Shows
Boundless B PodcastBreaking the Barrier: Mental Health and Substance Use Access in the Bleeding Disorders CommunityWhen Kate Bazinsky received the call that a young man with Hemophilia had died by suicide after being denied by substance abuse and mental health treatment, she knew something had to change. In this powerful episode, Kate shares how that loss catalyzed the creation of the Bleeding Disorders Substance Use and Mental Health Access Coalition (BDSUMHAC). We explore the stigma, fear, and policy gaps that keep people with bleeding disorders from receiving the care they deserve—and the inspiring ways advocates are breaking down those barriers through data, tools, and hope.What You’ll Lear...
2025-10-2717 min
Global Hemophilia ReportI'm Fine. This Is Normal. Old Faithful Works for Me! Mental Health Challenges to ProgressOn this episode, we explore the concept of shared decision making (SDM) in modern hemophilia care. With insights from experts Brendan Hayes and Dr. Cedric Hermans, the discussion explores the evolution of treatment options, patient education, and the collaborative decision-making process. The conversation also highlights the development and impact of the SDM tool by the World Federation of Hemophilia, emphasizing the importance of patient empowerment and ongoing education. Guests: Kate Bazinsky Randy Curtis Debbie de la Riva Jackie Bottacari Senior Advisor: Donna DiMichele, MD...
2025-05-2942 min
Beyond the BleedsBD SUMHAC: Advocating for Fair Mental Health and Substance Use Treatment Part II with Kate Bazinsky & Joe HoelscherToday on Beyond the Bleeds, we sit down with Kate Bazinsky and Joe Hoelscher for part two of ‘BD SUMHAC Advocating for Fair Mental Health and Substance Use Treatment Part II’ and dive deep into the complexities of advocating for fair mental health and substance use treatment for people with bleeding disorders. Together, we break down the obstacles families face in accessing equitable inpatient or residential care, explore how advocacy shapes state and national policy, and share vital resources that empower our community to fight for their rights.
Kate Bazinsky is a dedicated advocate, mother, and driving force...
2025-05-2626 minBeyond the BleedsBD SUMHAC: Advocating for Fair Mental Health and Substance Use Treatment Part II with Kate Bazinsky & Joe HoelscherToday on Beyond the Bleeds, we sit down with Kate Bazinsky and Joe Hoelscher for part two of ‘BD SUMHAC Advocating for Fair Mental Health and Substance Use Treatment Part II’ and dive deep into the complexities of advocating for fair mental health and substance use treatment for people with bleeding disorders. Together, we break down the obstacles families face in accessing equitable inpatient or residential care, explore how advocacy shapes state and national policy, and share vital resources that empower our community to fight for their rights.
Kate Bazinsky is a dedicated advocate, mother, and driving force...
2025-05-2626 min
Beyond the BleedsBD SUMHAC: Advocating for Fair Mental Health and Substance Use Treatment Part I with Kate Bazinsky & Joe HoelscherToday on Beyond the Bleeds, we’re joined by Kate Bazinsky, chair of the Bleeding Disorder, Substance Use and Mental Health Access Coalition (BD SUMHAC), and Joe Hoelscher, a behavioral health specialist at the Hemophilia Outreach Center in Green Bay. Together, we shine a light on the painful and often unseen barriers faced by people with bleeding disorders when they seek inpatient mental health and substance use treatment. We discuss the origins of BD SUMHAC, the deep connections between chronic conditions, mental health, and substance use, and the urgent advocacy work happening to dismantle discrimination and secure equal access to...
2025-05-1228 minBeyond the BleedsBD SUMHAC: Advocating for Fair Mental Health and Substance Use Treatment Part I with Kate Bazinsky & Joe HoelscherToday on Beyond the Bleeds, we’re joined by Kate Bazinsky, chair of the Bleeding Disorder, Substance Use and Mental Health Access Coalition (BD SUMHAC), and Joe Hoelscher, a behavioral health specialist at the Hemophilia Outreach Center in Green Bay. Together, we shine a light on the painful and often unseen barriers faced by people with bleeding disorders when they seek inpatient mental health and substance use treatment. We discuss the origins of BD SUMHAC, the deep connections between chronic conditions, mental health, and substance use, and the urgent advocacy work happening to dismantle discrimination and secure equal access to...
2025-05-1228 min