Shows
IDD Health MattersEp 118: Redefining Quality of Life: A Parent's Perspective on Supporting Adults with IDDChristine Clause, a dedicated mother and advocate, shares her profound journey of raising her son with developmental disabilities and her professional role at Neighbors Inc., a nonprofit in New Jersey supporting adults with intellectual and developmental disabilities (IDD). She recounts the challenges she has faced navigating the healthcare system, including a harrowing experience when her son was hospitalized with the flu and nearly died due to medical professionals' assumptions about his quality of life. Christine emphasizes the importance of family members asserting their knowledge and role in medical decision-making, and she highlights how showing a video of her son...
2025-10-2034 min
IDD Health MattersEp 103: Sharon Gomez, Supports and Services For People With IDIn this episode of the IDD Health Matters podcast, Dr. Craig Escudé interviews Sharon Gomez, a passionate advocate and leader in the field of intellectual and developmental disability (IDD) services. Sharon shares her lifelong dedication to supporting individuals with IDD, tracing her journey from youth volunteerism with The Arc to executive leadership roles, including at Evergreen Life Services. She discusses the impact of landmark legal cases like the Gary W. lawsuit on improving community-based care and highlights ongoing challenges in healthcare access for people with complex medical needs. Sharon emphasizes the importance of properly trained healthcare professionals, the vital r...
2025-07-0723 min
IDD Health MattersEp 99: Improving Psychiatric Care for People with IDD | Dr. Mike Cummings on Polypharmacy, START & EmpowermentIn this powerful episode of IDD Health Matters, host Dr. Craig Escudé sits down with Dr. Mike Cummings, Vice Chair of Psychiatry at the University of Buffalo School of Medicine and Medical Director for several psychiatric programs across New York State. Dr. Cummings brings a wealth of experience from leading New York's busiest psychiatric ER to developing innovative programs like START and APEC that provide person-centered psychiatric support for individuals with intellectual and developmental disabilities (IDD). Together, they unpack the challenges of polypharmacy, the importance of understanding behavior as communication, and how to empower families and individuals th...
2025-06-0720 minIDD Health MattersEp 97: Training Nurses for Better IDD Care with Michael SigelmanIn this insightful episode of IDD Health Matters, Dr. Craig Escudé is joined by nurse educator Michael Sigelman, who brings a wealth of experience and passion to improving healthcare practices for people with intellectual and developmental disabilities (IDD). Michael shares how his early experiences shaped his career and how he now plays a crucial role in training registered nurses and direct support professionals across his state. Together, they discuss the importance of structured nurse education, the value of trained medication employees (TMEs), and the essential role of accurate documentation in providing consistent and person-centered care. Michael also e...
2025-05-2419 minIDD Health MattersEp 95: Nursing, Advocacy & Heart: Patty Haberkorn & Deanna Cox on 35+ Years in DD CareOn this episode of IDD Health Matters, Dr. Craig Escudé sits down with two remarkable nurses—Patty Haberkorn and Deanna Cox—at the Illinois Developmental Disabilities Nurses Conference. With a combined four decades of experience supporting people with intellectual and developmental disabilities (IDD), Patty and Deanna share powerful insights into nursing, advocacy, communication, and the often-overlooked emotional rewards of this career path. Patty, who began her journey as a nurse and now serves as Executive Director at Futures Unlimited, and Deanna, a dedicated nurse who found her calling in DD care after working in long-term care, both refle...
2025-05-0521 minIDD Health MattersEp 93: Breaking Healthcare Barriers: Dr. Alice Bacherini on Physician Bias and Disability InclusionIn this episode of IDD Health Matters, Dr. Craig Escudé sits down with Dr. Alice Bacherini, a postdoctoral research fellow at the University of Perugia in Italy, to explore how psychological research is helping dismantle biases in healthcare for people with intellectual and developmental disabilities (IDD). Dr. Bacherini discusses her groundbreaking work developing tools to measure erroneous assumptions and self-efficacy among physicians when treating individuals with IDD. Together, they dive into how clinician attitudes impact health equity, the role of social dominance orientation in perpetuating stereotypes, and why direct interaction and inclusive communication are essential to better care outcomes.
2025-04-2113 minIDD Health MattersEp 91: Empowering Disability Advocacy: Liz Weintraub on Health Equity, Plain Language & Self-AdvocacyIn this powerful episode of IDD Health Matters, Dr. Craig Escudé sits down with renowned disability advocate Liz Weintraub to explore what true health equity looks like for people with intellectual and developmental disabilities (IDD). Liz, a senior policy specialist at the Association of University Centers on Disabilities (AUCD), brings her lived experience and professional expertise to the conversation—sharing insights on advocacy, accessible healthcare, and the importance of plain language in medical settings. Liz discusses AUCD's national impact through 62 university-based centers across the U.S. and territories, her work on Capitol Hill, and key legislative priorities lik...
2025-04-0716 minIDD Health MattersEp 90: From Dentistry to Medicine: A Journey of Compassion with Dr. Ben WarnerIn this inspiring episode of IDD Health Matters, Dr. Craig Escudé is joined by Dr. Ben Warner, a healthcare professional whose unique journey spans from dental practice to medical school—all fueled by a lifelong desire to serve those with the greatest needs. Dr. Warner shares how his early experiences volunteering in hospitals sparked a deep commitment to healthcare and how that commitment evolved from dentistry to medicine. His story is one of resilience, family support, and a calling to provide equitable, compassionate care for individuals with intellectual and developmental disabilities (IDD). Now a board mem...
2025-03-3114 minIDD Health MattersEp 89: Promoting Self-Determination and Mental Health Equity with Richard ChapmanIn this episode of IDD Health Matters, Dr. Craig Escudé sits down with Richard Chapman, Assistant Director for Disability Leadership at the Partnership for People with Disabilities in Richmond, Virginia. With a background in mental health counseling and a deep commitment to advancing equity, Richard shares his journey and current work at the intersection of mental health and self-determination for people with intellectual and developmental disabilities (IDD). Richard dives into how increasing self-determination—the ability for individuals to make their own life choices—can lead to better mental health outcomes and an improved quality of life. He discu...
2025-03-2418 minIDD Health MattersEp 84: Telling the Stories That Matter with John SilfiesIn this episode of the IDD Health Matters Podcast, Dr. Craig Escudé sits down with John Silfies, keynote speaker at the Kansas InterHab Conference and founder of Silfies Media, a company dedicated to making the developmental disabilities (DD) field famous. John shares his journey from Direct Support Professional (DSP) to marketing expert, emphasizing the power of storytelling in raising awareness, attracting new professionals, and celebrating the lives of individuals with disabilities. He discusses how his media company helps provider agencies, government organizations, and local communities by crafting impactful videos and social media campaigns that highlight the real s...
2025-02-1715 min
Friends For Life PodcastTelling the Stories That Matter with John SilfiesIn this episode of the IDD Health Matters Podcast, Dr. Craig Escudé sits down with John Silfies, keynote speaker at the Kansas InterHab Conference and founder of Silfies Media, a company dedicated to making the developmental disabilities (DD) field famous. John shares his journey from Direct Support Professional (DSP) to marketing expert, emphasizing the power of storytelling in raising awareness, attracting new professionals, and celebrating the lives of individuals with disabilities. He discusses how his media company helps provider agencies, government organizations, and local communities by crafting impactful videos and social media campaigns that highlight the real s...
2025-02-1715 minIDD Health MattersEp 83: Bridging Ministry and Disability Support: A Conversation with Johnathon CrumleyOn this episode of IDD Health Matters, Dr. Craig Escudé sits down with Johnathon Crumley, Chief Operations Officer of IntellectAbility, to discuss his unexpected journey into the field of intellectual and developmental disability (IDD) support. Originally planning a career as a military chaplain, Jonathan's path shifted when he discovered his passion for improving services and quality of life for individuals with IDD. In this insightful conversation, Johnathon shares how person-centered thinking, proactive healthcare approaches, and celebrating small wins can transform support systems. He also dives into the critical work IntellectAbility is doing to provide tools, training, and resources that e...
2025-02-1024 minFriends For Life PodcastBridging Ministry and Disability Support: A Conversation with Johnathon CrumleyOn this episode of IDD Health Matters, Dr. Craig Escudé sits down with Johnathon Crumley, Chief Operations Officer of IntellectAbility, to discuss his unexpected journey into the field of intellectual and developmental disability (IDD) support. Originally planning a career as a military chaplain, Jonathan's path shifted when he discovered his passion for improving services and quality of life for individuals with IDD. In this insightful conversation, Johnathon shares how person-centered thinking, proactive healthcare approaches, and celebrating small wins can transform support systems. He also dives into the critical work IntellectAbility is doing to provide tools, training, and resources that e...
2025-02-1024 minIDD Health MattersEp 82: A Lifetime in IDD Nursing: Sharon Parker Love on Crisis Prevention & Quality CareIn this episode of IDD Health Matters, Dr. Craig Escudé welcomes Sharon Parker Love, a nurse with 56 years of experience, to discuss her journey in the field of intellectual and developmental disabilities (IDD) nursing. Recorded at the Illinois Developmental Disabilities Nurses Association Conference, Sharon shares her remarkable career—from starting with a state grant program to dedicating over three decades to Trinity Services, where she has helped individuals with dual diagnoses and complex medical needs. Sharon dives into her work in crisis prevention, recounting heartbreaking and inspiring stories of individuals in need, including an individual who spent eig...
2025-02-0318 minFriends For Life PodcastBridging Gaps in IDD Healthcare: Insights from Rory Sheehan and Professor Angela HassiotisWelcome to another insightful episode of IDD Health Matters, hosted by Craig Escudé, MD, FAAFP, FAADM, president of IntellectAbility. In this episode, we explore pioneering approaches to healthcare for individuals with intellectual and developmental disabilities. Join us as Dr. Escude welcomes two distinguished guests from the international arena: Professor Angela Hassiotis from University College London and Dr. Rory Sheehan from King's College London. Professor Hassiotis, a seasoned consultant psychiatrist in the NHS, delves into her groundbreaking research and clinical work aimed at personalizing interventions for aggressive challenging behaviors in adults with IDD. She shares the promising beginnings o...
2025-01-2728 minIDD Health MattersEp 81: Bridging Gaps in IDD Healthcare: Insights from Rory Sheehan and Professor Angela HassiotisWelcome to another insightful episode of IDD Health Matters, hosted by Craig Escudé, MD, FAAFP, FAADM, president of IntellectAbility. In this episode, we explore pioneering approaches to healthcare for individuals with intellectual and developmental disabilities. Join us as Dr. Escude welcomes two distinguished guests from the international arena: Professor Angela Hassiotis from University College London and Dr. Rory Sheehan from King's College London. Professor Hassiotis, a seasoned consultant psychiatrist in the NHS, delves into her groundbreaking research and clinical work aimed at personalizing interventions for aggressive challenging behaviors in adults with IDD. She shares the promising beginnings o...
2025-01-2728 minFriends For Life PodcastImproving Health Equity for Individuals with IDD: Dr. Brandi KellyIn this insightful episode of IDD Health Matters, hosted by Craig Escudé, MD, FAAFP, FAADM, president of IntellectAbility, welcomes Dr. Brandi Kelly, the Clinical Director for Louisiana's Developmental Disability Office. Dr. Kelly discusses her pivotal role in overseeing the state's virtual Resource Center, focusing on enhancing community and provider skills to better serve individuals with co-occurring intellectual, developmental, behavioral, and complex medical needs. Highlighting the unique challenges and innovative solutions in Louisiana, Dr. Kelly shares her personal connection to the field through her sister's experiences and emphasizes the importance of wellness, relationships, and clear communication in healthcare. Join us a...
2025-01-2022 minIDD Health MattersEp 80: Improving Health Equity for Individuals with IDD: Dr. Brandi KellyIn this insightful episode of IDD Health Matters, hosted by Craig Escudé, MD, FAAFP, FAADM, president of IntellectAbility, welcomes Dr. Brandi Kelly, the Clinical Director for Louisiana's Developmental Disability Office. Dr. Kelly discusses her pivotal role in overseeing the state's virtual Resource Center, focusing on enhancing community and provider skills to better serve individuals with co-occurring intellectual, developmental, behavioral, and complex medical needs. Highlighting the unique challenges and innovative solutions in Louisiana, Dr. Kelly shares her personal connection to the field through her sister's experiences and emphasizes the importance of wellness, relationships, and clear communication in healthcare. Join us a...
2025-01-2022 minIDD Health MattersEp 79: Autism Advocacy Through Magic with Cody ClarkWelcome to another enlightening episode of IDD Health Matters, hosted by Craig Escudé, MD, FAAFP, FAADM, president of IntellectAbility, where we delve into health, wellness, and equity for individuals with intellectual and developmental disabilities. In this episode, we are joined by the talented Cody Clark, a magician and autistic self-advocate from Louisville, Kentucky. From a magical beginning in Gulf Shores, Alabama, Cody shares how a family vacation and an inspiring stage moment sparked his journey into the world of magic at the age of eleven. This episode isn't just about tricks; it's about transformation and advocacy. Cody discusses how e...
2025-01-1320 minFriends For Life PodcastAutism Advocacy Through Magic with Cody ClarkWelcome to another enlightening episode of IDD Health Matters, hosted by Craig Escudé, MD, FAAFP, FAADM, president of IntellectAbility, where we delve into health, wellness, and equity for individuals with intellectual and developmental disabilities. In this episode, we are joined by the talented Cody Clark, a magician and autistic self-advocate from Louisville, Kentucky. From a magical beginning in Gulf Shores, Alabama, Cody shares how a family vacation and an inspiring stage moment sparked his journey into the world of magic at the age of eleven. This episode isn't just about tricks; it's about transformation and advocacy. Cody discusses how e...
2025-01-1320 minIDD Health MattersEp 78: START Services for IDD: Crisis Prevention and Mental Health Support with Robert ScholzJoin Dr. Craig Escude in this enlightening episode of IDD Health Matters as he sits down with Robert Scholz from the University of New Hampshire's Institute on Disability. Robert shares in-depth insights into the National Center for START Services, a pioneering program designed to provide mental health support and crisis prevention for individuals with intellectual and developmental disabilities (IDD). Starting in the late 1980s in Massachusetts, START has expanded nationwide, aiming to address healthcare disparities and improve access to mental health services for the IDD community. Listen as Robert discusses the program's origins, its evolution, and the real-world impact...
2025-01-0616 minIDD Health MattersEp 77: Revolutionizing IDD Care: Aging, Dementia, and Inclusion Insights with Cathy ServiceIn this compelling episode of IDD Health Matters, Dr. Craig Escudé sits down with Cathy Service, a nurse practitioner with decades of experience in the field of intellectual and developmental disabilities (IDD). Cathy shares her inspiring journey, from her early days working in a state institution to becoming a leader in dementia care for individuals with IDD. Listen as Cathy discusses the challenges and triumphs of transitioning from institutional care to community-based supports, the importance of education and training for healthcare providers, and her pioneering work in dementia care. She emphasizes the need to honor each individual's u...
2024-12-3026 minIDD Health MattersEp 76: Enhancing Health and Wellness for Individuals with IDD with UC HealthIn this inspiring episode of the IDD Health Matters Podcast, Dr. Craig Escude is joined by three dedicated occupational therapists from UC Health at the University of Colorado. Bree Williams, Kelly Corley, Margaret Ries share their journeys into the field of occupational therapy and their specific involvement with individuals with intellectual and developmental disabilities (IDD). They delve into the details of the Sunflower Program, an initiative they've pioneered to enhance the hospital experience for patients with IDD. The therapists discuss innovative methods they employ, such as holistic evaluations and tailored environmental adjustments, to ensure comprehensive care. This conversation not...
2024-12-2323 minIDD Health MattersEp 75: Empowering DSPs: Credentialing, Leadership, and Advocacy with Bethany Toledo & Becky Watson of OADSPIn this episode of IDD Health Matters, Dr. Craig Escudé is joined by Bethany Toledo and Becky Watson from the Ohio Alliance of Direct Support Professionals (OADSP). Together, they discuss the vital role of Direct Support Professionals (DSPs) in supporting individuals with intellectual and developmental disabilities. Bethany and Becky share OADSP's mission to educate, elevate, and empower DSPs through innovative programs like DSP University, which introduces high school students to the profession via education and hands-on experience. Explore the credentialing pathways, leadership development initiatives, and advocacy efforts that are transforming the DSP field. From state-wide programs like t...
2024-12-1616 minIDD Health MattersEp 74: Transforming IDD Healthcare: Dr. David Fray on Collaborative Care, Global Impact, and InclusionIn this episode of the IDD Health Matters Podcast, host Dr. Craig Escudé sits down with Dr. David Fray, a trailblazer in dentistry and healthcare for individuals with intellectual and developmental disabilities (IDD). Dr. Fray shares his inspiring journey, from growing up in a disability-friendly household to a career that has spanned private practice, teaching, global health initiatives, and leadership roles in state and international healthcare systems. Together, they discuss the importance of collaborative care, the need for person-centered and lifespan-focused health planning, and the transformative power of cultural empathy in supporting individuals with IDD. Dr. Fray a...
2024-12-0919 minIDD Health MattersEp 73: John Dickerson: Innovator in IDD Advocacy and Founder of Quillo | Inspiring Positive ChangeIn this special episode of IDD Health Matters, Dr. Craig Escudé is joined by John Dickerson, a lifelong advocate and innovator in the field of supports and services for individuals with intellectual and developmental disabilities (IDD). Recorded live at the NASDDDS conference in Portland, Oregon, John shares his inspiring journey that began in 1973 with The Arc, his commitment to empowering individuals with IDD, and the pivotal moments that shaped his career. John discusses the creation of Quillo, a transformative platform designed to inspire and educate families, individuals, and staff through microlearning. Learn how Quillo is addressing key c...
2024-12-0224 minIDD Health MattersEp 72: Empowering Lives: Insights from DSP Kelley Shepherd on Advocacy and Personal GrowthIn this episode of the IDD Health Matters Podcast, Dr. Craig Escudé welcomes Kelley Shepherd, a dedicated Direct Support Professional (DSP) with over 15 years of experience. Kelley shares her perspective on what it means to truly support individuals with intellectual and developmental disabilities (IDD) in living their best lives. From advocating for dignity of risk to respecting personal choices and supporting meaningful growth, Kelley emphasizes the importance of seeing every individual's unique potential. She shares inspiring stories of empowerment, such as helping individuals explore new experiences and advocating for person-centered care during healthcare visits. Kelley a...
2024-11-2517 minIDD Health MattersEp 71: Deb Davis on Person-Centered Care and Advocacy for Individuals with IDDIn this heartfelt episode of IDD Health Matters, Dr. Craig Escude sits down with Deb Davis, a dedicated nurse and advocate for individuals with intellectual and developmental disabilities (IDD). Deb shares her inspiring journey into the field of IDD support, reflecting on how she found her calling and became a champion for person-centered care. Deb discusses the challenges of working in this field, including her early experiences, the importance of person-centered thinking, and how she overcame feelings of being unprepared to become an expert through relentless learning and certification with the Developmental Disabilities Nurses Association (DDNA). She...
2024-11-1820 minIDD Health MattersEp 70: Julie Foster Hagan on Advancing Health Equity for DisabilitiesIn this episode of the IDD Health Matters Podcast, host Dr. Craig Escudé is joined by Julie Foster Hagan, Louisiana's State Director of Developmental Disability Services. Recorded live from the NASDDDS conference, Dr. Escudé and Julie discuss the vital work being done to enhance health equity and employment opportunities for individuals with intellectual and developmental disabilities. Julie shares insights into Louisiana's health equity initiatives, including a strategic focus on data collection and the role of Health Equity Action Teams within the state's Department of Health. She highlights the impact of the American Rescue Plan Act, enabling projects focused on im...
2024-11-1119 minIDD Health MattersEp 69: Mary Brogan on Advancing Developmental Disability Services and Medicaid Waiver Programs in HawaiiIn this episode of IDD Health Matters, Dr. Craig Escudé welcomes Mary Brogan, the state director for developmental disability services in Hawaii. Mary shares her extensive experience managing programs that impact individuals with intellectual and developmental disabilities (IDD), including the oversight of the 1915(c) Medicaid Waiver and neurotrauma services. She highlights the unique challenges of providing dental care and the importance of accessible health services tailored to meet the needs of people with IDD in Hawaii. Mary and Dr. Escudé dive into the critical importance of person-centered practices and how a preventative, systematic approach to healthcare can va...
2024-11-0423 minIDD Health MattersEp 68: Elevating Direct Support: John Raffaele on Professional Development for DSPsIn this episode of the IDD Health Matters Podcast, Dr. Craig Escudé is joined by John Raffaele, Director of Educational Services at the National Alliance for Direct Support Professionals (NADSP), for a candid conversation about the evolving role of direct support professionals (DSPs) and their impact on the lives of people with intellectual and developmental disabilities (IDD). Recorded live from the NADSP Annual Conference in Pittsburgh, this episode dives deep into the unique challenges and responsibilities DSPs face and how the industry is working toward elevating their role from entry-level caretakers to respected professionals. John sheds light on NADSP's m...
2024-10-2819 minIDD Health MattersEP 67: Valerie Bradley on Deinstitutionalization, IDD Community Integration, and Workforce SolutionsIn this episode of the IDD Health Matters Podcast, host Dr. Craig Escudé welcomes Valerie Bradley, a pioneer in the intellectual and developmental disabilities (IDD) field. Valerie is the president and co-founder of the Human Services Research Institute (HSRI), an organization dedicated to advancing policies and practices in human services. With over four decades of experience, Valerie has been at the forefront of deinstitutionalization efforts, working to move individuals with IDD from large institutions into more community-based, supportive environments. Her expertise and passion for improving the quality of life for individuals with disabilities have earned her a significant reputation i...
2024-10-2119 minIDD Health MattersEp 66: Improving IDD Healthcare: Valerie Chadwick on Advocacy, Inclusive Training, and Future GoalsIn this episode of IDD Health Matters, host Dr. Craig Escudé is joined by Valerie Chadwick, the Health Advocacy Director at The Arc of Philadelphia. Valerie shares her journey into the field of healthcare for individuals with intellectual and developmental disabilities (IDD), highlighting her initial hesitance and eventual drive to become more engaged with this underserved population. Valerie talks about her role at The Arc, where she oversees a program that helps medical and health students interact with individuals with disabilities, fostering understanding and competence in providing inclusive care. Together, they discuss the importance of training healthcare p...
2024-10-1420 minIDD Health MattersEp 65: Dr. Kelly Nye-Lengerman on Disability Inclusion & Health EquityJoin Dr. Craig Escudé on IDD Health Matters as he welcomes Dr. Kelly Nye-Lengerman, a seasoned social worker and the Director at the University of New Hampshire's Institute on Disability. In this episode, Dr. Nye-Lengerman delves into her work at the institute, focusing on increasing inclusion and belonging across the lifespan and experiences of disability. With a rich background in both direct support and academic leadership, she offers a unique perspective on the intersection of intellectual disability and mental health, emphasizing the importance of community-based support systems and professional education to improve the quality of life for people with d...
2024-10-0723 minIDD Health MattersEp 64: Improving Healthcare for People with IDD: Dr. Michele Cantanzerite on Integrated CareIn this episode of IDD Health Matters, Dr. Craig Escudé is joined by Dr. Michele Cantanzerite, Chief Medical Officer at Achievable Health, a federally qualified health center in Culver City, California. Together, they dive into Michele's journey into the field of healthcare for individuals with intellectual and developmental disabilities (IDD). From a chance start to now leading a healthcare facility dedicated to improving the lives of individuals with IDD, Michelle reflects on the challenges and rewards of working in this specialized field, where communication and humility play crucial roles in delivering patient-centered care. Michele highlights the unique mission of A...
2024-09-3019 minIDD Health MattersEp 63: Innovative Healthcare for Individuals with IDD: Dr. Toni Benton on Collaborative CareIn this episode of IDD Health Matters, Dr. Craig Escude is joined by Dr. Toni Benton, a professor and medical director at the University of New Mexico's Family Medicine department. Together, they dive into the complexities of healthcare for individuals with intellectual and developmental disabilities. Dr. Benton shares insights about her work with the Transdisciplinary Evaluation and Support (TES) Clinic, a program that's been providing innovative, community-based care for over 30 years. Dr. Benton explains how her team, which includes medical professionals, social workers, and various specialists, provides comprehensive evaluations for individuals across New Mexico. The TES Clinic...
2024-09-2319 minIDD Health MattersEp 62: Transforming IDD Care: Ann Hardiman on Deinstitutionalization, Healthcare & Leadership ChallengesIn this episode of *IDD Health Matters*, Dr. Craig Escudé welcomes Ann Hardiman, Chief Innovation Officer at the New York Alliance for Inclusion and Innovation. Ann shares her journey into the field of intellectual and developmental disabilities (IDD), which was shaped by personal experiences with mental health in her family. The discussion begins with Ann's involvement during the early days of deinstitutionalization, when people with IDD were transitioning from institutional settings to community-based living. Ann reflects on the significant improvements in quality of life that resulted from this movement, as well as the challenges that persist, particularly in the r...
2024-09-1623 minIDD Health MattersEp 61: Dr. Carl Tyler on Improving Healthcare for Individuals with Intellectual and Developmental DisabilitiesDr. Carl Tyler is a leading figure in the field of healthcare for individuals with intellectual and developmental disabilities (IDD). He is the current president of the American Academy of Developmental Medicine and Dentistry (AADMD), an organization dedicated to improving healthcare for people with IDD through education, advocacy, and policy efforts. Dr. Tyler is also a professor of family medicine at the Cleveland Clinic, where he plays a key role in training healthcare providers, including residents, on how to care for individuals with IDD. His career began during the deinstitutionalization movement in Ohio, and over time, he...
2024-09-0929 minIDD Health MattersEp 60: Enhancing Health Equity in IDD Care: Insights from Pharmacy Leaders Nanette Wrobel & Jessica JacobsWelcome to another insightful episode of the IDD Health Matters Podcast with Dr. Craig Escude. In this episode, Dr. Escude is joined by two remarkable guests, Nanette Wrobel and Jessica Jacobs from Tarrytown Expocare Pharmacy, a leading provider of pharmacy services for individuals with intellectual and developmental disabilities (IDD). Nanette, a seasoned pharmacist with nearly 40 years of experience, and Jessica, a pharmacy technician with a strong background in mental health and IDD, share their unique journeys into the IDD field. They discuss the critical role that specialized pharmacy services play in supporting individuals with IDD, emphasizing the...
2024-09-0228 minIDD Health MattersEp 59: Career Opportunities and Health Equity Insights with Catherine ThibedeauJoin Dr. Craig Escude in this insightful episode of IDD Health Matters, recorded live from the ANCOR conference in Chicago. In this episode, Dr. Escude welcomes Catherine Thibedeau, who shares her remarkable journey from entering the field of supports and services for people with intellectual and developmental disabilities (IDD) by necessity, to becoming the executive director of Independence Advocates of Maine. Catherine discusses the array of services her agency provides and highlights her dual role in influencing policy and professional development through state and national provider networks. Catherine's story illustrates the career opportunities within the IDD service...
2024-08-2618 minIDD Health MattersEp 58: Art Dykstra's Journey in IDD Support and the Power of Interdisciplinary Care In this episode of IDD Health Matters, Dr. Craig Escudé sits down with Art Dykstra, a veteran in the field of intellectual and developmental disabilities (IDD). Art, who currently serves as the director of the Trinity Foundation and has previously led Trinity Services as CEO, shares his inspiring journey from an unexpected start in the IDD field to becoming a pivotal figure in providing support and resources for individuals with disabilities across Illinois. Art's story begins with a simple job posting that led him to work with a young man with autism, a transformative experience that steered h...
2024-08-1921 minIDD Health MattersEp 57: Understanding Trauma-Informed Care for IDD: Insights from Karyn Harvey PhDIn this insightful episode of the IDD Health Matters Podcast, Dr. Craig Escude sits down with Karyn Harvey, a passionate advocate for trauma-informed care in the field of intellectual and developmental disabilities (IDD). Recorded live from the ANCOR conference, Karyn shares her deep understanding of the behavioral challenges often faced by individuals with IDD, revealing how these behaviors are frequently symptoms of unrecognized trauma, such as post-traumatic stress disorder (PTSD). Karyn discusses the critical need for access to therapeutic support for those with IDD, emphasizing the profound impact of trauma on their mental health. She delves into...
2024-08-1221 minIDD Health MattersEp 56: Integrated Care & Advocacy with Meera Gandhi at Kramer Davis HealthIn this episode of the IDD Health Matters Podcast, Dr. Craig Escude sits down with Meera Gandhi, the dedicated Clinic Director at Kramer Davis Health Clinic in Nashville. Meera shares her inspiring journey, from coaching Special Olympics athletes in California to becoming a passionate advocate and leader in healthcare for people with intellectual and developmental disabilities (IDD). She discusses how her early experiences shaped her career and led her to Kramer Davis Health, where she now plays a pivotal role in providing comprehensive care. Dr. Escude and Meera delve into the unique, holistic approach of Kramer Davis...
2024-08-0521 minIDD Health MattersEp 55: Unlocking Health Equity: Dr. Steven Merahn on Transformative Care in the IDD SpaceIn this insightful episode of the IDD Health Matters Podcast, hosted by Dr. Craig Escude, we welcome Dr. Steven Merahn, Medical Director at Partnership Solutions, to discuss the crucial aspects of healthcare and support services for people with intellectual and developmental disabilities (IDD). Dr. Merahn shares his journey from medical school at Albert Einstein College of Medicine to his current role, highlighting the pivotal moments that shaped his dedication to this field. Dr. Merahn delves into the significance of understanding diversity of ability rather than viewing it as a disability, stressing the importance of adapting environments to...
2024-07-2925 minIDD Health MattersEp 54: Innovative Approaches to IDD Health with Nurse Natalie Symons from Milestone HCQU WestJoin Dr. Craig Escude in this insightful episode of IDD Health Matters, where we explore health, wellness, and health equity for individuals with intellectual and developmental disabilities (IDD). Our special guest, Natalie Symons, a dedicated registered nurse and the director of the Milestone Health Care Quality Unit (HCQU) in Western Pennsylvania, shares her extensive experience and innovative approaches to supporting individuals with IDD. In this episode, Natalie discusses her role in providing training and technical assistance to agencies across nine counties in Pennsylvania. She highlights the critical work her team does, including offering over 250 medical and behavioral...
2024-07-2227 min
Exploring Different BrainsTraining Doctors in Neurodivergent Healthcare, with Dr. Craig Escudé | EDB 326Dr. Craig Escudé discusses the importance of training doctors to care for the IDD and neurodivergent communities.
Dr. Craig Escudé is a board-certified Fellow of the American Academy of Family Physicians and the American Academy of Developmental Medicine with over 20 years of clinical experience providing medical care for people with intellectual and developmental disabilities and complex medical conditions. He is the president of IntellectAbility, the mission of which is to “…provide tools and training to those who support people with vulnerabilities, helping them replace risk with health and wellness.”
Dr. Escudé’s pursuit of educating clinicians led him to create the Curricu...
2024-07-2027 minIDD Health MattersEp 53: Unlocking Health Equity: Expert Insights with Nurse Consultant Terry BrodaWelcome to another episode of the IDD Health Matters Podcast with Dr. Craig Escudé. In this episode, Dr. Escudé is joined by Terry Broda, a seasoned nurse consultant with over 30 years of experience in the field of intellectual and developmental disabilities (IDD). Terry shares her unique journey into the field, which began unexpectedly and evolved into a lifelong passion. Together, they delve into critical topics such as health equity, the importance of understanding medical issues like constipation and seizures, and the vital role of proper diagnosis in improving the quality of life for individuals with IDD. Terry's ex...
2024-07-1516 minIDD Health MattersEp 52: Empowering People with Disabilities: Insights & Innovations: Elizabeth Martin of Living Resources In this episode of IDD Health Matters, Dr. Craig Escude is joined by Elizabeth Martin, the CEO of Living Resources, recorded live at the New York Alliance for Inclusion and Innovation annual conference. Elizabeth shares her experiences and insights since joining Living Resources in September 2020, navigating the challenges of the pandemic and her transition from working with physical disabilities to intellectual and developmental disabilities (IDD). Elizabeth details the wide array of services offered by Living Resources, an organization with nearly 50 years of history in empowering individuals with disabilities. She highlights their residential programs, day programs, community habilitation...
2024-07-0818 minIDD Health MattersEp 51: Unlocking Disability Rights: Insights on Workplace Accommodations with Federal Employment Lawyer Eric PinesWelcome to another episode of the IDD Health Matters Podcast, hosted by Dr. Craig Escude. In this episode, Dr. Escude talks with Eric Pines, Esq., a nationally recognized federal employment lawyer, mediator, and attorney business coach. Eric discusses his work in advocating for reasonable accommodations for federal employees, particularly veterans, and those with disabilities. Eric Pines provides insights into his legal practice, emphasizing the importance of understanding and asserting one's rights under laws such as the Americans with Disabilities Act (ADA) and the Rehabilitation Act. He shares real-world examples, including helping veterans with PTSD secure work-from-home arrangements...
2024-07-0124 minIDD Health MattersEp 50: Revolutionizing IDD Healthcare: Dr. Matt Holder on Transformative Patient-Centered Care at Kramer Davis HealthWelcome to "IDD Health Matters," the podcast dedicated to exploring health, wellness, and health equity for individuals with intellectual and developmental disabilities. Hosted by Dr. Craig Escude, each episode delves into the unique challenges and innovative solutions within this specialized field of healthcare. In this episode, Dr. Escude takes a road trip to Hermitage, just outside of Nashville, to visit Dr. Matt Holder, the driving force behind Kramer Davis Health. Dr. Holder shares his journey from the Lee Specialty Clinic in Louisville, Kentucky, to establishing Kramer Davis Health, a pioneering transdisciplinary outpatient healthcare center dedicated to adults...
2024-06-2442 minIDD Health MattersEp 49: An Insightful Discussion with Ernest "Ernie" McNutt on Health Equity for IDDWelcome to another insightful episode of the IDD Health Matters Podcast, hosted by Dr. Craig Escude. In this episode, we delve into the critical aspects of health, wellness, and equity for individuals with intellectual and developmental disabilities (IDD). Our special guest, Ernest "Ernie" McNutt, joins us from the New York Alliance for Inclusion and Innovation, where he plays a pivotal role in care coordination for people with IDD. Ernie shares his journey into the field, which began during his college days working in a group home. He discusses the evolution of care coordination organizations (CCOs) in New...
2024-06-1720 minIDD Health MattersEp 48: Empowering Neurodiversity: Dr. Harold Reitman Discusses Health Equity Join Dr. Craig Escude on this enlightening episode of "ID Health Matters," where we delve into health, wellness, and health equity for individuals with intellectual and developmental disabilities. In today's episode, we are thrilled to welcome Dr. Harold Reitman, affectionately known as "Hackie," joining us from Fort Lauderdale, Florida. Dr. Reitman shares his inspiring journey from a young aspiring doctor in Jersey City to becoming a renowned orthopedic surgeon and an advocate for neurodiversity. Listen as Hackie recounts his unique path through medical school, his unexpected venture into the world of boxing as a Golden Gloves champion...
2024-06-1035 minIDD Health MattersEp 47: Improving Health Equity for Individuals with IDD: Insights from Lorene Reagan Welcome to the IDD Health Matters Podcast with Dr. Craig Escude, where we explore health, wellness, and health equity for individuals with intellectual and developmental disabilities (IDD). In this episode, Dr. Escude hosts Lorene Reagan, a seasoned professional with 40 years of experience in IDD nursing. Lorene shares her journey into the field, which began by chance in 1984 when she took a job at a school for children with IDD. She describes her diverse career, from clinical nursing and working in group homes to serving as the Nurse Coordinator for the New Hampshire Department of Health and Human...
2024-06-0319 minIDD Health MattersEp 46: Revolutionizing Adaptive Health: TruFit's Innovative Solutions for Disabilities with Adam WhiteIn this episode of IDD Health Matters, host Dr. Craig Escude is joined by Adam White from TruFit, a company dedicated to creating adaptive health and wellness solutions for individuals with intellectual, developmental, and physical disabilities. Adam discusses the innovative TruFit app, which customizes exercise programs and activities based on individual needs, offering a holistic approach to health that includes physical fitness, emotional wellness, life skills training, and nutrition. The conversation covers TruFit's pilot programs in schools and collaborations with nonprofit organizations, assisted living homes, and therapy providers, aiming to enhance the overall well-being of people with disabilities. Adam...
2024-05-2722 minIDD Health MattersEp 45: Expanding Horizons in Autism Support: A Conversation with Patrick PaulIn this engaging episode of IDD Health Matters, Dr. Craig Escude welcomes Patrick Paul, a dynamic leader in the field of intellectual and developmental disabilities, at the New York Alliance for Inclusion and Innovation conference. Patrick, the seasoned Executive Director/CEO of Anderson Center for Autism, and shares his comprehensive journey from being a CPA conducting audits for the organization to leading it. He delves into the challenges and successes faced by those with autism, particularly around accessing healthcare and the risk of diagnostic overshadowing—a critical issue highlighted by a recent Joint Commission alert. Throughout the discussion, Patrick ou...
2024-05-2020 minIDD Health MattersEp 44: Enhancing Dental Care for Individuals with IDD: Elizabeth Thompson & Meelin D. Chin Kit-WellsIn this engaging episode of "IDD Health Matters," Dr. Craig Escude, broadcasting from the American Academy of Developmental Medicine and Dentistry conference in Denver, Colorado, delves into the innovative integration of dental and occupational therapy for patients with intellectual and developmental disabilities. His guests, Dr. Meelin D. Chin Kit-Wells DDS, M.Ed., a pediatric dentist, and Elizabeth Thompson, an occupational therapist, share their pioneering approach to specialized dental care. Dr. Wells highlights the unique setup of their practice, which incorporates a full-time occupational therapist to enhance patient care. This collaboration has proven essential in understanding and meeting...
2024-05-1316 minIDD Health MattersEP 43: The Burden and Impact of Tardive Dyskinesia (TD) in People with IDD with Dr. Sharon Cahoon-MetzgerWelcome to another enlightening episode of IDD Health Matters, where we delve into crucial health topics for individuals with intellectual and developmental disabilities. In today's episode, sponsored by Neurocrine Biosciences, we shed light on the often overlooked issue of Tardive Dyskinesia (TD) in people with IDD. Join Dr. Craig Escude as he welcomes Dr. Sharon Cahoon-Metzger, an expert in the field, to explore the burden and impact of TD. Dr. Cahoon-Metzger expertly guides us through the complexities of TD, describing it as a condition characterized by abnormal involuntary movements resulting from prolonged use of certain medications. She...
2024-05-0620 minIDD Health MattersEp 42: Transforming Care: Andrew Kelly on Integrating Technology in Health Services for Individuals with IDD In this episode of IDD Health Matters, Dr. Craig Escude welcomes Andrew Kelly to discuss health services for individuals with intellectual and developmental disabilities (IDD). With a background in healthcare insurance and pharmacy management, Kelly shares his unintentional but impactful journey into the IDD field. Initially joining a pharmacy owned by a large agency, he moved through various roles that emphasized the importance of accessible and effective medication management for IDD individuals. His career progression led him to a technology-based company, where he currently focuses on improving documentation and operational efficiencies through electronic health records and other tech solutions.
2024-04-2918 minIDD Health MattersEp 41: Integrative Healthcare Approaches for Intellectual and Developmental Disabilities: Expert Insights from Dr. Jennifer Lecomte and Dr. Wendy AitaIn this enlightening episode of IDD Health Matters, Dr. Craig Escude engages with two specialists, Dr. Jennifer Lecomte and Dr. Wendy Aita, who are making significant strides in healthcare for individuals with intellectual and developmental disabilities. The discussion centers on their innovative practice in Southern New Jersey, which uniquely integrates primary medical care with behavioral health services. Key Discussion Points: Interdisciplinary Care: Dr. Jennifer Lecomte, a med-peds physician, outlines her practice's approach to providing comprehensive care for patients with both intellectual disabilities and mental health conditions. This includes embedded behavioral health within the primary care...
2024-04-2230 minIDD Health MattersEp 40: Empowering IDD Advocacy: Lisa Burck on Supported Decision-Making and Disability Services In this enlightening episode of IDD Health Matters, host Dr. Craig Escude is joined by Lisa Burck from The Arc of Mississippi. With decades of experience in the field of intellectual and developmental disabilities (IDD), Lisa shares her profound insights into the dynamic and responsive nature of advocacy work. The conversation delves into the multifaceted roles that The Arc plays in Mississippi, from handling abuse investigations and training direct support professionals, to innovative programs like their Archangel Christmas initiative and addiction programs tailored for community integration challenges. Lisa highlights the transformative power of supported decision-making—a dignified al...
2024-04-1521 minIDD Health MattersEp 39: Empowering DSPs: Insights from NADSP's Joe MacBethIn this insightful episode of the IDD Health Matters Podcast, host Dr. Craig Escude welcomes Joe MacBeth, President and CEO of the National Alliance for Direct Support Professionals (NADSP), to discuss the crucial role and challenges of direct support professionals (DSPs) in supporting individuals with intellectual and developmental disabilities. Joe shares the origins and mission of the NADSP, founded in the mid-1990s with an influential push from John F. Kennedy Jr., focusing on advocating for the direct support workforce amidst ongoing workforce issues. The conversation delves into the persistent systemic failures to adequately address workforce challenges...
2024-04-0829 minIDD Health MattersEp 38: Overcoming Barriers: Kirsten Sanchirico's Journey in Disability Advocacy and EducationKirsten Sanchirico is the Vice President of Workforce Advancement at the NY Alliance for Inclusion and Innovation. Starting as a Direct Support Professional in 1993 and in her current role, Kirsten has focused on the facilitation of cultural change in the delivery of services for individuals living with intellectual disabilities. Leading The Regional Centers for Workforce Transformation (RCWT), Kirsten has worked in partnership with The Office for People With Developmental Disabilities (OPWDD) and other stakeholders on Direct Support Professional (DSP) workforce development by integrating the NYS DSP and Front Line Supervisor Core Competencies, as well as, the NADSP Code of...
2024-04-0122 minIDD Health MattersEp 37: Advancing IDD Healthcare: Insights from Nursing Leaders Dina Pizzurro-Smith & Daleigh TallentIn this enlightening episode of IDD Health Matters, Dr. Craig Escude is joined by Dina Pizzurro-Smith, BSN, RN, CDDN, Director of Client Services at IntellectAbility, and Daleigh Tallent, MSN, RN, CDDN, Clinical Quality Coordinator at IntellectAbility. Both guests share their unique journeys into the field of nursing for individuals with intellectual and developmental disabilities (IDD), highlighting the challenges and rewards that come with serving this underserved population. Dina and Daleigh discuss the critical need for specialized training and education for nurses in the IDD field, emphasizing the lack of IDD-specific content in traditional nursing curricula. They explore...
2024-03-2519 minIDD Health MattersEp 36: Transforming Lives Through Intellectual Disability Nursing: Insights from Dr. Owen DoodyIn this enlightening episode of IDD Health Matters, host Dr. Craig Escude sits down with Dr. Owen Doody, an Associate Professor at the University of Limerick and a registered Intellectual Disability Nurse. Dr. Doody shares his extensive experience and passion for intellectual disability nursing, a field he has been dedicated to since qualifying in 1997. With a career spanning over three decades, Dr. Doody has made significant contributions to nursing management, education, and research, focusing on the well-being of individuals with intellectual disabilities and their families. Recorded at the Developmental Disabilities Nurses Association annual conference in New Orleans...
2024-03-1819 minIDD Health MattersEP 35: Navigating Health and Housing for Individuals with Disabilitieswith Patricia CalandraIn this episode of IDD Health Matters, Dr. Craig Escude welcomes Patricia Calandra, a passionate advocate for individuals with intellectual and developmental disabilities. Broadcasting from the New York Alliance for Inclusion and Innovation conference, they delve into Patricia's personal journey as a parent of two adult children with autism, her role as a self-direction broker, and her innovative work as a Master Housing Navigator. Patricia shares her family's experiences navigating the complexities of self-direction and residential living, highlighting the challenges and triumphs of seeking independence and appropriate support for her children. She emphasizes the importance of personalized...
2024-03-1119 minIDD Health MattersEp 34: David Ervin's Vision for Health Equity and Accessible Services In this enlightening episode of IDD Health Matters, host Dr. Craig Escude welcomes David Ervin, a seasoned expert in the field of supports and services for individuals with intellectual and developmental disabilities (IDD). With a career sparked by a pragmatic need that turned into a lifelong passion, Ervin shares his journey from a direct support professional to becoming the CEO of a community-based organization in Rockville, Maryland, named Mome. This episode delves into the critical importance of health equity, wellness, and the development of health care systems tailored to the unique needs of the IDD community. David...
2024-03-0430 minIDD Health MattersEp 33: Transforming Perceptions: Rick Guidotti on Celebrating Diversity in IDD Health Matters Podcast In this enlightening episode of IDD Health Matters, host Dr. Craig Escude engages in a captivating conversation with Rick Guidotti, a former fashion photographer turned advocate for changing perceptions of beauty. Guidotti, the founder of Positive Exposure, shares his journey from capturing the glitz and glamour of the fashion world to spotlighting the unique beauty of individuals with intellectual and developmental disabilities (IDD). Positive Exposure, a nonprofit organization, leverages photography, film, and educational programs to foster a more inclusive society by celebrating human diversity and challenging the stigmas associated with IDD. Guidotti recounts his pivotal moment of...
2024-02-2612 minIDD Health MattersEp 32: Advancing Alzheimer's Treatment in IDD: Breakthroughs and Hope with Dr. Seth KellerIn this episode of IDD Health Matters, Dr. Craig Escude welcomes back Dr. Seth Keller for a deep dive into the latest advancements in the treatment and understanding of dementia, particularly in individuals with intellectual and developmental disabilities. Dr. Keller, a seasoned expert in neurology with a focus on Alzheimer's disease, shares groundbreaking insights into the diagnosis and management of dementia, emphasizing the significant strides made in research over the past few years. The conversation begins with an overview of the challenges faced in diagnosing Alzheimer's disease, highlighting the shift towards more accurate diagnostic methods through biomarkers...
2024-02-1921 minIDD Health MattersEp 31: Cathy Ficker Terrill's Quest for IDD Inclusion & EquityJoin Dr. Craig Escude on a compelling episode of IDD Health Matters, where he engages in an enlightening conversation with Cathy Ficker Terrill, a seasoned expert with 48 years of experience in the field of supports and services for people with intellectual and developmental disabilities (IDD). This episode delves into Cathy's extensive career, highlighting her roles from a direct support professional to an influential figure in promoting inclusion, quality, and employment within the IDD community. Cathy shares transformative stories and insights from her journey, including her pivotal role as a court monitor in a landmark case that led...
2024-02-1219 minIDD Health MattersEp 30: Understanding Alzheimer's in Down Syndrome: Early Signs, Diagnosis, and Caregiver Insights with Dr. Beau Ances Used Video Captions The podcast "IDD Health Matters" hosted by Dr. Craig Escude features an episode with Dr. Beau Ances, an adult neurologist specializing in adults with Down syndrome, particularly focusing on the early detection of Alzheimer's disease in this population. Dr. Ances explains that individuals with Down syndrome are at a higher risk of developing Alzheimer's disease at a younger age due to having three copies of chromosome 21, which leads to an overproduction of amyloid precursor protein, a hallmark of Alzheimer's. Key points discussed in the episode include: Early Signs of Alzheimer's in Down Sy...
2024-02-0524 minIDD Health MattersEp 29: Voices of Inclusion: Empowering the IDD Community with Tony Stuart and Craig Escude MDWelcome to another insightful episode of IDD Health Matters, hosted by Dr. Craig Escude, a renowned expert in the field of Intellectual and Developmental Disabilities (IDD) healthcare. In this episode, we are honored to have Tony Stuart, the dynamic CEO of Friends for Life, as our special guest. Tony Stuart, a visionary leader and advocate in the IDD community, joins Dr. Escude to discuss the transformative work being done at Friends for Life. This organization is at the forefront of providing support and resources to individuals with intellectual and developmental disabilities, ensuring they lead fulfilling and empowered...
2024-01-2916 minIDD Health MattersEp 28: Addressing Health Equity in IDD and Exploring Dementia in Down Syndrome w Dr Seth KellerIn this enlightening episode of IDD Health Matters, Dr. Craig Escude welcomes Dr. Seth Keller, a neurologist specializing in the care of adults with neurological complications, including those with intellectual and developmental disabilities (IDD). The episode, recorded at the American Academy of Developmental Medicine and Dentistry conference in Denver, Colorado, delves into Dr. Keller's journey in the field, his insights on health equity, and his extensive work on dementia, particularly in individuals with Down Syndrome. Key Topics Covered Dr. Keller's Background and Evolution in IDD Care: Dr. Keller shares his transition from a general adult...
2024-01-2251 minIDD Health MattersEp 27: Transforming Lives in the IDD Community with Suzanne Meiklejohn of Schenectady ArcIn this insightful episode of "IDD Health Matters," host Dr. Craig Escude engages in a profound conversation with Suzanne Meiklejohn, a seasoned professional in the field of intellectual and developmental disabilities (IDD). With over 38 years of experience, Suzanne shares her journey from starting as a Direct Support Professional to her current role overseeing operations at Schenectady ARC. Key Discussions: Career Journey: Suzanne recounts her unexpected entry into the field of IDD support and services, highlighting her progression through various roles and the deep fulfillment she found in her work. Impact of COVID-19: The...
2024-01-1520 minIDD Health MattersEp 26: Transforming IDD Care: Dr. Benjamin Margolis & Innovative Neurobehavioral Strategies in IDDIn this insightful episode of IDD Health Matters, host Dr. Craig Escude engages in a deep and meaningful conversation with Dr. Benjamin Margolis, MD, a colleague and expert in neurobehavioral care for individuals with intellectual and developmental disabilities (IDD). Dr. Margolis, who also specializes in psychiatry and neurology, shares his journey into the field of IDD, highlighting the importance of understanding and addressing the unique health needs of this population. Throughout the episode, Dr. Margolis emphasizes the critical role of communication in providing effective care. He discusses the challenges and rewards of working in this specialized area, including the...
2024-01-0830 minIDD Health MattersEp 25: Empowering Voices in Healthcare with BJ StasioIn this enlightening episode of IDD Health Matters, host Dr. Craig Escude welcomes a remarkable guest, BJ Stasio, an advocate renowned for his work in the field of intellectual and developmental disabilities (IDD). BJ's journey is not just inspiring but also a beacon of hope and empowerment for many in the IDD community. Throughout the episode, BJ shares his personal experiences and challenges, shedding light on the unique healthcare needs and barriers faced by individuals with IDD. His stories are a powerful testament to the importance of self-advocacy and the need for inclusive healthcare practices. ...
2024-01-0129 minIDD Health MattersEp 24: Empowering Change in IDD Services: Experts Alexandra Bonardi & Lindsay DuBoisIn this enlightening episode of IDD Health Matters, Dr. Craig Escude engages in a thought-provoking conversation with two distinguished guests, Alexandra Bonardi and Lindsay DuBois. The episode delves into the intricacies of health, wellness, and health equity for individuals with intellectual and developmental disabilities. Key Discussions: Lindsay DuBois' Mission: Lindsay emphasizes the importance of conducting meaningful research that directly benefits people with disabilities. She advocates for research that leads to actionable insights, aiming to transform systems for better accessibility and understanding. Alexandra Bonardi's Focus: Alexandra discusses her commitment to improving service systems for p...
2023-12-2530 minIDD Health MattersEp 23: Innovating Health Solutions for the IDD Community with Maulik TrivediThe podcast "IDD Health Matters," hosted by Dr. Craig Escude, features guest Maulik Trivedi. In this episode, the discussion revolves around important health-related topics concerning individuals with intellectual and developmental disabilities (IDD). Dr. Escude, an expert in the field, leads an insightful conversation with Maulik Trivedi, who brings his unique perspectives and experiences to the table. Throughout the episode, they delve into various aspects of healthcare for people with IDD, addressing challenges, innovations, and best practices. The conversation touches on the importance of personalized care, the role of technology in enhancing healthcare delivery, and strategies for improving the overall...
2023-12-1825 minIDD Health MattersEp 22: Shaping a More Inclusive Future: Insights from Ron WakefieldIn this enlightening episode of IDD Health Matters, Dr. Craig Escude welcomes Ron Wakefield, the State Director for Developmental Disability Services in Georgia. Broadcasting from the NASDDDS (National Association of State Directors of Developmental Disability Services) conference, this conversation delves into the complexities and triumphs of providing services for individuals with intellectual and developmental disabilities. Key Highlights: Role and Responsibilities: Ron Wakefield discusses his role as the State Director, emphasizing the importance of stakeholder engagement, policy development, and ensuring access to necessary services for about 14,000 individuals under two waivers in Georgia. Focus on Health and...
2023-12-1124 minIDD Health MattersEP 21: Overcoming Barriers & Celebrating Abilities with Justin SteinbergIn this inspiring episode of IDD Health Matters, Dr. Craig Escude engages in a profound conversation with Justin Steinberg, a research assistant at Stanford University, a board member of the American Academy of Developmental Medicine and Dentistry (AADMD), and a Special Olympics athlete and leader. At 33, Justin's journey is a testament to resilience and multifaceted talent. Key Highlights: Justin's Background: Justin shares his journey, highlighting his roles as a research assistant, a self-advocate representative, a percussionist in a symphonic band, and his involvement in Special Olympics. Despite being on the autism spectrum and visually impaired, Justin has...
2023-12-0414 minIDD Health MattersEp 20: Melissa DiSipioDr. Craig Escude introduces the podcast "IDD Health Matters," focusing on health, wellness, and health equity for people with intellectual and developmental disabilities (IDD). Melissa DiSipio, the guest for the episode, is welcomed. Melissa DiSipio is the director of Philadelphia Coordinated Healthcare (PCHC), a unique program in Pennsylvania. PCHC, part of eight Healthcare Quality Units in the state, was established over 30 years ago to bridge the gap between providers, families, and individuals needing access to community healthcare professionals. HICUs provide indirect services, including education, training (both in-person and online), consultation, record reviews, and assistance in transitions for individuals with...
2023-11-2717 minIDD Health MattersEp 19: Exploring Health Equity in IDD with Dr. Deven UnadkatWelcome to another enlightening episode of IDD Health Matters, hosted by Dr. Craig Escudé, MD, FAAFP, FAADM. In this episode, we are honored to have Dr. Deven Unadkat, an Emergency Physician with 19 years of experience, specializing in healthcare for individuals with intellectual and developmental disabilities (IDD). Join us as Dr. Unadkat shares his journey into the world of IDD healthcare. He recounts his experiences in an emergency department near an IRA in New Jersey, where he noticed a pattern of patients with IDD frequently visiting for minor issues. This observation led him to explore telehealth solutions, aiming t...
2023-11-2019 minIDD Health MattersEp 18: Empowering Voices: Amanda Harnnauth on Life, Poetry, and Special OlympicsJoin Dr. Craig Escude in this inspiring episode of the IDD Health Matters podcast, recorded at the American Academy of Developmental Medicine and Dentistry conference in Denver, Colorado. Our special guest, Amanda Harnnauth, a poet, Special Olympics athlete, and an advocate for people with disabilities, shares her journey and insights. Amanda talks about her experiences in Special Olympics, her advocacy work, and how she uses poetry as a tool for self-expression and empowerment. She also discusses the importance of kindness, respect, and inclusion in healthcare and society, especially for individuals with intellectual and developmental disabilities. Tune in to hear...
2023-11-1321 minIDD Health MattersEp 17: Unlocking Health Equity with Craig Sever BS, R.Ph.Join Dr. Craig Escude as he dives deep into the world of health, wellness, and health equity for individuals with intellectual and developmental disabilities. In this episode, we're thrilled to have Craig Sever, a consultant pharmacist who specializes in the IDD population. From chart reviews to medication interactions, Craig sheds light on the unique challenges and rewards of working in this specialized field. 🔍 Key Highlights: The importance of understanding non-verbal communication in the ID population. Real-life examples of how medication can impact individuals differently. The challenge of "diagnostic overshadowing" and the need for individualized care. The evolving lan...
2023-11-0623 minIDD Health MattersEp 16: Steve Perlman, DDSIn the 1990s, Dr. Steve Perlman and Eunice Kennedy Shriver met in Washington, D.C. to discuss the lack of access to health care for people with intellectual disabilities, who were often denied treatment by doctors and health-care systems. From those initial talks, Dr. Perlman created Special Olympics Special Smiles to provide free dental screenings for Special Olympics athletes. Today, this is one of eight disciplines offered by Special Olympics Healthy Athletes, a program that offers free health screenings to Special Olympics athletes worldwide. Meet Dr. Perlman and the athletes who are thriving today, thanks to this life-saving intervention.
2023-10-3029 minIDD Health MattersEp 15: Advocacy, Care, and Passion in Intellectual & Developmental Disabilities with Maria SaladinoWelcome to IDD Health Matters with Dr. Craig Escude! In this episode, we dive deep into the world of healthcare for individuals with intellectual and developmental disabilities. Our special guest, Maria Saladino, a registered nurse with over 20 years of experience, shares her transformative journey from maternal nursing to becoming a passionate advocate for those with developmental disabilities. Discover: Maria's "aha" moment that reshaped her perspective on patient care. The challenges and rewards of working in this specialized field. The importance of advocacy, education, and resources in delivering quality care. Real-life stories that highlight the genuine connections made...
2023-10-2322 minIDD Health MattersEp 14: Justin Amoyal CEO of Impruvon HealthJoin Dr. Craig Escude on IDD Health Matters as he delves into the world of health, wellness, and health equity for individuals with intellectual and developmental disabilities. In this episode, we welcome Justin Amoyal, CEO of Impruvon Health, who shares his personal journey into the IDD sector and how his company is revolutionizing medication management. Discover how Impruvon Health's innovative solutions, driven by cutting-edge technology and user-centric design, are addressing challenges faced by care providers and enhancing the lives of those they serve. Dive into the conversation about the importance of person-centered approaches, the future of health tech in...
2023-10-1623 minIDD Health MattersEp 13: Grace Gould of IntellectAbilityIDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities. 🎙️ Podcast Guest: Grace Gould, Account Manager at IntellectAbility and IntellectAbilityGalen School of Nursing-Tampa Bay Liaison 🌟 Join us on this episode as we sit down with Grace Gould, a seasoned Account Manager at IntellectAbility, and a dedicated liaison for the IntellectAbilityGalen School of Nursing program in Tampa Bay, Florida. With a passion for technology and education, Grace brings a unique perspective to the int...
2023-10-0918 minIDD Health MattersEp 12: Kim Hing Special Olympics Athlete Leader of Northern CAIDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities. Kim Hing is the Special Olympics Athlete Leader of Special Olympics of Northern California and is on their board of directors. Special Olympics Northern California provides free year-round programs for children and adults with intellectual disabilities. We offer training and competitions in 11 sports, inclusive schools programs, health & wellness activities, leadership training and more! Learn More Here: https://sonc.org ...
2023-10-0224 minIDD Health MattersEp 11: Ian Cowart of Brandi's Hope Community ServicesIDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities. Brandi's Hope Community Services began operations in June 2010 after being a long time dream of owner and CEO, Danny Cowart. Danny and his wife Brenda are the proud parents of our company's name sake, Brandi Erin Cowart. For almost ten years he and his wife Brenda received services/supports for their daughter who was born with Trisomy 18, a rare and fatal chromosomal d...
2023-09-2527 minIDD Health MattersEp 10: Jamie Valis, PhD and Kristin Compton, DMD, MHA, FAADDIDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities. Jamie Valis, PhD is the Vice President of Training, Development, & Engagement and Kristin Compton, DMD, MHA, FAADD is the Vice President of Clinic Operations for Kramer Davis Health. As a national, transdisciplinary clinic-based system, Kramer Davis are the leading destination for accessible and seamless healthcare focused on people with intellectual and developmental disabilities, (IDD) and their families. Learn More Here: ht...
2023-09-1823 minIDD Health MattersEp 9: Julian Trollor Chair of Intellectual Disability Mental Health, and Head, Department of Developmental Disability Neuropsychiatry ProfessorIDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities. Julian Trollor leads an internationally recognised translational research program that aims to reduce the health inequalities experienced by people with intellectual or developmental disability. He also is the inaugural Chair of Intellectual Disability Mental Health at UNSW Sydney, Head of the Department of Developmental Disability Neuropsychiatry (3DN) within the Discipline of Psychiatry and Mental Health and NHMRC Leadership Fellow. He took on h...
2023-09-1121 minIDD Health MattersEp 8: Maggie Nygren EdD, FAAIDD Executive Director and CEO of AAIDDIDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities. Margaret A. Nygren, EdD, Executive Director & CEO of AAIDD since 2010, is responsible for the executive direction, leadership, and management of operations of the organization. Dr. Nygren oversees the organization's core functions of education, publications, public policy, and member services. In addition, she serves on a number of national advisory and scientific committees and frequently speaks at regional, national, and international conferences and e...
2023-09-0424 minIDD Health MattersEp 7: Pam Merkle, Executive Director AADDIDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities. The Association on Aging with Developmental Disabilities (AADD) was initially formed in 1989 as a special interest group and became incorporated in 1994. AADD has a primary objective of bringing the aging and developmental disability fields together to create and provide best practices for people aging with developmental disabilities (autism spectrum disorder, cerebral palsy, down syndrome, learning disabilities, epilepsy, and intellectual disability—formerly known as...
2023-08-2934 minIDD Health MattersEp 6: Diane Moore Executive Director of DDNAIDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities. Diane has been a Registered Nurse for 37 years and has worked in the field of developmental disabilities nursing for over 30 of those years. She is a Certified Developmental Disabilities Nurse, being certified in the specialty of developmental disabilities nursing for over 25 years. She has provided nursing support and clinical oversight to individuals with intellectual and developmental disabilities (IDD) across the lifespan and a...
2023-08-2134 minIDD Health MattersEp 5: Allen Wong, DDSIDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities. Dr. Allen Wong has taught postdoctoral general dentistry for 30 years in ( Advanced Education in General Dentistry (AEGD) programs and is the director of Pacific's Hospital Dentistry Program and Director of Highland Hospital Restorative Implant program. He has lectured nationally and internationally in the areas of special care dentistry, rotary endodontics, implant restorations, and minimally invasive dentistry. He is active with Special Olympics Spe...
2023-08-1418 minIDD Health MattersEp 4: Mary Sowers Executive Director of NASDDDSIDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities. Since joining NASDDDS in 2014, Mary has worked to provide technical assistance to many state members on their systems of support for individuals with I/DD. She also continues long-standing partnerships with Federal agencies, providing input on and suggestions for national policy strategies to further opportunities for individuals with I/DD to live and thrive in their homes and communities. Ms. Sowers also h...
2023-08-0717 minIDD Health MattersEp 3: Michael SeereiterIDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities. Michael Seereiter serves as the President and CEO of the New York Alliance for Inclusion and Innovation (New York Alliance), an organization created through the 2018 merger of the New York State Association of Community and Residential Agencies (NYSACRA), and the New York State Rehabilitation Association (NYSRA). Michael's appointment as President and CEO of the New York Alliance began on October 1, 2019, immediately prior t...
2023-07-3128 minIDD Health MattersEp 2: Gabrielle Sedor Chief Operations Officer & Foundation Director of ANCORIDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities. On this episode he sits down with Rick Rader, MD, FAAIDD, DHL. Gabrielle Sedor joined ANCOR as its Chief Operations Officer in February 2015 to assist the CEO in day-to-day operations and supervise ANCOR's Communications, Marketing, Membership and Education teams. She was named the ANCOR Foundation Director in October 2018. Learn More Here: https://bit.ly/3m0Pec7
2023-07-2423 minIDD Health MattersEp 1: Rick Rader, MD, FAAIDD, DHLIDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities. On this episode he sits down with Rick Rader, MD, FAAIDD, DHL. More Friends for Life Here: https://bit.ly/3m0Pec7
2023-07-2029 min
ABCs of Disability PlanningTips to protect and help your loved ones with IDD - Dr. Craig Escude'IntellectAbility - https://replacingrisk.com/
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Dr. Craig Escudé, MD is a Board-certified Fellow of the American Academy of Family Physicians and the American Academy of Developmental Medicine. He has over 20 years of clinical experience providing healthcare for people with Intellectual and Developmental disabilities and is the author of “Clinical Pearls in IDD Healthcare” (https://amzn.to/3CbeCDp) and “The Curriculum in IDD Healthcare” (https://replacingrisk.com/store/). Dr. Escude assumed the role of President of IntellectAbility in 2018.
We address the importance of educating healthcare providers. Specifically, what (an...
2021-10-2540 min