Shows
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 43: Carcinoid Heart SyndromeWhat is Carcinoid Heart Disease (CHD)? Which NET patients develop CHD? Retired cardiologist and carcinoid heart disease specialist Dr. Jerome Zacks provides an overview of CHD and describes the appropriate screening, diagnosis, and treatment. MEET DR. JEROME ZACKSDr. Jerome Zacks is a Cardiologist/Carcinoid Heart Disease Specialist; retired since December of 2021; but remain active as Associate Clinical Professor of Medicine at the Icahn Medical School at Mount Sinai in New York City and founding member of the Center for Carcinoid and Neuroendocrine Tumors at the Icahn Medical School at Mount Sinai; founder of...2025-04-0840 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 42: "Neuroendocrine Cancer Straight Talk" with Dr. Diane ReidyIn this special episode, medical oncologist and NET expert Dr. Diane Reidy-Lagunes engages in an open and honest discussion on sensitive topics, including sexual health, family planning and end-of-life discussions. She also answers common questions regarding cannabis use with cancer, as well as the relationship between sugar and cancer. Dr. Reidy shares information and insights from her decades of experience as well as from the award-winning “Cancer Straight Talk” podcast from Memorial Sloan Kettering Cancer Center (MSKCC) that she created and hosted, and she relates these topics to NET patients and their loved ones.TOP TEN QUES...2025-04-0851 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEPISODE 41: Top 10 Highlights of the 2024 NANETS SymposiumIn this special episode, Oregon Health & Sciences University (OHSU) Medical oncologist Dr. Guillaume (Will) Pegna recaps the North American Neuroendocrine Tumor Society (NANETS) 2024 Multidisciplinary NET Medical Symposium. He shares the latest developments in NET research and medical advances from the conference and how they matter to the NET patient community.MEET DR. GUILLAUME PEGNADr. Pegna is a medical oncologist specializing in caring for adults with neuroendocrine tumors (NETs). He is additionally interested and experienced in the management of rare tumors, including pheochromocytomas, paragangliomas and adrenocortical carcinomas, as well as other gastrointestinal cancers.2025-02-0548 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 40: External Radiation Therapy for Neuroendocrine CancersABOUT THIS EPISODEWhat is radiation oncology, and how is it used for neuroendocrine cancer? UCSF radiation oncologists Dr. Will Chen and Dr. Alexandra Hotca-Cho describe external radiation therapy (SBRT) and how, when, and where it may be used for select patients with neuroendocrine cancers. They address common concerns about the planning process, safety concerns, and treatment sequencing.TOP TEN QUESTIONS ABOUT EXTERNAL RADIATION THERAPY FOR NEUROENDOCRINE CANCERS:1. What is radiation oncology? How does it work? How is it different from other types of radiation?2. What are the...2024-12-2253 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 39: NEN Treatments: Focus On Liver-Directed Therapies (Part II: Intra-Arterial Techniques and Sequencing)ABOUT THIS EPISODEIn this 2-part series, Dr. Osman Ahmed from the University of Chicago covers liver-directed therapies for neuroendocrine neoplasms (NENs or neuroendocrine cancer). In this second episode, he details the embolization techniques, including bland embolization (TAE), chemoembolization (TACE), and radioembolization (TARE, SIRT, y90). He discusses decision-making, sequencing, and follow-up after these procedures.TOP TEN QUESTIONS ABOUT LIVER-DIRECTED THERAPY PART 2:1. What do patients need to know about bland embolization (TAE)? a. What are the possible side effects? b. How do the size of beads play a ro...2024-11-1747 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 38 - NEN Treatments: Focus on Liver-Directed Therapies (Part I: Overview and Ablative Techniques Including Histotripsy)ABOUT THIS EPISODEIn this 2-part series, Dr. Osman Ahmed from University of Chicago covers liver-directed therapies for neuroendocrine neoplasms (NENs or neuroendocrine cancer). In this first episode, he outlines the types of liver-directed therapies and elaborates on ablative techniques including the newest technique, histotripsy. Listen to a frank discussion of how histotripsy works, when it might be used, and what its current limitations are.TOP TEN QUESTIONS ABOUT LIVER-DIRECTED THERAPY INCLUDING HISTOTRIPSY:What is liver-directed therapy? How does it work? Is this considered “surgery”? What is a surgery and what...2024-10-2131 min
NETCastBridging the Gap: Patient AdvocacyJoin us for Episode 24 of NETCast. Mayo Clinical Gastrointestinal Oncologist Dr. Jason Starr interviews Lisa Yen from LACNETS and Stephanie Alband from INCA and The PheoPara Alliance, patient advocacy groups that partner with NANETS. Join us as we discuss ways we are Bridging the Gap for patient advocacy.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.2024-10-0139 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 37: Supportive Oncology for Neuroendocrine CancerWhat is supportive care or supportive oncology? What is cancer-related distress? How might NET patients benefit from supportive care? Yale oncologist Dr. Maryam Lustberg suggests strategies to manage cancer-related fatigue, diarrhea, nausea, mouth sores, peripheral neuropathy, distress, anxiety, and anxiety. She also addresses considerations for fertility and sexual health.MEET DR. MARYAM LUSTBERGDr. Maryam Lustberg is an American breast oncologist. She is the Director of The Breast Center at Smilow Cancer Hospital and Chief ofBreast Medical Oncology at Yale Cancer Center. Dr. Lustberg previously served as the Medical Director...2024-09-1742 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 36: "NEN Treatments: Focus on Immunotherapy" with Dr. Jennifer EadsABOUT THIS EPISODEWhat is immunotherapy? How effective are they for neuroendocrine neoplasms (NENs)? Dr. Jennifer Eads from Penn Medicine answers common questions about immunotherapy. She discusses the latest in CAR T therapy, DLL3, and vaccine therapy for NENs. TOP TEN QUESTIONS ABOUT IMMUNOTHERAPY FOR NENS:What is immunotherapy? How does it work? How does immunotherapy differ from other treatments? When is immunotherapy used? Which neuroendocrine cancers are they used for? What are the various immunotherapy drugs used for neuroendocrine cancer and how do they work? What are immune checkpoint inhi...2024-08-1639 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEPISODE 35 - NEN Treatments: Focus on ChemotherapyWhat is chemotherapy? When are they used for neuroendocrine neoplasms (NENs)? Dr. Pamela Kunz from Yale Medicine discusses the benefits, potential side effects and latest advances in chemotherapy for NENs. She explains how it differs from other treatments for NENs and how she counsels patients as they consider chemotherapy.TOP TEN QUESTIONS ABOUT CHEMOTHERAPY FOR NENS:What is chemotherapy? How does it work? What are the chemotherapy drugs used for neuroendocrine cancer? When are they used? Which neuroendocrine cancers are they used for? How does chemotherapy differ from other treatments such as SSAs or ta...2024-07-2436 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 34: NET Treatments: Focus on PRRTWhat is PRRT? How is it different from the more commonly used radiation treatment? What are the possible side effects? Dr. Riham El Khouli from the University of Kentucky in Lexington discusses common questions and concerns about PRRT and shares some of the latest advances.MEET DR. RIHAM EL KHOULI, MD, PHDAssociate Professor of Radiology, UK College of MedicineChief, Division of Nuclear Medicine/Molecular Imaging & Radiotheranostics (NM/MI&R)Director, Radiotheranostics ProgramUniversity of KentuckyDr. Riham El Khouli, MD PhD, is the director of the Radiotheranostics program...2024-06-1554 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 33: Focus on Targeted TherapiesABOUT THIS EPISODEWhat are Targeted Therapies and how do they work? How and when would they be used in NETs? Dr. Scott Paulson from Baylor Cancer Center in Dallas discusses common questions and concerns about targeted therapies including side effects, dosing and treatment sequencing. Bonus: Dr. Paulson shares how we can learn from Harry Potter’s invisibility cloak in understanding treatment goals with NETs.MEET DR. SCOTT PAULSONDr. Paulson is a medical oncologist and the medical director for the Neuroendocrine Research and Treatment Center at Baylor Charles A...2024-05-1548 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 32: Focus on Somatostatin Analogues (SSAs)How do SSAs work? Should all NET patients be on one? What are the side effects? Dr. Edward Wolin from Mount Sinai Health System answers several common questions about the current and future role of somatostatin analogues in NET treatment. MEET Dr. EDWARD M. WOLINProfessor of Medicine, Medical Oncology, Icahn School of Medicine Director, Center for Carcinoid and Neuroendocrine Tumors Tisch Cancer Institute, Mount Sinai Health SystemDr. Edward M. Wolin is an internationally renowned authority on neuroendocrine tumors. Dr. Wolin is the Director of the C...2024-04-3053 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 31: (Part I) Clinical Trials - Expectations vs. RealitiesIn this two-part series, we reprise “Navigating Clinical Trials: Expectations vs. Realities” with Taymeyah Al-Toubah. This was previously broadcast on August 19th, 2023, as a LACNETS monthly educational webinar. In Part 1, Taymeyah discusses clinical trial terminology, timeline, questions to ask, and misconceptions. In Part 2, Taymeyah answers questions about logistics and practical aspects of clinical trials, such as costs, response time, and follow-up. She also answers frequently asked questions about PRRT trials, including alpha trials. MEET TAYMEYAH AL-TOUBAH, MPHTaymeyah Al-Toubah is a clinical researcher, currently at Moffitt Cancer Center, who has been in the rese...2024-03-1535 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 31: (Part II) Clinical Trials - Expectations vs. RealitiesIn this two-part series, we reprise “Navigating Clinical Trials: Expectations vs. Realities” with Taymeyah Al-Toubah. This was previously broadcast on August 19th, 2023, as a LACNETS monthly educational webinar. In Part 1, Taymeyah discusses clinical trial terminology, timeline, questions to ask, and misconceptions. In Part 2, Taymeyah answers questions about logistics and practical aspects of clinical trials, such as costs, response time, and follow-up. She also answers frequently asked questions about PRRT trials, including alpha trials.MEET TAYMEYAH AL-TOUBAH, MPHTaymeyah Al-Toubah is a clinical researcher, currently at Moffitt Cancer Center, who has been in the rese...2024-03-1540 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 30: Bone & Brain Metastases in Neuroendocrine CancerWhen and how often do NETs spread to the bones or brain? How are they found? What is the treatment? Dr. Robert Ramirez of Vanderbilt University addresses concerns surrounding bone metastases (or “mets”) as well as rare brain metastases.MEET DR. ROBERT RAMIREZ, DO, FACP Dr. Robert Ramirez is a medical oncologist specializing in the treatment of thoracic and neuroendocrine malignancies and an Associate Professor of Medicine at Vanderbilt University Medical Center in Nashville, TN. He earned his medical degree from the University of Medicine and Dentistry of New Jersey School of Ost...2024-02-1543 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 29: "Nutrition & Diet Considerations for NET" with Sina TeskeyNET dietician Sina Teskey from the Medical College of Wisconsin answers common questions about diet and nutrition raised among NET patients and caregivers. She addresses special diets, food restrictions, and whether sugar “feeds” cancer. Sina also speaks to diarrhea, and digestive enzymes and shares tips on how to maintain nutrition and weight.MEET SINA TESKEY, RD, CD Sina Teskey, RD, CD received her B.S. from the University of Wisconsin-Madison in 2006 and completed her dietetic internship at the University of Minnesota Medical College-Fairview in 2007. She has spent most of her career working with canc...2024-01-1545 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsTop 10 Highlights of 2023 NANETS SymposiumIn this special episode, Oregon Health & Sciences University (OHSU) Medical oncologist, Dr. Guillaume (Will) Pegna, recaps the North American Neuroendocrine Tumor Society (NANETS) 2023 Multidisciplinary NET Medical Symposium. He shares the latest developments in NET research and medical advances from the conference and discusses why they matter to the NET patient community.MEET DR. GUILLAUME PEGNA Dr. Pegna is a medical oncologist who specializes in the care of adults with neuroendocrine tumors (NETs). He is additionally interested and experienced in the management of rare tumors including pheochromocytomas, paragangliomas, and adrenocortical carcinomas as well as...2023-12-111h 00
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 27: What to Know About Neuroendocrine Tumor Liver MetastasesWhat do you call NETs in the liver? How often do NETs spread? What causes NETs to spread? How do you determine if surgery is an option? Dr. Xavier Keutgen from University of Chicago brings clarity to NET tumors found in the liver and describes how surgery fits in with other treatments for metastatic NETs.ABOUT DR. XAVIER KEUTGENXavier M. Keutgen MD is a board-certified, double-fellowship trained surgeon who specializes in the treatment of gastro-entero-pancreatic neuroendocrine tumors and neoplasms of the thyroid-, parathyroid- and adrenal glands. A native from Belgium, Dr. Keutgen...2023-11-1546 min
Turning Around with MartaNeuroendocrine Cancer Awareness November 10th My Journey with this cancerNeuroendocrine Cancer Awareness is November 10th and although we only get one day and it is a rare or mostly unheard off and or usually misdiagnosed cancer I would like to share with you my story! I talk about my journey briefly and what the general symptoms are, where to go for more information this is only for spreading awareness purposes amd sharing my own experience and not intended as a medical guide or any type of health advise. I read a list of symptoms from google and The City of Hope information site to better describe these and...2023-11-0832 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 26: What to Know About Lung NETsWhat are lung NETs? What is DIPNECH? How is lung NET similar or different from lung cancer? Dr. Vineeth Sukrithan from Ohio State University Comprehensive Cancer Center gives a comprehensive overview of lung NET and DIPNECH, including the work-up and treatment options. He also discusses open clinical trials and exciting advances in lung NET research on the horizon.For more information, visit LACNETS.org/podcast/24. For more information, visit LACNETS.org.For more information, visit LACNETS.org. 2023-10-1544 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 25: What to Know about Grade 3 Poorly Differentiated Neuroendocrine Carcinoma (NEC)What are Grade 3 Poorly Differentiated Neuroendocrine Carcinoma (NEC)? What makes NEC unique? Can a NET transform to NEC? Dr Nitja Raj from Memorial Sloan Kettering Cancer Center in New York City explains NEC tumor biology and how it guides treatment strategy. She also discusses current clinical trials and research.For more information, visit LACNETS.org/podcast/24. For more information, visit LACNETS.org. 2023-09-1545 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 24: What to Know About Grade 3 Well-differentiated NETsWhat are grade 3 NETs and how is it different from grade 3 NEC and other types of NETs? Dr. Mohamad (Bassam) Sonbol from Mayo Clinic in Phoenix, Arizona, enlightens us on this fairly new entity, including treatment options, treatment sequencing and clinical trials.For more information, visit LACNETS.org/podcast/24. For more information, visit LACNETS.org. 2023-08-1540 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 23: What to Know About Hindgut & Appendiceal NETsWhat are Hindgut NETs (distal colon and rectum), and how are they treated? How is rectal NET different from rectal cancer? What makes appendiceal NETs difficult to diagnose? Dr. Hagen Kennecke from Providence Cancer Institute in Portland, Oregon, shares insights on the diagnosis and management of Hindgut NETs and appendix NET.For more information, visit LACNETS.org/podcast23 for the transcript and resources. For more information, visit LACNETS.org. 2023-07-1531 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsWhat to Know about Pancreatic NETsWhat is the difference between Pancreatic Neuroendocrine Tumor (PNET) and Pancreatic Cancer? Where exactly is the pancreas located and why is the tumor location important? NET Oncologist Dr. Jennifer Chan from Dana-Farber Cancer Institute takes us through how some treatments, imaging and blood work are unique to PNETs. She also expounds on several ongoing and active trials.For more information, visit LACNETS.org. 2023-06-1544 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 21: What to Know About Small Bowel NETsHow are small bowel NETs diagnosed, treated, and monitored? How is it different from other types of NETs? What are some exciting new treatments for small bowel NETs? NET oncologist, Dr. David Zhen of Fred Hutch Cancer Center in Seattle answers 10 common questions about small bowel NETs. Visit LACNETS.org/podcast21 for the transcript and resources. For more information, visit LACNETS.org. 2023-05-1545 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 20: "Gastric NET, Gastrinomas & Zollinger-Ellison Syndrome (ZES)" Gastroenterologist and Neuroendocrinologist Dr. David C. Metz discusses important concepts in Gastric NET, Gastrinomas and Zollinger-Ellison Syndrome, including detection, treatments, associated risks and monitoring. He also lends valuable insight on ulcers, MEN and proton pump inhibitors. Visit LACNETS.org/podcast20 for the transcript and resources. For more information, visit LACNETS.org. 2023-04-151h 01
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 19: "Beyond the Basics: The Pathology of NET"Take a glimpse through the microscope and learn how pathology determines your NET diagnosis and guides treatment. How does one interpret differing Ki-67 results from the same specimen? Why might a patient have two different Ki-67 results from different specimens? How does pathology distinguish G3 well-differentiated NET from NEC? How does pathology help with NET tumors of unknown origin? NET pathologist Dr. Andrew M. Bellizzi from the University of Iowa sheds light on just how much information a tiny tissue sample may contain.For more information, visit LACNETS.org. 2023-03-151h 00
NETWiseEpisode 24: Gynecologic NETs
This episode of NETWise expands our series looking at all possible NET primary sites, with a conversation about one of the very rarest forms of NETs – those that originate in the female reproductive organs.
https://netrf.org/wp-content/uploads/2023/03/NETWise-EP-24-Ready5-JB.mp3
After the episode, test your knowledge by taking the LACNETS quiz here
2023-03-1339 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 18: "Mental Health & NETs" with Dr. Karen KerstingWhat are the common mental health issues associated with NET? How can they be managed? How does NET impact young adults, NET patients and children of NET patients? Health psychologist Dr. Kersting of the Medical College of Wisconsin, elaborates on mental health challenges facing NET patients and their loved ones. Hear coping strategies for anxiety, eating and sleeping difficulties, fatigue and depression. Dr. Kersting discusses what you can expect when meeting a mental health professional and why supporting your mental health is an integral part of your overall care.Visit LACNETS.Org/Podcast182023-02-1548 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 17: Key Considerations for NET Surgery How do surgeons decide the type, extent, and approach of NET surgery? NET surgeon Dr. Alexandra Gangi of Cedars-Sinai answers 10 common questions about what to expect before, during, and after NET surgery. Gain insight on preparing for surgery and what is important for your surgeon to know about your recovery goals. Dr. Gangi’s comprehensive approach illustrates why surgeons are an integral part of your NET medical team. For more information, visit LACNETS.org. 2023-01-1541 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 16: Top 10 Highlights of the 2022 NANETS SymposiumIn this special episode, Dr. Will Pegna shares 10 new and exciting discoveries from the 2022 North American Neuroendocrine Tumor Society (NANETS) Multidisciplinary NET Medical Symposium. Each year, hundreds of medical professionals gather to share the latest in NET research and medical advances. LACNETS and Dr. Pegna discuss the Symposium highlights and why they matter to the NET community. For more information, visit LACNETS.org. 2022-12-1558 minNETWiseEpisode 22: Navigating The New Normal
In the last episode of NETWise, we talked about a moment of transition – the time right after someone receives a diagnosis of NETs and the feelings of grief that can follow. This episode discusses the next part of the journey- how to navigate through the emotions, symptoms, and treatments of NETs while one continues to manage life responsibilities and relationships while living with NETs. This episode addresses survivorship and how one starts to navigate their new normal.After you’ve listened to the episode, test your NET Knowledge by talking the LACNETS quiz here.
NET expe...2022-12-131h 08
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsPsycho-Oncology with Dr. Mona MojtahedzadehWhat is psycho-oncology and how can it benefit those living with NET? Psychiatrist Dr. Mona Mojtahedzadeh, MD of Simms/Mann UCLA Center for Integrative Oncology discusses whole-person care for cancer patients and caregivers. From “scanxiety” to sleep hygiene, she acknowledges the range of challenges of living with cancer and shares solutions to improve mental well-being and overall health. Listen now!For more information, visit LACNETS.org. 2022-11-1559 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsPalliative Care with Dr. Chandana BanerjeeWhat is palliative care? How does it differ from hospice? What advice do you have for NET caregivers? Trained Hospice & Palliative Medicine Physician Dr. Chandana Banerjee of City of Hope addresses ten common questions about palliative care. Listen now!For more information, visit LACNETS.org. 2022-10-1541 minNETWiseEpisode 21: Adjusting to the New Normal
A NET cancer diagnosis can affect the emotional health of patients, families, and caregivers. In this episode, we’re going to do something a little different. We have spent a lot of time in this series talking about the science of NETs, but a NET cancer journey is not just about biology. The NET journey can be an intensely emotional experience and learning to deal with the emotions can be just as difficult, but as important as treating the disease itself. After you’ve listened to the episode, test your NET Knowledge by taking the LACNETS quiz here...2022-09-2748 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsNET Oncology with Dr. Jun Gong of Cedars-Sinai Medical CenterIs it okay for NET patients to take “statin” medications to lower cholesterol or SSRI medication for depression? How often should full body scans be done? NET oncologist Dr. Jun Gong of Cedars-Sinai Medical Center addresses ten common questions you might ask your NET oncologist along your NET journey. Listen now!For more information, visit LACNETS.org. 2022-09-1530 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsPheochromocytoma & Paraganglioma (PPGL) with Dr. Jaydira Del RiveroIn honor of Pheo Para Awareness Week, NET endocrinologist and medical oncologist Dr. Jaydira Del Rivero of the National Cancer Institute answers ten common questions about pheochromocytoma and paraganglioma (PPGL). Dr. Del Rivero defines PPGL and describes the unique symptoms, genetic testing, and treatment options for PPGL. Listen now!Additional PPGL resources can be found here: www.lacnets.org/pheo-para-resourcesFor more information, visit LACNETS.org. 2022-08-151h 07NETWiseEpisode 20: NET Research—Part Two
Episode 20 is part two of our deeper understanding into NET research. Advancing NET research is the core of our mission at NETRF, and it’s a crucial need. This episode of NETWise will take a closer look at how scientists do the research that we hope will yield the next generation of effective treatments for NETs. This episode will also look specifically at the vital role NETRF plays in this process and how and why we choose the researchers we support.After you’ve listened to the episode, test your NET Knowledge by taking the LACNETS quiz here...2022-08-0530 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsPathology for NETs featuring Dr. Sue Chang of City of HopeHow do you understand your pathology report? What is tumor grade, differentiation, mitotic index, and ki67? How do you get a second opinion on your pathology? NET expert and pathologist Dr. Sue Chang of City of Hope answers ten common questions about pathology for neuroendocrine tumors. Dr. Chang defines important keywords to help you understand your pathology report which is instrumental in guiding treatment decisions. Listen now! For more information, visit LACNETS.org. 2022-07-1559 minNETWiseEpisode 19: NET Research—Part One
Episode 19 is the first of two episodes that will discuss a topic near and dear to us here at NETRF: NET research. Advancing NET research is the core of our mission, and it’s a crucial need, because NETs are extremely complicated cancers and there is still a lot the medical community needs to learn about them.
How do scientists do research, from beginning to end? And what are some of the challenges that specifically face NET researchers as they work through that process? Learn why basic research in the laboratory is crucial to discovering new treatments. Clin...2022-06-2836 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsPRRT (Part Three) with NET Patient Advocate, Josh MailmanHow can patients make decisions about where, when, and what kind of PRRT to receive? How does PRRT in the USA differ from other parts of the world? Why does each institution have different post-PRRT radiation safety precautions? What is the patient experience with traveling after PRRT? Internationally recognized patient advocate and President of NorCal CarciNET Community, Josh Mailman, answers ten common questions about the past, present, and future of PRRT. Josh, whose journey has taken him from PRRT recipient to a seat on the Nuclear Regulatory Commission Advisory Committee, shares from his years of patient advocacy work in...2022-06-1350 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsPRRT (Part Two) with Dr. Martin AuerbachWho is eligible for PRRT? What are the side effects? Should somatostatin analogues be continued? Can PRRT be repeated when there is disease progression? NET expert and Nuclear Medicine Physician Dr. Martin Auerbach of UCLA Health answers 10 common questions about the decision-making process of PRRT. Dr. Auerbach addresses how to manage side effects, carcinoid crisis, labs, and post-PRRT imaging. Listen now! Be sure to listen to Episode 8: PRRT (Part One) with Administrative Nurse Lindy Gardner of UCLA Health. For more information, visit LACNETS.org. 2022-05-1126 minNETWiseEpisode 18: High-Grade NETs and NECs
While most neuroendocrine tumors are low-grade and slow growing, there are some that are high-grade and very aggressive. These high-grade NETs are treated very differently. In the newest episode of NETWise, we turn the spotlight on high-grade NETs, talk with NET physicians about the treatment challenges, and hear from a patient and caregiver about dealing with the diagnosis. Listen above.
Net experts featured in this podcast:
Dr. Thor Halfdanarson, Medical Oncologist, Mayo Clinic, Minnesota
Dr. Namrata Vijayvergia, Medical Oncologist, Fox Chase Cancer Center
Dr. Laura Tang, Pathologist, Memorial Sloan Kettering Cancer Institute
Special thanks to Hilary Hammel...2022-04-2646 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsPRRT (Part One) with Lindy Gardner, RNCurious about PRRT? Wondering what a PRRT day looks like, what side effects you might experience, and what precautions you should take? NET expert and Administrative Nurse Lindy Gardner of UCLA Health answers 10 common questions about the before, during and after of PRRT. Lindy explains how to prepare for your treatment day, what to expect on the day of the treatment, and radiation precautions following PRRT including travel, vaccinations, and fertility and breastfeeding recommendations. Listen now! (PRRT Part Two with Nuclear Medicine Physician Dr. Martin Auerbach will be released next month. Stay tuned!)For more i...2022-04-1349 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsImaging of NETs with NET Expert Dr. Gary UlanerConfused about scans? NET expert Dr Gary Ulaner answers the top 10 questions about imaging for NETs. Dual board-certified in radiology and nuclear medicine, Dr. Ulaner explains different scans used in NET imaging including functional imaging scans such as Gallium-68 DOTATATE, Copper-64 DOTATATE, and FDG PET scans and anatomical scans such as MRI and CT scans. He addresses common questions about radiation safety, contrasts, and SUV. Listen now!For more information, visit LACNETS.org. 2022-03-041h 06
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsDecision-making for NETs with Dr. Daneng Li of City of HopeHow do NET experts decide what treatments are right for you? How do I learn about current clinical trials? In our sixth episode, NET expert and medical oncologist Dr. Daneng (Dan) Li of City of Hope answers 10 common questions about decision-making for NETs including finding the primary tumor site, bone mets, tumor grades, and the role of adjuvant therapy. Listen now!For more information, visit LACNETS.org. 2022-02-1142 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsTreatment for NETs with NET Expert Dr. Randy HechtWhat are the current treatment options for NETs? How do I know what treatments I should be on? In our fifth episode, NET expert and Medical Oncologist Dr. Randy Hecht of UCLA Health answers ten common questions about current NET treatment options (including lanreotide, octreotide, everolimus, and PRRT), as well as future treatment options. Listen now!For more information, visit LACNETS.org. 2022-01-071h 07
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsThe LACNETS StoryIn this special episode, we share the history of LACNETS – the who, what, and when. We journey down memory lane with eight special guests from before the birth of LACNETS to where it is today. This episode is dedicated to Giovanna Joyce Imbesi, the LACNETS Founder, whose vision and dedication inspires us all. Listen now!For more information, visit LACNETS.org. 2021-12-171h 04
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsNET oncologist, Dr. Andrew Hendifar answers the top 10 FAQs about NET BasicsNewly diagnosed? Or need to brush up on your NET basics? Medical oncologist Dr. Andrew Hendifar addresses 10 common questions including labs, scans, genetic testing, and prognosis. Listen now! For more information, visit LACNETS.org. 2021-12-0945 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsSurgery for NETs with NET Surgeon Dr. Gagandeep SinghNET expert and surgeon Dr. Gagandeep Singh joins us for this month’s episode to answer the top 10 surgery questions for NETs. Listen now!For more information, visit LACNETS.org. 2021-11-1439 min
Brianna’s Bandwagon : The Podcast2021 NET Cancer Day !Listen to the full story from my previous podcast episode: https://anchor.fm/briannasbandwagon/episodes/It-All-Started-With-A-Cough-e176e8v NET Cancer Day Official Page : https://incalliance.org/net-cancer-day/ Organizations The Healing Net Foundation https://www.thehealingnet.org/ Neuroendocrine Cancer Awareness Network (NCAN) https://www.netcancerawareness.org/ Neuroendocrine Tumor Research Foundation (NETRF) https://netrf.org/ Carcinoid Cancer Foundation https://www.carcinoid.org/ North American Neuroendocrine Tumor Society (NANETS) Los Angeles Carcinoid Neuroendocrine Tumor Society (LACNETS) lacnets.org Neuroendocrine Cancer UK neuroendocrinecancer.org.uk Canadian Neuroendocrine Tumor Society cnets.ca/ International Neuroendocrine Cancer Alliance (INCA) incalliance.org Ronny Allan–Living with Neuroendocrine Can...2021-11-1008 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsDiarrhea & NETs with NET Expert and Gastroenterologist Dr. David MetzNET expert and gastroenterologist Dr. David Metz joins us for this month’s episode to answer the top 10 GI questions for NETs. Dr. Metz addresses diarrhea, diet, carcinoid syndrome and effective symptom management.For more information, visit LACNETS.org. 2021-10-1353 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsNutrition for NETs with NET Dietician, Meghan Laszlo, MS, RD, CSOFor our very first episode we welcome NET Dietician, Meghan Laszlo, MS, RD, CSO of Cedars-Sinai Medical Center. Meghan answers the top 10 NET nutrition questions, covering topics including carcinoid syndrome, prescription enzymes, diarrhea, recommended diet for NET patients, and much more!For more information, visit LACNETS.org. 2021-08-2329 min