Shows
Your Story Our Fight by Lupus LASeason 5 | Episode #4 with Teacher and Lupus Advocates Vania and Alfredo LosoyaSeason FIVE Episode FOUR of the Your Story Our Fight® podcast welcomes Vania and Alfredo Losoya. Vania Dzib is a dedicated educator, lupus warrior, and a passionate member of Lupus LA’s Patient Advocacy Panel. In the midst of the 2020 pandemic (a time defined by distance and uncertainty) she met her now-husband, Alfredo, through an online match. What started as a digital connection blossomed into a partnership built on mutual empathy, deep understanding, and shared resilience. Together, they’ve navigated the emotional and physical challenges of chronic illness, and join us to share how love can thrive - even...
2025-11-1128 minYour Story Our Fight by Lupus LASeason 5 | Episode #3 with Anthropologist and Public Health Researcher, Rachel Carmen Ceasar, PhDSeason FIVE Episode THREE of the Your Story Our Fight® podcast welcomes Rachel Carmen Ceasar. Rachel Carmen Ceasar is a medical anthropologist and public health researcher committed to helping people make informed health decisions rooted in science and evidence. She holds a PhD in Medical Anthropology from the University of California, Berkeley, and currently serves as an Assistant Professor at the Keck School of Medicine at the University of Southern California, in the Department of Population and Public Health Sciences.Her research focuses on the use of cannabis across women’s lifespans, including during pregnancy and postpartum (at...
2025-10-1427 minYour Story Our Fight by Lupus LASeason 5 | Episode #2 with Athlete, Lupus Advocate and Lupus Patient, Sarina MawjiSeason FIVE Episode TWO of the Your Story Our Fight® podcast welcomes Sarina Mawji. Sarina Lives in Vancouver, BC, Canada and was diagnosed in 2016. Sarina works within and for communities through ongoing community engagement programming initiatives through identifying community needs, capacities, & assets. She is committed to creating a better world, which is evident through her work of organizing initiatives, that foster genuine connections and promotes well-being for all. With her decades of experience in Community Development in supporting others in overcoming their own challenges she leaves a legacy of wellness by creating a more connected community.
2025-09-2338 minYour Story Our Fight by Lupus LASeason 5 | Episode #1 with Lupus Advocate and Lupus Patient, Princess WilsonSeason FIVE Episode ONE of the Your Story Our Fight® podcast welcomes Princess Wilson. Princess is a lupus warrior who is determined to learn more about Lupus through her community. She is passionate about raising awareness and resources available for lupus patients.
2025-09-0924 minYour Story Our Fight by Lupus LASeason 4 | Episode #15 with Lupus & Autoimmune Warrior, Chantelle ChandlerSeason FOUR Episode FIFTEEN of the Your Story Our Fight® podcast welcomes Chantelle Chandler. Chantelle is a resilient lupus warrior who has been navigating life with systemic lupus erythematosus (SLE), hypothyroidism, rheumatoid arthritis, and Raynaud's syndrome for over three decades. In addition to managing these autoimmune conditions, she has also lived with jugular deep vein thrombosis (DVT) for the past 28 years. Through it all, Chantelle continues to embody strength, perseverance, and advocacy for others living with chronic illness.
2025-04-2225 minYour Story Our Fight by Lupus LASeason 4 | Episode #14 with Certified Yoga Teacher, Holistic Health Coach and Lupus Patient, Roxanne LernerSeason FOUR Episode FOURTEEN of the Your Story Our Fight® podcast welcomes Roxanne Lerner. Roxanne Lerner is a certified yoga teacher and holistic health coach who has been living with lupus for the past 14 years. She is happily married with two young children. Roxanne takes a mindfulness-based approach to health and is passionate about sharing with other chronic illness warriors the science-backed practices that have been instrumental in her healing journey. Roxanne is the founder of RL Wellness, a bespoke virtual yoga and wellness studio designed for the chronic illness community. Through RL Wellness she debunks yoga myths, teaches p...
2025-04-0832 minYour Story Our Fight by Lupus LASeason 4 | Episode #13 with Casting Director and Lupus Patient, Hayley WeinsteinSeason FOUR Episode THIRTEEN of the Your Story Our Fight® podcast welcomes Hayley Weinstein. Diagnosed in 1999 with Lupus, Hayley has struggled with a plethora of various autoimmune health-related challenges over the years. Native to Los Angeles, Hayley has been working for 25+ ( off and on) as a Casting Director, primarily casting Reality TV. Her casting expertise is in casting “real people” in everything from Medical Shows, Competition Shows, and, her favorite, Game Shows. She is currently wrapping up Season 53 as The Contestant Producer of The Price is Right.
2025-03-2534 minYour Story Our Fight by Lupus LASeason 4 | Episode #12 with Doctor of Acupuncture, Traditional Chinese Medicine and Lupus Patient, Dr. Shabnam EsmailzadehSeason FOUR Episode TWELVE of the Your Story Our Fight® podcast welcomes Dr. Shabnam Esmailzadeh. Shabnam is a Doctor of Acupuncture and Traditional Chinese Medicine. Diagnosed with lupus at the age of 18, she took charge of her well-being by focusing on mental, emotional, physical, and spiritual health. This personal journey has deeply shaped her practice, inspiring her to guide her patients toward balance and wellness through the same comprehensive approach. With a passion for integrative healing, Dr. Esmailzadeh empowers individuals to take control of their health and find harmony in their lives.
2025-03-1132 minYour Story Our Fight by Lupus LASeason 4 | Episode #11 with OBGYN, Fertility Specialist and Lupus Patient, Dr. Katherine VanHiseSeason FOUR Episode ELEVEN of the Your Story Our Fight® podcast welcomes Dr. Katherine VanHise. Katherine is an OBGYN and fertility specialist based in Beverly Hills, California. Immediately following her graduation from OBGYN residency she developed her first symptoms of lupus. Her diagnosis of SLE came 15 months later after consulting with over 20 physicians across different specialties and institutions. Her journey navigating the health care system and a lupus diagnosis significantly transformed her personal and professional life. She aspires to empower her patients and those around her to maintain hope in times of uncertainty and continually advocate for themselves.
2025-02-2528 minYour Story Our Fight by Lupus LASeason 4 | Episode #10 with Author, Business Coach, National Trainer and Lupus Patient, Connie SparksSeason FOUR Episode TEN of the Your Story Our Fight® podcast welcomes Connie Sparks. Connie Sparks is the Founder of Wadeco Business Center, LLC a MWBE, DBE, WOSB, and SB-designated entity. Connie’s consulting and financing career spans over 24 years and is widely recognized as an award-winning leading expert on business development, strategic planning, and supplier contracting. She has worked with business owners at all levels, on building their businesses, tapping into new markets, and more importantly, changing their mindsets to forward-thinking CEOs. Connie has been honored by the San Fernando Valley Business Journal Women's Council- Business Owner of the Y...
2025-02-1129 minYour Story Our Fight by Lupus LASeason 4 | Episode #9 with Mother and Lupus Patient, Alicia EvansSeason FOUR Episode NINE of the Your Story Our Fight® podcast welcomes Alicia Evans. Alicia lives with lupus and several other autoimmune and connective tissue diseases, which has made her passionate about raising awareness of chronic illness. As a parent of twins with autism, Alicia has gained unique insights into caregiving and advocacy. She enjoy decorating with and selling vintage items, as well as creating succulent, seashell décor & jewelry.
2025-01-2829 minYour Story Our Fight by Lupus LASeason 4 | Episode #8 with owner of Regan MOVES, Regan BirrSeason FOUR Episode EIGHT of the Your Story Our Fight® podcast welcomes Regan Birr. Regan is the owner of Regan MOVES, a wellness and fitness company for people with chronic challenges. Regan has lupus and arthritis. She spent many years in severe pain, until she started exercising in a special way: she holds a bachelor’s degree in mechanical engineering from the University of Saskatchewan and used her background to design a low-torque, easy-on-the-joints exercise program. She earned her personal and group training certification, and teaches Regan MOVES 3 days a week, online. Regan believes that even though it can be e...
2025-01-1427 minYour Story Our Fight by Lupus LASeason 4 | Episode #7 with Dental Hygienist, Current Dental Student and Lupus Patient, Risa Regalado, RDHSeason FOUR Episode SEVEN of the Your Story Our Fight® podcast welcomes Risa A. Regalado, RDH. Risa A. Regalado, RDH is the youngest of 3 siblings (2 older brothers) and grew up in Laguna Niguel, Ca. Risa attended undergrad at UCSB, then dental hygiene at USC. She practiced hygiene for a decade in Santa Monica and Beverly Hills before moving to Arizona for dental school. Risa is currently a third year dental student at Midwestern University.
2024-12-1137 minYour Story Our Fight by Lupus LASeason 4 | Episode #6 with Master Certified Grief and Transformation Coach and Lupus Patient, Olivia AbousaidSeason FOUR Episode SIX of the Your Story Our Fight® podcast welcomes Olivia Abousaid. Master Certified Grief and Transformation Coach, Olivia Abousaid understands the profound significance of resilience through her own journey. She was diagnosed with discoid lupus and SLE in July of 2021. Olivia has cultivated a deep appreciation for personal growth and transformation while navigating the limitations of chronic illness. Based in Los Angeles, she harnesses her life experiences and coaching expertise to empower individuals to transform grief into action and empowerment. Olivia's coaching transcends one-size-fits-all solutions. She creates a safe, supportive space for clients to explore their u...
2024-11-2628 minYour Story Our Fight by Lupus LASeason 4 | Episode #5 with Computer Scientist, Certified Yoga Instructor, Lupus Advocate and Lupus Patient, Sheba Family ZamanSeason FOUR Episode FIVE of the Your Story Our Fight® podcast welcomes Sheba Family Zaman. As a computer scientist, Sheba has spent the last 20 years working in a technical software role with the quality department of pharmaceutical and life science companies. Her role spans from pre-sales technical information to professional services post-sale with the goal of digitizing critical data that can affect patient safety. She speaks regularly at industry conferences on data integrity and contamination control strategies for aseptic drug manufacturers. She was recently President of non-profit organization – the Parenteral Drug Association, SouthernCalifornia Chapter – for an elected term of 2 years...
2024-11-1236 minYour Story Our Fight by Lupus LASeason 4 | Episode #4 with Model, Actress, Designer, Lupus Advocate and Lupus Patient, Mercedes YvetteSeason FOUR Episode FOUR of the Your Story Our Fight® podcast welcomes Mercedes Yvette. Mercedes Yvette Shorte gained fame as a contestant on America’s Next Top Model, leading to a successful 20-year career in modeling and acting. She later became a spokesperson for the Lupus Foundation of America, advocating for awareness and funding on a national level.Now, Mercedes channels her passion into the luxury design world through Luxe Design Living, providing tailored furnishings and décor solutions to the design community and beyond. Representing high-end manufacturers, she brings exquisite products to life in both residential and comm...
2024-10-2230 minYour Story Our Fight by Lupus LASeason 4 | Episode #3 with Functional Medicine Health Practitioner, and Certified Naturopathic Practitioner, Tiffany KaloustianSeason FOUR Episode THREE of the Your Story Our Fight® podcast welcomes Tiffany Kaloustian. Functional Medicine Health Practitioner, and Certified Naturopathic Practitioner. Tiffany's personal journey battling severe lupus has fueled her passion for helping others find their path to wellness. She is well versed in a variety of holistic healing modalities, including nervous system regulation, Vagal tone, nutrition, detoxing, mindful practices, movement, and purposeful supplement protocols. Tiffany shares not only her profound personal story of battling and overcoming lupus, but also how she uses her expertise to change lives daily.
2024-10-0828 minYour Story Our Fight by Lupus LASeason 4 | Episode #2 with Nurse Practitioner, Charissa BarsosSeason FOUR Episode TWO of the Your Story Our Fight® podcast welcomes Charissa Barsos. Charissa is a nurse practitioner with over 15 years of medical experience. She graduated with her BSN from Millikin University in Decatur, IL, in 2010 and worked as a cardiothoracic surgery RN for 5 years. Charissa graduated with her FNP from Olivet Nazarene University in Bourbonnais, IL, in 2015 and DNP from Indian Wesleyan University in Marion, IN, in 2023. She has been a nurse practitioner for almost 10 years and is currently practicing in a tribal health facility in Northern California. She is board-certified in diabetes management. She resides with h...
2024-09-2521 minYour Story Our Fight by Lupus LASeason 4 | Episode #1 with Integrative Nutrition Health Coach and Lupus Patient, Elizabeth Lo SerroSeason FOUR Episode ONE of the Your Story Our Fight® podcast welcomes Elizabeth Lo Serro. As a certified Integrative Nutrition Health Coach, Elizabeth helps clients alleviate fatigue, pain, and rashes while promoting the growth of beautiful, healthy hair. Through her unique approach, Elizabeth empowers people to feel energized, resilient, and radiant. With her expertise in holistic health and her own lived experience with Lupus for 21 years, having been diagnosed at 5 years old, Elizabeth's mission is to build bridges between individuals and their health goals, fostering transformative journeys towards vibrant well-being.
2024-09-1029 minYour Story Our Fight by Lupus LASeason 3 | Episode #18 with Musician, Lupus Advocate and Lupus Patient, Dion LangleySeason THREE Episode EIGHTEEN of the Your Story Our Fight® podcast welcomes Dion Langley. Dion was born and raised in Portsmouth, Va. He was diagnosed withSystemic Lupus Erythematosus ( SLE ) in 2010. Dion decided to use his career as a professional drummer as an avenue to promote Lupus advocacy. Dion also established the #BeatLupus organization as a place where people affected by Lupus can meet in person to provide individual with emotional support, practical advice for living with Lupus and information about treatment and management strategies. In 2020 Dion released "BEAT IT LIKE A DRUM," a song dedicated to the L...
2024-06-2531 minYour Story Our Fight by Lupus LASeason 3 | Episode #17 with Board member of the Lupus Research Alliance, Lupus Advocate and Lupus Patient, Molly McCabeSeason THREE Episode SEVENTEEN of the Your Story Our Fight® podcast welcomes Molly McCabe. Molly McCabe began her career at the young age of 16 when she joined the inaugural board for the Kids Making Miracles program at Doernbecher Children’s Hospital. She also was part of the founding family that created Potluck in the Park in 1993 where she served the homeless every Sunday for three years. Molly worked as a CASA and served on the Family Council of the Scripps family.Molly and her mother, Debbie McCabe, created the nonprofit, Molly’s Fund Fighting Lupus, in 2007 and she served...
2024-06-1125 minYour Story Our Fight by Lupus LASeason 3 | Episode #16 with Advocate, Educator, and Founder of Lupus In Color, Racquel DozierSeason THREE Episode SIXTEEN of the Your Story Our Fight® podcast welcomes Racquel Dozier. Racquel H. Dozier is a passionate lupus advocate, educator, and the founder of Lupus In Color. Her mission is to educate, inspire, encourage, and empower lupus warriors and their supporters worldwide. Through Lupus In Color, Racquel advocates for lupus warriors one butterfly at a time, striving to make a positive impact in the lives of those affected by lupus.
2024-05-2830 minYour Story Our Fight by Lupus LASeason 3 | Episode #15 with Spoken Word Poet, Singer, Education Consultant, and Lupus Patient, Shanelle GabrielSeason THREE Episode FIFTEEN of the Your Story Our Fight® podcast welcomes Shanelle Gabriel. Shanelle Gabriel is a spoken word poet, singer, education consultant, and lupus warrior from Brooklyn, NY. She has shared her fusion of poetry and soulful singing in esteemed venues from The Vatican to Lincoln Center, and has penned and featured in national poetry campaigns with Pandora Music, NFL Draft, and more. With over 18 years as an educator, she uses the arts to facilitate workshops on creating culturally supportive work and learning spaces. She is the mother of three albums, which are available on all streaming p...
2024-05-1431 minYour Story Our Fight by Lupus LASeason 3 | Episode #14 with Founder and Chief Executive Officer of LupusChat, Tiffany PetersonSeason THREE Episode FOURTEEN of the Your Story Our Fight® podcast welcomes Tiffany Peterson. Tiffany is a New York City-based patient advocate whose inspiration arose from her battles within the healthcare system following her diagnosis of systemic lupus erythematosus in 2010. She is the Founder and Chief Executive Officer of LupusChat, a patient/caregiver-driven online community established in 2012 designed to educate all entities in the healthcare sector sparking innovative discussions and breaking restrictive barriers between patients and various healthcare stakeholders.
2024-04-2327 minYour Story Our Fight by Lupus LASeason 3 | Episode #13 with Artist, Mother and Lupus Advocate, Donna JordanSeason THREE Episode THIRTEEN of the Your Story Our Fight® podcast welcomes Donna Jordan. Born in the vibrant city of Newark, NJ in 1956, Donna emerged as an artist nurtured by the rich tapestry of culture and creativity surrounding her. From an early age, her parents encouraged her artistic freedom, leading her to immerse herself in every art program Newark had to offer.Donna's journey began with humble yet impactful beginnings, as she adorned church walls with thematic murals and painted holiday scenes on local storefronts, igniting a passion for visual storytelling. High school beckoned her to the prestigious A...
2024-04-0939 minYour Story Our Fight by Lupus LASeason 3 | Episode #12 with Graphic Designer, Influencer and Lupus Patient, Seda BryantSeason THREE Episode TWELVE of the Your Story Our Fight® podcast welcomes Seda Bryant. Seda Bryant is an overcomer, mother, graphic designer, storyteller & influencer. She’s using her gifts to turn pain into purpose. She created the first digital stickers for all social media platforms for stories, video reels, Tik Toks & Snaps for Lupus Awareness Month, World Lupus Day and to spread lupus awareness every day. They have amassed 2 million uses and views in less than a year. On Instagram @OvercomeLupus, her insightful posts provoke conversation and community for Lupus Warriors, by sharing stories while elevating awareness and promoting self...
2024-03-2634 minYour Story Our Fight by Lupus LASeason 3 | Episode #11 with Realtor, Salon Owner, Philanthropist and Lupus Patient, Kim PeacockSeason THREE Episode ELEVEN of the Your Story Our Fight® podcast welcomes Kim Peacock. Realtor, Salon Owner, Philanthropist, wife, and mother of four amazingly beautiful children. Kim was diagnosed with Lupus in 2008, Rheumatoid Arthritis in 2019, just to name a few life altering chronic illnesses. Kim, age 53, was born and raised in Santa Monica CA and currently resides in the Phoenix AZ metro area.
2024-03-121h 09Your Story Our Fight by Lupus LASeason 3 | Episode #10 with Certified Holistic Nutritionist, Autoimmune Nutrition Specialist, Fitness Coach, Forager and Lupus Patient, Genny MackSeason THREE Episode TEN of the Your Story Our Fight® podcast welcomes Genny Mack. Genny Mack’s mission is to empower women to redefine what ‘eating good’ means and to thrive by prioritizing the whole self. Genny transformed her overall well-being, after being diagnosed with lupus and kidney nephritis, by transitioning to eating whole nourishing foods from mother mature and by practicing mindfulness, and now has more mental clarity, energy and purpose than ever before. This led her to become a Certified Holistic Nutritionist, Autoimmune Nutrition Specialist, Fitness Coach and Forager and has changed many lives through clean eating, movemen...
2024-02-1330 minYour Story Our Fight by Lupus LASeason 3 | Episode #9 with Student, Lupus Advocate and Lupus Patient, Sam GehrlsSeason THREE Episode NINE of the Your Story Our Fight® podcast welcomes Samantha Gehrls. Samantha Gehrls is a Lupus fighter and advocate who resides in Phoenix, Arizona. Sam is 27 years old and was diagnosed with Lupus when she was 25, but has been sick since she was 20. Sam is passionate about helping others get through difficult times and diagnosis, as she wants to spread the word to not give up! Through eastern and western medicine, Sam has regained so much of her life back and now is on a journey of healing and helping. She has had numerous surgeries and t...
2024-01-2329 minYour Story Our Fight by Lupus LASeason 3 | Episode #8 with Author and Lupus Patient, Amanda Chay with Professional in Sports Management and Lupus Patient, Ahnna ChaySeason THREE Episode EIGHT of the Your Story Our Fight® podcast welcomes Amanda and Ahnna Chay. Amanda Chay is a lupus warrior and author of “The Girlfriend’s Guide to Lupus”. Her book serves as a beacon of hope for women grappling with lupus, providing practical, health-focused steps that empower them to prioritize their well-being. Amanda's oldest daughter, Ahnna, also navigates life with lupus while working in professional sports management. Together, as this dynamic mother-daughter lupus duo, they prove that no battle is faced in isolation. Their shared medical journey not only offers strength but also has a remarkable way of...
2024-01-0931 minYour Story Our Fight by Lupus LASeason 3 | Episode #7 with Student and Lupus Patient, Eve McAusland & CPA and Mother Margi McAuslandSeason THREE Episode SEVEN of the Your Story Our Fight® podcast welcomes Eve and Margi McAusland. Eve is a 15 year old sophomore at Notre Dame Academy who has had lupus sense she was 13. Her mom, Margi, is a CPA and has had Sjogrens since 2019. Eve has been working through her diagnosis by finding ways to take care of herself through her web of support including her family, friends, doctors and lupus LA. While her journey has been hard she looks forward to being able to share it with others to raise awareness and let people know they’re not alo...
2023-12-1225 minYour Story Our Fight by Lupus LASeason 3 | Episode #6 with Influencer, Healthcare Worker and Lupus Patient, Sharan SinghSeason THREE Episode SIX of the Your Story Our Fight® podcast welcomes Sharan Singh. Sharan is a twenty-three year old UC Irvine graduate, a current healthcare worker, Content Creator on TikTok, Lupus Advocate/Warrior and a future Physician Assistant. Sharan is passionate about working in the field of Rheumatology in the future as a healthcare provider. She has implemented holistic healing into her own health journey and is an advocate for holistic healing for Lupus patients as it has helped her achieve optimal health despite her physical battles. She has perserveared through multiple joint replacements/surgeries and is passionate a...
2023-11-2127 minYour Story Our Fight by Lupus LASeason 3 | Episode #5 with EVP of Drama Series at NBCUniversal and Lupus Patient, Cara DellaversonSeason THREE Episode FIVE of the Your Story Our Fight® podcast welcomes Cara Dellaverson. Cara Dellaverson joined NBC in 2015 as Senior Vice President of Drama Development and was promoted to Executive Vice President for the network in 2018. In 2020 she was elevated to EVP of Drama Series across all platforms including NBC, Peacock, USA and SYFY. In this role she currently oversees development and current programming across all platforms and manages both teams of executives alongside co-department head Alex Sepiol. Together they are responsible for over 100 development projects and 20 current series in various stages of production and have been part of...
2023-11-1436 minYour Story Our Fight by Lupus LASeason 3 | Episode #4 with Model, Actress, Lupus Patient & Advocate, Kay DanielsSeason THREE Episode FOUR of the Your Story Our Fight® podcast welcomes Kay Daniels. Kay is a 25 year old independent model & actress, Lupus patient and advocate. At the age of 14, Kay was diagnosed with Lupus SLE. It has always been an aspiration of Kay's to have the opportunity of sharing my story with the world, to better relate with other young girls like herself. Kay wants to show them that all things are possible, and that Lupus does not define them, no matter how much it may feel that way.
2023-10-2427 minYour Story Our Fight by Lupus LASeason 3 | Episode #3 with Yoga Athlete, Instructor, Model, Influencer, Lupus Patient & Advocate, Victoria GibbsSeason THREE Episode THREE of the Your Story Our Fight® podcast welcomes Victoria Gibbs. Victoria began practicing yoga ten years ago and from the first time that she stepped onto her mat, her passion was evident; shaping her into the woman she is today. Victoria is a Dartmouth College graduate, a former financier turned health and wellness entrepreneur, she is also a full time yoga athlete, instructor, model, influencer, digital content creator, and lupus warrior. Victoria genuinely believes in the mind-body benefits of yoga and has found that it has helped her to overcome mental and emotional struggles and s...
2023-10-1028 minYour Story Our Fight by Lupus LASeason 3 | Episode #2 with Founder and CEO of Bare Bodhi & Lupus Patient, Ashley GreeneSeason THREE Episode TWO of the Your Story Our Fight® podcast welcomes Ashley Greene. Ashley Greene is the Founder and CEO of Bare Bodhi. Growing up in a salon with a hairdresser mother, Ashley developed a passion for beauty early on. While assisting one of the biggest names in the industry, Ashley was diagnosed with lupus, which prompted her to embark on a mission to promote both internal and external wellness. Her love for long nails and soft skin led her to create a patented flagship product, the fingerless exfoliating bath glove, designed specifically for women with long nails. This...
2023-09-2623 minYour Story Our Fight by Lupus LASeason 3 | Episode #1 with Cyber Security Program Manager, Board Member of EMT Advisory Board, Lupus Advocate & Lupus Patient, Shamekka MartySeason THREE Episode ONE of the Your Story Our Fight® podcast welcomes Shamekka Marty. In 2012, Shamekka was diagnosed with Lupus, Scleroderma, Mixed Connective Tissue Disease,Reynaud’s, and Sjogren’s Syndrome. Shamekka seeks to motivate others who are in the same boat as her. She speaks on various public platforms, has a blog, a vlog , provides career counseling, and more to help Lupus patients in their journey. She currently resides in the Bay Area in California with her husband and three children.
2023-09-1229 minYour Story Our Fight by Lupus LASeason 2 | Episode #24 with Lupus Advocate and Lupus Patient, Emmitt Henderson IIISeason TWO Episode TWENTY-FOUR of the Your Story Our Fight® podcast welcomes Emmitt Henderson III. Emmitt Henderson III was diagnosed with Systemic Lupus and Lupus Nephritis in 1995 but had symptoms going back to 1980. Through the years, he has endured major complications from heart, liver, kidney and lung failures, avascular necrosis that led to a shoulder and knee replacement. He had a clinical trial, bone marrow stem cell transplant; he was on oxygen due to his lung failure and had a kidney transplant due to kidney failure. He was also diagnosed with Rheumatoid Arthritis, Sjogrens Syndrome, MTCD as well as h...
2023-06-1326 minYour Story Our Fight by Lupus LASeason 2 | Episode #23 with Social Media Influencer and Lupus Patient, Samantha BootheSeason TWO Episode TWENTY-THREE of the Your Story Our Fight® podcast welcomes Samantha Boothe. Samantha was diagnosed with lupus at the age of 14, and she has been sharing her journey with lupus online since 2010. Her main goal is to create relatable and informative content to empower anyone navigating life with chronic illness. When Samantha was diagnosed with lupus, she searched the internet for someone to relate to but had trouble finding any resources. This realization pushed Samantha to start sharing her story on YouTube. As time passed, Samantha's YouTube channel grew, and she was surrounded by others who had s...
2023-05-2327 minYour Story Our Fight by Lupus LASeason 2 | Episode #22 with Attorney, Author, Patient Advocate and Lupus Patient, Olga Luca TorresSeason TWO Episode TWENTY-TWO of the Your Story Our Fight® podcast welcomes Olga Lucia Torres. A few years after law school, Olga was diagnosed with lupus and eventually the doctors found she had 4 other autoimmune diseases. Olga's health has never stopped her from following her dreams and attending Cornell University and Georgetown University Law School on scholarships. In August of 2000, Olga went to the hospital for routine medical care. She was supposed to be discharged in 2 to 3 days. Instead Olga ended up in a coma and with an iatrogenic brain injury. It took six years of inpatient and outpatient r...
2023-05-0939 minYour Story Our Fight by Lupus LASeason 2 | Episode #21 with Medical Writer and Lupus Patient, Melissa WalkerSeason TWO Episode TWENTY-ONE of the Your Story Our Fight® podcast welcomes Melissa Walker. Melissa is a Medical Writer, with a biomedical research background focusing on traumatic spinal cord injury and traumatic brain injury. She earned her Ph.D. in Medical Neuroscience from Indiana University School of Medicine before returning to UCLA department of Neurosurgery, for postdoctoral research. She was diagnosed with Graves’ thyroid disease in 2002, and has had Hashimoto’s since 2003, after radioiodine ablation therapy. She was diagnosed with Systemic Lupus and Rheumatoid Arthritis in 2005, and Sjogren’s in 2016.
2023-04-2533 minYour Story Our Fight by Lupus LASeason 2 | Episode #20 with Lupus LA Board Member, Lupus Advocate and Lupus Patient, Stacey UberstineSeason TWO Episode TWENTY of the Your Story Our Fight® podcast welcomes Stacey Uberstine. Stacey graduated from California State University Northridge in 1990 with a bachelor of science degree in Health Administration with a computer science minor. One of her most notable jobs was helping to establish the Industrial Care Center which is operational at San Pedro Hospital. In 1993 Stacey transitioned into the insurance industry where she owned and operated her own State farm Agency for over a decade. Stacey was diagnosed with lupus in 1994. She stays abreast of the disease and all related medical breakthroughs and advances in research. Stac...
2023-04-1130 minYour Story Our Fight by Lupus LASeason 2 | Episode #19 with Actress, National Spokesperson for the Autoimmune Association, Author and Lupus LA Ambassador, Kellie MartinSeason TWO Episode NINETEEN of the Your Story Our Fight® podcast welcomes Kellie Martin. Kellie began acting at the age of seven. She is most fondly remembered for playing Becca Thacher on the groundbreaking ABC family drama Life Goes On, for which she received an Emmy nomination. And, her portrayal of Lucy Knight, a precocious med student who met an untimely demise after two seasons on NBC’s ER, haunts viewers to this day. Kellie has been a been a regular on numerous series including, The Guest Book, Army Wives, Mystery Woman, and on Hallmark’s Hailey Dean, where she s...
2023-02-2834 minYour Story Our Fight by Lupus LASeason 2 | Episode #18 with Lupus Patient and Policy, Advocacy and Mobilization Manager for SisterLove, Inc., J. Christopher ReedSeason TWO Episode EIGHTEEN of the Your Story Our Fight® podcast welcomes J. Christopher Reed. Christopher Reed was diagnosed with lupus in 1990 at the age of 16. Despite several serious attacks to his organ system, he earned a bachelor’s degree with honors from the Georgia State University and a law degree from Tulane University. He managed his first job out of law school juggling lupus nephritis and horrible chemotherapy treatments. After an 18 year career in litigation, Christopher has devoted his life to public health and health policy. He is the Policy, Advocacy, and Mobilization Manager for SisterLove, Inc. an orga...
2023-02-1443 minYour Story Our Fight by Lupus LASeason 2 | Episode #17 with Special Education Teacher, Mother and Lupus Patient, Alma TorresSeason TWO Episode SEVENTEEN of the Your Story Our Fight® podcast welcomes Alma Torres. Alma is in her twelfth year working in education. Alma was diagnosed with lupus in the summer of 2009. In 2014, her younger sister was diagnosed with lupus. She went from lupus patient to lupus patient/care giver. In 2020, Alma's sister lost her battle with lupus. Since her passing, Alma has struggled with staying healthy, but no matter how she physically feels, she is thankful she gets to experience another day.
2023-01-2444 minYour Story Our Fight by Lupus LASeason 2 | Episode #16 with Lupus Patient, Valerie Gilkey with Dancer & Daughter, Marcella LewisSeason TWO Episode SIXTEEN of the Your Story Our Fight® podcast welcomes Valerie Gilkey and Marcella Lewis. Valerie Gilkey is a 55 year old woman suffering with SLE. She was diagnosed at the early age of 19. Despite doctors advising her of the dangers to her life as well as her child’s, with faith she gave birth to one daughter, Marcella Lewis. Even though it was a challenge, Marcella was trained from the early age of 4 in all disciplines of dance, and is now a world renowned dancer. Today, Valerie still gets her strength to fight so that she can...
2023-01-1034 minYour Story Our Fight by Lupus LASeason 2 | Episode #15 with Lupus Coach, Executive Director of Gibson Lupus ARC and Lupus Patient, Zuriel GibsonSeason TWO Episode FIFTEEN of the Your Story Our Fight® podcast welcomes Zuriel Gibson. Zuriel received her Lupus diagnosis and was told that she wouldn’t live past the age of twenty-four. After many bouts with depression, pain, addictions and hospital stays, she became discontent and decided to use her pain to propel her into purpose. As a lupus survivor and advocate, she has become a much sought after speaker. Her message, “There is purpose in your pain”, has been shared on numerous media outlets such as The Kingdom Broadcast Network, Destiny Channel TV, Something Good is About to Happen...
2022-12-1328 minYour Story Our Fight by Lupus LASeason 2 | Episode #14 with Model, Influencer, Activist and Lupus Patient, Cambria FrancescaSeason TWO Episode FOURTEEN of the Your Story Our Fight® podcast welcomes Cambria Francesca. Life plans were sidelined when she woke up one night to an excruciating pain. A constant pain that she has now grown so accustom to that she no longer remembers what it felt like to be painless. Having a sister with SLE and a father with Discoid, Cambria's mother knew that there’s 11 criteria for a Lupus diagnosis and that a low white blood cell count falls under one of them. They ran tests and confirmed, she has Systemic Lupus Erythematosus.While recovering in the...
2022-11-2227 minYour Story Our Fight by Lupus LASeason 2 | Episode #13 with Biomedical Scientist, TEDx Speaker, Adjunct Professor and Lupus Patient, Judith MillsSeason TWO Episode THIRTEEN of the Your Story Our Fight® podcast welcomes Judith Mills. Judith Mills is a Biomedical scientist, a TEDx speaker, an adjunct professor, lupus & disability advocate. October 1999, Judith's Lupus diagnosis was a relief after 3 years of constant doctors visit with symptoms of fatigue, loss of appetite, body aches, and hair loss. It shattered her dreams of being a beauty pageant queen, a modern dancer, and the next Flo-Jo. Judith has been featured on online platforms such as Blackman Can, Rizzar, Scoop it, and others. She is the recipient of the 2012 Black Street "Black Celebration" Award wi...
2022-11-0832 minYour Story Our Fight by Lupus LASeason 2 | Episode #12 with High School Student and Lupus Patient, Lexi HamburgerSeason TWO Episode TWELVE of the Your Story Our Fight® podcast welcomes Lexi Hamburger. Lexi Hamburger is a high school student and lupus patient. Lexi was diagnosed with lupus two years ago. For the past year, she has been sharing her experiences navigating high school with a chronic illness. In her free time, she enjoys spending time with her family and friends, skiing, and golfing.
2022-10-2531 minYour Story Our Fight by Lupus LASeason 2 | Episode #11 with Abstract Artist, Visual Communicator and Lupus Patient, Fatema SiddikiFatema Siddiki is an Abstract Artist and a visual communicator. After being diagnosed with Lupus and Scleroderma in 2007, her life took a miraculous turn. Art was there for Fatema when no one was, it helped her overcome her worst days when she was fighting against Lupus. Art soon became her therapy and purpose to fight.
2022-10-1129 minYour Story Our Fight by Lupus LASeason 2 | Episode #10 with Property Manager and Lupus Patient, Raven LeximeSeason TWO Episode TEN of the Your Story Our Fight® podcast welcomes Raven Lexime. Raven Lexime currently live and works in the Inland Empire. Raven has worked retail most her life and transition into property management in late 2003. When Raven is not working, she enjoys traveling and spending time with close family and friends. Raven is Lupus Patient. She hopes to continue helping support organizations that focus on treatment research and support groups within the Lupus Community.
2022-09-2729 minYour Story Our Fight by Lupus LASeason 2 | Episode #9 with Correctional Officer and Photographer, Teri Scott with Author and Magazine Owner, Demetria BuieSeason TWO Episode NINE of the Your Story Our Fight® podcast welcomes Teri Scott and Demetria Buie. Teri T. McIntyre-Scott is a 43 year a mother of two who lives in Clewiston, Florida. She is a certified correctional officer and has been on the job for almost 20 years. She also has her own photography business, T'Shots Photos. She has been battling lupus for 25 years but refuses to let it slow her down. Demetria Buie is a Businesswoman, Author, Mentor, & Magazine Owner who lives in the Louisiana area. She hosts Conferences & Retreats for female entrepreneurs in business and ministry all ov...
2022-09-1328 minYour Story Our Fight by Lupus LASeason 2 | Episode #8 with Legendary Producer, Lauren Shuler DonnerSeason TWO Episode EIGHT of the Your Story Our Fight® podcast welcomes Lauren Shuler Donner. Lauren Shuler Donner has produced many films, including Pretty in Pink, Free Willy, St Elmo’s Fire, Dave, You’ve Got Mail, Secret Life of Bees, and nine X-men movies. She was also an Executive Producer on another seven films and five tv shows including “Legion." Lauren has been honored with a star on Hollywood Blvd. and has received her honorary Doctorate from Boston University.
2022-08-3033 minYour Story Our Fight by Lupus LASeason 2 | Episode #7 with Writer, Producer, Director and Lupus Patient, Nzingha StewartSeason TWO Episode SEVEN of the Your Story Our Fight® podcast welcomes Nzingha Stewart. Nzingha Stewart attended NYU’s Gallatin School and upon graduation went on to shoot over a hundred music videos for artists like Common, Eve, Jay-Z, and 50 Cent breaking down barriers for women of color in the music video world along the way.An equally in-demand commercial director, Nzingha has also filmed clips for ESPN, McDonald’s, and Coors Light among others. Having recently directed episodes of Little Fires Everywhere, Black Monday, Greys Anatomy, A Million Little Things, Good Girls, Scandal, How To Get Away With...
2022-08-0931 minYour Story Our Fight by Lupus LASeason 2 | Episode #6 with Chronic Illness and Lupus Patient, Mother, Wannabe Gardener Krissy StephensonSeason TWO Episode SIX of the Your Story Our Fight® podcast welcomes Krissy Stephenson. Krissy has been living with chronic illnesses for over 12 years. Her full time job is managing her health and household with a supportive husband, two boys and 2 dogs.
2022-07-2635 minYour Story Our Fight by Lupus LASeason 2 | Episode #5 with Patient Advocate and Lupus Patient, Lauren FentySeason TWO Episode FIVE of the Your Story Our Fight® podcast welcomes Lauren Fenty. Lauren's Lupus journey began in 2013. She has experience in Healthcare primarily focused on Patient Advocacy and Clinical informatics. Her passion is to promote awareness for Lupus.
2022-07-1225 minYour Story Our Fight by Lupus LASeason 2 | Episode #4 with Founder and CEO of Gemini Beauty Products, Joann Zehenni and Director of TeachPlayLern & Lupus Patient, Jennifer ZehenniSeason TWO Episode FOUR of the Your Story Our Fight® podcast welcomes sisters Joann and Jennifer Zehenni. Joann Zehenni is a 17-year-old entrepreneur and the founder and CEO of Gemini Beauty. Having family members with lupus, and having borderline lupus herself, Joann was inspired to develop Gemini Beauty to accommodate those in need of clean, natural skincare products. A native Angeleno, Joann will be attending Loyola Marymount University in August 2022 while running her business and advocating for lupus awareness! Jennifer Zehenni is a lupus patient, and the founder and director of TeachPlayLearn, an educational concierge for the whole family. ...
2022-06-2840 minYour Story Our Fight by Lupus LASeason 2 | Episode #3 with Model and Actress, Abby Mooring and her Mother, Tina Allen, a Lupus PatientSeason TWO Episode THREE of the Your Story Our Fight® podcast welcomes Abby Mooring and Tina Allen. Abby and Tina are from North Carolina. Abby moved across the country to Los Angeles last August to continue her modeling and acting careers. Abby has worked on editorials for New York Fashion Week, London Fashion Week, and multiple commercial, TV, film and voice acting roles. Tina Allen has been a Lupus Patient for seven years. Abby is working to advocate for her mother and bring more awareness to the Lupus Community.
2022-06-1425 minYour Story Our Fight by Lupus LASeason 2 | Episode #2 with Advisory Council Char at ReelAbilities, Owner of Snugs & Sweets and Lupus Patient, Jordana Sandler ManzanoSeason TWO Episode TWO of the Your Story Our Fight® podcast welcomes Jordana Sandler Manzano. Jordana Sandler Manzano, a trained chef, has worked in restaurants and event planning, volunteers for other organizations, and is raising three children with her husband, David. She enjoys putting her culinary degree to work baking challah and other sweet treats for family and friends, and recently began her own business, Snugs & Sweets. Jordana has been involved in many areas of the Marlene Meyerson JCC Manhattan for over a decade, and has been a member of the board of directors since 2013. Currently she is chair o...
2022-05-2430 minYour Story Our Fight by Lupus LASeason 2 | Episode #1 with Lupus Advocate, Elizabeth SantaCruz and Lupus Patient, Mia SantaCruzSeason TWO Episode ONE of the Your Story Our Fight® podcast welcomes Elizabeth and Mia SantaCruz. Elizabeth became a passionate advocate for raising Lupus Awareness after her daughter was diagnosed with lupus at the young age of 8. As a parent and caregiver, she was invited by to participate as a Lupus Advocate at the Annual Advocacy Meeting and Hill Day in Washington D.C. to meet with Congressional members and their staff to discuss the support for Lupus research.
2022-05-1024 minYour Story Our Fight by Lupus LAEpisode #26 with Director, Actress, and Writer, Nell TeareEpisode TWENTY-SIX of the Your Story Our Fight® podcast welcomes Nell Teare. Nell Teare is a Lupus patient, award winning writer, producer, actress and director of over 120 projects including more than a dozen foreign language dubs for Netflix.
2022-02-2231 minYour Story Our Fight by Lupus LAEpisode #25 with Artist, Author and Lupus Advocate, Emily SuñezEpisode TWENTY-FIVE of the Your Story Our Fight® podcast welcomes Emily Suñez. Emily Suñez is a Lupus patient, artist and author of her new book, The Healing Journal.
2022-02-0833 minYour Story Our Fight by Lupus LAEpisode #24 with Founder of Lupus Kids and Lupus Patient, Lola KarkEpisode TWENTY-FOUR of the Your Story Our Fight® podcast welcomes Lola Kark. Lola Kark is a Lupus patient, Founder of Lupus Kids and High School student.
2022-01-2524 minYour Story Our Fight by Lupus LAEpisode #23 with Photographer, Student and Lupus Patient, Jacqueline StewartEpisode TWENTY-THREE of the Your Story Our Fight® podcast welcomes Jacqueline Stewart. Jacqueline Stewart is a Lupus patient, photographer and student.
2022-01-1127 minYour Story Our Fight by Lupus LAEpisode #22 with Holistic Health Coach and Lupus Advocate, Cristy PowersEpisode TWENTY-TWO of the Your Story Our Fight® podcast welcomes Cristy Powers. Cristy Powers is a Lupus patient, Lupus advocate, Holistic Health Coach and Author.
2021-12-2128 minYour Story Our Fight by Lupus LAEpisode #21 with Yoga Instructor and Lupus Advocate, Vee Desai GomezEpisode TWENTY-ONE of the Your Story Our Fight® podcast welcomes Vee Desai Gomez. Vee Desai Gomez is a Lupus patient, Lupus advocate, Owner and Lead Instructor at Beach Yoga SoCal.
2021-11-2330 minYour Story Our Fight by Lupus LAEpisode #20 with Teacher and Lupus Advocate, Vania DzibEpisode TWENTY of the Your Story Our Fight® podcast welcomes Vania Dzib. Vania Dzib is a Lupus patient, Lupus advocate and teacher.
2021-11-0930 minYour Story Our Fight by Lupus LAEpisode #19 with Author and Registered Nurse, Sagree NaikerEpisode NINETEEN of the Your Story Our Fight® podcast welcomes Sagree Naiker. Sagree Naiker is a Lupus patient, registered nurse and author of her autobiographical book The Show Must Go On.
2021-10-1930 minYour Story Our Fight by Lupus LAEpisode #18 with National Television Producer and Publicist, Tricia McCroneEpisode EIGHTEEN of the Your Story Our Fight® podcast welcomes Tricia McCrone. Tricia McCrone is a Lupus patient, television producer and publicist for entertainer Wayne Newton.
2021-10-0532 minYour Story Our Fight by Lupus LAEpisode #17 with Lindsay CafritzEpisode SEVENTEEN of the Your Story Our Fight® podcast welcomes Lindsay Cafritz, a LupusLA board member, lupus advocate and freelance writer.
2021-09-2128 minYour Story Our Fight by Lupus LAEpisode #16 with fitness influencers: LaToya Johnson and Julius WhiteEpisode SIXTEEN of the Your Story Our Fight® podcast welcomes LaToya Johnson and Julius White. LaToya Johnson is a Lupus patient and fitness influencer along with her partner, Julius White.
2021-09-0830 minYour Story Our Fight by Lupus LAEpisode #15 with Nancy UtleyEpisode FIFTEEN of the Your Story Our Fight® podcast welcomes Nancy Utley, a lupus patient and the former Chairman of Searchlight Pictures.
2021-08-2424 minYour Story Our Fight by Lupus LAEpisode #14 with Liz MorassoEpisode FOURTEEN of the Your Story Our Fight® podcast welcomes Liz Morasso, a lupus patient and clinical social worker.
2021-08-1026 minYour Story Our Fight by Lupus LAEpisode #13 with Andrea GershwinEpisode THIRTEEN of the Your Story Our Fight® podcast welcomes Andrea Gershwin, a lupus patient and psychotherapist.
2021-07-2020 minYour Story Our Fight by Lupus LAEpisode #12 with Kelly Rotstan PhDEpisode TWELVE of the Your Story Our Fight® podcast welcomes Kelly Rotstan , a lupus patient and pharmaceutical scientist.
2021-07-0623 minYour Story Our Fight by Lupus LAEpisode #11 with Yvette CarrilloEpisode ELEVEN of the Your Story Our Fight® podcast welcomes Yvette Carrillo , a lupus patient, periodontist, and implant surgeon.
2021-06-1531 minYour Story Our Fight by Lupus LAEpisode #10 with Kimmy DelahuntyEpisode TEN of the Your Story Our Fight® podcast welcomes Kimmy Delahunty, a lupus patient and mental health advocate.
2021-05-2528 minYour Story Our Fight by Lupus LAEpisode #9 with Kristen RentonEpisode NINE of the Your Story Our Fight® podcast welcomes Kristen Renton, a lupus patient, actress, and Lupus LA Celebrity Ambassador.
2021-05-1127 minYour Story Our Fight by Lupus LAEpisode #8 with Marisa ZeppieriEpisode EIGHT of the Your Story Our Fight® podcast welcomes Marisa Zeppieri, a lupus patient, author, influencer, and lupus advocate.
2021-04-2033 minYour Story Our Fight by Lupus LAEpisode #7 with Amanda PalleyEpisode SEVEN of the Your Story Our Fight® podcast welcomes Amanda Palley, a lupus patient and Senior Vice President of Current Programs at CBS.
2021-04-0639 minYour Story Our Fight by Lupus LAEpisode #6 with Lorena GordonEpisode SIX of the Your Story Our Fight® podcast welcomes Lorena Gordon, a lupus patient, writer and director of the award winning short film At Last.
2021-03-2331 minYour Story Our Fight by Lupus LAEpisode #5 with Maurissa TancharoenEpisode FIVE of the Your Story Our Fight® podcast welcomes Maurissa Tancharoen, a lupus patient, writer, producer and showrunner of ABC's Agents of Shield.
2021-03-0937 minYour Story Our Fight by Lupus LAEpisode #4 with Peter MorleyEpisode FOUR of the Your Story Our Fight® podcast welcomes Peter Morley, a lupus patient, patient advocate and healthcare activist.
2021-02-2334 minYour Story Our Fight by Lupus LAEpisode #3 with Monica Blied PhDEpisode THREE of the Your Story Our Fight® podcast welcomes Monica Blied Phd, a lupus patient and California Licensed Clinical Psychologist.
2021-02-0934 minYour Story Our Fight by Lupus LAEpisode #2 with Shannon Pawl DerbyEpisode TWO of the Your Story Our Fight® podcast welcomes Shannon Pawl Derby, a lupus patient, fitness, nutrition, and corrective exercise specialist.
2021-01-2627 min
Your Story Our Fight by Lupus LAEpisode #1 with Juana MataEpisode ONE of the Your Story Our Fight® podcast welcomes Juana Mata, a lupus patient and lupus advocate to talk about her life as a patient and her work with Looms 4 Lupus, a popular support group within the lupus community.
2021-01-1227 min
Multiracial Family ManAdoption and mixed race advocate and actress, Santana Dempsey, Ep. 20Ep. 20: An adoption and mixed race advocate, actress Santana Dempsey (http://www.santanadempsey.com/ ), (a University of Missouri alumnus) is a veteran of New York City's Primary Stages, INTAR, Soho Rep, Puerto Rican Traveling Theatre and Carnegie Hall. She also wrote and starred in the critically acclaimed one woman show, “The Other Box” which she workshopped in November 2014 at the Actors Comedy Studio in Los Angeles. Santana is an ambassador for the non profit Mixed Roots Foundation which helps to bring awareness to anyone touched by adoption. On March 14th, Santana joined LupusLA by running in the Asics...
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