-05-1337 min
From The Heart: The HeartKids PodcastGreek Sweets and Good Will: How I Support The CHD Community... Arthur Iliopoulous' StoryArthur is a dad to a daughter with CHD, and a passionate fundraiser for HeartKids through his workplace. In this episode, Arthur talks about his family’s grassroots fundraising efforts, Greek sweets, and the joy of supporting the heart kids community with scholarships via his workplace, Drake’s Supermarkets.HEARTKIDS From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by congenital and childhood heart disease. For support, information or guidance on your CHD journey, call the HeartKids Helpline on 1800 432 785 or visi...
2023-04-2933 min
From The Heart: The HeartKids PodcastStarting School and CHD: What Do We Need To Know?... Catherine Day's StoryCatherine is a mother to a 13-year-old with CHD and has worked in the education system for 18 years. In this episode, Catherine talks about children with CHD entering the education system, and the preparations and supports that are beneficial in this space HEARTKIDS From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by congenital and childhood heart disease. For support, information or guidance on your CHD journey, call the HeartKids Helpline on 1800 432 785 or visit the website at https://www.heartkids.org.a...
2023-04-1526 min
From The Heart: The HeartKids PodcastHow Cardiomyopathy Impacted My Family... Matt Nelson's StoryMatt has been touched by CHD as both a husband and a father. Matt’s first wife Tina passed away in 2013 due to complications from hypertrophic cardiomyopathy. Two of Matt’s sons also live with this condition. In this episode Matt talks about the complexity of navigating diagnoses, bereavement, and the strength of his sons. Content WarningThis episode contains information about bereavement. Please listen in a safe space and remember you can pause if you need to. If any of the information about bereavement brings up worry for you, please...
2023-04-0125 min
From The Heart: The HeartKids PodcastGrowing Up With A Heart Condition... Eve's StoryEve is a 23-year-old from Melbourne who lives with a congenital heart condition. Eve is a keen skier, ice hockey player and cold water swimmer! In this episode, Eve talks about how having a heart condition has impacted her body image and relationship with her body, her journey to becoming more independent with her health care, and the importance of support networks. LINKSJoin HeartKids' Instagram for teens and young people @youthzone_heartkids: www.instagram.com/youthzone_heartkidsHEARTKIDSFrom The Heart is brought to you by HeartKids, the o...
2023-03-1831 min
From The Heart: The HeartKids PodcastHeartKids Dads: A Support Group For Fathers Of Children With CHD... Ben TaylorBen Taylor runs HeartKids Dads, a national support group for fathers of children with heart conditions. In this episode he talks about his own family's journey with CHD, as well as all the different ways the HeartKids Dads group provides support to the community. The group has been running for 9.5 years and has grown from 6 members to over 250 today. LINKSJoin the HeartKids Dads group: HeartKids Dads Facebook Support GroupHEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected b...
2023-03-0424 min
From The Heart: The HeartKids PodcastI Had No Idea I Was About To Become A Heart Mum... Sami Glastonbury's StoryAt Sami's 21-week scan, she was told her unborn baby had a heart condition. In that moment, life changed forever. In this episode, Sami bravely opens up about losing parts of her identity after becoming a heart mum. She talks about what it's like entering the extreme caregiver role and the sacrifices she made as a result, like missing some of her other children's milestones, and hitting pause on her career for a time.Frank is now eight years old. Frank also has some vision impairment and an intellectual disability. Sami talks about what it...
2023-02-1829 min
From The Heart: The HeartKids PodcastBEST OF 2022 #1: Kimberley's StoryCounting down our most popular episodes of 2022... #1!When your child is unwell, often it's the only thing you can focus on or think about. But what happens if you start to notice you are struggling?Kimberley opens up on the recovery she has had to navigate since bringing her daughter home from surgery. This story is about parent's mental health, self-care, and learning how to reach out for help when you need it. Kimberley also talks us through what it's like receiving a new diagnosis and taking your child in for surgery....
2023-02-0431 min
From The Heart: The HeartKids PodcastBEST OF 2022 #2: Neurodevelopment and CHDCounting down our most popular episodes of 2022... #2!What is neurodevelopment?What is the connection between CHD and neurodevelopment in children?What are the early indicators that a child may be experiencing neurodevelopmental difficulties?How are neurodevelopmental issues diagnosed?What sort of treatments and therapies are available?What research is happening in this area?What is the CHD Life+ research program and how could it transform neurodevelopmental care for young cardiac patients in Australia?Cardiologists Rob Justo and Will Parsonage answer these questions and more in this information-packed episode.
2023-01-2125 min
From The Heart: The HeartKids PodcastBEST OF 2022 #3: Exercise and CHDCounting down the most popular episodes of 2022... #3!Should I exercise if I have a heart condition?The answer is, almost everyone with a congenital or childhood heart condition can benefit from exercise. When done safely, regular exercise is one of the best things you can do for your heart and overall health. Cardiologist Rachael Cordina joins us to bust some exercise and CHD myths and help all listeners learn more about exercise.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting...
2023-01-0723 min
From The Heart: The HeartKids PodcastWe Know How To Prevent It, So Why Does This Type Of Childhood Heart Disease Still Exist In Australia? Dr Ben ReevesDr Ben Reeves is a paediatric cardiologist in North Queensland. He's one of only three paediatric cardiologists you'll find north of Brisbane. Between 30-40% of Dr Reeves workload is related to rheumatic heart disease (RHD), a type of childhood heart disease. RHD was common in Australia's big cities in the 1950s and 1960s. Since then it's largely been eradicated in white populations in our major cities. However, rates of RHD persist in Aboriginal and Torres Strait Islander, immigrant and South Sea Islander communities in Australia. Unlike congenital heart disease, we know exactly what causes RHD, so why a...
2022-12-1718 min
From The Heart: The HeartKids PodcastCan CHD Impact Mental Health? Dr Liza MortonLiza is a psychologist. She also lives with a congenital heart condition. In this episode, we talk all about the psychological needs and challenges that come along with living with a childhood heart condition. Dr Morton also shares psychological coping strategies for people living with CHD and talks about her upcoming book 'Healing Hearts and Minds: A Holistic Approach to Coping Well With Congenital Heart Disease'. LINKSPre-order Dr Liza Morton's book: https://www.booktopia.com.au/healing-hearts-and-minds-tracy-livecchi/book/9780197657287.html HEARTKIDSFrom The Heart is brought to...
2022-12-0329 min
From The Heart: The HeartKids PodcastWhat Happens When I Move To The Adult Hospital? Evelyn CulnaneEvelyn has helped thousands of young people transition from the paediatric to adult health care system. Out of the Royal Children's Hospital in Melbourne, Evelyn runs one of the most successful transition programs in the country. She answers all our health care transition questions in this episode. What makes a positive transition experience? Why is a positive health care transition important? What can teens do to promote a positive transition? What can parents do? What are some of the barriers to a positive transition and how can we remove them? This episode is for teens with heart conditions, as...
2022-11-1923 min
From The Heart: The HeartKids PodcastHow HeartKids Teen Camps Changed My Life... Claire's StoryGrowing up in regional NSW, Claire was the only heart kid in town. Attending HeartKids Teen Camp and meeting other young people was a gamechanger for her. In this episode, Claire talks about her life growing up with a heart condition and shares some messages for teens and young adults living with CHD. LINKSLearn more about HeartKids Teen Camps: https://www.heartkids.org.au/page/169/teen-campsHEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people...
2022-11-0545 min
From The Heart: The HeartKids PodcastAustralian National Standards of Care for Childhood-onset Heart Disease... Prof Gary ShollerThe Standards of Care for the Childhood-onset Heart Disease (CoHD) community are over 10 years in the making. What are the CoHD Standards? They outline the healthcare requirements for CoHD services in Australia. Having these Standards in place will help all patients, families and carers affected by CoHD to live their best and healthiest lives. Professor Gary Sholler is the Co-Chair of the CoHD Standards of Care project. In this episode, he explains why and how the CoHD standards project came about, how they have the potential to transform CoHD care in Australia, and how you...
2022-10-2236 min
From The Heart: The HeartKids PodcastGrowing Up In The 70s With A Congenital Heart Condition... Deb's StoryDeb was born in 1968 with a complex heart condition. It wasn't until the late 70s that Deb was able to have surgery for her condition. Deb credits her personal strength and resilience back to her experiences growing up with a heart condition.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by congenital and childhood heart disease. For support, information or guidance on your CHD journey, call the HeartKids Helpline on 1800 432 785 or visit the website at https://www.heartkids.org...
2022-10-0824 min
From The Heart: The HeartKids PodcastHeart And Life Updates With Rachael and SamWe catch up with co-hosts Rachael and Sam to hear how they are going on their journeys. Rachael and Sam also chat about the podcast - what they've learnt since starting the series, embarrassing moments they've shared during recordings, their favourite episodes, and more.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by congenital and childhood heart disease. For support, information or guidance on your CHD journey, call the HeartKids Helpline on 1800 432 785 or visit the website at https://www...
2022-09-2430 min
From The Heart: The HeartKids PodcastMy Heart Condition Doesn't Define Me... George's StoryGeorge is 21 years old from Tasmania. Born with a complex heart condition, George has had six open-heart surgeries.In this episode, George talks about what it was like travelling to Melbourne for surgery as a young kid, how he navigated his teenage years despite some physical limitations, how he looks after his mental health and how attending HeartKids Teen Camps changed his life. George is passionate about mentoring and shares lots of advice for younger heart kids navigating their own journeys.George is also currently planning his own football-related fundraising event in Tassie for the...
2022-09-1025 min
From The Heart: The HeartKids PodcastOne Of My Twins Was Born With A Heart Condition... Hannah's StoryWhen Hannah noticed one of her twins wasn't taking as much milk from the bottle during feeding, she never thought it could be a problem with her baby daughter's heart. The diagnosis that followed was serious. Baby Maddie needed multiple surgeries in her first years of life. In this episode, Hannah talks about her journey with bottle-feeding, the impact the CHD journey can have on siblings, what it's like starting school with a heart kid, managing developmental delays, the importance of creating a strong relationship with your child's school, and how to tap into the HeartKids community...
2022-08-2736 min
From The Heart: The HeartKids PodcastWhat's The Connection Between CHD And Neurodevelopment? A/Prof Rob Justo and Prof Will ParsonageWhat is neurodevelopment? What is the connection between CHD and neurodevelopment in children?What are the early indicators that a child may be experiencing neurodevelopmental difficulties?How are neurodevelopmental issues diagnosed? What sort of treatments and therapies are available? What research is happening in this area? What is the CHD Life+ research program and how could it transform neurodevelopmental care for young cardiac patients in Australia?Cardiologists Rob Justo and Will Parsonage answer these questions and more in this information-packed episode. HEARTKIDSFrom The Heart is b...
2022-08-1325 min
From The Heart: The HeartKids PodcastCommon Cardiac Procedures... Professor David CelermajerECGs, chest x-rays, blood tests, ultrasounds, exercise tests, CT scans, MRI scans and catheters. If you have a childhood heart condition, you have likely encountered some or all of these tests before. Professor David Celermajer is one of the top adult cardiologists in Australia and the world. In this episode, he explains what each of these tests are, what's involved in getting them, why cardiologists use them, and the importance of regular check-ups. HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for pe...
2022-07-3035 min
SA Today with Jennie Lenman$1M HeartKids Funding Will Help Regional FamiliesMore children with congenital heart disease and their families will receive vital support across South Australia thanks to $1 million over four years from the South Australian Government.
HeartKids will receive the investment to expand its services for regional families, along with a targeted mental health program for South Australian families and a specialised playgroup to assist Heartkids’ early development.
Tania Potts the SA/NT State Manager of HeartKids joins Jennie Lenman to discuss.
HeartKids Infoline: 1800 432 785
2022-07-1806 min
From The Heart: The HeartKids PodcastGrowing Up With My Heart Condition... Caitlin's StoryCaitlin was born with pulmonary atresia with a VSD, requiring three surgeries before the age of one. In Year 12, Caitlin was busy thinking about what formal dress she wanted to wear and her university admission score, when she was told she would need another procedure. Caitlin is now 20 and is about to sit the admission exam to study medicine. Her experience with her heart is part of the drive behind why she wants to become a doctor and help others.Caitlin is an amazingly resilient, driven and empowered young woman. In this episode, she talks...
2022-07-1627 min
From The Heart: The HeartKids PodcastHow Becoming A Father Helped Me Understand What Heart Parents Go Through... Levi's StoryLevi is a young father and amateur triathlete from Brisbane. In his early twenties, Levi dropped out of care. Levi's hospital had been trying to get in touch with him as he needed a third surgery on his heart. Like when he was young, Levi's parents were there to help him through his third open-heart surgery. Levi is now 36 and a father to two beautiful children. Through parenthood, he has developed a new understanding of the support his parents gave him growing up as a heart kid. Levi's story highlights the importance of check-ups and f...
2022-07-0225 min
From The Heart: The HeartKids PodcastHow To Prepare For Open-Heart Surgery... Tips And Tricks From A Pro! Elle PendrickAfter 5 open heart surgeries, Elle is a pro. She shares tips for how to prepare, what to expect during it, and the best ways to recover.How do you make sure you've got the right people on your medical team? How do you prepare psychologically? How can you manage the impact on work or study? What's it like waking up after surgery? What does pubic hair have to do with any of this? Elle and Sam answer these questions and more!For more information and...
2022-06-181h 01
From The Heart: The HeartKids PodcastWhat Is Wadja Aboriginal Family Place? Annette 'Netty' GaultonKooma woman Netty Gaulton is an Aboriginal Case Manager within the cardiac unit at the Royal Children's Hospital in Melbourne. In this role, Netty provides emotional, social and cultural support to Aboriginal and Torres Strait Islander children and families visiting the hospital. Why do you think Aboriginal and Torres Strait Islander people don't always feel comfortable accessing health services? How can we make hospital environments more welcoming? What's the best part about your role? Netty answers these questions and more!HEARTKIDSFrom The Heart is brought...
2022-06-0528 min
From The Heart: The HeartKids PodcastMy Daughter's Heart Transplant... Ebony's StoryEbony had no idea her two-year-old daughter Milly even had a heart condition when she became unwell and was rushed to hospital one night. The doctors thought it might be Milly's kidneys, but soon discovered it was her heart. Ebony was told Milly was in heart failure and urgently needed a heart transplant. Milly is now six years post-transplant and is a happy and healthy nine-year-old thanks to what she calls her 'angel heart'.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused...
2022-05-2122 min
From The Heart: The HeartKids PodcastRESEARCH UPDATE: The Genetic Causes of Congenital Heart Disease... A/Prof Mirana RamialisonMirana and her research team have identified 35 new genes associated with congenital heart disease. Their research is changing what we know about the genetic causes of congenital heart disease... all with the help of vinegar flies! Listen in to this bonus episode to find out how these Australian researchers are expanding what we know about genes and CHD.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by congenital and childhood heart disease. For support, information or guidance...
2022-05-1116 min
Too Peas In A Podcast Mandy Hose and Kate MulhollandInternational Pea Week Episode 4. Heartkids with HannahOn day 4 of International Pea Week, Kate and Mandy talk to Hannah from Heartkids! Hannah is an amazing 'Superpea' – a twin mum with one twin who has complex medical needs due to a heart condition. Hannah’s daughter was diagnosed with a hole in the heart and underwent open-heart surgery at Melbourne’s Royal Children’s Hospital at only seven days of age. Hannah talks about the whirlwind impact on her whole family of her newborn’s diagnosis and initial 5-week hospitalisation, and then the shock of finding out that the surgery had been unsuccessful, which meant...
2022-05-0441 min
From The Heart: The HeartKids PodcastOur Rheumatic Heart Disease Journey... Lynette's StoryLynette is a Torres Strait woman from Moa Island. Lynette had never heard of rheumatic heart disease (RHD) before her son Jalil was diagnosed four years ago. To keep his heart healthy and strong, Lynette and Jalil must now go to the local hospital every four weeks for his antibiotic injection. Jalil struggled with the pain at first but now with the help of the buzzy bee, Entonox gas, and support from his family and nurses at the hospital, Jalil is feeling better about his injections. Lynette shares advice for other families who might be r...
2022-04-2725 min
From The Heart: The HeartKids PodcastMy Son Needed 4 Surgeries In 16 Months For His Congenital Heart Disease... Mandela's StoryMandela is a Yawuru woman from Broome in Western Australia. Mandela was 29 weeks pregnant with her first child when she received the news that her baby had a heart condition.What followed was four surgeries in 16 months for her baby Myles and many months away from home and family. Mandela shares advice for other families who may be receiving a new diagnosis of congenital heart disease in their child, or dealing with surgeries.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on s...
2022-04-2721 min
From The Heart: The HeartKids PodcastWhat's It Like Growing Up With A Heart Condition? Sam's StoryGrowing up with a scar on his chest, Sam sometimes felt different from his friends. Attending his first HeartKids Teen Camp and meeting other teens with the same zipper was a huge turning point for him. Sam is now 22 and is studying law, a decision which he says his heart played a vital role in. Sam talks about about his experience transitioning to the adult health care system and how he's learning to balance his life alongside his condition.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national...
2022-04-2424 min
From The Heart: The HeartKids PodcastPregnancy, Contraception, Family Planning and CHD... A/Prof Dominica ZentnerWhat does having a congenital heart condition mean for pregnancy and fertility? How can my health care team help me prepare for pregnancy and starting a family? What can happen to the heart after having a baby? What is the best contraception to use when not trying for a baby?Cardiologist Dominica Zentner answers these questions and more on this information-packed episode of the podcast.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for peo...
2022-04-1028 min
From The Heart: The HeartKids PodcastHow Meeting Other Parents Helped On Our Congenital Heart Disease Journey... Natasha's StoryTen years ago, Tash had never heard of congenital heart disease or HeartKids. That all changed in 2012. A routine visit to the GP with her three-year-old son turned into an urgent referral to a cardiologist. A few weeks later, Tash was finding out her son had congenital heart disease. This shock diagnosis meant major heart surgery. Tash felt isolated and alone, until she met a Family Support Coordinator from HeartKids. Many of the support team members at HeartKids are other heart parents. HeartKids support staff are not medical professionals, they are peers who provide invaluable...
2022-03-2625 min
From The Heart: The HeartKids PodcastMy Family's Journey Of Congenital Heart Disease, Grief, and Hope... Dominic's StoryDom's message for anyone experiencing grief is simple: You are not alone. The Frawley family experienced devastating loss in 2013 when their youngest son, Malachy, passed away due to his complex congenital heart condition. Dom recently published a book reflecting on his family's journey through love, loss, grief and hope. In the book and in this episode, Dom opens up about the impact of the CHD journey on siblings, parenting through hardship and loss, and how we can all better support the people around us. With the backdrop being a touchingly beautiful father-son love story, it's...
2022-03-1230 min
From The Heart: The HeartKids PodcastMy Heart and My NRLW Footy Career! Kennedy Cherrington's StoryKennedy had open-heart surgery when she was eight years old. Today she plays in the NRLW for the Parramatta Eels and is one of the brightest young talents in the league. In this episode, Kennedy opens up about her mindset and how she has overcome challenges on her journey. Kennedy is a HeartKids ambassador and an incredible role model within our community. This episode is for parents of heart kids, young people with a heart condition, and footy fans!HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national...
2022-02-2627 minSA Today with Jennie LenmanHeartwarming Sunflower Fundraiser for HeartKids SAThe 'Pick a Sunflower' initiative in Freeling has been a huge success for HeartKids SA.
Owners of The Barns of Freeling have raised $12,644.45 for HeartKids SA in just one week, with thousands of people heading to the small northern town near the Barossa to pick sunflowers in exchange for a gold coin donation in the lead up to Valentine's Day.
HeartKids SA State Manager Tania Potts joins Jennie Lenman to discuss the news.
2022-02-1605 min
From The Heart: The HeartKids PodcastThe Grief At The Heart Of It... Rachael Knowles' StoryCan you be strong about your heart condition and grieve for it at the same time? Growing up, Rachael never let her heart condition get in her way. She found herself pushing through rather than processing some of the trauma she experienced. Rachael is now 24 and with the support of her family and health care team, she is navigating a journey to healing.Rachael also talks about what it was like growing up with CHD in a small rural town, how to advocate for yourself on your medical journey, and why being proactive on family...
2022-02-1324 min
From The Heart: The HeartKids PodcastWhy Exercise Is Good For Congenital Heart Disease With A/Prof Rachael CordinaShould I exercise if I have a heart condition? The answer is, almost everyone with a congenital or childhood heart condition can benefit from exercise. When done safely, regular exercise is one of the best things you can do for your heart and overall health. Cardiologist Rachael Cordina joins us to bust some exercise and CHD myths and help all listeners learn more about exercise.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by congenital and childhood...
2022-01-3123 min