Shows
We Are Chaffee PodcastJohn & Coleen Graybill (Curtis Legacy Foundation), on great-grandfather Edward Curtis’ iconic work, shining light on Native voices and stories, and their Descendants ProjectJohn and Coleen Graybill, of the Curtis Legacy Foundation, are doing their “life’s best work” in retirement. Through the Foundation, they are focused on raising awareness of indigenous peoples and their cultures. They use the iconic work of Edward Curtis, John’s great-grandfather, to do that.
They talk with host Adam Williams about their own lives in photography, as well as Curtis’ life more than a century ago and his 30-something years of documenting dozens and dozens of Native tribes in North America. They also talk about how they are extending that work through their Descendants Project to...
2025-05-271h 32
We Are Chaffee PodcastJohn & Coleen Graybill (Curtis Legacy Foundation), on great-grandfather Edward Curtis’ iconic work, shining light on Native voices and stories, and their Descendants ProjectJohn and Coleen Graybill, of the Curtis Legacy Foundation, are doing their "life's best work" in retirement. Through the Foundation, they are focused on raising awareness of indigenous peoples and their cultures. They use the iconic work of Edward Curtis, John's great-grandfather, to do that.
They talk with host Adam Williams about their own lives in photography, as well as Curtis' life more than a century ago and his 30-something years of documenting dozens and dozens of Native tribes in North America. They also talk about how they are extending that work through their Descendants Project today. A...
2025-05-271h 32
Lay of The Land#166: Adam Graybill (Journey Biosciences) — Shifting the Future of Diabetes & CareAdam Graybill, co-founder and CEO of Journey Biosciences.With a robust 20-year tenure in the diabetes market, Adam has been at the forefront of assembling purpose-driven teams and forging impactful strategic partnerships across the healthcare landscape; having played an instrumental role in building the Cardinal Health At Home business to a billion-plus dollar entity, ultimately serving over 300,000 individuals with type 1 diabetes each year.Deeply understanding of the demands and burden that come with managing a chronic condition, like a diabetes diagnosis, Adam co-founded Journey Biosciences with Dr. Paul Beisswenger to positively impact the >20...
2024-05-1650 min
Beyond Labels and LimitationsEpisode 95: A Job, Physical Challenge and Where I'm atOn episode 95 of Beyond Labels & Limitations, JOHN GRAYBILL shares his new job, what is going on with him physically and how trusting that everything is unfolding as it should has changed him. ________________ Connect with John: YouTube Channel Website Email: BLLjenjohn@gmail.com ________________ "Desire to Inspire" TKG
2022-11-2717 minBeyond Labels and LimitationsEpisode 94: Taking Back My Mental PowerOn Episode 94 of Beyond Labels & Limitations, John shares a statistic that we have 60-80 thousand thoughts a day, 95% of the thoughts are repetitive, and 80% are negative. One morning, John woke up and noticed thoughts flooding his head. Instead of just believing the thoughts, which is what he usually did, John just watched them. What he noticed was that he had a choice in either purchasing the thought, by thinking more about the thought, or discarding it by simply watching it and letting it go. In watching the thoughts, John was able to feel lighter and more energized...
2022-10-2719 minBeyond Labels and LimitationsEpisode 93: Insight into Vulnerability and AvoidanceOn episode 93 of Beyond Labels & Limitations, John Graybill shares an insight he had while writing. The insight is into being vulnerable and how that vulnerability led to avoidance. It was from avoidance that he discovered he wasn't accepting his diagnosis. ------------------------------ Connect with John: YouTube Channel Website Email: BLLjenjohn@gmail.com --------------------------- "Desire to Inspire" TKG
2022-09-1319 minBeyond Labels and LimitationsEpisode 92: Health Challenges, Confidence and What's ImportantOn episode 92 of Beyond Labels & Limitations, JOHN GRAYBILL shares where he's been all summer, what "accident" he had and how he is moving forward with it. _________________________ Connect with John: YouTube Channel Website Email: BLLjenjohn@gmail.com _________________________ "Desire to Inspire" TrishaKG
2022-08-1115 min
Abuse Isn't What You ThinkHow Can I Change My Relationship Patterns?Jackie Graybill interviews Regina Andler about her experience as a teenager and how she has healed her life. Regina is a Jack Canfield Success Principles Certified Coach and is the founder and CEO of Autumn Ascent Consulting. She can be found at her website and her Facebook group.If you are, or think you may be, experiencing abuse, click here in the US for helpIf you are, or think you may be, experiencing abuse, click here in the UK for helpRecommendations in the Episode:
2022-05-301h 10Beyond Labels and LimitationsEpisode 91: Confidence after a fall and VolunteeringOn episode 91 of Beyond Labels & Limitations, John Graybill shares the battle that takes place within his mind after a fall and how that battle determines his actions going forward. John also shares what he got from volunteering at his daughters elementary school. ___________________ Connect with John: YouTube Channel Website Email: BLLjenjohn@gmail.com __________________ "Desire to Inspire" TKG
2022-04-2818 minBeyond Labels and LimitationsEpisode 90: Happy Birthday & Toilet FallOn episode 90 of Beyond Labels & Limitations, John Graybill wishes some very important people in his life a happy birthday and shares a fall he had while getting up from the toilet. _________________________ Connect with John YouTube Channel Website Email: BLLjenjohn@gmail.com _________________________ "Desire to Inspire" TKG
2022-04-1417 minBeyond Labels and LimitationsEpisode 89: Another Fall and Keep GoingOn episode 89 of Beyond Labels & Limitations, John Graybill shares how he physically just got over his last fall, in terms of bumps and bruises, only to have another fall today. John shares the importance of not allowing the situations in life to bring you down but rather to keep going no matter how small a step you take, don't give up. ________________________ Connect with John: YouTube Channel Website Email: BLLjenjohn@gmail.com ________________________ "Desire to Inspire" TKG
2022-04-0814 minBeyond Labels and LimitationsEpisode 88: What a Day looks like with Limb Girdle Muscular DystrophyOn episode 88 of Beyond Labels & Limitations, John Graybill shares what his day looks like. John is ambulatory, 44 years old, been living with the diagnosis for 27 years but the first signs of weakness showed up 33 years ago at the age of 12, and he hasn't worked since 2006 (16 years ago). This podcast is to show what your life could look like, if you have LGMD, but your life could also be better in terms of strength, depending on what type of LGMD you have and the mutations. So, use this podcast as a rough outline of what your life could be like...
2022-04-0119 minBeyond Labels and LimitationsEpisode 87: Body Changes, Chloe Skiing and Being AloneOn episode 87 of Beyond Labels & Limitations, John Graybill shares the body changes he is currently experiencing, his daughter skiing for the first time and how he was alone for 13 hours. _____________________ Connect with John: Website YouTube Channel Email: BLLjenjohn@gmail.com _____________________ "Desire to Inspire" TKG
2022-03-2324 minBeyond Labels and LimitationsEpisode 86: Fatigue and My MindOn episode 86 of Beyond Labels & Limitations, John Graybill shares how fatigue comes on for him and how he handles it now. John also looks at how the mind adds meaning to everything that happens and that by not adding meaning to events you can free yourself from suffering. _________________________ Social Media: Website YouTube Channel Email: BLLjenjohn@gmail.com ________________________ "Desire to Inspire" TKG
2022-03-1819 minBeyond Labels and LimitationsEpisode 85: Living Life or Living from StoriesOn episode 85 of Beyond Labels & Limitations, John Graybill asks the question, "Am I living life or being lived by the stories in life?" This question should be asked daily when dealing with events taking place in life. John has found that an event takes place, then there's an interpretation/story/meaning given to that event and then finally the person lives their life from the meaning they gave to the event. Living life this way gives rise to not truly living life but being lived from the stories. These stories can and usually are false but we don't know...
2022-03-1118 minBeyond Labels and LimitationsEpisode 84: Tripped by My CatOn episode 84 of Beyond Labels & Limitations, John Graybill shares how his cat tried to kill him with a Karate Kid style move of sweeping the leg. John shares how he felt during and after the fall and how the world can seem to be coming down on you. But, all was not lost as a little boy rollerskating showed him one important lesson. _________________ Connect with John: YouTube Channel Website Email: BLLjenjohn@gmail.com _________________ "Desire to Inspire" TKG
2022-03-0217 minBeyond Labels and LimitationsEpisode 83: Fatigue, Pushed by a 5 year old, and Chloe sees the futureOn episode 83 of Beyond Labels & Limitations, John Graybill talks about how tired he was this past week, a five year old pushed him down and how his daughter predicted the fall 2 days prior. _____________________ Connect with John: YouTube Channel Website Email: BLLjenjohn@gmail.com _____________________ "Desire to Inspire" TKG
2022-02-2421 minBeyond Labels and LimitationsEpisode 82: Button PusherOn episode 82 of Beyond Labels & Limitations, John Graybill shared how just when he thought he was mature, at 44, his button pusher showed up, sending him back to his 12 year old self. It's hard to see the lessons the button pusher show us when it's happening. The important part however is not what they say but rather how it effects you and why are you effected by it. John gives examples from his life, and within the past week, where situations came up and he reacted. What John discovered was how important it was to look at the thoughts that...
2022-02-1625 minBeyond Labels and LimitationsEpisode 81: Meditation, Judgmental Johnny and Time Does Not Heal All WoundsOn episode 81 of Beyond Labels & Limitations, John Graybill shares an online meditation retreat he attended and how aspects of himself came out. Also, John shares how the saying "Time heals all wounds" is not true. The name of the retreat John briefly spoke about in the beginning of the podcast is Goenka. Here is the link: Goenka Meditation Retreat Website ______________________ Connect with John: Website YouTube Channel Email: BLLjenjohn@gmail.com _______________________ "Desire to Inspire" TKG
2022-02-1024 minBeyond Labels and LimitationsEpisode 80: Happiness is Healing, Chloe's 6th Birthday and Sleepy Mind with Muscular DystrophyOn episode 80 of Beyond Labels & Limitations, John Graybill shares his daughters 6th birthday and what his daughter's friend shared with him that move him, how John's mind works in the morning, and a dream John had. The YouTube channel where John talked about Shane and SMA is Squirmy and Grubs: Squirmy and Grubs __________________ Connect with John: Website YouTube Channel Email: BLLjenjohn@gmail.com ___________________ "Desire to Inspire" TKG
2022-01-2724 minBeyond Labels and LimitationsEpisode 79: Changing the mentality of "How do I get rid of muscular dystrophy" to "How do I live with it"On episode 79 of Beyond Labels & Limitations, John Graybill shares how he went from a "get rid of this disease" mentality to "How do I live with this." It wasn't easy at first questioning his beliefs/thoughts but once he saw them for what they were, self-limiting, he set out to dismantle their power over him. ____________________ Connect with John: YouTube Channel Website Email: BLLjenjohn@gmail.com _____________________ "Desire to Inspire" TKG
2022-01-2116 minBeyond Labels and LimitationsEpisode 78: Getting Covid and having Limb Girdle Muscular DystrophyOn episode 78 of Beyond Labels & Limitations, John Graybill shares his experience with Covid. He breaks down the first week of his symptoms. After a week John was starting to feel like his old self. One important part for John was to take care of his immune system by taking Vitamin D3, Vitamin C, Zine, Quercitin, NAC. After a few days of taking these supplements John felt better. Now, could the supplements have helped him faster? It's hard to say whether they did or if it was something else. In any case, taking care of your body before/and especially...
2022-01-1316 minBeyond Labels and LimitationsEpisode 77: What have I learned from myself in 2021 with Limb Girdle Muscular DystrophyOn this final episode of season 2 of Beyond Labels & Limitations, John Graybill shares what he has learned from himself over the past year while living with Limb Girdle Muscular Dystrophy. All was not bad. In fact, when John can create some distance from his "sufferings" is when he learns the most from muscular dystrophy. Merry Christmas and Happy Holidays! _____________________ Connect with John: Website YouTube Channel Email: BLLjenjohn@gmail.com _______________________ "Desire to Inspire" TKG
2021-12-2217 minBeyond Labels and LimitationsEpisode 76: Having a Mobility Scooter Means What and A Cinderella PlayOn episode 76 of Beyond Labels & Limitations, John Graybill shares what having a mobility scooter has done for him, what beliefs he had about having the scooter, and a play he went to with his family. There are lessons in everything and it's up to us to find them. _____________________ Connect with John: YouTube Channel Website Email: BLLjenjohn@gmail.com ______________________ "Desire to Inspire" TKG
2021-12-1516 minBeyond Labels and LimitationsEpisode 75: Self Esteem with Limb Girdle Muscular DystrophyOn episode 75 of Beyond Labels & Limitations, John Graybill talks about self esteem and living with a disease like muscular dystrophy. ________________________ Connect with John: Website YouTube Channel Email: BLLjenjohn@gmail.com _________________________ "Desire to Inspire" TKG
2021-12-0815 minBeyond Labels and LimitationsEpisode 74: When I Get Sick and Thanksgiving Take AwayOn episode 74 of Beyond Labels & Limitations, John Graybill shares what it is like to be sick and what he got from his Thanksgiving get together. _____________________ Connect with John: Website YouTube Channel Email: BLLjenjohn@gmail.com ______________________ "Desire to Inspire" TKG
2021-12-0115 minBeyond Labels and LimitationsEpisode 73: Chloe Climbs a Wall, Bathroom Get Up & ThanksgivingOn episode 73 of Beyond Labels & Limitations, John Graybill shares his daughters success climbing a rock wall, how that inspired him to get up from the toilet after a long day sitting in a scooter and what can you be thankful for with having LGMD. ___________________________ Follow John: Website YouTube Channel Email: BLLjenjohn@gmail.com ___________________________ "Desire to Inspire" TKG
2021-11-2415 minBeyond Labels and LimitationsEpisode 72: A Fall from a toilet, Untethered Soul, Letting go and moving on with Limb Girdle Muscular DystrophyOn episode 72 of Beyond Labels & Limitations, John Graybill shares a fall he had while getting up from the toilet, a book he is re-reading called, "Untethered Soul", and finally, letting go and moving on. _________________________ Connect with John: YouTube Channel Website Email: BLLjenjohn@gmail.com __________________________ "Desire to Inspire" TKG
2021-11-1725 minBeyond Labels and LimitationsEpisode 71: Elijah Stacy, Author of "A Small IF"On episode 71 of Beyond Labels & Limitations, John Graybill talks with Elijah Stacy about his life with Duchenne Muscular Dystrophy. Contact Elijah Stacy: Non-Profit Website Elijah Stacy's Personal Site To purchase A Small IF _______________________ Connect with John: Website YouTube Page Email: BLLjenjohn@gmail.com _______________________ "Desire to Inspire" TKG
2021-11-1028 minBeyond Labels and LimitationsEpisode 70: A Fall, Halloween and Sleep Struggles with Limb Girdle Muscular DystrophyOn episode 70 of Beyond Labels & Limitations, John Graybill shares a recent fall he had while walking from the bathroom, a halloween party he went to and how LGMD is effecting sleep. ______________________ Connect with John: Website YouTube Channel Email: BLLjenjohn@gmail.com ______________________ "Desire to Inspire" TKG
2021-11-0316 minBeyond Labels and LimitationsEpisode 69: Limb Girdle Muscular Dystrophy - Is my Mind a Friend or FoeOn episode 69 of Beyond Labels & Limitations, John Graybill looks at what his mind tells him, why does he blindly believe the stories it tells him and how he can go beyond the mind chatter. ___________________________ Connect with John: Website YouTube Channel Email: BLLjenjohn@gmail.com ___________________________ "Desire to Inspire" TKG
2021-10-2717 minBeyond Labels and LimitationsEpisode 68: Desires to get up, Repetition is key and a Trusting MindsetOn episode 68 of Beyond Labels & Limitations, John Graybill shares his desire to just get up and move-similar to how Forest Gump broke free from his leg braces, a talk he had with his friend Scott about how people in the CrossFit arena get better and lastly the trusting mindset one needs to achieve in this life. ______________________ Connect with John: YouTube Channel Website Email: BLLjenjohn@gmail.com _______________________ "Desire to Inspire" TKG
2021-10-2016 minBeyond Labels and LimitationsEpisode 67: Blood Test Results, Belts for Independence and Dealing with StrugglesOn episode 67 of Beyond Labels & Limitations, John Graybill talks about his latest blood test results, how using a belt has helped him keep his independence and how he deals with struggles. _________________________ Connect with John: YouTube Channel Website Email: BLLjenjohn@gmail.com __________________________ "Desire to Inspire" TKG
2021-10-1322 minBeyond Labels and LimitationsEpisode 66: Dream, Estes Park & Insight into selfOn episode 66 of Beyond Labels & Limitations, John Graybill shares his recent trip to Estes Park with his family, what struggles he encountered there and how a frustrated man who honked at him revealed something. Lastly, John shares a dream he had at the end. _____________________________ Connect with John: Visit the Website Subscribe on YouTube Email: BLLjenjohn@gmail.com ______________________________ "Desire to Inspire" TKG
2021-10-0616 minBeyond Labels and LimitationsEpisode 65: LGMD Awareness Day, Physical Struggles and Blood WorkOn episode 65 of Beyond Labels & Limitations, John Graybill talks about the LGMD Awareness Day which is every September 30th. This day is important in spreading awareness about LGMD. Go to LGMD Awareness Foundation to learn more about LGMD. John also shares some physical struggles he's had over the past week and his upcoming blood work. There are 3 tests he asks for and they are: CPK, Vit D., cCRP or CRP. _______________________________ Connect with John: Visit the Website Subscribe on YouTube Email: BLLjenjohn@gmail.com ________________________________ "Desire to Inspire" TKG
2021-09-2918 minBeyond Labels and LimitationsEpisode 64: 2021 LGMD International Conference take away, Garden of Life supplement, and Neck Stiffness TipOn episode 64 of Beyond Labels & Limitations, John Graybill shares his take away from the 2021 International LGMD Conference, which was put on by the Speak Foundation. If you missed the conference you can view all 4 days at this link: 2021 LGMD International Conference John also shares his latest supplement, Garden of Life Company. Do your own research to see if this supplement will be of benefit to you. Lastly, John shares a tip for neck stiffness. _________________________ Connect with John: Subscribe on YouTube Visit the Website Email: BLLjenjohn@gmail.com __________________________ "...
2021-09-2224 minBeyond Labels and LimitationsEpisode 63: 2021 LGMD International Conference, Pinched Nerve, Mind Chatter and LGMD is like the game JengaOn episode 63 of Beyond Labels & Limitations, John Graybill talks about a few things. First of all, the upcoming 2021 LGMD International Conference. This is huge and is put on by The Speak Foundation. If you would like to attend please go to: The Speak Foundation National LGMD Conference The conference starts Friday, September 17 2021 and ends Monday, September 20, 2021. John also shares about a pinched nerve, how his mind goes back into judgment and comparing. Lastly, John shares how he feels LGMD is like the game Jenga. _____________________________ Connect with John:
2021-09-1522 min
Love Rinse RepeatEp102. Texts After Terror, Rhiannon GraybillI sat down with Rhiannon Graybill to talk about how we tell biblical rape stories and how we might tell rape stories differently (content warnings for discussions of rape and sexual violence). We discuss the twofold sense of "after": 1) after Phyllis Trible and related approaches of feminist biblical interpretation, and 2) after the event of terror (as in not letting the suffering or darkness of the texts consume all the interpretive space around them). We also discuss her framework of fuzzy, messy, and icky, as well as what it means to do unhappy readings. Along the way we explore the...
2021-09-1340 minBeyond Labels and LimitationsEpisode 62: Physical Health ReviewOn episode 62 of Beyond Labels & Limitations, John Graybill looks back on his health from March 16, 2020 to now and what has changed. John has done a podcast on changes to his health that you can hear on episodes 5, 19 and 37. In each of these episodes, John shares what struggles he has going on and then looks back to see how long he has dealt with them. The reason he does this is to track the disease progression. _____________________________ Connect with John: Visit the Website Subscribe on YouTube Email: BLLjenjohn@gmail.com ______________________________ "Desire to Inspire" T...
2021-09-0818 minBeyond Labels and LimitationsEpisode 61: When is the time to stop driving when you have limb girdle muscular dystrophyOn episode 61 of Beyond Labels & Limitations, John Graybill shares an almost accident he had while driving in a parking lot. This got John to thinking about is it time to stop driving. John looks at the first signs of driving becoming too difficult to do. He also shares how the meaning he gives to things/events in his life is what he really reacts to. By giving up the meaning, or at least examining it, you begin to see your relationship with these things/events in your life more clearly. ___________________________ Connect with John: Subscribe...
2021-09-0111 minBeyond Labels and LimitationsEpisode 60: Why do I struggle with Muscular DystrophyOn episode 60 of Beyond Labels & Limitations, John Graybill shares how he struggles with limb girdle muscular dystrophy. The struggle wasn't always the same over 26 years. When John was younger he believed himself to be the physical John. Naturally, whenever he lost an ability, he took it hard, and he tried to get that physical ability back. It wasn't until John heard Wayne Dyer speak of an idea that "we are all spiritual beings having a human experience" did John start the shift. Now, John sees that whenever he gets down and the struggles of muscular dystrophy are heavy, it's b...
2021-08-2517 minBeyond Labels and LimitationsEpisode 59: Struggling with Negative ThinkingOn episode 59 of Beyond Labels & Limitations, John Graybill shares how a negative thought spiraled into more negative thoughts about how his life is terrible. This isn't something new to John's life but rather a constant battle he has endured for close to 26 years. Everybody has these days but how do you get out of them? _____________________________ Connect with John: Subscribe on YouTube Visit the Website Email: BLLjenjohn@gmail.com ______________________________ "Desire to Inspire" TKG
2021-08-1825 minBeyond Labels and LimitationsEpisode 58: Going somewhere, why it can be stressful when you have Limb Girdle Muscular DystrophyOn episode 58 of Beyond Labels & Limitations, John Graybill shares how traveling to his parents house brought up challenges he hadn't encountered on previous trips there. Why your friend, child or partner doesn't want to go new places or even places visited before is probably due to it's getting more challenging for them to be independent. John didn't like having to have his dad help him with going up stairs, going down the stairs, lifting him off the toilet, helping him get to the toilet, sitting in a chair. All of these activities John could somewhat do before but since...
2021-08-1112 minBeyond Labels and LimitationsEpisode 57: How I see Limb Girdle Muscular Dystrophy in my lifeOn episode 57 of Beyond Labels & Limitations, John Graybill talks about how he sees his life with LGMD. John was diagnosed in 1995 at the age of 17. He thought his life was over when the doctors told him he had muscular dystrophy. John gave up on life. When John met Wayne Dyer, his perspective on life changed. He attended college, where he studied psychology, and started to look at how he saw himself with this disease. Ultimately, over time John began to see that this disease was here to teach him and that it was up to him to see the...
2021-08-0419 minBeyond Labels and LimitationsEpisode 56: What sucks about having Limb Girdle Muscular DystrophyOn episode 56 of Beyond Labels & Limitations, John Graybill shares some of the things that suck and have sucked regarding being diagnosed with a physical disability such as Limb Girdle Muscular Dystrophy. John looks at areas of dating, walking, getting up from a chair, climbing stairs, rolling over in bed, being dependent on others to help you and what the future holds for you. John gives examples in these areas where he got stuck and solutions on how to get out of them. What John learned was that looking at what sucks in your life is not the way to...
2021-07-2821 minBeyond Labels and LimitationsEpisode 55: What I have learned from having Limb Girdle Muscular DystrophyIn episode 55 of Beyond Labels & Limitations, John Graybill shares what he has learned over the course of 26 years being diagnosed with LGMD. 1. Don't believe everything I think 2. Accept constant change 3. A belief can be powerful when given enough attention 4. Appreciate what I have while I have it 5. Let go of control ______________________________ Connect with John: Subscribe on YouTube Visit the Website Email: BLLjenjohn@gmail.com ______________________________ "Desire to Inspire" TKG
2021-07-2126 minBeyond Labels and LimitationsEpisode 54: Finding beauty in Limb Girdle Muscular Dystrophy is a choiceOn episode 54 of Beyond Labels & Limitations, John Graybill talks about finding beauty in a disease that takes away your physical abilities. It's not easy to find the lessons in your situations especially when you think your life should be another way, but it is a choice you must make if you want your life to be one that is enjoyable. John tells you the life he lived before he realized this and how it has brought happiness into his life. ______________________________ Connect with John: Visit the Website Subscribe on YouTube Email: BLLjenjohn@gmail.com ______________________________
2021-07-1419 minBeyond Labels and LimitationsEpisode 53: Digestive Issues and Limb Girdle Muscular DystrophyOn episode 53 of Beyond Labels & Limitations, John Graybill shares how not watching what you eat can upset your digestive system. He also shares what the symptoms are and how he dealt with them. ______________________________ Connect with John: Visit the Website Subscribe on YouTube Email: BLLjenjohn@gmail.com _______________________________ "Desire to Inspire" TKG
2021-07-0713 minBeyond Labels and LimitationsEpisode 52: Keeping the mindset of "I'm going to beat Limb Girdle Muscular Dystrophy" aliveOn episode 52 of Beyond Labels & Limitations, John Graybill shares what keeps him motivated to not give up. He shares how a 3 year old helped him see more clearly. The mindset is a big determining factor in the course of your life regardless of having LGMD or not. One thing to keep in mind is that if you think you can/cannot, you're right about it. How do you prevent your mind from ruining your life with LGMD? John shares what works for him and it's not a "okay, I did that and now move on." No. The mindset and...
2021-06-3019 minBeyond Labels and LimitationsEpisode 51: What do you do for a living when you have Limb Girdle Muscular DystrophyOn episode 51 of "Beyond Labels & Limitations", John Graybill looks at the question, "What do you do for a living". John has been asked this question for over 15 years, since he's been on disability, and how this question has impacted him. From feeling ashamed and embarrassed to making a difference in the world, John has felt both sides when someone asked him this question. But, the important aspect is how it showed John where he was at in his life. Enjoying the journey is key, not some destination where you think life will be perfect once you have all that...
2021-06-2315 minBeyond Labels and LimitationsEpisode 50: How Can I be Grateful when I have Limb Girdle Muscular DystrophyOn episode 50 of "Beyond Labels & Limitations," John Graybill talks about how his wife and daughter leaving for a camping trip helped him examine his life. Being around people all the time doesn't allow for you to be alone with your thoughts, and some of the thoughts aren't positive. So, when Darcie and Chloe leave for a few days, this is the time John gets to look into how life is unfolding for him. This trip around, the idea of being grateful came up. "Why can't I be grateful for what I have?" John looks at some examples in his...
2021-06-1617 minBeyond Labels and LimitationsEpisode 49: Donavon Decker, LGMD2D, and his participation in Gene TherapiesOn episode 49 of Beyond Labels & Limitations, John Graybill talks with Donavon Decker, who has LGMD2D. Donavon comes from a family of 8 with 5 of them being diagnosed with LGMD2D. His unaffected sister later had 2 children who were diagnosed with LGMD2I. Donavon also shares how the LGMD2D population were the first to participate in gene therapies, and he shares how the trial he was in showed promise. His sister, June Burney, who also has LGMD2D, was a part of a study in 2015 using the AAV-One time treatment. Donavon shares how his sister improved while in the s...
2021-06-0943 minBeyond Labels and LimitationsEpisode 48: What I Learned from My CatOn episode 48 of Beyond Labels & Limitations, John Graybill shares what his whining cat showed him about his relationship with his 5 year old daughter and himself. ______________________________ Connect with John: Subscribe on YouTube Visit the Website Email: BLLjenjohn@gmail.com ______________________________ "Desire to Inspire" TKG
2021-06-0215 minBeyond Labels and LimitationsEpisode 47: Meet Brad Williams, Ph.D, who also has Limb Girdle Muscular Dystrophy 2B/R2On episode 47 of Beyond Labels & Limitations, John Graybill talks with Brad Williams about his life with LGMD2B/R2. Brad shares how he waited nearly 18 years to find out what he had. Brad was a figure skater, runner, very athletic in his youth but around the age of 18 he noticed he couldn't stand on his toes. The gene for LGMD2B hadn't been discovered yet, hence he had to wait until it was. Brad also shares how important it is to be a part of registries. In order for researchers to figure out what's going on with you, they...
2021-05-2634 minBeyond Labels and LimitationsEpisode 46: Healing in Brazil at the Casa De Dom InacioOn episode 46 of Beyond Labels & Limitations, John Graybill shares his experience of traveling to Abadiania, Brazil. It's in Abadiania where John of God's Healing Center, Casa De Dom Inacio, is located. This episode will be difficult for those who are deeply rooted in the Bible teachings. An open mind will be necessary for listening to this. John also wants to make a point that he is not trying to convert anyone but merely sharing his reason and experiences for traveling to Brazil. John also didn't put much stock into healing of the emotions, mental and spiritual but rather thought...
2021-05-1933 minBeyond Labels and LimitationsEpisode 45: Robert Schwartz, "Your Souls Plan", Discovering the Real Meaning of the Life You Planned Before You Were BornOn episode 45 of Beyond Labels & Limitations, John Graybill talks with author Robert Schwartz about his book, "Your Souls Plan". In this podcast, Rob shares how we planned our life before being born and how this plan is the reason for us coming into human form. Rob is one of those people who helped John shift his perspective from a "poor me" to a "this is for my higher good" perspective after reading "Your Souls Plan". By seeing your life as pre-planned, all the struggles in your life are approached from a place of, "How may I learn from this".
2021-05-1239 minBeyond Labels and LimitationsEpisode 44: Using Limb Girdle Muscular Dystrophy to find MeIn episode 44 of Beyond Labels & Limitations, John Graybill talks about how being diagnosed with Limb Girdle Muscular Dystrophy was necessary in order for him to search for who he truly is. John use to think he was all of his accomplishments but when a disease takes away your physical abilities, you come to ask yourself, "then who am I?" After years of asking, John came to understand a bit more of who he is. He attributes his searching to Dr. Wayne Dyer, Eckhart Tolle, and Mooji. ______________________________ Connect with John: Subscribe on YouTube Visit the W...
2021-05-0525 minBeyond Labels and LimitationsEpisode 43: Meet Amanda, who was misdiagnosed with Limb Girdle Muscular DystrophyIn episode 43 of Beyond Labels & Limitations, John Graybill talks with Amanda about her journey from being diagnosed with Limb Girdle Muscular Dystrophy to Anti-HMGCR. At first Amanda shares optimism about going from an incurable genetic disease like LGMD to an autoimmune disease where there are treatments available. An important part of navigating this course is the "self talk" she has with herself. There were times where she didn't know how her life would turn out, especially when confronting falls or other mobility issues. Looking at the present and what she is currently going through was a big part of...
2021-04-2830 minBeyond Labels and LimitationsEpisode 42: How suffering shows up in parenting for meIn episode 42 of Beyond Labels & Limitations, John Graybill shares how suffering showed up when he was playing with his daughter. He believed that when she was older, then playing with her would be more fun. What John didn't realize was how his beliefs about what he "should" be doing had programmed him. It was after examining his thoughts/beliefs that John saw how powerful an unexamined/unchallenged thought can be. Wayne Dyer had given John a book titled, "What do you Really, Really, Really want for your children." This book helped John see that his daily interactions...
2021-04-2111 minBeyond Labels and LimitationsEpisode 41: Meet Dr. Vovanti Jones, who has Limb Girdle Muscular DystrophyOn episode 41 of Beyond Labels & Limitations, John Graybill talks with Doctor Vovanti Jones, who has LGMD2B. Dr. Jones found out she had LGMD when she was in her 20's and while studying to become a doctor. Vovanti shares how she doubted herself at times that she could become a doctor. She shares how she had three factors against her becoming a doctor; 1, she was black, 2, she is a female and 3, she's disabled. This didn't stop Vovanti from becoming what she dreamed of at the age of 4 and that was she was going to become a doctor! I...
2021-04-1437 minBeyond Labels and LimitationsEpisode 40: Rollin with Henry EichnerOn episode 40 of Beyond Labels & Limitations, John Graybill talks with Henry Eichner. Henry has a form of LGMD that is unspecified. Henry shares what his life has been like from before being diagnosed to what he struggles with today. Henry has also started a YouTube page dedicated to sharing his life with other people. You can visit his YouTube page here Rollin with Henry ______________________________ Connect with John: Subscribe on YouTube Visit the Website Email: BLLjenjohn@gmail.com ______________________________ "Desire to Inspire" TKG
2021-04-0736 minBeyond Labels and LimitationsEpisode 39: When is it time to stop working when you have limb girdle muscular dystrophyIn episode 39 of Beyond Labels & Limitations, John Graybill talks about when it was time for him to stop working. It wasn't an easy decision for John. Things to consider were, how was John going to make a living, support a future wife and child. ______________________________ Connect with John: Subscribe on YouTube Visit the Website Email: BLLjenjohn@gmail.com ______________________________ "Desire to Inspire" TKG
2021-03-3119 minBeyond Labels and LimitationsEpisode 38: Tips & Tricks with Limb Girdle Muscular DystrophyIn episode 38 of Beyond Labels & Limitations, John Graybill shares his tips and tricks he has found useful for living with LGMD over the past 26 years. There are 7 tips and tricks and they are, Balance, Sitting down and getting up with a belt, Standing, Stretching, Supplements, Diet, and Appreciation. John told a story at a "Story Slam" in Denver about appreciating what you have. Here's the story: The Moth, StorySlam, Denver, Progress ______________________________ Connect with John: Subscribe on YouTube Visit the Website Email: BLLjenjohn@gmail.com ______________________________ "Desire to Inspire" TKG
2021-03-2423 minBeyond Labels and LimitationsEpisode 37: One year follow up and what's troubling nowOn episode 37 of Beyond Labels & Limitations, John Graybill looks back to last year, March 16 2020, and what struggles he had with Limb Girdle Muscular Dystrophy. He also talks about what symptoms he's having today. The purpose of this exercise is to see if the symptoms are here to stay or are they just a phase he is going through. The first episode John talked about his physical struggles was on episode 5. ______________________________ Connect with John: Visit the Website Subscribe on YouTube Email: BLLjenjohn@gmail.com ______________________________ "Desire to Inspire" TKG
2021-03-1713 minBeyond Labels and LimitationsEpisode 36: Shopping for Clothes and ShoesIn episode 36 of Beyond Labels & Limitations, John Graybill shares how shopping with Limb Girdle Muscular Dystrophy can be a struggle. When younger, stronger maybe not so difficult but what do you do when you're older and weaker and cannot get into dressing rooms? This is something John found challenging until him and his wife found a solution. John also shares a bit too much on "Stack Height", "Toe Drop" and the "Weight" of a shoe but when you have a disease that effects your movements then all of these play a part in selecting the right shoe. N...
2021-03-1013 minBeyond Labels and LimitationsEpisode 35: Dream, Vision & GodIn episode 35 of Beyond Labels & Limitations, John Graybill shares three experiences he had dealing with his limb girdle muscular dystrophy and wanting a better life. His first experience was with Wayne Dyer in Italy where Wayne carried John up a flight of stairs. When Wayne nearly fell with John on his back, Saint Francis appeared to Wayne and immediately Wayne's knee was healed and he ran up the stairs. John had a vision come to him while sitting outside meditating with the group that forever changed him. John shares a dream in which he asked Saint Francis for help...
2021-03-0319 minBeyond Labels and LimitationsEpisode 34: AcceptanceIn episode 34 of Beyond Labels & Limitations, John Graybill shares some struggles he is having lately; ankle weakening, belly protruding forward, fingers sore, shoulders aching and his mind spilling out negative thinking. John has dealt with these struggles in the past, but this time he cannot escape. John shares how he deals with losing his physical abilities and the perspective he keeps while in the midst of it all. Acceptance is something you eventually have to come to so why not look at it while you're young, strong and able-bodied. The life you live is determined by how you want...
2021-02-2422 minBeyond Labels and LimitationsEpisode 33: Love YourselfIn episode 33, of Beyond Labels & Limitations, John Graybill talks about love and how important it is especially when you are diagnosed with Limb Girdle Muscular Dystrophy. John didn't love being him and it started in a seventh grade gym class when his peers made fun of the way he ran. From this mockery he started belittling and berating himself to the point where John lost all love for being him. The discovery John made in his late 20's/early 30's revealed that he had been living his life from a 12 year old's point of view. John had a choice...
2021-02-1716 minBeyond Labels and LimitationsEpisode 32: Meet Jill MillingtonIn episode 32 of Beyond Labels & Limitations, John Graybill talks with Jill Millington about her life with Limb Girdle Muscular Dystrophy. Jill shares how at age 23 she first noticed something wasn't right when she couldn't step up onto the curb. She was diagnosed with LGMD in 2008 and then in 2018 Jill was officially diagnosed with LGMD2A or Calpainophty. Since then, Jill has gotten involved in advocating, managing a Facebook page, shooting "How To" videos and posting them on YouTube and also organizing fundraisers. She wants people to be aware of a "State Proclamation" in which on September 30th, every year...
2021-02-1020 minBeyond Labels and LimitationsEpisode 31: Stereotypes and being a Man or WomanIn episode 31 of Beyond Labels & Limitations, John Graybill talks about stereotypes around what it means to be a man or woman. How we live in this world is largely from what society says a man or woman should be. What happens when we cannot conform to those standards? Is our sense of manhood or womanhood diminished? Discovering who you are is the only way to avoid the pitfalls of conforming to a set of standards one must live up too. Embrace what you can do and bring that to the table! ______________________________ Connect with J...
2021-02-0330 minBeyond Labels and LimitationsEpisode 30: Stretching-What do you get from itOn episode 30, of Beyond Labels & Limitations, John Graybill shares how stretching showed him a part of himself he hadn't seen before. John talks about the importance stretching has had on his life, what areas of his body he stretches and how this has helped him stay mobile longer. The biggest gain John experienced had nothing to do with his body. The inner workings of his mind were revealed to him while questioning the whole stretching thing. You can see John's videos on stretching by clicking the "Subscribe on YouTube" link below. There is a series of videos...
2021-01-2719 minBeyond Labels and LimitationsEpisode 29: Vein ProblemsIn episode 29, John Graybill talks about the brown spots around his ankles. These spots are called Hemosiderin. It started around 2008 with small brown, freckle-like spots in the ankle region. John started an alternative therapy in 2018 called, "Vector", a treatment that Dr. Rhodes from Texas came up with. The machine is designed to increase circulation, which people with muscular dystrophy struggle with. John didn't notice any improvements after one year of the therapy. However, a wound opened up around the ankle, a location where one of the electrodes was placed. John does not contribute the wound to the Vector treatment...
2021-01-2015 minBeyond Labels and LimitationsEpisode 28: The Speak Foundation Magazine-"LGMD News"John Graybill talks with Kathryn Bryant of the Speak Foundation about their newest project, "LGMD News", a magazine. This magazine is the first ever dedicated to bringing up to date research from clinicians to peoples homes via a magazine. In this magazine, LGMD News, you will only read about limb girdle muscular dystrophy, what research is happening, what organizations you can connect with-dealing with your specific type of LGMD, ask an Expert-where a doctor answers questions people submitted, Spotlighting an organization, basically anything you want to know about LGMD or where to go, you need to get this magazine...
2021-01-1335 minBeyond Labels and LimitationsEpisode 27: What's Controlling YouSeason 2, episode 27, John Graybill talks about what is our underlying operating system at work. Often John isn't aware of it but when he reacts to situations in his life, then he becomes conscious of it. Where did this operating system come from? John shares how a 7th grade gym class experience controlled his thinking, behaving for years to come. It wasn't until his late twenties, early thirties, did John realize he was living from his 7th grade self. It's scary to see at 43 how one has been but it's better to see it at 43 than to never see it...
2021-01-0633 minBeyond Labels and LimitationsEpisode 026: Merry Christmas and Happy New YearIn the last episode of 2020, John Graybill talks about Christmas and how it impacts him now. He didn't fully appreciate those moments and now he has the opportunity to in this Christmas. John shares how his sister's passing has impacted him. What can he learn from all of this? Also, Jen will no longer be on the Podcast as she is pursuing other parts of her life. John will miss Jen but totally understands her decision. ______________________________ Connect with John: Subscribe on YouTube BL&L Website Email: Blljenjohn@gmail.com ______________________________ "D...
2020-12-2812 minBeyond Labels and LimitationsEpisode 025: A conversation with ChloeOn Episode 25 of Beyond Labels & Limitations the podcast, John Graybill sits down with his daughter, Chloe, to talk about limb girdle muscular dystrophy. John asks his daughter what he has, what help he needs from her and what is her wish for her dad. Chloe shares a Santa Claus plan she thought of which almost made John cry. ______________________________ Connect with John: Website Subscribe on YouTube Email: BLLjenjohn@gmail.com ______________________________ "Desire to Inspire" TKG
2020-12-1415 minBeyond Labels and LimitationsEpisode 24: What is your PerspectiveJohn Graybill shares his life with limb girdle muscular dystrophy and how changing his perspective changed everything. He shares how he viewed being diagnosed with LGMD and the impact that diagnosis had on him and the relationships he had after it. John shares how insecure he was and how that ruined his relationships. What ultimately mattered to John in the end was being happy. Are you happy with how your life is going? It's not too late to change your perspective in this life and live a great life. The choice is yours. ______________________________ Connect with...
2020-11-3012 minBeyond Labels and LimitationsEpisode 023: Meeting my wife, DarcieOn today's podcast, number 23, John Graybill interviews his wife, Darcie. He asks her questions about how they met, what first caught Darcie's attention, did John's limb girdle muscular dystrophy have an impact on her and such. John didn't know if he'd ever find someone to love him despite a small voice/inner knowing that kept him from giving up. He never could have imagined finding such a wonderful, compassionate, caring, patient woman. What Darcie shows is that love truly matters most. John came from a superficial place where his attention was on the outside, the physical things like body...
2020-11-1628 minBeyond Labels and LimitationsEpisode 022: The Speak Foundation with Kathryn BryantJen Ives and John Graybill talk with Kathryn Bryant of the Speak Foundation. Kathryn shares her limb girdle muscular dystrophy type 2I and how this disease saved her life. Kathryn has gone on to form the non-profit organization, from winning a contest, called "The Speak Foundation". The organization's mission is to improve the quality of life for those living with muscular dystrophy. Kathryn shares how important it is for those living with muscular dystrophy to be a voice in their future. This is what the Speak Foundation is doing. The Speak Foundation has a "Patient Network" that they would...
2020-11-0245 minBeyond Labels and LimitationsEpisode 021: FriendsIn episode 21, Jen Ives and John Graybill talk about friends. How did they make friends while having limb girdle muscular dystrophy? Did their muscular dystrophy prevent them from hanging out with friends, going to a friends house? What impact did their disease have on the friendship? Jen and John ask an important question regarding children who have muscular dystrophy and how do they make friends? _______________________________ Connect with Jen and John: Visit the Website Subscribe on YouTube Email: BLLjenjohn@gmail.com ________________________________ "Desire to Inspire" TKG
2020-10-1930 minBeyond Labels and LimitationsEpisode 020: When it's time to get a chairJen Ives and John Graybill talk about their experiences with transitioning to a mobility scooter and power chair. Jen shares how she got around with her scooter and the setup she had installed in her 4-Runner. John received a scooter from Clifton Lewis, "CRL Good Life Foundation" and how he didn't even want it at first. Jen and John share with you the thinking process and challenges they encountered when it was time to transition and how those decisions have given them freedom. Clifton R. Lewis Good Life Foundation ______________________________ Connect with Jen and...
2020-10-0535 minBeyond Labels and LimitationsEpisode 019: Follow-up on Physical HealthJen Ives and John Graybill give an update on their health from a podcast they did 6 months ago, March 2020. In this podcast, they talk about what aliments they had back then and if they have gone away or were the start of their physical health decline. ______________________________ Connect with Jen and John: Subscribe on YouTube Visit the Website Email: BLLjenjohn@gmail.com ______________________________ "Desire to Inspire" TKG
2020-09-2130 minBeyond Labels and LimitationsEpisode 018: Struggling and FrustrationJen Ives and John Graybill talk about what's bothering them. John shares his frustration with struggling to get up from a chair, walking, his mind telling him stories of "it not working out". How does John and Jen deal with life when these situations come up? And they do come up more often than they think. ______________________________ Connect with Jen and John: Subscribe on YouTube Visit the Website Email: BLLjenjohn@gmail.com ______________________________ "Desire to Inspire" TKG
2020-09-0742 minBeyond Labels and LimitationsEpisode 017: SupplementsJen and John share what supplements they take to help keep their bodies in optimal shape. Jen takes Vitamin D3, Zinc, fish oil and apple cider vinegar. John takes CuraMed's "Curcumin", DHA, Vitamin D3 and apple cider vinegar. Because Jen and John take these supplements doesn't mean you'll get the same benefit. So be sure to talk to your doctor before starting any of these supplements. When you get your blood drawn be sure to ask for your Vitamin D level and CRP (C-reactive protein). The CRP test measures the overall in...
2020-08-2429 minBeyond Labels and LimitationsEpisode 016: FDA Listening SessionJen Ives and John Graybill talk with Brad Williams, of the Jain Foundation, about the upcoming FDA Listening Session for LGMD. This is the first ever listening session in which the FDA will listen to LGMD individuals about how their type of LGMD has impacted their life. The session is set for October 20, 2020. Jen and John ask Brad questions like, how often dose the FDA listen to patients, what is a listening session and why is it important? FDA Listening Session Brad William's YouTube Page ______________________________ Connect with Jen and...
2020-08-1034 minBeyond Labels and LimitationsEpisode 015: Coming to TermsHow do you come to terms with a disease that takes away your physical abilities? Jen Ives and John C. Graybill II talk about their coming to terms and what that looked like early on. Jen embraced her diagnosis while John denied it. Eventually both came to an understanding that they are more than the physical being and that their life can be something wonderful! John brings up a concept coined by Victor Frankl in the book, "Mans search for meaning", called Delusion of Reprieve. Are we, those who have LGMD or any disease that robs you...
2020-07-2746 minBeyond Labels and LimitationsEpisode 014: Navigating the BedJen Ives and John Graybill talk about living with limb girdle muscular dystrophy and how it relates to moving around in bed. What type of bed is best, sheets, bed height? How do you sleep at night and what can you do to ensure you sleep better? Jen and John talk about their experiences and how sleeping over the years has changed. Jen shares how her Flex-A-Bed has helped her maintain her independence while John enjoys his Sleep Number bed. Both agree that the Pillow Top beds are not a great choice when you've become weaker and...
2020-07-1332 minBeyond Labels and LimitationsEpisode 013: Maintaining WeightHow do you balance eating what you love and staying healthy? It's a difficult task when in the end, if there's no cure/treatment, you'll end up losing what you have anyway. John Graybill and Jen Ives share what it is like eating the way they do and the struggles they've encountered while trying to maintain their weight. John was told by his neurologist years ago the importance of maintaining his weight. When you get older, weaker, the weight you now carry will make mobility harder for you and those who take care of you. So be careful about...
2020-06-2937 minBeyond Labels and LimitationsEpisode 012: Finding SpiritualityJen Ives and John Graybill talk about how God/Spirituality came to them. Jen shares how her dysfunctional upbringing helped her turn to God. John shares how Buddhist practices helped him question the events in his life and look at life from a different perspective. Jen also shares a verse from the Bible and a prayer at the end. ______________________________ Connect with Jen and John: Subscribe on YouTube Visit Website Email: BLLjenjohn@gmail.com ______________________________ "Desire to Inspire" TKG
2020-06-1538 minBeyond Labels and LimitationsEpisode 011: What do you want to be when you grow upJen Ives and John Graybill talk about what they wanted to be when they grew up. How did they attend college with their disability? Could they go back to school now in their current physical condition? What motivates you to want to do more with your life than just work? Jen and John want you to look at where you are in your life and explore what options are there for you. What do you want out of your life? ______________________________ Connect with the show: Visit Website Subscribe on YouTube Email: BLLjenjohn@gmail.com ______________________________
2020-06-0130 minBeyond Labels and LimitationsEpisode 010: Safety Measures for Living Alone with MDJen and John talk with their friend, Clifton Lewis, about living alone and what actions one should take to live safely. Oh, and Cliff is also raising 2 kids under the age of 6 by himself! Cliff shares some tips that will help you if you find yourself in this situation. ______________________________ Connect with the show: Visit website Subscribe on YouTube Email: BLLjenjohn@gmail.com Connect with Clifton Lewis: Connect on Instagram @crlgoodlife Visit website Email: clewis@crlgoodlife.org ______________________________ "Desire to Inspire" TKG
2020-05-1836 minBeyond Labels and LimitationsEpisode 009: All or NothingJen and John examine situations in their life as all or nothing. Is life with muscular dystrophy an all or nothing approach? Jen shares how her recent falls have helped her see life from a different perspective. John shares his recent struggles and how he looks at them. At the end of the podcast John shares a Taoist Farmer story that you're gonna want to hear. ______________________________ For more information and how to connect with Jen and John, please visit us at: Website:Beyond Labels & Limitations YouTube: YouTube Channel Email: B...
2020-05-0447 minBeyond Labels and LimitationsEpisode 008: Traveling with a Disability with Cory LeeJen and John talk with Cory Lee, a well traveled young man living with SMA. Cory Lee has traveled to 37 countries, 7 continents, and all before the age of 30! Cory shares his experience with flying and booking hotels. ________________________ Cory's Website: Curbfreewithcorylee.com Cory's Book: Let's Explore with Cor Cor John's Website: Beyond Labels & Limitations John's YouTube page: YouTube Email: BLLjenjohn@gmail.com ________________________ "Desire to Inspire" TKG
2020-04-2035 minBeyond Labels and LimitationsEpisode 007: Parenting with a DisabilityWhat's it like raising a child while you have a disability? Jen and John share their experience with raising a boy and a girl. John's YouTube Page: YouTube Website: BL&L Email: BLLjenjohn@gmail.com "Desire to Inspire" TKG
2020-04-1340 minBeyond Labels and LimitationsEpisode 006: Dating with a DisabilityJen and John share some of their personal dating stories. They'll also talk about what lead them to their spouse. Check-In: discuss coronavirus toll and John's fall Topic: Dating with a Disability. John share's a couple dating experiences he's had and what he got from them. Take Away: John's-Love yourself first. Make a list of the "Must Haves" and "Must not haves" when it comes to what you want in a partner. Jen's-Invest in yourself by getting clear and honest with who you really are. Not all dates are...
2020-03-3052 minBeyond Labels and LimitationsEpisode 005: Physical Health Check-inJen and John share their current physical struggles. The goal here is to look back in six months, September 2020, to see if these struggles were a blip or part of the progression of LGMD. Bio Compression Sequential Circulator: Bio Compression Sequential Circulator John's YouTube Channel: John's YouTube Channel Beyond Labels & Limitations Website: Beyond Labels & Limitations Email address: www.BLLjenjohn@gmail.com "Desire to Inspire" TKG
2020-03-1626 minBeyond Labels and LimitationsEpisode 004: A Spouse’s Perspective Part 1In episode 4, Jen and John interview Jen's husband, Keith, on how he sees LGMD and what it's like caring for someone he loves. John's website: Beyond Labels & Limitations John's YouTube page: John Graybill II Stand Aid Link: Stand Aid Email: BLLjenjohn@gmail.com "Desire to Inspire" TKG
2020-03-0938 minBeyond Labels and LimitationsEpisode 003: Dealing with FallsIn this episode, Jen and John talk about falling and the effects it has on them. They also share ways to minimize falling and a few takeaways to help you, if you find yourself in these situations. ___ For more information and how to connect with Jen and John, please visit us at: Beyond Labels & Limitations website:www.BeyondLabelsLimitations.com By Email:BLLjenjohn@gmail.com John Graybill's YouTube Channel ___ “Desire to Inspire” - TKG
2020-02-2546 minBeyond Labels and LimitationsEpisode 002: First sign something wasn’t right and getting diagnosedJen and John talk about when they noticed the first signs that something wasn’t right with them, how it was interpreted by their peers, and eventually getting diagnosed.They also share on this episode some advice for those of you with the diagnosis and those of you who haven’t gotten their exact diagnosis yet. FREE patient programs to get a genetic diagnosis are: Invitae Program: https://www.invitae.com/en/sponsored-testing/ Perkin Elmer Lantern Program: https://www.perkinelmergenomics.com/lanternproject/ ___ For more information and how to connect with Jen and J...
2020-02-0236 minBeyond Labels and LimitationsEpisode 001: Introducing Jen and JohnJen and John give a brief introduction into who they are and what they want to accomplish with this podcast. ___ For more information and how to connect with Jen and John, please visit us at: Beyond Labels & Limitations website: www.BeyondLabelsLimitations.com Email: BLLjenjohn@gmail.com John Graybill's YouTube Channel ___ “Desire to Inspire” - TKG
2020-01-1703 min