Shows
Move It or Lose it - The PodcastEpisode 125 - Tiffany Kairos: Navigating Life with EpilepsyTiffany Kairos' life was filled with plans and excitement, but everything changed when she experienced her first seizure while driving. Her unexpected diagnosis with epilepsy led to a whirlwind of emotions and adjustments, forcing her to reevaluate her life and how she navigated her new reality. Tiffany has now been living with epilepsy for 16 years, and in our conversation we discussed the challenges and triumphs that come with managing a chronic condition. However, Tiffany's story is not just about her diagnosis; it's about resilience, community, and the importance of education. It to...2025-02-0522 minMove It or Lose it - The PodcastMS Disrupted 2025 Update from KathyAn update about MS Disrupted and the Move It or Lose It Podcast from Kathy Chester2025-01-2219 minMove It or Lose it - The PodcastHoliday Favorite! Episode 116 - Fabulous in Flats: Kelli Gastis' Journey with MSRecently I had a fantastic conversation with Kelli Gastis, an author and fellow MS warrior. Kelli shared her journey of being diagnosed with MS at 25 and how she navigated through various treatments, including natural remedies.We talked about Kelli's busy life before her MS diagnosis, working in the fashion industry and teaching dance and aerobics. She shared her initial symptoms of tingling and the journey to diagnosis, highlighting the challenges and uncertainties she faced.Eventually, Kelli transitioned from traditional medication to natural remedies, guided by a homeopathic doctor to explore different approaches to managing her...2024-12-2831 minMove It or Lose it - The PodcastHoliday Favorite! Episode 121 - Ethan Pollak and Pulse: Improving Mind-Muscle Connection and RecoveryDid you know that vibration therapy can help with cognitive function and motor skills? Recently I had the pleasure of speaking to Ethan Pollak who has developed a revolutionary device that is making waves in the rehab space for MS and stroke patients, amongst many others.As experienced weightlifters, Ethan and his co-founder, Cole, realized that many people struggle to engage certain muscles during workouts. They decided to create a product that could replicate the benefits of muscle tapping. After extensive research, they developed the Pulse Device, which uses vibration technology to improve performance and recovery.2024-12-2046 minMove It or Lose it - The PodcastHoliday Favorite! Episode 109 - Cadense: A Revolutionary Solution for Foot Drop and Mobility IssuesFoot drop - a difficulty in lifting the front part of the foot - is one of the most common issues I see with the people I work with. It can be caused by muscle weakness caused by muscular dystrophy, spinal muscular atrophy or motor neurone disease, or damage to the brain or spinal cord caused by a stroke, cerebral palsy, Parkinson's disease, or multiple sclerosis.There are many ways to manage foot drop - ranging from physiotherapy to electrical nerve stimulation - but my guest today is here to present what his company describes as the...2024-12-1840 minMove It or Lose it - The PodcastHoliday Favorite! Episode 114 - Love, Support, and MS: A Conversation with Cathy and Gary ChesterI'm delighted to present my recent chat with my almost-namesake Cathy Chester and her husband Gary. Cathy and Gary began dating in 1985, the year before Cathy's diagnosis, which means that at the time of recording they have been together for nearly 40 years - incredible!Cathy and Gary share valuable insights into the importance of communication and mutual respect in maintaining a happy and successful marriage, especially when facing the challenges of MS. They also emphasized the importance of empathy and understanding in their relationship. They acknowledge each other's needs and emotions, whether it's taking a break for...2024-12-1838 minMove It or Lose it - The PodcastEpisode 124 - Rhythm and Recovery: How Music Can Enhance Mobility in Neurological RehabilitationDid you know that music can improve our cognitive abilities and even aid rehabilitation for people with neurological conditions?Recently I had the pleasure of meeting Kirsten Smayda who holds a PhD in Auditory Cognitive Psychology, and we dove into the fascinating intersection of music, psychology, and health. Kirsten works at MedRhythms, and they are using the power of music and technology to redefine what's possible in brain health.Kirsten discovered the therapeutic potential of music while studying at the University of Texas at Austin. Her research has shown that learning to play an instrument...2024-12-0432 minMove It or Lose it - The PodcastEpisode 123 - Turning the Tables: Kathy Chester's Journey in MS, Movement, and MindsetIn a change from our regularly scheduled programming, today I had the pleasure of being interviewed by my wonderful colleague, Mollie Witt. We discussed our journey together, as she has been a personal training client of mine for nearly a year. She shared how our training sessions have transformed her life following her MS diagnosis.We talked about my passion for podcasting and memorable moments and emotional stories from podcast guests, before going on to talk about our new Disrupting MS Together program. Disrupting MS Together aims to empower individuals living with MS through functional...2024-11-2030 minMove It or Lose it - The PodcastEpisode 122 Part Two - From Athlete to Advocate: Brian Wallace's Journey with MSIn the second part of my conversation with former Michigan football player Brian Wallace, Brian shared his journey of coming to terms with his diagnosis and the emotional turmoil that accompanied it. He opened up about the initial fear and embarrassment he felt, especially as someone who had always been athletic. He expressed the difficulty of disclosing such personal news, particularly in a work environment. For nearly a decade, he kept his condition private, only revealing it when it became unavoidable. Throughout our conversation, we touched on the loneliness that often accompanies chronic illness. However...2024-10-3125 minMove It or Lose it - The PodcastEpisode 122 Part One - From Athlete to Advocate: Brian Wallace's Journey with MSBrian Wallace is a former Michigan football player, who shared his incredible journey with multiple sclerosis. His story is not just about sports; it's about resilience, determination, and the power of movement, especially for those of us living with MS.In the first of a two-part interview, Brian talked about growing up in a loving household, playing various sports, particularly hockey and football. His high school years were marked by recruitment from prestigious colleges, and he ultimately chose to play for the University of Michigan, where he had the opportunity to learn from legendary coaches like Bo...2024-10-3017 minMove It or Lose it - The PodcastEpisode 121 - Ethan Pollak and Pulse: Improving Mind-Muscle Connection and RecoveryDid you know that vibration therapy can help with cognitive function and motor skills? Recently I had the pleasure of speaking to Ethan Pollak who has developed a revolutionary device that is making waves in the rehab space for MS and stroke patients, amongst many others.As experienced weightlifters, Ethan and his co-founder, Cole, realized that many people struggle to engage certain muscles during workouts. They decided to create a product that could replicate the benefits of muscle tapping. After extensive research, they developed the Pulse Device, which uses vibration technology to improve performance and recovery.2024-10-1643 minMove It or Lose it - The PodcastEpisode 120 - Lydia Guerrero: Making Infusions Comfortable for AllLydia Guerrero founded Infusion Wear with a mission to create affordable adaptive wear, specifically designed for individuals undergoing medical treatments. Lydia was diagnosed with multiple sclerosis in 2011, and her DMT infusion process was made more uncomfortable by having to struggle with clothing that was either too tight or cumbersome.After seeing an adaptive sweatshirt online that was priced at $140, she realized there was a gap in the market for affordable, functional clothing. With her husband's support, she took matters into her own hands, literally sewing zippers into sweatshirts to make her infusion experience more comfortable. Lydia's grassroots...2024-10-0226 minMove It or Lose it - The PodcastEpisode 119 Part Two - Dr. Summer: A Journey Through MS and NMOIn part two of my conversation with Dr. Summer, we dive deep into her journey of becoming a physician after facing significant life challenges, including a divorce and becoming a single parent to her two boys. As we covered in the first part of this conversation, Dr. Summer was misdiagnosed with MS before receiving the correct diagnosis of neuromyelitis optica (NMO).After attending undergrad in Missouri and med school in Pennsylvania, Summer's path to becoming a physician was unconventional, marked by personal trials and triumphs. She shares her experience of transitioning to a power wheelchair and how...2024-09-1929 minMove It or Lose it - The PodcastEpisode 119 Part One - Dr. Summer: A Journey Through MS and NMOI recently enjoyed speaking with the incredible Dr. Summer about her remarkable story. I’ve been following her journey on TikTok, and I was eager to dive into her experiences with neuromyelitis optica (NMO), a condition that was initially misdiagnosed as multiple sclerosis (MS). Summer's resilience and determination to overcome her challenges are truly inspiring.In the first part of a two-part interview, Summer shared her journey from being misdiagnosed with MS to receiving the correct diagnosis of NMO. She explained that NMO is often confused with MS due to their similarities, but it has distinct characteristics th...2024-09-1821 minMove It or Lose it - The PodcastEpisode 117 - MS, Men and Mental Health: Robbie Gillett's Poetic PerspectiveThis episode is a return visit for Robbie Gillett, a talented poet who lives with MS. We talked about Robbie's initial struggles with his diagnosis and how it led him to writing poetry as a form of therapy and self-expression. With the support of his wife, who encouraged him to share his work, Robbie has used his poetry to raise awareness and provide hope to others.Robbie talked about his upcoming projects including a show and book titled "I Don't Like Poetry," which challenges stereotypes and perceptions about poetry.Robbie's message to newly diagnosed individuals...2024-08-2129 minMove It or Lose it - The PodcastEpisode 116 - Fabulous in Flats: Kelli Gastis' Journey with MSRecently I had a fantastic conversation with Kelli Gastis, an author and fellow MS warrior. Kelli shared her journey of being diagnosed with MS at 25 and how she navigated through various treatments, including natural remedies.We talked about Kelli's busy life before her MS diagnosis, working in the fashion industry and teaching dance and aerobics. She shared her initial symptoms of tingling and the journey to diagnosis, highlighting the challenges and uncertainties she faced.Eventually, Kelli transitioned from traditional medication to natural remedies, guided by a homeopathic doctor to explore different approaches to managing her...2024-08-0728 minMove It or Lose it - The PodcastEpisode 115 - Enhancing Mobility: The Science Behind Exoband with Dr. SempliciniI always love speaking to people who are working to improve the lives of people living with chronic health conditions. So I recently had the pleasure of interviewing Claudio Semplicini, an Italian doctor who co-created Exoband, a device aimed at assisting individuals with walking difficulties due to various neurological conditions. Exoband is a lightweight, easy-to-use device that stores and releases energy during the hip extension and flexion phases to aid walking. The device has been tested by over 1000 users worldwide and has shown effectiveness in a high proportion of patients with various conditions.Dr. Semplicini...2024-07-2415 minMove It or Lose it - The PodcastEpisode 114 - Love, Support, and MS: A Conversation with Cathy and Gary ChesterI'm delighted to present my recent chat with my almost-namesake Cathy Chester and her husband Gary. Cathy and Gary began dating in 1985, the year before Cathy's diagnosis, which means that at the time of recording they have been together for nearly 40 years - incredible!Cathy and Gary share valuable insights into the importance of communication and mutual respect in maintaining a happy and successful marriage, especially when facing the challenges of MS. They also emphasized the importance of empathy and understanding in their relationship. They acknowledge each other's needs and emotions, whether it's taking a break for...2024-07-1034 minMove It or Lose it - The PodcastEpisode 113 - Antonio Perez on Coming Out and Living with MSIn this special episode for Pride Month, I had the pleasure of chatting with Antonio Perez. Antonio shared his experiences as a member of the LGBTQ+ community living with multiple sclerosis. We delved into topics ranging from his MS symptoms to his journey of self-discovery and coming out. Antonio's openness and authenticity shone through as he shared his personal stories and struggles.Antonio discussed his MS symptoms, including recent issues due to the Texas heat. We also explored Antonio's journey of self-discovery, from realizing his attraction to boys in third grade to coming out to friends and...2024-06-2629 minMove It or Lose it - The PodcastEpisode 112 - Family Matters: Navigating MS TogetherToday I'm delighted to present a very special guest - my daughter Kaitlyn, plus my new granddaughter, Liliana. Together we delve into the topic of living with multiple sclerosis as a family, reflecting on the challenges and experiences we faced in the 90s and early 2000s.Kaitlyn shared her memories of my MS diagnosis during her childhood, highlighting the confusion she felt. We discussed the difficulty of explaining an invisible illness to others, especially when symptoms fluctuate.Kaitlyn also emphasized the value of open and honest communication within families when dealing with chronic illnesses. Sharing...2024-06-1216 minMove It or Lose it - The PodcastEpisode 111 - The Power of Habits in Transforming Autoimmune Health with Amy BehimerHabits play a crucial role in shaping our health and well-being, as I learned when I spent time with the incredible Amy Behimer. As well as having MS, Amy is a podcaster, a National Board Certified Health and Wellness Coach, and a Doctor of Pharmacy. Amy emphasizes the importance of habits in improving our overall health and how changing habits can lead to positive outcomes in our lives. She also introduces the concept of "disease-modifying habits" (DMHs) that focus on six key areas: mindset, food, movement, rest and relaxation, connection, and good stresses.As you'll...2024-05-2931 minMove It or Lose it - The PodcastEpisode 110 - Innovative Solutions for Chronic Conditions: Exploring BeWell's Adaptive Clothing LineIn this episode, I had the pleasure of chatting with Amanda Phillips, the director and creator of BeWell, a company dedicated to improving the lives of individuals with autoimmune diseases through thoughtfully designed apparel and products. As you'll hear, Amanda's story began with her struggle to manage Crohn's disease during long car rides, leading her to devise a makeshift emergency toilet using an ice cream bucket. This experience sparked her creativity and led to the development of the IV hoodie, designed to provide warmth and easy access for infusion treatments. In our conversation, we also touch on t...2024-05-1529 minMove It or Lose it - The PodcastEpisode 109 - Cadense: A Revolutionary Solution for Foot Drop and Mobility IssuesFoot drop - a difficulty in lifting the front part of the foot - is one of the most common issues I see with the people I work with. It can be caused by muscle weakness caused by muscular dystrophy, spinal muscular atrophy or motor neurone disease, or damage to the brain or spinal cord caused by a stroke, cerebral palsy, Parkinson's disease, or multiple sclerosis.There are many ways to manage foot drop - ranging from physiotherapy to electrical nerve stimulation - but my guest today is here to present what his company describes as the...2024-05-0137 minMove It or Lose it - The PodcastPop-up Episode 108 - Adam Powell is Back to Discuss his 2024 Bike Run and MS Walk PlansWarning Explicit LanguageAdam Powell - MSd with the Wrong MF'r - is back on the to podcast round up support for his upcoming MS Walk. His 2024 Bike Run is Sunday May 5th with proceeds going towards Walk MS Milford which is on May 19th. Last year at the MS Walk Milford he raised over 10K for the MS Society and this year he is looking to surpass that. The links below are available for your support.Contact AdamInsta: @msd_with_the_wrong_mfrMay 5th 2024 - 2024 Bike Run25/per Bik...2024-04-2622 minMove It or Lose it - The PodcastEpisode 107 - Empowering Through Advocacy: Catching Up with Jamie of LoveWarriorHugsIn this episode, I had a wonderful conversation with my close friend Jamie, whose handle on Instagram and TikTok is LoveWarriorHugs. Jamie was diagnosed with epilepsy at 18 and later with MS at 24, and we discussed life before diagnosis, the impact of her conditions on her daily life, and the importance of advocacy and support systems.Jamie emphasized the significance of finding a good doctor and being proactive in managing her health through medications and physical therapy. We also talked about the importance of reframing bad days, acknowledging limitations, and prioritizing self-care to navigate the ups and downs...2024-04-1734 minMove It or Lose it - The PodcastEpisode 106 - Navigating MS Together: A Conversation with Can Do MS's Julia KenderAs well as featuring stories of individuals who are living with MS on the podcast, I also like to shine a light on organizations that are working to offer support to our community. One of my favorites is Can Do MS, a national nonprofit organization that provides education, resources, and support for people with MS and their support partners. In this episode, I had the pleasure of speaking with Julia Kender, who joined Can Do MS as a Digital Content Specialist. She told me how her background in journalism and social media helped her to transition smoothly...2024-04-0326 minMove It or Lose it - The PodcastEpisode 105 - AJ McGinty - Finding Hope and Positivity After a Multiple Sclerosis DiagnosisAnthony (AJ) McGinty's MS journey began when he experienced symptoms of fuzzy vision when he was traveling for work, leading to a full diagnosis six years ago. Like so many of us, before being diagnosed, he had no experience or knowledge of MS. As you'll hear, he and I share a lot of the same views about the importance of exercise and staying active when you have MS.In this episode, Anthony shares his personal journey of being diagnosed with MS and how he initially struggled to adjust to having a chronic illness at a relatively young...2024-03-2035 minMove It or Lose it - The PodcastEpisode 104 Part Two - Disrupt Your Disease and Empower Your Life with Kathy ChesterIn a special two-part episode, we're taking a unique turn where I am the guest! My friend and marketing guru Amanda Thompson delves into the heart of what this podcast is all about and what the future holds for MS Disrupted.This time around we delve into my journey of public speaking, from sharing my experiences as a pastor's wife to speaking at events for women and youth groups. My speaking career began unexpectedly at AA meetings, where I shared what it was like growing up with an alcoholic parent, leading me to discover my passion for...2024-03-0724 minMove It or Lose it - The PodcastEpisode 104 Part One - Disrupt Your Disease and Empower Your Life with Kathy ChesterIn a special two-part episode, we're taking a unique turn where I am the guest! My friend and marketing guru Amanda Thompson delves into the heart of what this podcast is all about and what the future holds for MS Disrupted.The heart of the episode is the introduction of my new 10 Weeks to Disrupt MS Program, which addresses fitness, nutrition, and mental health, all tailored to the unique needs of our community.During our conversation, we reflect on the incredible journey of the podcast, and recent transitions in my professional life, from owning a...2024-03-0629 minMove It or Lose it - The PodcastEpisode 103 - Raw Stories of Living with MS - Julie Stamm and Dawn MorganIn this deeply personal and candid episode of the Move It or Lose It podcast, I, along with my guests Julie Stamm and Dawn Morgan, dive into the emotional rollercoaster that comes with living with Multiple Sclerosis. We share our raw and real experiences, discussing how our days can take unexpected turns due to the unpredictable nature of MS, and the profound impact it has on our emotional well-being. We open up about the emotional toll of living with MS and how it can make even the simplest tasks feel insurmountable.However, our discussion is not just...2024-02-2138 minMove It or Lose it - The PodcastEpisode 102 - From Surgery to Strength: Adam Powell's Road to RecoveryIn this episode of the Move It Or Lose It podcast, I am joined by Adam Powell, my friend and truly one of the most inspiring people that I know.Adam joined me to talk about his journey after knee surgery. In this interview, he talks about how his knee suddenly locked up one day, which caused him to realize that he had experienced similar problems before. Although Adam clarifies that his knee issues are not related to his Multiple Sclerosis, I think you'll find plenty of inspiration in his determination to return to a...2024-02-0737 minMove It or Lose it - The PodcastEpisode 101 Part Two - Roxanne Engstrom and Embracing Failure on the Path to SuccessRoxanne Engstrom is a multi-passionate entrepreneur who loves to help others win! She is also a wife, a Mama of 4, a visual storyteller - and an MS Warrior.In the final part of our two-part conversation, Roxanne talks more about the importance of surrounding ourselves with positive and supportive people. We discuss how toxic relationships can hinder our growth and how important it is to have a community of like-minded individuals who can uplift and inspire us.We also talk about Roxanne's amazing Styled Sessions, where she helps women feel empowered and confident through professional...2024-01-2526 minMove It or Lose it - The PodcastEpisode 101 Part One - Roxanne Engstrom and Embracing Failure on the Path to SuccessRoxanne Engstrom is a multi-passionate entrepreneur who loves to help others win! She is also a wife, a Mama of 4, a visual storyteller - and an MS Warrior.In the first part of a two-part conversation, Roxanne shares her experience of being diagnosed with multiple sclerosis and how it motivated her to create a fulfilling career that accommodated her health needs. She encourages listeners to pursue their dreams, whether it's starting a side hustle or exploring a new passion. We also discuss the power of community and the importance of surrounding yourself with supportive and like-minded individuals...2024-01-2436 minMove It or Lose it - The PodcastEncore - Episode 094 - Lyndsay Watterson, Walking Stick Designer to the Stars!Lyndsay Watterson has designed walking sticks used by Selma Blair and Christina Applegate. And if that's not impressive enough, she also performed death-defying circus moves at the closing ceremony of the 2012 Paralympic Games in London. While Coldplay performed!After having arthritis since her teens, Lyndsay had knee replacement surgery at age 39. But an infection left her in more pain, so she took the decision to have the leg she describes as "not a team player" amputated. By this time, she'd already decided that, as a younger lady with a disability, Lyndsay wanted a cool, confident walking stick...2024-01-0534 minMove It or Lose it - The PodcastEncore - Episode 83 - Part One - MS Warriors and their CaregiversOften on this podcast, we feature people with MS, talking to other people with MS, about living with MS. But this time, I wanted to provide an inside look into what it's like when your support person is the person you love and who lives with you. How do we make our relationships work so we can stay together, despite everything this crappy disease can throw at us? My guests are some of my favorite people from the MS world - Tyler Campbell, Chris Dunbar, Dan and Jennifer Digmann, and Julie Stamm. And where possible, I asked t...2023-12-2837 minMove It or Lose it - The PodcastEncore - Episode 092 - Roxy Murray - Multiple Sclerosis FashionistaMany people I've spoken to on the podcast have struggled to get an MS diagnosis, but Roxy Murray's story is especially frustrating. A UK-based podcaster, MS advocate, and fashionista, she first presented with MS at 18, waking up one day with double vision and intense headaches.They were rushed to hospital, undergoing an MRI and a Lumbar Puncture - standard tests for MS. However, Roxy was diagnosed with lupus, benign intracranial hypertension, and antiphospholipid syndrome.It would be almost another decade before Roxy was diagnosed with MS, by which point their disease had progressed. But the...2023-12-2740 minMove It or Lose it - The PodcastEncore - Episode 83 - Part One - MS Warriors and their CaregiversOften on this podcast, we feature people with MS, talking to other people with MS, about living with MS. But this time, I wanted to provide an inside look into what it's like when your support person is the person you love and who lives with you. How do we make our relationships work so we can stay together, despite everything this crappy disease can throw at us? My guests are some of my favorite people from the MS world - Tyler Campbell, Chris Dunbar, Dan and Jennifer Digmann, and Julie Stamm. And where possible, I asked th...2023-12-2736 minMove It or Lose it - The PodcastEpisode 100 - Laura Hancock, PhD - MS Specialist NeuropsychologistFor the 100th episode of the Move It Or Lose It podcast, I'm delighted to welcome back a guest who assisted me in one of my first webinars. Dr. Laura Hancock, PhD is a Board Certified Neuropsychologist, specializing in the treatment of people with Multiple Sclerosis. In this episode, we talk about what a clinical Neuropsychologist does, the work that Dr, Laura does at the Cleveland Clinic, and our frustration that a lot of people with MS don't know the benefits that working with a Neuropsychologist can bring. Laura also talks about the things she has noticed a...2023-12-1335 minMove It or Lose it - The PodcastEpisode 99 - Part Two - Dr. Samantha Roman aka That MS DocIf you're newly diagnosed with MS or have had it for years, one of the first places you're going to look for advice and support is social media. But as we all know, there's a lot of misinformation out there, and there aren't too many medical professionals who have the skills to communicate on video, and even fewer who are MS specialists.One of my recently discovered favorites is @thatmsdoc on TikTok, aka the awesome Dr. Samantha Roman. And not only is Dr. Sam a Johns Hopkins-trained MS neurologist, but she's also living with...2023-11-3026 minMove It or Lose it - The PodcastEpisode 99 - Part One - Dr. Samantha Roman aka That MS DocIf you're newly diagnosed with MS or have had it for years, one of the first places you're going to look for advice and support is social media. But as we all know, there's a lot of bad information out there, and there aren't too many medical professionals who have the skills to communicate on video, and even fewer who are MS specialists.One of my recently discovered favorites is @thatmsdoc on TikTok, aka the awesome Dr. Samantha Roman. And not only is Dr. Sam a Johns Hopkins-trained MS neurologist, but she's also living...2023-11-2928 minMove It or Lose it - The PodcastEpisode 98 - The Return of Sam Greenberg from MS4MSSam Greenberg is the Founder and CEO of MS4MS (Mission Stadiums for Multiple Sclerosis), an entertainment-focused non-profit organization. Its mission is to raise awareness of MS, while raising funds for affected families and to aid research at the Johns Hopkins Project Restore MS Research Center in hopes of finding a cure. Founded in 2011, MS4MS is now a nationally recognized non-profit making big impacts in the lives of people with MS and their families.Sam was one of the first guests on the Move It or Lose It podcast back in June 2021 so I th...2023-11-1530 minMove It or Lose it - The PodcastEpisode 97 - Part Two - MS TikTok star Paige Butas aka MSfighter101After any Multiple Sclerosis diagnosis, one of the key things that you're going to need is a sense of community. And if you're looking for community online, more and more you will be looking on TikTok.There are a lot of MSers on TikTok but in this episode, I'm continuing to talk to one of the most established presences on that site, Paige Butas aka MSfighter 101. Paige uses her channel to show how she's adapting to life with MS and continuing to thrive.In the final part of our...2023-11-0232 minMove It or Lose it - The PodcastEpisode 97 - Part One - MS TikTok star Paige Butas aka MSfighter101After any Multiple Sclerosis diagnosis, one of the key things that you're going to need is a sense of community. And if you're looking for community online, more and more you will be looking on TikTok.There are a lot of MSers on TikTok but over the next two episodes, I'm talking to one of the most established presences on that site, Paige Butas aka MSfighter 101. Paige uses her channel to show how she's adapting to life with MS and continuing to thrive.In the first part of this interview, Paige tells...2023-11-0125 minMove It or Lose it - The PodcastEpisode 96 - Adapting to a New Diagnosis with Victoria GarnerAlthough our primary focus on the podcast is Multiple Sclerosis, we're well aware that the diagnosis journey for different conditions can be very similar. For one thing, people often have no prior knowledge of their condition before they're diagnosed.In this episode, I talk to my friend Victoria Garner about her experience of being diagnosed with Chikungunya Virus. This is a viral disease that is spread to people by the bite of an infected mosquito. The most common symptoms of infection are fever and joint pain. But as you'll hear, Victoria also experienced brain fog and neurological...2023-10-1838 minMove It or Lose it - The PodcastEpisode 95 - Part Two - MS and IntimacySexual dysfunction is any problem that prevents a person or couple from experiencing satisfaction from sexual activity. Some 43% of women and 31% of men report some degree of sexual dysfunction, according to the Cleveland Clinic.And if you add in an autoimmune condition like Multiple Sclerosis, that number can go as high as 69%.So to talk frankly about this important issue, particularly from the viewpoint of married women, I drafted in three of my favorite MSers - Roxanne Engstrom, Julie Stamm, and Amanda Thompson. In the final part of this discussion, we cover talking w...2023-10-0537 minMove It or Lose it - The PodcastEpisode 95 - Part One - MS and IntimacySexual dysfunction is any problem that prevents a person or couple from experiencing satisfaction from sexual activity. Some 43% of women and 31% of men report some degree of sexual dysfunction, according to the Cleveland Clinic.And if you add in an autoimmune condition like Multiple Sclerosis, that number can go as high as 69%.So to talk frankly about this important issue, particularly from the viewpoint of married women, I drafted in three of my favorite MSers - Roxanne Engstrom, Julie Stamm, and Amanda Thompson. In the first part of a two-part discussion, we talk a...2023-10-0426 minMove It or Lose it - The PodcastEpisode 094 - Lyndsay Watterson, Walking Stick Designer to the Stars!Lyndsay Watterson has designed walking sticks used by Selma Blair and Christina Applegate. And if that's not impressive enough, she also performed death-defying circus moves at the closing ceremony of the 2012 Paralympic Games in London. While Coldplay performed!After having arthritis since her teens, Lyndsay had knee replacement surgery at age 39. But an infection left her in more pain, so she took the decision to have the leg she describes as "not a team player" amputated. By this time, she'd already decided that, as a younger lady with a disability, Lyndsay wanted a cool, confident walking stick...2023-09-2034 minMove It or Lose it - The PodcastEpisode 093 - MS Warrior Antonio PerezOne of my favorite things about doing this podcast is meeting young people who are taking on MS and using all of the tools at their disposal to shed light on this crappy disease.Antonio Perez was diagnosed with Primary Progressive MS (PPMS) in 2022. As a young queer man, he was disappointed by the lack of LGBTQIA+ voices within the MS community. So Antonio uses TikTok to talk about his experiences and raise awareness about Multiple Sclerosis, a condition that can affect anybody. In this conversation, we talk about Antonio's diagnosis journey, his advocacy work...2023-09-0626 minMove It or Lose it - The PodcastEpisode 092 - Roxy Murray - Multiple Sclerosis FashionistaMany people I've spoken to on the podcast have struggled to get an MS diagnosis, but Roxy Murray's story is especially frustrating. A UK-based podcaster, MS advocate, and fashionista, she first presented with MS at 18, waking up one day with double vision and intense headaches.They were rushed to hospital, undergoing an MRI and a Lumbar Puncture - standard tests for MS. However, Roxy was diagnosed with lupus, benign intracranial hypertension, and antiphospholipid syndrome.It would be almost another decade before Roxy was diagnosed with MS, by which point their disease had progressed. But the...2023-08-2340 minMove It or Lose it - The PodcastEpisode 091 - Part Two - Dr. Jim Jackson and Clearing The FogWhen the COVID pandemic started, I was very aware that otherwise-healthy people were experiencing things that we in the Chronic Illness Community have known about for a long time - notably the loss of cognitive function. And with cases of Long COVID, these problems are seemingly here to stay.Dr. James “Jim” Jackson is an internationally renowned expert on Long COVID and its effects on cognitive and mental health functioning. A licensed psychologist specializing in neuropsychology and cognitive rehabilitation, he is also the co-founder and director of Behavioral Health at the award-winning ICU Recovery Center, one of the...2023-08-1023 minMove It or Lose it - The PodcastEpisode 091 - Part One - Dr. Jim Jackson and Clearing The FogWhen the COVID pandemic started, I was very aware that otherwise-healthy people were experiencing things that we in the Chronic Illness Community have known about for a long time - notably the loss of cognitive function. And with cases of Long COVID, these problems are seemingly here to stay.Dr. James “Jim” Jackson is an internationally renowned expert on Long COVID and its effects on cognitive and mental health functioning. A licensed psychologist specializing in neuropsychology and cognitive rehabilitation, he is also the co-founder and director of Behavioral Health at the award-winning ICU Recovery Center, one of the...2023-08-0927 minMove It or Lose it - The PodcastEpisode 090 - Address MSToday I'm talking to some amazing young people from Address MS, a student-led organization that is dedicated to raising money for and educating the community about Multiple Sclerosis. The students involved with Address MS don't have MS, they're just really passionate about raising awareness of the disease. And, as a non-profit, any money that they raise goes straight to the National MS Society. I caught up with current Executive Director Taran and Director of Journalism Menal to find out more about why this incredible group of young people chose to focus on MS. Among other...2023-07-2631 minMove It or Lose it - The PodcastEpisode 089 - Neuro Opthomologist Dr. Rudrani Banik and Ocular NutritionI'm delighted to have Dr. Rudrani Banik returning to the podcast today. Dr. Rudrani Banik is a Board-certified Ophthalmologist, fellowship-trained Neuro-Ophthalmologist, and Functional Medicine expert. She is internationally known for her expertise in ophthalmic and neuro-ophthalmic care. Dr. Rudrani manages a wide spectrum of conditions affecting vision, as well as the complex connections between the eye and brain. She applies principles of complementary and alternative medicine in conjunction with traditional medical approaches to treat chronic diseases affecting the visual system. In another fascinating chat, we talk about the importance of diet in maintaining eye...2023-07-1234 minMove It or Lose it - The PodcastEpisode 088 - Part Two - Ardra Shephard is Tripping on AirWhen the time came for Ardra Shephard to start using mobility aids, she was frustrated to note that there was no representation – in fashion or the media – of disabled people using their mobility aids, while looking GOOD. So she decided to change the narrative.Ardra is now a sought-after writer, consultant, and speaker, whose award-winning blog Tripping On Air has an international reach and reputation. She is also the creator and host of AMI-tv’s lifestyle series Fashion Dis, which is a game-changer in the makeover space, challenging traditional norms that lack inclusion. In the...2023-06-2923 minMove It or Lose it - The PodcastEpisode 088 - Part One - Ardra Shephard is Tripping on AirAs we all know, MS can seem to be the gift that keeps on taking. And if there comes a time when you need to use a mobility aid, it can be a hard pill to swallow.When that time came for Ardra Shephard, she was frustrated to note that there was no representation – in fashion or the media – of disabled people using their mobility aids, while looking GOOD. So she decided to change the narrative.Ardra is now a sought-after writer, consultant, and speaker, whose award-winning blog Tripping On Air has an international reach and...2023-06-2821 minMove It or Lose it - The PodcastEpisode 087 - Dating with a chronic illness - Alexa and Jacqueline Child of DateabilityWe've previously talked about what it is like to have an Autoimmune Disease, such as MS, while being single. How can you meet new people? And how do you know if - and when - you will feel able to reveal your health story?After becoming disabled due to chronic illnesses as a teenager, Jacqueline Child was quickly exposed to the ableist behaviors and expectations perpetuated by society. In particular, she found dating challenging, as people with disabilities and chronic illnesses frequently encounter ableism on dating apps. For this reason, Jacqueline and her sister Alexa c...2023-06-1427 minMove It or Lose it - The PodcastEpisode 086 - Stuart Schlossman of MS Views and NewsStuart Schlossman was traveling for work when the first symptoms of what was later diagnosed as Multiple Sclerosis knocked him off his feet. Since receiving his diagnosis in 1998, he has been an active and vocal voice in the MS community. In 2009, Stuart launched MS Views and News, a national organization that provides educational programs, patient advocacy, and resources to empower and enhance the quality of life for the MS community.In our conversation, we talk about Stuart's diagnosis journey, taking his first DMT doses alongside the President (you'll need to listen to the episode to understand this...2023-05-3132 minMove It or Lose it - The PodcastEpisode 085 - Part Two - Robbie Gillett AKA Beneath the Track SuitRobbie Gillett was at work when he became unable to move as he was installing a kitchen unit. He was convinced that he was dying or having a stroke but eventually, he was diagnosed with Multiple Sclerosis - twice!As a way to process his new reality, Robbie began writing poetry, which has been published in his first collection, Thoughts of a Warrior: Beneath the Tracksuit.In the final part of my interview with Robbie, he talks about how poetry helped him to deal with his depression, writing and publishing his first collection using his...2023-05-1827 minMove It or Lose it - The PodcastEpisode 085 - Part One - Robbie Gillett AKA Beneath the Track SuitRobbie Gillett was at work when he became unable to move as he was installing a kitchen unit. He was convinced that he was dying or having a stroke but eventually, he was diagnosed with Multiple Sclerosis - twice!As a way to process his new reality, Robbie began writing poetry, which has been published in his first collection, Thoughts of a Warrior: Beneath the Tracksuit.In the first part of a two-part interview, Robbie talks about his journey to a definitive diagnosis, his initial experiences with Disease Modifying Therapies, and the process of finding...2023-05-1727 minMove It or Lose it - The PodcastEpisode 83 - Part Two - MS Warriors and their CaregiversOften on this podcast, we feature people with MS, talking to other people with MS, about living with MS. But this time, I wanted to provide an inside look into what it's like when your support person is the person you love and who lives with you. How do we make our relationships work so we can stay together, despite everything this crappy disease can throw at us? My guests are some of my favorite people from the MS world - Tyler Campbell, Chris Dunbar, Dan and Jennifer Digmann, and Julie Stamm. And where possible, I asked t...2023-04-2037 minMove It or Lose it - The PodcastEpisode 83 - Part One - MS Warriors and their CaregiversOften on this podcast, we feature people with MS, talking to other people with MS, about living with MS. But this time, I wanted to provide an inside look into what it's like when your support person is the person you love and who lives with you. How do we make our relationships work so we can stay together, despite everything this crappy disease can throw at us? My guests are some of my favorite people from the MS world - Tyler Campbell, Chris Dunbar, Dan and Jennifer Digmann, and Julie Stamm. And where possible, I asked th...2023-04-1936 minMove It or Lose it - The PodcastEpisode 82 - Part Two - Dr. Misha Kogan: Medical MarijuanaThe legal use of cannabis and CBD as a treatment for all manner of chronic illnesses continues to be something that is big news - patients increasingly request it but legislators are either slow to recognize the benefits or availability is inconsistent throughout the US.My guest today is Dr. Mikhail (Misha) Kogan, who previously appeared on Episode 71 of the Move It Or Lose It podcast. He describes cannabis as the best palliative drug we have and is the author of Medical Marijuana: Dr. Kogan's Evidence-Based Guide to the Health Benefits of Cannabis and CBD....2023-04-0626 minMove It or Lose it - The PodcastEpisode 82 - Part One - Dr. Misha Kogan: Medical MarijuanaThe legal use of cannabis and CBD as a treatment for all manner of chronic illnesses continues to be something that is big news - patients increasingly request it but legislators are either slow to recognize the benefits or availability is inconsistent throughout the US.My guest today is Dr. Mikhail (Misha) Kogan, who previously appeared on Episode 71 of the Move It Or Lose It podcast. He describes cannabis as the best palliative drug we have and is the author of Medical Marijuana: Dr. Kogan's Evidence-Based Guide to the Health Benefits of Cannabis and CBD....2023-04-0539 minMove It or Lose it - The PodcastEpisode 81 - Part Two - Dan & Jennifer Digmann: A Couple Takes on MSJennifer and Dan Digmann have been married since 2005 and have lived with Multiple Sclerosis throughout their relationship - Jennifer was diagnosed in 1997, Dan in the year 2000. They met at a National Multiple Sclerosis Society event in 2002, and since then, they have dedicated their lives to MS activism and helping others to live their best lives. In the final part of this two-part interview, Dan & Jennifer talk about the effect that COVID has had on their advocacy work, and their plans for the future, including their podcast and YouTube channel. We also chat about the difficulty of finding s...2023-03-2328 minMove It or Lose it - The PodcastEpisode 81 - Part One - Dan & Jennifer Digmann: A Couple Takes on MSJennifer and Dan Digmann have been married since 2005 and have lived with Multiple Sclerosis throughout their relationship - Jennifer was diagnosed in 1997, Dan in the year 2000. They met at a National Multiple Sclerosis Society event in 2002, and since then, they have dedicated their lives to MS activism and helping others to live their best lives. In the first part of a two-part interview, Dan & Jennifer share the story of their diagnosis, their relationship, and how they got started in advocacy. They also talk about the different DMTs they have taken, the equipment that Jennifer uses, and - o...2023-03-2241 minMove It or Lose it - The PodcastEpisode 80 - Part Two - Darrell Wordelmann and Single Parents with MSDarrell Wordelmann, the face of Rooney’s Oceanfront Restaurant, loves the mental and physical challenge that the restaurant business brings. After caring for his mother, who had Progressive Multiple Sclerosis, he received his own MS diagnosis in 2020.Darrell and his brother Bobby were blessed that, growing up, their father was around but that is not the case for all families. So nowadays, Darrell is driven to support the needs of families whose primary caregiver has been diagnosed with MS, and single-parent families in particular.In the second part of a two-part interview, Darrell talks about Sin...2023-03-0920 minMove It or Lose it - The PodcastEpisode 80 - Part One - Darrell Wordelmann and Single Parents with MSDarrell Wordelmann has been the face of Rooney’s Oceanfront Restaurant for the last 27 years, and he loves the mental and physical challenge that the restaurant business brings. He grew up in a house where his mother had Progressive MS. Because of this, Darrell has been an advocate for Multiple Sclerosis for over 20 years, before receiving his own diagnosis in 2020.In the first part of a two-part interview, Darrell talks about growing up in a house where he and his brother had to care for his mother, his life running a busy restaurant, and his own...2023-03-0832 minMove It or Lose it - The PodcastEpisode 79 - Part Three - Sex, Intimacy, and Multiple Sclerosis with Dr. Jera Tolliver-ScottIn this three part series, Dr. Jera Tolliver-Scott, an expert in the field of sexual intimacy for people with multiple sclerosis, who isn’t afraid to tackle this tricky subject. With years of research and studying, she’s compiled data from patients about common sexual dysfunction problems, like vaginal lubricants, physical pain, vaginal pain, erectile dysfunction, and communication when it comes to sex. Being diagnosed with multiple sclerosis in 2014, she has a unique understanding of the challenges that MS patients face. While still teaching, she also uses therapeutic approaches, like Cognitive Behavioral Therapy (CBT) and Person-Centered Therapy, to he...2023-02-2434 minMove It or Lose it - The PodcastEpisode 79 - Part Two - Sex, Intimacy, and Multiple Sclerosis with Dr. Jera Tolliver-ScottIn this three part series, Dr. Jera Tolliver-Scott, an expert in the field of sexual intimacy for people with multiple sclerosis, who isn’t afraid to tackle this tricky subject. With years of research and studying, she’s compiled data from patients about common sexual dysfunction problems, like vaginal lubricants, physical pain, vaginal pain, erectile dysfunction, and communication when it comes to sex. Being diagnosed with multiple sclerosis in 2014, she has a unique understanding of the challenges that MS patients face. While still teaching, she also uses therapeutic approaches, like Cognitive Behavioral Therapy (CBT) and Person-Centered Therapy, to he...2023-02-2319 minMove It or Lose it - The PodcastEpisode 79 - Part One - Sex, Intimacy, and Multiple Sclerosis with Dr. Jera Tolliver-ScottIn this three part series, Dr. Jera Tolliver-Scott, an expert in the field of sexual intimacy for people with multiple sclerosis, who isn’t afraid to tackle this tricky subject. With years of research and studying, she’s compiled data from patients about common sexual dysfunction problems, like vaginal lubricants, physical pain, vaginal pain, erectile dysfunction, and communication when it comes to sex. Being diagnosed with multiple sclerosis in 2014, she has a unique understanding of the challenges that MS patients face. While still teaching, she also uses therapeutic approaches, like Cognitive Behavioral Therapy (CBT) and Person-Centered Therapy, to he...2023-02-2226 minMove It or Lose it - The PodcastEpisode 77 - Part Two - Kathy Costello - Can Do MSThis is Part Two of a Two Part interview with Kathy Costello of Can Do MS. Kathy is the COO of Can DO MS. Can Do MS is a national nonprofit organization that delivers health and wellness education programs on exercise, nutrition, symptom management, and motivation to help families living with MS thrive.Each month, a variety of live programs are offered to help people living with MS and their support partners build connections, learn from healthcare professionals, and address their own unique challenges. Topics include nutrition, exercise, cognition, fatigue, relationships, family planning, employment, and more!...2023-01-2638 minMove It or Lose it - The PodcastEpisode 77 - Part One - Kathy Costello - Can Do MSThis is Part One of a Two Part interview with Kathy Costello of Can Do MS. Kathy is the COO of Can DO MS. Can Do MS is a national nonprofit organization that delivers health and wellness education programs on exercise, nutrition, symptom management, and motivation to help families living with MS thrive.Each month, a variety of live programs are offered to help people living with MS and their support partners build connections, learn from healthcare professionals, and address their own unique challenges. Topics include nutrition, exercise, cognition, fatigue, relationships, family planning, employment, and more!...2023-01-2541 minMove It or Lose it - The PodcastEpisode 76 - Part Three of Three - Singles with MS - Being Single with an Autoimmune DiseaseThis is Part Two of a Three Part Series airing Back to Back to Back. Kathy interviews a panel of single people with MS. They take a deep dive into what it is like to has an Autoimmune Disease such as MS and be Single. The Discussion covers Dating, overcoming loneliness and even the potential of Online Dating.Find out more about my new DMAT Fitness Training programVisit MS DisruptedYou can find Kathy Chester atdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Instagram...2023-01-1332 minMove It or Lose it - The PodcastEpisode 76 - Part Two of Three - Singles with MS - Being Single with an Autoimmune DiseaseThis is Part Two of a Three Part Series airing Back to Back to Back. Kathy interviews a panel of single people with MS. They take a deep dive into what it is like to has an Autoimmune Disease such as MS and be Single. The Discussion covers Dating, overcoming loneliness and even the potential of Online Dating.Find out more about my new DMAT Fitness Training programVisit MS DisruptedYou can find Kathy Chester atdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Instagram...2023-01-1229 minMove It or Lose it - The PodcastEpisode 76 - Part One of Three - Singles with MS - Being Single with an Autoimmune DiseaseThis is Part One of a Three Part Series airing Back to Back to Back. Kathy interviews a panel of singles with MS. They take a deep dive into what it is like to has an Autoimmune Disease such as MS and being Single. The Discussion covers Dating, overcoming loneliness and even the potential of Online Dating.Find out more about my new DMAT Fitness Training programVisit MS DisruptedYou can find Kathy Chester atdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Instagram - @msmoveitorloseit @disruptfitnessgym2023-01-1136 min
Patients Getting PaidPGP Helps Chronics Keep Hope Alive and Feel Productive w/PGP Member Kathy ChesterKathy visits with a PGP member to get their take on what has been most valuable about the PGP membership for their business. This time she catches up with Kathy Chester, who was previously heard on Episode 16 (Making Your Passion Your Chronicpreneur Business). A valued member of the PGP community, Kathy C. says that the coaching sessions inside the membership can "breathe life back into you". If you've been debating whether to join the PGP Community, visit PatientsGettingPaid.com for more information, but don't forget that there's a price increase right around the corner! 2022-10-2520 minMove It or Lose it - The PodcastEpisode 58 - A Message From Kathy About CourageInspired by my recent chat with Adam Powell, I share some personal thoughts about Courage, my word of the year.In my experience, people within the chronic illness community don't give themselves enough credit for all of the courageous things that they do. Or they don't realize how courageous the everyday things that they do truly are!In this episode, as well as sharing thoughts on what courage means to me, we also include recordings from Adam Powell's Walk for MS. I was honored to attend and support him as he crossed the finish line...2022-05-2512 minMove It or Lose it - The PodcastEpisode 55 - Encore Interview - Brittany Quiroz - A Hot MS - Cancer PrevivorToday's Interview is an Encore Episode originally aired in October of 21 with Brittany Quiroz - A Hot MS - MS Influencer - Brittany is a Singer - Songwriter, Motivational Speaker and Cancer PrevivorIn Britany's own words - Being diagnosed with a neurological disability at the age of 30 is enough to make anyone climb into a hole, curl up and start burying yourself alive. The initial reaction of shock, fear, grief overwhelms us and we are left frozen. Unsure of where we go next. Just saying “it’s a lot to take in” doesn’t ev...2022-05-0756 minMove It or Lose it - The PodcastEpisode 53 - Encore Interview - Mike Stafford - Blogger, Author and MS Patient Today's Encore Interview (originally aired in Oct. 2021) is with Mike Stafford _ New Blogger, Author and MS PatientMike is a fellow MS Warrior and recently started a new Blog which depicts his positive views regarding his MS journey. While Mike might be new to blogging and an up and comer as an MS Influencer, Kathy has found inspiration in Mike's Blog and felt you would appreciate it as well. Please to to Mike's Blob and Enjoy this short but sweet episode.Ways to Reach Mike Stafford: myke89ny@yahoo.com Website: https://mymsh...2022-05-0524 minMove It or Lose it - The PodcastEpisode 52b -Encore Interview - Dr. Rudrani Banik - Neuro OphthalmologistMy guest today is Dr Rudrani Banik. Dr. Banik is internationally known for her expertise in ophthalmic and neuro-ophthalmic care. She manages a wide spectrum of conditions affecting vision, as well as the complex connections between the eye and brain. What first got me interested was how she combines traditional medical and surgical treatments of the eye with nutritional and lifestyle approaches for a more integrated approach to vision and brain health. In this fascinating chat, we talk about what happens during an ophthalmological exam, the most common neurological eye symptoms, t...2022-05-0446 minMove It or Lose it - The PodcastEpisode 49 - Erin Glace on Pelvic Floor DysfunctionPelvic floor dysfunction is something that many people with MS (both men and women) will experience. But not everyone is comfortable talking about it. Luckily, my guest today LOVES talking about this important issue!Erin Glace PT, MSPT, PRPC is a physical therapist who specializes in pelvic health. She has over 25 years of experience treating women with pelvic floor problems and has lectured locally and internationally on physical therapy care for pelvic health. In this conversation, we talk about how the practice of treating pelvic floor dysfunction has evolved, my own experiences of seeking help f...2022-04-1348 minMove It or Lose it - The PodcastEpisode 41 - February’s Wine Down Wednesday - Women Warrior RoundtableYet again I’m gathering some of my favorite women from the MS world to share our stories and experiences with you. This month I’m joined by Brooke Slick, Jen Phegley, Melody Sapien, Dawn Morgan, Julie Stamm and Terry Hord. This time around there are two big topics that we discuss - how people with chronic health conditions are feeling about returning to work as COVID restrictions are being lifted, and what we know (and don’t know!) about the link between the Epstein-Barr virus and Multiple Sclerosis.DISCLAIMERThe information contain...2022-02-231h 00Move It or Lose it - The PodcastEpisode 39 - Part 2 of Kathy‘s Interview with Tamara and Terry of Twins Coast 2 CoastWhen I met with Tamara Kahn and Terry Hord of Twins Coast 2 Coast, we had so much to say that we had to split it over two episodes! In this second part, we talk about how it was for Tamara to get her MS diagnosis, after seeing how it had impacted the life of her twin sister.As well as talking more about their advocacy work, the twins also discuss learning to accept mobility aids, the need to Move It Or Lose It, their experiences of isolation brought on by the COVID pandemic, and...2022-02-0936 minMove It or Lose it - The PodcastUpdated Episode 38 - Kathy‘s interview with Tamara and Terry of Twins Coast 2 Coast Part 1I’m delighted that my guests today are Tamara Kahn and Terry Hord, twin sisters who both have MS. Following their diagnosis, they have been navigating their lives with secondary Progressive MS and advocating through work for the National MS Society, their Twins Coast 2 Coast website, and on Instagram.In the first of a two-part interview, they talk about being diagnosed with the same chronic illness, married life, changes they’ve seen in Disease Modifying Therapies, and how their advocacy work is inspired by their mother’s death from a rare form of cancer. The re...2022-02-0233 minMove It or Lose it - The PodcastEpisode 37 - Women of MS - Kathy's Women Warrior RoundtableYet again I’m gathering some of my favorite women from the MS world to share our stories and experiences with you. In this wide-ranging roundtable, I’m joined by Brooke Slick, Jen Phegley, Melody Sapien, plus Tamara Kahn and Terry Hord from Twins Coast 2 Coast. We talk about managing our chronic illness without health insurance, links between family and MS, the mental health crisis, nutrition and health, and much more. Links and resources:Visit my guests: Brooke Slick, Jen Phegley, Melody Sapien, Tamara Kahn, and Te...2022-01-261h 01Move It or Lose it - The PodcastEpisode 35 - Interview - Dr. Rudrani Banik - Neuro OphthalmologistMy guest today is Dr Rudrani Banik. Dr. Banik is internationally known for her expertise in ophthalmic and neuro-ophthalmic care. She manages a wide spectrum of conditions affecting vision, as well as the complex connections between the eye and brain. What first got me interested was how she combines traditional medical and surgical treatments of the eye with nutritional and lifestyle approaches for a more integrated approach to vision and brain health. In this fascinating chat, we talk about what happens during an ophthalmological exam, the most common neurological eye symptoms, t...2022-01-1246 minMove It or Lose it - The PodcastEpisode 34 - Interview - Rachel Sullivant - Neuro ChiropractorWe all know that a chiropractor can relieve pain in your joints and muscles. But did you know that these pains might be caused by poor nutrition, stress, lifestyle, effects from medication, and chronic illness?I recently discovered the work of Rachel Sullivant, a Chiropractic Neurologist who is currently based in Michigan. She first became interested in chiropractic neurology after using it to manage her own debilitating migraines. This area is something exciting and relatively new in the chronic illness and autoimmune disease community, so I wanted to check it out.Links and r...2022-01-0531 minMove It or Lose it - The PodcastEncore - Episode 33 - Part 2 - Interview - Kathy Reagan Young - FUMS Podcast, Author and MS Warrior and AdvocateToday's Interview is Part Two of a Two Part Interview with Kathy Reagan Young. Kathy was diagnosed in 2008. She found everything that was on the internet at that time was horrible. She decided to change that in 2011 by building a website to show people that there is life after diagnosis - and it can be a great one! Then - in 2015 - she started the FUMS Podcast Show - to provide information, inspiration, and motivation to live your best life with MS. She interviews people living with MS and experts in the disease to help everyone with MS. Kathy a...2021-12-3035 minMove It or Lose it - The PodcastEncore Episode 32 - Part One - Kathy Reagan Young - FUMS Podcast, Author and MS Warrior and AdvocateToday's Interview is Part One of a Two Part Interview with Kathy Reagan Young. Kathy was diagnosed in 2008. She found everything that was on the internet at that time was horrible. She decided to change that in 2011 by building a website to show people that there is life after diagnosis - and it can be a great one! Then - in 2015 - she started the FUMS Podcast Show - to provide information, inspiration, and motivation to live your best life with MS. She interviews people living with MS and experts in the disease to help everyone with MS. Kathy a...2021-12-2948 minMove It or Lose it - The PodcastEpisode 31 - Interview with Damian Washington - Actor, Comedian and MS WarriorDamian was diagnosed with multiple sclerosis a few years ago and have been making content about the disease ever since. His weekly YouTube channel has 3,500 + engaged subscribers who've said he is a breath of fresh air in the MS content space. He sits on Genentech's Patient Advisory Board and MS Focus' Patient Advisory Group and makes content for MS Views & News. The National MS Society featured him in a few of their latest videos and has run Shift.MS's Twitter Takeover a couple of times. He is an actor who's done 30+ commercials for brands like Fruit Of the Loom...2021-12-2254 minMove It or Lose it - The PodcastEpisode 30- Part Two - Women of MS - Kathy's Women Warrior RoundtableIn this Episode, Part Two of a Two Part Round table Interview with 8 prominent Women in the MS World. MS Warriors and Advocates. This gets real as these women open up about topics such as Acceptance, Advocacy and Intimacy.Here is the list of products discusses in this episode:Our Best Sex Toyswww.we-vib.comCamino Gummies.www.kivaconfections.comOure Enrichment Peak Wand Massagerwww.adameve.comCBD Productswww.venacbd.comHere is a list of Guests and where they ca...2021-12-1548 minMove It or Lose it - The PodcastEpisode 29 - Part One - Women of MS - Kathy's Women Warrior RoundtableIn this Episode, Part One of a Two Part Roundtable Interview with 8 prominent Women in the MS World. MS Warriors and Advocates. This gets real as these women open up about topics such as Acceptance, Advocacy and Intimacy.Here is the list of products discusses in this episode:Our Best Sex Toyswww.we-vib.comCamino Gummies.www.kivaconfections.comOure Enrichment Peak Wand Massagerwww.adameve.comCBD Productswww.venacbd.com Here is a list of Guests and where they can be...2021-12-0848 minMove It or Lose it - The PodcastEpisode 23 - Kathy Goes Solo with 5 Quick Important PointsIn Today's Episode Kathy goes into 5 Point that have been on her mind over the last several weeks if not months. This is a short but sweet episode which you are sure to benefit from. Give it a Listen!!!Podcast Website and Blogwww.moveitorloseitpodcast.comYou can find Kathy Chester atdisruptfitnessgym@gmail.commoveitorloseit109@gmail.comInstagram - @msmoveitorloseit @disruptfitnessgymPrevinex - Use the same clinically effective supplements that promote longevity, performance and everyday health as Kathy does.https://www.previnex.com/Us...2021-11-1021 minMove It or Lose it - The PodcastEpisode 20 - Interview - Mike Stafford - Blogger, Author and MS Patient Today's Interview is with Mike Stafford _ New Blogger, Author and MS PatientMike is a fellow MS Warrior and recently started a new Blog which depicts his positive views regarding his MS journey. While Mike might be new to blogging and an up and comer as an MS Influencer, Kathy has found inspiration in Mike's Blog and felt you would appreciate it as well. Please to to Mike's Blob and Enjoy this short but sweet episode.Ways to Reach Mike Stafford: myke89ny@yahoo.com Website: https://mymshelp.blogspot.com/IG: @defea...2021-10-2024 min