Kathy Reagan Young - Podcast Details

Shows

The MSing Link197. UVB Light Therapy for MS w/ Kathy Reagan Young & John MacMahonI have two guests with me on this episode, which is really exciting because one guest is going to share the science behind a specific type of therapy, and the other guest is someone who has been using this therapy, and she is going to share all of the benefits that she's noticed from it! On today's episode, John educates us on UVB light therapy for multiple sclerosis and Kathy shares her experience using it. Kathy's bio: Kathy Reagan Young is a prominent patient advocate and the founder of FUMSnow.com. She has become a leading voice in...2024-09-1153 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 119 - National Lampoon's Chronically Ill Christmas with The MS Pod SquadBeing a podcaster can be a lonely life. So what better way to begin the holiday celebrations than getting some of your favorite MSers together to talk about our plans for the season? Alongside my guests, we talk about some of the things that can play on our minds during this time of year, particularly when combined with having a chronic illness like MS. Dan & Jennifer Digmann talk about how to handle the stresses of maintaining relationships. Ardra Shephard is here to talk about staying fashionable and feeling good about yourself. Then Kathy Chester covers th...2022-11-2249 min

MS Diagnosis JourneyKathy Reagan Young: "Anything You Notice About Your Body, Don't Ignore It"When she noticed the appearance of strange symptoms, Kathy Reagan Young put them down to being an exhausted stay-at-home mom. It was only down to the input of friends and business associates that she was able to be fast-tracked to a diagnosis of Multiple Sclerosis.Kathy recognizes the privilege and luck that played a part in her high-speed diagnosis. But since then she has dedicated herself to providing education, inspiration, and motivation to everyone dealing with Multiple Sclerosis. She does this by blogging about her own experiences, interviewing experts and other patients on her podcast, and trying...2022-11-1010 min

Patients Getting PaidPGP Helps Chronics Keep Hope Alive and Feel Productive w/PGP Member Kathy ChesterKathy visits with a PGP member to get their take on what has been most valuable about the PGP membership for their business. This time she catches up with Kathy Chester, who was previously heard on Episode 16 (Making Your Passion Your Chronicpreneur Business). A valued member of the PGP community, Kathy C. says that the coaching sessions inside the membership can "breathe life back into you". If you've been debating whether to join the PGP Community, visit PatientsGettingPaid.com for more information, but don't forget that there's a price increase right around the corner! 2022-10-2520 min

Patients Getting PaidPGP's First AnniversaryI can hardly believe it, but today's episode marks the first anniversary of the launch of Patients Getting Paid!This community has long been a dream of mine - I've spent years learning how to find work that replaces a regular paycheck, but fits around my health condition. And once I found it, I knew I had to share it with my chronic illness community!In this episode, I talk about my own chronicpreneur story and the birth of PGP, before we hear from a handful of people from within PGP about what they've loved...2022-09-1316 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 114 - The Art of Rebellion With Kick-Ass MSer Lydia EmilyContent warning: this episode includes a discussion about Lydia's personal experiences of Primary Progressive MS and her plans with regards to Death with Dignity, aka Suicide.Lydia Emily Archibald is an artist to her core. She was born in Chicago to globe-trotting activist parents, and this laid the foundation for her socially-conscious and politically-motivated artworks, including the creation of large-scale murals. Lydia Emily's work has been featured at gallery shows in Milan, Berlin, Los Angeles, New York, Miami, Washington DC, and San Francisco. After battling cancer, Lydia was diagnosed with Multiple Sclerosis in 2012. S...2022-09-0652 min

Embrace It with Lainie & Estela - Smashing Disability StigmasEmbrace It: Episode 34 - Kathy Reagan Young, Life as a ChronicpreneurSend us a textKathy Reagan Young, who lives with MS, is leading the disability and chronically ill community into “chronicpreneurship” by turning their lived experiences into income. In September of 2021, she launched Patients Getting Paid, a membership community offering support and training to people in finding and creating flexible, remote work that not only accommodates their health, but generates revenue as well. In this sassy episode, we explore all of the unexpected streams of income and potential career paths those with disabilities and chronic illness can shift into for a more meaningful, balanced and authe...2022-08-1944 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 112 - Using Pilates to Combat MS with Mariska BrelandThe truth has been out for a long time - exercise is good for MS and other neurological conditions. But of all of the programs suggested for us, how many of them really know what it's like to live with MS?My guest today is Mariska Breland. She was a video producer living a very high-stress life when she was diagnosed with MS at the age of 27. She started doing Yoga and Pilates and eventually began teaching Pilates, ultimately turning it into her full-time job. Mariska has created multiple neuroscience and exercise workshops, including Pilates f...2022-08-0952 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 110 - Using Intermittent Fasting to Manage Your MS with Cynthia ThurlowI've talked before about diet and lifestyle as a way to manage Multiple Sclerosis. It's an exciting area, with more research being done all the time!If you've been researching this for any time, you've probably heard about Intermittent Fasting (IF). But what is it? And how could this possibly help with your MS?My guest today is Cynthia Thurlow. She is a nurse practitioner, the CEO and founder of the Everyday Wellness Project, and an international speaker, with over 10 million views for her second TEDx talk, Intermittent Fasting: Transformational Technique.In this...2022-07-1237 min

RealTalk MSThe Journey from MS Diagnosis to Podcaster to Patients Getting Paid with Kathy Reagan YoungWhen I began thinking about launching RealTalk MS, one of the first things I did was listen to other podcasts for the MS community. Five years ago, there weren't nearly as many podcasts focused on MS as there are today, but one of the podcasts I listened to was FUMS. And after listening to that podcast, I remember feeling inspired about moving forward with my plans for launching this podcast. Joining me to talk about her journey from being diagnosed with MS to launching her podcast and learning how patients get paid is the voice...2022-06-2832 min

Patients Getting PaidGetting Patients Paid with MerakoiThe medical establishment has finally realized that if you want to know how patients feel about their lives, you need to speak to them! And they recognize that our patient experience is VALUABLE, so they're willing to pay for our time.But it can feel like you're only there to share your complaints and problems. And you are more than your health condition!My guests today work at Merakoi, an agency that enables healthcare companies to collaborate with patient experts and their communities across multiple diseases and geographies. For me, the key word i...2022-06-2145 min

Patients Getting PaidHow to Earn Money From WritingThe old line is “we all have a book in us." But international fame and a mega-bucks movie franchise notwithstanding, there are other ways that you can earn money through your writing. Kyle Young is a writer for Harvard Business Review, Fast Company, CNBC, Psychology Today, Forbes, and Business Insider. He's the founder of Growth Solutions, LLC, a popular marketing agency.In this episode, Kyle talks about his experience of writing for these major sites, and how writing can be a means of generating flexible, at-home income. Even more than that, he shares how you can...2022-06-0730 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 106 - Caring for Caregivers with Elizabeth MillerIf you listen to this podcast, there's a strong chance that you receive care - from a friend, a loved one, or from within your community. You might also be in the position I was in a few years back, caring for elderly relatives, young children, and myself as a person with a chronic illness!My guest today is Elizabeth Miller, a family caregiver, caregiver advocate, speaker, author, podcast host, and Certified Caregiving Consultant. Her personal experiences of caring for aging parents with chronic and terminal illnesses and for a sibling with developmental disabilities inspired her to...2022-05-1726 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 105 - Finding "Grace" in MS with Novelist Delaney Parker"Grace" is a novel about a young woman navigating married life, sex, parenting, and friendship. Plus, the lead character is doing all this while dealing with an MS diagnosis. It was written by Delaney Parker, an author who lives in upstate New York with her family. She was diagnosed with Multiple Sclerosis in October of 2008, and it was her diagnosis that inspired Delaney to write "Grace."As Delaney says in this interview, the character's diagnosis is just a part of who she is, and the novel is not centered around MS. I loved this book's d...2022-05-0326 min

Patients Getting PaidMaking Your Passion Your Chronicpreneur Business with Kathy ChesterIn a "former life", Kathy Chester was a corporate travel agent with a passion for being active, when she was hit by a double diagnosis of Multiple Sclerosis and Rheumatoid Arthritis. Against the advice of the time, her instinct was to keep moving!She became a certified trainer, and after working in other businesses, she now owns and operates her own studio, Disrupt Fitness. The COVID pandemic led her to look closely at her business. She has now found safer ways that she can work and has niched down to service the MS and Autoimmune communities in...2022-03-0145 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 100 - The 100th Episode!It seems crazy to me but my ‘lil podcast is 100 episodes old today! So in a change from our regular schedule, I’ll be taking a personal look back at the highs (which are many) and lows (not so much) of my podcasting journey since launching in 2015.I’ll be talking a bit about why I started the podcast, my favorite episodes, as well as sharing some comments which have been sent in by some of you, the wonderful FUMS community.Here’s to the next 100 episodes. And don’t forget to speak to this stupid dis...2022-02-2217 min

Patients Getting PaidWorking From Home, Wherever That Might Be with Christina MathersIf you have a chronic health condition, there are many benefits of working from home. You can choose your own hours, you can take time to recuperate when you need to, and your commute is no more than a minute! But it also means that, if required, you can pick up and relocate in a second.My guest today is Christina Mathers. She describes herself as a Lyme-thriver, mother, wife and dog mom. Although she maintains a patient advocacy website about managing her condition, she also works from home as a premium auditor at an insurance company...2022-01-1840 min

Quest for Healing: Bi-weekly support and inspiration for your Medical Medium® health journeyPursuing Flexible Work that Complements Your Life with Kathy Reagan Young#064 - Kathy Reagan Young is my guest this week and we are talking about finding jobs and work when you’re dealing with chronic illness. Kathy has a couple of wonderful podcasts, including one called Patients Getting Paid, where she explores job opportunities outside of a 9-5 office job. If you’ve been too sick to work or are just looking for something part-time or at least more flexible, she wants you to know about what kinds opportunities are out there that you may never have even thought of. So, if one of your goals this year is to get ba...2022-01-0542 min

Patients Getting PaidGet Google to Work for YOU with Efficiency Expert Dara SklarWhen you’re starting on your chronicpreneur career, you’ll know that you need to get organized. And if you’re anything like me, and you have “shiny box” syndrome, you’ll look around at what other people are using and buy a plethora of productivity tools and subscriptions, each of which will promise a new and more methodical version of you.And then a couple of months down the line your desktop is littered with programs that you never worked out how to use. But what if there was a way to manage your workflow, by using tools...2022-01-0435 min

Move It or Lose it - The PodcastEncore - Episode 33 - Part 2 - Interview - Kathy Reagan Young - FUMS Podcast, Author and MS Warrior and AdvocateToday's Interview is Part Two of a Two Part Interview with Kathy Reagan Young. Kathy was diagnosed in 2008. She found everything that was on the internet at that time was horrible. She decided to change that in 2011 by building a website to show people that there is life after diagnosis - and it can be a great one! Then - in 2015 - she started the FUMS Podcast Show - to provide information, inspiration, and motivation to live your best life with MS. She interviews people living with MS and experts in the disease to help everyone with MS. Kathy a...2021-12-3035 min

Move It or Lose it - The PodcastEncore Episode 32 - Part One - Kathy Reagan Young - FUMS Podcast, Author and MS Warrior and AdvocateToday's Interview is Part One of a Two Part Interview with Kathy Reagan Young. Kathy was diagnosed in 2008. She found everything that was on the internet at that time was horrible. She decided to change that in 2011 by building a website to show people that there is life after diagnosis - and it can be a great one! Then - in 2015 - she started the FUMS Podcast Show - to provide information, inspiration, and motivation to live your best life with MS. She interviews people living with MS and experts in the disease to help everyone with MS. Kathy a...2021-12-2948 min

Patients Getting PaidPodcast Editing with Steve WoodwardThis is a special one, as my guest is not only my podcast editor and friend but also an actual Patient Getting Paid, who I helped to get started!Steve Woodward from the UK is a self-confessed audio geek and musician who has been involved with home and studio recording projects since he was at school. Alongside this, he worked in arts marketing for over 20 years, specializing in the writing and editing of clear and concise copy. After losing his full-time position in late 2016, he eventually founded the Podcasting Editor brand, and now melds his a...2021-12-2139 min

Patients Getting PaidPhoto Organization as a Career with Cathi NelsonMaybe you have boxes of old photos in your house. Or maybe you’re a digital native. But whichever you are, you can’t deny that people are taking more and more photos every day. And who is going to sort them out?I only became aware that a Photo Manager was a *thing* when I became overwhelmed dealing with boxes of pictures that I inherited from my parents, alongside many photos of my own children growing up. Luckily I found Cathi Nelson’s website and I found a lot of information that was super helpful for that p...2021-12-0729 min

Out of Patients with Matthew ZacharyGiving MS the Finger with Kathy Reagan YoungToday I talk to multimedia guru and patient influencer Kathy Reagan Young. She’s been blogging since before that was a word. She’s a video producer. And she hosts an amazing podcast called FUMS, an acronym for Fuck You Multiple Sclerosis. And yes swearing like a sailor is also in her toolkit. When Kathy was diagnosed with multiple sclerosis she didn’t let that stop her from being the badass that she is. Instead, she took to the web and started an online MS support community. And she launched the FUMS podcast - a new addition to the OffScri...2021-11-3031 min

Patients Getting PaidAffiliate Marketing 101 With Jay ClouseWhat’s not to love about affiliate marketing? If you get it set up correctly, it’s a way to make a little extra money without having to do a whole lot of anything.In the past, it had a bit of an unethical reputation, with people promoting whatever products would get them the most money. But as businesses all over have recognized the worth of personal recommendations, companies are increasingly interested in building relationships with their communities. As an example, I have been publishing a Holiday Gift Guide on my FUMS website for several years, and this...2021-11-2330 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 093 - Eating Healthy Over The Holidays with Alene BrennanAs the song says, it’s the most wonderful time of the year! And many of us traditionally mark the season - and please know that the FUMS Podcast is a no-shame space - by giving up on eating and living in a healthier way. But increasingly, many of us living with MS and related chronic conditions are managing our health through nutrition and lifestyle. So how do we keep this up without missing our family traditions?Luckily, Functional Nutrition Counselor and Chef Alene Brennan is on-hand to show us the way.Alene kno...2021-11-1639 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 092 - Music Therapy For MS with Dr. Cindybet PérezIf you're anything like me, music is a big part of your life. It can lift me up, it can wipe me out, but it's always there. And you'll likely also have seen incredible videos which show people with Dementia or Alzheimer's responding to music when they otherwise are non-responsive.But did you ever think that music could make a difference to the health of people with MS? Dr. Cindybet Pérez is a board-certified clinical and neurological music therapist practicing in Puerto Rico. A faculty member at the Pontifical Catholic University, she also participated in...2021-11-0253 min

Patients Getting PaidWebsites 101 - Do You NEED One??? With Chronicpreneur Jackie ZimmermanJackie Zimmerman works HARD. After receiving not one but two chronic illness diagnoses in her 20s (Multiple Sclerosis and Inflammatory Bowel Disease), she turned to the internet to find a way to cope and build a support system. She became a professional blogger and public speaker, and later formed a nonprofit to uplift women living with Inflammatory Bowel disease. Through the process of blogging and developing communities, Jackie honed her skills in digital communications by learning to design websites, create brand recognition and build online courses. She has now turned those into a full-time career in her d...2021-10-2630 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 091 - Move It Or Lose It with MS Specialist Fitness Trainer Kathy Chester“Which part of our body are you ok with losing?” - this is the question that fitness trainer Kathy Chester will sometimes ask her clients.Prior to opening Disrupt Fitness Gym, Kathy had been a leader in the fitness industry for almost a decade. However, it wasn’t until she was diagnosed with Multiple Sclerosis that she decided the time had come to take it to the next level. Having MS while being an instructor has allowed Kathy to not only push past places she'd been told she would never physically reach but has provided her with...2021-10-1943 min

Patients Getting PaidAqua Yoga Helped Christa Fairbrother, and now it’s her Chronicpreneur Business!For Christa Fairbrother, living with arthritis and teaching yoga are closely linked. She has had arthritis and lupus ever since she was a child, even though she was only diagnosed with mixed connective tissue disease at the age of 41. Mixed connective tissue disease (MCTD) is sometimes called an overlap disease because it has all the signs and symptoms of a number of disorders. Christa credits her yoga practice for her lack of pain, and specifically aqua yoga because it’s kind to joints. And because she knows that it works so well for her, it has now bec...2021-10-1257 min

Move It or Lose it - The PodcastEpisode 14 - Part 2 - Interview - Kathy Reagan Young - FUMS Podcast, Author and MS Warrior and AdvocateToday's Interview is Part Two of a Two Part Interview with Kathy Reagan Young. Kathy was diagnosed in 2008. She found everything that was on the internet at that time was horrible. She decided to change that in 2011 by building a website to show people that there is life after diagnosis - and it can be a great one! Then - in 2015 - she started the FUMS Podcast Show - to provide information, inspiration, and motivation to live your best life with MS. She interviews people living with MS and experts in the disease to help everyone with MS. Kathy a...2021-09-0835 min

Move It or Lose it - The PodcastEpisode 13 - Part 1 - Interview - Kathy Reagan Young - FUMS Podcast, Author and MS Warrior and AdvocateToday's Interview is Part One of a Two Part Interview with Kathy Reagan Young. Kathy was diagnosed in 2008. She found everything that was on the internet at that time was horrible. She decided to change that in 2011 by building a website to show people that there is life after diagnosis - and it can be a great one! Then - in 2015 - she started the FUMS Podcast Show - to provide information, inspiration, and motivation to live your best life with MS. She interviews people living with MS and experts in the disease to help everyone with MS. Kathy a...2021-09-0148 min

Patients Getting PaidPatients Getting Paid - Remote Work For The Chronically IllPatients Getting Paid (PGP) is a private, safe, membership/mastermind community for people with chronic illness to learn of the abundance of flexible, remote work possibilities available to them that can accommodate their health.In the podcast, I’ll be talking to fellow chronicpreneurs about how they’ve found fulfilling, paid work opportunities that accommodate their health conditions better than the regular 9-to-5. Additionally, I’ll be interviewing experts that can help us all do it better!! In this episode:Meet host and founder of the Patients Getting Paid community, Kathy Reagan YoungThe story of how K...2021-08-1311 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 085 - Amber Tuma Talks About MS & Her Rock & Roll LifestyleAmber Tuma was studying for her music degree in Texas and raising two kids with her husband when MS reared its ugly head. So she says FU to MS by continuing to write and play music with her band The Gallows Crow.Hear the inspirational story of how Amber refuses to let MS get in the way of how she lives her life. Go, Amber!Topics covered in this episode include:Amber’s life pre- her MS diagnosisThe story of her initial symptoms, her quick diagnosis, and an unknown link to MS How Amber han...2021-07-2722 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 081 - Butts, Guts, and MS with Neurogastroenterologist Dr. David LevinthalAs part of the rich buffet of joy that MS lays out for us, problems with your gut and pooping have to be right at the top of the charts - or the shit-list, if you will.Just to state it for the record, not everyone with MS will have these issues - as we know, MS isn’t a one-size-fits-all deal. But it is something that a lot of people deal with, which is why we’re covering it here.So my guest today is Dr. David Levinthal, the Director of the Neurogastroenterology and Moti...2021-06-0136 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 079 - He Has MS and He’s Running 162 MilesMatt LaFrance is a 37-year-old husband and father of three young boys from San Jose, CA. He was diagnosed with MS in 2009 at the age of 25. In May he will be running 162 miles in six days as part of the 2021 MS Run the US relay team. I’ll let that sink in. 162 miles in six days. AND he has MS! MS Run the US is the longest annual relay run across America. It’s an epic 3,260-mile run to stop MS! The relay begins in April in Santa Monica, CA and finishes in August in New York. The relay team...2021-05-0419 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 076 - How YOUR Saliva Can Help Advance MS ResearchThe popularity of personal DNA testing and genome sequencing has really increased in recent years. As someone with MS, have you ever thought about getting it done yourself?Patrick Short is the co-founder and CEO of Sano Genetics, a platform that helps patients match with precision medicine research and learn more through personalised reports, and other content including patient stories. The platform is patient-centric and private-by design, and through data-driven matchmaking and home genomic testing, has enabled precision medicine studies in common and rare diseases, including autoimmune and neurology (MS in particular) as an area of focus.2021-03-0940 min

FUMS: Giving Multiple Sclerosis The FingerBonus: FUMS Holiday Gift Guide 2020The holiday season is just kicking off so in today's episode of the FUMS Podcast Show, Kathy has a special message for all FUMSers. Please enjoy the celebrations but remember to take care of YOU. Pace yourself. Ask for help when you need it. And be big enough to accept help when it's offered. In order to lessen your load, use the 2020 FUMS Holiday Gift Guide. It’s updated every year with new products that either Kathy has come across or which have been suggested by others in the FUMS community. And don't forget to check out the FUMS Me...2020-11-2603 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 068 - How Taopatch is Improving MS SymptomsAfter hearing from other MSers about the benefits of using Taopatch, Kathy just had to find out more. So she reached out to Dimitri Leonov, Co-Founder and CEO of Taopatch USA to bring you the scoop.Taopatch is a wearable device which captures heat from your body and converts it into light, which it emits into specific points on your body. These photons stimulate your Central Nervous System and "remind" it how it was meant to communicate with the rest of your body.By combining light therapy with acupuncture, Taopatch can naturally boost your immune...2020-11-1336 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 067 - Why Did I Go MissingTrigger warning: this episode is a raw explanation of why the FUMS Podcast has been quiet recently. It's a difficult listen but Kathy felt that she owed it to the FUMS community to share what she has been going through. As always, Kathy welcomes your comments and opinions here, on the FUMS Facebook page, on the FUMS Twitter account, on Instagram, or FUMSvideos on YouTube. Or email Kathy@FUMSnow.com. And please keep the conversation going and support each other! Further resources: Get the MS Healthline app on Google and Apple app stores (US only) Help keep FUMS alive a...2020-10-0513 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 066 - It's Time To "Marie Kondo" The Toxic People From Your LifeToday's episode is another solo issue where Kathy tackles another something that she's learned over the years - removing toxic people from your life is good for you and your health! Unless you're insanely lucky, you've probably already that there are some friends or family members who cause your anxiety to skyrocket. As stress can be a major factor in causing MS exacerbations, you can see the logic in cutting them out of your life. Or, at the very least, setting some ground rules - and STICKING TO THEM! Listen as Kathy likens this action to deadheading plants. The...2020-08-0713 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 065 - "But You Look So Good"Today’s episode is special in that there is no guest to interview. It’s just Kathy – talking about something that we, as MS’ers, hear often - "but you look so good."Kathy suggests that there are two ways to take that: good and bad! As a compliment or as someone questioning either your diagnosis or your suffering.In typical FUMS fashion – Kathy suggest questioning our knee-jerk reactions and asks us to instead, "take a minute and examine intent."Her opinion may be a bit controversial in the MS community – but Kathy welcomes comm...2020-07-2415 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 064 - Damian Washington – YouTube Star and MS SunshineDamian Washington is a true force of nature! Prior to his MS diagnosis, Damian was an actor who was also dipping his toes into vlogging. When he started to turn the camera onto his life with MS, the immediate response guided him to embrace a new career - which eventually led to him becoming a Patient Getting Paid. In this fun conversation with Kathy, Damian talks about how MS impacted his life and career, and how he pivoted to another area where he continues to use his energy for positivity! Topics covered include: The story of how his wife w...2020-07-1045 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 063 - Former Radio DJ, MS Advocate, and Author Kim "Kid" CurryKim "Kid" Curry was a successful DJ and radio executive when he was diagnosed with Multiple Sclerosis. After research into MS disease progression, he decided to leave his broadcasting career of 33 years and become a writer.In this wide-ranging conversation with Kathy, Kim talks about politics, the role of caregivers and vitamin supplements, and the "survivor's guilt" he feels when he sees other patients whose MS symptoms are worse than his. Topics covered include:Kim's initial symptoms and diagnosis story - and the reasons why his initial research led him to leave w...2020-06-2633 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 062 - CrossFit Helps Kim Toliver Find Her MS Advocate VoiceFrom the age of 12, Kim Toliver used exercise as a way to regain control of her weight - and also to ensure that she wasn't being micro-managed by doctors!While studying for her Masters in Athletic Training, she began to experience strange physical symptoms which she initially wrote off. But only six months into her dream job, Kim was diagnosed with Multiple Sclerosis.Kim eventually recognized that CrossFit’s fitness and health concept suited her perfectly in trying to accomplish the task of being the best version of herself physically, mentally, and spiritually.Ho...2020-06-1233 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 061 - Essential Oils and MS with Alene BrennanAlene Brennan has already appeared on the FUMS Podcast (Episode 017) but she returns today to talk about Essential Oils and their potential benefits for MSers.After noticing how essential oils positively affected her illnesses, Alene now views them as being as important to her healthy lifestyle as diet.Alene is a certified nutrition coach, natural food chef, yoga instructor, and personal trainer who helps people with autoimmune disease heal through diet and lifestyle. Oh, and on top of all this, she has MS. And migraines.Listen up for an exclusive offer for the...2020-05-2937 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 060 - MS Advocate Cathy Chester Shares Her JourneyCathy Chester is an unstoppable, one-woman advocacy machine! And because of this, she's an FUMSer to the core. Cathy experienced her first symptoms of MS shortly after graduating from college. But like so many of us, it was a number of years before she received a formal diagnosis. Since then she has dedicated herself to advocating for her condition and ensuring that the patient voice is heard loud and clear. Cathy's writing has been featured on MultipleSclerosis.net, Huffington Post, and Multiple Sclerosis News Today. And she has been featured in Woman's Day magazine, Momentum magazine, Everyday Health, and...2020-05-1531 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 059 - A Solution for Heat Sensitivity in MSExtremely hot temperatures can be unbearable for people with MS due to what is called Uhthoff's Phenomenon. This is the temporary worsening of MS symptoms caused by an increase in temperature. It's usually applied to optic neuritis and other visual symptoms but can also increase fatigue, pain, balance, weakness, bladder issues, cognitive or sensory symptoms. Imagine if there was a product that could not only help with this but which was actually designed for and with people with MS? Well… Kurtis Kracke and Brad Dunn met when they were graduate students at Rochester Institute of Technology in New York. Wh...2020-05-0121 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 058 - Help With YOUR Medical Bills – With Medical Bill Guru Daniel LynchListeners in the US don't need to be told that, with our healthcare system, it doesn't take too long before MS’ers can feel overwhelmed. Wouldn't it be great if there was somebody who was able to help you navigate the mistakes, diagnosis coding errors, deductibles, in-network and out-of-network charges, the whole nine yards? In today's episode, Kathy talks to Daniel Lynch of Medical Bill Gurus, a company that is working to redefine medical billing in order to move healthcare forward. When the model tends to be that the medical billing company for the provider over-bills and the insurance un...2020-04-1736 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 057 - Are Your Silver Dental Fillings Poisoning You?If you’ve been diagnosed with MS for any length of time, it’s highly likely that you will have come across – or been offered – all kinds of theories about the kind of things which can impact on your health. One of the most long-standing is the effect of mercury amalgam fillings on the body. But it’s so hard to find any evidence for this theory, or even to get a dentist to talk about it.In today’s episode, Kathy presents a fascinating chat with Dr Carl McMillan, who describes himself as a Holistic Dentist. While tradit...2020-04-0352 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 056 – Ardra Shephard: Making Mobility Aids FashionableArdra Shephard is the writer behind the irreverent and insightful blog, Tripping On Air. When she started using mobility aids, she was disappointed to note that there weren't any images - in fashion or the media - of disabled people using their mobility aids, looking GOOD. So she decided to change the narrative!Ardra is a perfect fit for the FUMS brand - she's another smart-ass MS’er who enjoys a good f-bomb!Topics covered include:Ardra's (brief!) diagnosis storyWhy Ardra felt she had to be the example of a fashionable person using mobility ai...2020-03-2021 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 55 - Coronavirus and Chronic Illness: A Message for the HealthiesToday’s very short (less than 4 minute) message is one from the heart – Kathy’s heart – to the Healthies among us that are learning about fear of germs, viruses, and bacteria, as they are exposed to the worldwide Coronavirus outbreak. This podcast episode is designed to be shared – with every chronic illness community member and every Healthy you know. It pertains to each - and Kathy has a job for each.Chronics – share with your community – on and offline – Chronics and Healthies alikeHealthies – learn the lessons now about hygiene protocol during this scary t...2020-03-1103 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 54 – Autoimmune Disease IS a Legal Disability - with Holly BertoneHas living with MS disrupted your ability to work? If the answer is "HELL YES" then you have to listen to this episode!Holly Bertone was diagnosed with breast cancer on her 39th birthday! After taking time out from her career to recover, she was diagnosed with Hashimoto’s disease, an autoimmune disorder that shares some symptoms with MS, most notably chronic fatigue and joint pain.When she had a Hashimoto’s flare-up, her employer at the time illegally rescinded her FMLA (Family and Medical Leave Act) allowance of unpaid leave. After looking all over for i...2020-03-0631 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 053 – Rob Roberts and the MS Push-Up ChallengeHave you ever tried to describe what it’s like to have Multiple Sclerosis? Well today Kathy is talking to one man who is trying to SHOW people what it can be like, all while raising awareness of this stupid disease.Rob Roberts’s wife Danielle had her first MS relapse the day after they were married. Rob left his job in federal law enforcement and customer service to start his businesses, Never Stumble Consulting, LLC, and Muscle To Bone Fitness System to help people and support his wife and young family.After talking with Dani...2020-02-2118 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 052 – Dr. Aaron Boster Returns!Today's episode of the FUMS Podcast Show features another fascinating conversation with Dr. Aaron Boster MD. If you missed his last appearance make sure you check out Episode 49.At the end of 2019, Dr Boster published an article called Treating MS: A Simplified Strategy Boosts Patient and Provider Satisfaction. The common-sense approach he outlines is certainly a lot more rare than it should be! So Kathy wanted to find out more about this and his exciting plans for treatment in the future.Topics covered include:Why Dr Boster felt that his article was necessary and how...2020-01-171h 14

FUMS: Giving Multiple Sclerosis The FingerFUMS 051 – Special Message from Kathy - and a Gift for YOU!The holiday season is just kicking off so in today's episode of the FUMS Podcast Show, Kathy has a special message for all FUMS'ers.Please enjoy the celebrations but remember to take care of YOU.Pace Yourself.Ask for help when you need it.And be big enough to accept help when it's offeredIn order to lessen your load, use the 2019 FUMS Holiday Gift Guide. It's updated every year with new products that either Kathy has come across or which have been suggested by others in the FUMS community.We hope you find this...2019-11-2905 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 050 – The 50th Episode Celebration!Today's episode of the FUMS Podcast Show is a special one. We’ve reached a significant milestone - our 50th Episode!Many thanks to everyone who has appeared on or has listened to or shared the FUMS podcast. This show is for all the FUMS’ers out there.We’ll see you for the next fifty!Including:Kathy’s reflections on the first fifty episodes of the FUMS Podcast ShowA selection of messages from listeners and previous guestsThe biggest FUMS Salute yet!As a special gift to the FUMS Nation...2019-11-0113 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 049 – Dr. Aaron Boster Answers Your MS QuestionsToday's episode of the FUMS Podcast Show features a conversation with Dr. Aaron Boster MD. Dr. Boster is that rare thing - an MS Specialist Neurologist with his own YouTube channel (and over 15,000 subscribers).In this fun and fascinating chat with Kathy, Dr. Boster talks about his career, his YouTube videos and even has time to answer a selection of questions submitted to the FUMS Facebook Page.Please Note: we had some technical issues with the early parts of Dr Boster's interview. We hope you agree that everything he shares is so...2019-10-1859 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 048 – Aging and MS with Caroline CravenToday's episode of the FUMS Podcast Show features the return of Caroline Craven. She has been featured a couple of times before but she always brings a really interesting viewpoint so we thought we'd get her back in!In this chat with Kathy, they talk about aging (gracefully or otherwise) with MS, and things we should all be thinking about to live our best lives with this stupid disease.Topics covered include:How Multiple Sclerosis can accelerate the aging processThe importance of a daily routine and exercise, and being flexible with regards to your...2019-10-0426 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 047 – Stem Cell Treatment and MS with Peggy ManchesterStem Cell Treatment is still the biggest story in Multiple Sclerosis - despite the fact that this option is not possible for the vast majority of patients. Peggy Manchester took the plunge and tells Kathy all about her experiences in this podcast.Peggy is a Professional Board-Certified Wellness Coach and has over twenty years' experience in the health and fitness industry. She was diagnosed with MS in 1996 and had Stem Cell therapy after becoming frustrated by her DMT options AND her neurological team.Topics covered include:Peggy's diagnosis, her experiences of available treatments and...2019-09-2031 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 046 – Finding Flexible Work While Dealing with Lyme Disease: Jessica DonaldsonWhen Jessica was diagnosed with Lyme disease, she was forced to put aside her dreams of a career in nursing.Eventually she found a way to utilize and monetize her skills in patient advocacy and grant writing to find a new career path, one which can accommodate living with a chronic health condition.Topics covered include:Jessica's diagnosis and its effect on her careerHow a doctor's suggestion of writing led her into the realm of patient advocacyHow using her existing skills created a portfolio of paid work which fits around her life!Full...2019-09-0617 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 045 – Ivy Larson: Clean Eating, Exercise, Medical Marijuana… and no MS meds!Today's guest is wife, mother and author Ivy Larson.Ivy was diagnosed with MS when she was 22. Her neurologist at the time suggested that an anti-inflammatory diet could help slow the progression of her disease.By following the Swank diet alongside changes to her lifestyle, Ivy has managed to go without any MS flare-ups or disease progression in the last 20 years - all without taking any meds.Topics covered include:Ivy's MS diagnosis story and her decision to follow the Swank diet as opposed to DMTsThe importance of exercise, diet and stress...2019-08-2353 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 044 – Work For The Chronically IllIn a change from our regular programming (!), Kathy's guest on the FUMS Podcast today is… herself.Following her MS diagnosis in 2008, Kathy has spent a huge amount of time advocating for patients and finding legitimate, flexible work opportunities.Topics covered include:The story of Kathy's diagnosis with MSHow Kathy learned to "monetize" FUMSnow.com and co-wrote the eBook “Bowel and Bladder Issues in Multiple Sclerosis by Two Pee Brains With Potty Mouths Talking Shit About MS”How searching for work that fit around her condition led to a number of Patient Advocacy opportunitiesHow all of the...2019-08-0923 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 043 – Flexible, Remote Work Opportunities for the Chronically Ill with Hannah OlsonToday's guest is Hannah Olson. Hannah was diagnosed with Lyme disease in 2015.Frustrated by a feeling that her chronic illness was incompatible with her career goals, Hannah founded Chronically Capable, a company that connects chronically ill people with legitimate flexible work opportunities.Additionally, she works as a National Lyme Ambassador and a workplace inclusion speaker, advocating for the chronically ill community.Topics covered include:The story of Hannah's Lyme diagnosis and how it impacted on her burgeoning careerHow the idea of Chronically Capable came aboutThe immediate response when the website was launched...2019-07-2624 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 042 – Mari L. McCarthy: Journaling For The Health Of ItIn this episode Kathy talks to Mari L. McCarthy, the Founder and Chief Empowerment Officer of CreateWriteNow.comFollowing a diagnosis with MS, and after becoming disillusioned with the medical options available to her, Mari now treats herself through a combination of diet and Therapeutic Journaling.Topics covered include:The story of Mari's MS diagnosis and how it changed her life-goalsHer decision to ditch MS medicationsWhat is Therapeutic Journaling? Is it the same as writing a diary?A special offer for FUMS Podcast listeners!Resources mentioned in this episode (clickable links):The...2019-07-1239 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 041 – International Series RoundupFor the final part of our current series of interviews with MS’ers from around the world, we're doing something a little different.To discuss all the things she has learned throughout these episodes, Kathy herself is interviewed by Steve Woodward, FUMS Podcast Editor and the first interviewee in the series (see FUMS 036).Topics covered include:Why Kathy was interested in global MS diagnosis and treatment experiencesHow the US system stacks up against what she learnedWhat surprised her the most about what she discoveredWhere she would move to, if money were no object! ** Prev...2019-06-2827 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 040 – MS Stories From Around the World #5: Col Chandler (Australia)This episode is the fifth part of our international series where Kathy talks to MS’ers from around the world, to see how their diagnosis and treatment experiences differ from in the U.S.Today's guest is Col Chandler,a surfer, artist, entrepreneur and energetic MS Ambassador from Queensland, Australia, who was diagnosed in 2014. Col is relentlessly positive, seeing his diagnosis with Primary Progressive MS as an opportunity for change, not necessarily for diminishment.Topics covered include:Col's initial symptoms and eventual diagnosis with Primary Progressive MSThe support he received in hospital post-diagnosis in bo...2019-05-3152 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 039 – MS Stories From Around the World #4: Dave Head (Canada)This episode is the fourth installment in our international series where Kathy talks to MS’ers from around the world, to see how their diagnosis and treatment experiences differ from in the U.S.Today's guest is Dave Head, a writer and patient advocate from Calgary in the Canadian province of Alberta. Canada not only has the second highest rate of MS globally, it also has the highest rate per capita in the world.Topics covered include:Dave's initial symptoms and diagnosis with MSSupport which was available for both Dave and his fiancée (now...2019-05-171h 11

FUMS: Giving Multiple Sclerosis The FingerFUMS 038 – MS Stories From Around the World #3: Katrine Bonde (Denmark)This episode is the third installment of our international series where Kathy talks to MS’ers from around the world, to see how their diagnosis and treatment experiences differ from our own.Today's guest is Katrine Bonde, a university student from Aarhus in Denmark. Denmark has one of the highest rates of Multiple Sclerosis in the world (only San Marino and Canada have a higher prevalence).Now aged 24, Katrine was diagnosed with MS in June 2014. Topics covered include:Katrine's diagnosis and initial symptomsAvailability and cost of care and treatment in Den...2019-05-0341 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 037 – MS Stories From Around the World #2: Robert Joyce (Ireland)This episode is the second of a series where Kathy talks to MSers from around the world about their diagnosis and treatment experiences, to see how they differ from our own.Kathy's guest today is Robert Joyce, who lives in a beautiful part of the world, Connemara in Ireland. Now aged 50, Robert was diagnosed with MS while he was living and working in England at the age of 23. Although his fatigue meant that he couldn't continue working at the same rate, over the years he has owned several businesses, operated as a business consultant, and was the...2019-04-1953 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 036 – MS Stories From Around the World #1: Steve Woodward (England)This episode is the first in a series where Kathy talks to MSers from around the world about their diagnosis and treatment experiences, to see how they differ from our own.The first guest in the series is Steve Woodward, who lives in England. He and Kathy had a lot of fun recording this, even if some parts were proof that the US and the UK are still "two nations divided by a common language"!Topics covered include:Steve's diagnosis storyHis experience of treatment through the UK National Health Service or NHSHow the NHS...2019-04-0549 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 035 – Myetin and the 90 day challengeOur guest today on The FUMS Podcast Show is Stephen Camp, the President and Founder of Avior Nutritionals. Avior Nutritionals is the company behind Myetin, which has been mentioned previously both on the FUMSnow blog and on the podcast. Myetin is an oral supplement which can help people experiencing nerve damage, so it is obviously an exciting option for people with MS. It works to support the body’s nutritional deficiencies at a cellular level and is the only product that has both NAD+ and Biotin as active ingredients. Here comes the science bit! Biotin is a water-soluble B vi...2019-03-2227 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 034 – Get a FREE Personal Health Coach Through Pack Health as Outlined by Guest M’Kayl LewisToday’s guest on the FUMS Podcast is M’Kayl Lewis, Vice President of Member Services at Pack Health.Pack Health is a groundbreaking digital health coaching platform for chronic disease management, which partners patients with their own personal health advisor. Through weekly coaching sessions, as well as personalized follow-ups online, over the phone and via text, Pack Health aims to enable anyone who has or is at risk for a chronic condition to live their healthiest, happiest life.Best of all, Pack Health's services are provided FREE OF CHARGE to its members. Even better, M’Ka...2019-03-0818 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 033 – MS Challenges and Lyfebulb Moments with Dr. Karin HehenbergerToday’s guest on the FUMS Podcast is Dr. Karin Hehenberger. After being diagnosed with type 1 diabetes at a young age, Karin has since gone on to dedicate her life to helping others impacted by chronic disease.She eventually created Lyfebulb, an innovative patient-empowerment platform whose mission is to reduce the burden of chronic disease through the power of the patient - an idea that all of us in the FUMS nation can get behind!Most excitingly, Karin talks about the forthcoming MS Innovation Challenge, which looks to support patient entrepreneurs whose companies are developing so...2019-02-2224 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 032 – MS and LDN (Low Dose Naltrexone) – The Little Pill That CouldToday’s guest on the FUMS Podcast Show is Linda Elsegood, founder of the LDN Research Trust. After her diagnosis and rapid decline pushed her to the very edge, she began hearing about Naltrexone (Nalorex), a drug used to treat addiction to opiate drugs such as heroin or morphine as well as alcoholism.Linda found that low doses of this inexpensive drug might help the symptoms of people with a wide range of autoimmune conditions, including MS. She started taking the drug and found that it made a huge difference to her MS. She also learned that it...2019-02-0856 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 031 - Multiple Sclerosis and the Science of Sleep with Tamara SellmanOur guest today is Tamara Sellman. Although Tamara has Multiple Sclerosis, she is also a medical board-certified sleep technologist and a medical board-certified sleep educator. And it's her professional life which is the main focus of this fascinating conversation.Topics covered include:The fact that, although people with MS are likely to develop sleep disorders, it's not always the fault of MS!How Tamara's own sleep disorder eventually led to her MS diagnosisWhat sleep does and why it's so important - and not just for people with MSThe different stages of sleep and how...2019-01-251h 05

Walking With Anxiety PodcastMS and How it Can Affect Your Mental Health With Kathy Reagan YoungYour mental health can be affected in many ways, especially when dealing with a difficult diagnosis such as MS. On today's episode, I talk to podcaster and blogger Kathy Reagan Young about how being diagnosed with multiple sclerosis affected her mental health, and how she now helps others. You can find Kathy's podcast and blog on her website FUMS.com, and you can also sign up to her latest project, Patients Getting Paid. If you have any questions about this episode, please let me know, I hope you find it helpful. --- Sen...2019-01-1717 min

Walking With AnxietyMS and How it Can Affect Your Mental Health With Kathy Reagan YoungYour mental health can be affected in many ways, especially when dealing with a difficult diagnosis such as MS. On today's episode, I talk to podcaster and blogger Kathy Reagan Young about how being diagnosed with multiple sclerosis affected her mental health, and how she now helps others. You can find Kathy's podcast and blog on her website FUMS.com, and you can also sign up to her latest project, Patients Getting Paid. If you have any questions about this episode, please let me know, I hope you find it helpful.--- Send in...2019-01-1717 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 030 – How Cannabis, Diet, and Exercise Has Helped MS'er Meg LewellynOur guest today is Meg Lewellyn of BBHwithMS.com – which stands for Boots, Boobs and Hair with Multiple Sclerosis.In a frank and funny conversation with Kathy, Meg covers subjects including being open with her three kids about her MS and how she is now managing her symptoms with marijuana.In this episode we discuss:Meg's MS diagnosis storyWhy she chose to be up front with her three kids about her MS right off the batWhat made her write about her experiences in her book, "Segway Into My New Life"Her history wi...2019-01-1156 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 029 – The Holistic Way of Living with Erin ClaytonIn today’s episode, we’re welcoming back Erin Clayton! A fellow MS’er who was featured back in 2015 on Episode 6.From getting her Non-profit Management Certification to raising funds for MS research, she has now decided to focus all of her time and energy into being a stay-at-home mom for her little boy, Parker.Today we’re talking about her transformation and her journey into living a more holistic lifestyle. Erin has made major changes in her life and now treats her MS purely holistically, with great success for herself and her family. Today she shar...2018-12-2837 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 028 – Important Supplements for MS Patients with Caroline CravenMy first returning guest, Caroline Craven a.k.a the Girl with MS (from the website girlwithms.com), is back to talk about the wonderful benefits we can get from vitamins and supplements.Caroline is a motivational speaker, freelance writer and has won Best MS Blog several years in a row. She's also a life coach, and - oh yeah, she has MS. She has toured the country promoting healthier living for MS patients through stress management, healthy eating, and a positive attitude. Now, she’s our repeat contributor for tools, tips, and resources she finds along th...2018-12-1424 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 027 – Chronic Christmas Celebration with Lene AndersenLene Andersen is a writer, health and disability advocate, photographer and chronic illness navigator who has had rheumatoid arthritis since she was four years old. She is the author of the book “Chronic Christmas: Surviving the Holidays With a Chronic Illness” and that’s exactly what we’re talking to her about today!She is extremely grateful to be given a second chance in life. Despite her illness, she feels the need to honor it and decided to help other people dealing with chronic illnesses as well as their family and friends through her books.In this...2018-11-3030 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 026 – A Personal Holiday Message from FUMS (Kathy Reagan Young)Today’s episode is a special one. The holiday season is kicking off and it could really be hectic and stressful for anyone, but especially for we MS'ers.I just want to take a minute to remind you to take a moment for yourself. As people with MS, we have to be extremely mindful of our stress load. The holiday season should be a time for relaxation and celebrating with family, friends and loved ones.Holidays are meant to be enjoyed, not stressed over. And so I’m here to remind you to take a deep...2018-11-2306 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 025 – Getting Paid For YOUR Patient ExperienceToday’s episode is an interview with Jen Horenjeff a patient advocate, Ph.D. and the founder of Savvy Cooperative, a platform that connects patients and others in healthcare, providing the industry with real patient input and experiences to help improve products and services for a better patient experience. And it compensates those patients for that valuable information.In this episode, Jen explains how being a patient and a professional opened the door for her to connect the patient experiences and knowledge to create a platform to improve the work of medical professionals and provide better patient ex...2018-11-0923 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 024 – Social Security Disability Benefits & MSThis episode features an interview with Mary Dale Walters, the Senior Vice President of Strategic Communications at Allsup - a company specializing in providing disability services. For over 30 years, the company has successfully helped more than 300,000 individuals receive their Social Security Disability benefits.In this episode, she will walk us through a large number of resources and relevant information necessary to have a clearer understanding of the application process for Disability Insurance and other benefits.She advises us to be specific in addressing our needs when applying for disability benefits. "It's not that you have...2018-10-2647 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 023 – Flexible Jobs for Chronic Conditions with Brie ReynoldsBrie Reynolds, a Senior Career Specialist at FlexJobs, helps people find the jobs that will best accommodate their chronic condition life challenges. FlexJobs is the leading online service for professionals seeking remote, flexible schedule, part-time, and freelance jobs. Imagine not having to take time off of work for your doctor's appointment, or not having to call in sick when your not feeling well. That's what flexible jobs are all about!Flexjobs offers ancillary services as well as jobs boards for job seekers. There's 1-on-1 coaching, help with resumes, webinars with featured companies, and a blog with tips...2018-10-1225 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 022 – Benefits of Physical Therapy for MS with Dr. Gretchen HawleyBeing able to brainstorm and solve the symptoms people are having and how to help them in their daily lives is what Gretchen Hawley loves most about her job. Even with the uncertainty of how the disease manifests itself with different people.Gretchen is a Doctor of Physical Therapy who specializes in Multiple Sclerosis. It has become her advocacy to help each of her patients reach their goals in as many ways as she can. It's never boring to do things when your heart is in the right place.At the end of this episode...2018-09-2827 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 021 – Travel Without Limits with Tarita DavenockGoing on a trip, be it on a cruise ship, train or an airplane, can be a daunting task for someone who has MS. You have to worry about mobility issues, access to bathrooms, restaurants and hotel rooms and access to medical care.Tarita Davenock loves traveling and exploring the world, and was diagnosed with multiple sclerosis during the prime years of her life. As her MS progressed, she started traveling with a wheelchair and saw a certain need in the market for people like her and filled it with “Travel for All”!Tarita is the...2018-09-1443 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 020 – Natural & Holistic Treatments with Caroline CravenThere are a number of different natural treatments available to improve the quality of life of MS patientsCaroline Craven's road to natural and holistic MS treatments is pretty fascinating. In 2001, she lost the ability to see and walk unassisted while traveling across Guatemala. Upon her return to the US, she was only given a probable diagnosis, but then started to progress rapidly. She was then placed in a three-year double blind study at USC for the t-cell vaccine. During which, she did a deep-dive into holistic nutrition, Ayurvedic medicine, Chinese medicine, and healthy eating....2018-08-3129 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 019 – Adaptive Yoga, Mindfulness, and Meditation with Mindy EisenbergMindy Eisenberg is a former hospital administrator, turned yoga instructor who’s dedicated to increasing the quality of life for those with disabilities. She does this in loving memory of her mother who had progressive MS.Mindy is the author of Adaptive Yoga Moves Any Body and manages the fast growing Yoga Moves MS community. In today’s episode she shares her philosophy of healing and the importance of the mind body relationship to health and healing.At the end the episode Mindy guides us with a beautiful and very relaxing breathing meditation that you can...2018-08-1733 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 018 - An Ankle Brace to Revolutionize Ankle BracesDr. Fred Ferlic is a man on a mission. He is a recently retired orthopedic surgeon whose career spans 40 years, and 20 of those he spent as the team doctor for both the men’s and women’s basketball teams at his Alma Mater, the University of Notre Dame. He has partnered with the inventor of the TayCo Brace to take this revolutionary product to help millions of people around the world.He passionately believes that the TayCo Brace can have such a huge impact and help millions of people who are suffering from ankle sprains, ankle fractures, MS...2018-08-0320 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 017 - Autoimmune Health Coach Alene BrennanAlene Brennan is a certified nutrition coach, natural food chef, yoga instructor, and personal trainer who helps people with autoimmune disease heal through diet and lifestyle. Oh, and she has MS. And migraines. And she learned how to affect her chronic illness positively through diet and lifestyle – and now she helps others do the same through her coaching. She’s really an amazing person with a ton of passion to really help people. It was her tagline that first caught my attention: “less pharm more table!” I LOVE it!In this episode, Alene shares how she was diagnose...2018-07-2034 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 016 - 2 Girls, 2 Bikes, 50 StatesToday I’m talking with Rachael Bubbs and Dayle James, two women who decided to ride their bikes in all 50 states to raise awareness and research funds for MS. They got their National MS Society Bike MS Passports and they’re ready to ride! BTW – they’re carrying a “champions bandana” with them on all of their rides – with MS warrior’s names on it. So – you could go along for the ride – well, your name could anyway! Learn all about it and how you can get your name on that bandana. Listen NOW!!Full show notes and resources: https...2018-07-0616 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 015 - Country Music Singer Julie Roberts and Her MS JourneyHumble, kind, unassuming – those are just a few words I’d use to describe my guest today, country music singer Julie Roberts. I’d also say talented, brave, loving, strong and selfless. Hers is an amazing story – from a small town in South Carolina where she, her sisters and her mother were victims of domestic abuse, to Nashville, Tennessee making gold records, to a stage in Asheville, North Carolina where she lost the feeling in her hands and her sight went blurry while on stage one evening! That led to her diagnosis of Multiple Sclerosis. That’s certainly n...2018-06-2233 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 014 - TV News Anchor Shares Her MS StoryKatie Collett is an Emmy-nominated news anchor on WAVY-TV 10 and Fox 43, the local NBC affiliates in southern Virginia – where I live. She’s also a wife, a mother, a daughter, a friend, etc. – and she has MS. She’s up at 2:15 am and works from 3:30 am – 1:00 pm! And that’s just her day job. She has a 4-year-old little boy at home too! AND she is a very vocal advocate for MS awareness and a participant in a multitude of fundraising efforts. She’s pretty amazing – but I think she’d deny that. She’s also really humble and down-to-earth. She te...2018-06-0841 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 013 - Cog Fog in MSIn today's episode, I talk to Dr. Victoria Leavitt, a clinical neuropsychologist and the director of the Multiple Sclerosis Cognitive Neuroscience Laboratory at Columbia University Medical Center in New York. I had a TON of questions about the dreaded COG FOG (linked to a previous blog post I wrote about it)! Chances are, if you have MS, you've experienced COG FOG. Dr. Leavitt is a brilliant clinician and researcher, which gives her extra authority on this subject based both on her experience with MS patients as well as her research. And she had plenty to say. She gave great, u...2018-05-2547 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 012 - Low Cost High Tech Help For MS'ersIn today’s episode, Occupational Therapist Gabe Byars shares all the ways that assistive technology can help us in our everyday life with MS. Learn about integrating various technologies to turn your lights off and on, adjust the heat or air conditioning, see who’s at the door and let them in, raise and lower the blinds – all on voice command! Imagine the energy you’d save. Gabe also shares tips and tricks like using your smart phone’s calendar to free up your mind from having to remember everything, using a medicine reminder app to keep us on track with...2018-05-1140 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 011 - Sex, Constipation, Incontinence - Oh My!Erin Glace, MSPT, PRPC, BCB-PMD, is the clinical director of the Physical Therapy and Urodynamics departments at Urology of Virginia. She is a graduate of the University of Florida with her bachelor’s degree in Physical Therapy and a graduate of Old Dominion University with an advanced master’s degree in Physical Therapy. Her sole focus of treatment is pelvic floor dysfunction.She has a TON of initials behind her name for all of the training she's done and she's respected throughout her specialty and beyond. AND - she's one of my oldest and dearest friends! When I as...2018-04-3036 min

FUMS: Giving Multiple Sclerosis The FingerFUMS 010 - Dr. Terry Wahls On Her Diet vs. Dr. Roy Swank's Diet for MSDr. Terry Wahls is a clinical professor of medicine at the University of Iowa where she conducts clinical trials. She is also a patient with secondary progressive multiple sclerosis, which confined her to a tilt-recline wheelchair for four years. Dr. Wahls restored her health using a diet and lifestyle program she designed specifically for her brain and now pedals her bike to work each day! She is the author of The Wahls Protocol: How I Beat Progressive MS Using Paleo Principles and Functional Medicine, and the cookbook The Wahls Protocol Cooking For Life: The Revolutionary Modern Paleo Plan to...2018-04-101h 09

FUMS: Giving Multiple Sclerosis The FingerFUMS 002 – Kathy Bolen, MS Nurse Interview In this episode, I interview Kathy Bolen, an RN who went the extra mile to become a certified MS nurse. Nurses are special people – MS nurses are extra special!! Full notes and resources: https://fumsnow.com/fums-002-kathy-bolen-ms-nurse-interview 2015-03-1211 min