Shows
SARC TalkSARC Talk Episode 16 - Sarcoma SistersIn this episode, we have the pleasure of hosting the Sarcoma Sisters Podcast. Featuring Dr. Wendy Allen-Rhoades and Dr. Lisa Kopp, they delve into the podcast's origins, their career paths, and the impact on the sarcoma community. Through their podcast, the Sarcoma Sisters are not only informing and educating their audience but also fostering a sense of community and support for individuals facing similar challenges. Their dedication to raising awareness and providing valuable insights is truly making a positive impact in the fight against sarcoma.
2024-05-2042 min
Sarcoma SistersSarcoma Sisters on SARC talkSARC (Sarcoma Alliance for Research through Collaboration) is a non-profit organization dedicated to the development and support of research for the prevention, treatment, and cure of sarcomas – a cancer of the bone and connective tissue of the body. Dr. Kopp and Dr. Allen-Rhoades join Dr. Scott Okuno, SARCs Chief Medical Officer, for a conversation about the history of the Sarcoma Sisters and how they are hoping to help patients and loved ones navigate their sarcoma diagnosis through their podcast.2024-05-2041 min
Sarcoma SistersLeiomyosarcoma with Dr. Suzanne GeorgeDr. George is a medical oncologist and Associate Professor at Harvard Medical School. She is the Clinical Director at the Center for Sarcoma and Bone Oncology at Dana-Farber Cancer Institute with over 20 years experience of treating patients throughout the world with sarcoma. She is actively involved in the clinical research and works to develop new clinical trials focusing on therapy for metastatic soft tissue sarcoma. In this episode we discuss: What led her into medicine, and what led her into taking care of patients with sarcoma - it included one of the first targeted therapies for...2023-07-2749 min
Sarcoma SistersNutrition and Cancer with Kate UelandKate Ueland, MS ,RD, CSO is an Assistant Professor at Bayster University where she teaches and mentors students and she practices as a dietitian at Seattle Cancer Care Alliance in Seattle, WA. Kate also works at Fred Hutchinson Research Center in Seattle, WA as the nutrition advisor and editor for the Cook for Your Life website providing science-based guidelines, recipes, and tips to those who have been touched by cancer. The Fred Hutch Cook For Your Life website is such an amazing resource that everyone needs to check out no matter where you are in your cancer...2022-09-271h 04
Sarcoma SistersSarcoma Pediatric Physical Therapy with PT DanDr. Dan Steventon is a Doctor of Physical Therapy and practices at The Sanford Children’s Castle of Care Hospital in Sioux Falls, South Dakota. He specializes in pediatric cancer physical therapy. However, outside of the amazing care he gives his patients, he has a robust social media educational platform and is known as PT Dan The Kids Cancer PT! We encourage you to check him out on twitter And his You Tube Channel including his special series on rotationplasty for Sarcoma Awareness Month! We discuss: His journey to specializing in Physical Th...2022-07-051h 04
Sarcoma SistersSarcoma Orthopedics with Dr. R. Lor RandallDr. R. Lor Randall is an Orthopedic Oncologic surgeon who is a world renowned expert in sarcoma orthopedic surgery. He is the David Linn Endowed Chair for Orthopaedic Surgery; Chair, Department of Orthopaedic Surgery and Professor, Department of Orthopaedic Surgery at the University of California, Davis in Sacramento. Dr. Randall’s clinical practice and research focus on musculoskeletal surgical oncology and on building-leading edge trans-disciplinary teams to combat rare cancers of connective tissue in children and adults. In this episode we discuss: What led him into Orthopedic Oncologic surgery His translational and health inequity re...2022-06-1855 min
Sarcoma SistersOsteosarcoma with Dr. Katherine JanewayDr. Janeway is a pediatric oncologist and senior physician at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center. She is the Director of Clinical Genomics at Dana-Farber Cancer Institute and her research is focused on genomics, precision oncology and bone sarcomas. She leads clinical trials in osteosarcoma and Ewing sarcoma both as an independent investigator and as the Chair of the Children’s Oncology Group (COG) Bone Tumor Committee. In this episode we discuss: What led her into medicine, pediatric oncology and sarcoma research How do we begin to define precision medicine in Osteosarcoma - star...2022-03-2446 min
Sarcoma SistersDesmoid Tumors with Dr. Aaron WeissDr. Aaron Weiss is a board certified pediatric hematologist/oncologist practicing in Maine. He is an associate professor and the Division Director of Pediatric Hematology-Oncology at Tufts University School of Medicine and he holds the Sam L Cohen Medical Director Endowed Chair at Maine Children’s Cancer Program. As part of Children's Oncology Group he is the Vice-Chair of the Soft Tissue Sarcoma Committee, and the Associate Vice-Chair of the Clinical Trials, AYA Oncology Discipline Committee. He is an expert in Desmoid tumors and he is the chair of the Desmoid Tumor Research Foundation Medical Advisory Board. In...2022-02-2150 min
Sarcoma SistersEwing Sarcoma Clinical Trial Results DiscussionDr. Allen-Rhoades and Dr. Kopp discuss the results of the recently published Ewing Sarcoma clinical trial - Phase III Trial Adding Vincristine-Topotecan-Cyclophosphamide to the Initial Treatment of Patients With Nonmetastatic Ewing Sarcoma: A Children's Oncology Group Report. We mention in the episode that the full article is accessible, however, it is only if you purchase individually - bummer. However, the link Is here for the article abstract and if you would like to purchase. We discuss the clinical trial in detail including background on previous trials, methods, results and how these results affect current and...2022-01-3146 min
Sarcoma SistersPalliative Care with Dr. Ishwaria SubbiahDr. Ishwaria Subbiah is a palliative care physician and medical oncologist in the Division of Cancer Medicine at MD Anderson Cancer Center in Houston, TX. She is uniquely qualified for this role, having completed training at MD Anderson, not only in medical oncology but also in Phase 1 drug development and Palliative Medicine. With all this training she sees patients in the palliative care clinic and also conducts clinical research that focuses on symptom management and patient centered supportive care that is driven by patient-reported outcomes (PROs) with an emphasis on older adult participation on clinical trials. She also works...2021-05-0943 min
Sarcoma SistersSarcoma Clinical Trials with Dr. Breelyn WilkyDr. Wilky is the Director of Sarcoma Medical Oncology at the University of Colorado. She cares for patients over the age of 18 with every type of sarcoma and is an expert not only in traditional chemotherapy treatments for sarcomas, but also at using modern technology such as gene sequencing and molecular profiling to identify out-of-the-box treatments particularly in targeted therapy. Dr. Wilky is also a translational researcher who conducts and designs clinical trials for sarcoma patients, with a focus on early immunotherapy protocols. Her laboratory studies the interaction between sarcomas and the immune system. Additionally, Dr. Wilky leads the inv...2021-03-0957 min
Sarcoma SistersSecond Opinions Dr. Allen-Rhoades and Dr. Kopp discuss the topic of second opinions for your sarcoma. Discussing common questions and concerns of second opinions: Tips on deciding if you need/want one Types Issues with too many Unnecessary concerns - you're not cheating on your oncologist why it is important to discuss with your oncologist Tips to getting the most out of it How the pandemic has made them more accessible music: Rospigg photo: Markus Winkler2021-01-3134 min
Sarcoma SistersRadiation and Sarcoma with Dr. Safia Ahmed We talk with Dr. Safia Ahmed a radiation oncologist who specializes in caring for adults and children with sarcoma - she works with our sister Wendy at the Mayo Clinic! Dr. Ahmed is a Senior Associate Consultant in the Department of Radiation Oncology at the Mayo Clinic in Rochester, Minnesota. And she is an Assistant Professor of Radiation Oncology - Mayo Clinic College of Medicine and Science. She has giving numerous lectures and research presentations on a variety of radiation and sarcoma topics including late effects. In this episode Dr. Ahmed breaks down...2020-11-2255 min
Sarcoma SistersSarcoma Pathology with Dr. Valerie Fitzhugh Dr. Fitzhugh is an associate professor and interim chair of the Department of Pathology, Immunology and Laboratory Medicine at Rutgers New Jersey Medical School and the Department of Pathology and Laboratory Medicine at Rutgers Robert Wood Johnson Medical School. She is an expert in the pathology of sarcomas. Dr. Fitzhugh also has interests in the recruitment, retention, and promotion of Black and other underrepresented groups in medicine to pathology as well as racial disparities in treating patients. Dr. Fitzhugh is a celebrity pathologist and has >21,000 followers on Twitter - find her at @DrFNA. And check out her article: Through...2020-10-1257 min
Sarcoma SistersSarcoma Genomics with Dr. Brian CromptonWe talk with our sarcoma brother and world-renowned sarcoma genomics scientist and pediatric oncologist Dr. Brian Crompton. Dr. Crompton is an Assistant Professor at Harvard Medical School and an Attending Physician of Pediatric Hematology/Oncology at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center. He is the Principle Investigator of the Crompton Lab where he and his team are harnessing novel genomic and proteomic approaches to improve patient outcomes in pediatric solid tumors. They leverage innovative technologies to determine prognostic biomarkers and validate druggable targets in Ewing's Sarcoma and Osteosarcoma. In this episode Dr. Cr...2020-09-2750 min
Sarcoma SistersSarcoma Surgery with Dr. Andrea Hayes-JordanWe talk with Dr. Andrea Hayes-Jordan a world renowned pediatric sarcoma surgeon and a professor of pediatric surgery and surgical oncology at the University of North Carolina Children’s Hospital. Dr. Hayes-Jordan is the Surgeon-in-Chief of the UNC Children’s hospital and the division chief of pediatric surgery at UNC. If you want to know how a world class surgeon thinks this is the episode - take this episode in - Dr. Hayes-Jordan is amazing! Learn: 9:20 - How she prepares when she has a new patient - specific considerations when talking with...2020-08-2158 min
Sarcoma SistersEP 6 Building the Yellow Brick Road - Count Me In!We talk to the amazing Dr. Corrie Painter Dr. Painter is the Associate Director of Operations and Scientific Outreach for the Broad Cancer Program and the Associate Director of Count Me In. Corrie shares with us her own Angiosarcoma story and how her diagnosis ultimately led her to her current position at the Broad Institute where she is leading the charge on the Count Me In patient driven projects that are pioneering how cancer research is done and making impacts on finding cures in rare and metastatic cancers. The Count Me In projects include the following cancer types: Metastatic Breast An...2020-08-041h 00
Sarcoma SistersFertility 101Lisa is joined by Donna Bell in episode 5: Fertility 101. Donna Bell is a Nurse Practitioner at MD Anderson Cancer Center and an expert in onco-fertility. She cares for pediatric, adolescent and young adult patients in the pediatric leukemia/lymphoma division and she helped to start and leads the onco-fertility consultation service. We dive deeper into the meaning of the fertility terminology used and: Why the initial conversation matters Burden parents of patients with sarcoma carry Information overload and squeezing in the fertility conversation All you need is one good man – this is true for mar...2020-07-0649 min
Sarcoma SistersSarcoma and FertilityWe are joined by Dr. Abha Gupta in episode 4: Sarcoma and Fertility. Dr. Gupta is a sarcoma and onco-fertility expert. We discuss female and male fertility and: Do you even want to be a parent? And if yes – is it important if your future baby is related to you? What’s the rush – why fertility question needs to be asked when someone is first diagnosed with cancer and is there a rush? Balloons/marbles = ovaries/eggs Push and pull of AYAs (adolescents and young adults) and their parents Changing your mind – loss and regret And so...2020-07-0648 min
Sarcoma SistersHanneke and Jim Part 2In this short episode we continue the conversation with Hanneke and Jim. They share with us their experience in survivorship land with their daughter who completed therapy for Osteosarcoma 4 years ago. Music: Rospigg Artwork: Jonathan Borba2020-06-1516 min
Sarcoma SistersHanneke and Jim Part 1Hanneke and Jim share with us their families' sarcoma story beginning when their daughter was diagnosed with Osteosarcoma at 7 years old. This episode is relatable to all people and families with sarcoma, including advice for what to tell well intentioned people who give unsolicited advice: "Just stand in my puddle with me. That's all I need right now. It's raining everywhere. Don't try to give me an umbrella, don't try to give me rain boots, just stand with me where I am" Music: Rospigg Artwork: Nick Nice2020-06-1551 min
Sarcoma SistersEpisode 1 Sarcoma SistersOur first episode letting you know our why for starting a podcast about sarcoma. 2020-05-2511 min