Shows
My Invisible DiseaseLiving with Lyme Disease and the Power of Functional Diagnostic Nutrition: Meet Heather GrayUnlocking the Hidden Secrets of Your Health: The Power of Functional Testing with Heather GrayStruggling with relentless health issues that seemed to have no cure, Heather Gray's life was a constant battle. From Lyme disease at 13 to severe neurological problems, she felt abandoned by the Western medicine system. But just when she thought all hope was lost, a chance encounter with a podcast introduced her to a revolutionary concept – functional testing. Through this alternative approach, Heather discovered surprising and life-changing insights about her health, from hidden food sensitivities to hidden heavy metals. Join us in th...
2023-09-0543 min
My Invisible DiseaseLiving with Chronic Renal Failure- Meet Jenna SwansonAdvanced Directives and Advocacy: Jenna Swanson's Journey with Chronic IllnessJoin resilient nurse Jenna Swanson as she battles Vesicoureteral Reflux and Chronic Kidney Disease, advocating for self-care and self-advocacy amidst the trauma and isolation of living with chronic illness.It's time-consuming. It's embarrassing.My special guest is Jenna SwansonJenna Swanson is a loving mother of two who has been living with chronic illness since childhood. She was born with congenital chronic renal failure, which has led to multiple surgeries and issues with her bladder. Jenna has bravely faced these challenges and...
2023-08-0234 min
My Invisible DiseaseLiving with Crohn's Disease & Raising Neurodivergent Children - Meet Sarah YoungManaging Chronic Illness as a Special Needs Mom with Sarah YoungSarah Young's life seemed destined for struggle, from her childhood diagnosis of Crohn's disease to raising a neurodivergent child. But what's surprising is how she found the strength to persevere and thrive. Through her journey, she discovered the importance of self-care for special needs moms and the unique gifts of neurodivergent children. So, what's the twist? Despite facing adversity at every turn, Sarah's story is one of resilience, hope, and a reminder that even in the toughest moments, there is beauty to be found. How...
2023-07-1936 min
My Invisible DiseaseHealing Together: The Benefits of Connecting with Others on the Invisible Disease JourneyHealing Together: The Benefits of Connecting with Others on the Invisible Disease JourneyDoes this sound familiar? You're struggling with an invisible disease, feeling alone and isolated. You've been told to just tough it out or stay positive, but it's not helping. In fact, it's making you feel even more frustrated and misunderstood. The pain of being dismissed and unsupported can be overwhelming. But there's hope. Finding a supportive community can make all the difference in your health journey. Not only will you feel a sense of belonging, but you'll gain coping skills and be inspired by...
2023-07-0529 min
My Invisible DiseaseLiving with Chronic Lymphocytic Leukemia- Meet Julie FryJulie Fry's Journey: Living with Chronic Lymphocytic LeukemiaAre you looking for a way to cultivate emotional wellbeing and positivity? Julie Fry is here to share her insight on how to promote joy and self-care through gratitude practices.In this episode, you will be able to:Master the complexities of chronic lymphocytic leukemia diagnosis and treatment for improved decision-making.Achieve harmony between entrepreneurship, motherhood, and managing a chronic illness.Discover invaluable support, resources, and advocacy advice for cancer patients and their loved ones.Explore groundbreaking clinical trials, therapies, and ways to...
2023-06-2151 min
My Invisible DiseaseHow a Supportive Community Can Help You Thrive with Invisible DiseasesDoes this sound familiar? You're struggling with an invisible disease, feeling alone and isolated. You've been told to just tough it out or stay positive, but it's not helping. In fact, it's making you feel even more frustrated and misunderstood. The pain of being dismissed and unsupported can be overwhelming. But there's hope. Finding a supportive community can make all the difference in your health journey. Not only will you feel a sense of belonging, but you'll gain coping skills and be inspired by others' stories of resilience. Don't suffer in silence any longer. Join us as we explore...
2023-05-2431 min
My Invisible DiseaseLiving with Gastroparesis- A Healing Journey with River StainesUnlocking Emotional Healing with River Staines: A Chronic Illness JourneyRiver Staines was just 22 and facing an incurable chronic illness. With numerous healing modalities and a newfound gift for energy work, she was determined to not accept her fate. Against all odds, her remarkable strength and resilience allowed her to heal herself and find her true calling. What was this unexpected twist in River's story that gave her a newfound sense of purpose?After years of misdiagnoses, invasive tests, and relentless searching for answers, our protagonist has found a way to heal...
2023-05-1635 min
My Invisible DiseaseSurviving Guillain-Barre Syndrome- Meet Holly FrancesUnraveling Guillain-Barre Syndrome with Holly Frances: A Mother's JourneyParalyzed just weeks after giving birth to her first child, Holly Frances struggles to adjust to her new reality as she courageously battles Guillain-Barre Syndrome with the help of her inspiring support system and a conquering spirit.In this episode, you will be able to:Discover the intricacies and symptoms of Guillain-Barre Syndrome, a rare autoimmune disorder.Understand the significance of early diagnosis and treatment for improving recovery outcomes.Learn effective self-care strategies and pacing techniques to manage chronic fatigue and nerve...
2023-05-0138 min
My Invisible DiseaseLiving with Chronic Fatigue Syndrome- Meet Sue JacksonSuzan Jackson is a freelance writer whose work focuses on topics related to health, family, travel, and media reviews and has appeared in many magazines, websites, and anthologies. She has had ME/CFS, an immune disorder, since 2002, and also has Lyme disease. Both of her sons also became ill with ME/CFS in 2004, at ages 6 and 10. Her younger son is now fully recovered, after 10 years of mild illness. Her elder son, who recently began his first full-time job, still has ME/CFS as well as three tick-borne infections. Sue and her sons managed to improve their conditions with a...
2023-04-1836 min
My Invisible DiseaseLiving with MS- Meet Heather Russell-KayLiving with chronic illness can be hard, but finding support and understanding makes all the difference."It is one of those things that when I was first diagnosed, they were like, everyone knows someone with Ms, but I knew absolutely no one. I had no idea about the condition or that it was actually diagnosed quite young in people at all."Heather Russell-Kay is a teacher and actor diagnosed with MS in 2014 at the age of 24. She has been living with chronic illness for the past nine years and is now an entrepreneur...
2023-03-2742 min
My Invisible DiseaseLiving with Familial Adenomatous Polyposis and Short Bowel Syndrome- Meet Jenny JonesAfter Jenny Jones is wrongly dismissed as a "whiny child" with chronic abdominal pain, she discovers she has two rare diseases, undergoes multiple surgeries, and fights for the rights of children with rare diseases to receive the necessary health care."If you arm yourself with the information and you don't hesitate to ask questions, you don't hesitate to ask for treatments and communicate with your doctors and stay on top of them, you can live a normal life expectancy." - Jenny JonesJenny Jones is a published author and rare disease advocate for...
2023-03-0630 min
My Invisible DiseaseLiving with DYS- Interview with Ambre Minty"Unlock your inner strength and experience the power of resilience with a chronic illness journey that is truly iconic.""My health may be chronic, but this ass is iconic."- Ambre MintyAmbre Minty is a mum and chronic illness warrior, patient leader, feeding tube advocate, and Oley ambassador. She has been diagnosed with dysautonomia, gastropresis, Ehlers Danlos, colonic inertia, and eosinophilic esophagitis and has used IV fluids, feeding tubes, and TPN to manage her conditions.Ambre Minty was living with a variety of medical conditions, struggling with extreme nausea...
2023-02-2128 min
My Invisible DiseaseWe are officially live!After being diagnosed with an Invisible Disease, two moms battle the physical and emotional roller coaster of chronic illness while also advocating for others and striving to create a community of support.Learn about Advocating for Invisible Disease through listening to two mothers living with chronic illness. This podcast discusses grieving physical losses, such as hair loss due to medications, and how to cope with it. They also talked about how to advocate for invisible diseases, such as chronic illnesses, and shared stories of others who are living with them. Connecting with others who have similar experiences...
2023-02-0826 min
My Invisible DiseaseBitter BettysIn this episode of My Invisible Disease, Jenny and Kassy are Bitter Bettys. With chronic illness and a short fuse, they desperately seek to strike a balance between protecting themselves, maintaining empathy and compassion, and avoiding petty complaints as they navigate the holidays and a mountain of obligations.This episode is about Self-reflection on communication styles. Through listening to two moms sharing their struggles and experiences with chronic illness, I learned about the importance of self-care and balancing empathy and compassion for others with the need to be selfish and take care of oneself. Through humorous anecdotes and...
2022-12-2725 min
My Invisible DiseaseCaregiving, Support and Romance in Invisible DiseaseJoin us on our journey as we navigate the ups and downs of living with Invisible Disease and finding our balance with our partners and caregivers."This episode was about Caregiving and support, and how I learned that it is important to provide grace to both yourself and your partner when managing a chronic illness. I also learned that it is important to communicate clearly with your partner about your needs, as well as to remember that caregiving involves emotional and physical work for both partners. Lastly, I learned that it is essential to...
2022-12-2126 min
My Invisible DiseaseAsking For HelpDo you know someone living with an Invisible Disease? How about someone who had to make the difficult decision to go public with their medical condition? Join us as we explore the difficult decision of going public with an Invisible Disease and the courage it takes to do so. Through our stories, we will uncover the emotional turmoil of facing an unpredictable future and the power of community in a time of need. Join us as we explore the inspiring and brave story of going public with a need for a live liver donor and transplant.
2022-12-1621 min
My Invisible DiseaseKassy's StoryKassy Draper, a working mother of two who was leading a busy real estate career until she started experiencing chronic illness symptoms. After many inconclusive tests, she was put on a 10-day cycle of Prednisone to help manage her symptoms. She soon noticed a drastic weight loss, and she was struggling to keep up with her work and home life. On her birthday, she spent the day on the couch, exhausted and eating chocolate. Despite her efforts to keep up appearances, her clients noticed the weight loss, and Kassy was left feeling frustrated and helpless.
2022-12-161h 03
My Invisible DiseaseIntroduction EpisodeInvisible Disease is a podcast about the struggles of two moms living with chronic illness and the hacks they use to get through their day-to-day lives."But also, I think there's just not enough of it right now. People don't know where to go. And I think when you can share and sometimes be vulnerable and sometimes put your dirty laundry out there, some people are going to hate it and unfollow or ignore”In this episode, you will learn the fo...
2022-12-1621 min
My Invisible DiseaseJenny's StoryFor Jenny, the effects of chronic illness have been part of her life since childhood - her grandfather died of complications with his liver and her mother was the first in their family to undergo a liver transplant. But it wasn't until Jenny was 15 that she was officially diagnosed with polycystic kidney and liver disease. The lack of education in the medical community and the lack of knowledge about the effects of invisible illness on families can be heartbreaking. But Jenny found community and support from other people also living with chronic illness and learned to take control...
2022-12-1651 min