Shows
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEPISODE 41: Top 10 Highlights of the 2024 NANETS SymposiumIn this special episode, Oregon Health & Sciences University (OHSU) Medical oncologist Dr. Guillaume (Will) Pegna recaps the North American Neuroendocrine Tumor Society (NANETS) 2024 Multidisciplinary NET Medical Symposium. He shares the latest developments in NET research and medical advances from the conference and how they matter to the NET patient community.MEET DR. GUILLAUME PEGNADr. Pegna is a medical oncologist specializing in caring for adults with neuroendocrine tumors (NETs). He is additionally interested and experienced in the management of rare tumors, including pheochromocytomas, paragangliomas and adrenocortical carcinomas, as well as other gastrointestinal cancers.
2025-02-0548 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 39: NEN Treatments: Focus On Liver-Directed Therapies (Part II: Intra-Arterial Techniques and Sequencing)ABOUT THIS EPISODEIn this 2-part series, Dr. Osman Ahmed from the University of Chicago covers liver-directed therapies for neuroendocrine neoplasms (NENs or neuroendocrine cancer). In this second episode, he details the embolization techniques, including bland embolization (TAE), chemoembolization (TACE), and radioembolization (TARE, SIRT, y90). He discusses decision-making, sequencing, and follow-up after these procedures.TOP TEN QUESTIONS ABOUT LIVER-DIRECTED THERAPY PART 2:1. What do patients need to know about bland embolization (TAE)? a. What are the possible side effects? b. How do the size of beads play a ro...
2024-11-1747 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 38 - NEN Treatments: Focus on Liver-Directed Therapies (Part I: Overview and Ablative Techniques Including Histotripsy)ABOUT THIS EPISODEIn this 2-part series, Dr. Osman Ahmed from University of Chicago covers liver-directed therapies for neuroendocrine neoplasms (NENs or neuroendocrine cancer). In this first episode, he outlines the types of liver-directed therapies and elaborates on ablative techniques including the newest technique, histotripsy. Listen to a frank discussion of how histotripsy works, when it might be used, and what its current limitations are.TOP TEN QUESTIONS ABOUT LIVER-DIRECTED THERAPY INCLUDING HISTOTRIPSY:What is liver-directed therapy? How does it work? Is this considered “surgery”? What is a surgery and what...
2024-10-2131 min
NETCastBridging the Gap: Patient AdvocacyJoin us for Episode 24 of NETCast. Mayo Clinical Gastrointestinal Oncologist Dr. Jason Starr interviews Lisa Yen from LACNETS and Stephanie Alband from INCA and The PheoPara Alliance, patient advocacy groups that partner with NANETS. Join us as we discuss ways we are Bridging the Gap for patient advocacy.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
2024-10-0139 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 37: Supportive Oncology for Neuroendocrine CancerWhat is supportive care or supportive oncology? What is cancer-related distress? How might NET patients benefit from supportive care? Yale oncologist Dr. Maryam Lustberg suggests strategies to manage cancer-related fatigue, diarrhea, nausea, mouth sores, peripheral neuropathy, distress, anxiety, and anxiety. She also addresses considerations for fertility and sexual health.MEET DR. MARYAM LUSTBERGDr. Maryam Lustberg is an American breast oncologist. She is the Director of The Breast Center at Smilow Cancer Hospital and Chief ofBreast Medical Oncology at Yale Cancer Center. Dr. Lustberg previously served as the Medical Director...
2024-09-1742 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 36: "NEN Treatments: Focus on Immunotherapy" with Dr. Jennifer EadsABOUT THIS EPISODEWhat is immunotherapy? How effective are they for neuroendocrine neoplasms (NENs)? Dr. Jennifer Eads from Penn Medicine answers common questions about immunotherapy. She discusses the latest in CAR T therapy, DLL3, and vaccine therapy for NENs. TOP TEN QUESTIONS ABOUT IMMUNOTHERAPY FOR NENS:What is immunotherapy? How does it work? How does immunotherapy differ from other treatments? When is immunotherapy used? Which neuroendocrine cancers are they used for? What are the various immunotherapy drugs used for neuroendocrine cancer and how do they work? What are immune checkpoint inhi...
2024-08-1639 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 34: NET Treatments: Focus on PRRTWhat is PRRT? How is it different from the more commonly used radiation treatment? What are the possible side effects? Dr. Riham El Khouli from the University of Kentucky in Lexington discusses common questions and concerns about PRRT and shares some of the latest advances.MEET DR. RIHAM EL KHOULI, MD, PHDAssociate Professor of Radiology, UK College of MedicineChief, Division of Nuclear Medicine/Molecular Imaging & Radiotheranostics (NM/MI&R)Director, Radiotheranostics ProgramUniversity of KentuckyDr. Riham El Khouli, MD PhD, is the director of the Radiotheranostics program...
2024-06-1554 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 33: Focus on Targeted TherapiesABOUT THIS EPISODEWhat are Targeted Therapies and how do they work? How and when would they be used in NETs? Dr. Scott Paulson from Baylor Cancer Center in Dallas discusses common questions and concerns about targeted therapies including side effects, dosing and treatment sequencing. Bonus: Dr. Paulson shares how we can learn from Harry Potter’s invisibility cloak in understanding treatment goals with NETs.MEET DR. SCOTT PAULSONDr. Paulson is a medical oncologist and the medical director for the Neuroendocrine Research and Treatment Center at Baylor Charles A...
2024-05-1548 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 32: Focus on Somatostatin Analogues (SSAs)How do SSAs work? Should all NET patients be on one? What are the side effects? Dr. Edward Wolin from Mount Sinai Health System answers several common questions about the current and future role of somatostatin analogues in NET treatment. MEET Dr. EDWARD M. WOLINProfessor of Medicine, Medical Oncology, Icahn School of Medicine Director, Center for Carcinoid and Neuroendocrine Tumors Tisch Cancer Institute, Mount Sinai Health SystemDr. Edward M. Wolin is an internationally renowned authority on neuroendocrine tumors. Dr. Wolin is the Director of the C...
2024-04-3053 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 31: (Part I) Clinical Trials - Expectations vs. RealitiesIn this two-part series, we reprise “Navigating Clinical Trials: Expectations vs. Realities” with Taymeyah Al-Toubah. This was previously broadcast on August 19th, 2023, as a LACNETS monthly educational webinar. In Part 1, Taymeyah discusses clinical trial terminology, timeline, questions to ask, and misconceptions. In Part 2, Taymeyah answers questions about logistics and practical aspects of clinical trials, such as costs, response time, and follow-up. She also answers frequently asked questions about PRRT trials, including alpha trials. MEET TAYMEYAH AL-TOUBAH, MPHTaymeyah Al-Toubah is a clinical researcher, currently at Moffitt Cancer Center, who has been in the rese...
2024-03-1535 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 31: (Part II) Clinical Trials - Expectations vs. RealitiesIn this two-part series, we reprise “Navigating Clinical Trials: Expectations vs. Realities” with Taymeyah Al-Toubah. This was previously broadcast on August 19th, 2023, as a LACNETS monthly educational webinar. In Part 1, Taymeyah discusses clinical trial terminology, timeline, questions to ask, and misconceptions. In Part 2, Taymeyah answers questions about logistics and practical aspects of clinical trials, such as costs, response time, and follow-up. She also answers frequently asked questions about PRRT trials, including alpha trials.MEET TAYMEYAH AL-TOUBAH, MPHTaymeyah Al-Toubah is a clinical researcher, currently at Moffitt Cancer Center, who has been in the rese...
2024-03-1540 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsTop 10 Highlights of 2023 NANETS SymposiumIn this special episode, Oregon Health & Sciences University (OHSU) Medical oncologist, Dr. Guillaume (Will) Pegna, recaps the North American Neuroendocrine Tumor Society (NANETS) 2023 Multidisciplinary NET Medical Symposium. He shares the latest developments in NET research and medical advances from the conference and discusses why they matter to the NET patient community.MEET DR. GUILLAUME PEGNA Dr. Pegna is a medical oncologist who specializes in the care of adults with neuroendocrine tumors (NETs). He is additionally interested and experienced in the management of rare tumors including pheochromocytomas, paragangliomas, and adrenocortical carcinomas as well as...
2023-12-111h 00
Turning Around with MartaNeuroendocrine Cancer Awareness November 10th My Journey with this cancerNeuroendocrine Cancer Awareness is November 10th and although we only get one day and it is a rare or mostly unheard off and or usually misdiagnosed cancer I would like to share with you my story! I talk about my journey briefly and what the general symptoms are, where to go for more information this is only for spreading awareness purposes amd sharing my own experience and not intended as a medical guide or any type of health advise. I read a list of symptoms from google and The City of Hope information site to better describe these and...
2023-11-0832 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 26: What to Know About Lung NETsWhat are lung NETs? What is DIPNECH? How is lung NET similar or different from lung cancer? Dr. Vineeth Sukrithan from Ohio State University Comprehensive Cancer Center gives a comprehensive overview of lung NET and DIPNECH, including the work-up and treatment options. He also discusses open clinical trials and exciting advances in lung NET research on the horizon.For more information, visit LACNETS.org/podcast/24. For more information, visit LACNETS.org.For more information, visit NCF.net.
2023-10-1544 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 25: What to Know about Grade 3 Poorly Differentiated Neuroendocrine Carcinoma (NEC)What are Grade 3 Poorly Differentiated Neuroendocrine Carcinoma (NEC)? What makes NEC unique? Can a NET transform to NEC? Dr Nitja Raj from Memorial Sloan Kettering Cancer Center in New York City explains NEC tumor biology and how it guides treatment strategy. She also discusses current clinical trials and research.For more information, visit LACNETS.org/podcast/24. For more information, visit NCF.net.
2023-09-1545 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 24: What to Know About Grade 3 Well-differentiated NETsWhat are grade 3 NETs and how is it different from grade 3 NEC and other types of NETs? Dr. Mohamad (Bassam) Sonbol from Mayo Clinic in Phoenix, Arizona, enlightens us on this fairly new entity, including treatment options, treatment sequencing and clinical trials.For more information, visit LACNETS.org/podcast/24. For more information, visit NCF.net.
2023-08-1540 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 23: What to Know About Hindgut & Appendiceal NETsWhat are Hindgut NETs (distal colon and rectum), and how are they treated? How is rectal NET different from rectal cancer? What makes appendiceal NETs difficult to diagnose? Dr. Hagen Kennecke from Providence Cancer Institute in Portland, Oregon, shares insights on the diagnosis and management of Hindgut NETs and appendix NET.For more information, visit LACNETS.org/podcast23 for the transcript and resources. For more information, visit NCF.net.
2023-07-1531 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 21: What to Know About Small Bowel NETsHow are small bowel NETs diagnosed, treated, and monitored? How is it different from other types of NETs? What are some exciting new treatments for small bowel NETs? NET oncologist, Dr. David Zhen of Fred Hutch Cancer Center in Seattle answers 10 common questions about small bowel NETs. Visit LACNETS.org/podcast21 for the transcript and resources. For more information, visit NCF.net.
2023-05-1545 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 20: "Gastric NET, Gastrinomas & Zollinger-Ellison Syndrome (ZES)" Gastroenterologist and Neuroendocrinologist Dr. David C. Metz discusses important concepts in Gastric NET, Gastrinomas and Zollinger-Ellison Syndrome, including detection, treatments, associated risks and monitoring. He also lends valuable insight on ulcers, MEN and proton pump inhibitors. Visit LACNETS.org/podcast20 for the transcript and resources. For more information, visit NCF.net.
2023-04-151h 01
NETWiseNETWise Episode 24: Gynecologic NETs
This episode of NETWise expands our series looking at all possible NET primary sites, with a conversation about one of the very rarest forms of NETs – those that originate in the female reproductive organs.
https://netrf.org/wp-content/uploads/2023/03/NETWise-EP-24-Ready5-JB.mp3
After the episode, test your knowledge by taking the LACNETS quiz here
2023-03-1339 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 18: "Mental Health & NETs" with Dr. Karen KerstingWhat are the common mental health issues associated with NET? How can they be managed? How does NET impact young adults, NET patients and children of NET patients? Health psychologist Dr. Kersting of the Medical College of Wisconsin, elaborates on mental health challenges facing NET patients and their loved ones. Hear coping strategies for anxiety, eating and sleeping difficulties, fatigue and depression. Dr. Kersting discusses what you can expect when meeting a mental health professional and why supporting your mental health is an integral part of your overall care.Visit LACNETS.Org/Podcast18
2023-02-1548 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 16: Top 10 Highlights of the 2022 NANETS SymposiumIn this special episode, Dr. Will Pegna shares 10 new and exciting discoveries from the 2022 North American Neuroendocrine Tumor Society (NANETS) Multidisciplinary NET Medical Symposium. Each year, hundreds of medical professionals gather to share the latest in NET research and medical advances. LACNETS and Dr. Pegna discuss the Symposium highlights and why they matter to the NET community. For more information, visit NCF.net.
2022-12-1558 minNETWiseNETWise Episode 22: Navigating The New Normal
In the last episode of NETWise, we talked about a moment of transition – the time right after someone receives a diagnosis of NETs and the feelings of grief that can follow. This episode discusses the next part of the journey- how to navigate through the emotions, symptoms, and treatments of NETs while one continues to manage life responsibilities and relationships while living with NETs. This episode addresses survivorship and how one starts to navigate their new normal.After you’ve listened to the episode, test your NET Knowledge by talking the LACNETS quiz here.
NET expe...
2022-12-131h 08NETWiseNETWise Episode 21: Adjusting to the New Normal
A NET cancer diagnosis can affect the emotional health of patients, families, and caregivers. In this episode, we’re going to do something a little different. We have spent a lot of time in this series talking about the science of NETs, but a NET cancer journey is not just about biology. The NET journey can be an intensely emotional experience and learning to deal with the emotions can be just as difficult, but as important as treating the disease itself. After you’ve listened to the episode, test your NET Knowledge by taking the LACNETS quiz here...
2022-09-2748 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsPheochromocytoma & Paraganglioma (PPGL) with Dr. Jaydira Del RiveroIn honor of Pheo Para Awareness Week, NET endocrinologist and medical oncologist Dr. Jaydira Del Rivero of the National Cancer Institute answers ten common questions about pheochromocytoma and paraganglioma (PPGL). Dr. Del Rivero defines PPGL and describes the unique symptoms, genetic testing, and treatment options for PPGL. Listen now!Additional PPGL resources can be found here: www.lacnets.org/pheo-para-resourcesFor more information, visit NCF.net.
2022-08-151h 07NETWiseNETWise Episode 20: NET Research—Part Two
Episode 20 is part two of our deeper understanding into NET research. Advancing NET research is the core of our mission at NETRF, and it’s a crucial need. This episode of NETWise will take a closer look at how scientists do the research that we hope will yield the next generation of effective treatments for NETs. This episode will also look specifically at the vital role NETRF plays in this process and how and why we choose the researchers we support.After you’ve listened to the episode, test your NET Knowledge by taking the LACNETS quiz here...
2022-08-0530 minNETWiseNETWise Episode 19: NET Research—Part One
Episode 19 is the first of two episodes that will discuss a topic near and dear to us here at NETRF: NET research. Advancing NET research is the core of our mission, and it’s a crucial need, because NETs are extremely complicated cancers and there is still a lot the medical community needs to learn about them.
How do scientists do research, from beginning to end? And what are some of the challenges that specifically face NET researchers as they work through that process? Learn why basic research in the laboratory is crucial to discovering new treatments. Clin...
2022-06-2836 minNETWiseNETWise Episode 18: High-Grade NETs and NECs
While most neuroendocrine tumors are low-grade and slow growing, there are some that are high-grade and very aggressive. These high-grade NETs are treated very differently. In the newest episode of NETWise, we turn the spotlight on high-grade NETs, talk with NET physicians about the treatment challenges, and hear from a patient and caregiver about dealing with the diagnosis. Listen above.
Net experts featured in this podcast:
Dr. Thor Halfdanarson, Medical Oncologist, Mayo Clinic, Minnesota
Dr. Namrata Vijayvergia, Medical Oncologist, Fox Chase Cancer Center
Dr. Laura Tang, Pathologist, Memorial Sloan Kettering Cancer Institute
Special thanks to Hilary Hammel...
2022-04-2646 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsThe LACNETS StoryIn this special episode, we share the history of LACNETS – the who, what, and when. We journey down memory lane with eight special guests from before the birth of LACNETS to where it is today. This episode is dedicated to Giovanna Joyce Imbesi, the LACNETS Founder, whose vision and dedication inspires us all. Listen now!For more information, visit NCF.net.
2021-12-171h 04
Brianna’s Bandwagon : The Podcast2021 NET Cancer Day !Listen to the full story from my previous podcast episode: https://anchor.fm/briannasbandwagon/episodes/It-All-Started-With-A-Cough-e176e8v NET Cancer Day Official Page : https://incalliance.org/net-cancer-day/ Organizations The Healing Net Foundation https://www.thehealingnet.org/ Neuroendocrine Cancer Awareness Network (NCAN) https://www.netcancerawareness.org/ Neuroendocrine Tumor Research Foundation (NETRF) https://netrf.org/ Carcinoid Cancer Foundation https://www.carcinoid.org/ North American Neuroendocrine Tumor Society (NANETS) Los Angeles Carcinoid Neuroendocrine Tumor Society (LACNETS) lacnets.org Neuroendocrine Cancer UK neuroendocrinecancer.org.uk Canadian Neuroendocrine Tumor Society cnets.ca/ International Neuroendocrine Cancer Alliance (INCA) incalliance.org Ronny Allan–Living with Neuroendocrine Can...
2021-11-1008 min