Shows
Hypermobility Happy Hour81 - My Hypermobility: New Children's Book on Hypermobility by Leah PinningtonIn this episode, Leah Pinnington discusses My Hypermobility, the children's book she wrote about her daughter's experience with hypermobility. Leah advocates for better awareness about hypermobility in schools and her book has been successful internationally.
Links:
Instagram: https://www.instagram.com/leahpinnington_author/
My Hypermobility on Amazon: https://www.amazon.com/My-Hypermobility-Leah-Pinnington/dp/1738437205
My Hypermobility at Target: https://www.target.com/p/my-hypermobility-by-leah-pinnington/-/A-91860135
2024-09-2036 minHypermobility Happy Hour80 - Help! I'm Hypermobile Podcast Host and Hypermobility Specialist Osteopath Alexandra OrfanidesThis episode features a discussion with Alex Orfanides, Masters in Osteopathy and Bachelor of Arts (honors), a hypermobility specialist osteopath and content creator who hosts the fantastic podcast Help! I’m Hypermobile. Alex has a unique blend of expertise gained through her prior degree in English literature and her clinical work with elite athletes. She challenges conventional perspectives on clinical outcomes in hypermobile patients and is dedicated to helping individuals with hypermobility (including hypermobile Ehlers-Danlos syndrome) to achieve their goals.
Alex’s academic background fuels her commitment to promoting informed consent in healthcare settings, emphasizing the importance of patients understanding not...
2024-09-1458 minHypermobility Happy Hour79 - Too Flexible to Feel Good Co-Author Celest Pereira on Hypermobility, Chronic Pain & MoreThis episode features Celest Pereira who is a trained dancer, martial artist, co-author and physiotherapist. She earned her Bachelor of Science degree in Physiotherapy in 2009. Celest loves learning about and discussing anatomy, neuroscience and biomechanics and runs regular education-based workshops where she breaks down scientific research studies and anecdotal evidence from healthcare providers to help educate others about various movement disciplines. Celest is a co-author of the book Too Flexible to Feel Good and she also has a blog, a podcast, various YouTube videos, an active social media presence, and offers private 1 on 1 online science where she focuses on a...
2024-07-3054 minHypermobility Happy Hour78 - Allysa Seely: USA Paralympian Gold Medalist on Medical Gaslighting and Advocacy WorkToday our guest is paralympic Gold Medalist Allysa Seely. Allysa is a paratriathlon athlete with Ehlers-Danlos Syndrome and related conditions like Chiari II. Beyond her gold medal award, Allysa is also a three-time world paratriathlon champion and a 17-time ITU World Paratriathlon Event medalist with 12 golds, 3 silvers, and 2 bronzes.
In 2016 at the Rio Paralympic Games, Allysa made history when she won a gold medal in paratriathlon’s debut as a medal event at the Paralympics. She also competed in track and field at the Rio games where she landed an impressive sixth place finish in the 200m event. Allysa has be...
2024-07-2352 minHypermobility Happy Hour77 - Movement Approaches, Nervous System Regulation & More (with Andy Hsieh, CPT-ACE)On this episode, our guest is Andy Hsieh of Movement Reborn located in San Diego, CA. Andy is a certified personal trainer through the American Council of Exercise, as well as a specialist in neurokinetic training. Andy runs Movement Reborn, an in-person personal training practice that also has some helpful YouTube videos for those who are not in the greater San Diego area. Movement Reborn’s YouTube channel has some videos about hypermobility, one of which has been seen nearly sixty thousand times as of the time of this recording.
Andy discusses nervous system regulation, movement for hypermobile people and pe...
2024-07-1853 minHypermobility Happy Hour76 - Nervous System Regulation, Pelvic Health & More (Dr. Rita White DPT)On this episode, we are joined by Dr. Rita White, Doctor of Physical Therapy. Rita is a pelvic health physical therapist with over 10 years of experience helping people reconnect to their body so they can overcome pain. Her areas of expertise include pelvic health and pain conditions, especially hypermobile Ehlers-Danlos Syndrome (hEDS)/ Hypermobility Spectrum Disorders (HSD) and Postural Orthostatic Tachycardia Syndrome (POTS).
Dr. White owns her own practice, Intrinsic Physical Therapy & Wellness, a specialty PT clinic in Minneapolis, Minnesota, specifically designed for people living with complex, chronic conditions. She is passionate about providing a space for people to feel seen...
2024-07-1049 minHypermobility Happy Hour75 - Whealth - Hypermobile Couple Katie Goss and Andrew DettelbachOn this episode, hypermobile couple Katie Goss and Andrew Dettelbach discuss their experiences living with hypermobility as well as their insights from working with hypermobile people through their practice and the organization they founded: Whealth.
Links:
https://spreadwhealth.com/overcome-pain
https://www.instagram.com/whealth
https://www.facebook.com/spreadwhealth
https://www.youtube.com/spreadwhealth
2024-07-031h 00Hypermobility Happy Hour74 - Dr. Brian Cunningham, DPT (The Swim Doc) on Swimming & HypermobilityIn this episode, Dr. Brian Cunningham (The Swim Doc) talks about coaching and working with swimmers of all ages, strengths, and abilities (including hypermobile swimmers). Dr. Cunningham is an experienced physical therapist and swimmer who teaches swimmers about the specific muscles they need to engage as well as the habits and strategies of elite athletes. He has worked with swimmers at many levels from physical therapy to the USA Olympic Swim Team. Dr. Cunningham also reflects on his own personal experience with hypermobility as well as his professional insights gleaned from working with many hypermobile people.
Links:
https://www.theswimdoc...
2024-06-221h 17Hypermobility Happy Hour73 - Occupational Therapist Jo Southall on Pacing, Patient Advocacy, Dark Age Medicine & MoreOn this episode, our guest is Jo Southall, Occupational Therapist and Patient Advocate. Jo is an Independent Occupational Therapist and an expert patient with many years of experience self-managing complex health conditions. Jo began working life in the sport and Outdoor Adventure industries. After being diagnosed with Hypermobile Ehlers Danlos Syndrome, Jo returned to study and gained a BSc degree in Occupational Therapy from the University of Northampton. Jo was named Changemaker Student of the Year for 2016 in connection with their work in helping to bring wheelchair basketball to the university, their volunteer work with the Hypermobility Syndromes Association in...
2023-10-2249 minHypermobility Happy Hour72 - Remembering Stephanie Aston - with Punteha van TerheydenOn this episode, British-Iranian journalist Punteha van Terheyden discusses the recent tragic death of Stephanie Aston in New Zealand and the article Punteha wrote about Steph and Punteha’s own experiences with hypermobility and other medical conditions.
Punteha van Terheyden - https://www.vtfeatures.co.uk/
'Stephanie Aston died after doctors said she was faking her symptoms. I'm not even surprised' - Story by Punteha van Terhayden - https://www.mamamia.com.au/stephanie-aston-death/
People magazine article about Stephanie Aston - https://people.com/ehlers-danlos-new-zealand-stephanie-aston-dies-7966639
Another recent article by Punteha: https://metro.co.uk/2023/10/04/it-costs-a-bomb-but-cannabis-oil-has-allowed-me-to-stand-up-again-19589151/
2023-10-0738 minHypermobility Happy Hour71 - Hormones, Pelvic Floor and Hypermobility: Dr. Brit Harmon (PT)On this episode, our guest is Dr. Brit Harmon, a Doctor of Physical Therapy who specializes in hypermobility and women’s health. Dr. Brit works to help women to feel more empowered in their ability to create sustainable and obtainable shifts in their bodies and minds. Her background in Hypermobility, the female cycle, holistic health, and the pelvic floor has allowed her to connect the dots in helping women to more fully understand how to care for themselves.
Links:
https://www.bloomembody.com/
https://www.bloomembody.com/free-resources
2023-06-3042 min
Hypermobility Happy Hour70 - Highly Sensitive People, Neurodivergency, ADHD & Advocacy: Donna IreneOn this episode, Donna Irene talks about her experience with hypermobile Ehlers-Danlos Syndrome and related conditions. Donna is a travel photographer with hEDS from Miami, FL and soon to be in Chattanooga, Tennessee. She picked up a camera at the age of 13 and since then her camera has taken her to 5 continents and 40 countries. Since her diagnosis in 2022 she has become an advocate for women with invisible disabilities and shares about her journey on social media.
Links:
Instagram: https://www.instagram.com/chronicandcapable
TikTok: chronicandcapable
Dr. Rodney Grahame quote: https://www.the-rheumatologist.org/article/function-despite-pain/4/?singlepage=1
Dermal fibroblast article: https...
2023-06-151h 00
Hypermobility Happy Hour69 - Donna Sullivan (TCAPP) - Supporting Children and Families Impacted by EDS, Hypermobility & MoreContent advisory: This episode contains discussion of highly sensitive topics including suicide and allegations of child abuse. Please exercise listener discretion.
On this episode, Kerry interviews Donna Sullivan, a patient advocate with the organization TCAPP, The Coalition Against Pediatric Pain. She is a graduate of Providence College and has worked for more than two decades in media, communications and marketing with some of the world’s biggest brands. Donna uses her skills to help TCAPP raise awareness of the needs of children living with complex pain. She and her husband have three children diagnosed with Ehlers-Danlos Syndrome, POTS, and complex re...
2023-05-261h 10Hypermobility Happy Hour68 - Mitch Martow Update on Advocacy & MoreMitch Martow returns to the Hypermobility Happy Hour to talk about his documentary and advocacy efforts.
Links
Bend or Break documentary
https://youtu.be/5toRNvFug3Y
Instagram (@mitchmartow)
https://instagram.com/mitchmartow?igshid=MTIyMzRjYmRlZg==
Bend or Break Instagram (@_bend_or_break_)
https://instagram.com/_bend_or_break_?igshid=MTIyMzRjYmRlZg==
https://www.cnn.com/videos/health/2022/12/16/ehlers-danlos-syndrome-patient-stories-contd-lon-orig.cnn
2023-05-2048 minHypermobility Happy Hour67 - Kalin Johnson (Part 2) Advocacy, Neurodivergency & MoreOn this episode, Kalin Johnson, a healthcare provider, patient advocate and entrepreneur, discusses her path to connecting the dots of Hypermobility and neurodivergency in her own life and building a patient advocacy practice. Kalin shows high-achieving, neurodivergent, & hypermobile individuals how to “unmask their health,” and feel their best through concierge whole person care. As a licensed clinical pharmacist, functional medicine specialist, healthcare advocate, and neurodivergent mentor, she bridges the gap between mental and physical health through her professional and personal experience.
Kalin brings a unique and enthusiastic perspective to her private practice. A perspective gained from living life as an LGBT...
2023-05-1338 minHypermobility Happy Hour66 - Kalin Johnson on Advocacy, Neurodivergency & MoreOn this episode, Kalin Johnson, a healthcare provider, patient advocate and entrepreneur, discusses her path to connecting the dots of Hypermobility and neurodivergency in her own life and building a patient advocacy practice. Kalin shows high-achieving, neurodivergent, & hypermobile individuals how to “unmask their health,” and feel their best through concierge whole person care. As a licensed clinical pharmacist, functional medicine specialist, healthcare advocate, and neurodivergent mentor, she bridges the gap between mental and physical health through her professional and personal experience.
Kalin brings a unique and enthusiastic perspective to her private practice. A perspective gained from living life as an LGBT...
2023-04-2941 minHypermobility Happy Hour65 - Taylor Goldberg on HypermobilityIn this episode, Taylor Goldberg, DC, discusses her practice as a hypermobility coach and her perspectives on various aspects of hypermobility spectrum conditions. Taylor is a chiropractor who works with hypermobile individuals and has a unique perspective through her education and her own experiences with hypermobility.
www.hypermobilechiro.com
Instagram: @thehypermobilechiro
2023-03-201h 06Hypermobility Happy Hour64 - Savita Sandhu on Diet and Hypermobility (Part 2) POTS & DietOn this episode, returning guest Savita Sandhu from Savvy Dietetics located in Brisbane, Australia discusses diet, POTS, and hypermobility. Savita received her Bachelor Degree in Nutrition and Dietetics with Honours at the Queensland University of Technology and underwent postgraduate training with the Australasian College of Nutritional and Environmental Medicine. Savita also has an amazing instagram page at hypermobility.dietitian where she provides information and resources about food and micronutrients for hypermobile people.
Links:
https://www.savvydietetics.com.au
https://www.instagram.com/hypermobility.dietitian/?hl=en
2023-03-0451 minHypermobility Happy Hour63 - Dr. Alysse Cruz on Diagnosing and Treating Hypermobility from Ages 5-80On this episode, Dr. Alysse Cruz, who goes by @zebracornmd on Instagram, discusses the diagnostic process for Hypermobility and more. Dr. Cruz is a multiracial, first generation, board-certified family medicine doctor with myopathic Ehlers-Danlos Syndrome (EDS) and POTS and a passion for teaching. She obtained her degree from The Ohio State University and completed her residency training at the University of Minnesota Medical Center - Smiley’s Clinic. Dr. Cruz now works at Allina Health in Blaine, Minnesota and she has developed specialized knowledge and expertise in diagnosing and treating various types of EDS including hypermobile Ehlers-Danlos Syndrome.
Links:
https://ww...
2023-02-2252 minHypermobility Happy Hour62 - Camille Schrier on Advocacy, Awareness & MoreOn this episode, Camille Schrier returns to talk about her life as a pharmacy student and her continuing advocacy efforts regarding Ehlers-Danlos Syndrome. Camille graduated with honors from Virginia Tech in 2018 with dual Bachelor of Science degrees in Biochemistry and Systems Biology. She is currently pursuing a Doctor of Pharmacy degree at Virginia Commonwealth University. In 2019 Camille earned the title Miss Virginia after performing a science experiment (the catalytic decomposition of hydrogen peroxide) as her onstage talent. In December 2019, Camille was named Miss America 2020, again after showcasing her science skills. Camille also provides STEM outreach via Her Royal Scientist.
Links:
...
2023-01-311h 05
Hypermobility Happy Hour61 - Dr. Melissa Koehl (PT) on Treating the Full Spectrum of HypermobilityOn this episode, Kerry interviews Dr. Melissa Koehl, a physical therapist diagnosed with hypermobile Ehlers-Danlos Syndrome. Dr. Melissa was a competitive level 10 gymnast in her earlier years and ended up incurring a number of injuries including a career-ending stress fracture to her lower back. Dr. Melissa created her own ChimeraFit method that combines elements of Pilates, Yoga, strength, and balance work. She has been teaching her method to others with hypermobility, arthritis, and joint pain for over 20 years. She also has a great instagram page with lots of content about different movement approaches for people at many places on the...
2022-12-111h 12Hypermobility Happy Hour60 - Zinc & Hypermobility: Fiona Sullivan & Danielle HumphreysContent notice: This episode contains discussion of premature death and descriptions of physical symptoms and medical procedures/conditions
This podcast is for informational and educational purposes only. Please consult with appropriate medical professionals before making any changes to your own health regimen.
On this episode, researchers Fiona Sullivan and Danielle Humphreys (who have both been diagnosed with hEDS) discuss their research into the causes and mechanisms underlying hypermobility and other health conditions and what they’ve found regarding the role of zinc in human health.
Instagram:
https://www.instagram.com/fiona_my_eds/ (Fiona)
https://www.instagram.com/edsexpertpatient/ (Danielle)
2022-12-021h 33Hypermobility Happy Hour59 - Doug Kremer on Learning about and Treating Hypermobility Later in Life and hEDS in MenOn this episode, Kerry interviews Doug Kremer, a mechanical engineer diagnosed with hEDS in late 2021. He’s the father of two girls, one who is 17 and has mild features of hypermobility and another daughter who is 19 and was diagnosed with hEDS in mid-2021. Doug reached out after finding success with one of the treatments we discussed on this show and he and I have become friends chatting about hypermobility and many other shared interests. Doug has found some great hypermobility hacks that have helped him to improve his life and it’s great to hear a hypermobility success story and to h...
2022-11-2749 minHypermobility Happy Hour58 - Hyp-ACCESS: L Tuthall and Audre Wirtanen on Reimagining HypermobilityContent Warning: This episode contains mentions of suicidality, ableism, abuse, exploitation, medical trauma, white supremacy, eugenics. Please exercise listener discretion.
On this episode, Kerry interviews L Tuthall (they, them) and Audre Wirtanen (she, her)--two disabled community organizers, care access advocates, artists, and researchers who co-founded and co-direct Hyp-ACCESS. Hyp-ACCESS is a Hypermobile-specific disability justice organization working to increase care access and justice for Hyps (a term they coined) in the arts, medicine, and alternative therapy spaces.
L and Audre met in a somatic training that was not accessible to them and so they developed Hypermobile Accessible Proprioceptive Therapy (or...
2022-11-201h 03Hypermobility Happy Hour57 - Victoria Daylor: From Dancer to Pre-Med with hEDSVictoria was a professional dancer and Gyrotonic Instructor who has performed throughout the US and worldwide including in Israel, Greece, and a tour in Austria. After being diagnosed with hypermobile Ehlers-Danlos Syndrome, Victoria switched gears and is now a Postbac student at Columbia University in New York City where she is pre-med and preparing for a career as a physician.
Links:
https://www.victoriadaylor.com/
https://www.instagram.com/victoria.daylor/
2022-11-1154 minHypermobility Happy Hour56 - Savita Sandhu (Savvy Dietetics) on Diet and Hypermobility (Part 1) Mast Cells & DietOn today’s episode, Savita Sandhu from Savvy Dietetics located in Brisbane, Australia discusses the relationship between hypermobility and our diets. Savita received her Bachelor Degree in Nutrition and Dietetics with Honours at the Queensland University of Technology and underwent postgraduate training with the Australasian College of Nutritional and Environmental Medicine. Savita also has an amazing instagram page at hypermobility.dietitian where she provides information and resources about food and micronutrients for hypermobile people.
https://www.instagram.com/hypermobility.dietitian
https://www.savvydietetics.com.au/
2022-10-2858 minHypermobility Happy Hour55 - Dr. Pradeep Chopra: On Headaches in EDS and their Various Causes (Part 3)This episode is Part 3 in a series of interviews with Dr. Pradeep Chopra. This episode focuses on the types of headaches experienced by people with EDS and hypermobility and how those headaches can be diagnosed and treated.
Dr. Chopra completed an anesthesia residency at Harvard Medical School and went on to complete a fellowship in Pain Management, also from Harvard. Dr. Chopra is double board certified in Pain Management and Anesthesiology by the American Board of Anesthesiology. Currently, Dr. Chopra holds the appointment of Assistant Professor (Clinical) at the Department of Medicine at Brown Medical School as well as an...
2022-10-2629 minHypermobility Happy Hour53 - Dr. Angelina Vera on Hips, Hypermobile Genetics, and MoreOn this episode, Kerry interviews Dr. Angelina Vera, a fellowship trained orthopedic surgeon who specializes in sports medicine, arthroscopy, and the treatment of injuries to the shoulder, hip, knee, and ankle. Her practice is located in the Las Vegas, Summerlin, and Henderson areas of Nevada. She has a particular interest in hip pathology, anatomic variances, and genetics as they relate to dancers and she has a focus on the prevention and management of sports and dance related injuries. Dr. Vera has conducted some very interesting research which she has presented at multiple national and international conferences. She is also the...
2022-10-0756 minHypermobility Happy Hour52- John Ferman of EDS Awareness: EDS is Not All in the HeadOn this episode, John Ferman returns to talk about his recent work with his organization EDS Awareness/Chronic Pain Partners. EDS Awareness/Chronic Pain Partners has tons of great content including free online webinars that are posted to YouTube (one of which has an astounding 50,000 views) so definitely check them out if you haven’t already and are looking to learn more about Ehlers-Danlos and chronic pain. One of the recent topics John has been working on is raising awareness about how EDS is not “all in your head.”
Links:
EDS Awareness site - https://www.chronicpainpartners.com/
EDS is not al...
2022-10-0133 minHypermobility Happy Hour51 - Christie Cox - Her Advocacy Practice & New Book Holding it All Together When You're HypermobileChristie Cox is a patient advocate who was diagnosed with hypermobile Ehlers-Danlos Syndrome after a 17 year quest to find answers. Christie just published a fascinating book called Holding it All Together When You’re Hypermobile: Achieving a Better Life Experience with EDS, POTS, & Joint Instability and she has a patient advocacy practice that offers free initial consultations and other great content on her website.
Christie’s book explores the basics of hypermobile EDS, its common comorbidities, tips on getting diagnosed, coping strategies, lifestyle changes, and tons of other resources on how to get help. Check out her website for more free...
2022-09-301h 18Hypermobility Happy Hour50 - Dr. Pradeep Chopra (Part 2) POTS, MCAS and MorePart 2 in our series of interviews with Dr. Pradeep Chopra, renowned specialist in treating pain and the various co-morbidities and symptoms that occur in people with Ehlers-Danlos Syndrome and other conditions involving chronic pain. This episode centers on mast cell activation syndrome (MCAS) and postural orthostatic tachycardia syndrome (POTS).
www.painri.com
2022-08-211h 35Hypermobility Happy Hour49 - Hannah Ensor (UK) on the HMSA, Stickman Communications, and MoreOn this episode, Kerry interviews Hannah Ensor regarding her work with the Hypermobility Syndromes Association (the HMSA) and Stickman Communications. Hannah is based in the United Kingdom and she worked in the field of Environmental Health for five years before being medically retired at age 28 due to a hypermobility spectrum disorder and postural orthostatic tachycardia syndrome (POTS). Even though Hannah had symptoms of hypermobility throughout her life, she wasn’t diagnosed until she discovered the HMSA and it was the information and support that she received from the HMSA that led her to the right diagnosis and to a course of...
2022-08-061h 45Hypermobility Happy Hour48 - Mitch Martow: Bend or Break Documentary and Life with EDSTrigger Warning: This episode contains discussion of suicidal thoughts and suicide. Please exercise listener discretion and if this episode isn't for you for any reason or if you are listening with children, please skip it, we've got some great new episodes coming out soon. If you are struggling with suicidal thoughts, please seek assistance. You are worthy and deserving of help and help is out there even though it is often very difficult to find. Feel free to email hypermobilityhappyhour@gmail.com and we can help you to find a patient advocate (or just chat or help you to find...
2022-07-221h 07Hypermobility Happy Hour47 - Dr. Jeffrey Boris on Two Decades of Treating POTS and Related ConditionsOn this episode, Dr. Jeffrey Boris, a board-certified pediatric cardiologist and general pediatrician talks about his experience caring for patients with POTS since 2002. He has worked with patients who have multiple other diagnoses alongside their POTS, including joint hypermobility with or without Ehlers-Danlos syndrome, concussions, mast cell activation syndrome, Sjögren syndrome, eosinophilic esophagitis, median arcuate ligament syndrome, and other conditions.
Dr. Boris advocates a creative, multi-pronged approach to helping children get back to school, sports, and their lives. He has published research in acclaimed medical journals to help doctors better understand POTS so more physicians will be available to t...
2022-07-221h 36Hypermobility Happy Hour46 - Dr. Pradeep Chopra: Overview on EDS and Pain (Part 1)On this episode (part 1 in a series), Kerry interviews Dr. Pradeep Chopra who gives an overview regarding treatment of Ehlers-Danlos Syndromes and pain. Dr. Chopra completed an anesthesia residency at Harvard Medical School and went on to complete a fellowship in Pain Management, also from Harvard. Dr. Chopra is double board certified in Pain Management and Anesthesiology by the American Board of Anesthesiology. Currently, Dr. Chopra holds the appointment of Assistant Professor (Clinical) at the Department of Medicine at Brown Medical School as well as an adjunct Professorship of Anesthesiology at Boston University School of Medicine. Dr. Chopra has won...
2022-06-1757 minHypermobility Happy Hour45 - Isobel Knight (UK) on Decades of Work Studying and Writing Books on HypermobilityOn this episode, Kerry interviews Isobel Knight, a writer, researcher and lecturer on hypermobile Ehlers Danlos Syndrome. She was also a practitioner of the Bowen technique--a gentle form of soft tissue therapy from Australia for 17 years. Isobel unfortunately medically retired in 2017.. Isobel is the author of 'A Multidisciplinary Approach to Managing Ehlers-Danlos (Type III) - Hypermobility Syndrome' and she co-wrote, with John Wilks, 'Using the Bowen Technique to Address Complex and Common Conditions.’
Isobel first published the book, 'Hypermobility Syndrome - bending without breaking' that became so successful it was changed into a second edition in 2016, and contains 5 new chapters. Is...
2022-06-111h 13Hypermobility Happy Hour44 - Emily Rich OT on Occupational Therapy for EDS/POTSIn this episode, Emily Rich, OT discusses her practice as an occupational therapist working with patients with EDS, hypermobility conditions, and co-morbidities like POTS. Emily is a practicing occupational therapist, Ph.D. student, and researcher. Her interests lie in chronic conditions (including POTS, EDS, and related hypermobility conditions) and health care advocacy.
She discusses her approaches to treating EDS and POTS, common issues in patients with EDS (like hand pain), and her treatment strategy for these conditions. Emily also discusses her research efforts and her passion for learning and listening to patients to fine-tune her practice and tailor it to...
2022-06-011h 01Hypermobility Happy Hour43 - Libby Hinsley on her New Book on Yoga and HypermobilityOn this episode, Libby Hinsley (physical therapist, yoga therapist, and long time yoga teacher diagnosed with hypermobile EDS) discusses her practice working with hypermobile patients and chronic pain conditions as well as her new book called Yoga for Bendy People: Optimizing the Benefits of Yoga for Hypermobility. The e-book will be released in May 2022, and the paperback will follow in June. Libby has been a physical therapist for over ten years and a yoga teacher for 18 years. Her book is the culmination of countless hours of research and interviews with healthcare professionals, yoga practitioners, and hypermobile patients.
Links:
https://www...
2022-05-1251 minHypermobility Happy Hour42 - Kate Skinner, PT, Discusses Her Practice and PerspectiveOn this episode, Kate Skinner PT discusses her physical therapy practice and her unique perspective as a patient with EDS. Kate has a Doctorate in Physical Therapy and she currently practices as a physical therapist who specializes in the treatment of chronic pain and hypermobility. She has a number of online resources available like her Hypermobility 101 book and programs designed to address hypermobility and issues like chronic neck pain. Kate also offers individual coaching sessions and operates a physical therapy practice in Montana. She offers her perspective on pain education in PT, working with hypermobile children, the state of research...
2022-05-011h 01Hypermobility Happy Hour41 - Lilian Holm (@hypermobilitydoctor) Discusses Her Comprehensive and Unique Model of EDS CareOn this episode, Kerry interviews Lilian Holm (Doctor of Physical Therapy) about her practice which focuses on the treatment of patients with hypermobility conditions including Ehlers-Danlos Syndrome using physical therapy. Dr. Holm utilizes a comprehensive, unique model of care which includes extended private treatment sessions and shares her perspective on a variety of aspects of treating patients with EDS and related conditions including chronic pain and other orthopedic conditions.
2022-04-0952 minHypermobility Happy Hour40 - Research on EDS in Animals: Dr. Heather Gray-Edwards and Dr. Abby McElroyOn this episode, we have returning guest Dr. Abby McElroy who previously was a guest on the Hypermobility Happy Hour discussing EDS in animals. Today, she returns with her principal investigator Dr. Heather Gray-Edwards to discuss the exciting new research they have been working on.
Dr. Gray-Edwards is an assistant professor of Radiology at the University of Massachusetts’ Chan Medical School and is a member of the Horae Gene Therapy Center. Much of her research has been focused on evaluating therapeutic interventions in testing novel Adeno-associated viral vectors and delivery routes using both biochemical and molecular biology techniques, as well as...
2022-03-2436 minHypermobility Happy Hour39 - Dr. Megan Barker (@hypermobilityhealthcoach) and her Physical Therapy/Health Coaching PracticeOn this episode, Dr. Megan Barker of Rhythm Health, LLC discusses her practice treating patients with EDS and HSD using physical therapy and health coaching. Dr. Barker has a Doctor of Physical Therapy degree from The George Washington University where she is a current member of the adjunct faculty at the university’s Doctor of Physical Therapy Program. Dr. Barker is a Board Certified Specialist in Orthopedic Physical Therapy. She is also a Certified Women’s Health Coach through the Integrative Women’s Health Institute. Dr. Barker also has Pilates Training.
Dr. Barker is particularly passionate about treating women with hyperm...
2022-03-041h 03Hypermobility Happy Hour38 - Ryann Mason (chronically_ry), Nurse, Advocate, and Miss Wheelchair Virginia 2020-2021On this episode, Kerry interviews Ryann Mason. Ryann is a nurse, advocate, sex educator, athlete, activist, and Ehlers-Danlos syndrome patient known on instagram as chronically_ry who is involved in a number of projects, many of which involve spreading awareness about the need for increased visibility for disabled persons and better accessibility in the media and in society at large. Ryann was crowned Miss Wheelchair Virginia 2020 and 2021–a role that has allowed her to promote disability education and awareness. She was also recently interviewed by Forbes magazine in an article that discussed her work with Miss America, Camille Schrier.
A Ra...
2022-02-071h 19
Hypermobility Happy Hour36 - Discussing Disjointed: Interview with Dr. Richard Barnum - Psychiatric MisdiagnosesOn this episode of the Hypermobility Happy Hour, Kerry interviews Dr. Richard Barnum. Dr. Barnum is a board certified child and adolescent psychiatrist who directed the Boston Juvenile Court Clinic for more than twenty years. In that role, he conducted psychiatric evaluations of thousands of children and families in the Massachusetts courts and also provided consulting services to the Massachusetts Departments of Mental Health and Youth Services, regarding cases involving complex legal and clinical problems. He has also consulted with the United States Department of Justice Civil Rights Division regarding psychiatric care provided to incarcerated juveniles in other states. He...
2021-10-1656 min
Hypermobility Happy Hour35 - Miss America (Camille Schrier) Discusses Life as a Pharmacy Student with EDSCamille Schrier was diagnosed with classical Ehlers-Danlos as a child and went on to win the title of Miss America. She graduated with honors from Virginia Tech in 2018 with dual Bachelor of Science degrees in Biochemistry and Systems Biology. Camille is currently pursuing a Doctor of Pharmacy degree at Virginia Commonwealth University. In 2019 Camille earned the title Miss Virginia after performing a science experiment (the catalytic decomposition of hydrogen peroxide) as her onstage talent. In December 2019, Camille was named Miss America 2020, again after showcasing her science skills.
Camille has also been featured on national and international media outlets including The...
2021-10-021h 19Hypermobility Happy Hour34 - Hypermobile Horses (and Dogs, and Cats, and More!): Interview with Dr. Abby McElroy, DVMOn today's episode, Nia Clark and Kerry interview Dr. Abby McElroy, Doctor of Veterinary Medicine about EDS in many different animals. Dr. McElroy has an EDS-like syndrome herself and her work focuses on the research and treatment of animals with EDS. Dr. McElroy received her bachelor’s degree in neuroscience from Smith College, her DVM from the Cummings School of Veterinary Medicine at Tufts University, and her Master of Science degree from Michigan State University College of Veterinary Medicine.
Dr. McElroy currently works as a postdoctoral research associate in the Department of Neurosurgery at Rhode Island Hospital, where her research fo...
2020-07-141h 09Hypermobility Happy Hour33 - Esther Gokhale Interview: Primal PostureOn this episode, Kerry talks to Esther Gokhale, founder of the Gokhale Method or “Primal Posture,” a postural awareness technique which has a large following and was first popularized at the beginning of the 2010s with professionals in Silicon Valley, California. Esther is known as the “posture guru of Silicon Valley” and her method has been taught internationally. She published a book called 8 Steps to a Pain-Free Back: Natural Posture Solutions for Pain in the Back, Neck, Shoulder, Hip, Knee, and Foot and she also created a DVD that explains her posture method. The Gokhale Method has been reported upon in the N...
2020-06-051h 16Hypermobility Happy Hour32 - Coping with Coronavirus - Interview with Dr. Eric PhillippiOn this episode of Hypermobility Happy Hour, Kerry and Nia talk about the coronavirus and how it relates to people with hypermobility disorders. We also speak with Dr. Eric Phillippi, physician and owner of Medical Procedures of Wisconsin, about the latest expert advice on coping with Covid-19.
2020-05-171h 05
Hypermobility Happy Hour31 - Karina Sturm InterviewOn this episode of Hypermobility Happy Hour, Kerry interviews Karina Sturm, filmmaker and producer of the documentary We Are Visible which explores many of the challenges faced by people living with hypermobility conditions. Karina also discusses her own experiences with EDS and related conditions.
2020-04-1520 min
Hypermobility Happy Hour24 - Jeannie Di Bon Breathing EpisodeOn this episode, Jeannie DiBon discusses the importance of the breath and takes us through a quick breathing exercise that we can all do at home to bring a bit more ease and calm into our lives. Jeannie is a movement therapist who specializes in working with patients who have Hypermobile Ehlers-Danlos Syndrome and Chronic Pain.
If you have any questions or suggestions for future episode topics, feel free to email us at hypermobilityhappyhour@gmail.com.
2019-11-0120 min